Comments on: About http://blog.geekwithfibroids.com asking questions and finding answers during my personal fibroid journey Fri, 12 Mar 2010 02:30:12 +0000 http://wordpress.com/ hourly 1 By: Florene Dusatko http://blog.geekwithfibroids.com/about/comment-page-2/#comment-47220 Florene Dusatko Mon, 15 Feb 2010 10:27:21 +0000 #comment-47220 Many thanks for sharing together with all of us. Your articles and reviews are really helping me needed for the facts about insurance quotes. I should follow this website. Thanks and well done again. Many thanks for sharing together with all of us. Your articles and reviews are really helping me needed for the facts about insurance quotes. I should follow this website. Thanks and well done again.

]]> By: Karin http://blog.geekwithfibroids.com/about/comment-page-2/#comment-46508 Karin Sat, 02 Jan 2010 18:16:35 +0000 #comment-46508 I went to my doc after about 18 months of ridiculous periods at age 52. Pelvic ultrasound confirmed fibroids. On the advice of an RN friend I started taking ibuprofin at the onset of bleeding. Oh. My. Gosh. My 10-14 day periods were reduced in half, the volume of blood and size of clots diminished to the point that periods felt "normal." I haven't returned to the doctor, because I feel this self-care is adequate. I'm still taking iron supplements, and at my next annual exam will see how I'm doing. At age 53 I have to believe I'll stop menstruating...sometime...but meanwhile, I can't praise the results of the ibuprofin enough. I went to my doc after about 18 months of ridiculous periods at age 52. Pelvic ultrasound confirmed fibroids. On the advice of an RN friend I started taking ibuprofin at the onset of bleeding. Oh. My. Gosh. My 10-14 day periods were reduced in half, the volume of blood and size of clots diminished to the point that periods felt “normal.” I haven’t returned to the doctor, because I feel this self-care is adequate. I’m still taking iron supplements, and at my next annual exam will see how I’m doing. At age 53 I have to believe I’ll stop menstruating…sometime…but meanwhile, I can’t praise the results of the ibuprofin enough.

]]> By: Adelaida Sender http://blog.geekwithfibroids.com/about/comment-page-2/#comment-46414 Adelaida Sender Sun, 27 Dec 2009 02:07:57 +0000 #comment-46414 This is just amazing read so I just had to say thankyou. This is just amazing read so I just had to say thankyou.

]]> By: heel lifts http://blog.geekwithfibroids.com/about/comment-page-2/#comment-46344 heel lifts Sun, 20 Dec 2009 18:08:06 +0000 #comment-46344 Fantastic work. You have gained a new reader. I hope you can keep up the good work and I look forward to more of these interesting posts. Fantastic work. You have gained a new reader. I hope you can keep up the good work and I look forward to more of these interesting posts.

]]> By: Amy http://blog.geekwithfibroids.com/about/comment-page-2/#comment-46149 Amy Tue, 01 Dec 2009 08:05:43 +0000 #comment-46149 Kari, can you describe this mass? I haven't really heard of someone "passing" a clot... unless maybe they've had ultrasound treatment. Much more likely, it's a clot... Clots are very common among those of us with fibroids and if you've never had them, I could see calling one a "mass". To me, the clots seem like pieces of liver, and I've had small ones going up to ones as large as my hand! If your doc hasn't suggested motrin, it actually helps to cut down on bleeding... so try that until you talk to your doc. Also check and post about bleeding on the following page on this blog: http://blog.geekwithfibroids.com/2007/02/02/how-are-you-managing-your-heavy-menstrual-bleeding/ Best. Kari, can you describe this mass? I haven’t really heard of someone “passing” a clot… unless maybe they’ve had ultrasound treatment. Much more likely, it’s a clot… Clots are very common among those of us with fibroids and if you’ve never had them, I could see calling one a “mass”. To me, the clots seem like pieces of liver, and I’ve had small ones going up to ones as large as my hand! If your doc hasn’t suggested motrin, it actually helps to cut down on bleeding… so try that until you talk to your doc. Also check and post about bleeding on the following page on this blog:
http://blog.geekwithfibroids.com/2007/02/02/how-are-you-managing-your-heavy-menstrual-bleeding/
Best.

