Comments on: Sex and fibroids just don’t go together, now do they?

By: liza

liza — Sun, 07 Mar 2010 04:34:23 +0000

hi kim i had my first myectomy back in 2005 and the fibroids were so huge that they were crushing my uterus to my loin area .They had to remove it because i had hydronephrosis and i was anaemic .Now a week ago i had another myectomy cause my obs/gyn told me i was anaemic again and i was trying to get pregnant for a whole year.I had to agree for him to operate .He found that my fallopian tubes had been abnomal in their position due to the scar tissue from the previous operation and he removed a total of 12 fibroids 4 large ones and 8 small ones a party was going on in my womb.He said if i had waited and not operated it would have been difficult to save my uterus in a couple of years plus i would have never known what was halting the pregnancy ie the abnormal position of the tubes .Anyway he now says there are stronger chances of getting pregnant and that i shouldnt even wait for healing cause the uterus has a way of adapting .this is my experience with my myectomies they are painful procedures but they are the only guarantee if you still wanna have kids all the other procedures can affect your chances so goodluck

By: Sheila

Sheila — Tue, 24 Nov 2009 21:32:32 +0000

Your doc must be recommending against removal of the fibroid or myomectomy. There are other treatments including a hyst. Find another doc. Ask lots of questions. This website has great info.

By: Sheila

Sheila — Tue, 24 Nov 2009 21:27:06 +0000

Hey,
I’m 44 and have been contemplating hyst., but am hesitant because I’m afraid sex won’t be good. Yes, the fibroids are preventing it from being good also.

So, you are saying hyst helped? Did you keep your cervix?
Sorry to be so nosy.

By: Youth Baseball Bats

Youth Baseball Bats — Thu, 22 Oct 2009 15:39:45 +0000

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By: Sheri

Sheri — Sat, 17 Oct 2009 14:59:41 +0000

Hello Everyone,

I was diagnosed with 2 mass pelvic fibroids and 1 endomitryoma. It’s been almost 3 weeks since my myomectomy and I feel great. I’m 32 years old and without a child. However I am very optimistic in the possibility of me becoming a mom. I cried for a few days after my diagnosis but after a while it got better. My doctor told me that he wanted me to get a second opinion before desiding on the type of surgery. The left side of my pelvis is still a little sore and bruised, but i’m healing well. I’m scheduled to see my doctor on October 21, 2009 and i’m so ready for this to be over so i can return to work. Thank god for the Paid family medical leave act (meaning I recieve my normal pay while i’m out for the 6 weeks post op). I wish you all the best and I just know that everything will turn out just fine. Have faith

By: Robotic Myo Fan

Robotic Myo Fan — Sat, 26 Sep 2009 04:15:32 +0000

Thanks Amy for the blog update. This site has been a godsend for helping me decide what path to take in dealing with my fibroid. It was diagnosed 2 years ago as being 5cm… and grew to 9 cm four months ago. I had a robotic myomectomy 4 days ago. I feel great, each day has been exponentially better and I’m almost feeling back to normal.

I’m having orgasm urges and wonder when it is “ok” to do so (w/o penetration) considering how large the mass was (I think it had surpassed 10cm by surgery time). But maybe it’s too soon? I guess I’ll let things run their course for a bit longer tho it’s getting a bit hard

By: Amy

Amy — Sun, 20 Sep 2009 01:30:22 +0000

Hi Everybody! YAY!!!

FYI — I contacted WordPress and they were able to fix the blog!!! Still no sign of Eclectic Geek herself, but at least most things seem to work.

I’ve asked if it was an actual malfunction or the domain mapping wasn’t paid up or whatever…. and will continue to follow through on this is just in case.

I really hope the whole thing is working again and all the regulars come back!

(for those who get ALL the comments emailed to them, sorry for all the repeat posts, but I want the message to get through to everyone!)

By: Kim 25 june 09

Kim 25 june 09 — Thu, 16 Jul 2009 03:47:44 +0000

I should probably clarify what sex and orgasm was like for me before the operation. In the couple of months leading up to the op, the fibroid went thru a growth spurt, growing at the same rate as a pregnancy (16 wk pregnancy size by the op). During this time, I noticed that it gradually became uncomfortable to have sex. I thought that sex on our sides would be better, like it was during pregnancy. However it was just as uncomfortable – a bit painful. And orgasm felt strange I guess – rather like it did when I was pregnant. The uterus does contractions during orgasm (and I think also at other times – I’m no expert on this) and it felt like it did when I was heavily pregnant (braxton hicks contractions).

