Thought I should finally start a “How are you feeling after…” post about my first fibroid procedure. From FibroidSecondOpinion.com:
Hysteroscopic myomectomy is a technique that can be performed only if the fibroids causing the symptoms are within or bulging into the uterine cavity (submucosal). This procedure is performed as outpatient surgery without any incisions. Anesthesia is needed because the surgery may take one to two hours and would otherwise be uncomfortable. A small telescope, the hysteroscope, is passed through the cervix, and the internal uterine cavity is seen. A small camera is attached to the telescope, and the view is projected on a video monitor. This magnifies the picture and also allows your physician to perform the surgery while sitting in a comfortable position. The surgery can then proceed more rapidly.
For more information:
Hysteroscopic Myomectomy (FibroidSecondOpinion.com)
Hysteroscopy (WebMD)
Myomectomy (Wikipedia)
My Hysteroscopic Myomectomy was outpatient, under general anesthesia, and caused very little pain. Since I had never gone through surgery before, I was freaking out some over the idea of general anesthesia but it all worked out well. Of course, I don’t remember any details from the procedure itself but the recovery was not that bad. The nausea from the drugs bothered me more than any pain or bleeding. You can follow my story in excruciating detail through the Related Posts at the end.
If you have a Hysteroscopic Myomectomy experience, thoughts, or questions, please leave a comment here.
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Related Posts:
Is there such a thing as minor fibroid surgery?
No longer freaking out over my fibroid surgery tomorrow
Memories before my myomectomy
Memories directly after my myomectomy
Does anyone have a hysteroscopy experience to share?
December 14, 2009 at 2:38 pm
Hi ladies,
Any of you had submucosal fibroids removed that would like to exchange email with me personally?
It’s been almost 6 months post-opt (hysteroscopic myomectomy). Bleeding lessened a little bit, but my flow is still considered heavier than average. I use Depend on the first few days monthly with double pads inside. After a while you just get sick of cleaning the bed, the sheets , the toilet, the floors, the clothes, etc.
The sharp debilitating, excuciating, like a knife cutting through you slowly cramps have stopped since surgery. I do still have discomfort and bad menses, feeling very weak during those weeks with no appetitize sometimes and wanting to vomit. But these symtpoms are all tolerable compared to the cramps. Howe4ver, this past Fri and Sat i had these mother of cramps for 24 hours. Further Sat morning the cramps continued for about 30 minutes, multiple episodes. I was so much in pain i was sitting on the toilet seat, paralyzed. My hubs didn’t hear me crying in pain for 10 min as he was at the lower level of the house. Finally he found me and i asked him to send me to the hospital.
Went to ER. They took all the vitals, the urine test, the blood test, EKG. Found nothing. did a pelvic exam . Found nothing. Finallly decided to get me an ultrasound. Technician said nothing unusual looking and i asked her if it’s normal to have them regrow that quickly, within 6 months and she said no. But i only get these pains radiating locally during my cycle only. So they discharged me since they coud’nt find anythign with the tests.
Wondering if anyone has submuocsal fibroids removed and have a similar experience. Thanks.
February 22, 2010 at 3:36 pm
two weeks after my myomectomy, am still bleeding. i bleeed normal, two days after and little droppings afterwards. but eleven days after it became heavier.
December 19, 2009 at 12:53 am
i had a removal of a 1cm submuscous fibroid, by hysteroscopic myomectomy…on december 15th 2009. i was a nervous reck.my doctor is the BEST..n I knew i was in good hands but i was still a reck. everything went well. I’m home recovering n feeling good.
I’m going to see my doctor 22nd dec. for my checkup.
all you out there who are going thought a difficult time don’t don’t give up, there is hope. Find a great doctor who is willing to listen too you and who knows what he or she is doing. If anyone need a GREAT DOCTOR l would be glad too give info. she is as good as they get. Good Luck too all.
December 30, 2009 at 6:25 pm
I just had surgery one day before you it has been 3 weeks and I still experience pain in the abdominal area and in my lower back. 5cm fibroid removed. My doctor is not available. I wonder if it is normal to experience severe pain at this stage of recovery.
July 15, 2010 at 12:30 pm
Hi Michelle, how are doing now?
I have had this same procedure for same size fibroid nearly 3 weeks ago. Pain free pretty much for 2 weeks. Bled intermittenty but lightly. The period came and I was gobsmacked by the pain I felt- nothing like it before, bled heavily too. Spent day 3 in bed. Painkillers, hot water bottle and I was still in pain- I literally cried. Days 4-6 were better. Then day 7 out of nowhere severe pain abdomen and lower back. Felt like I was being knifed, I convulsed from the pain, vomiting and opening my bowels at the same time- it was torture. What was surprising no clots came out as I expected. After 2.5 hours it subsided as mysteriously as it started.
I armed myself with painkillers and was able to rest overnight. First thing in the morning the pain set in again. Took more painkilers and contacted my nurse practitioner at my clinic- she recommeded I visit for a check up if pain persists for 24hours. I’ll see what happens then. In the meantime I’m hanging in there with much prayers being offered up for me.
January 10, 2010 at 11:20 pm
jo, great it went so well! Please tell us who your doctor is and where she is located! Thanks!
April 19, 2010 at 9:41 am
Hi Jo,
I just had my AM done 14 days ago and I was just wondering what the name of you doctor is: It can’t hurt to have options when it comes to this particular condition. My doctor was great by the way. I would greatly appreciate it if you could e-mail his/her info to me.
Have a wonderful day love!
December 28, 2009 at 5:03 pm
Hi,
I’m considering an abdominal myomectomy. Any thoughts?
Also, any recs on a great doc in the Boston area?
March 29, 2010 at 4:20 pm
You should look into finding a doctor that can do the surgery with the DaVinci Robot. http://www.davincisurgery.com/ The recovery time is two weeks with a much smaller abdominal incision. I had a 3cm removed this way.
January 1, 2010 at 1:16 pm
I have read so much helpful information on this site from women sharing their experiences so I will add mine in the hope it provides useful info for someone else.
MRI showed that I have at least 8 fibroids of varying size and location and the equivalent of a 4-month uterus. I had considered MRgFUS and although it has the benefit of being less invasive it may only reduce the overall fibroid size by 30 – 35% and symptoms by ~70% whereas myomectomy has a better chance of outcome through removing more of the fibroids.
A couple of surgeons said I wasn’t suitable for laparoscopic myomectomy due to the number & size I’ve got so I was ready to book in for an abdominal myomectomy. However I saw another surgeon who said he could probably get 3-4 of the largest ones using a laparoscopic approach. He recommended that I should have a hysteroscopy first to rule out any endometrial issues and at the same time he would resect any sub-mucosal fibroids that wouldn’t be got at later myomectomy. Having a good look inside would also decide whether laparoscopic or open should be the myomectomy approach.
As I’m a contractor and don’t get paid for sick leave I decided to self-pay and get the procedure done on Dec 31 as Jan 1 is already a holiday, so yesterday I got to the hospital at 06:30 for a 08:00 procedure under GA. I got changed and into bed to keep warm (it was minus 1degC or something in London), then waited to see the anaesthetist, then surgeon to sign the consent. After that it all went quite quickly and it was time to walk down to theatre. As I was cold it took a little while to get the vein up to put the IV in but when that was in the mask was then put on and I was told I was being given the drugs to make me fall asleep; the next thing was being woken up in recovery. I seem to recall being a bit emotional and confused and had what felt like crampy period pain that they gave me a shot for, even though I’d apparently had something when I was under, I was then taken back to my room at about 09:30 I think.
