[Note: This forum became so full of comments that I created a second thread. Please see "How are you feeling after your Abdominal Myomectom? (part 2)" and post your comments there.]
A couple of contributors here have firsthand knowledge of this procedure so I’ll include a few passages and then open the floor. Click the links to view the entire comment.
fibroid free: 5 weeks post abdominal myomectomy..was feeling better except I was having this burning pain around my navel and down the left side of my abdomin for the last week
fibroid free: Keep an eye on your tempature the first few days. Mine was up a bit first night or 2 but I was on Cirpo antibiotics for 1 week. One week follow up doc appointment went well – on track. Things are gong well – have to remind myself not to do to much
One day to go – no more: My first real bout of pain was as I was walking into the house crunched over in pain, my friend standing in the doorway made a comment as she took my arm about this being us in 30 or 40 years. Let’s just say I could NOT stop laughing and I had no pillow or towel on my abs so IT HURT IT HURT.
For more information:
Abdominal Myomectomy (FibroidSecondOpinion.com)
Abdominal Myomectomy (OBGYN.net)
Abdominal Myomectomy (Mayo Clinic)
[Abdominal Myomectomy surgery video (OR-Live.com)]
[Edited to add OR-Live surgery video link. Thanks Val!]
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Related Posts:
How are you feeling after your Abdominal Myomectomy? (part 2)
How are you feeling after your Abdominal Myomectomy? (part 3)
Is anyone having fertility issues because of uterine fibroid tumors?
Has anyone had a postoperative infection after a fibroid procedure?
Has anyone needed a second uterine fibroid surgery or procedure?
September 23, 2006 at 12:16 am
Abdominal Myomectomy Surgery and Recovery
(hope this title makes for a good “goggle hit” to the site LOL
Its informative, silly and humorous (I think so) …Once upon a time in fibroid land……
Ladies….I have a story to tell…better expressed as an experience to share….. its long but I hope its helpful or comforting becuase I coudl not find this level of detail anywhere …so thank you for letting me share….. get your pink fuzzy slippers on and enjoy ( I was gonna suggest a hot or cold cup of tea….nahhhh ..that might send you running to the bathroom ….LOL)
I have posted some AM info on different threads on the site but our fabulous WebMaster has opened a AM forum so I complie and ramble on….
Hopfully Links willl appear if I refer to other posts???…. man I need more geek dum LOL
I had 6 fibroirds removed (the Fab 6 ‘broids) and I am on week 7 recovering from an abdominal myomectomy.
Every womens expericence is and will be different. The most importannt person to talk to and understand YOU and what YOU want is your doctor. Talk to him/her often….
Background
My “broids – 3 subserosal and partially pedunculated (top, left and right -hanging on uterus -ohh looked 5 months preggers (yeah I wish..)/ 2 totally pedunculated (back of uterus pressing on bladder and spine/1 ugly one… Mr Ginch…. submucossal (dang 15 day period maker grrrrr) and a few intramural (didnt “count” those small ones but they left also)…sizes and weights can be found on the fabulous WOULD SOMEONE TELL ME HOW MUCH THESE DANG FIBROID TUMORS WEIGHT post? a delightful light-hearted look at the desperate calculations of women trying to figure out how much these budda belly – pants dont close makers weigh….check it out…
soon a post on fibroid fruit size comparison…..
My MRI was in March 06 and the broids were a lot larger than the orignal grapfruit diagnosis (still growing) by the time I got to surgery (Aug 06). My doc was “leary” of MRI results….not sure the technicians can read them accurately….so he used the MRI as a “guide” to what was inside ..go figure….
Doc and I (me saying no way) decided againt 3 months of Lurpon shotw as that fruit basket of fibroids was coming out in less than 2 month anyway..jsut make the incision 1 more inch bigger OK????
Me??
I still want to have kids….39 been trying for over a year …but once the heavy periods started I KNEW i had broids (mom had them, sisters had them and 2 friend had AM’s…so I didnt wait long_..AM was my only choice to perserve fertility and get the oven baking again)
I suggest finding an experienced Reproductive Endocrinologist (RE) to talk to. “The RE is for those who want to continue with pregnancy after surgery. REs are usually experienced in reproductive surgeries and may have more experience getting your uterus back in the game.” I ended up with a RE Fertility doctor (who would have thought??) but I chose him becase he never had a myomectomy turn into a hystorectomy plus he was highly recommeded, detailed and discussed things with me and answered ALL my questions. EL I am in the Phila area…
The surgery and recovery was worth it all. The pain I experienced over the months dealing with fibroids (I didnt wait long with the fibroid drama) ws MUCH worse than recovering from surgery. I spent 2 weeks a month having a period and another week feeling like crap….worth it for me!!! I can see my feet again, bend to tie my shoes, no more pain and my belly has shrunk!! Life is finally getting back to normal
These are the tests/things I did before I had before surgery:
Made and brought a LIST (my ‘BROID BATTLE LIST empowered me in a time where the fibroids drained my “power, energy and quality of life) of questions to ask the doctor – including asking about the doc credentials and prior surgeries performed
Pat smear -checking for cervical cancer
MRI – getting the size and postion of the broids
CT scan – checking to make sure the broids werent damaging my bladder
Endometrial biopsy – making sure no uterine cancer
vaginal ultrasound (otherwise known as the dildo cam) – back up check for doc to “see” for himself
Blood work – lots of blood work – checking for fertility stuff, infectious diseases (surgeons dont play now a days), any other thigns that may be issue for surgery (ie glucose, anemia)
Gave blood (one pint just in case didnt need to use it)
Took Iron 350 mg daily 4 weelks prior to surgery-I took the Slow release ones they dont cause as much consipation
Meet with ALL the doctors/anesthesia folks to get consent forms signed
Had pre admission testing a few days before surgery
Surgery
2 days prior to surgery ate clear liquids and had “New Litely colon cleanser” – wasnt as bad as I thought.