]]> By: Kari http://blog.geekwithfibroids.com/about/comment-page-2/#comment-46133 Kari Sun, 29 Nov 2009 19:57:24 +0000 #comment-46133 After having horrible periods for about three years after having my daughter, I was diagnosed with "multiple" this is what my Dr said) fibroids, a fairly large cyst on my right ovary, and apparently there is something wrong with one of my follicles. My Dr suggested hormone therapy (aka birthcontrol) prior to going to the gyno. I've been on the bc since about April. This definitely improved my periods after trial and error to find the right kind, but recently a round of antibiotics made my system go haywire again. I've been bleeding for a month, and this morning I passed a quarter sized round mass. I'm not having sex (for the last 7 mos), actually getting divorced so I'm certainly not prego, so I assume I passed a fibroid. I went to the Dr last week for the bleeding, and she reccommened I take 4 bc pills one night, 3 the next, etc in order to make the bleeding stop. The bleeding didn't, and now I'm bleeding worse. I obviously know that I need to contact my Dr tomorrow, but has anyone had an experience like this? What is going on with my body? After having horrible periods for about three years after having my daughter, I was diagnosed with “multiple” this is what my Dr said) fibroids, a fairly large cyst on my right ovary, and apparently there is something wrong with one of my follicles. My Dr suggested hormone therapy (aka birthcontrol) prior to going to the gyno. I’ve been on the bc since about April. This definitely improved my periods after trial and error to find the right kind, but recently a round of antibiotics made my system go haywire again. I’ve been bleeding for a month, and this morning I passed a quarter sized round mass. I’m not having sex (for the last 7 mos), actually getting divorced so I’m certainly not prego, so I assume I passed a fibroid. I went to the Dr last week for the bleeding, and she reccommened I take 4 bc pills one night, 3 the next, etc in order to make the bleeding stop. The bleeding didn’t, and now I’m bleeding worse. I obviously know that I need to contact my Dr tomorrow, but has anyone had an experience like this? What is going on with my body?

]]> By: Amazing Stress Relief Program http://blog.geekwithfibroids.com/about/comment-page-2/#comment-45552 Amazing Stress Relief Program Sat, 10 Oct 2009 18:03:04 +0000 #comment-45552 Golf course or, information I suggest?Many people especially, agreement gives you.Holidaymakers Golf course or, information I suggest?Many people especially, agreement gives you.Holidaymakers

]]> By: Inquirer http://blog.geekwithfibroids.com/about/comment-page-2/#comment-45545 Inquirer Fri, 09 Oct 2009 19:18:28 +0000 #comment-45545 Hello all, Sorry I haven't been back in a while. My report is that I'm doing very well. It will be a year for me on November 10,2009. Feeling great! No complaints. I am athletic and run 4 miles every Saturday which may help my case. Periods are good and have slacked. I have a period of 5 days down from 6 days. One heavy day in which I may use 3 pads in a full day and the others I use one pad. The last day I can pretty much use a panty liner. Just thought I would come back and give an update. Most are here because of problems so I thought I would come back for encouragement. Another thing to do if you believe in a higher power is to pray along with everything else you're doing. Take care. Everyone is not the same and the procedure won't work for everyone but it is worth a try. Therefore if you end up having a hysterectomy there will be no doubts of what might have been. Hello all,

Sorry I haven’t been back in a while. My report is that I’m doing very well. It will be a year for me on November 10,2009. Feeling great! No complaints. I am athletic and run 4 miles every Saturday which may help my case. Periods are good and have slacked. I have a period of 5 days down from 6 days. One heavy day in which I may use 3 pads in a full day and the others I use one pad. The last day I can pretty much use a panty liner.