The surgeon came to see me an hour or two later. Although MRI had indicated the fibroids had a submucosal component (in the cavity), it turned out that all the fibroids are intermural (in the wall) so unfortunately he couldn’t do anything about them, however I had a 3cm polyp that he removed. (Polyps grow out from the endometrial lining and are soft; whereas fibroids are hard muscle tissue). Although he wasn’t able to get any fibroids he said it was a good result because the polyp was probably contributing to the bleeding problems but wouldn’t have been removed otherwise.
He did say he still thinks I should still be okay for laparoscopic approach as he would be able to get the larger fibroids that are causing most of the pressure problems and are about 20cm combined in mass. I can’t remember what he said about when I am meant to speak to him again about having the myomectomy, but one factor will waiting about a week for pathology results from the polyp (although most likely nothing significant to be found there).
So at about 3:30pm after having something to eat and passing urine I was allowed to go home. I was pretty tired so did nothing on NYE apart from recovering on the couch, fortunately the meds (Voltaren 75mg twice a day) were taking the edge of the worst of the pain. Strangely though I seem to have put on just under 2 kg in weight since weighing myself before going into hospital. I feel pretty bloated so thought I must have some sort of fluid retention from the solution they use to distend the uterus. I rang the hospital this morning and she said it would be from the anaesthetic so to move around as much as I could and that I would suddenly find myself passing urine a lot more within the next day or so.
Initially there was some blood loss but today there is very little. My period is due to start on Monday so it will be interesting to see what that brings, especially as I can’t use tampons this time!
January 1, 2010 at 2:35 pm
Hi Annette,
Thanks so much for your post, it’s great to hear from someone recent, and in London.
I was recently diagnosed with an 8cm fibroid, and am currently undergoing the Decapeptyl injections (Lupron in the US I believe) to try and reduce the size. I know the medication gets a negative feedback quite often, but I have been lucky and not too many side effects.
I had the Hysceroscopy in late November, and they also removed a small polyp, not sure on the size.
I’m due back to see my Dr on 22nd January, and will see what he says then.
Hope you are resting up and feeling better,, and that the 2kg comes off quickly!
Kylie
January 13, 2010 at 7:17 pm
Thanks for your response Kylie; I take it you are in the UK too?
I was really bloated with my period which came about 4 days after the op, much more so than usual but fortunately the blood loss was less and there was no need to take Tranexamic Acid that had been needed in previous months so the polyp must have played a role there. It took about a week before I was back to my pre-operation weight though!
I saw the surgeon yesterday and he showed me some pictures. Now I’m not sure how big a normal uterine cavity is but he said the polyp was filling it so it’s good it was removed. Getting that out hasn’t helped the pressure problems though so I’m booked in for a laparoscopic myomectomy on the last Monday in January.
Some of the bloating he said would be because of sluggish bowel following the anaesthetic. He also said it generally takes about 3 months before your period settles down and that I could wait and see how it goes, but I decided there’s no point in waiting because they’re not going to go away on their own!
January 9, 2010 at 12:31 am
My lower abdomen has been swollen since two weeks after my hysteroscopic myomectomy and d&c in July 2009. The swelling is about the size of a baseball (not that shape but simply adds a few inches to the belly). My weight is very low (95 pounds) and I’m very thin everywhere else and accustomed to having a flat stomach. Has anyone else had this experience after a procedure on their uterus? If so, did it go away? How long were you bloated? So far doctors haven’t seen anything wrong on sonograms and my pain and bleeding are greatly reduced. In fact, my period is strangely light. (I want to include the words bloat, bloating, swelling, and tummy in case anyone searches on those words.) Please write if you’ve ever heard of this happening to a patient.
January 24, 2010 at 2:56 pm
KeyLimePie,
I’ve been posting in a different group (how are you feeling after laparoscopic myomectomy) as women there have gone through hysteroscopic myomectomy as well as laparoscopy. I definitely still have a bit of a muffin top, but I’m not as thin as you are, so you will notice it longer. In my case my periods were kind of light before the procedure (the fibroid was blocking the normal way out for the bleeding, so I had retrograde menstruation) and now I’m bleeding a lot. Did you have all your submucuos fibroid completeley removed by the procedure?
January 30, 2010 at 7:49 pm
Hi, Beti.
When you say you had a muffin top, was that above an incision? Or did you have a muffin top (swelling) following a hysteroscopic myomectomy or laparoscopy? With little or no incision?
How long did the swelling of your stomach last?
I had just one submucous fibroid removed completely. I have a mural fibroid which remains but they tell me it’s only 3cm.
Thanks!
April 11, 2010 at 8:50 pm
Wow! Okay, so I’m not alone… I’m freaking had surgery two weeks ago and now I think having my period….??? Or am I? Help!!!!
April 19, 2010 at 10:05 am
Hi Sylvia,
I had my AM 13 days ago and I got my period on day 11. I have not passed any blod clots at all which it very unusual for me, and it has left me a little bit concerned about my uterine lining. It has just been a light flow on and off again. Yday I had really bad cramps and I thought that I would pass this huge clot but NOtHING. So that could be you period arriving….
January 26, 2010 at 4:38 pm
hello ladies,
its quite a relief to know i’m not alone in the world with fibroids! i am in Nigeria, West Africa, and i’m scheduled for a hysteroscopic myomectomy on friday 29th january. my greatest worry is the effect of the procedure on my fertility. i’ve been trying to conceive for 5years now. my doc wants me to do this procedure then try ICSI after my full recuperation in a couple of months. any advice for me please???
January 27, 2010 at 8:28 pm
Hi Tinu,
My obgyn advised me to have to procedure to help in our attempts to conceive, either naturally or using some fertility treatment. But no doctor will give you 100% certainty that the procedure can’t damage your fertility. In my case, the purpose of the surgeries (hysteroscopic and laparoscopic myomectomies combined) was to improve quality of life and improve fertility, and I’m certainly happy if at least I reach the first goal. I really don’t know about ICSI, it is published that you have at least a 50% chance of getting pregnant with no fertility treatment (I’ve been reading scientific articles) after this surgery. I’m not trying to be negative, but keep in mind that they might not be able to remove all the submucous fibroids in the procedure (that was my case, I’ll need a second hysteroscopy at some point) if they have a big portion embbeded in the myometrium. My doctor did not touch the portion that was in the muscle, that is the best approach so your uterus is in the best shape for a pregnancy!
February 9, 2010 at 3:37 am
Hi Beti,
thanx a lot for your comments. my procedure went on as scheduled and everything went pretty well, thank God! my period has come a week earlier than expected but the flow is so minimal, its just like when i had my periods as a teen. the cramps have almost disappeared too. all in all, i’m happy i had the procedure. i’m due for a transvaginal scan on 16th feb (12th day of my cycle) to see how everything is doing inside there. i have a good feeling about all these and i believe conception is just round the corner for me.
February 9, 2010 at 2:07 pm
Hi Tinu,
Did you get your fibroids completely removed? If that is the case, you should go back to normal quite fast. I’m still waiting to go back to a normal cycle (one is supposed to wait for 3 cycles before trying to conceive). I’m having quite heavy periods (because a portion of the fibroid couldn’t be removed and is still in the walls), but being pain free is so amazing! I feel like back in my 20s, when I barely felt anything during my periods.
Good luck with your transvaginal scan!
April 22, 2010 at 2:58 pm
I had Myomectomy done on February 24, 2010. I am back at work now,. but i want to conceive. It is scary when i read about the scarring that occurs after surgery. I would love to hear from someone who conceived after having this procedure and how long it took.
April 22, 2010 at 4:57 pm
Andrea, did you have the hysteroscopic myomectomy? did they remove a big fibroid? mine was 3 cm diameter, they removed 60% of it, left the remaining 40% (that was in the muscle) for a later procedure, when the uterus pushes it into the cavity. So they didn’t cut any of the muscle of the uterus. I got pregnant in our first attempt, 3 rd cycle after surgery. I didn’t have any post-surgery U/S to find out if there was scarring or how the remaining of the fibroid was.