Had surgery -general anethesia – Had me come into the hospital about 1 1/2 hours prior to surgery for prep stuff (really just sat in the bed watchign tv watching my hubby stress out). about 15 minutes before surgery they rolled me into OR. Put in the hand IV thing and moved me to the surgery table. They had offered somethign to “calm me” prior but I was ok. I was to busy cracking jokes…. Remember putting my arms to the sides and the plasitic thing over my mouth said a prayer – I breathed and woke up in recovery.
Had a urolgist put in urinary stents (to make sure they did not accidently cut the tubes from the bladder to kidney during surgery)/catheter during surgery and had a general surgeon and cancer gyn on stand by in case one of the broids was attached to another organ or there was cancer -They were so big and pressed on so many organs my doc wasnt sure…better safe than sorry – Didnt beed no body else….YEAH!!!
5 hours surgery and 2 hours to recover,
Doc first did a laprocspoic myo (through the belly button) to “look around” and see if he could use that procedure to remove the fibroids but based on the location and size they were too big, ANd you can remove them easier with regulary Myo. … Then the “bikini” incision (about 8-9 inches which looks great already) in order to lift out the uterus and remove the ‘broids.
Once done…. Had a “morphine pump” -I forget the correct name (patinet assisted….) that allowed a steady flow of pain meds and a patient controlled pump (for break through pain). Had that the first night into the morning and then pain killers (sadol I think) through IV then pain meds by mouth (Percocet). Never really felt unbearable pain. Hospital stay – 4 days 3 nights (should this be a Apple Vacation Ad?)
Here are a few post- surgery- in- the -hospital tips….
1) Try to get out of that hospital bed ASAP even if you stand for a while! if you do that they will take the catheter out and you will get your circulation going. Dont wait for the nurse to ask you…ask her/him “Can I get up now?”
bring something for a headache (non aspirin) I got a plain ole headache and plain ole mortin was not on the docs order…
2) I “hovered” for a while to pee…was more comfortable than trying to sit down and get up..(I already had to drag that IV pole with me)…they may make you pee into the “hat” (plastic thing on toilet to collect urine) to continue to measure your urine output for a day or so post catheter. had blood in my uterine (normal) from the stents..
3) when you stand up DONT lean over -try to stand straight up with shoulders back (not quite like ballet class) it hurts less if you dont crunch those non working abdmonial muscles
4) of course have a pillow to press against your belly to cough/laugh (my hubby keep cracking jokes)
4a) they had me do deep breathing exercises 10 really deep abdominal (ouch) breaths every hour with this ” device” (becuase you tend to breath shallow after abdominal surgery) so your chest does not clog (ie pnemonia)
5) bring some EXTRA strength GAS X pills – that will really help with the “truck driver winds”…and will help you feel better…its hard to pass wind when those fart muscles dont work so good. walking helps too. The gas will last for a few weeks as your insides get back to normal
6) If you feel nausea from pain meds (I only got nausea once for a few minutes)- quickest way to help that is a cold towel on the back of your neck (anti nausea meds may not be prescribed by your doc then you have to wait for the nurse to get the doc to allow it and its 2:30 in the morning yada yadda…ice cold towel on back of neck
7) speaking of 2 am – they check your vitals a LOT expecially the first 2 nights….felt like every hour (arent we suppose to be getting sleep??? …)
9) take the pain meds and dont let yourself get in pain – its harder to reduce pain once you are in the cycle of pain. Ask the nurse to give your something (ie crakers, graham crakers) if you can when you take the pain meds – helps the stomach especally if you are on a liquid diet
10) they will probably gives you antibiotics by IV – it can sting a little going in – mine was every 8 hours
11) you may pass clots – its ok especially if they are removing submoccal ‘broids
12) pajams and slippers made me feel better
13) A cold towel on my tummy helped to take the “heat out”
14) My blood pressure went up sometimes (and I have no issue with pressure) depending on my level of pain…its normal or was it the stress of them taking vitals every hour on the hour???LOL
14) Had Clear diet for 3 days then soft foods (didnt really have an appitite anyway)
15) The lemon jello and water ice was like a gourmet meal but the clear broth (beef or chicken) is a salt-less bullion cube…yuck!
