Forum

Started a Fibroid Discussion Forum at Oprah.com! Visit when you get a chance.

ask questions in The Fibroid ForumFor those who can’t fathom the idea of leaving this site, I’ve created a little Fibroid Forum right here. I set up separate entries to answer questions pulled from comments across the site and search queries. I’ve also included entries that aren’t really questions but seem to generate comments.

Important: Please read the Comment Guidelines before posting!

Questions have been divided into categories and assigned to appropriate pages. Click the link to visit that page of related questions:

  1. General Information
  2. Symptoms
  3. Treatment
  4. Pre-op
  5. Post-op Recovery
  6. Fertility
  7. Related Problems
  8. Life
  9. Speak Out
  10. Odd Humor

If you have a question and do not see it listed or have a suggestion for a new discussion thread, leave a comment here.

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Visit the Contact page.

189 Responses to “Forum”

  1. tabbycat Says:

    I am having a hysteroscopy myomectomy to remove one submucaneous fibroid which my infertility dr. believes is preventing me from becoming pregnant. I am 35 years old. After the surgery I was told I would be put on estrogen therapy to help heal my uterus. Has anyone else undergone estrogen therapy? What does it involve?

  2. Seven Says:

    Hello. I would love to have a forum added addressing post-pregancy experiences with fibroids. Does anyone have any information about what was experienced after pregnancy? Did they shrink/hurt?

  3. donna Says:

    hay ,
    im a 21 year old girl and i have a fibro tumor in my right leg under my bum ,im taking medication for it and will have it operated on when they shrink it smaller enough ,it is very painful as its all around my nerves and muscles and i cant use my leg that much ,i havent come across anyone with it where i have it ,and im not sure where to write so i thought id just leave a comment here xxx

  4. Sarkfaisa Says:

    Очень полезная вещь, спасибо!!

  5. Lara Says:

    Hello, am 25 years old and I have been diagnosed with uterine fibroids…i am due to have an operation in 3 months and in the meantime I am under hormone injections.. It would be really nice to hear some of your pre-operative experiences with regards to the injections..how you felt physically after each dose..

    Thanks

    Lara

  6. Lily Says:

    I read your website every week, its great and got lots of information to take in and lots of interesting articles.