April 23, 2010 at 11:10 pm
Hi, I had a myomectomy (2cm above belly button down to pelvis) on 31 July 09 . I had seven fibroids removed biggest were 25cm by 15cm (had 2 of them) and they ranged in size to the smallest which was 2cm by 5 cm. My doctor and the nursing staff were amazed they were the biggest ones they had ever seen, the pictures are not pretty! . I am 38 and realy wanted children so had no choice other than to operate.After the op (had to have 2 blood transfusions and reruptured the wound 5 days after getting out of hospital) I was told that we had to wait until January ( 6 months after op to try to conceive.I was incredibly scared about the whole ordeal but it was certainally worth it. I fell pregnant 5 months after the op (12 November)I am now 26 weeks pregnant due on 31 July 2010. I am booked in for a ceasar as cant risk labour I have been told I have 9 fibroids that have grown back – not sure if they will remove them when have ceasar still waiting for this to be clarified. Very scared again but there is certainally hope for you and just be positive . Hope this helps.
February 10, 2010 at 4:38 pm
I had the procedure six days ago and thought, due to the use of a catheter, that I had a bladder infection. It turns out I didn’t but I have a great deal of pain in the lower area of my groin. My Doctor (not the one that did the procedure) thinks it could have been a small tear or scrap from the insertion or removal of the catheter and says it just needs time to heal and could take up to 10 days. I feel worse now than I did after the surgery. Anyone have something similar?
February 20, 2010 at 6:34 pm
KeyLimePie,
sorry I didn’t see your comment on Jan 30. I had 5 incisions for the laparoscopic myomectomy, and also hysteroscopic myo at the same time. I have like a double muffin top (if there is anything like that, or rather a big muffin bottom). One is under the bikini line, it feels like my uterus is inflated, the other is above the bikini line. But my incisions are much higher than the bikini line, so it’s not because of the incisions. I wonder if both are due to the fact that they inject liquid in the uterus for the hysteroscopic myo, the other because of the gas they inject for the laparoscopic procedure. and I hope they’ll go down with exercise!
March 6, 2010 at 12:53 am
Hi Keylimepie, How long has it been since your sx was done? I have the same concern My surgery was done on Feb 22. the fibroid was too large to remove laparscopically so an abdominal incision was made. I hope to get rid of the muffin top.
August 13, 2010 at 2:16 pm
Hello Beti,
Thanks for sharing your comments with everyone. I had a abdominal myo May 7, 2010 and am now about 5 weeks pregnant. Looks like I conceived on week 11 or 12 after myo. How is your pregnancy coming along? We weren’t trying to get preg until I saw the fertility doc but accidents happen. I hope my uterus is able to handle everything. I had 12 fibroids removed. Not very big, all submucosal.
February 20, 2010 at 7:03 pm
I am now convinced that the Lupron is the cause of my bloating. That’s what bloated me up to begin with. After the initial estrogen “flare”, I was OK for a couple weeks. Then after the menopausal phase of the drug, the bloating returned and stayed. I am quite miserable and it’s much worse than living with the fibroid. Doctors can’t find anything else wrong so far and I’ve had a CT scan. My uterus is normal size. I took only ONE shot of 3.75mg of Lupron, reluctantly, to prepare for my fibroid surgery (hysteroscopic myomectomy). The biggest regret of my life! Did anyone else take Lupron and how are you now?
If your doctor tells you to take Lupron for fibroids, find another doctor. Spread the word: the side effects of Lupron can be permanent!
February 22, 2010 at 2:52 pm
I have 2 fibroids 5 cm. I ‘m in the research stage currently.
I would like to have kids 1 day, so I am going toward Laparoscopic myomectomy or Hysteroscopic myomectomy.
Does anyone know what size the tumors have to be for either of the procedures?
What irritates me the most, is that I eat right, exercise, and take care of myself.
Has anyone heard of any ways to prevent them from comming back, besides hysterectomy?
March 8, 2010 at 9:15 pm
Rena, it’s not your fault you have fibroids. It’s mainly hereditary and up to 75% of women have them, but many never even know. Also, we all get way too much estrogen from the pill, our diets, even pesticides.
Only the big fibroids and the submucosal fibroids are problems. Hysteroscopic myo is very easy but 5cm a bit large. Don’t hesitate to have the surgery done in two steps (two surgeries) if necessary. Do NOT take Lupron to shrink the fibroids or give you more time in surgery. It’s too risky. They will have to wake up up if your body absorbs too much of the distention fluid, even if the fibroid isn’t completely removed. Still better than taking Lupron, which is dangerous and stays in your system for MONTHS or YEARS. The surgery is easy. You just have to wait two weeks to have sex but you feel fine in a couple days. I can’t speak for the laparoscopy.
Good Luck!!!
February 22, 2010 at 3:38 pm
Rena, I understand how you feel. I had a 4cm fibroid bulging into my uterine cavity and it was removed via hysteroscopic myomectomy. I’m happy to report that the procedure was minor, out-patient (as I’m sure you know), and the recovery was only a few days w/ no pain. Most of the uncomfortable feeling was due to getting over the general anesthesia.
I wish I could comment more on the differences between hysteroscopic and laparoscopic myomectomies. But I feel compelled to share with you that after my one fibroid was removed, a 3-mos. follow-up revealed that more of the fibroid had pushed out, along with another much smaller one. So now I have a 2 cm fibroid in my uterus, which will require another hysteroscopic myomectomy. This news was less than ideal, but the good news is that because my fibroids are so small, I will not require another 3 month healing time; I can begin trying to conceive during the next cycle after I get this second myomectomy.
I wanted to tell you this because although my surgeon was thorough in removing what he could, he did not give me clear information about the possibility of a fibroid continuing to bulge into the uterine cavity, requiring a second procedure. If I had known that a second procedure was a possibility, my husband and I would have been more psychologically prepared entering the entire process.
I too find it irritating to have this trouble with fertility while some women who are unhealthy and take their bodies for granted get pregnant with ease. The only thing I’ve read regarding prevention is that some believe consuming too many soy products could make them worse due to phytoestrogens. I wish I knew more, and I wish you & anyone else on this message board the best of luck!
February 22, 2010 at 5:39 pm
Hi Rena, I had both Hysteroscopic and Laparoscopic Myomectomies.
Fibroids in the uterine cavity (submucosal fibroids) or bulging into the cavity are suited to hysteroscopic removal.
Fibroids that are outside the uterus on a stalk (subserosal pedunculated) are the easiest fibroids to remove laparoscopically. Fibroids in the uterine muscle (intermural) are also removed laparoscopically however more skill is needed to repair /suture the muscle wall.
5 cm fibroids are not too large to be removed either way, but it will depend on what type you have and where they are located as to which approach is best for you. Good luck!
February 22, 2010 at 9:51 pm
Rena,
Just a few more comments. Fortunately contrary to Dr. Girlfriend experience, my doctor told me right after the hysteroscopic myo that he couldn’t remove the whole submucosal fibroid because a big percentage was in the muscle of the uteros, and that I’ll probably need another surgery in one year because it will get pushed into the intrauterine cavity. We are still allowed to try to conceive three months after surgery. So you need to ask your doctor if he knows already how much of your submucosal fibroid is bulging and how much in the uterine wall.
I had the laparoscopic myo at the same time, that requires more recovery time because it is actually major surgery. they would remove any pedunculated and subserosal fibroid, and probably leave the intramural ones, to preserve your fertility and the strength of the uterus.
