Started a Fibroid Discussion Forum at Oprah.com! Visit when you get a chance.
For those who can’t fathom the idea of leaving this site, I’ve created a little Fibroid Forum right here. I set up separate entries to answer questions pulled from comments across the site and search queries. I’ve also included entries that aren’t really questions but seem to generate comments.
Important: Please read the Comment Guidelines before posting!
Questions have been divided into categories and assigned to appropriate pages. Click the link to visit that page of related questions:
- General Information
- Symptoms
- Treatment
- Pre-op
- Post-op Recovery
- Fertility
- Related Problems
- Life
- Speak Out
- Odd Humor
If you have a question and do not see it listed or have a suggestion for a new discussion thread, leave a comment here.
Need to reach EclecticGeek?
Visit the Contact page.
September 10, 2006 at 11:48 pm
Has anybody but ANYBODY managed to heal themselves of fibroids naturally?
I’m talking no medical or surgical intervention…but mind-body healing, herbs, therapeutic vitamin doses, massage – whateva!
With 20-odd years to go before menopause, I would love to cure myself of this condition once and for all…any advice hugely welcome.
[Edited by EclecticGeek. Follow this question in the alternative therapy thread.]
September 11, 2006 at 1:16 pm
This is a common question and I will have a separate post dealing with it (hopefully, in the next day or two). Until then, I’ll leave a link to my comment where I found some info on alternative fibroid treatments (vitamins, herbs, stress-reduction). Once I get the specific post up, I’m sure others will chime in with personal experiences. As a precaution, make sure you find out all you can about any therapy and talk to a health care professional before starting.
November 2, 2009 at 1:11 am
Has anyone been able to feel their fibroid in their back? I have a 10 cm fibroid in the back of my uterus and I can feel a buldge in my back. Thanks!
September 11, 2006 at 9:45 pm
Hey thanks, you!
This link (scroll down the page) may also be of interest:
http://www.earthclinic.com/Remedies/molasses.html
I wonder if anyone else has tried blackstrap molasses as a cure?
Cheers so much for your friendly, fact-filled fibroid site!
Charlotte, NZ
September 12, 2006 at 3:54 pm
Glad that link helped. Hadn’t heard of blackstrap molasses as a cure. From the Wikipedia link, I found these two:
Health Benefits of Blackstrap Molasses
Nutritional Facts and Analysis for Blackstrap Molasses (allows you to adjust serving size)
Here’s another one of my comments. This one explains my process to evaluate online alternative fibroid therapies. It includes a few links from the National Center of Complementary and Alternative Medicine.
Thanks for your kind words.
Cheers!
September 13, 2006 at 5:57 pm
Has anyone else had any problems with deep vein thrombosis? The weight and size of my growth is so big now and is pressing on my veins/arteries. I have had two clots in my legs and have been put on Warfarin (the rat poison!!! – how did they find out that worked?!!!) and I have just spent 2 fun-filled nights in hospital with the suspicion it had travelled to my lungs (phew, it hadn’t) but I really don’t want to have any more problems. In addition I have to come off the Warfarin and go on stomach injections (ughhh!) for a week before my op in 2 weeks!! Any suggestions/comments would be appreciated.
[Edited by EclecticGeek. Follow this question in the deep vein thrombosis thread.]
September 13, 2006 at 7:19 pm
Any one have post op infection [after (abdominal) myomectomy or any other procedure]?
Again, it pays to know your body and question anything out of the ordinary. If it dont feel right …it usually isnt…..
Yet another story in my AM recovery……
5 weeks post abdominal myomectomy..was feeling better except I was having this burning pain around my navel and down the left side of my abdomin for the last week …called doc’s office friday and talked to the nurse (they are gems) ….hummm “maybe your ovulating” nope I know that twing…temperature? no.. problem urinating…nope …It this just part of the healing process?……unless you are having doubled over kind of pain – its probably normal….ok… ( I told myself it doesnt feel right). …well see how you feel over the weekend (Doc was in surgery) and go to ER if it gets worse over the weekend and call back Monday. Didnt get better….
[Edited by EclecticGeek. Visit the post-op infection thread for the full story.
]
September 13, 2006 at 11:20 pm
Charlotte:
The alternative therapy thread is up.
Ann-Marie:
The deep vein thrombosis thread is up.
fibroid free:
The post-op infection thread is up. Since your comment here is so informative, I would like to see it in a comment in the new thread. So you won’t have to type it all over, either you can copy and paste it into a new comment or I can after you post something there. I’ll leave it up to you. Thanks!
September 15, 2006 at 3:32 am
Hi, I’m having an exploratory hysteroscopy next week. Can anyone share their experience with the procedure with me? I am very nervous. Thank you. Anne
[Edited by EclecticGeek. Follow this question in the hysteroscopy experience thread.]
September 16, 2006 at 9:30 pm
Hi Anne,
I was nervous about my hysteroscopic myomectomy (also involved a camera). The hysteroscopy thread is up and there you can find links to the posts about my experience.
September 30, 2006 at 5:05 pm
So I found out I have large fibroids. Have an ultrasound Tuesday to see what is really going on. Have been bleeding, constant pain and discomfort and cant have sex without the assistance of hard core pain medicine beforehand. That is the killer. Used to be one position that hurt but now they all hurt bad. Doctor didnt discuss options other than the Abdomial Myemectomy as she knows I want to have more children ( I have a two year old and am only 30). What I want to know besides just seeing what others have found in coping with sexual problems arising from these, is- Do they automatically test for cancer? She never mentioned that word either, but it is nagging me.
[Edited by EclecticGeek. Follow these questions in the sex and fibroids thread and the fibroids and cancer thread. You can also read the experiences of other women in the Abdominal Myomectomy thread.]
September 30, 2006 at 11:33 pm
Hi Joyous,
Apparently about one case in 800 turns cancerous according to my surgeon. Mine has undergone rapid growth lately which can be a sign. Bummed to hear about the pain during sex for you. Check with your surgeon but I imagnie they test any tumour tissue removed surgically for malignancy.
Good luck and keep us posted!
xxx charlotte xxx
October 1, 2006 at 9:47 am
Hi Joyous,
I am on week 8 recovering from an abdominal myomectomy and I found it extremely difficult to cope with the sex part….sex…sex?? what was that ??? LOL FOr me when you are tring to get pregnant (before I knew about my ‘broids) and trying to fit sex in along with 15 day periods and the 2-3 days on either end of the period as BLAH days (“You know its coming” or “your glad its going” days)…it was difficult becuase I was always tired or in pain during that one “OPEN WEEK”. But…my husband was very understanding…actually worried becuase he knew I was in so much pain….we tried the pillow (because my back aches all the time) under by hips tilted my big heavy fibroid laden uterus even more..ouch….my back. Climbing over my “Budda belly” like a rock climbing expedition became tiresome …lol ..I didnt have any other solution around it but surgery, laughter and promises if “swinging from the rafters after surgery”…. (he still reminds me of that….LOL)…and I say ok hun let me get my tool box and start on that project….LOL it will get better
But seriously your cancer question – I had fibroids that grew extremely fast and extremely large also….My doctor did not initally talk about cancer as well….once I had all the test results (MRI, Ultrasound, vaginal ultrasound, CT scan) then we talked about those things….I think your doctor did the right thing by not bringinig it up now.. WHY??? I assume you just had a physical exam where you could feel the fibroids, right??? she does not have test results to even have a reason to say the “C” word or talk to it – you can have fibroids, or polys or ovarian cysts, endometriosis, adeomysis …so once you get the results you will be able to have a sound discussion with the doc to address exactly what is going on- get together a list of questions to ask your doc next time you go…
My doc did 3 things:
performed an endometrial biopsy prior to surgery to check for cancer. I had a submuccosal ‘broid (protruded into my uterus).
Had a GNY/Oncologist on “call” during surgery (I aslo meet with this doc prior to surgery) in case there was cancer found during surgery – there would be a specialtist there to handle it
during surgery – all fibroids that were removed were sent automatically to pathology test for cancer ….everything came back fine
If your doc does not bring it up – you should- So here are some idea’s for questions
Ask doc about the statictis/risk of fibroids and cancer
Will a endometrial biopsy be performed?
Will a cancer screen be performed on each fibroid removed?
If not all fibroids are removed, will they be checked (tissue sample taken) as well?
Hey throw in the whole ovarian cancer questions as well if you still want kids
Hope all goes well on tuesday
October 12, 2006 at 8:43 pm
Joyous:
I hope all went well with the ultrasound. I put up two new posts here in the Forum:
Are uterine fibroid tumors a sign of cancer?
Sex and fibroids just don’t go together, now do they?
I don’t know if you’ve found this thread yet but you can read about other experiences here:
How are you feeling after your Abdominal Myomectomy?
If you have other questions or thoughts, feel free to post them!
Charlotte:
I often wonder about the rapid growth of fibroids. What are the factors that trigger this? I’ve heard of stress as a possible cause. I actually believe this is what happened in my case. Must add fibroids and stress to my long list of future threads.
fibroid free:
Once again, what’s with the rapid growth? Glad you had a specialist at the ready to handle your case. Really glad the doctor wasn’t needed.
October 14, 2006 at 8:26 pm
Looking for any advice before I have an abdominal myomectomy. It’s coming up in just two months. I have read many of the posts, and can’t seem to stop logging in each day for new information. Thank you, thank you, thank you, everyone, for all of the honest thoughts. It’s like all the stuff your doctor, if he is male, can’t possibly understand. Maybe doctors should read this site so they can better prep their patients.
Down to 135 and 5 to go. I have found that losing the extra weight has really helped with my energy. Any other pre-op advice, and any thoughts on what to expect in that operating room would be very, very helpful. Again, this site ROCKS!!!
Anyway, I’ve known about my fibroid for about 4 or 5 years…could be off on that, but only because I never was very good at keeping track of things that would…turn out to be something I should have kept track of. Anyway, after an ultrasound from a new gyn (the other was a retard) he informed me I had a fibroid the size of (no fruit) a major league baseball. He asked about symptoms – pain, awful bleeding, fatigue, to which I replied: none. Only one thing: I keep going to the bathroom at lot at night. Now mind you, I told him this completely out of context one visit, and he told me it was all about gravity. I’ll leave it at that, because it made no sense to me either. His best advice: if no symptoms, leave the fibroid alone and take a “wait and watch” attitude.
Well, I waited, we watched, and again, I told him, no problems. I would go for my annual pap and feel everything was great. I went on Yasmin after meeting someone (didn’t want a pregnancy in my forties), but after a couple of years on the stuff, I found my boobs were way too tender, and though my periods were light and regular, they lasted the full 7 days I used the dummy pills. So, in 2005, at the age of 46, I said good-bye to the pill. I knew my period would take a while to adjust. And that’s also when I really began noticing something was rotten in the state of Denmark.
I had weight gain. Okay, I was a little less active, but in the summer of 2005, I resolved to get really, really back in shape, and at 5′7″, got my weight to about 130 lbs. Still heavier than I’ve ever been (I used to hover around 123 – 125), but I wasn’t dancing as much (I love ballet and used to stomp away at Flamenco). I noticed a few other things I assumed were perimenopause: night sweats, frequent trips to the bathroom (now daytime too, but constant at night) dry skin, and after summer, weight gain. I also began feeling tired. Here’s the kicker. Just before my period, I would sometimes get a knife-like pain in my left side. It wasn’t pre-menstrual cramping. Something odder. I also had this feeling of having a big rock in my lower abdomen; a heavy feeling, that never went away. I could do a zillion crunches, and get a lovely “three-pack”, meaning I could only get definition at the rib cage area. Below that, it was like someone stuffed a pillow in my stomach. So, I pass on the fact to my GP that I go to the bathroom a lot. She prescribes Detrol. After two or three weeks, no change, so I stop taking it. I’m exhausted each morning (I have to be up at 5:00 am at work by 6:30 am) and I come to the realization that it’s because I wake up four to five times each night to go to the bathroom. I tell my GP. She prescribes Ambien, and for the first time in months, I sleep like the dead. I am cured!!!. So I think.
I still have to go to the bathroom during the day, and now I get to add frequent periods. I start keeping track of my start dates. The time in between the start of each period shrinks from 26 days to now just 20. I can count on the calendar and know in about 20-23 days, I will have another period. The first day: gushers. I switch to super-plus and a pad. Then by day three, barely anything, but I pass clots, and the bleeding, then spotting won’t stop until day 7. So I go to my GP and finally, I say the right words: can you give me a full physical and a referral for a gyn? My old gyn is far from my house and, to top it off, sent a letter to all of his patients that have a certain insurance company (that will remain nameless), that he would require full payment before he submitted a claim to company. Seems this company (even though I have state employee, super duper Preferred Provider stuff) was stiffing the doctors. So he left their network.
When I went in a few weeks later for my full physical, I asked that she go ahead and do a pap and check my fibroid. I told her my last gyn did an ultrasound, and I have one, and I want to know if she can feel it.
Oh boy did she. I go the referral, made an appointment for a month away with this new gyn, but I just couldn’t wait. I went to one of the gyn’s in her office, he did an ultrasound, and my once baseball size fibroid was now a “grapefruit”. I still kept my appointment with the other doctor, who, luckily, had a cancellation and took me the following week.
We consulted. He tried to get my ultrasound from the last doctor, no luck, so he sent me to have another, and this time, read by a radiologist. Smart idea. I have a 7 cm fibroid, only one (as far as they can tell), but it is transmural. It it taking up most of my uterus.
My new gyn goes through my options: hystorectomy (nope) UFE (nope, not for me) and abdominal myomectomy. I say, yeah. But before he takes me at word, he suggests I go to a specialist in laproscopic myomec. to see if a less invasive alternative may be an option. I was very happy that he made the suggestion. He gave the name of a top doctor, I went in ($400 and my insurance wouldn’t cover it) and had a chance to get some very practical, sound advice. It was the best hour and a half I ever paid for. He gave me the pros and cons of each method and to what to watch out for (apparently there are some doctors out there who like to brag to each other about giant fibroids they’ve extracted laproscopically. Dangerous, to say the least, especially if they are not skilled). He told me to donate my own blood, get in the best physical shape I could (after surgery, one uses muscles they don’t often use to compensate for the sore tummy), take iron supplements and go with a traditional ab. myo. due to the size and position of the fibroid. He said he would write up his opinion and send it to my gyn. He also stated he would be available for the surgery if my own doctor was not.