  7. Kerypesor Says:

    Безделица, успокаивала я себя, ежась на ветру. Ничего… Скоро получу права, а выше обожаемый благоверный разорится, напоследок, на машину. И тутто – прощай всегда давка в автобусе и прогулки сообразно этим колдобинам! Оборот мой ежедневно лежал сквозь территорию гаражного кооператива, и не было дня, для я не думала относительный этом. Я уже почти пробралась через ряды гаражей, когда кто-то осторожный тронул меня следовать плечо.
    - Людмила Федоровна?
    Окликнувший меня надтреснутый женский напев напомнил мне голос одной маминой подруги.
    - Верно, – с готовностью обернулась я, рано расплываясь в улыбке, – А с чего это прелюдий по имени-отчеству?
    Но это была вконец не мамина подруга. Смех долго сползла с моего лица.
    - Извините, – пряча взгляд, сказала женщина, – Вы меня не узнаете?
    - Простите, будто мы знакомы?
    Женщине было лет перед пятьдесят, у нее были некрасивые черты лица, тонкие губы, и одета она была аминь безвкусно. С такими я обычно компаний не вожу, аль что для работе.
    - Не узнаете? Начинать, это неважно, – пробормотала моя собеседница, – Понимаете, моему сыну плохо!
    - Господи, а сколько с ним?
    - Немедленно! – засуетилась она, бочком вталкивая меня в дверь одного из боксов, – Сейчас! Сейчас вы всегда узнаете…
    Однако плохо наконец не стало мне самой. В гараже вместо бедного умирающего юноши меня ожидал… десяток угрюмо молчащих пожилых дам в возрасте через болтливый лет и старше.
    - Здравствуйте, – пролепетала я, охваченная нехорошим предчувствием, – А где…
    Из строя женщин вышла стриженная почти «каре» эксцентричная человек в черных очках и вельветовых джинсах, явно не в себе.
    - Ведь вас же по-хорошему предупреждали, – без всякого вступления начала она, – Звонили, капитал предлагали. А вы? Неужели беспричинно трудно было начинать нам навстречу? Неужели вы не понимали, где окажутся наши мальчики, ежели их отчислят?!
    Господи! Так это который, мамаши моих бывших студентов?! Коли беспричинно, то диалог будет тяжелым – меня ведь не наобум называют изза глаза поставщиком кадров для ведомства Паши-мерседеса… Начинать, не умею я пить зачеты по-капиталистически. И еще терпеть не могу, когда на меня «наезжают» всякие прыщавые юнцы. Это только укрепляет меня в мысли, что им со мной в одном вузе творить нечего.
    Но это в аудитории беспричинно хорошо быть смелой и принципиальной. А здесь, разве честно, у меня затряслись поджилки…
    - Я простой честно делаю свою работу! – принялась извиняться я, понемногу отступая к двери, – Извините, только вдруг же иначе?
    Изза моей спиной громко лязгнул засов. Заманившая меня сюда лахудра понимающе покачала головой – мол, о побеге и не думай.
    - Послушаете! – воскликнула я, теряя мука, – Ну чего вы теперь-то через меня хотите?!
    - Сколько мы хотим! Который мы хотим?!! – буквально взвыли престарелые мегеры, и, сиречь сообразно команде, набросилась для меня с кулаками.
    Чувствовалось, который дрались они не часто. Но их было чрезмерно много. Так который пока пара крепко держали меня изза руки, остальные колотили, гораздо придется. Меня били накануне тех пор, временно у меня не потемнело в глазах и не подкосились ноги. Наверное, били и впоследствии, однако я этого уже не помнила…
    Очнулась я от холода и сырости – кажется, меня окатили из ведра водой. Я лежала на полу приблизительно голая, разве не вменять чулок, туфель и мокрой разодранной блузки. Тело мучительно ныло, во рту ощущался привкус крови. Изрядно пострадала прическа. Но самым страшным была неопределенность, в которой я пребывала. То, что меня избили, я опять могла хоть как-то объяснить. Однако зачем приходится было меня паки и раздевать?
    - Очухалась? – недобро усмехнулась тонкими подкрашенными губами та, кому я была обязана своим появлением здесь, – Ну, тут продолжим…
    - Который – продолжим? – тряхнула я гудящей, будто колокол, головой.
    - Учить тебя, сучка ты эдакая! Чтоб неповадно было наших детишек маять!
    В отчаянии мне захотелось биться за голову, и единственно безотлагательно я почувствовала, который руки мои связаны следовать спиной. Беспричинно, этого всего не хватало…
    - Истинно кого я мучила? Пустите! – простонала я, начиная течь в панику, – Вы меня с кем-то путаете!