I’m hoping my fibroids don’t come back too soon. and I don’t know what I’ve done wrong in life to have to deal with this. I’ve read somewhere that women that’ve been on the pill have less chances of getting fibroids, but if you want to conceive soon, that’s out of the question.
February 22, 2010 at 10:52 pm
Me again. for the ones in the forum that have had the hysteroscopic myo more than 3 months ago, how long did it take until your cycle went back to normal (normal cycle length and normal bleeding time?
February 23, 2010 at 1:03 pm
hi Beti, i had hysteroscopic Myo in october and my cycle was normal only this month for the first time since.So after 4 months.But now i have to see if this next cycle it will be normal.The others after were about 50 days apart
February 24, 2010 at 11:15 pm
Thanks Daniela! I’ve had a 20 day cycle, followed by a 35 day one, so it’s kind of nerve wrecking not knowing what to expect with such variation. Well, patience!
February 23, 2010 at 3:21 pm
Thanks for the info. It really helps.
How long did it take from the time you found out you had fibroids to the Myo? Is there anything I need to ask the doctor about before I have the procedure?
Sometimes they don’t always tell you everyting you need to know.
February 23, 2010 at 4:33 pm
I found out I had fibroids at the start of October. I investigated MRgFUS first (in both Melbourne and in London as I’m an Australian living in London) then spoke to a couple of surgeons about surgical approaches before finally seeing the surgeon I decided to go with in London on Dec 23. I had the Hysteroscopic myo on Dec 31 and the Laparoscopic myo on Jan 25.
I went private and self-paid though so was able to book in for the procedures quickly rather than relying on the NHS.
I found that every doctor that I spoke to had a different approach so it doesn’t hurt to get a 3rd, 4th or 5th opinion! I also found that it helped to write a list of questions to take in with me as otherwise I would come out having forgotten to ask something. Check out the info at http://blog.geekwithfibroids.com/2006/10/20/what-questions-should-i-ask-my-fibroid-doctor/
February 24, 2010 at 3:54 pm
I plan on getting more than one opinion. Thanks for the website.
March 2, 2010 at 11:02 pm
Hi Rena,
I hope you find a great obgyn to help you with all of your questions. I am so thankful living here in Toronto and having access to every test available within weeks. My heavy bleeding was causing me stress so my gyno gave me the whole range of tests from ultrasound / uteran biopsy / another sonic ultrasound and found a 2.5cm fibroid which she matter of factly told me she would be removing next month – and as I am 40 and am trying to conceive told me it would take 20 mins to remove the fibroid as an outpatient. She told me to wait one cycle and “go for it” to try and conceive. I think the advancements in this treatment have come a long way. My mum suffered from fibroids when she was in her 50s (15 yrs ago) and the only treatment was a hysteroctomy – and that was not a good solution. I am thankful that medical advancements have come so far to make this procedure way less risky. I am very comfortable with my dr and i think that too makes the world of difference. Good Luck!
March 4, 2010 at 11:13 pm
Angela, are you getting your fibroid removed by hysteroscopy? I’m surprised you have to wait just for one cycle and try to conceive again, I was told to wait for 3 cycles, and I’m in the same situation as you (40 years old
).
June 28, 2010 at 11:25 pm
Hi Angela, I live in Toronto also and would love to know the name of your doctor so I could ask my dr to reccomend me to her. My gyno does not perform these only myectomys and I would like this procedure instead hysteroscopic or laparascopic if possible. hope you can help. thank you
August 4, 2010 at 2:32 pm
Could you please let me know the name of your doctor. Having options is so important. Thanks
March 3, 2010 at 5:38 pm
Angela,
it sounds like you have a great doctor. It sounds like your dr stays informed with the latest tech. I hope everything works out for you. I know its nerve racking having to wait a month to get it removed. What is the name of the procedure your dr is doing? Is your dr having you change the way you eat or exercise to help?My Dr. who is a female actually told me that she doesnt know much about them. I had to go on the internet and get books from the lib. to really help me understand exactly what I’m dealing with.
I go for an MRI tomorrow. I’m not nervous just ready to get it done and over with so i can decide what treatment to go with.
My dr wants me to look into MRgFUS. I’m just not sure about that one because I can’t find a whole lot info on it.
March 4, 2010 at 8:52 am
Hi Rena,
Have you looked a the link on this site regarding experiences with MRgFUS? I found some of the info here useful when I was considering it.
http://blog.geekwithfibroids.com/2006/09/24/does-anyone-have-an-experience-with-exablate-mrgfus/
March 4, 2010 at 3:14 pm
Thanks Annette.
I will check it out. It is so confusing. No matter what we choose it could affect our fertility.
I went for my MRI today and found out that I don’t have 2 5cm fibroids like my gyno said. I have a 9+ cm fibroid and a 1 cm fibroid. Thats one good thing about the MRI. At least I got and accurate report. And yes. I asked for a copy of the MRI, Radiologist report, and the IR report.
The MRI was not that bad. I made the mistake of opening my eyes and it made me feel anxious to get out of the machine. I prayed the whole time. That really helped. I’m not sure what to do now. I was really considering a myo, but the Dr. I had a consult with today said that my fibroid might be to big for a Myo and I may need a UFE. I’m going to get a second opinion.
March 5, 2010 at 7:26 pm
Hi Rena,
Did they tell you what sort of fibroids you had and where they are located? If your9cm one is intermural it’s likely you would be looking at an abdominal or laparoscopic myomectomy rather than a hysteroscopic one. I had a couple of surgeons say I was not suitable for laparoscopic myo as mine where too big; however that’s what I ended up having and 8 fibroids were removed with a total mass of around 25cm. The fibroids are removed using a morcellator which basically chops the fibroid into pieces so it can be sucked out though a small incision. Laparoscopic myomectomies require more skill which is why not all surgeons are able to do it. I would definitely recommend my surgeon however he’s in London which probably is not that much use to you.
March 5, 2010 at 8:00 pm
Rena,
What state are you in? I had mine removed via robotic myomectemy laparscopically. I would highly recommend my surgeon — Dr. Antonio Gargiulo @ Brigham and Womens.
He has a video/interview on the procedure on the website….
http://www.brighamandwomens.org/reproductivemedicine/video/robotics.aspx
People travel to have him perform the surgery. I don’t know if that’s an option for you or not.
Hope this helps.
June 20, 2010 at 7:49 pm
Rena, I agree this entire thing seems like a nightmare. So unfair, and it makes things worse when we turn on the tv and see the shows how people who abuse their bodies and dont want the child and they have no trouble getting pregnant. I go for my MRI July 9. Never had one, but have heard that it causes vertigo. THanks for mentioning about keeping my eyes closed, every little bit helps.
March 6, 2010 at 12:42 am
I recently had a Myomectomy, Like you I’m concerned with the muffin top above my incision line. it’s been just shy of two weeks. Maybe there is still some swelling. Any suggestions?
I’ve been thinking of maybe an Ice pack or hot water bottle ….
March 6, 2010 at 8:46 am
Thanks. AK and Annette. I will check out the web site. I’m In North Carolina, USA. I’m in the process of setting up an appointment for a consult for the Myo.
I went to a IR for UFE and his assistant said that diet, exercise and birth control didn’t matter in the growing or shrinking of fibroids. That went against everthing that I read so far. What did your dr.s say about those things, especially the Birth Control? Are you back on Birth control after the Myo? I would like to get off BC after my surgery. What causes a muffing top after Myo?
March 7, 2010 at 8:10 pm
Hi, there are two different issues here:
A swollen belly due to fluid retention caused by Lupron, especially when taken with Aygestin, or progesterone. This is my problem. Does anyone know how to make it go away?