Just thought I would come back and give an update. Most are here because of problems so I thought I would come back for encouragement. Another thing to do if you believe in a higher power is to pray along with everything else you’re doing. Take care.

Everyone is not the same and the procedure won’t work for everyone but it is worth a try. Therefore if you end up having a hysterectomy there will be no doubts of what might have been.

]]> By: Jeannette http://blog.geekwithfibroids.com/about/comment-page-2/#comment-45175 Jeannette Sun, 02 Aug 2009 19:42:47 +0000 #comment-45175 Ally Fibroid, Did you ever get the laproscopic hysterectomy? I had the same plan as you and just underwent UFE 2 weeks ago and feeling BAD. 16x15x10. Ally Fibroid,
Did you ever get the laproscopic hysterectomy? I had the same plan as you and just underwent UFE 2 weeks ago and feeling BAD. 16×15x10.

]]> By: Nicole http://blog.geekwithfibroids.com/about/comment-page-2/#comment-43961 Nicole Fri, 15 May 2009 19:22:20 +0000 #comment-43961 Hello, I just found out that I have a fibroid. Part of it is submucosal. It is posterior to the uterus and it is on the larger side. The Reproductive Endocrinologist is going to schedule an HSG to see if I will need surgery. I live in the DC area. I plan to go to Johns Hopkins if I need surgery. I read about a syndrome called PCOS and asked my GYN to run tests. My GYN told me I might have PCOS and ordered a pelvic ultra-sound. Then she never got back to me about the results. The technician who did my ultra-sound told me to go to Hopkins if I have to have surgery. She had a very bad experience before she went into the medical field. Has anyone in the forum read about or heard about Transvaginal Myomectomy? Hello,

I just found out that I have a fibroid. Part of it is submucosal. It is posterior to the uterus and it is on the larger side. The Reproductive Endocrinologist is going to schedule an HSG to see if I will need surgery. I live in the DC area. I plan to go to Johns Hopkins if I need surgery. I read about a syndrome called PCOS and asked my GYN to run tests. My GYN told me I might have PCOS and ordered a pelvic ultra-sound. Then she never got back to me about the results. The technician who did my ultra-sound told me to go to Hopkins if I have to have surgery. She had a very bad experience before she went into the medical field.

Has anyone in the forum read about or heard about Transvaginal Myomectomy?

]]> By: SuzyQ http://blog.geekwithfibroids.com/about/comment-page-2/#comment-41955 SuzyQ Mon, 26 Jan 2009 16:31:17 +0000 #comment-41955 Suzanne - Did your doctor tell you why they were causing you so much pain? I think you will want to ask your doc how many fibroids you have, size, location.....and that will help you determine what your options are. That and retaining fertility. This site also was a great comfort to me when I discovered it last Spring :-) This thread doesn't get a lot of traffic. Most of the myomectomy threads are helpful & active...even if that's not the treatment you end up with. Suzanne – Did your doctor tell you why they were causing you so much pain? I think you will want to ask your doc how many fibroids you have, size, location…..and that will help you determine what your options are. That and retaining fertility.

This site also was a great comfort to me when I discovered it last Spring :-)

This thread doesn’t get a lot of traffic. Most of the myomectomy threads are helpful & active…even if that’s not the treatment you end up with.