By: Kim 25 june 09

Kim 25 june 09 — Thu, 16 Jul 2009 03:38:47 +0000

Hi Just had AM, 3 weeks ago I had a total abdom hysterectomy. I was told no sex until the surgeon had given the OK which I hope will be next week when I visit for a checkup. Since the cervix was removed there are stitches closing up the vagina. I understand there is a risk of infection through the vagina. So no sex yet, but I wasnt told no orgasms. I too was a bit nervous about an orgasm since I couldnt laugh, cough or sneeze without pain so at the 2 week point when things got going that way, I just went with the flow. It was somewhat of a relief to find that my orgasm was not painful at all and it was just as pleasurable as before. Orgasm without a uterus is definitely different but is still wonderful, and I dont regret the op.

By: Just_had_AM

Just_had_AM — Fri, 29 May 2009 19:50:01 +0000

Hello Everyone,

So, HOW LONG to have sex after a Abdominal Myomectomy?

I am 10 days post op and feeling soooo much better. My fibroid was the size of a baseball and pushing on my bladder. I have much relief…..

I’m reading different chat rooms and blogs about this topic and am seeing the “no sex for 5 weeks suggestion”. Is this serious? Please tell me this is not serious.

I can walk around just fine and am feeling little to no pain after 10 ten days.

I’m also seeing a “no orgasm for 5 weeks” suggestion because it can hurt you? Please share your details girls… I’m a newlywed and 10 days is already long!

thanks

By: Skye

Skye — Fri, 13 Feb 2009 19:01:10 +0000

Kim,
My gynae says my uterus cavity is enlarged because of the 2 subserous fibroids & they are trying to get everything to shrink by changing my contraception. Why is a large uterus cavity a problem?

By: sam

sam — Tue, 13 Jan 2009 18:16:03 +0000

THANK EVERYONE I FEEL SO AT PEACE KNOWING I AM NOT THE ONLY ONE GOING THROUGH THIS ,FOR 8 YRS NOW I HAVE THIS PAIN IN MY SIDE I WENT TO 4 DIFFERENT DOC AND KNOW ONE CAN TELL ME WHAT WRONG DID ULTRA SOUND THE WHOLE 9 YARD ,GOT PREG IN 07 WITH TWIN AND I HAD A MISCAR STILL NO ONE KNOW WHY WE BEEN TRYING TO GET PREG SINCE THEN AND KNOW LUCK ,FINALLY I WENT TO A NEW GYN AND HE FOUND I HAD FIBROID AND HE TOLD ME THAT WAS THE CAUSE OF MY MISCAR BECAUSE IT WAS PRESSING ON MY ULTRA SOUND THE BODY IS TAKING THE PREG AS A FOREIN OBJECT ,SO I DID THE SURGERY 4WKS AGO,STILL AIN A LITTLE PAIN BUT MY DOC TOLD ME MY FIBROID WAS NOT A SOLID MASS IT WAS MORE LIKE A JELLY AND HE FOUND LIVE CELL IN SIDE SO HE WANT ME TOO GO TO A SPEC OBGYN HE SAY IT NOT CANCER BUT HE WANT ME TO HAVE A SECOND OPOIN DID ANYONE HAVE THE SAME KIND OF FIBROID?I AM SCARED NOW I WANT TO TRY ON GETTING PREG FIRST BEFORE I GO TO THE NEW DOC DO U THINK IT A GOOD IDEA ?MY NEXT OPPOINTMENT IN 3 MONTHS ,

By: Nay

Nay — Wed, 31 Dec 2008 02:27:45 +0000

Hi, I’m having concerns that I may have fibroids, but due to my age being 19, doctors have been very reluctant to test me for it as it’s supposedly uncommen for women of my age. Howeve, I have had periods which run on a 14 day cycle (less of a cycle, more of a constant bleeding!!) sometimes my ‘cycle’ will be just 10 days, with 7 of those days bleeding. I was in and out of the doctors for over a year, being given all sorts of contraceptive to try and stop it, all of which i’ve suffered breakthrough bleeding. I’m currently spotting and have been for the past 13 days, whilst on a progestrone only pill (i cant take oestrogen as i suffer from migraines). Sex is very painful, but luckily I have a supportive boyfriend who lets me take it slow. It’s getting depressing, and having doctors who just seem to try and stop the bleeding as opposed to finding out whats causing it is very frustrating.