Secondly, a “muffin top” caused by abdominal surgery where you actually have a horizontal abdominal incision (not a laparoscopy). Unfortunately the problem here is that you have a rigid scar and your belly fat, however little, is sticking out over it. This is because you were lying down when you were sewn up by a surgeon who performs myomectomies. Women need to be sewn up by plastic surgeons who would tummy tuck you so this issue would not occur! If it doesn’t go away in a year or so, unfortunately you may need a plastic surgeon to fix it.
But if anyone knows how to get rid of fluid retention caused by Lupron, please let me know! THANKS
April 19, 2010 at 10:35 am
I too ended up with the muffin top. It’s not huge and I’m only 13 dyas post op so I’m hoping that this is not the final result. The sweeling has gone down tremendously but I’m still numb and sore. I was on this website * cant remember the name, realme.com or something* where you can ask surgeons about different surgical procedures. This one lady had asked a question about the muffin top after and AM and she got a lot if different responses from a lot of diff plastic surgeons. this one surgeon in NY really made sense to me though. He said that the best way to get rid of the muffin top after an AM is to release the ” scar shelf” that’s pushing up the belly fat. I’m going to see how much of my muffin top I can get rid of just through diet and exercise and if that dosen’t work I would def consider having the ” scar tissue shelf” release surgery instead of lipo. Hopefully this kind of procedure is covered by the insurance company.
Has anyone lost weight after the AM?
April 19, 2010 at 10:55 am
this is the scar shelf release link that I initially found but you can also get alot of info about it if you google ” c-section scar shelf surgery” for those who are interested…..
http://www.realself.com/question/liposuction-muffin-top-bulges
March 8, 2010 at 2:11 pm
Angela,
Good to see that I am not in this alone. I am in the same situation as you. I will be having surgury next Tues (Hyster Myom) to remove a 2cm fibroid. I to am trying to concieve and my dr said that we can try in Apr as I am 40 yrs old. I am a little nervous as I never had surgury but I am trying to think positive. Where are you having your surgury done next month?
March 18, 2010 at 3:07 pm
I am scheduled for a hysteroscopic myomectomy on April 6th for a 4.0 by 2.6 cm. fibroid that is dead center in my uterus and the probable cause of not being able to get pregnant. The good thing I’m taking from this is had I gotten pregnant the doctor told me it was highly likely I would have had a miscarriage because of the fibroid. I’m scared to death of the procedure and trying to work through my fears. I need to ask my doctor what my chances of getting pregnant are after getting the procedure done and how soon I could start trying again. Time is of the essence as I am 40 years-old. If anyone has any comments, feedback or advice, please let me know.
March 18, 2010 at 8:48 pm
I’m having it done at Northwestern hospital. Your fibroid sounds very small. Are they removing it because of the location of it? My doctor also mentioned something about not knowing whether or not this less evasive procedure could be done until he goes in, meaning the actual surgery.
March 19, 2010 at 8:57 am
Laina, if you were responding to me, then yes, it is being removed in part because it is blocking a fallopian tube. But more specifically, it must be removed because it could grow if a fetus was in there, possibly resulting in miscarriage.
From what I understand, it is a tricky decision for a doctor to decide the best way to remove a fibroid(s). I had 2 differing opinions, but went w/ the less invasive approach, which was fine except that I am requiring another myo. (I still think this is preferable to an abdominal incision.) Obviously I am not a doctor, but I find it very curious that your doctor is saying he doesn’t know if the less invasive procedure will work until the actual surgery. Before I had surgery, the surgeon did a hysteroscopy (going in w/ a scope, revealing the exact state of matters on a clear video screen). I thought hysteroscopies were performed to know EXACTLY what you need. Sorry if I’m misunderstanding you; I was just confused by what your doctor said.
March 19, 2010 at 1:07 pm
Dr. Girlfriend,
Sorry, I’m new to this whole blog thing and not quite sure how it works. The two tests I had were a hisotgram and sonnogram (not sure of the spelling of these) and that’s where he saw where the fibroid was. You just made me think of another question to add to my current list of questions and that is, is the fibroid blocking a fallopian tube. Were you told by your doctor how long the recovery takes and how long you have to wait before being able to try to get pregnant again? This is another one of my questions I have written down to ask.
April 19, 2010 at 6:50 pm
Laina,
I think my doctor didn’t know either until he performed the hysteroscopic myomectomy and found that 40% of the fibroid was actually in the muscle. So he left that portion untouched because it’s to risky to remove it, they might end up puncturing or cutting the wall of the uterus. Based on the hysterosalpingogram test, mine seemed to be taking the top right portion of my uterus (basically the right half did not have a pear shape when I looked at the images in the screen).
I got pregnant in my third cycle after the surgery, when I turned 41.
July 12, 2010 at 9:22 pm
Beti,
Congratulations on your pregnancy. Did you have any kind of IVF treatments? I had the procedure done in April, took May off for recovery purposes and tried in June and nothing happened. I don’t want to go the IVF route due to finances and my husband and I decided to try for another three months naturally. Since the hysterscopic myomectomy my periods have been almost pain-free. The last two cycles I was out on the second day playing tennis. This is unheard of as usually I was down for the count on the couch for two days minimum with debilitating cramps. It’s wonderful to have my life back and now with this fibroid out of the way we will see if it was the cause of my not getting pregnant.
Laina
March 19, 2010 at 3:23 pm
Hi Laina, I was told that the recovery is generally 6 months after an abdominal myomectomy, but 3 months after a hysteroscopic myomectomy. If IVF treatment is recommended, then the object is to try to get you pregnant ASAP to avoid complications from possible re-growth of fibroids. I wish you the best of luck in taking care of your fibroid!!
April 8, 2010 at 4:59 am
Hi, I had a hysteroscopic myomectomy with Dilation and Curretage on Thurs 1st April (1 week ago). I was told that I may have a polyp but it turned out to be a fibroid polyp. The nurse read me the operation report and it said that only 90% of the polyp was removed. I find out results from the doctor next week but am worried because I am still bleeding. I also had cramp-like discomfort in my abdomin today. Did anyone else experience this or should I be concerned?
April 8, 2010 at 10:58 am
Hi Lily, I also had a fibroid polyp removed at hysteroscopic myomectomy, mine was taking up the whole uterine cavity. My surgeon explained that the uterus would have become ‘used’ to having the polyp there, then when it was removed the uterus would need to contract to fill the gap created by the polyp removal so the cramping could be more severe than usual for the first cycle until it all returned to the new post-op normal.
April 8, 2010 at 11:16 pm
Thanks Annette, I guess everyone’s body is different, apparently there can be blood loss for up to ten days following the procedure.
April 11, 2010 at 1:33 am
I’m two weeks post myomectomy and I’m still bleeding????? When will it stop?
April 12, 2010 at 1:19 am
Hi Sylvia,
I’ve been getting different information on what occurs after this procedure, (depending on what else you get done, I had D&C as well), where some sources say there can be light bleeding for several weeks and others several days. If you are worried best talk to your doctor. I have found it to be quite scary that things are happening to my body, after a procedure such as this, that I was unprepared for. I am only 28 and want to have children in the future, so am finding the situation very confronting!
April 12, 2010 at 1:55 am
BTW am still bleeding after 11 days, has increased today, and is starting to feel like my period. Not sure if this is possible or not!
June 5, 2010 at 11:25 am
3 weeks after my abdominal myomectomy, I am still bleeding. I had 30 tumors, in various sizes, removed The bleeding is very light but annoying. During this period, my period came, denoted by heavier flow, and went but I was left this light bleeding. I will see my doctor next week and I hope this is normal. Has anyone else experienced this??
April 14, 2010 at 10:09 pm
Did any of you experience alot of blood clotting?
