Geek’s 2007 SIR Abstract Report 3: Pregnancy after MRgFUS for Uterine Fibroids – First Experiences

This is the third installment of my geeky science series on the abstracts and posters presented at the Society of Interventional Radiology’s 32nd annual Scientific Meeting held March 1 – March 6, 2007.

Pregnancy after MRgFUS for Uterine Fibroids: First Experiences

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Does anyone have an experience with ExAblate (MRgFUS)?

From the original comment on the ExAblate (MRgFUS) procedure:

Ruth: I’ve been investigating ExAblate as a potential candidate for over a year now, and finally had my consult at Virtua in NJ, with a 2nd opinion at Weill-Cornell in NYC. I really want to hear from anyone who has had this procedure…

Other comments: (Click the link to view the whole comment or the off-site link for more info.)

aiyin: Here’s an alternative procedure for zapping those pesky uterine fibroids. Unfortunately, it is so new my gynecologist never heard of it … http://www.universitymri.com/imageguided/fus_faq.html

Ellen: I am hoping that I will be eligible. Three SEDATED hours in an MRI, belly-down, while they blast the fibroids with ultrasound.

aiyin: Here’s more about ExAblate:
http://www.uterine-fibroids.org/index.html

The Related Post at the bottom contains information I gathered from a TIME magazine article as well as a few links to the ExAblate (MRgFUS) site.

[Edited to add the ExAblate toll-free number (US): 1 866 EXABLATE (1 866 392 2528). Thanks Randee!]

Leave a comment if you have an ExAblate experience (pre- or post-treatment), questions, or thoughts.

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Related Posts:
New treatment uses sound waves to shrink uterine fibroid tumors
ExAblate 2000 (MRgFUS) non-invasive fibroid treatment receives two new associated approvals by the FDA

New treatment uses sound waves to shrink uterine fibroid tumors

Stumbled upon a TIME magazine article as I wandered around the Internet looking for all sorts of fibroid information. It discusses the benefits of MRgFUS (Magnetic Resonance guided Focused Ultrasound). This non-invasive procedure simultaneously images, treats, and ablates targeted areas. Approved by the FDA in 2004, it is available at approximately a dozen US locations and is also performed worldwide.

Read the TIME magazine article: Giving Fibroids the Heat

Other informational links:
MRgFUS – Non-invasive treatment for uterine fibroid tumors
ExAblate 2000 MRgFUS system
ExAblate 2000 treatment centers in the US and abroad

[Edited to add the ExAblate toll-free number (US): 1 866 EXABLATE (1 866 392 2528). Thanks Randee!]

Can’t believe the small number of facilities offering this treatment. I hope it continues to steadily increase. We’ve got to spread the word on ALL options.

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Related Posts:
Does anyone have an experience with ExAblate (MRgFUS)?
ExAblate 2000 (MRgFUS) non-invasive fibroid treatment receives two new associated approvals by the FDA

Fibroid tumors verified at last

Although the bleeding from my last episode slowed enough for me to avoid the emergency room, it was still serious enough to get me into a doctor’s office. Tried another ultrasound in 2004 (only six years later). This time, it was transvaginally. (It was better than a Pap smear but I still would not want to go through it on a regular basis.) The results were positive (surprise, surprise). So, it’s now verified. I have fibroids. Something I suspected in 1996 and knew by 1998 was detected in 2004.

Do not try this at home

Yeah, that negative ultrasound made it quite difficult for me to make my case. Although I’m usually a technology freak, I really didn’t care that some new-fangled mystical box couldn’t detect my fibroid tumors. I knew they were in there. I’m the one who lived in my body. No, I do not have a medical degree but I do have a brain with the capacity to reason. I knew I had fibroids. Could not seem to convince that doctor. My attempts to do so were quite draining so I just walked away. That was about eight years ago.

IMPORTANT: If I get nothing else across with this blog, pay attention here. Don’t be stubborn. If you feel you have a problem, seek help. If necessary, get a second opinion. There are doctors out there willing to listen and assist. Don’t put it off. Both time and good health are precious.

The truth is not always visible

Once I settled into that new job so many years ago and discovered it was just as big of a disappointment as my old job, my thoughts once again turned to my health. My symptoms were getting worse (heavier flow, more severe cramps, and clots). The clots bothered me the most. Other things were dismissed or covered up but clots were such a strong indicator of something gone awry. I could not deny it any longer. From the combination of symptoms and family history, my brain calculated that I had fibroids. It was now time to seek professional help. I found a Gynecologist, explained my symptoms and family history, and waited for him to reach the same obvious conclusion. Unfortunately, the results of the pelvic ultrasound were negative.