At my pre-consultation October 2nd, my gyn went through the report sent him after my visit with the specialist. I told my gyn. that wanted the ab. myo. and he agreed that was a good idea. I will start donating my blood November 1 and again two – three weeks later – to get two units. I am scheduled for December 8th. I have my ride, my sister-in-law ready to come and stay for a week after I get out of the hospital, and I am sticking to an iron rich diet. I am working out voraciously. I have dumped 10 pounds. Oh, during that full physical with my GP in August, had gotten up to 145 lbs.!!!
Wish me luck in December!!
I must sign off. My little Westie is in the front yard, no doubt terrorizing some other dog that is walking by.
October 15, 2006 at 9:53 am
Val
Glad you found the right doctors – it is sooo important
Check out the forum (if you havent already) How am I feeling after my abdominla myomectomy. THe AM gals detail pre op “to do’s” The hositpal stay, going home and week by week recovery – in detail!!! If you have a quesiton just ask adn you will get an answer…
I am 10 weeks post op and life without my 6 grapfuit fiborids is wonderful….
Pre-op you are doing the right things….make sure you get enough iron (I took the slow release iron pills that did not cause GI effects -ie consipation, etc) donated blood but did not even need it….
You can check out an actual abdominal myomectomy surgery (not for the faint of heart) on ORLIVE.com. Helped me to understand what woudl happen
I will post some pre-OR room info on the AM Forum
[Edited by EclecticGeek to add links.]
October 20, 2006 at 4:58 pm
Does anyone have experience with Neprinol, Fibrovan, Brevail or Protease? Understand that these are homeopathic and not approved by the FDA. They proclaim to shrink the fibroid through enzymes that “eat” tumorous protein. Sites to visit are: http://www.arthurandrew.com; http://www.fibrovan.com. Nonetheless any annecdotal information? My wife has one large fibroid and we’re considering all options. Thanks for your site and input
October 20, 2006 at 7:47 pm
Hi. Ok, I guess this is the place to be to ask questions about fibroids, yeah!
I am 32 years old, and have been having ‘fibroid’ related problems for the last couple of years. Well, I went to my doctor last year (December) for my annual, and told her about my heavy periods and spotting, she ordered an ultrasound, which revealed an annoying fibroid. I had just begun nursing classes that January, so she said we should just watch and wait to see how things go while I am in school. She wanted me to have a follow-up ultrasound, which I did last week, and apparently the fibroid has doubled in size in approx 9 ish months, which the doctor finds worrisome. My current semester doesn’t end until Dec. 7th, so the doctor wants to schedule an endometrial ablation for Nov. 10th to by me some time she said. Meanwhile, my husband and my parents are totally freaking out. I don’t know what to do. The doctor said she didn’t feel comfortable waiting until December to do something, but I can’t help but think how is an ablation the answer? I asked her that and she said if it is benign it will shrink and if it is not it won’t. I have read countless amounts of information for the last two days and can’t find anything about that.
I don’t know what to do. My husband wants me to just have it removed and tested immediately, but my doctor doesn’t want to intefere with my school schedule too much and thinks it would be ok to do this other thing until December…. What is your opinion???
Amour
October 21, 2006 at 6:42 am
From all the reading I have done about fibroids is that in the majority of cases they are benign although I think everyones first reaction when they have a tumour growing inside them of any size is to think the worst. Try not to panic yourself into doing anything rash. I did not know I had a fibroid (just thought I was getting a bit fat!) and had no specific symptoms (until it got big enough for me to go to the doctors…thought I had “stomach problems”) but I must not have had it for that long (I have a 2 year old and it didn’t show on any of my pregnancy scans). My fibroid was a whopping 17×15x12cm (ish) and grew between the scan and the op. Apparently your hormones can play havoc with the growth and they can grow really quickly (apparently quite rare though according to my surgeon). If you trust your doctor try and go with their advice…good luck and stay strong! Ann-Marie x
October 26, 2006 at 3:42 pm
Val:
will be better. Fortunately, I’ll also be able to post about my weight loss. Thanks for the compliment about the site.
Glad you found the post-Abdominal Myomectomy thread. You mentioned weight and added a frowny face. Once I start posting about my weight gain, I think this face
fibroid free:
Weight gain/weight loss posts are coming. I promise!
Tom Schmidt:
I posted your question in the alternative therapy thread. I believe someone there had an experience with Neprinol. Thanks for being a source of support for your wife.
Amour:
Ann-Marie gave good advice. I have a couple of posts that I hope you find helpful:
Are uterine fibroid tumors a sign of cancer?
How are you feeling after your Endometrial Ablation? (Please see the links in the post.)
If you have any additional questions, please post them.
Ann-Marie:
Thanks for the advice and words of encouragement.
October 26, 2006 at 4:37 pm
I know….you are a busy busy busy bee!!! THanks for all the behind the scene stuff!!
November 10, 2006 at 3:04 pm
Hi, I tried to submit my comments but ended up writing a lot and at the end
did not work, so I just doing these few line and see if it works, and I will
get back with my history.
November 10, 2006 at 3:24 pm
It worked!Hi All!
It’s been very comforting to read all your comments and I’m glad that I’ve found this website just a few days ago, as a result of a search for help to all the concerns that I have about the post-op of a Myomectomy.
My Myomectomy was done October 20th, and luckily thanks to an excellent doctor, I went through all the list of pre-op recommendations that Fibroid Free suggested, and I thank you girl in the name of many women out there that are due for their surgery and get lucky enough to visit this site and take in consideration all your recommendations, because they are very precise and so helpful.
I’m on my 3erd week of recovery and I’m still very sore, not much the incision but the skin above it and the sides. As Ele said, I have also the bump above the incision very sensitive to the touch as well as the area below the incision. I’ve been having such a horror thoughts about the bump not going away, but as one of you guys mentioned, I expect to see it gone by the 9th week, and I really hope so.
I’m going to tell you about the emotional impact on me, and how frustrated and hopeless I’ve been felling this last day.
I will start since the beginning, just the thought of going through surgery made so sick, I cried so many nights and I was in denial for quite a few months.
I was diagnosed with fibroids 2 years ago, accidentally due to a Cat Scan done for a sharpe pain in my upper addomen (ended up being essofagitis). When I had the follow
up with my gyne I learned for the very first time what It meant to have fibroids and what they were. Since I did not have any syntomes (I would have never known if was not for the CAT) I was told I could leave with them (one was 4cms and the other 2cms). Ok, so the next year when I saw her again, my gyne did and ultrasound and she gave the spill that “it was time”….. and I said time for what….. when she mentioned
Hysterectomy! Oh my God, My world collapsed in from of me and she gave me this
b.s. (excuse my language) about my uterus being useless bag, fi it was not for reproductive purposes. And here you have me, never had children and still having the
hope (I was 39). I left the office in distress and in terror. I had weeks of dispair not knowing what to do, until I started educating myself over the internet.
Miraculously, I found and old friend of mine, gynecologist and fertility treatment doctor
with his own clinic en los Angeles area and I contacted him right away. He got back to me and saw me the following week and game me the piece of mine that I needed, that nobody was going to take my uterus away from me and if I needed any procedure, He
was going to do it for me just to remove the fibroids nothing else . Just to let you know he cursed the ex-gyno saying that we should be careful out there with doctors we think
we trust and always get a second or third opinion. He said to me that even though having children was not in my list, since I did not have any, with more reason my
uterus should be preserved and treated accordingly.
This visit with him was last March and from then on, ironically the syntomes of pressure over my bladder started but I kept pushing it (for fear) until I could no more
and the rest is history.
The thing is that I never realized that the worst part is the recovery rather than the surgery itself.
November 10, 2006 at 4:22 pm
Norma,
Sorry you had problems posting the first time. Glad you got it working.
Thanks for sharing your experience. It’s good you were able to find such an excellent doctor. I just can’t say enough about my two fibroid docs. That really does make a difference. Recovery can be rough but the women in the Abdominal Myomectomy thread are there to lend a hand and a smile. There is a lot of info in there for women both pre-op and post-op but you know that. If you want to talk more about your emotional impact, there’s a thread for that as well.
How are you feeling after your Adominal Myomectomy?
What makes you mad, sad, or glad when you think about your fibroids?
Reading the stories of others dealing with fibroids lets me know that the world is FULL of strong, smart women. Thanks again for posting and best wishes with your recovery.
November 10, 2006 at 6:24 pm
H Norma,
Glad you found the right doctor!!! come and join us on the AM thread…those recovering from surgery, those going to surgery and all the good and not so good expericenced…if nothing else you will get some laughs ….
November 24, 2006 at 12:15 pm
I had a Myomectomy in July and things have been good. The only thing is is that I have been having these pulsating sensations right before my period and now my period has skipped. I was wondering if anyone has been experiencing abnormal or infrequent periods?
November 24, 2006 at 7:07 pm
I just had a myomectomy on November 13th, 2006. After a two night hospital stay and almost two weeks since the surgery, I feel suprisingly good. My surgery went very well. My physician removed a 7 1/2 cm fibroid and five small ones. The first few days were uncomfortable and I had pain especially when I laughed or coughed – try avoiding these things at all costs. (It wasn’t easy to do especially when my sister had to assist me in wiping my bottom. That’s love.) I’ve had some constipation because of the pain medication, but am weening myself from that. I was up and about the first night after my surgery. One week later I was able to conduct a choir rehearsal sitting down. No lifting and no stairs for a while. I take a very short walk, 10 minutes up the road and back, every day and can do non-strenuous house chores. I had my first visit with my doctor one week after and she told me to take it easy and to give my body time to heal properly. No baths, no swimming. Her basic advice is if it hurts don’t do it. I find I have about a three hour limit right now and then I’m tired and want to lay down. After a whole day without any pain medication, I find I feel the incision and it’s still a little painful. Over all I am pleased with my progress and so excited about how I will feel once I am healed! After three years of having basically one good week out of the month, I decided this was my best option. Reading the forums encouraged me and I thank all of you willing to share your stories. It is a very confusing condition and unless you experience it, it’s difficult to explain.
November 25, 2006 at 5:24 pm
Crystal:
Not sure which type of Myomectomy you had but there are three threads here:
How are you feeling after your Hysteroscopic Myomectomy?
How are you feeling after your Laparoscopic Myomectomy?
How are you feeling after your Abdominal Myomectomy?
You can post your question there. The specific threads get more traffic so more people will see it. If none of the above help, come back here and let me know. I’ll try again.
Lisa:
Happy to hear that your surgery is over! Say “hi” to your sister for me. She was really providing assistance, huh?
That one good week out of the month you mentioned sounded quite familiar. I called it my “quarter of a life”. Definitely, not fun. It sounds as though your recovery is going well. Yay! I’m glad you found encouragement here. It does help to read the experiences of others. Thank you for sharing yours. Best wishes.
November 28, 2006 at 9:45 am
Wow…..I’m so glad to find this site. ( better late then never)
I was hoping I could ask a question.
I’m 47 and had my UFE done on Oct. 11th. My first period started 2 days after the sugery and lasted 12 days. It was very heavy, passed many clots and was painfu.l My second period started Nov. 13th and 16 days later I’m still bleeding!!! ( now, lightly)
I was wondering if anyone has had this experience?
Has anyone gone into menopause post sugery?
Thanks.
November 28, 2006 at 7:25 pm
Are there any women out there who can tell me how to endure pregnancy fibroid pain?
I’m 7.5+ months pregnant with at least 8 fibroids, 3 of which are just over 5.7 cm each and growing. They were all discovered when I became pregnant. Most of them don’t bother me but two are crammed down at the bottom of my uterus just over the birth canal. The pain from those two is so bad I haven’t slept more than 3.5 hours in weeks.
The Dr. says I am experiencing ‘degridation’ as the fibroids grow which sends a chemical into the body causing this unbelievable, constant pain. For the pain, I take frequent warmish baths, stay in bed and take Tylenol which does very little (if anything) but I’m told that Tylenol is the only pain killer that’s safe for the baby.
First – Have any of you experienced this kind of extreme pain during pregnancy?
Second – What can I do about it ?
I’m sure I’ll survive this … women are tough. But, I’d like to be able to get out of bed and enjoy a little bit of sunshine in the next two months. Heck, just having a short break from the horrible pain would be a blessing. Frankly … at this moment 8 hours of labor sounds like a cakewalk compared to months of this. =)
Your input is quite welcome.
November 29, 2006 at 1:26 pm
I just came across this:
“Kuei-chih-fu-ling-wan (Keishi-bukuryo-gan; KBG) is a traditional Chinese herbal preparation that can effectively shrink fibroid tumors in 60% of patients, according to one study conducted by Japanese scientists. KBG is a mixture of the following herbs: cassia bark (Keihi), herbaceous peony roots (Shakuyaku), peach kernels (Tounin), herbaceous fungus (Bukuryo), and root bark of peony (Botanpi). In addition to reducing fibroid size, KBG also successfully alleviated fibroid symptoms such as severe menstrual bleedings or menstrual pain in 90% of the women in the study. These researchers suggest that KBG may work by inhibiting the production of sex hormones including estrogen. Unlike many other presently available herbal preparations that may be effective but lack scientific evidence to support their uses, KBG is proven safe as well as having few side effects”
Anyone heard of this or tried it?
Thanks!
Pam
November 29, 2006 at 3:31 pm
I just found out I will have a myomectomy!!! My pain from fibroids can get off the wall. I have been told I will start Lupron soon. Anybody got any info on it? Is there certain days of cycle to get injections, is injection the only way to get Lupron? How long after Lupron until I can have surgery? How long after surgery until I can try t o get Pregnant? PLEASE, If anyine has info to any of these questions, I’d love to know. It will be 2 weeks before I tlak to my doc again. I am not that patient!
Thanks a million, in advance!
Babs
November 30, 2006 at 8:13 pm
Pam:
I found an abstract to a paper about KBG and posted about it in this thread:
Is there a natural alternative therapy or treatment for uterine fibroids?
Babs:
I answered most of your questions here:
That very last Lupron injection in April
For myomectomy experiences, try here:
How are you feeling after your Abdominal Myomectomy?
How are you feeling after your Laparoscopic Myomectomy?
How are you feeling after your Hysteroscopic Myomectomy?
Keep posting if you have more questions.