April 16, 2010 at 12:31 pm
I am currently in my third day of recovery. I had a d&c and a polyp removal during my outpatient surgery. The surgery was a piece of cake (the worst part being the IV). When I woke up I was given pain medicine for a mildly sharp pain. I came home and wound up needing further pain medication after the stuff from the hospital wore off. It didn’t hurt unless I moved around or walked. The worst part by far is going to the bathroom. It is nearly impossible for me to finish going pee because I need the muscles that touch my uterus. I had a slight fever the second day. I feel much better now, so my advice is take 2-3 days off of work or schedule it for a Friday so you will be able to go back to work on Monday. Also, my bleeding is light and my doctor said it will last up to two weeks.
April 25, 2010 at 7:00 pm
Sarah, I’m glad you mentioned pain during urination. I’m two days post-op (two fibroids removed using a resectoscope) and get a sharp, intense pain anytime I engage my core (even to pass gas). If my bladder is too full, the abdominal pain is much worse.
Since it’s the weekend, I have to wait to discuss this with my doctor, but I wasn’t prepared for this sensation. I generally feel taute, like I’ve done too many situps.
May 9, 2010 at 8:03 pm
could i get pregnant after a hysteroscopic myomectomy
May 10, 2010 at 10:50 am
Hi Ladies!
I had an abdominal myomectomy, and then went on to TTC and conceive last year. I’ve posted a lot at those two threads, and will be starting a new website for us fibroid ladies to chat at, that hopefully will be easier to navigate and post at than here, seeing as Eclectic Geek isn’t here to host anymore.
If anyone has any site name suggestions, let me know. Thanks! I’ll keep you posted when the new site it up.
May 22, 2010 at 9:43 pm
PRE-OP (ab myomectomy):
If I had to do it again, I would have tried Rx ibuprofen to slow down my period to correct my anemia pre-op. I discovered that it helped tremendously with clotting (600mg as needed (early am & bedtime) during the first 5 days of my ~14 day period). I was not told this beforehand but when I mentioned it during my “talk” with the fertility specialist/surgeon, it was agreed that my solution to control the bleeding was ok. Lupon WOULD NOT be my first choice simply because of the side effects and the FACT that it shrinks the fibroids. I’m not convinced that fibroids “regrow”. I am convinced that Drs are not able to remove all fibroids b/c they can’t see/feel them. Let Lupron be the absolute last resort to bring your blood counts up only, not to shrink the fibroids. There are surgeons that do not use Lupron (or similar drugs) for that reason. If 10lb+ babies can be delivered, skilled surgeons can remove fibroids. I’ve seen pics of masses that were bigger than the 22 week fibroid uterus it was attached to. Don’t let a textbook Dr. spook you into taking Lupron.
PRE-OP AGAIN (hysto myomectomy):
Contrary to popular belief, you need to approach surgery with the same research skills and agreement in principle as any other decision. I made it crystal clear to the surgeon that I wanted all fibroids removed, provided it was safe. 4 weeks after my ab myomectomy my period was the same as before the surgery, EXPLOSIVE! $45,000 later, my period continued to be explosive (3 mos post-op) until I sought out a new OB (not to be confused with the fertility specialist/surgeon that earned a grade of “incomplete” for my ab myo). My new OB looked at the diagnostic MRI and was puzzled as to why the fertility specialist/surgeon did not remove the fibroids that were clearly in the cavity, prolasped into the cavity according to the MRI. The OB ordered an U/S which showed a total of 6 fibroids (3 should have been removed during the ab myo).
The hysto myo was a few days ago and the OB removed 3 fibroids from the cavity. Reasonable flow day 1 and it became lighter and lighter with each day (super maxi to panty liner).
Bottom line, if you and the Dr. do not agree 100% on the strategy about the surgery or the Dr. resists by citing textbook lingo (if the fibroids are close to the “artery” or tubes, then I will leave them) when that explanation does not apply to you (per the MRI and subsequent laparotomy), do not hesitate to find another Dr.. I feel confident that my OB will take good care of me through pregnancy and menopause, so I’m not upset with the surgeon, just disappointed.
May 23, 2010 at 10:08 am
StillLearning,
I think your comments underscore why proper diagnosis is so important BEFORE doing a myomectomy. I frequently see fibroids left behind because they were not diagnosed before surgery or the surgeon did not have the skill to remove them.
It is essential to evaluate the endometrial cavity (inside of the uterus) before surgery. I explain the steps in evaluating fibroids before surgery here: http://efibroids.com/diagnosis-of-fibroids.
Hope this helps.
Paul Indman, M.D.
http://efibroids.com
http://www.myomectomy.net
June 3, 2010 at 11:35 am
Dr. Indman I agree, however, I can’t put my finger on why the fertility specialist/surgeon didn’t get the job done. When I sought out other Drs. they had a puzzled look on their face like, “why weren’t ALL the fibroids removed?”. I don’t know if it’s lack of skill or over precaution. In either case, the Dr. shouldn’t be doing surgery unsupervised. Maybe the Dr. is better at IVF than myos.
I’m taking the high road by (1) requesting a post-op MRI, and (2) a complete review of my chart (size of fibroids before & after Lupron), then I will determine if the surgeon lacked skill or was too cautious for my own good. To be told I may need another open procedure simply b/c the first one was not done as well as it could have boils my blood. I’m in God’s hands but the story still needs to be told. Let’s see what happens.
Slightly off topic, but not really…if a Dr’s front office (staff) is shabby, find another Dr immediately. It makes no sense to leave a message on 5/17 and a few follow up messages to finally quiz a staffer to find out the Dr. was out….b/c the Dr. needed surgery. Hello?! Why didn’t you tell me that when I called the 4th time?! Not the first time it happened, but the 2x messages seemed not to reach the Dr. I was bleeding profusely. Unbelievable. Initial message left 5/17 still has not been returned and today is 6/3. I trust that $200 co-insurance/Dr.’s fee that the insurance punted my way will be waived once I’m done meeting with the fertility spec/surgeon!
June 13, 2010 at 6:38 pm
Have read many post about fibroids and not wanting to get cut open I decided on hysteroscopic myomectomy. Had my procedure done on June 9th and its back to work tomorrow.
First I want to say I went on three months, at once a month, injections of Lupron. Really did not bother me much. I lost 4 pounds while on it and yes there were hot flashes, but really no big deal. The first week after the shot, I had a headache every day, that was worse than the hot flashes and night sweats. The lupron managed to shrink my 4.5cm fibroid down to a 3.5cm fibroid thereby allowing for easier removal. My enlarged uterious also shrank. I also had multiple other fibroids in the cavity. Some he had to leave as I was in surgery for an hour and there is a time limit due to the fluid they fill your uterious with. So….I will need to wait on the success of the procedure when my period returns. How long will that be? I have to say the two months I did not have my period due to Lupron were fabulous. No worries. Now, 5 Days after my procedure and still bleeding upon any exertion it is medium to light. I hope the bleeding stops soon. also, I only had pain on the first day. Otherwise it is only sore to the touch, but getting less so every day. I can only pray that the surgery worked, and I will no longer be anemic to the point of passing out. As so many others, I was unable to leave the house on those bad days. It was a nightmare. Just wanted to share my experience and would like to know what happens during the first cycle and how long before it comes?
June 14, 2010 at 9:43 pm
Louise, I read your question at the end and wanted to comment that in my case the first period was OK (I had the surgery during my ovulation) and the second period was heavy, 9 days, which I believe left me with anemia (it never happened before the surgery) but the 3rd period was like heaven. It might take longer or be different for you depending on the size of the fibroids you got removed, mine was only 3 cm, and only 60% could be removed, but it was causing me a lot of trouble.