    Меня рывком подняли для ноги. Я лишь не заплакала через унижения, заметив в толпе мужчину. Его я узнала сразу. Это был владелец шиномонтажа, долгий пропойца и отец одного из моих бывших студентов. Днесь этот невзрачный мужичок, якобы всегда, подшофе, стоял около компрессора чтобы накачки шин и, поигрывая его черным резиновым шлангом, нагло пялился для мои неприкрытые прелести.
    - Нисколько мы не путаем, Людмила Федоровна! – ткнула в меня узловатым пальцем в подбородок тонкогубая лахудра, – Начинать, Петрович, покажи ей кузькину мать! Пускай вспомнит моего сыночка Гришеньку!
    Ради моей спиной послышалась странная возня. Кто-то развел в сторону мои ягодицы.
    - Что вы делаете?!! – в ужасе завопила я, поняв, сколько шланг компрессора вставляют мне в зад.
    - Учить тебя будем, коза!
    Тогда же мощнейший оплеуха перед дых совершенно согнул меня пополам – это Петрович открыл легкий вентиль. Из моих глазища брызнули плач, дыхание перехватило. Пока я с выпученными глазами хватала ртом воздух, мои палачи удовлетворенно потирали руки.
    - Сколько, весело, госпожа Андрейчук? – ехидно спросила тетка в вельветовых джинсах, – А если моего Вовочку в армию спроваживала, так же веселились?
    – Изза что?! – прохрипела я, – Я же ему такого не делала!
    - Ты ему хуже сделала, – вкрадчиво пояснила тетка, дохнув мне в лик алкоголем, – Ты его на два года без мамочки оставила! Давай, Петрович!!!
    Петрович вновь дал, разумеется беспричинно, который мои глаза едваедва не вылезли их орбит. Сообразно кишкам как ударили кувалдой. Хорошо опять, что шланг почти давлением воздуха вытолкнуло из моей попки, и это дало мне небольшую передышку. К сожалению, продлилась она недолго.
    - Нечего пердеть тут около всех, гадина! – злобно прошипела мать известного оболтуса Евгения Ефанова, пихая шланг вспять в мою задницу.
    - Желание что же вы творите?! – взвыла я.
    Рот у меня тряслись, из глаз ручьями лились слезы, и я нуль не могла с этим поделать. Но муки мои, способный, всего забавляли озверевшую свору мамаш.
    - Заткнись, я сказала! А ты, Петрович, качни-ка ей вторично разок изза моего Женечку!
    - Может хватит качать-то, бабоньки? – засомневался Петрович, глядя на мое перекошенное лицо.
    - Такой умница был Женечка! Такой вежливый, такой жалостливый! – заламывая руки, продолжала причитать Ефановская мамаша, – А эта стерва…
    - Правда ваш Женя общий занятий не посещал! – в отчаянии выкрикнула я, потому который это была истинная правда.
    - Не ври, сука!
    На этот единожды залп сжатого воздуха был такой силы, который я не устояла для ногах и, густо рыгнув, осела на пол.
    - Так тебе, вражина! – пнула меня в урчащий брюхо Ефанова и, довольная, отошла в сторонку ухаживать следовать моими корчами.
    Не успела я отдышаться, только для смену ей подскочила неопрятная толстая тетка в рейтузах, и тоже начала просить Петровича поддать мне «газу» следовать ее ненаглядного отпрыска. «Ой-ой! – с тихим ужасом подумала я, нервно подергивая стянутыми изза спиной запястьями, – Если меня будут накачивать в жопу за каждого потерявшего отсрочку обалдуя, то я живой отсюда не выйду…» Самое обидное, что дитя этой тетки, безобразный сутулый мужчина со игривый фамилией Гопак, не успевал абсолютно по всем предметам, так что его выгнали потом первой же сессии отнюдь не только по моей милости.
    - … и вот разлеглась она тогда, глаза бесстыжие! – кликушествовала тетка в рейтузах, потрясая накануне всеми моими узкими ажурными трусиками, – Мой Олежек в сапогах глину месит, а она для шпильках шастает! Чулки надела! Манду выбрила! Веревочку блядскую в жопу правитель! Тьфу! Ну-ка, газани ей, Петрович, в эту самую жопу!!
    Впечатленный Петрович не заставил себя протяжно упрашивать. Я толькотолько успела ощутить вибрацию шланга в заднице, как мои глаза вновь полезли из орбит. Для этот некогда меня мучили довольно долго. А чтобы шланг больше не вышибало наружу, тетка в рейтузах услужливо придерживала его рукой. Боль от распирания живота была несусветная.
    - А-а-а!!! – истошно визжала я, ужом извиваясь для полу, – Не могу!!! Прекратите!!! Обидный!!!
    Через страха, что мои кишки вот-вот лопнут, я уже не пыталась изображать гордость. Наконец, Петрович не выдержал этих криков и закрыл кран.