November 30, 2006 at 8:49 pm
Judy:
I answered your questions here:
How are you feeling after your Uterine Fibroid Embolization?
Anna:
Sorry you are dealing with so much pain. I started a new thread based on your questions. If someone has an experience, they can post it there. If you have additional concerns or thoughts, you can put them in that thread.
Is anyone having problems with uterine fibroid pain during pregnacy?
Let me know if you have other questions.
December 10, 2006 at 8:03 pm
Hi Pam,
I have heard of the Chinese herb Kuei-chih-fu-ling-wan . You can read about it on Dr. Parker’s Website at:
http://www.fibroidsecondopinion.com/conservative_treatment.htm
December 13, 2006 at 6:48 pm
Hi Wendy,
I added your comment here:
Is there a natural alternative therapy or treatment for uterine fibroids?
Thanks for the link.
An abstract to the paper listed in Dr. Parker’s Reference List can be found here:
Pharmacotherapeutic effects of kuei-chih-fu-ling-wan (keishi-bukuryo-gan) on human uterine myomas.
December 15, 2006 at 2:08 pm
I am 38yrs old. I am a mother of a 19yr old and a 8yrs old. I have recently had 2 miscarriages and I am 13 weeks preganant. I was just told I have at least 8 fibroids. One is measuring at 7cm. I purchased the following herbs; Red Raspberry Leaf, Nettle Leaf, Dandelion Root, and corn silk. All of these herbs are in the tea bag formula. Will they shrink my fibriods? Are do I need another herb? Someone mention Flax seed oil? I don’t know what to do. Can you please help me.
Thanks,
April F
December 17, 2006 at 7:14 pm
Hi April,
I’m so sorry to hear of your two recent losses. I have a post about alternative treatments:
Is there a natural alternative therapy or treatment for uterine fibroids?
You’ll find information on how to evaluate treatments plus comments from others. I posted your questions there. Remember to check with your doctor before starting any type of therapy.
December 22, 2006 at 7:37 pm
Hello,
I have not written in a while. I have switched doctors. The first gynocologist I went to wanted to do a myomectomy right away but I was concerned about my anemia and other things. I switched to a doctor who also specializing reproductive endo. On Dec. 20 I had an operative hysteroscopy. My new doctor is very through and requested all medical records before treating me. He also recommends a myomectomy but wanted to see if I had fibroids inside my uterus. The ultrasound only showed 3 small tumors but my uterus is the size of a 4 month pregnancy. Well, I had the operative hysterocopy and he did find several fibroids. He removed a few but he did tell me today there is a large one and he resected some of it but that it is attached to the main blood vessel and the uterus. So I am wearing a Foley catheter for 7days to reduce scar tissue since I want to have children one day. I have none now. SoI know I will have another hysteroscopy again but I am glad I have a patient and skilled doctor. I hate having to wear this catheter over the holiday but my health is first. He wanted to do it a few days after my period. I hope everyone has a Happy Holiday. I will be glad when all of this uterine stuff is dealt with so I can heal and prepare to have a child.
December 23, 2006 at 10:22 am
How do I join this blog? Thanks very much.
December 23, 2006 at 3:01 pm
Hey Tameka,
I was going to tell you to visit:
How are you feeling after your Hysteroscopic Myomectomy?
and contribute your experience in that thread but you beat me to it.
I responded to your comment over there. Thanks for sharing.
Welcome back and Happy Holidays to you, too!
December 23, 2006 at 3:21 pm
Hi Bonnie,
Glad you found us! Nothing to join. Tell me what’s on your mind (symptoms, treatment, etc.) and I’ll point you to the right thread. Once there, you add a comment just like you did here. I’ll leave a couple of examples for you to visit so you get the idea:
Uterine fibroid symptoms (not my idea of fun)
Talks about the symptoms but since it’s one of my earlier posts it has lots of comments from visitors.
Just what are your uterine fibroid treatment options?
Lists the options plus it has links to the posts on-site where women are discussing their experiences after treatment (How are you feeling after your…?).
Also, the Home page explains the site some (or at least I hope so).
Don’t hesitate to come back with questions. We’ll be here.
January 18, 2007 at 1:21 pm
Hi EG,
Might be a great idea to start a topic on excessive bleeding? Maybe how to control, etc?
[Edited by EclecticGeek to add: I created a post on managing heavy menstrual bleeding.]
January 18, 2007 at 6:46 pm
I just found out I have ENDO after walking around in pain for 6yrs..I tried NORETHRINE.I think my Dr was trying to kill me glad I didnt do NUPRON shot.I am now taking FIBROVAN and PROGESTERONE cream.I find it to work great..I also take fish oils.Keep the colon clean it helps and when all else fails I do the Motrin and hot showers. I am close to menopause so I feel lucky.. I feel for the young women out there who have ENDO it is a monster..Keep researching you will get there just dont do Synthetic hormones..also remove as many products as possible that contain PARABENS…lotions detergents etc………
January 18, 2007 at 6:55 pm
If you are having excessive bleeding I take it you have fibroids.I really suggest FIBROVAN..Try it it isnt that costly and also try Progesterone cream,find a good one..Stay away form products with Parabens in them..You can clear this up without a HYSTO if you are smart…Hope it is not to late for you…………
January 18, 2007 at 7:21 pm
Pam:
That is a great idea! I’m trying to catch up with comments (again!) but I’ll put it on my list as well as a “Watchful Waiting” treatment thread. Thanks for the suggestion.
[Edited to add: I have new posts on managing heavy bleeding and on the "Watchful Waiting" fibroid treatment option.]
Debra:
I have a post on alternative therapy where we are discussing the SCIENCE behind various treatments. You can add your thoughts there:
Is there a natural alternative therapy or treatment for uterine fibroids?
Keep in mind that there are NO clinical studies on Google Scholar or PubMed demonstrating the safety or effectiveness of Fibrovan and it isn’t approved by the FDA for anything. From Fibrovan’s site:
My site is science-based and I’m inquisitive. Do you have tangible evidence of anything you stated? If so, please share. Thanks!
January 18, 2007 at 7:32 pm
I dont need any tangible evidence ..I can only go on how I feel.I took Norethrine and it was only for 2 days I thought my chest was going to cave in..It is nothing new they have been telling us ladies for yrs. that synthetic hormones are no good .We only listen when we come up with Endo, Fibroids and other hormonal problems..If there was a study on Fibrovan which the Medical Dr’s are not willing to try I believe you would see that it works..I am not crazy as they have said for 6 yrs.This stuff works and has slimed down my belly quiet a bit..I do still have flare ups dont get me wrong, but I have only been on this for a couple of wks..If you are in enough pain and you have tried everything else without success..YOU WILL TRY THIS…Do you have ENDO or Fibroids if not you can not possibly know the pain and destruction it causes..It took me 6 yrs to find out what was wrong with me..Thank GOD I dont have fibroids just ENDO..It is a monster
January 18, 2007 at 7:52 pm
That’s the point. Doctors won’t suggest it because there are no studies to prove it works. You should suggest to the makers of Fibrovan that they conduct randomized, double-blind, placebo-included studies and then publish the results in peer-reviewed medical/research journals. I guarantee that if the results turn out to be positive, doctors will take notice.
If you would take a moment to read the Welcome page or the About page, you will notice that I’m the “inquisitive geek with fibroid tumors” and this is my blog. I suffered for close to 10 years (heavy bleeding, severe anemia, tremendous pain, etc.). I really appreciate the women who come here and share their personal fibroid experiences. I learn a great deal from them. My main mission continues to be the SCIENCE behind fibroids and the treatment options.
January 18, 2007 at 8:20 pm
I cant believe ya havent tried it..They want do studies on herbal products they cant be FDA approved..Sorry but did not read the whole forum..I am a kinda busy lady..Glad though that someone is getting the word out. I have went back to everyone I had seen for the last 6 yrs to inform them of ENDO and their misdiagnosis…Maybe they care maybe they dont….Just finding out what I have has helped me I read that if he is any kind of GI Dr at all he will mention ENDO especially if ya tell him you are worse that time of the month..Dont put all your trust in the Dr’s they are so busy and so cold to the day by day complaints that they just dont get it sometimes…I am a nurse I see alot of mishaps in the medical field..If they were so concerned when someone went to the ER for pelvic pain instead of telling them it was gas and nerves and send them home,they should mention ENDO or Fibroids…They do a chest x-ray when ya have chest pain..It is a dog eat dog world…Endo has taught me unless you are choking or having a heartattack etc they do not see your inner pain and alot of us keep it to ourselves because we get tired of complaining..Anyway dont belive you are going to find a cure for fibroids unless you do a hysto and then you will have scar tissue to deal with amongst other things…They cut my sister in law from side to side to remove fibroids and when they got in they saw the endo.You could have Endo also…Exactly what have they done for you?????CONCERNED
January 18, 2007 at 8:50 pm
If you would visit the alternative therapy post, you would see that there is research going on. The same US federal government that supports the FDA also supports the National Institutes of Health’s National Center for Complementary and Alternative Medicine (NCCAM).
There you will find grants/funding opportunities, published results, and clinical trials. There is nothing standing in the way of Fibrovan conducting studies and releasing the results.
I am so sorry that you have a negative view of the medical field. My recent experiences have been extremely positive. I consider my two fibroid doctors to be true blessings. They both are smart, highly skilled, and compassionate. You can read about my treatment plan on the About page and scattered throughout my blog. I am so much better now and feel half my age.
Take care.
January 18, 2007 at 8:59 pm
Then if the FDA cares so much why dont they do the studies..It is alot more to it than that trust me and I did read that the more advanced GYN are trying Fibrovan. I will try and find your info…….anxious to see what you went thru,when FIBROVAN might have worked..GOOD NITE MY FRIEND…Ya know it helps to get away from this stuff once in awhile…..
January 18, 2007 at 9:09 pm
The FDA doesn’t conduct the studies. The makers of the products conduct the studies and submit them to the FDA. Once again, I suggest asking Fibrovan why they won’t conduct any studies.
Thanks for your visits. Take care.
[Edited to add: You can post your findings in the alternative therapy thread. I'm looking forward to the additional information. Thanks!]
January 19, 2007 at 5:02 pm
Yes ask them and they will tell you..It is not as simple as you make it out to be..we have to take charge of our own bodies,cant always depend on someone else to have the answers…Esp. with ENDO or Fibroids….We are all different..You are not afraid to take a chemical drug but are afraid of an herb it dosent make sense….Sorry to disappoint you but it works for me….I am doing my own study………..
January 19, 2007 at 5:14 pm
Nothing YOU have to say disappoints me. I look for science. You present none.
I hope you are able to find a blog that focuses on endometriosis. I think your experience would be most helpful there. This blog is for those dealing with fibroid issues.
Thanks for your visit and best wishes!
January 19, 2007 at 5:32 pm
There isnt much difference its all the same..All due to Estrogen Dominance pretty much…You are to close minded or wearing blinders not sure which one….Good luck on your scientific adventure to cure a disease that has been going on for yrs…You failed to inform these women that havent had surgery that Endo is a good possibility…Be honest…You really dont know. Do you also need scientific proof that there is a GOD…. Experience is the best teacher……..BYE…………….
January 19, 2007 at 6:17 pm
No, I believe it’s called being educated. Endometriosis and uterine fibroids are not the same thing.
Thanks for sharing but again I ask that you find a more appropriate forum for your thoughts. I wish you well.
January 22, 2007 at 3:34 pm
Hi EG,
Had to say to you, I commend your diplomacy! Very impressive!
That was actually pretty entertaining! Took my mind off of my fibroids for a while! LOL
January 24, 2007 at 7:17 pm
Yeah I was impressed to….I’ll tell ya I know…fibroids and endo are NOT the same…maybe the same estrogen issue…but NOT the same…had both…
if FDA regulated Herbs…I would be more apt to try natural therapy (although I know lots of herbs have ben used for thousdands of years ) but until FDA regualtes .them.I will just wait……heck there is enough issue with regulation of drugs…
anyway kudos to the science behind it all!!!
January 25, 2007 at 5:00 pm
Hi FF:
Well said. As it stands right now, the science is our best chance.
January 29, 2007 at 11:38 am
Anyone have any good surgeons in NY? I’ve been to several – but need someone who really has an expertise. Thanks!
January 29, 2007 at 12:49 pm
Pam and fibroid free:
Both of you make me smile.
The funny thing is that she first commented on the Feedback page before coming here. So, while I was responding to her first comment, she posted a second. She then posted back and forth. (The tricks these people use.) Notice how certain words are capitalized. They do that so when this page eventually shows up in Internet search results, people are more likely to click on it because they see a keyword in capital letters. The highlight of the whole exchange occurred on the other page when she didn’t realize that insulin is a hormone therefore diabetes IS another disease condition related to hormones. Of course, if all else fails, fall back on the old “insult the blog owner by questioning her religious faith” ploy. Got to love it!
One last thing for those reading along. In case you are wondering why I look for studies/research. Here is the Google Scholar search for chocolate (Ummm, chocolate!). On this particular day, there are 113,000 entries. Type in your “miracle pill du jour” and take note of what comes back.
Science really is the way to go. One day, I’ll do more posts on the FDA and how to critically read research articles. I really would love to start an online journal club. It’s on my ever-growing list of things-to-do. Now, if I can just catch up with responding to comments…
Thanks to both of you for your continued support!
rcg:
Please check this post. It has comments from women discussing NY doctors.
How do I find a good local fibroid doctor?
January 29, 2007 at 5:08 pm
Hi EG,
Just a quick update. I haven’t had a period since November 19th!!! I’m so happy. When I DO start, I have the prescription for heavy bleeding. We’ll see, but right now, seems like my watchful waiting is okay.
Take care.
January 31, 2007 at 7:34 pm
Hey Pam,
That’s great news! Best wishes.
For those interested in the prescription Pam mentioned (Cyklokapron), visit this post.
February 2, 2007 at 7:21 pm
Three new posts are up!
How are you managing your heavy menstrual bleeding?
Are you following the “Watchful Waiting” fibroid treatment option?
…and because the original post-AM recovery thread has 640 comments, I created:
How are you feeling after your Abdominal Myomectomy? (part 2)
February 4, 2007 at 6:17 pm
Another new post here in the Forum:
Do you have a loved one dealing with uterine fibroid tumors?