StillLearning, sorry to hear about the bad experiences you had in the past, it is truly a bless to find the right doctor the first time. We discussed with mine the approach and decided beforehand which fibroids he was going to attempt to remove (as many as possible without cutting the uterus muscle). After surgery the doctor showed me the pictures and indicated the subserous fibroid that couldn’t be removed in the laparoscopy because it was around the tube and all surrounded by arteries, clearly too dangerous to be removed. If the doctor is warning you before the surgery, even if it sounds like textbook, they have the obligation to tell you how far they are willing to go. Of course, as in my case, I had the surgery with an OBGYN who is also a surgeon, did not wait to go see the fertility specialist, I did picked the person with more experience.
June 17, 2010 at 4:49 am
Hi All,
I went into surgery for a polypectomy via hysteroscopy. However it revealed that I had a fibroid with a very broad stem. The surgeon still performed a ‘twist’ on the fibroid to try to remove it. It has resulted in pretty much continual bleeding since the op on April 1st. I have been put on progesterone twice. I bled so heavily last week that I ended up in hospital with very low iron levels and have been put back on progesterone. I am still spotting on the 5th day.
I finally got the operation report yesterday and was shocked and angered that the surgeon ‘twisted’ the fibroid. Apparently they did get a partial removal. What I have read about fibroids is that it is very important to get a skilled surgeon to perform the procedure to prevent complications. Especially closing the blood vessels after. Does anyone know possible outcomes if a fibroid is partially removed in this manner?
June 20, 2010 at 7:42 pm
My DH and I have been ttc for about a year. I learned that I have the awful submucosal fibroid (55mm). I have been taking supplements for the past few months and hoping I could conceive. So far no luck. After researching, I learned that i may be putting off the inevitable. Since the type of fibroid that I have has caused 2 chemical pregnancies-miscariages, more may occur if we keep ttc. I wonder has anyone gone through the hysteroscopic myomectomy to remove this type of fibroid and how long did it take to conceive successfully. I am just really frustrated with it all. It seems that you go on and do all the right things and then somethng like this gets in your way. Also, I wanted to know why the dr’s tell you to keep trying (wait atleast a year) even after they know you have fibroids that could cause miscariages, harm the fetus, and grow with the baby? Has anyone else experienced or wondered about this? Its all confusing to me.
June 29, 2010 at 5:50 pm
My story is that I’m 32 (will be 33 in November – eek!) DH and I got married in November ’08. In December ’08 I went off the Pill and in about February ’09 started charting etc.
Around the same time I went off anti-depressants I’d been on for several years on the advice of my Dr. I also went and had pelvic and abdominal ultrasounds done as I’d been having bad bloating and an upset stomach and wanted to rule out anything serious. Pelvic ultrasound found 2 small fibroids, one of which was sub-mucosal.
Dr referred me to an OB/GYN to check out the fibroids but before I’d had a chance to see her I fell pregnant and booked in to see a different OB. That was in April ’09. End of April ’09 I had my first miscarriage and 5-6 weeks. At the same time (actually right when I found out I was pregnant) I had a very bad episode of depression. After my miscarriage and D&C we had some time off TTC while I got my head sorted out and got back on medication.
In mid-December 09 I found out I was pregnant again but about 2 weeks later started spotting and also having sharp pains on my left side. Again was referred for blood tests and a scan, which, like the first time, was inconclusive. I had another m/c (again at 5-6 weeks) over Xmas, right on my first EDD. This time it was a natural m/c.
By this stage I was much stronger mentally. I started doing research and and went back to my OB demanding tests. He told me I didn’t qualify as having had recurrent miscarriages as I hadn’t had 3 yet. But I was determined and he referred me to a fertility specialist. He told me I could have tests but they almost certainly wouldn’t show anything. I got a similar story from the fertility specialist but she agreed to send me for tests. Nine vials of blood and another pelvic ultrasound later she told me that all the tests had come back normal, except for the ultrasound, which had shown a polyp. She scheduled me for a D&C/hysteroscopy/polypectomy on 19 May.
When I woke up from the operation on 19 May she told me that the polyp was in fact a fibroid so she hadn’t removed it. She said she needed some time to consider whether it should be removed but that we could keep TTC in the meantime. On 23 June I saw her again and she told me that my 3 centimetre fibroid was entirely in the uterine cavity and should be removed, since they had found no other reason for my miscarriages. However, she doesn’t do that surgery so she referred me to a different OB/GYN. I could only get in to see him on 10 August so the earliest I will be having an op will probably be the end of August!
We can keep TTC in the meantime but currently I have AF and have noticed my cramping is much worse and also focussed on my left side near my hip. I’m thinking this might be the fibroid…
Anyway, congratulations if you’ve made it this far. The good thing is because my fibroid is an intracavitary one attached by a stalk they should be able to remove it all hysteroscopically.
Have any of you had a hysteroscopic myomectomy? How long was the recovery? Did you have a shorter wait to TTC because you didn’t have to have an incision? Would be great to read some post-myomectomy success stories too.
Thanks
Adi
June 29, 2010 at 8:51 pm
Hi Adi, i posted on the fibroidfriends page. I agree with Alex, finding a good surgeon is very important.
good luck
July 26, 2010 at 11:14 pm
Monique,
I just saw your post, I haven’t been reading too much in the past couple of months. Because I was already 40, my OB-GYN did all the fertility tests after 6 months of unsuccessfully TTC, and then advised us to have the surgery before going to see the fertiliy doctor (I had the combined laparoscopic and hysteroscopic myomectomy). We were allowed to TTC again 3 cycles after the surgery, and I got pregnant right away. I believe that the submucosal fibroid was causing so much inflammation each month (I was stomach sick 15 days each period, with a lot of pain) that the chemicals released in my body could have been rejecting the baby (I mean I could not even get the implantation happening). After the surgery my third cycle was normal (the second was long and heavy) but I did not have pain and was not sick at all. So I would say, if you have a submucosal fibroid, go for the surgery. Do you know if yours is blocking one of the tubes, or causing other problems? Mine was in the right (well, 40% of it is still there, in the muscle), almost blocking the tube.
Good luck!
June 29, 2010 at 6:51 pm
Hi Adi. I had three procedures – two hysteroscopic myo and one robotic myo. All went very smoothly. I think a lot depends on the experience of your surgeon so make sure you get the best available to you. Recovery was fine. The GA made me nauseous and more sick than the actually surgery. I had to wait about a month before TTC after the Hysteroscopic myos. A lot if studies show that fibroids, especially submucosal ones significantly increase the risk for miscarriage. I think you are smart to have them removed before ttc again. Don’t be afraid to be your own advocate in the medical community. You must be actively involved to ensure that you are getting the best care. It makes everyone’s life easier.
June 29, 2010 at 8:52 pm
Alex, did u have all 3 in one day ? when was that ? how many fibroids did u have ? and were they big? i had abd myo because mine were too big for hysteroscopic.
June 29, 2010 at 9:05 pm
Tarsha,
I had one last Sept where they didn’t get much at all. That was the HM and then in January ’10 I had the robotic myo where they got the largest one at the time (5cm) and a smaller one (1cm). Then they missed one and I had that removed on May 4th via HM. So I had 3. But I started out with many more. I went on an alternative healing route that really helped. My largest started out at 8cm and shrunk down to 5cm. Mainly changed my diet — largely vegan and did a bunch of cleanses. It took a while but it was worth it.
How large were yours? When did you have them removed?
July 6, 2010 at 11:21 am
Good morning, ladies!
I came across this site while looking for some answers as to how long I would be bloated following a robotic-assisted (DaVinci) myomectomy last Monday, June 28th. I’m shocked at how well my recovery has gone. It’s been only a week and outside of being bloated and caring for my 4 incisions, I feel great! I know that I’m still somewhat bloated from water retention, but I have to say, I’m glad I did it. I didn’t necessarily do it to preserve my fertility (I’m 38 with a 3 year old little boy), but I did it to preserve my uterus. I had 1 fibroid approximately 8cm in diamter; with all the pre-operative ultrasounds, they thought they had determined it to be “pedunculated.” He got in there and oops, it was subserosal. My surgery was a little under 3 hours long, a tad more complicated than he had anticipated, but all in all went well. I also had a hysteroscopy with polypectomy (I think he cleaned me out too…).