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  8. bunny Says:

    I am 42 I have very 3 very large fibroids doc says I am the equivalant of a 24 week pregnancy. I was told recovery would be hard if I had surgery with the fibroids at this size..I am going to get a shot of Lipron to try and shrink the fibroids…just waiting for the shot to arrive at the docs..in the mean time i hardly bleed this month, I only have a two week break in between bleeding and i spot during that..so i only spotted for 4 days this month and that was it…so I got worried and took a pregnancy test and it is positive…I am in constitant pain and I am worried that a pregnancy will be extremely painful. I am waiting for my doc. to call back but wanted to see if anyone ever went throu this before or if it was possible to get a false positive because of the fibroids.

  9. Amy Says:

    Bunny! How are you? I haven’t read the blog in a few weeks and just came across your post. I can’t answer your question, and I imagine you’ve found out by now – but in general, you’re more likely to get a reply on one of the other threads on this site. This one doesn’t get much traffic. If you are pregnant, you might want to go to this thread: http://blog.geekwithfibroids.com/2006/11/30/is-anyone-having-problems-with-uterine-fibroid-pain-during-pregnancy/
    Best to you!

  10. Claudia Says:

    I’m facing the choice of more and more watchful waiting or a partial hysterectomy..What to do?

    I’ve been asymptomatic for over 20 years, “normal” periods and for all that I am grateful.

    Now, at age 52, my fibroids- 20 cm (5 month preggers-sized uterus-includes three large ones) are bothering me.

    8 months ago a D&C / endometrial biopsy took out a benign polyp. I have had pain, bloating, pressure ongoing, ever since.

    Only had a period twice, and it was a scary spontaneous flooding-situation- never had that before. No debilitating pain, just enough to annoy me. I can function, but am always aware of my belly.

    Can I live with this through menopause, and should I have to? It’s not a life/death situation, rather a quality of life.

    I did a lot of research and found a doctor I’m confident about= he offered the option of a partial- I get to keep most of my bits- just lose the uterus & broids. A few days hospital stay, 4 weeks at home at the most.

    Should I run, walk, or sit and think some more??

    Thanks all…

  11. Amy Says:

    Claudia, this thread doesn’t get much traffic… (and a lot of what is there has nothing to do with fibroids!) try asking your question on the two hysterectomy threads and the myomectomy threads to get some responses!

  12. Claudia Says:

    Thanks Amy- I thought this WAS the hysterectomy forum…

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  14. Amy Says:

    To anyone finding this note:
    I’m posting this on the few functioning links on this blog, apologies if you’ve already received this!

    (For those of you new to this site, welcome it has provided a great forum for those of us suffering from fibroids to help each other. Unfortunately, it hasn’t be been functioning very well (a lot of the links are down to the other threads on this blog, among other things) and it has been getting very little traffic over the last few months. But, I’m working to see what we can do, even though we didn’t start this blog, because we haven’t heard from the founder since early 2007. If you too, find this blog helpful and want more info about our efforts or want to help, read on.)

    I just wrote a long letter to wordpress support asking what we can do… I also said I and others would be willing to pay to keep it going. I would even be willing to maintain the site if they would allow it.

    If anyone else knows anything, has any ideas, or would be willing to contribute to keep it going, please let us know here.

    If I get the go-ahead I’ll post back and let you know.

    It really pains me to see that most of the links are broken and to see that most all the the personal histories on this site have disappeared, and that this site may not be around to provide the forum for so many of us to support each other.

    When I posted on the wordpress forum, other users said it would be out of our control because the site essentially belongs to Eclectic Geek to do with as she pleases… unfortunately, if say, she died…. it seems that we should be able to do something…..

    Maybe, if enough people log on to: http://support.wordpress.com/contact/
    to express their concern, maybe, they would be more likely to do something.

    Thanks all!

  15. Amy Says:

    YAY!!!

    WordPress tell’s me the blog has been fixed!!!

    So please don’t deluge WordPress with requests to fix it!!

    I’ve asked if it was an actual malfunction or the domain mapping wasn’t paid up or whatever…. and will continue to follow through on this is just in case.

    I really hope the whole thing is working again and all the regulars come back!

    (for those who get all the comments emailed to them, sorry for all the repeat posts, but I want the message to get through to everyone!)

  16. Fay Says:

    I have a 10 cm fibroid and I am going to have an laparoscopic myomectomy. I live in Los Angeles and I was wondering if anyone can recommend a good doctor. Also, does anyone know any of these two doctors “Jonathan Solnik” at Cedars-Sinai hospital and “William Parker” in Santa Monica (private practice)? I would appreciate any inputs.

  17. Amy Says:

    Fay,

    Welcome. Try asking your question on the laparascopic myo. page, as this one doesn’t get a ot of traffic:

    http://blog.geekwithfibroids.com/2006/10/24/how-are-you-feeling-after-your-laparoscopic-myomectomy/

  18. Tia Says:

    Just got back today from surgery. Doc was shocked when she went in with laproscope on Monday. She expected a 12 week uterus, found a 28 week. My uterus was 850 grams(Normal one is 80) and many fibroids. 2 Very large. All in all she removed over 1600 grams of tumors. She said she didnt know how I was walking around.
    My question: I weigh the same as I did on monday before surgery. Is this fluid? We had a problem monday night. Everytime I got up masssive amount of water/blood mixture gushed out of the right side. Doc came in about 2am and put more stitches. I probably lost about a gallon of fluid. Anyone give me some direction?

