How are you managing your heavy menstrual bleeding?

One of the symptoms of uterine fibroids is very heavy bleeding. A recent visitor wondered about managing the heavy days:

susie Q: i wondered if folks have any ‘tricks of the trade’ around managing the bleeding and heavy days. i feel shy to ask about this part of it all, but wonder if folks have ideas i might not have thought about – beyond towel rags, pads etc… anyway, if folks have inventions or ideas…. :-)

Another visitor suggested the great idea of a separate thread on this topic. Thanks Pam! Read the rest of this entry »

Did you hear the “F” word on “The Oprah Winfrey Show”?

Not just once. Gasp! I actually think I heard it twice.

Watched the “Dr. Oz Answers Your Most Embarrassing Questions” show on Monday. In an effort to get answers to the health questions people are afraid to ask, Oprah spoke with Dr. Mehmet Oz and Dr. Lisa Masterson. The geek in me was thrilled.

I was particularly interested in the segment with Dr. Masterson (the OB/GYN). Menstrual mysteries. Do I hear Twilight Zone music in the background? There were a couple of women describing symptoms and I immediately thought… FIBROIDS. Here are a couple of questions:

Why do I have such a heavy flow?
A heavy flow can be a marker of uterine fibroids

Wow. The “F” word. On Oprah.

Is it healthy to have menstrual clotting?
… clots point to the existence of fibroids

There’s that word again. Could this mean that fibroids will finally get some attention? Maybe a few research dollars? Or at the very least, better information so women can stop living in fear and confusion? This is definitely a step in the right direction. Thank you Ms. Winfrey!

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Related Posts:
Uterine fibroid symptoms (not my idea of fun)
Uterine fibroid tumors and anemia?
What are uterine fibroid tumors?
Can I pass a uterine fibroid?
Psst… Where can I find pictures of fibroid tumors?
Would somebody tell me how much these dang fibroid tumors weigh?

Iron pills, Lupron injections, and the return of little Miss Perky

When I hear the word perky, I am reminded of a former coworker. He once told me that he initially disliked me because I was too perky and found it impossible to believe that anyone could come to work and be that happy every single day. Of course, he mentioned this after we became good friends. ;-)

The severe anemia from my fibroids put a huge dent in my “perkiness factor”. Hard to be happy when you feel weak and faint all of the time. Fortunately, the combination of iron pills and Lupron shots helped to raise my original Dec 2005 hemoglobin level of 6.7 g/dL to 11.2 by May 2006. A normal hemoglobin level is >12. Wow. Almost normal. I like the way that sounds. Almost normal. Think I’ll put it on a T-shirt. Yep, the perkiness has returned.

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Related Posts:
How are you feeling after your Lupron injections? Any side effects?
Uterine fibroid tumors and anemia?
How are you managing your heavy menstrual bleeding?

Big fat purple iron pills to treat my anemia

Uterine fibroids can cause heavy menstrual periods and unusual monthly bleeding patterns often leading to iron deficiency anemia. To address this issue, iron pills were used in the first phase of my fibroid treatment.

I was already taking little green 65mg ferrous sulfate pills 3 times a day. My Gynecologist switched my prescription to 151mg Chromagen® Forte capsules twice a day. I had the feeling that the pills would be big. I really don’t like to take big pills.

Sure enough, they were HUGE! The large purple gelatin capsules reminded me of Mike & Ike Jolly Joes Grape candy. I could leisurely chew those but would (oh, no) have to swallow my medicine whole. Surprisingly, I was able to take the pills. They looked pretty big but actually didn’t feel big at all. Iron pills can cause stomach upset, heartburn, and constipation but I did not experience any problems.

The American Academy of Family Physicians has a helpful site with anemia information. It discusses symptoms, causes, foods high in iron, and tips on taking iron pills.

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Related Posts:
Uterine fibroid tumors and anemia?
Iron pills, Lupron injections, and the return of little Miss Perky

Fibroid doctors spring into action

My fibroid team (“dashing young” Gynecologist + “debonair” Interventional Radiologist) met to discuss the surgery I would need before the Uterine Fibroid Embolization.

Now, I had a treatment plan:

  1. Iron Pills to treat my iron deficiency anemia before surgery
  2. Lupron Shots for 3 months to also treat the anemia
  3. Hysteroscopic Myomectomy to “shave down” two problematic fibroids
  4. UFE for the other fibroids

The plan started back in February. Now, we are in July and I have completed Phases 1-3. Phase 4 is right around the corner. It is working!

Before I post about each individual stage, I’ll blog a bit about medical treatments in general.

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Related Posts:
How do I evaluate or rate a fibroid doctor?
What questions should I ask my fibroid doctor?

It’s a good thing I love spinach

So, after being diagnosed with iron deficiency anemia because of my fibroids, I was left with specific instructions:

  1. Take 65mg ferrous sulfate 3 times a day
  2. Eat plenty of iron-rich foods
  3. Go to the ER for a blood transfusion if symptoms worsen

I took the iron pills and consumed enough spinach to make Popeye proud. Fortunately, I never required a blood transfusion for my anemia.

The American Academy of Family Physicians has a nice site with health information for patients called FamilyDoctor.org. I found the page on anemia quite helpful. It discusses symptoms, causes, foods high in iron, and tips on taking iron pills.

OK. Next stop (quasi-sinister music) – first visit with my new Gynecologist!

Uterine fibroid tumors and anemia?

Heavy periods resulting from fibroids can lead to iron deficiency anemia. The Mayo Clinic web site has some good information on the signs and symptoms.