Ohh got my period 2 days after surgery (oh yeah that was fun) and well with a submoccal fibroids removed from teh inside of my uterus (Mr Ginch????) boy that was ugly…..heavy bleeding and those liver clots YUCK…..
Home/Recovery week 1-2
Car ride home was well…watch the bumps!!!
Temperature… Mine was up a bit the first night or 2 and I was on antibiotics for 1 week.
Dont pick up anything over 5 lbs
Night sweats…. doc saids if hormones adjusting (ahh yes the estogen pumping broids are gone now)
Took pain meds (percocet or Tylenol 3 or Naproxen cause T3 only made me sleepy didnt kill the pain) sometimes but Motrin was useful also
Drank lots of water and cranberry juice (didnt want the yeasties from the antibiotics)
no driving for typically 2 weeks depending on your doc (I didnt drive for like 3 weeks – but I had no were to go LOL)
limit up and down the stairs
REST REST REST -
lots of gas..painful at times…..remember the GAS X
Could only sleep on my back…sigh
I was tender and sore -abdominal area was num-ish
Tired very easily and it hurt to sit up straigh for long periods due to the incision
After 2 weeks you will start to feel ok.
No baths – showers
Week 3
(hormone adjuestment ladies)
Felt better….a bit more active – reminded myself I just had surgery
Still not lifting things and bending a lot. a bit easier to bend if you HAVE to
could walk for longer periods of time but slow (wait for me…..)
Still tired but felt better..ohh feel sad
Itching at the incisions (healing yeah!!)
belly still numb and felt “pressure” I put on a panty girdel (worreid mom’s suggestion) or wraped an ace bandage around my abdomen for support….ahhhh felt so much better…back too….
back hurts a little as I used those back muscles to compenstate for the lack of abdominal muscles (guess I should have done those palaties classes LOL)
Doc said I was ok to go back to work after 4 weeks WHAT???ARE YOU CRAZY???? Short term disability gave me one more week thankfully….made a BIG difference
Week 4
SUPER TIRED geeze my second period….TSumani at first….but after ONLY 5 days the waves were calm again. Lots of cramps though.. Hadnt had a 5 day peiod in months…Bleed heavy but doc said it will take a few cycles to get to Normal (I was just gald it was only 5 days)
“I’m beginning to feel like I may be on the road to normal..””
Week 5
Did have a pressure feeling and achy. still tired. Had a stabbing /burning pain aroudn my navel and down my left abdomin…… PLEASE see post for DOES ANYBODY HAVE A POST OP INFECTION FROM FIBROID SUGERY…a indepth story of one womens persistace and the every present advice of IF IT DONT FEEL RIGHT IT USUALLY ISNT…..lots of good info and links
Week 6- back to work
Feel ok physically but walking for a long time is still hard – had to whip out the ice pack for the belly
Tired even exausted a lot – still taking vitamins
can finally sleep on my side (with a pillow under my abdomen) YEAH
still achy on the incision if I sit for a longtime – motrin helps
Still not picking up nothing heavy
getting more feeling in the tummy – numness is sort of going away
still tender if I press on my tummy (still cant were those tight jeans yet but HEY at least I can button/zip them now…..LOL The belly is down )
sigh need to go to the gym or somethign…and do what/?? ok I read that you can go back to strenous exercise after 6 -8 weeks….ok and do what???
walk?? walking all slow up and down the halls of work had me driving home all fast to get some ice on my tummy, chewing motrin like pez…ouch
swim – my insion is closed but hurts after kicking my legs in teh pool
tread mill- ahh the halls….
stairclimber/bike? ouch
weights??? what arm weights? cant do legs…that hurts to pull up
…feel like a documentary on the Explorer/nathional Geographic channel for the sloth….
It has gotten better….since the fibroids are gone
Let me know if you have questons…
[Edited by EclecticGeek to add links.]
September 24, 2006 at 2:47 pm
Thanks to Fibroid Free for the advice. I am due for my surgery on Thursday (laparotomy) and I think a lot of your advice will apply for me too! I have made my husband read it as well to prepare him for the weeks ahead of recovery! I was wondering though, did you have any weight gain issues? I have put 7 pounds on over the past few weeks since finding out I was going under the knife (comfort eating – oops) but I am going to be good after the surgery. Do the hormonal changes have any impact?