]]> By: Suzanne http://blog.geekwithfibroids.com/about/comment-page-2/#comment-41945 Suzanne Sun, 25 Jan 2009 16:49:58 +0000 #comment-41945 I have just stumbled on this site and I am almost sighing in relief(except for the horrible pain I am experiencing at the moment). To be honest, I was beginning to think that maybe I was just being a big baby about the pain and other lovely symptoms, mainly because(and god love him, I know he's a man)but I think my husband doesn't realize just how much pain I am experiencing. I am sooooo glad I found a site that shows women going through the same thing. I was just diagnosed with my fibroid in October and the doctor put me on birth control pills, which haven't really helped and have actually made the pain constant, ranging from just dull pressure to horrible, I can't sleep pain. The only thing that even helps, even if it just takes the edge off, is ibuprofen, haven't tried any Aleve as of yet, but that will be my next choice just to see if I can sleep through the night. I am at the point now that I just want it gone and I am not sure which procedure would be best, I don't know anyone who has had these lovely things. I have no children at the moment, but want to have them. I am so glad I found this site!!! I thought the 2-3 days a month I have not choice but to miss work was possibly just an indulgence on my part. I guess I just needed support and found it by reading all of the blogs, Thanks to all I have just stumbled on this site and I am almost sighing in relief(except for the horrible pain I am experiencing at the moment). To be honest, I was beginning to think that maybe I was just being a big baby about the pain and other lovely symptoms, mainly because(and god love him, I know he’s a man)but I think my husband doesn’t realize just how much pain I am experiencing. I am sooooo glad I found a site that shows women going through the same thing. I was just diagnosed with my fibroid in October and the doctor put me on birth control pills, which haven’t really helped and have actually made the pain constant, ranging from just dull pressure to horrible, I can’t sleep pain. The only thing that even helps, even if it just takes the edge off, is ibuprofen, haven’t tried any Aleve as of yet, but that will be my next choice just to see if I can sleep through the night. I am at the point now that I just want it gone and I am not sure which procedure would be best, I don’t know anyone who has had these lovely things. I have no children at the moment, but want to have them. I am so glad I found this site!!! I thought the 2-3 days a month I have not choice but to miss work was possibly just an indulgence on my part. I guess I just needed support and found it by reading all of the blogs, Thanks to all

]]> By: inquirer http://blog.geekwithfibroids.com/about/comment-page-2/#comment-40833 inquirer Fri, 14 Nov 2008 21:30:50 +0000 #comment-40833 11/14/08 Day 5 Having pain & fever which began after day 2. I was lenient on taking the pain medicine which probably kept the pain & fever away. For anyone who is having the procedure remember to pump morphine as much as you can while in the hospital & take the pain medicine as directed whether you have pain or not. I thought I was just pain free since I usually am good with handling pain. Not this time, the pain medicine was actually doing its job which made me feel so well. My dosage of Motrine was not enough either. I was prescribed to take one 5/500 pill every six hours. The pain was still there. I had a bottle of 7.5/500 in which one was enough. Therefore I took one & a half of the 5/500 which is equivalent and the pain is now being controlled once again. I am passing streaks of blood on trips to the bathroom. Having a fever that gets no higher than 101.5 Those symptoms are to be expected. I am enjoying the rest & being off work. 11/14/08 Day 5

Having pain & fever which began after day 2. I was lenient on taking the pain medicine which probably kept the pain & fever away. For anyone who is having the procedure remember to pump morphine as much as you can while in the hospital & take the pain medicine as directed whether you have pain or not. I thought I was just pain free since I usually am good with handling pain. Not this time, the pain medicine was actually doing its job which made me feel so well. My dosage of Motrine was not enough either. I was prescribed to take one 5/500 pill every six hours. The pain was still there. I had a bottle of 7.5/500 in which one was enough. Therefore I took one & a half of the 5/500 which is equivalent and the pain is now being controlled once again. I am passing streaks of blood on trips to the bathroom. Having a fever that gets no higher than 101.5 Those symptoms are to be expected. I am enjoying the rest & being off work.