General Symptoms of Anemia:

  • Extreme fatigue
  • Pale skin
  • Weakness
  • Shortness of breath
  • Lightheadedness
  • Cold hands and feet

Specific Symptoms of Iron Deficiency Anemia:

  • Inflammation or soreness of your tongue
  • Brittle nails
  • Unusual cravings for non-nutritive substances, such as ice, dirt or pure starch
  • Headache
  • Poor appetite
  • Some people with iron deficiency anemia experience restless legs syndrome— an uncomfortable tingling or crawling feeling in your legs that’s generally relieved by moving them

I suffered from just about every symptom listed in the general category. The fatigue was extreme. I was ALWAYS tired and weak. Walking up just a few steps caused me to become completely winded. EVERY time I stood up, my heart would beat out of my chest and I would feel faint. I was also dealing with a loss in concentration which, for me, was torture. Specifically, headaches were a big problem. Didn’t really suffer from too many before this so I noticed the increase. Also had a weird tingling sensation in my legs that I originally attributed to my fibroids. I now believe I was experiencing restless leg syndrome.

If you have a problem with blood loss and notice these symptoms, seek medical assistance. My anemia forced me to “crawl” in for help. Please don’t wait for your situation to get to that point.

Got to have blood to live in this world

I posted previously about frequently feeling faint and looking non-living in “My mind has a mind of its own“. Had to get into a doctor’s office because I just could not take one more day of my life like that. I felt absolutely wretched. Donated a blood sample on a Friday and waited for the results.

I received a message from the on-call physician the very next day. The call seemed so urgent. My first thought – cancer. It was a slight possibility due to family history. I did consider anemia but only for a fleeting moment. My previously diagnosed anemia was resolved with vitamins fortified with iron. The phone call sounded too pressing to be fixed by an over-the-counter pill. The thought of cancer pushed back.

I dialed the number to the doctor’s office and reached the answering service. I stayed online for what seemed like an eternity. Must hang up the phone now because I was starting to panic. OK. Calm down. Breathe in. Breathe out. This was a BAND-AID® moment. Snatch it off quickly. It was NOT cancer. It was something else.

Dialed again. Waited again. Reached someone who gave me the on-call physician’s phone number. Another number to dial. Reached another answering service. Left a message and received a call back immediately. The doctor asked how I felt and told me I was severely anemic. My hemoglobin level was 6.7 g/dL. It should be at least 12. People in my range normally receive blood transfusions.

Note: MedlinePlus lists the normal hemoglobin level for women as 12.1 to 15.1 g/dL (grams per deciliter).

Severe anemia? Blood transfusions? Not expecting this but it certainly made sense. By the end of the call, I was giddy. So glad it was NOT cancer. Especially euphoric that there was now an explanation for the symptoms of the past several months.

I was left with instructions to contact my doctor and go to the Emergency Room to get a transfusion if the symptoms got any worse. For some reason, probably partially due to the lack of blood to my brain, I found this tickling. I had allowed my mind to alter my reality and create a “new normal” with the fibroids to the point where I would possibly need supplemental blood to function. That was pretty crazy.

So, that was my New Year 2006. Full of goofiness and devoid of blood. :-)

Uterine fibroid symptoms (not my idea of fun)

I’ve looked at several web pages to compare symptom information. I feel the most comprehensive list is found at the site of the Society of Interventional Radiology. I’ll itemize them here and talk briefly about the ones that bothered the heck out of me.

  • Heavy, prolonged menstrual periods and unusual monthly bleeding, sometimes clots. This often leads to anemia.
  • Pelvic pain
  • Pelvic pressure or heaviness caused by the bulk or weight of the fibroids pressing on nearby structures
  • Pain in the back or legs as the fibroids press on nerves that supply the pelvis and legs
  • Pain during sexual intercourse
  • Bladder pressure leading to a constant urge to urinate
  • Pressure on the bowel, leading to constipation and bloating
  • Abnormally enlarged abdomen

Symptoms of my fibroids:

  • Heavy bleeding. My clots were so huge they could star in their own late-night monster movie.
  • Pelvic pain. It was torture every time my uterus was forced to expel one of the large clots. To relieve the pain, I would munch enough Motrin to fill a PEZ dispenser.
  • Pelvic pressure and heaviness. I always felt bulky and full.
  • Back pain. I could never quite get into a comfortable position.
  • Bladder pressure/frequent urination. In the bathroom just about every hour during the night.
  • Abnormally enlarged abdomen. Someone actually thought I was pregnant and congratulated me! (Although not funny at the time, I’m chuckling now.)

Wow, that looks pretty bad written out. It’s amazing that this was not enough to get me into a doctor’s office to take care of the fibroids once and for all. The thing that caused me to crawl in for help is the topic of my next post.

Note: I noticed on the SIR site that only 10 – 20% of women with fibroids ever require treatment. Well, I guess that just makes us special. ;-)

[Added September 17, 2006] Deep vein thrombosis is a rare complication resulting from uterine fibroid tumors. For more information, please see this deep vein thrombosis post.

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Related Posts:
What are uterine fibroids?
Uterine fibroid tumors and anemia?
Would somebody tell me how much these dang fibroid tumors weigh?
Sex and fibroids just don’t go together, now do they?

Enough blood to please a vampire

I know I am jumping from the past to the present a bit. I apologize for that but I have positive news. My severe anemia was the catalyst that caused me to finally crawl into a doctor’s office to seek help for my fibroids. I ended up with a new gynecologist, one of those doctors willing to listen and assist. At that time, my hemoglobin level was 6.7. Kind of low, huh? After three months of Lupron shots and industrial-strength iron pills, I am happy to report it is now 11.2. YAY! I have so much energy now that a nurse commented on my perkiness. My level is now high enough to undergo a surgical procedure on June 7th. I just love it when a plan comes together and works.