September 24, 2006 at 4:41 pm
Glad the advice was helpful. Ahh yes its good to prepare the “caretaker” LOL
Weight gain….yes …so frustrating. It seeed that the pounds were chasing me like a bad horror movie once the broids started a life of their own. I gained weight over the last year, weight I was not able to lose….I KNOW the metabolism slows as you get older and I am no spring chicken (39) but this was different. I dieted but the stress and pain of the fibroid realted stuff made it hard (comfort eating and hummm one more glass of wine or beer didnt help….yes I know all to well). The other thing was I was too bone numbing exhaused or always bleeding – so the gym was the last place I wanted to be. Food plus no exercise = WEIGHT gain uggghhh!!!
Also its a vicous cycle – fat (yeah got plenty of that to go around) makes estrogen, excess estrogen (can) lead to fibroids, fibroids in turn make lots of estrogen and estrogen makes the nice “female padding” ……fat.
Yeah right before the surgery I was grabbing all the Oh LORD I AM GOING UNDER THE KNIFE FOODS…..But with 2 days of “fasting” beforehand and 4 days in the hospital with a liquid diet and I ate very lightly that first week I was home (wasnt too hungry anyway) plus drank a lot of water (wasnt drinking the empty yet wonder calories from alcohol)- becuase the whole bowel system is still getting back to normal (things get “Shifted aroudn in there” to quote my nurse LOL) plus the pounds gone from the Fab 6 I dropped about 10 pounds. Then I did good over the last 6 weeks…aware that I woudl be doing absolutly nothing for 5 weeks…so I watched what I ate plus the stress and pain was gone…I have lost about 5 more pounds (not trying) so do I think the estrogen and hormone levels and weight gain are connected?? absoutly….hummmm I think I will do some “research” on this topic.
but yeah the weight gain was like one more curse along with the fibroids….hopefully I can be “fat free” and fibroid free soon LOL.
September 24, 2006 at 6:44 pm
Fibroid Free, thanks so much for sharing. The info is really helpful, I’m going to print it out and be prepare for my doc appointment on thursday! The recovery from AM is soooo long
September 25, 2006 at 12:12 am
Has anyone lost weight after the myomectomy. Mine is scheduled for Oct. 5th and I am hoping to drop some weight. My friend’s mom had a myomectomy and lost allot of weight!
September 25, 2006 at 4:12 pm
El -the recovery is longer but here are some thoughts….depending on why you are having a AM (to preserve fertility?) if that is the case then a AM was recommened (to me at least) as the “better” way to go…a few more weeks to recover BUT doc got ALL the “broids. one issue can be (not always) is potential regrowth of fibroids…some times what is regrowing are small fibroids that were not seen during other procedures. very small/smaller fibroids are much easier to see when you just pull that entire uterus out and get them all in a AM. My Doc was able to get some other ‘broids that were lumped as “additional smaller fibroids” on the MRI during the AM. OK 4-6 weeks vs what 3 for the other?? not a whole lot of time in the big picture ? and it all depends on your age and some people recover faster that others….. If you are going through it – get it done right the first time LOL
Here are a list of the questions I asked my doc:
What is your Background or specialty – Reproductive Endocinoloist/Fertiliy doc/plain GYN/ OBY-GYN /surgeon
How long have you been performing AM’s
How many AM’s have you perfromed
How many AM’s tuned into a hystorectomy?
What are the risk? he told me 95% chance we do AM – 5% that we need to do another type of procedure ( I was like WHAT?? but no other procedure perserves fertility – but he had to give me the WHAT IF)
If it does go to Hysto – do you do a complete Hysto (ovaries et al) or just uterus. OR do you close me up and let me decied for myself?
Do you preform your OWN surgery (I made it clear that I did not want to be a teaching case with medical students and interns hands in my surgery (not that there is anythign wrong with that….that was just me) I even wrote that on my consent form – I also wrote ”
I am having this proceure to preserve my fertilty” (Doc did tell me that he does have ONE Resident that does AM surgery with him). She was a gem during round in the hospital
Explaintion of MRI/ultra sound results and terms (although I already looked up all the terms I did not undertand)
Plan foward – ok so what do we need to do going forward?
Tests that need completing (blood test, endometrial biospies etc)
Other treatments prior to surgery?
Timing for surgery (becuase mine were so big it did not matter when surgery occured ….meaning before or after my period) May want to see if that is an issue as my doc noted in some less complex cases it is better to do the surgery after ovulation /after your period.
Do I need to take iron before hand ?
Do I need to give my own blood for surgery beforehand?
Do you use a cell saver (sometimes used to “clean and recurculate your own blood during surgery – I didnt need it)
How do you stop the fibroids from bleeding when you are removing them? I know some docs’ “tie-off” and some use this stuff they inject that reduces blood flow…I am a geek I wanted to know
Have them explain what they typcially do in surgury – I was told Lap first through Belly button to see if we could do that if not then AM via “bikini incision” vs belly button to pubic cut (verticle). My doc just pulls the uterus out (doc no longer uses the “things/clamps” to hold open the incision…) and removes
We talked about getting pregant post surgery -timing to heal
We talked about the fact I will require a C-section to have kids (no big deal for me as long as I can get preggers and get them here)
Potential complications?