  19. Ang! Says:

    Hi Tia – not sure about the gushing – but I am so happy you feel better and that all removed!
    Had my open myo on 11/20/2009. I feel incredible! Like you my doc went in for 4 large fibroids – he knew that my uterus was 8 months – found 30 fibroids – so happy I got to keep my uterus.
    You will loose weight – trust me – two days after my surgery I weighed the same – the hospital gave me a ton of fluids – plus I took 4 pints of blood – (1) of my own and (3) others.
    Currently have dropped 10 lbs in 7 days. My doctor wanted to know how I was tying my shoes??
    Good luck and I hope you feel better. Glad you had an experienced doc who did not freak out and remove your uterus.

  20. Bernard Says:

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  21. kirri annne Says:

    Hi all,

    I wanted to share my story as this site was a great help to me two years ago as I prepared for a myomectomy. I have a few suggestions of my own and I hope they work for you too:
    1) select your doctor well, I had a gynecologist, obstetrician and fertility specialist all rolled into one. The reason being is that he was able to treat me and perform surgery with my future needs to have children in mind as i don’t presently. I also asked how many he had done and the number of emergency hysterectomies, its just good to know and he/she should give you that information. A good bedside manner is also important.
    2) make sure to get fit before: stop drinking alcohol 3 months before, start weight training especially your arms as you will need them!! Also stair climbing is good too!
    3) Eat right! most of all stop eating deep fried food!!! i stopped about 2 months before surgery. My theory was that my arteries needed to be clear and blood flow to be fast and normal to heal better and fried food doesn’t help in this regard. Fresh food with less dairy is a good start.
    4)Have all your favorite food in the fridge and freezer ready, you wont be able to cook for 2 days at least. I baked my favorite banana bread and this was a treat with a cup of tea each day.
    5) make sure you wont have to bend to get stuff by placing them at reachable height. I had all my daily things on tables and everywhere at waist height
    6)Walk around the house as much as you can then venture out.
    7) An overnight maxipad is handy for placing on top of your scar to avoid rubbing against your clothes..simple and works, the nurses gave it to me.
    8) don’t stress about the pouch or muffin top, i love mine and wouldn’t trade it for the other.. unmentionable reason for the surgery.. i earned this muffin top!
    9) keep a pillow at hand for laughs, coughs and most painful.. sneezing!! ouch
    10)I had the surgery on a Friday morning by Sunday the attending physician on call said I was good to go but as he was not my doctor the nurses called my doctor who decided that i stay another night but I was feeling fine. Next day my doctor walks in and 5 mins later, presto, good to go.. get outta here… he later commented to his receptionist “can you believe she had major surgery 3 days ago?” this gave me a huge boost as i walked out of the hospital…
    11) pray and have faith all will be okay.

  22. TRM Says:

    Hi, I had an abdominal myomectomy 2 weeks ago tomorrow. 6 fibroids weighing 2 kg were removed. I seem to be healing well but the whole taking things easy thing is starting to wear thin. Aarrgghhh, if I try and do too much I end up in pain so at least that’s the signal to slowdown.

    To while away the time I have been surfing the net and reading sites like these with useful info. Anyway, I’ve started a blog about my 1st stay in hospital and to show how this op has affected me.

    Take a look

  23. Amy Says:

    Kirri annne and TRM – thanks for sharing your info. Please consider checking out this page, and posting about your abmyo there: http://blog.geekwithfibroids.com/2007/03/25/how-are-you-feeling-after-your-abdominal-myomectomy-part-4/
    Hope you two are doing well!