So, with all that said, has anyone had a similar experience with the DaVinci? If so, how long were you bloated?? How long did it take you to feel 100%?
I want to say, for the record, if you can find a surgeon in your metro area that does the DaVinci, DO IT. If you don’t, or your doctor won’t refer you to someone who does it, you will be doing yourself a disservice. As my surgeon says, “It’s absolutely criminal that doctors are stil doing open myomectomies. If it can be done via the robot, the doctor needs to refer his pateint out.” ‘Nuff said…
Good luck to all you ladies who want to do it or thinking about doing it. If you have questions or comments, please feel free to ask!
Thanks for letting me post!
August 9, 2010 at 3:08 pm
I am so glad I found this website!!! I have a submucosal fibroid that will be removed via hysteroscopic myomectomy next week. It is one of the causes of our infertility (I have PCOS as well) and I am very symptomatic with bleeding for months at a time and pain, both ovarian/uterine and lower back pain.
Has anyone had severe, debilitating lower back pain caused by their fibroid, and did your pain decrease after your myomectomy? If so, was it right after your surgery?
Thanks for any feedback!!
August 14, 2010 at 12:11 am
Hi all – well my hysteroiscopic myomectomy is booked for 1 September. Will have that day and the next off work and go back on the Friday. Those who have had it – how did ypou find the recovery? It’s just the one as far as I know, but it’s 3 cm and almost entirely in the cavity. The Dr was quite positive, saying “don’t worry, we will get you a baby”
August 14, 2010 at 12:02 pm
Adi, Best of luck to you. I also had a 3 cm almost entirely in the cavity. The recovery was miniscule– the general anesthetic used for my hysteroscopic myo was a larger issue than pain. So I don’t think you should worry.
I only have one issue. After it was removed, I had to have a 2nd hysteroscopic myo to remove the rest that was embedded in the uterine wall that had pushed out following the surgery. My surgeon did a good job, but he did not mention that it’s often common to need a second myo to get the rest of the fibroid. He was a poor communicator.
My second myo (w/ another surgeon because I moved to Boston) went fine and my uterus has been restored. I am currently undergoing a 2nd round of IVF to conceive. I was told that it’s common for the first found of IVF to fail. I’ll know if I’m pregnant later this month. Best of luck to you!
August 14, 2010 at 10:28 pm
Thanks Dr Girlfriend
I am hoping I will just need the one. I was given the impression that my fibroid is only attached by a stalk, which explains why they initially thought it was a polyp. so hopefully the Dr will get the whole thing. How long did the Dr say to wait before TTC, or were you always going to do IVF?
August 15, 2010 at 10:37 am
Hi Adi, I was told to wait 3 mos. before TTC for complete healing. I was planning on IVF because my fibroid was unfortunately blocking my fallopian tube, thereby causing damage to the tube. This is why my eggs have been extracted; one cannot assume they’ll go down the damaged tube. Also, my egg count is slightly slow, in part because of age. (I am 37.)
I hope they get your entire fibroid is one procedure so you can soon be on your way!
August 25, 2010 at 10:14 am
Yes..I have just been told that i have a subserous fibroids on the outside of my uterus. My Gyn told me that it was a little large and if he tried to removed it and there was bleeding that he would just give me a hyster.
I’m 36 and I want to have kids. So,. I told him that I didn’t want a hyster, but he very admant about giving me one if he would’t be able to stop the blood during surgery. I told him i’m not a heavy bleeder during my cyles.
So, what would you recommend I do. I’m planning to get see my regular doctor so he can set me up with a surgeon where I live. Are subersour fibroids had to remove?
I’m not nervous about the surgery. I just don’t want a hyster. I have always wanted kids and I’m not ready to give up on my dream.
August 25, 2010 at 2:43 pm
Hi Rachel,
I had both hysteroscopic and laparoscopic myomectomies to deal with fibroids growing in different locations throughout my uterus with the majority being intermural (within the uterine wall).
Subserous fibroids grow on the outer wall of the uterus and usually don’t contribute to heavy periods, but can grow large enough to interfere with other organs so cause issues such as bloating and making you look quite pregnant.
My surgeon said that subserous fibroids are the easiest to remove via laparoscopic myomectomy. As subserous ones are on the outside of the uterus there is less repair of the uterus required after they have been removed. Yes there is always a risk of bleeding with, but it’s less for subserous than for intermural ones. A good surgeon will appreciate how much you want to retain your uterus and will do all he can to avoid a hysterectomy by using blood loss minimisation techniques. My recommendation would be to find someone who is more experienced with laparoscopy for fibroids than the one you have seen.
All the best,
Annette
August 25, 2010 at 10:34 pm
Annette,
Thank you so much for your advice. I wasn’t comfortable with the advice my gyno was giving to me. I have an appt. tomorrow to give him my decison and I’m going to tell him I’m going to get a 2nd opinon. I check out a few surgeons in my area today and I’m planning to call one tomorrow as soon as I leave this appt. with him.
How long does the surgery usually take?
August 26, 2010 at 8:36 am
Hi Rachel,
A laparoscopic myomectomy can take about 2 – 4 hrs depending on the number of fibroids being removed and amount of reconstruction of the uterus required. Mine was estimated to take 2 hours but ended up being over 4hrs. I lost 800ml in blood during the procedure. My surgeon was only going to remove 3-4 of the largest fibroids but he said every time he removed one another fibroid was right behind it so he had to get those ones too; 8 were removed in total with a combined mass of around 25cm.
An abdominal myomectomy can be a much quicker procedure but of course has a longer recovery time.
I spoke to ~ 5 different doctors, all with differing approaches, before I found the surgeon I went with. He had never had to resort to an open procedure from a laparotomy or perform an emergency hysterectomy. Finding a surgeon who is experienced in laparoscopic fibroid removal is key so get as many opinions as you need.
There are lots of experiences over on the ‘How are you feeling after Your Laparoscopic Myomectomy’ page; it may help to read through some of these (if you haven’t already).
August 26, 2010 at 1:47 pm
Well..I just got back from my gyno and I told him that I wanted a second opinion. He was totally taken back by me telling him this bit of information. I don’t think he was expecting it at all.
He told me that my fibroid was around 15 0r 17cm. He suggested to me that he could give me some mecidine to set me into menopause for 3 months hoping it would shrink the fibroid, but if it didn’t work. He would still do a hyster.
He has done a ultraound of my uterus, but he wasn’t really sure where the fibriod was, but the last time I was there he said it was on the outside of my uterus.
I told him that my regular doctor can feel it every single time he touches my stomach and wanted me to have it removed so I can start having babies.
I swear my gyno looked at me like I was crazy or something when I told him I wasn’t going to let him operate on me. I thought him he was too pro taking out my uterus compared to trying to save it.
So, I call my doctor about two surgeons I researched about and found in my area and he’s going to set up an appointment with them.
Hopefully they will be more encouraging about saving my uterus that my gyno doctor was.
I’m hoping I will have some better luck this away.
Thanks so much for your advice.
August 28, 2010 at 5:00 pm
I have an appt. with a surgeon on Sept. 9th. I’ll let everyone know how it turns out.
August 26, 2010 at 6:06 am
Hi ladies
Not sure whether I mentioned this but my hysteroscopic myomectomy is booked for next Wednesday.
August 28, 2010 at 5:01 pm
Good luck.