Alternate procedures if there are problems
Attachement to other organs (this the doc actually brought up)
Who else is involved?
Doc
anetheisa
Urologist
other doctors on stand by
Recovery time – important with you are on disability from work
Time /Days you will be in hospital
How long is surgery typically in YOUR case
Hope that helps.. That was my EMPOWERMENT LIST…I hope we can continue to add to this list
September 25, 2006 at 4:24 pm
fireanddesir
Good luck with your upcoming surgery …..
I think it all depends on your activity and health during recovery. Some folks dont feel well and when they dont feel good they dont eat -Some (like myself) eat when we dont feel well…Sometimes women lose weight it there are complications with healing…
I did lose some weight post AM (week 7 now) as I was aware that I would be sitting aroudn for a while doign nothign. But I am beign VERY cautious about my recovery ’cause well I want to have kids and the clock has Tuck and I cant afford to mess anythign up now. Some folks may be up and back to the gym in 4-6 weeks…Me I think I am more like the 8 weeks.
Remember it takes 3 months to totally heal (stiches, muscles and all inside) Oh the outside the incison heals up fast BUT good nutrition is very important in the healing process. So to diet right after surgery – I would ask your doc about that and get their thoughts…
I personally continued to take my multi vitamin and added extra Vit E and C vitamins during recovery
September 26, 2006 at 2:01 pm
Tks fibriod free for all the info, I’m in week 3 of recovery, had 3 big fib removed and a bunch of little ones, I’m 37 and hoping to have kids soon so I’ve been also very carefull about my recovery. I’m planning to go back to work next week. I’m walking a few blocks every day but resting a lot during the whole day as well, still have some weird feeling around the incision. About loosing wait I lost about 5 pounds. Doctor told me as well, no gym or weights for 6 wks, and after 2 weeks said to go to 1/2 my normal activities and go increasing as I feel like it, though I’ve been very carefull since I want every thing inside (where I can not see ) to heal well.
September 26, 2006 at 3:43 pm
Hi Ele,
Glad the info is useful and hope your recovery is going well.
Just remember to take it easy….dont wanna pull anything in there and have potential scar tissue anywhere….
I am back to work and I guess I am just a woose….sitting for long periods still make me kinda sore and walking a lot too, I feel it if I pick up to much really heavy stuff..(ie went food shopping with lots of bags) …I feel “sore inside a little’ if that makes sense…. My incision feels ok…but right above the incision ..feels weird….actually I dont feel anything there…even when I put an ice pack or heating pad on that area …felt nothing…nerves have to grow back I guess….
My doc is sending me (after next menstral cycle – that will be #2) to have an Hysterosalpingogram (HSG) just to make sure everythign went fine during surgery and there is no scarring or whatever in the uterus, fallopian tubes etc.
actually looking forward to getting back to constant avtivity but I tire pretty easy. My best friend (who had a AM too) said she had the underling tiredness for a couple months…
Like I said in an earlier post…tired of being like a documentary on the Explorer/national Geographic channel for the sloth….
LOL see the picture for the Pale-throated Three-toed Sloth in a Costa Rican rehabilitation center!! there goes my wierd humor again
http://en.wikipedia.org/wiki/Sloth
September 26, 2006 at 3:53 pm
I just wanted to say thank you to all of you for the uplifting and encouraging words, and for sharing your experiences. When facing the scary and unknown it’s nice to know we are not facing it alone. I go for my AM next month, and it will be the first time since birth (32 years ago) that I have been hospitalized. My first stitch ever will be post-surgery, so to say I’ve been scared is a bit of an understatement. I know the docs are professionals – but I am not! Thank you so much for sharing your experiences and reminding me that with time the body and the mind heal.
September 26, 2006 at 3:55 pm
fibroid free:
Finally added the links. Thanks for posting all your juicy details. The question list is great. I’m working on a couple posts about doctors (how to find them, how to screen them, what to ask them) so you know I’ll get you to add some of this over there.
Anne-Marie:
I wish you well with your upcoming surgery. Sending good vibes!!!
EL:
Glad you are equipped and ready for that appointment! Let us know how it goes.
fireanddesir:
Weight gain/weight loss posts are on my list of things to write. I am also an emotional eater and consumed tons because I did not feel well. I am losing now.
Ele:
Happy to see you are in the recovery phase and taking it easy. Best wishes as you move forward!
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I’ll stick my big THANK-YOU in this thread as well. I really appreciate the visits and comments.
September 26, 2006 at 4:12 pm
Seajay45CA,
Glad this helps. You are definitely not alone. I found that out concretely here and it’s a lesson I continue to hold close to my heart. Feel free to comment anytime you have a question, concern, or thought. Take care.
September 27, 2006 at 11:42 am
Tks fibroidfree for reminding me to rest !!!! It’s really important to let all the tissues,muscles, etc inside heal, all the ones we can’t see ! I still feel some pain on one side after standing for a while and some pressure as well, around the incision as you I have no much feelings.