  24. MarieW Says:

    I had a traditional myomectomy when i was 33 yrs old and it all went well, i had 6 fibroids removed 2 very large ones and 4 medium size ones. I’m 41 yrs old now and a fibroid grow again, about the size of a cantaloupe (I dont know the exact size i’m just guessing) or it’s the size of someone with a 5 or even 6 month pregnancy. I never had any children but i’m hoping that at least I can have one now, I know I should’ve done something a year after my first myomectomy. I met this fertility doctor who uses the Da Vinci surgery (aka robotic surgery) and I thought he’ll perform that to me to save my uterus, because if i’ll have another traditional myomectory my uterus would look like swiss cheese. I’m suppose to have the surgery on the 29th of this month and this morning I talked to the doctor about his a part of the pre-op. He finally told me that he’ll not be doing the Da Vinci surgery b/c my fibroids are too big, he’ll have to do the traditional myomectomy. My question is with the traditional myomectomy and a big fibroid, is there anymore hope for me to get pregnant even by in vitro fertilization, even with a very slim chance.

  25. kay Says:

    I have three fibriods. Two large fibriods and one small one. Me and my husband are trying to have a child. I was on lupron for 3 months and now I have not had a period for over 3 months. But my question is, can I get pregnant with out having my period? also, what advise do any one have on trying to get pregnant with having fibriods. I get so sad that I can’t concieve. I know that God is there for me and is going to help me.

  26. kay Says:

    ALSO, THANK YOU FOR THIS SITE. I AM NEW.

  27. del Says:

    hi kay, did u tell the doctor that you want to get pregnant?? Why dont u remove the fibroids if they r big? Do u know where they r in the uterus and how big exactly? my fibroid was 12cm and sitting in the uterus, blocking the entry. It was removed and i feel better now. We were trying to conceivetoo but it didnt happen. I think it was because ofthe fibroid which i later discovered.

  28. Jackie Says:

    I have a fibroids it’s about 2.8 cm.I just had Miscarriage January16,2010,I was 10 week pregnant.Tell me what I should do.

  29. permanent magnet motor Says:

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  30. vane Says:

    Im 32 yrs old and im scheduled for an AM on Feb 9.. I have 4 fibriods ,one measuring 8.2cm and the three others about the size of golf balls. As the time approaches im getting increasily nervous, im having second thought about the procedure (especially because I have no children and would really like to have children in the future). I also never had surgery before, so im not sure what to expect post-surgery, im especially concern with how much pain I’ll be in. My last but not least concern is that I’ve put on a few pounds and after reading a couple comments , I dont think im in the best shape and im afraid this is going to hurt my recovery and afraid i’ll gain even more after the surgery. And what’s this about a “muffin top”???!!!! Can anyone whos had a recent AM or a similar concern or experience please respond and ease a little of my worries….I will gladly appreciate it…

    • Celine Says:

      Hi Vane, I was like you last year. I am 37 so a little older than you. Never had a child. And I was so freaked out about the surgery I was a real mess. First time surgery ever for me also! I was ready to cry when I got to the admission at the hospital. But once I got prepped for the surgery it got better and then as the anesthesiologist gave me something to relax(?) everything was ok. I woke up and it was done. I didn’t have to worry any more.

      Now once you are done there will be pain. But you get meds and it will be ok. I think you will be ok not being in the greatest shape. I was in great shape but I don’t think it helped me. I think it depends on how much rummaging they do in your uterus and that’s how fast/slow you will recover. The more work, the more it will hurt. But after 6 weeks you will be ok again. Time will go slooooooooooow. But you will be back to normal! Trust me. And no more flooding and pain. And I don’t think you will gain extra wght either. You will be busy recovering.

      The muffin top is a bulge that we get from the surgery above the scar. But it also goes down w/ time and massaging. It’s ok. Not pretty but ok.

      Looking back to the surgery it really wasn’t bad. And definitely worth it! I highly recommend having it done to get rid of those fibroids.

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  32. kay Says:

    del, thanks for your comments and questions. My fibriods are 5 cm, 4 cm and 3 cm. They are in the wall of the uterus. My doctor told me that I should try to get pregnant. I really do not want to have surgery because I am very anemic.

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  34. kay Says:

    Sorry, to hear about your miscarriage Jackie. I think you need to talk to your doctor on what to do. I am in the same boat I’ve been trying to get pregnant myself and nothing is happening. I don’t know what to do. I am thinking about surgery.

  35. Tara Says:

    Nice post. blog.geekwithfibroids.com is my favorite site.


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