]]> By: inquirer http://blog.geekwithfibroids.com/about/comment-page-2/#comment-40798 inquirer Wed, 12 Nov 2008 15:03:52 +0000 #comment-40798 Hello all, I just had a UFE on Monday 11/10/08. This is day three and I feel very good. At the present I am symptom free from the procedure, no pain or anything. My abdomen is not sore, tender or swollen as I've read in others testimony. Day 1 I felt a little lightheaded and disney about twice. After the second dizzy spell, I vomitted in a 4 ounce cup. Day 2 the only exeperience I had was a slight chill that night while under the covers. Otherwise my sister & everyone else say I don't appear as someone who just had invasive surgery. I feel very good! I must add I am athletic. I run 4 miles every Saturday, 7 miles is the most I have done. I am 5'7" and weigh 138 lbs. The doctor said my surgery was an easy one. She said my arteries were open & very easy to get through. Maybe the exercise is a benefit. Hello all,

I just had a UFE on Monday 11/10/08. This is day three and I feel very good. At the present I am symptom free from the procedure, no pain or anything. My abdomen is not sore, tender or swollen as I’ve read in others testimony. Day 1 I felt a little lightheaded and disney about twice. After the second dizzy spell, I vomitted in a 4 ounce cup. Day 2 the only exeperience I had was a slight chill that night while under the covers. Otherwise my sister & everyone else say I don’t appear as someone who just had invasive surgery. I feel very good!

I must add I am athletic. I run 4 miles every Saturday, 7 miles is the most I have done. I am 5′7″ and weigh 138 lbs. The doctor said my surgery was an easy one. She said my arteries were open & very easy to get through. Maybe the exercise is a benefit.

]]> By: inquirer http://blog.geekwithfibroids.com/about/comment-page-2/#comment-40483 inquirer Wed, 22 Oct 2008 19:14:07 +0000 #comment-40483 This is for Gill. Unless there are problems coping with fibroids surgery should not be needed around the age of 51 & above. Menopause should begin around age 51 or 52 depending on when your cycle began. During menopause fibroids shrink. I've also been told that consuming soy products help with controlling hormones which is responsible for fibroid growth. My fibroids were getting larger each ultrasound & I was continually anemic. After drinking soy milk for a while my fibroids had ceased to grow & my iron level became normal & consistent. I was referred to a Radiologist for a UFE which I have schedule in a week. When the radiologist read my MRI she informed me that my 3 largest fibroid had sort of embolized themselves. The MRI showed there was no blood flow going to them. I also have 4 more so I will be having the UFE for them. If I was sure that the others would do the same I would not have the procedure but space within my abdomen is limited and I don't want to take a chance. Thanks for this blog. Even though I am able to share info about my fibroid experience it is helpful to know about the UFE procedure. This has been very helpful. This is for Gill.
Unless there are problems coping with fibroids surgery should not be needed around the age of 51 & above. Menopause should begin around age 51 or 52 depending on when your cycle began. During menopause fibroids shrink.

I’ve also been told that consuming soy products help with controlling hormones which is responsible for fibroid growth. My fibroids were getting larger each ultrasound & I was continually anemic. After drinking soy milk for a while my fibroids had ceased to grow & my iron level became normal & consistent.

I was referred to a Radiologist for a UFE which I have schedule in a week. When the radiologist read my MRI she informed me that my 3 largest fibroid had sort of embolized themselves. The MRI showed there was no blood flow going to them. I also have 4 more so I will be having the UFE for them. If I was sure that the others would do the same I would not have the procedure but space within my abdomen is limited and I don’t want to take a chance.

Thanks for this blog. Even though I am able to share info about my fibroid experience it is helpful to know about the UFE procedure. This has been very helpful.