(my incision was closed with kind of a “glue” ??? )I have next doctor appointment in November and should go IVF in early january if all ok, crossing my fingers!! . Hope you fully recover soon, please keep posting your progress.
Hi Seajay45CA, It was my first time sleeping in a hospital as well, if it helps I must say it was a lot better of what I thought, the pain was never worse than a menstrual pain, and very easy to control with all the medications available, I had iv pain medication for the first two days, that will kill the pain in minutes an later was in oral pills for about 5 more days. Hope every thing goes well.
Hi Anne Marie, I was reading your post and if it helps I lost about 5 pounds since surgery and have not gained a single one yet, ??? even though I’ve been resting and eating, I don’t know if the food is going to repair my tissues ????? but reallity is I have not gained any wait. Hope your surgery tomorrow goes well and you recover soon.
September 27, 2006 at 2:50 pm
Ele,
Whew I though I was the only once with the “pressure thing” still tyring to figure that out.?? Glue……I have heard of that to close wounds as well as staples…I had the plain ole stiches and it healed up great .. Yeah we may go the IVF route (doc’s suggestions) due to age (3 months to 40 LOL) (not so much fertility issue) but more for the potential for regrowth of the ‘broids…
Seajay45CA,
I was glad to be under 24 hour care after surgery…every whim and whimpy addressed at the touch of the nurses button LOL. Seriously It will be fine..a couple of days of mindless tv and you will be home recovering. I was able to catch up on all my magazines and books and my room mates (I had two) were in for UFE – they were brought in for what they called “23 hour stay” – once they were up we chatted and what not….sleep…tv…sleep…chat to the nurses….
Anne-Marie:Good luck and God bless – you are soon to join the rank of Fibroids Freedom..
September 28, 2006 at 6:22 pm
Fibroid free,
thanks for your list of questions! I made a list and brought it to my new doc and after he finshed talking I realized he answered almost all my questions without me asking! He also didn’t pressure me one way or the other.
He recommended laprascopic myomectomy (by robotic arms; he is in a booth a bit away! the advantage is that these arms can move 360 degrees as opposed to a more limited range of the tradittional lap arms which would allow him to put in better stitches). Anyone have experience with the robot?? Sounds so cool, too bad I will be out cold while he is roboting… He also mention that AM has its advantages like stronger stitches and getting rid of some tiny ‘broids that may be lurking but much longer recovery….dilemmas….AM or cool robotic LM…..
Seajay45CA: it wil be my very first surgery also and I’m kinda (er really) nervous too!
September 28, 2006 at 7:25 pm
El,
Glad the doc appointment went well. YEAH!!! See thats is a good sign..when the doctor answers all your questions before you can ask them LOL
Check out EclecticGeek’s post on ” Get your fibroids on the dance floor and do the robot” there are a lot of links to this procedure. You can also go to OR-LIVE.com and watch the procedure
well its great to have choices..isnt it??
Getting all the smaller broids (especially this one) and stronger stiches was the reason my doc recommended the AM
LAdies dont be nervous (easy to say huh)..I can say that becuase I was nervous at first when the doc told me surgery…but then I begin to think of surgery as a “new beginning”, the first step to getting back to “normal” and getting on with life. SEEING the AM procedure on OR-LIVE really helped as I knew what was going to happen. I didnt let myself dwell on it and convinced myself to look forward to it…why is it taking so long, cant we move up the date for surgery I found myself saying LOL…do all your research and keep a positive mindset and dont dwell on the surgery….think of the RELIEF!!!!
It woudl be great to hear from someone who “did the robot”
[Edited by EclecticGeek to add links.]
September 30, 2006 at 1:40 pm
Thanks for the robot and OR-LIVE plug.
I’ll only add that OR-LIVE is super. I used it to watch the UFE. That’s how I knew I wanted it even before I started seeing fibroid doctors. I was so impressed that I did a separate post about it:
OR-Live brings fibroid surgery video to your computer via medical webcasts
You can find all types of surgical video at that site.
I agree it would be great to hear from some “disco queen” (LOL) who had a robot procedure. Reading about it is one thing but talking to women who have had it (as well as any other procedure) makes it real.
October 1, 2006 at 6:54 pm
I saw the video on the robot and i think i’m going for it. Will report back after the robot mission. boogie onnnnn
October 3, 2006 at 3:34 pm
Hi every one in this forum, coming back to keep posting my progress. I’m in week #4, went back to work for the first time yesterday but just 1/2 a day, drving very carefully, and after went to dinner, I felt ok, just a little bit of pressure and a very light pain after being seating for 2 hours and a little bit tired by dinner time. The incision seems and feels ok. I have not got back to do any exercise, just walking a little bit around the house, I tried last week to walk more but the pain came back and decided to slow down.