February 6, 2007 at 1:57 pm
Great EG!! Thanks for the new posts. These topics, as you know, are of great interest to me right now!!!
Cheers,
Pam
February 6, 2007 at 5:22 pm
Hey Pam,
No problem. I look forward to the new discussions.
Cheers!
February 15, 2007 at 12:39 pm
can anyone recommend a good fibroid doctor in South Florida?
February 15, 2007 at 6:57 pm
Hi donna,
I added an announcement in this post that you were looking for a doctor:
How do I find a good local fibroid doctor?
I’ll also include the one on treatment options. It contains links to posts on this site where women are discussing recovery experiences. If you are interested in a specific procedure, you can talk to those women directly:
Just what are your uterine fibroid tumor treatment options?
If you have other questions, keep posting. Take care.
February 15, 2007 at 7:05 pm
Another new post here in the Forum:
Trying for pregnancy (ttc) after you fibroid procedure (Abdominal Myomectomy)?
February 20, 2007 at 1:17 pm
Five new posts here:
What should I carry with me to the hospital before my fibroid surgery?
Did you see Oprah trying acupuncture?
How are you using your fibroid voice?
The real issue with fibroids
And because EclecticGeek really does have a sense of humor…
Is your doctor McDreamy or Dr. Dreamy McGorgeous?
February 22, 2007 at 3:39 pm
Hi all,
Glad I found this blog!! Very informative, great info.
Well, I really will appreciate some light with my problem, please. I had my first healthy baby on January 2006 at the age of 41;-). In my first scam they discovered a fibroid (a good size one) I was told not to be bother about it unless it was painful, which was not at the time. On November 2006, after 10 months of giving birth, I started having lots of pain around my pelvis area. I never had such pain and became very concern.
Went to the doctor and suspected a water infection and gave me antibiotics, which help. After the course of treatment (two weeks) I felt ok and forgot all about it, but about a month ago all started again but with some other symptoms such as bloatiness, pain in mu lower back, pressure in my abdomen, and some pain in my left leg — where the fibroids were discovered.
Of course, I went to see the Doc again (now very concern) and suspected PID, and this time I took twoo more weeks of very strong antibiotics, which seems to work soon after I finished the treatment (about 10 days ago), but the pain is coming back!!!!!!!!!
I feel this sharp pain by the ovaries (the left one), and sometimes pressure all around that area. What worries most is the pain the left leg (not too intense and not all the time).
At first I was convinced it was a cyst and read all about, but when the Doc suspected PID then I became convinced. The problem is that the test for infection came back normal!!!!??? Not sign of infection whatsoever…so what’s going on here?
Please, i really will appreciate any thoughts or comments about my situation. Does any of you have experienced something similar? Can fibroids cause this problem?
I do have a appointment for a scam on the 5 of March….but before that I want to find out as much as possible.
thank you for your time and help.
Ruth
United kingdom
February 23, 2007 at 5:58 pm
Hi Ruth,
I had some similar symptoms which I believe were caused by the fibroid I had. I bloated so large that my abdomen from under my breasts to my pubic area would extend out like an inflated balloon. I often experienced a pain in my lower right pelvic side that would last for a week or so. I became so sensitive in that area that I would instinctively protect it from anything that could remotely come near me – especially my dog who likes to sit on my lap – and cringed even if she was *almost* touching the area. I also, especially the last few months before the surgery, experieinced intense lower back pains and constant pain down my right and sometimes both legs. RIGHT NOW, I have none of these symptoms going on. KEEPING IN MIND that it has been just a month since the fibroid was removed and so it hasn’t been long enough yet for me to fully say that all this was as a result of the fibroid alone. I, of course, hope they were and that life is now a much easier ride.
There is this great forum ["Uterine Fibroid Symptoms"] that provides more details. I’m glad you have that appointment with your dr. to check things out. The best to you!
[Edited by EclecticGeek to add link. Thanks Tina!]
February 24, 2007 at 11:36 am
Hey Eclectic Geek,
Thought you should know how helpful your site has been to me….. I check in 2 or 3 times a week and whenever I have any questions after my most current discussion with my Dr. (I told her about this site – she said she would check it out). I’m waiting for my focused ultrasound study to start, but have scheduled a Lap. Hyst. in June in case things havn’t moved forward on that front. Now takling the Lupron question, but already have migraines and issues with mood. My most current questions have to do with that and have already heard back from 2 people about their experiences….. You are doing a great joband I don’t really expect a personalized reply from you every time – just nice to have access to this community and the “people who have gone before me”! Thanks again.
February 25, 2007 at 3:53 pm
Ruth:
I’m glad you found us, too! Check the post that Tina suggested. It has a list of symptoms. What you are describing can be caused by your fibroid. I am also happy that you have an upcoming appointment with your doctor. Let us know if you have additional concerns. Take care.
Tina (1/24):
Thanks for your help!
malexmom:
Thanks for your kind words and the blog endorsement you made to your doctor.
Best wishes with everything!
February 25, 2007 at 4:09 pm
Two new posts here in the Forum:
What’s involved with pre-op testing before a fibroid procedure?
How are you preparing for your fibroid treatment?
March 12, 2007 at 10:08 am
I wrote these posts a little while ago but finally got a chance to add them to the Forum:
Muffin top after abdominal surgery? What’s a muffin top and how do I just make it go away?
Are you healing your spirit and mind as well as your body after your fibroid procedure?
March 12, 2007 at 1:15 pm
Just wanted to thank you for this wonderful site! It was so helpful to me while I was deciding on a course of treatment.
Last Friday on 3/09/07 I had the Exablate procedure done in by Dr. Robert Gallai in Phoenix, AZ and am happy to say that I would highly recommend it to anyone. If there is anyone considering it who would like more specific information about my experience, I would be happy to share it with you/the group.
Many Thanks,
Stacey
March 13, 2007 at 10:49 am
Hi Stacey,
Thanks for your visits. Glad to hear the site was so helpful.
There are two pages where women are talking about their ExAblate experiences:
Does anyone have an experience with ExAblate (MRgFUS)?
New treatment uses sound waves to shrink uterine fibroid tumors
You can talk more about your procedure on those two posts if you like. Also, I’m noticing that we are getting more questions about ExAblate so you could help in that area as well.
It sounds as though all went well for you. Yay!
March 14, 2007 at 4:19 pm
where can one find dialog/personal experiences with having the robotic myomectomy treatment for fibroids?
March 18, 2007 at 4:53 pm
Hi,
What a wealth of information! – this is exactly what I’ve been searching for. I found out I had fibroids 4 years ago and the pelvic pressure, looking pregnant, and peeing all the time have finally driven me to the point of considering surgery. Now I just have to find a good surgeon. Can anyone recommend someone on Tucson/Phoenix, Arizona or Atlanta, GA? For those in the US, any advice on insurance coverage? Thanks!
March 23, 2007 at 6:46 pm
Hi Grace – I think a one or two ladies on the site had or was looking into this. It is fairly new and a lot of doctors are getting training fo rit (including my doctor – he just got “Certifed) I would try the [Abdmonial myomectomy forumPart I] or [II]. Check there – there is some discussion about it – or post there and someone will jump in
GA girl – it depends of what try of surgery you are looking for – Abdominal myo or UFE or exalbate or Lapro myo – let us know which one. on teh [AM part 2 forum] – there was a site that list doctors to try.
My abdominal myo was covered completly (I have a PPO) – doc, test, surgery, hosptal stay.. I think all procedures are covered in the US depending on waht type of surgery and co-pays you have
[Edited by EclecticGeek to add links.]
March 23, 2007 at 7:24 pm
Grace,
I just had a robotic myomectomy at Mt. Sinai in NY. You are having yours in Ohio, right? (Funny, I have a friend in Ohio who works at the Cleveland Clinic and he recommended the robot)….I have an entry under ["Get your fibroids on the dance floor and do the robot"] Catchy, huh? There’s only one other meetup I have seen where there is some dialog on robot assisted lap. myos.
I am happy to answer any questions I can….
[Edited by EclecticGeek to add link.]
March 24, 2007 at 11:21 am
I’ve been reading through your site for months now and i thank you for all your time involved assembling a cohesive fibroid format. I had fibroid embolization two days ago here in Maine. The procedure i found fascinating and was glad to be awake, though sedated during the embolization process, watching the injected particles cut off the blood supply to my 12×9 cm fibroid ball. The procedure itself was virtually painless. Heavy cramping began about 15 minutes after, and took a few hours to control with a combination of morphine and motrin. A writhing and moaning kind of pain, but manageable and it became a dull discomfort for the rest of my hospital stay. Now I’m home and taking percocets and motrin. Cramping was heavy last night, but mostly i’m excited to be on the mend and I feel pretty good all in all and am optimistic with no fever or nausea.
March 25, 2007 at 6:58 pm
My name is Mellisa Dressler and I’m 25 years old. I had a Laporscopic Guided Vaginal Complete Hysterectomy on 3/14/07. They removed my cervix and Uterous. On 3/16/07 I was discharged from the hospital and was feeling great. On 3/18/07 I was realy dizzy, nauaeaus, and had horrible shoulder pain. My husband took me to ER where my blood pressure was dangerously low. They did a Cat Scan and found a quart of blood in my stomach. I had another surgery to drain over a litter of blood and to repatch a incision that was seeping. I also had to have two blood transfusions. I’m home now, but I still feel very sick. Has this happen to anyone else? I have been developing new symptoms, but at this point I have no idea how I should be feeling. Any help would be appreciated.
March 27, 2007 at 10:33 pm
I am 37 single never been married. I have been diagnosed with a single fibroid in the uterus that measures: Fibroid 9 cm / Uterus 12 cm. I’ve had a blood transfusion back in August and I am on Lupron on my second treatment. The anemic has been stable for almost a month. The Lupron did not made effect until the middle of February. I want to have the possibility to get pregnant. Can anyone please let me know what must happen? Is there someone outhere that has had a big single fibroid. Any help is apprciated.
March 28, 2007 at 11:55 pm
I was diagnosed with an orange sized fibroid ten years ago while pregnant with my daughter, I haven’t had any symptoms until very recently. My gyno guy is sending me for an ultrasound, but can’t get me in for three weeks !! I’m a nervous wreck. Are normal symtoms lower backache, pains (sometimes sharp) on one side, a fluttery feeling in the pelvic area and fullness?I’m also TIRED all the time. My doctor did not seem overly concerned. I’m 47, done with kids and just want to get a hysterectomy, thoughts?
March 30, 2007 at 12:56 pm
many parts of my recent fibroid journey has had me a nervous wreck too. my uterus is holding a 12 cm by 9 cm but shrinking fibroid inside my small 5′ frame. i just had fibroid embolization a week and one day ago. recuperating i am feeling strong and on the mend. (three days of cramping, then three with consistent slight nausea, achy-ness and very mild fever and both yesterday and today, i still feel low-key with a dull lower back ache and a very subtle nausea, but puttering around thrilled to already feel some slight relief from the pressure my fibroid was putting on my bladder.)
the symptoms i felt leading me to embolization- lower back ache, occasional sharp pains, overwhelming fullness and a maddening almost constant urge to urinate, came when it had reached a girth that was filling up my pelvic area. “hysterectomy.” was the first and consistent word i heard from well meaning medical professionals, sending naive me to ultrasound. i’m 40 and want to grow old with my organs for so many reasons. out of fear, i immediately butted heads with the mindset of the disposable uterus, shocked that such a drastic action is the second most performed surgery, trailing a cesarean section. clinging “hysterically” to my uterus and with insurance glitches holding-up my referral appointments i had time to fret and started reading everything i could/can get my hands on and surfing the net into the wee hours till my eyeballs screamed. i started studying why and how so many women suffer with fibroids, comparing options for fibroid treatment and practicing “alternative” wellness avenues. finding this site early was a coup. eclectic geek’s forum gave me reassurance hearing other women’s journeys and choices as i searched for the medical procedure appropriate for me. fibroid embolization appealed to me as the least invasive intervention. being a relatively new procedure, neither my primary care physician nor my gynecologist had experience with any patients of theirs yet to have fibroid embolization when i asked about that option and a referral to an interventional radiologist. reading all the medical sites offering information and data about embolization, i considered its risks associated and feared it seemed a little violent with the post procedure affects listed. and the last thing my excellent radiologist said to me prior to embolization was to “expect a bad day” following…”yikes,” i thought and was eager for the anti-anxiety drug administered with the procedure, “here goes…” and you know what, the embolization procedure was facinating and painless with a handful of really wonderful technicians tending me. watching the images on the screen of the energetic arteries feeding the benign growth being blocked with tiny particals. i could go off on a tangent here. within a half of an hour of the embolization procedure completion the cramping began and was very strong for a few hours until the morphine drip took over which kept it at bay for the rest of my hospital stay combined with ibuprofin. then at home, percocets and ibuprofin managed them. after four days i elected to not take any pain killers and have felt some discomfort, but nothing but an ache or tinge here and there i am calling healing. i don’t know if my relatively easy recovery (so far) is due to my preparation or pure luck and a skilled radiologist. but i do know i feel jubilently optimistic to be recovering and hoping for a substantial reduction in size. my recent mri showed my fibroid with a necrotic (degenerating on it’s own) center which can be attributed to it getting so large and outgrowing it’s blood supply or i’m thinking and wondering, wanting to believe my preparatory wellness regimen is aiding me in meeting modern medicine half way. when i first understood the necrotic center as degeneration, which is exactly what the embolization is, a forced necrosis, i thought, “great, now i don’t need embolization!” talking it over with the gynecologist though she described a possible calcification skin forming around the necrosis center and the fibroid continuing expansion around it. i couldn’t wait any longer for relief and jumped at an opening for embolization available the next week. but i wonder…hmmm would it have, could it have dissolved back into my system on it’s own?
because of a “benign!” estrogen fed breast growth discovery (“class 4 suspicious” whatever that means) and removal for biopsy coinciding with my first fibroid doctor visits beginning in september, my research led me to attributing my growths to seething with estrogen. perimenopause and outside influences (exposure harvesting fruits for work, my first finger point) bolstering my estrogen levels out of whack. in effort to empower my body holistically for whatever breast fibroid treatment option ahead of me and to try to reduce the size of my tumor taking over my belly, i eliminated the external influences in my world that have stuff in them that mimic estrogen in the body. (dairy and meat, cleaning products, lotions, bleached tampons) i consumed primarily organic foods as pesticides are credited to hormonal upset. i supplemented soy products and flax seeds for their beneficial estrogen quality and utilized milk thistle, vitamin c to aid my kidneys into processing estrogen. turmeric, eggplant, peach seed kernels and cinnamon i found in my search are considered to help fibroids degenerate naturally. i turned to all these sources to aid my recovery along with regular exercise to keep the symptomatic cramping and back ache at bay. none of my doctors would even humor my queries as to information or experience with other women holistically treating their fibroids with positive results except for reading cristiana northrup’s, women’s bodies, women’s wisdom. i blab on and on here with run-on sentences, because i feel pretty good, day #8 and that i have learned so much, with tidbits to share and still have so many questions…and i am eager to hear the thoughts and experiences of any and all women that have any experience akin or comment on my story.