By: Amy

Amy — Mon, 22 Dec 2008 15:56:18 +0000

Cassie, – correction, you’ll find they have an entirely different approach, i.e. the last thing they want to even mention is a hysterectomy, especially to a 29 yr. old!

By: Amy

Amy — Mon, 22 Dec 2008 15:54:12 +0000

Hi Cassie, there have been more of this type of discussion on some of the other threads – so make sure you check them out. e.g “How are you feeling after your Hysteroscopic Myomectomy” and “How are you feeling after your Abdominal Myomectomy” etc. I personally think the “wait and see” approach is for the birds! Unless of course, you need some time for other reasons, like caring for your husband, etc. But you’ll see my rants on some of the other threads. I’ll also say, go see a fertility doc, not a reg. OBG! You should have an entirely different approach. Good luck!

By: Cassie

Cassie — Sun, 21 Dec 2008 06:25:54 +0000

I went to the gyn yesterday for a checkup (long overdue) since I have polycystic ovarian syndrome. They decided to do a transvaginal ultrasound to check my ovaries and in doing so, not only found many cysts that have been giving me pain, but found 2 good sized fibroids, one larger than a golf ball. I’m only 28 so wasn’t expecting the doctor to tell me that the only things to do to take care of them was to have a shot that puts me into temporary menopause, have a hysterectomy or have a myomectomy. I have been having pain, especially during sex, and was still told to just go onto the pill and do a “wait and see”. Being the age that I am, I’m reluctant to first of all, take the chance that they will continue to grow, and second of all, keep having the pain. My husband has been very supportive but I’m not one for patience and want to figure out a solution as soon as possible. (He is also going through his own cancer problems that haven’t recurred since his childhood so we have a lot on our plate right know) If anyone has any ideas, please let me know. I’m pretty upset and need some guidance. Please help!

By: Amy

Amy — Fri, 28 Nov 2008 16:38:48 +0000

Yenor, I don’t know of a support but have you considered getting them treated or removed? Can you get your doctor to talk to your husband – maybe letting him know just how common fibroids are, that you shouldn’t have to be living in pain and that your husband shouldn’t blame you for this! Finally, I don’t know what your situation is regarding health insurance, but if you get it through your husband, get the fibroids out before you get divorced! I hope you get the help you need.

By: Yenor

Yenor — Thu, 27 Nov 2008 21:37:13 +0000

Well ever since I got engaged I started experiencing a lot of pain during sex. My husband became very frustrated. I began to see my ob/gyn trying to find out what could be wrong & the only response I received on more than one occasion was that I just needed more foreplay. I informed my husband, but it didn’t seem to help at all. Subsequently now its eight yearls later, now my ob/gyn tells me that I have fibroids that are about 6cm, and after doing reearch myself have found out that this is most likely the reason sex was so PAINFUL. But my husband has already said that he wants a divorce. If someone has any help or info about asupport group please let me know. Because not only am I in pain physically often, but emotionally I’m dying inside.

By: Amy

Amy — Sun, 09 Nov 2008 17:16:53 +0000

Hi Mary, welcome! Since no one’s answered, go ask your question on some of the more active threads on this board:
http://blog.geekwithfibroids.com/2007/02/15/trying-for-pregnancy-ttc-after-your-fibroid-procedure-abdominal-myomectomy/
(I understand you haven’t had a procedure done yet, but these women can tell you how long they ttc before resorting to surgery)

and then there’s:
http://blog.geekwithfibroids.com/2006/11/30/is-anyone-having-problems-with-uterine-fibroid-pain-during-pregnancy/

This one isn’t too scare you, but just to give you more info. Clearly there are women out there who have conceived with fibroids, sometimes they knew about them, others they discovered when they went for a babu ultrasound or when they had pain.

and read up here (although there aren’t a lot of posts)
http://blog.geekwithfibroids.com/2006/10/26/is-anyone-having-fertility-issues-because-of-uterine-fibroid-tumors/

It seems that if you’re having so many symptoms, it might be a good idea to just have it removed! But that’s a decision you’ll have to make after reading up on all the options. Best!

By: mary borg

mary borg — Wed, 05 Nov 2008 04:53:53 +0000

im 30 just married n childless. i ve got an 8 cm fibroid. can i still get pregnant? im scared! i ve got most symptoms. swelled abdomen, backpain and need to urinate every 15mins. please help