October 3, 2006 at 6:47 pm
Hi Ele,
Welcome back to the “real” LOL world again…… WORD TO THE WISE (as the old saying goes) TAKE IT EASY!!!!….. dont try to do to much to soon…even though you are back to work you are still healing and you dont want to do something/pick up something to heavy etc and pull those insides and make scar tissue (especially since your want to maintain the “oven”). Slow down and continue to pamper yourself (or let others LOL) …rest because when you rest/sleep you heal…. remember 3 months to TOTALY heal…that 4-6 weeks is for statistics and insurance purposes…
I was sooooo glad I got an extra week 5 at home becuase my period started that last week and well….that was like OLD TIMES (just shorter only 5 days – improvement though LOL) … have you gotten your period yet?? Just wondering if it was better, worse, same?? Doc said takes a little while to re-adjust. Is your tummy still numb? I am getting some feeling back but the area above the incision is still numb. Incision healing great. I had to look up about teh “glue” I was intrigued….really cool….
I am week #8 and things are feeling pretty good…still sore here and there and “tummy sleeping” is still a little uncomfortable.. I still “feel” it if I pick up something too heavy…bending is good now LOL – Car ride is much better but if I drive for a long time and hit a lot of bumps…ohh I am sore…Went out Friday with my mom (we walked the stores for a few hours…we both were walking slow so that worked for me LOL) and I then back out on Sat for a few (felt better walking then) Trying to build my energy level back up….after doing absoutly nothing for 2 months I tire easy…. My doc told me no strenous exercise for 6 weeks and no ab exercies for 8 weeks..)darn guess I cant do that ab machine until next week LOL yeah right…) shoot I “feel” my abs just standing up …At least I know they really do exsist under all those layers….(of fat LOL)
Sunday I started feeling crappy…I am like what is this…my uterus hurts!! Did I do to much walking??? Well….the beginngs (I guess) of my second period (actually 3rd but the doc and I agree to disagree LOL). Its VERY light and not usual at all (but like EG said my perception of a period after having liver clots is a bit skewed) probably nothing left in there after the last period..WHICH ended 15 days ago YIKESS!!!! NO!!!! ok breath…. I told myself. Why am I getting a period again… The first period came on day 21 (that was early)….now day 15??? geeze does it ever end??? Called the doctors office (becuase I need to schedule the HSG test on day one of my period for day 7-11-HSG to check the uterus and plumbing to make sure nothing is blocked or scarr tissue has formed) UHHH is it day one or not?? nurse said call back when you have a “real” flow…well day 3 now and I have the same “fake bleeding” really dark brown not really a “flow” Crampy though….Think I will call back and scheule anyway….I can always adjust if it really starts…..sigh…where /when will normal kick into effect?? trying to keep positive!! My sister reminded me that it will all be worth it in the end (hopefully I can get on with having kids after this)
Ele Keep us informed of your progress and put your feet up when you get home from work….!!!
October 4, 2006 at 10:00 pm
I had a large 12cm fibroid removed in June. I went back to work in 2 weeks but ever since my periods have been awful. I have still had heavy bleeding, horrible cramps and lower back pain/ache. My periods are also 10 days and I still have clotting. I thought since I recovered quickly (2 weeks) I would be fine but I am not! An unltrasound recently showed that I have little 2cm ones left but nothing major – no idea what is causing these horrible periods….I might end up in Emergency one night if these pain killers don’t work!
October 5, 2006 at 2:47 pm
Tks again Fibroidfree for the advice, very much needed !!!! Yes. Well I’m still working only for a few hours, yesterday did some shopping walking slowly, and not picking up heavy stuff, I was Ok but felt tired at the end and had a little bit of pain again on my right side, that went away after sitting with my feet up for about 1 hour doing nothing, tk god. I already can feel around the incision and if I press a bit it feels in some area like if I have gotten a punch the day before, like sored inside, not the skin, but nothing heavy, just like a feeling, I got my 1st period in my week #3, it was crampy just as much as before surgery but I’ve had cramps since I was 10 so I don’t think mine is going to totally go away, period was heavy but a litle bit less than before, more liquid, I used to have a lot of “solid stuff” in my period, that did not happened as much. Now I’m on birth control pills, beside my fibroids I had a lot of endometriosis tissue remove, it was all around my appendices (which was removed as well ), so dctr decided to put me on the pill for 3 month, as I mention I’m planning to go IVH in early January and he beleives the pill will keep me clean (prevent any tissue or fibroids from coming back ) since the hormonal activity will be minimal, is a 3 month package without sugar pills, you dont’ stop a week like with regular b-control pills and I’m not supossed to get my period for these 3 months ( I have no objection to that ! )
As of exercise I have not tried any, just walking and like yesterday when shopping, also walking slow. (I’m glad to read you went shopping with your mom, nice to have someone to walk at your pace ! ). My doctor said I could go back to the gym and do 1/2 of what I used to do, but I honestely don’t feel ready. Also said to wait to week # 6 to do any abs, but I don’t plan in taking any chances, like you said fribroid free the oven is more imporant now than keeping the kitchen nice! Please keep posting your progress as you are ahead of me it’s been of great help ! Are you going to go IVF?