April 4, 2007 at 6:36 pm
Hi Girls,
I’ve just returned from an ultrasound. I am trying to get pregnant. They found 8 small fibroids (about 1,5 cm) on the outer side of my uterus. After reading all your cases I am scary to get pregnant.
How big were your fibroids right before you got pregnant or during the first weeks?
Thanks!!!
April 8, 2007 at 7:14 am
THIS IS A VERY INFORMATIVE SITE AND I FIND IT QUITE ENCOURAGING READING OTHER PEOPLE’S EXPERIENCE – IT HELPS TO KNOW THAT ONE IS NOT ON THEIR OWN.
THE LAST 4 YRS HAS BEEN QUITE TRAUMATIC WITH 3 MISCARRIAGES AND PROBLEMS WITH CONCEPTION DUE TO FIBROID. HAD MYOMECTOMY LAST YEAR SEPTEMBER TO REMOVE A NUMBER OF FIBROIDS IN THE MUSCLE AND ON THE OUTSIDE OF THE WOMB. RECENTLY HAD RESECTION OF THE SUBMUCOSA ONE AND HOPINGT TO START TRYING FOR A FAMILY ASAP.
HAS ANYONE GOT ANY ADVICE WITH RESPECT TO TRYING FOR A BABY SOON AFTER RESECTION.
THANKS
ABBIE
April 20, 2007 at 10:30 am
New to site and just read comment from Randee dated Oct. 2006 stating BCBS eventually covered her fibroid treatment. Am fighting BCBS insurance in Minnesota to cover Focused Ultrasound Ablation performed at Mayo Clinic. Any tips? What convinced them to pay? I was told on a scale of 1 to 3 (3 being the best) That I was a level 3 candidate for this procedure. I too would need only one treatment. Very frustrated with my initial attempts. BCBS still calls the procedure “Investigational” even though it is FDA approved. Help!
May 3, 2007 at 12:34 am
This site is fantastic! I had UFE on April 12 still am in some discomfort and cramping etc. Went to IR fup today and he said fibroid was still there and not smaller (manually examining of lower abdomen) Still have to wait for MRI in June. Looked into a few other sites and it seems UFE works best for decreasing bleeding sometimes bulk symptoms of pressure on bladder and intestine, bloating are not as well treated. Also it may take up to a year for fibroid to decay and shrink. The also do not always shrink 100% these were things I found out post procedure. I guess I did not do my homework just wanted to get the fibroid out and wanted to feel better. I am optimistic but inpatient about results..
June 5, 2007 at 5:00 am
I wasn’t sure where to post, but this was the only place I could find a reply section at the bottom that sounded kind of close to where I need to be. I read and read through this site about different experiences of other having had UFE.
I would like to start by telling you a little about my history. I am 35 with chronic hepatitis c and resulting hypothyroid and fibromyalgia. Daily, I take Norco (narcotic analgesic) and Daypro (anti-inflammatory) along with my thyroid meds. This becomes important later in my story.
I would like to share mine and ask a few questions if possible. I’m really getting scared and a bit paranoid, tbh.
I had my ufe on Friday, June 1, 07. So just a few days ago. When I got to the hospital all went very well. Any fears I had were totally relieved by the kind nursing, radiology and nursing staff. I remember only bits and pieces of the actual procedure and that wasn’t anything terrible either.
After the procedure, I remember the staff having some trouble getting my PCA morphine started and so I was in excrutiating pain for a little while, but once it started, it was much better.
I was placed in a room with another woman. She was chatting quietly with a man and had the tv on quietly also. I made sure that we stayed quiet for her sake, even when I felt like moaning, I tried to stay attentive to her needs. Shortly after getting settled in the room, she got a load of young visitors. They seemed to be upper high school aged kids. They were laughing and having a great time, while I laid 7 feet away in agony. All I wanted to do was sleep and I just could not. That went on for over an hour. My sweet fiance went to the nurses and eventually we were moved to a personal room. This room was hot and nurses were even commenting on it. At one point, I heard a nurse say OMG it’s 88f in here! I was so ill. I threw up for hours and hours without end. This began on the evening of the procedure with the nurses saying they would get maintanance up here and continued on all the way til the next day. I was begging for a fan (and a nicotine patch) and was told that I would have to have doctor’s orders for both. I was also told at this point that I was refused a nicotine patch by the doctor, so in my anger, I walked downstairs and smoked, PCA pump and all. I became really ill and realized it was a mistake and didn’t finish the smoke, but returned to bed. But I began to wonder why nothing had been done about the nausea or heat in the room??? They had either talked to him and not asked or not talked to him at all and just told me no. I waited and waited and the doctor never called. This went on all day Saturday while continued to heave hoe anything I drank or ate. I was on a general diet at this point, so I thought that eating would bring back a little of my strength, but nothing stayed down. By late afternoon, a maintenance guy showed up and fixed the thermostat and set up a fan. Shortly after a nurse came in and began giving me a drug for nausea into my IV. I assumed that they had finally gotten in touch with my doctor over 24 hours later. I had quit hitting the button on the PCA pump. I knew it was the morphine making me so ill….so of course the pain was outrageous. My fiance was livid and some of the nurses who knew of the trouble contacting my doctor were extremely upset too. The other nurses began to treat me as if I was just wildly insane and avoided me. I felt so very alone. I could tell that Tom, my love, was on his last leg. He had not slept either. He tried to cat nap when I did, but it was only in 10 minute increments, so neither of us slept.
Around dinnertime on Saturday, June 2nd, I awoke from a dazed sleep to see a very young man standing over me. The nurse was attending to me at this time and asked who he was. Another person walked in, presumably an aid and both began asking about him. As it turns out, my doctor was only on until Friday night, than an on-call doctor took over. This particular doctor was someone the on-call doctor had sent. It wasn’t even my doctor’s partner! He was plainly lost with my case. He had no clue what was going on and when I asked for different things, like to be removed from the pump and to receive other medication instead was one of my concerns, he told me he’d have to talk to the other doctor and let him decide. He couldn’t make orders for me. I cannot even tell you how upset I was. My fiance immediately began pacing the room frantically talking about what to do and where were my doctors??? I was sobbing. I felt like I had been left in the lurch. Indeed I was.
Eventually, the PCA pump was removed and after a few hours the nausea subsided. NOW they put me on a liquid diet! Now that the nausea is finally gone and I can possibly eat! I was so weak. I hadn’t slept, I hadn’t eaten or held anything down and now I couldn’t do either.
On Saturday night, we were so upset, we called the doctor that actually did the procedure. I called radiology and told them that they had better have him call me or else I was calling an attorney now to track him down. He did call a few minutes later and just couldn’t for the life of him understand why I was upset. He said “I thought that you trusted me. You can hear the chaos in the background here, my children have friends over and it’s loud and I’m really busy, but what do you need?” I told him about the doctor that had come and he seemed taken aback. He said there must have been some miscommunication that he would deal with on Monday, but until than “I need you to trust me, you said you would Susan, do you trust me?” He than said “I should have come to see you Friday night, but things happened and I won’t go into a long explanation, but just know that I am sorry for not coming.”
Finally, even though I was not ready to leave Sunday, I was given to a general diet and given demeral instead along with my Norco. I wanted to sleep. I just wanted to go home to be able to sleep. I only took the demerol once at 4am on Sunday. I wanted to attempt to deal with the pain without extra meds. We again talked to my IR doc before leaving and he initially said he would send me home with a different pain med and Valium to help me sleep. Than he said what he was sending for pain…..Vicodin. Ladies, if you know anything about pain medications, Vicodin is a step down from the Norco I take and it contains a lot of acetominephan which is dangerous to my liver….it was pointless. I tried to explain this to him, but it was like talking in circles. I was just to tired and weak to do it anymore and I went home with only my Norco as prescribed by my primary physician.
3 hours after reaching home, the pain took over again. It was excrutiating. We called the doctor, but he refused to prescribe anything more and than told me come see him in his office Tuesday. This was Sunday. He said until than, if it was too bad, just go to the ER at a different wing of the same hospital in a different town near here. He said he couldn’t do anything if I came directly back to the same hospital??? Because someone else was on call??? Who knows. We called my primary doctor, but his hands were tied because he had not treated me nor seen me. So off to the ER. We went to the ER he told us to go to. They were excellent. The first doctor did urine tests and a cat scan. She treated me with Dilaudid at first, but after 5 shots, it was clear that it wasn’t lasting long enough to help long term. So then they gave me Demerol. A while later, we were told that the doctor wants me transfered back to the first hospital where the procedure was done. We were again livid. They convinced us by saying that at that hospital they could have me see an anethesiologist for a different kind of pain control…..so we agreed.
After being carted off in a very bumpy ambulance sobbing all the way there with every railroad track and pothole, we sat in this room for almost an hour before anyone came. I was in so much pain. When the nurse finally came, guess what drug she brought??? Morphine! I felt like I had been slapped. With all the other drugs that actually worked without twisting my guts, this doctor put me on the same thing that made me miserable. I got up and left AMA with a staff member guy yelling down the hall that if I left “you could be endangering myself and even to the point of death!” We went home and again attempted to call my primary doctor. He told me come in the morning.
Now I have Percocet which dramatically helps. It’s Tuesday at 3:50am now and I awoke with a nice fever of 101.5. I have been running a low grade fever all along since I got home, but now it’s going up and I hurt terribly. It even hurts up my back and I’m sweating profusely non-stop. Nausea set in a few minutes ago and I took the nausea med that my primary had also given me, but I’m scared. I really think something is wrong. The doctor who did the procedure said it was one his best ever and went off without a hitch. The ER doctors that did the cat scan said that it appeared that everything was going as planned and the fibroids were necrosing well. But I’m still scared. I was told that I would only need to miss a couple days of work and now I’m quite certain I’m done for! I’m so scared something is wrong….please write me back. I don’t know what to do aside from wait til morning and call my primary again. I have ativan, percocet and tigan which all help, but I’m thinking I’m due for another dose of the percocet now, but I can’t remember, so I’m scared to take it! I think I have to though…I’m just dying here.
Please help anyway possible. Just reading your posts made me feel not so alone. Do I call the IR doctor and see him after he left me in the lurch? Or do I just stick with my primary doctor who I trust with my life wholey? Any comments or e mails welcomed.
June 5, 2007 at 9:40 am
gypsymantis—I believe that my fellow fibroid warriors will share my sentiments when I say, I am trul y sorry and outraged for all that you had to go through. I definitely think you should at least complain to the hospital and the medical board on the doctor. I am definitely glad that you shared your experience with us, we all learn something. I had my pre-op consult yesterday for my ab myo surgery scheduled in late August. I did not ask the doctor if he would be on call if something should occur. Please keep us abreast of how you are doing. Blessings!
Raquella
June 13, 2007 at 10:43 pm
Love the blog ladies. It has been a great help and a comfort to see that fibroid hell is not a solitary journey. I do have a question for Fibroidfree—who was your surgeon. I am in Philly also and am scheduled for surgery, but plan on getting a second opinion at Jefferson Womens prior to the op.
June 25, 2007 at 12:56 pm
Anyone have experience with uterine artery occlusion for treatment of fibroids? This is a non-invasive treatment option (not to be confused with uterine fibroid embolization). I’m scheduled for the end of this week to treat a 5cm fibroid and would like to hear from someone with personal experience.
July 10, 2007 at 12:03 am
Hello everyone
I bring you news of hope. Please read my story first.
First of all, thanks to all you women out there who have shared your experiences. It gave me the courage to write mine. To those suffering worse than me, which sounds like many of you out there, I pray for a method of treatment for you that will work for your situation.
I wanted to first write of my experience with this disease on the forum. I’ve been suffering with very heavy and lengthy periods for approximately 10 years now. I simply thought I was “cursed” with heavy flow, since my mother suffered with the same condition for many many years. I was going to see my ob/gyn at my next pap smear (maybe in a year or two) when I suddenly out of the blue developed PID as a result of my fibroids. He ordered an emergency ultrasound, which freaked me out pretty good, revealing the fibroids and enlarged uterus. Upon the news, the doctor and I discussed my monthly symptoms. My doctor had told me that there were miraculous treatment options recently available and that I did not need to suffer needlessly with this condition, and referred me to an OB/GYN specialist, who referred me to a surgeon who specializes in the procedure.
Let me first say that I sympathize with those of you who have bled through sheets and towels, I too have been there upon occasion, wearing three or four pads at once just so that I didn’t have a mess to clean up later, usually with little luck. I have also, like many of you, pass large clots on a monthly basis, and have had many toilet bowls turned completely red with blood. The energy drain many of you felt, I felt too. To those who are anemic regularly, my heart goes out to you. I think I was nearly on the verge of that myself.
My news of hope for you. Today I underwent a hysteroscopic myomectomy, which was a telescopic procedure to scrape out the fibroids from the uterus without any incisions through the vagina. I chose this to preserve my options for future fertility and keep my hormonal balances, as well as for the fact that it was least invasive of the truly surgical options.
I have already attested to the fact that my ultrasound had me completely freaked. You can imagine this procedure totally had me shaking like a leaf. I was very frightened about going “under the knife”. Let me tell you, there is little to fear from this procedure. Literally hours later, I am feeling nearly healed from this procedure with little blood loss and nearly no pain or cramping. I project using only one of my pain killers not for pain but to try to facilitate sleep.
Literally, from my experience having recently run a marathon and a couple of half-marathons I can tell you that running those races were far more painful in terms of residual effects than this has been, the whole experience combined.
If hours later I am doing this well is any indicator of my future periods, I am truly looking forward to becoming “normal”. I am filled with great hope.