]]> By: Confused http://blog.geekwithfibroids.com/about/comment-page-2/#comment-40214 Confused Sun, 05 Oct 2008 20:47:11 +0000 #comment-40214 Hi Amy, Thank you so much for responding. You've just confirmed what my gut has been telling me. I had a second opinion, and that doc gave me a host of other options (all involving surgery). The 2nd opinion doc didn't feel I'd be a candidate for emobolization, and felt that if I didn't want to have children 'why not have the surgery'....But I think I'm going to trust myself and explore alternative treatments. Thank you again for taking the time to respond... Hi Amy,

Thank you so much for responding. You’ve just confirmed what my gut has been telling me. I had a second opinion, and that doc gave me a host of other options (all involving surgery). The 2nd opinion doc didn’t feel I’d be a candidate for emobolization, and felt that if I didn’t want to have children ‘why not have the surgery’….But I think I’m going to trust myself and explore alternative treatments. Thank you again for taking the time to respond…

]]> By: Amy http://blog.geekwithfibroids.com/about/comment-page-2/#comment-40194 Amy Sat, 04 Oct 2008 22:39:52 +0000 #comment-40194 Hi Confused, I've lived with a 9cm and a 6 cm for at least 5 years, and no one has ever suggested having a hysterectomy - even though I was really bleeding and anemic. Like you say, the only symptom is heavy bleeding, but your blood is fine... I have to wonder what your doc is thinking! See someone else!!! I'd have them out any day before having a hysterectomy - which I sort of see as a last resort when one is having a host of horrible symptoms. Hi Confused, I’ve lived with a 9cm and a 6 cm for at least 5 years, and no one has ever suggested having a hysterectomy – even though I was really bleeding and anemic. Like you say, the only symptom is heavy bleeding, but your blood is fine… I have to wonder what your doc is thinking! See someone else!!! I’d have them out any day before having a hysterectomy – which I sort of see as a last resort when one is having a host of horrible symptoms.

]]> By: Confused http://blog.geekwithfibroids.com/about/comment-page-2/#comment-40180 Confused Sat, 04 Oct 2008 06:31:09 +0000 #comment-40180 Hi, I'm 43 and have just been informed I have a 9cm fibroid. No symptoms, other than heavy bleeding around the 2nd and 3rd day of my period. I'm not anemic, blood work is normal. But my doctor immediately suggested I have my uterus removed with the fibroid (leaving the cervix and ovaries). Everything in me is screaming not to have the surgery, I dont know why but I dont think it's necessary. Any comments, suggestions anyone? Hi,
I’m 43 and have just been informed I have a 9cm fibroid. No symptoms, other than heavy bleeding around the 2nd and 3rd day of my period. I’m not anemic, blood work is normal. But my doctor immediately suggested I have my uterus removed with the fibroid (leaving the cervix and ovaries). Everything in me is screaming not to have the surgery, I dont know why but I dont think it’s necessary. Any comments, suggestions anyone?

]]> By: Amy http://blog.geekwithfibroids.com/about/comment-page-2/#comment-39575 Amy Thu, 21 Aug 2008 04:37:53 +0000 #comment-39575 Hi Gill, No ideas, sorry! Although I have had some pain in my hip, I deal with by seeing a chiropractor... But I'm very interested to know if your pain goes away with your hysterectomy. Good luck with your surgery and please keep us posted. Hi Gill,
No ideas, sorry! Although I have had some pain in my hip, I deal with by seeing a chiropractor… But I’m very interested to know if your pain goes away with your hysterectomy. Good luck with your surgery and please keep us posted.

]]> By: gill http://blog.geekwithfibroids.com/about/comment-page-2/#comment-39524 gill Tue, 19 Aug 2008 07:01:24 +0000 #comment-39524 Hi, Im in Australia and just stumbled on your blog. I have 4 largish fibroids, and am getting severe pain in my left side, just inside my hip bone. My uterus is the size of a 12 week pregnancy. My doctor says that the fibroids would not cause that type of pain. Any ideas? I am having a total hysterectomy in two weeks. I am 51 years old. Any help would be appreciated. Hi, Im in Australia and just stumbled on your blog. I have 4 largish fibroids, and am getting severe pain in my left side, just inside my hip bone. My uterus is the size of a 12 week pregnancy. My doctor says that the fibroids would not cause that type of pain. Any ideas? I am having a total hysterectomy in two weeks. I am 51 years old. Any help would be appreciated.

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