A word of advice to all who are considering a surgical option, find an individual who specializes in your type of procedure. Your best hope lies with those people. Harder to find, granted, but worth the search and whatever wait you have.
Also, I believe that my active lifestyle is assisting in the speed and pain level of my recovery. Luckily at the worst so far, this has been maybe a 1 or 1.5 on a scale of 10 pain wise. If it is at all possible for you, try to become more active. Walking, biking, running, elliptical, stairmaster, laundry, kickboxing, whatever- it all helps. Being more active may assist you in your progress as well, and perhaps bring you overall better health.
God bless and good luck to all of you. I wish you the same peace of mind, relative painless procedure and recovery and hopeful outlook I have at this moment. I will follow up as I progress.
If anyone is interested, I keep a somewhat active running blog at rungalinstpaul@blogspot.com where I chronicled my training for my first Marathon, which I finished on 6/16/07.
July 10, 2007 at 10:16 am
I promised to post a follow up, so here I am. It is the next morning after my surgery, and I am feeling at or close to 100% back to my normal chipper self and feeling even more hopeful.
July 10, 2007 at 10:48 am
Apparently my story never posted from yesterday, so here it is today
I bring news of hope.
First, thanks to all the women who have posted your stories here. That’s what gave me the courage to post my story here. I wanted to relate my understanding and sympathies to all who have posted their experiences with fibroid disorders. I understand all too well how you feel. I watched my mother live through many miserable years with this disorder. Apparently my Grandmother also suffered with this too.
I can tell you I’ve been there to those who soaked through their towels underneath them at night while wearing four pads to try to make it better, only to fail. I have passed the same nasty clots on a monthly basis regularly and suffered through bad cramping, bloating, migraine headaches, as well as my fair share of toilets full of blood on nearly an hourly basis while it was at its worst.
I suffered from it for nearly 10 years before it came to light that I too had the disorder. Before that, I simply thought I was “cursed” with heavy flow and bad symptoms, and that I simply had to “grin and bear it”, even though I was on birth control, which is supposed to help with these types of things. I was going to talk to my usual doctor at my next pap smear (about a year or two from now) about heavy bleeding when I suddenly and unexpectly developed PID and pelvic pain symptoms, so I went to the doc.
That same doc sent me for an emergency ultrasound, which freaked me out pretty good. Anything with emergency in front of it is plain scary, plus I had no idea of what to expect of the procedure, so I was pretty freaked out about it. It was there that we discovered I had multiple fibroids, the largest approximately 4 cm. I was encouraged by my doc to seek treatment, and was told I did not have to suffer needlessly with this condition. He referred me to a specialist, who then referred me to my surgeon who specializes in minimally invasive procedures.
Yesterday, I had a hysteroscopic myomectomy, which is a telescopic device inserted through the vagina and cervix that has a tiny camera on it and can cut out the fibroids without an incision. I chose it due to the fact that I wanted to preserve my organ and future fertility options as well as the fact that it is the least invasive of all surgical options. I can tell you that the idea of having surgery in and of itself had me shaking like a leaf. I was very frightened about all of this.
Let me tell you this procedure was nothing to be frightened about. Immediately afterward, I was feeling about a .5 or 1 out of 10 for pain and cramping. To be honest, the worst pain was when they had to remove a balloon and catheter from my vagina due to the bleeding, which really only lasted a second. This was truly easier than the pain experienced during many of my periods. Literally I can tell you that the pain of recently having run two half marathons and one full marathon was far worse than this was.
After merely hours after the procedure, I was feeling little to no pain. I didn’t really even have to use my pain meds (Vicadin). I only used one to try to help me get to sleep, but it didn’t seem to help with that at all. And the bleeding wasn’t even that bad to begin with. Nearly 12 hours after, it’s all but gone. My news of hope: I am hopeful that these signs will lead to future relief from my symptoms and a return to “normal” periods. If my recovery is any indication, I am very optimistic.
A few thoughts for all of you: You do not have to give up your womanhood or future fertility. There are options available now that have never existed before.
Please, find a surgeon who specalizes in your procedure of choice. The wait is well worth the while and you will be thankful for their skill.
Also, I believe that my active lifestyle is helping in my speedy recovery from this surgery. If you are able, I would suggest to become more active through whatever means you can. Any amount of exercise is likely to lead to better health overall, and, perhaps a more speedy recovery from any procedure you may have. I have read somewhere that for every hour of continual physical exertion you make, you extend your life by two.
I am praying for all of you and hope that you find relief from your symptoms and wish for all of you the best. I hope for both speed of recovery and ease of procedure.
If anyone is interested, I keep a somewhat current running blog at rungalinsaintpaul@blogspot.com. I chronicled there my training journey for the marathon I finished on 6/16/07.
July 13, 2007 at 5:28 pm
Is it possible to return to work after three weeks if you had a abdominal myomectomy.?
Please advise as I am very unsure of what to expect in terms of recovery
I am having this procedure in response to a very large uterus (28 weeks) and I wish to bear a child
July 14, 2007 at 1:33 am
Kulvinder,
I think it all depends on your individual recovery – everyone goes through that their own way. I was ok to go back to work (lightweight situation, not physically demanding, but involved driving to and from) after two weeks.
Talk to your doctor to get his/ her input and recommendation. But for more info I would recommend reading the “how are you feeling after your abdominal myomectomy” thread on this website. You will get amazing amount of insight on this procedure, the before and the after.
Good luck!
Jo
August 2, 2007 at 1:23 pm
I had an abdominal myomectomy July 2006 and things were going fine up until November 2006. I did not get my period and since then have gotten my period sporadically. My doc says I have PCOS (Polycystic Ovary Syndrome). I asked if the two were related and the doc says no. I want to know if anyone is/had this experience (PCOS)? Medical experts don’t know the causes, they have been speculating on many things. Please share thoughts or experience.
Crystal
September 25, 2007 at 10:03 pm
Just wanted to say thanks for all the info on this very improtant website. I’m recovering from UFE which took place on the 20th. It was reassuring to have a sense of what was going to happen, even if everyone’s experience is different to a certain degree. I’m doing great although my post procedure pain was pretty bad at first, I have been feeling gurgly with the usual bleeding but nothing resembling the initial pain since coming home. I’m proud of myself for following through with the UFE and look forward to normalcy!
October 6, 2007 at 12:58 am
Hi, I wasn’t sure where to put this, but I thought it was interesting… I’m glad word about all these health issues we’re dealing with seem to be coming more and more into the open. I just hate being surprised by these conditions, and wish as women we’d be more educated about what’s to come.
Lets keep talking openly about all of this, and maybe with more women talking, more women will feel free to come forward, and more research will be done, and better treatments will come around….
http://www.spokanejournal.com/spokane_id=article&sub=3328
October 8, 2007 at 4:46 pm
Hi all!!
What do you think about Tokio Hotel? >:)
October 12, 2007 at 2:37 am
I wasn’t sure where to post this but anyway…
I am now officially a Fibroid Geekette. I was at the Body Worlds Exhibit (“the Anatomical Exhibition of Real human bodies http://www.bodyworlds.com/en.html). It’s an amazing, stunning, and thought-provoking exhibit. But the whole time are these fibroid geek thoughts going through the back of my mind:
a) I want to see the layer of muscle that lies in front of the abdominal cavity, to see just what exactly they’ll be messing with if I have fibroid surgery, and to understand how can I feel the fibroid so distinctly, when there’s supposed to be a layer of muscle over everything (turns out the muscle layer is very thin, looked like a slice of beef jerky!).
b) I want to see just what a uterus looks like, especially its size. And BONUS–they had on display a uterus complete with a sub-serosal myoma. And even in the same location as mine–fibroid geek excitement! But disappointingly, it was only a small one, maybe 2-3 cm. Couldn’t they have come up with a more dramatic one? The great thing about the exhibit was that the uterus/fibroid weren’t all gross and bloody like it photos, but just sort of clean pale tissue. It really helped me to put things into perspective to see the real thing. Though it kind of freaks me out to realize that the fibroid I have is bigger than my uterus–not sure whether this pushes me toward or away from having surgery.
In any case, if you’re interested in the human body from any perspective, that exhibit is very worthwhile.
November 7, 2007 at 4:08 pm
Hi, been reading all your comments and feel better knowing I’m not alone. I was diagnosed with a fibroid 10 years ago (golf ball size) had no problems until the past year when I started getting a lot of urinary infections and my periods became very heavy (flooding everywhere) The past six weeks I have been bleeding on and off almost constantly, heavy then light, big clots, little clots back pain, it varies day to day. I have a scan next week to see if the fibroid has grown so hope it is that as I can’t understand what is up with me otherwise. I have just turned 40 and never had period problems in my life so this has been pretty frightening. My Mum had a hysterectomy at 37 due to fibroids, so I guess that is the most likely reason for my present problems.
November 13, 2007 at 9:11 pm
Hi , this is a really good site. I have been surfing on the net for days. But maybe you can help me.
Im a 33 year old woman. trying to get pregnant. I have fibroids for a few years now. But surgery never was nescesary. I had onley 2 small fibroids. But the last i went for a check up, i had 3 and my gynecologist told me i needed churgery. so i went for a second opinon. but this dokter told i have 5 fibroids, and the biggest one is like 15 centimeters. Thats big, and she wants me to do a hysterectomy. And she told me i cant have any kids! I was angry and hurt. But maybe you can help me.
Do you know a excelent surgeon or (RE) /Endocrinologist who can help with this problem. My boyfriend and me really really want a baby.
HELP
Nayomi, Dutch Antilles (caribbean)
Im willing to come to the states to have surgery!
November 14, 2007 at 1:36 am
My friend (27 yrs old) has a 6 cm fibroid in the fundus of the uterus. Can she still get pregnant and successfully deliver? The doctor is taking long time to give appointment.. so any advice will really help her.. thank-you.
November 26, 2007 at 9:13 pm
Wow ladies. This site is great! Thanks to all who have writen their stories. Though its not good we are all suffering with these issues..its good to know there are others out there with some of the same issues. I go for a hysterectomy on Wed the 28th. I know its super controversial to get a hysterectomy these days, but my symptoms are crazy and I’ve been dealing with them for 2 years. I get to keep my ovaries, which was really my main concern being 43 and not being closed to the dreaded menopause for 10 years or so. I have at least 9 fybroid tumors, inside, outside the uterus. They have grown for the last 2 years at a pretty fast rate and I am so anemic, I have to take 325milligrams of Iron every day. I am a super busy, energetic person and so when I started taking naps on weekends, I knew something was really wrong. I have a wonderful daughter and really don’t feel attached to my uterus. The bleeding, anemia, and protruding stomach that REALLY looks 5 months pregnant is unbearable. I work out 5 days a week, lift weights, do spinning and still look pregnant. Its so nuts, Icannot even barely wear my clothes any longer. Net, I am really pumped about getting it outand done. Have been told folks lose 10 – 20 lbs after just due to losing the uterus. Yay!! Oh well, thanks for your stories, if anyone else has experienced something similar with the pregnancy look and hysterectomy, please do share. thanks
December 31, 2007 at 1:45 am
Nayomi,
I hope you’re still reading this…sorry no one has answered your question… So I’ll try: from reading this site for a while now, yes, there have been a number of women with fibroids as large as yours (and larger) that have had them removed… but it may have to do with the location of yours… Since you say you can go to the States, if I were you, I definitely would!
Good luck!
Anjali, if you are still reading this, yes, there are many women here who have gone on to have babies although they have fibroids… and then there are some who have also lost their babies… but it is certainly possible to carry through delivery. However, I don’t know enough about fibroids in the fundus… you may want to ask the same question in the ttc (trying to conceive) thread:
http://blog.geekwithfibroids.com/2007/02/15/trying-for-pregnancy-ttc-after-your-fibroid-procedure-abdominal-myomectomy/as well as :
http://geekwithfibroids.wordpress.com/2006/11/30/is-anyone-having-problems-with-uterine-fibroid-pain-during-pregnancy/
Anyone posting here should consider posting at some of the other threads (look in the right margin under “Geeks read these entries most”)
Good luck!
Amy
January 23, 2008 at 9:13 pm
Hi All,
Is anyone taking tranexamic acid? Does it help? Can you take it while being on birth control pills? And finally, are you in the US and if so, where did you get it? I am being told that it is currently in clinical trials for the US but I found a study on-line that made it look so hopeful!
I offer the site humbly to the Geek:
http://www.bmj.com/cgi/content/full/313/7057/579
January 27, 2008 at 2:31 pm
Hi Aja,
I used to take it. It was ok for the initial phases of my fibroid bleeding. But when the bleeding got really bad , it couldn’t fight against it.
I guess it is ok with bc , it wont interact and make them not work; but you have to remember that it too is an co-agulation agent which means that you then ned to be super careful about clots…
In canada TR is marketed under the name cyclokapron, I am not sure if I have spelled it correctly but thats how it sounds.
good luck
February 5, 2008 at 1:59 pm
Thanks Micky!
Here is another question: if one has UAE, does that mean that one can no longer have the MRIgFUS treatment? I was wondering whether the particles they use to embolize the blood supply interfere and scatter the ultrasound waves. Does anyone know?
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March 12, 2008 at 1:57 am
My fibroid tried to escape on saturday, they tell me to push it back in.lol i saw the radiologist today, waiting for a call to get a date for embolisation, then hopefully they can do a D & C and suck the thing out
March 20, 2008 at 1:06 pm
Hi All,
I am in excellent spirits. I had a very successful exablate procedure (I have described it on the MRgFUS thread). I am now wondering about sustaining my fibroid-free condition. Ruth said that she had cut out phytoestrogens and still experienced regrowth. What have others done — including all you myomectomy gals? Have any of you taken on diet and lifestyle changes to try to keep your results?
May 9, 2008 at 6:48 pm
Hi all. I am just diagnosed today with two fibroids (both roughly 3cm). One is intermural and the other is submucosal.
I used to be very regular. The last three months have been bizarre periods. One period lasted eleven days. The next month I bled for a week, then two weeks later I bled for another week. All that was enough to make me go to the doctor and complain.
So, I get my results today and find out that all my doctor wants to go is put me on birth control. Even though I have discussed with her that my husband and I are going to start trying for children within the next six months or so. Didn’t I read that the pill produces estrogen and estrogen can make the fibroids grow?
I am pretty uneducated and hope that someone can tell me if the little bit that I know is correct or incorrect.
Thanks.
July 27, 2008 at 6:42 pm
July 27,2008 Hey , People boy did I speak to soon well last night I got punished for my words on here. I did not sleep the entire night it is now 10 or 11 days past my UFE. I had actual labor pains just to let you people know I am 47 years young. I felt as if something was turning over and over in my stomach please someone write to me and let me know why I had a cycle after my surgery. The cycled stopped for three days now it is back it had me on my knees as I popped the Oxycodone. I need something more for pain and will I ever go off of my cycle? When can I expect to deliver the baby? I now feel maybe I should have had a partial hysto it is starting to look better than the pain I am in. Maybe, it is that I am old will not write again until after I have seen the doc he has some like we say in the south “splaning” to do. I am hopeful but in pain looking very pregnant here ppl……Angel
August 3, 2008 at 1:01 pm
I currently have fibroids, but mine are extra large. Has anyone with extra large tumors had UFE? I just can’t bring myself to having a hysterectomy. I have the read the horrible symptoms of a hysterectomy. Has UFE worked for anyone with extra large tumors?
August 23, 2008 at 2:44 am
Hi Candi,
Like you, I have a very large fibroid (that makes me look 6.5 months pregnant). Even if I wanted to have a hysterectomy right now, I couldn’t because of the anemia(along with a few other minor issues that I need to clear up). I am planning to have the UFE as an alternative to using Lupron to devascularize the fibroid and maybe shrink it a bit.
My primary concern is the heavy bleeding. It is my understanding that UFE is most effective for controlling bleeding. However, if you are looking for a large reduction of tumor size, there is no guarantee that the fibroid will drastically shrink. This is true even for some women with much smaller fibroids.
UFE is not without its own set of complications. Although most of the risks are rare, there is a chance of developing an infection or passing a fibroid up to a year(or even longer) after the procedure. There is also the chance of not ever having a regular period. A few women have entered menopause earlier than expected as a result of the procedure.
If you haven’t done so already,see if you can talk to an experienced Interventional Radiologist about your particular situation. You will find that some have no set established size criteria for the fibroid where as some will not do a UFE if it is above the navel. You will also need to have an MRI done so that it can be determined as to whether or not you are a good candidate.
There have been a few documented case studies of women with large fibroids(uterine size +24 weeks) who had experienced a significant reduction in their size. So in a few instances, size may not play a role. Having a viable,blood sucking fibroid seems to matter.
August 28, 2008 at 2:00 pm
Yours is an exceptional site, deserves more time devoted to it than I have to give. Ofhand comment: Isn’t it odd how it seems the first thing most doctors want to do with any condition is to opperate? Reading up on my particular problems helps me to ask questions of my doctor. I’ve had many health issues and have gotten little help from my doctors. I have learned to read extensively, question, get pain meds (which I seldom take and they expire) and still feel inadaquately cared for, that the medical community in general po po’s women. Thank you for a site devoted to women, made by and for women. God bless.
September 4, 2008 at 2:58 am
I tried to explain this to him, but it was like talking in circles. I was just to tired and weak to do it anymore and I went home with only my Norco as prescribed by my primary physician.
mike
Holistic Rehab
September 17, 2008 at 1:40 pm
Hi all,
Have you heard of doctors using ultrasound waves to destroy fibroids? It is the latest medical technique to treat fibroid tumors and is approved by the FDA. There is no incision, general anesthesia or hospitalization associated with the procedure. Magnetic resonance guided focused ultrasound (MRgFUS) uses magnetic images to view fibroids from many angles inside the body. A gynecologist trained in the procedure directs high-intensity sound waves at fibroid tumors to shrink and destroy them. I know a couple of people who have had it done and they were only out of work one day.
The women I know had the procedure done at SightLine Health (www.sightlinehealth.com), which is doing the procedure in Dallas, Austin, Houston and Atlanta. Of course there are other companies doing at select clinics around the nation, such as at the Mayo Clinic and the Stanford University School of Medicine. Here is a link I found by some scientists who have researched and reported on its effectiveness. http://www.expert-reviews.com/doi/abs/10.1586/17434440.4.4.539
And here is another interesting link on the cost effectiveness of it. http://www.uterine-fibroids.org/uterine-fibroids-en/cost-effective-treatment.html
September 18, 2008 at 2:03 am
Hi Su Kay,
Here is the thread on this website that talks about MRgFUS:
http://blog.geekwithfibroids.com/2006/09/24/does-anyone-have-an-experience-with-exablate-mrgfus/
The biggest hurdle is insurance coverage but it is an amazing procedure.
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October 17, 2008 at 2:57 am
Hi ladies! Finally got out of bed at 11 pm because I couldn’t sleep – I am ten days after my embollization – how I wish I would have found this site before the surgery so I would have known more of what to expect and prepare for time away from work! I thought I had researched this procedure fairly well before proceeding but……. after reading all your comments I am glad to know that I’m not crazy and just a whiner! My doctor and nurse have not made me feel that way – they have been supportive but I felt I should have been back to normal by now! Anyway… thanks for all stories, I have had every symptom – was wondering, unless I missed it – are there comments from anyone, 9 months to a year after the procedure? Am I ever going to feel normal again? It’s kind of discouraging to hear about those of you who still don’t feel well after months……
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October 26, 2008 at 1:53 am
I had a coil fitted by my GP to prevent fibroid growth and stem severe bleeding. One day, after feeling incredible abdominal pain, i did a self-examination and discovered the coil had been dislodged. I went to a Dr. to have it removed and he told me that wearing tampons had dislodged the coil, he removed that one and inserted a new one, this was incredibly painful! The new coil did not cure the bleeding symptoms and I went to a gynecologist who told me that i had a fibroid in the uterine entrance, and that this had grown and pushed out the original coil. It also explained why the insertion of the replacement coil had been so painful.
I had to have surgery to have the fibroid cut out, in addition to this the second coil had been pushed up into my womb by the fibroid, and had to be found by the surgeon. So, if you have similar problems to these, be wary of what different Drs might tell you, mine was certainly incompetent and caused me a lot of grief..
October 29, 2008 at 2:19 am
Hi Cindy B- Since you haven’t seen any responses here, try posting your question on the embolization thread: http://blog.geekwithfibroids.com/2006/09/21/how-are-you-feeling-after-your-uterine-fibroid-embolization/
November 2, 2008 at 9:30 am
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November 2, 2008 at 11:17 pm
Hi eclecticgeek,
Thank you very much for this valuable site, it is very helpful. I am almost 51 years old and probably is in the stage of peri-menopausal. My blood test report in July 2008 indicated that my LH = 40.4, FSH = 55.4, Estradiol = 14 and Progesterone = 0.9. Doctor said that if FSH is larger than 23, I am in menopause. I had irregular bleeding lately, sometime spotting and sometime very heavy bleeding. My recent Oct. mens was very heavy and lasted for 9 days. In Sept. I suddenly passed blood clot, I thought it was mens but it immediately stopped in minutes with nothing in pads, no discharge and like nothing happened. Two days later, the blood passed all of the sudden and it stopped right away. I am sure it is not the Menes this time. Doctor said that I have cervical polyp (1.5 cm) but the bleeding was coming from the uterus not from the polyp. I also have one 1.6 x 1.3 x 2.1 cm submucosal myoma (fibroid) as indicated by TVS and MRI.
To rule out the endometrial cancer and the souce of the bleeding, doctor suggested to do a D&C and remove the cervical polyp in the same time but would not remove the submucosal myoma in the uterus since I am close to menopause (51 years old). He said after the menopause, the submucosal myoma will be in remission and would not be a problem. Recently I asked second opinion but surprisingly, that doctor insisted to remove the submucosal myomal, although he can only remove part of it since part of the myoma is in the wall of the uterus. I am concerned of the increased complications of the hysteroscopic myomectomy such as uterine perforation, bleeding, and fuild overload resulting brain damage. More over, I am not sure if the fibroid should be removed at my age close to menopause. Further, I am not sure if my irregular bleeding was caused by the fibroid or not.
I need your opinion if I just let doctor to remove the polyp without touching the myoma or should I let him to remove myoma as well?
I must under general anesthesia if myoma is going to be removed but I can be under local anesthesia (IV sedation with para cervical block) if just to remove the cervical polyp and D&C.
Thanks.
Jane
November 9, 2008 at 5:29 pm
I posted a question on Nov. 2 but did not get an answer. I need to make a decision of the treatment options for my bleeding problem described before. My current period started on Nov.1, now it is 9th day and I still have the fresh blood. Should I just do an D&C and remove the cervical polyp or should I remove the submucosal fibroid as well?
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November 10, 2008 at 11:44 am
Hi Jane,
There are no clear answers with fibroids. Each woman has to decide what she wants to do and can afford to do. (And of course by the time we have to make the decision we are often quite sick with anemia!) It is true that fibroids often shrink with menopause when they are starved of hormones. However, it is also likely that the submucosal fibroid is causing the lion’s share of your bleeding problems. Only you can say how much more you can put up with in terms of bleeding.
I should also add that I was very frightened about general anesthetic but found it to be a benign experience. I also had a submucosal fibroid – about the size of a tangerine, and in the end I opted for treatment with ultrasound (MRIgFUS). I have been very happy with my choice, but there are many treatment options and women have had success with a number of different approaches.
Best of luck! I know how confusing it all is because about a year ago I was in almost the same position.
November 10, 2008 at 12:44 pm
Hi Aja,
Thank you very much for your reply. I am gald that you treated your fibroid with MRIgFUS, the least invasive procedure. How did you feel after the procedure? The technology was approved by FDA in 2004 and long term safety and effectiveness are being evaluated. I was looking a doctor who does MRIgFUS yesterday but have not found anyone in NJ yet. Do you know a doctor in central NJ who does MRIgFUS? Do you know if medical insurance (Horizon BC/BS PPO Plus) cover this procedure?
My submucisal fibroid is about 1.6 x 1.3 x 2.1 cm. I do not know if it is the cause of my prolonged bleeding or not and I do not know if doctor can tell at the time of performing hysterscopy. I heard diferent opinions of removing the submucosal fibriod at my age, that’s how confusing it is right now and the decision needs to be made as soon as possible. Thank you very much.
Jane
November 10, 2008 at 7:53 pm
I can’t tell if I am one of the longer term persons since my injections. I went to DR in 1994 after fighting for 3-5 yrs to get one of the male ob/gyn doctors in nay small town to believe I knew my body. I went from a 3 day light period to 1 week very heavy with clots over those years. In the 3 years /3 docs they told me I was lucky to have a light period. I finally got to the new female ob/gyn in our town and she listened. I wasn’t complaining about heavy, I was complaining that this was changing and very different for me. She diagnosed fibroid. I immediately sent spouse to public library since I worked out of town. I was lucky to be near the end of my periods and found theory that Lupron injections could kick you over to menopause and that might shrink tumor because it cut off blood supply or at least would not continue the grow. I read several books looking for an alternative to hysterectomy and presented my doctor with info. She said she needed to know what the book was that I was reading because it was almost exact to the penny about cost per shot. She then researched and agreed this might work for me. We did hip injections, seems they were 2 months apart/ maybe 3. Seems I got 4 injections across the period of 10 to 12 months back in 1994. I was lucky, I didn’t grow additional facial/body hair; found I only got hot flashes if I got stressed or got angry (teenagers at home) so I immediately fell back on my normal transcendental meditation (any yoga or form of meditation you use would probably be effective) and additional minutes of meditating any time I was about to stress, added more B12 and all B family vitamins for energy, puzzles for my mind. I also think you can learn a lot about your symptoms if your mother, sister, grandmother has gone through menopause so you can try to watch for clues as to how you are or will react. During the 12 months, my periods were getting to be like the ones I had for the past 30 years and did not immediately stop. They tapered off and I graduated to menopause. I have always know I was lucky because I had such light periods all my life and my older half sister had all her periods heavy and from 1 to 2 weeks each month. The main reason I added my comments is to offer hope for long term success or info. I don’t want anyone to get the idea I don’t believe all their symptoms are mental and not physical, but I think attitude or anything that might help cope with symptoms is valuable. I found good meditation sites online that have music, great words and pictureswhich I used at work.
My younger sister is now experiencing this so I was researching for her when I came across your site. I hope for the best for each of you.
November 15, 2008 at 11:43 am
Jane, I was bleeding a lot and very anemic. I’m 53 now, but two years ago I had a hysteroscopic endometrial ablation an d&c and while in there, the doctor discovered a submucosal fibroid he didn’t know about, and he removed what he could. Since then I am totally fine! I still have two other large fibroids, which I still think I want to remove due to the bulk and some problems having to pee too much and some back pain that might be due to them…. but no more huge periods! What a relief. Look up more of my details on the endometrial ablation discussion on this site. Best!
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December 28, 2008 at 2:52 pm
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Новый способ давления на кандидата на пост Главы г. Химки
Новый способ “наказать” тех, кто посмел участвовать в выборной кампании не на стороне действующей власти изобрели правоохранительные органы г.о. Химки.
Руководствуясь не нормой закона, а чьей-то “волей” сотрудники милиции решили “проверить” все фирмы, внесшие денежные средства в избирательный фонд неудобных кандидатов.
Начались “проверки” с телефонных звонков – где директор, сколько человек работает на фирме. После чего последовали “письма счастья” с просьбой предоставить всю бухгалтерскую документацию, учредительные документы фирмы, и даже, план экспликации БТИ.
Такие запросы химкинским фирмам рассылает 1 отдел Оперативно-розыскной части № 9 Управления по налоговым преступлениям ГУВД Московской области за подписью начальника подполковника милиции Д.В. Языкова.
И всё это в то время, когда Президент дал прямое указание правоохранительным органам о прекращении всех незаконных проверок малого и среднего бизнеса. С это целью внесены изменения в Федеральный закон “О милиции” – из статьи 11 этого закона исключены пункты 25 и 35, на основании которых ранее правоохранительные органы имели право проверять финансово-хозяйственную деятельность предприятий.
Видно, об изменениях действующего законодательства местные правоохранительные органы не уведомлены. И не смотрят телепередачи с выступлениями Президента.
Может быть, эта публикация подвигнет их к исполнению указаний Президента, а также к изучению и соблюдению действующего законодательства
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April 7, 2009 at 10:32 am
I am having a hysteroscopy myomectomy to remove one submucaneous fibroid which my infertility dr. believes is preventing me from becoming pregnant. I am 35 years old. After the surgery I was told I would be put on estrogen therapy to help heal my uterus. Has anyone else undergone estrogen therapy? What does it involve?
April 10, 2009 at 1:56 pm
Hello. I would love to have a forum added addressing post-pregancy experiences with fibroids. Does anyone have any information about what was experienced after pregnancy? Did they shrink/hurt?
May 9, 2009 at 2:58 pm
hay ,
im a 21 year old girl and i have a fibro tumor in my right leg under my bum ,im taking medication for it and will have it operated on when they shrink it smaller enough ,it is very painful as its all around my nerves and muscles and i cant use my leg that much ,i havent come across anyone with it where i have it ,and im not sure where to write so i thought id just leave a comment here xxx
May 25, 2009 at 6:40 pm
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May 27, 2009 at 7:27 am
Hello, am 25 years old and I have been diagnosed with uterine fibroids…i am due to have an operation in 3 months and in the meantime I am under hormone injections.. It would be really nice to hear some of your pre-operative experiences with regards to the injections..how you felt physically after each dose..
Thanks
Lara
May 27, 2009 at 6:58 pm
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- Людмила Федоровна?
Окликнувший меня надтреснутый женский напев напомнил мне голос одной маминой подруги.
- Верно, – с готовностью обернулась я, рано расплываясь в улыбке, – А с чего это прелюдий по имени-отчеству?
Но это была вконец не мамина подруга. Смех долго сползла с моего лица.
- Извините, – пряча взгляд, сказала женщина, – Вы меня не узнаете?
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- Не узнаете? Начинать, это неважно, – пробормотала моя собеседница, – Понимаете, моему сыну плохо!
- Господи, а сколько с ним?
- Немедленно! – засуетилась она, бочком вталкивая меня в дверь одного из боксов, – Сейчас! Сейчас вы всегда узнаете…
Однако плохо наконец не стало мне самой. В гараже вместо бедного умирающего юноши меня ожидал… десяток угрюмо молчащих пожилых дам в возрасте через болтливый лет и старше.
- Здравствуйте, – пролепетала я, охваченная нехорошим предчувствием, – А где…
Из строя женщин вышла стриженная почти «каре» эксцентричная человек в черных очках и вельветовых джинсах, явно не в себе.
- Ведь вас же по-хорошему предупреждали, – без всякого вступления начала она, – Звонили, капитал предлагали. А вы? Неужели беспричинно трудно было начинать нам навстречу? Неужели вы не понимали, где окажутся наши мальчики, ежели их отчислят?!
Господи! Так это который, мамаши моих бывших студентов?! Коли беспричинно, то диалог будет тяжелым – меня ведь не наобум называют изза глаза поставщиком кадров для ведомства Паши-мерседеса… Начинать, не умею я пить зачеты по-капиталистически. И еще терпеть не могу, когда на меня «наезжают» всякие прыщавые юнцы. Это только укрепляет меня в мысли, что им со мной в одном вузе творить нечего.
Но это в аудитории беспричинно хорошо быть смелой и принципиальной. А здесь, разве честно, у меня затряслись поджилки…
- Я простой честно делаю свою работу! – принялась извиняться я, понемногу отступая к двери, – Извините, только вдруг же иначе?
Изза моей спиной громко лязгнул засов. Заманившая меня сюда лахудра понимающе покачала головой – мол, о побеге и не думай.
- Послушаете! – воскликнула я, теряя мука, – Ну чего вы теперь-то через меня хотите?!
- Сколько мы хотим! Который мы хотим?!! – буквально взвыли престарелые мегеры, и, сиречь сообразно команде, набросилась для меня с кулаками.
Чувствовалось, который дрались они не часто. Но их было чрезмерно много. Так который пока пара крепко держали меня изза руки, остальные колотили, гораздо придется. Меня били накануне тех пор, временно у меня не потемнело в глазах и не подкосились ноги. Наверное, били и впоследствии, однако я этого уже не помнила…
Очнулась я от холода и сырости – кажется, меня окатили из ведра водой. Я лежала на полу приблизительно голая, разве не вменять чулок, туфель и мокрой разодранной блузки. Тело мучительно ныло, во рту ощущался привкус крови. Изрядно пострадала прическа. Но самым страшным была неопределенность, в которой я пребывала. То, что меня избили, я опять могла хоть как-то объяснить. Однако зачем приходится было меня паки и раздевать?
- Очухалась? – недобро усмехнулась тонкими подкрашенными губами та, кому я была обязана своим появлением здесь, – Ну, тут продолжим…
- Который – продолжим? – тряхнула я гудящей, будто колокол, головой.
- Учить тебя, сучка ты эдакая! Чтоб неповадно было наших детишек маять!
В отчаянии мне захотелось биться за голову, и единственно безотлагательно я почувствовала, который руки мои связаны следовать спиной. Беспричинно, этого всего не хватало…
- Истинно кого я мучила? Пустите! – простонала я, начиная течь в панику, – Вы меня с кем-то путаете!
Меня рывком подняли для ноги. Я лишь не заплакала через унижения, заметив в толпе мужчину. Его я узнала сразу. Это был владелец шиномонтажа, долгий пропойца и отец одного из моих бывших студентов. Днесь этот невзрачный мужичок, якобы всегда, подшофе, стоял около компрессора чтобы накачки шин и, поигрывая его черным резиновым шлангом, нагло пялился для мои неприкрытые прелести.
- Нисколько мы не путаем, Людмила Федоровна! – ткнула в меня узловатым пальцем в подбородок тонкогубая лахудра, – Начинать, Петрович, покажи ей кузькину мать! Пускай вспомнит моего сыночка Гришеньку!
Ради моей спиной послышалась странная возня. Кто-то развел в сторону мои ягодицы.
- Что вы делаете?!! – в ужасе завопила я, поняв, сколько шланг компрессора вставляют мне в зад.
- Учить тебя будем, коза!
Тогда же мощнейший оплеуха перед дых совершенно согнул меня пополам – это Петрович открыл легкий вентиль. Из моих глазища брызнули плач, дыхание перехватило. Пока я с выпученными глазами хватала ртом воздух, мои палачи удовлетворенно потирали руки.
- Сколько, весело, госпожа Андрейчук? – ехидно спросила тетка в вельветовых джинсах, – А если моего Вовочку в армию спроваживала, так же веселились?
– Изза что?! – прохрипела я, – Я же ему такого не делала!
- Ты ему хуже сделала, – вкрадчиво пояснила тетка, дохнув мне в лик алкоголем, – Ты его на два года без мамочки оставила! Давай, Петрович!!!
Петрович вновь дал, разумеется беспричинно, который мои глаза едваедва не вылезли их орбит. Сообразно кишкам как ударили кувалдой. Хорошо опять, что шланг почти давлением воздуха вытолкнуло из моей попки, и это дало мне небольшую передышку. К сожалению, продлилась она недолго.
- Нечего пердеть тут около всех, гадина! – злобно прошипела мать известного оболтуса Евгения Ефанова, пихая шланг вспять в мою задницу.
- Желание что же вы творите?! – взвыла я.
Рот у меня тряслись, из глаз ручьями лились слезы, и я нуль не могла с этим поделать. Но муки мои, способный, всего забавляли озверевшую свору мамаш.
- Заткнись, я сказала! А ты, Петрович, качни-ка ей вторично разок изза моего Женечку!
- Может хватит качать-то, бабоньки? – засомневался Петрович, глядя на мое перекошенное лицо.
- Такой умница был Женечка! Такой вежливый, такой жалостливый! – заламывая руки, продолжала причитать Ефановская мамаша, – А эта стерва…
- Правда ваш Женя общий занятий не посещал! – в отчаянии выкрикнула я, потому который это была истинная правда.
- Не ври, сука!
На этот единожды залп сжатого воздуха был такой силы, который я не устояла для ногах и, густо рыгнув, осела на пол.
- Так тебе, вражина! – пнула меня в урчащий брюхо Ефанова и, довольная, отошла в сторонку ухаживать следовать моими корчами.
Не успела я отдышаться, только для смену ей подскочила неопрятная толстая тетка в рейтузах, и тоже начала просить Петровича поддать мне «газу» следовать ее ненаглядного отпрыска. «Ой-ой! – с тихим ужасом подумала я, нервно подергивая стянутыми изза спиной запястьями, – Если меня будут накачивать в жопу за каждого потерявшего отсрочку обалдуя, то я живой отсюда не выйду…» Самое обидное, что дитя этой тетки, безобразный сутулый мужчина со игривый фамилией Гопак, не успевал абсолютно по всем предметам, так что его выгнали потом первой же сессии отнюдь не только по моей милости.
- … и вот разлеглась она тогда, глаза бесстыжие! – кликушествовала тетка в рейтузах, потрясая накануне всеми моими узкими ажурными трусиками, – Мой Олежек в сапогах глину месит, а она для шпильках шастает! Чулки надела! Манду выбрила! Веревочку блядскую в жопу правитель! Тьфу! Ну-ка, газани ей, Петрович, в эту самую жопу!!
Впечатленный Петрович не заставил себя протяжно упрашивать. Я толькотолько успела ощутить вибрацию шланга в заднице, как мои глаза вновь полезли из орбит. Для этот некогда меня мучили довольно долго. А чтобы шланг больше не вышибало наружу, тетка в рейтузах услужливо придерживала его рукой. Боль от распирания живота была несусветная.
- А-а-а!!! – истошно визжала я, ужом извиваясь для полу, – Не могу!!! Прекратите!!! Обидный!!!
Через страха, что мои кишки вот-вот лопнут, я уже не пыталась изображать гордость. Наконец, Петрович не выдержал этих криков и закрыл кран.
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June 10, 2009 at 10:00 am
I am 42 I have very 3 very large fibroids doc says I am the equivalant of a 24 week pregnancy. I was told recovery would be hard if I had surgery with the fibroids at this size..I am going to get a shot of Lipron to try and shrink the fibroids…just waiting for the shot to arrive at the docs..in the mean time i hardly bleed this month, I only have a two week break in between bleeding and i spot during that..so i only spotted for 4 days this month and that was it…so I got worried and took a pregnancy test and it is positive…I am in constitant pain and I am worried that a pregnancy will be extremely painful. I am waiting for my doc. to call back but wanted to see if anyone ever went throu this before or if it was possible to get a false positive because of the fibroids.
June 27, 2009 at 2:42 pm
Bunny! How are you? I haven’t read the blog in a few weeks and just came across your post. I can’t answer your question, and I imagine you’ve found out by now – but in general, you’re more likely to get a reply on one of the other threads on this site. This one doesn’t get much traffic. If you are pregnant, you might want to go to this thread: http://blog.geekwithfibroids.com/2006/11/30/is-anyone-having-problems-with-uterine-fibroid-pain-during-pregnancy/
Best to you!
July 16, 2009 at 8:45 pm
I’m facing the choice of more and more watchful waiting or a partial hysterectomy..What to do?
I’ve been asymptomatic for over 20 years, “normal” periods and for all that I am grateful.
Now, at age 52, my fibroids- 20 cm (5 month preggers-sized uterus-includes three large ones) are bothering me.
8 months ago a D&C / endometrial biopsy took out a benign polyp. I have had pain, bloating, pressure ongoing, ever since.
Only had a period twice, and it was a scary spontaneous flooding-situation- never had that before. No debilitating pain, just enough to annoy me. I can function, but am always aware of my belly.
Can I live with this through menopause, and should I have to? It’s not a life/death situation, rather a quality of life.
I did a lot of research and found a doctor I’m confident about= he offered the option of a partial- I get to keep most of my bits- just lose the uterus & broids. A few days hospital stay, 4 weeks at home at the most.
Should I run, walk, or sit and think some more??
Thanks all…
July 18, 2009 at 3:02 pm
Claudia, this thread doesn’t get much traffic… (and a lot of what is there has nothing to do with fibroids!) try asking your question on the two hysterectomy threads and the myomectomy threads to get some responses!
July 18, 2009 at 3:05 pm
Thanks Amy- I thought this WAS the hysterectomy forum…
August 9, 2009 at 4:20 pm
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September 19, 2009 at 4:23 pm
To anyone finding this note:
I’m posting this on the few functioning links on this blog, apologies if you’ve already received this!
(For those of you new to this site, welcome it has provided a great forum for those of us suffering from fibroids to help each other. Unfortunately, it hasn’t be been functioning very well (a lot of the links are down to the other threads on this blog, among other things) and it has been getting very little traffic over the last few months. But, I’m working to see what we can do, even though we didn’t start this blog, because we haven’t heard from the founder since early 2007. If you too, find this blog helpful and want more info about our efforts or want to help, read on.)
I just wrote a long letter to wordpress support asking what we can do… I also said I and others would be willing to pay to keep it going. I would even be willing to maintain the site if they would allow it.
If anyone else knows anything, has any ideas, or would be willing to contribute to keep it going, please let us know here.
If I get the go-ahead I’ll post back and let you know.
It really pains me to see that most of the links are broken and to see that most all the the personal histories on this site have disappeared, and that this site may not be around to provide the forum for so many of us to support each other.
When I posted on the wordpress forum, other users said it would be out of our control because the site essentially belongs to Eclectic Geek to do with as she pleases… unfortunately, if say, she died…. it seems that we should be able to do something…..
Maybe, if enough people log on to: http://support.wordpress.com/contact/
to express their concern, maybe, they would be more likely to do something.
Thanks all!
September 19, 2009 at 8:15 pm
YAY!!!
WordPress tell’s me the blog has been fixed!!!
So please don’t deluge WordPress with requests to fix it!!
I’ve asked if it was an actual malfunction or the domain mapping wasn’t paid up or whatever…. and will continue to follow through on this is just in case.
I really hope the whole thing is working again and all the regulars come back!
(for those who get all the comments emailed to them, sorry for all the repeat posts, but I want the message to get through to everyone!)
October 8, 2009 at 9:14 pm
I have a 10 cm fibroid and I am going to have an laparoscopic myomectomy. I live in Los Angeles and I was wondering if anyone can recommend a good doctor. Also, does anyone know any of these two doctors “Jonathan Solnik” at Cedars-Sinai hospital and “William Parker” in Santa Monica (private practice)? I would appreciate any inputs.