Hi Vicky I was reading your post, sorry to hear your periods did not get better, did you have an abdominal myomectomy or was just a laparascopy? Ask you doctor if you may have endometriosal tissues (don’t know if that is the right spelling ) that causes a lot of pain, and I did not know I had it until surgery, I dont think it ever came up in any test. Hope you get better. As of level of exercise, have you been able to go back to normal, if yes, how long did it take you, do you still have any pain from surgery ?
October 5, 2006 at 6:54 pm
Hi Vicky,
I posted to your to your other post but what I said… and the first thing I thought was like Ele – endometriosis (oh boy had THAT removed 10 years ago –ohhh caused REALLY painful periods) OR adenomysis (when the lining goes into the uterine wall and the lining thickens…THAT can also cause heavy bleeding …I have a few tiny ’spots” of that in my uterus…really nothing they can do for it that
Where are the 2 fibroids located?? submucossal (in the uterine lining) becuase if there are in the uterus or protruding into the uterus…you still still have heavy painful period as the uterus will have problems contracting. maybe ask doc about these possible causes or ask about birthcontrol pills to maybe “lessen” the bleeding??
Ele
I go for my HSG next tuesday (to scope out the plumbing) and I have another list of questions for the doctor…..not sure if we are going IVF (he proposed that in our very inital consultation but focused on the surgery first). My concern was the broids growing back before my old butt could conceive (fertility levels, ranges all that other stuff is good but at 39 almost 40 in 3 months…ugggg.. I worry eggs are old..)…..I will bring up the “on pill for 3 months suggestion “(I blogged on the Pill question about how for me I believe the pill keep my Fab 6 broids in check all these years) Shoot with periods every 15-20 days…when CAN I ovulate….
This period is better…not all the clots like before…..but its been so long since I had regular periods….I forget…Thanks for the reassurance …..
October 5, 2006 at 9:09 pm
Hi all….thanks for your responses. I called the DR about the last ultrasound done a few weeks ago and was told I had a few 2cm fibroids (don’t know where and he didn’t mention any other issues)….I am trying to get pregnant so I can’t go on the pill but I am back to normal re: life in general – exercise, work, etc. and was after about 3 weeks. I had the abdominal myomectomy and it was painful to move for about 1.5 weeks then I was able to work while walking a little bit. After a month only my incision hurt once in awhile (moved too fast etc). I feel like I am overanalyzing my periods as my DR said I am fine not to worry and that little fibroids don’t mean anything and won’t cause harm or anything. These little ones had to be left in as they are near my tubes. Ahhh…the joys of fibroids!
October 6, 2006 at 5:02 pm
Hi Vicky,
Well hopefully those littel broids will just go about their merry non-syoptomatic business and let you get on with life LOL.
WOW I envy you …. LOL you are on the “other” side of th bell curve. What I mean is on a prevous post, it was mentioned about the average recovery time for procedures and how poeple fall into categories…fast, medium, slow recovery….and well I am end of week 8 and I still feel “achy” from my AM. I tire oftern and waling for long periods still makes me achy…. I am definitly on the SLOW RECOVERY end of the bell curve. 3 weeks?? WOW…. I had 6 large fibroids removed so I suppose I have a lot more “wholes” in the utreus to heal …LOL
Good luck with conceving…that is my goal as well (well as soon as I can get a normal period)….Overanalzing periods?? I think not or if so…Can I join your club??? I’ve had 3 periods in 45 days….Kill me please!!! this one started light (I got all happy) NOW??? I feel like I am hemorranging and someone is stabbing me with a knife. Luckily I see the Doc on Tuesday.
guess I will gobble a few more excidrins or motrins..
[Edited by EclecticGeek to add link.]
October 8, 2006 at 7:33 pm
Hello all,
I got home a few hours ago after my abdominal myomectomy and I am doing fine. I am a little sore, but I am able to get around. I had surgery on Thursday, Oct 5th and I was able to come home today, because I finally had a BM. I was only in pain after the anesthesia wore off and I was doing great after the pain medication. The hospital staff was great and I actually enjoyed my stay. For those of you who are having it soon, make sure you have someone to help, because you will definitely need it. Anyway, please let me know if any of you have any questions.
October 9, 2006 at 5:20 am
Hi and thanks so much for such informative material! I had an AM (open surgery bikini incision) done in 1999 when I was 31 and unmarried. Now 7 years later, it’s grown again – wherein I have one fundal – sitting pretty on the uterus – about 9 * 7 cm, one in the anterior wall of lower segment near cervix which is 5 * 2 cms and smaller ones measuring 1.5 to 2 cm near this. I got married last year May and have been trying to conceive since then, without any luck. The gyanec lady doc who did it for me in 1999 says I should just go ahead and conceive first. I find that a little difficult to understand considering the fibroids are large and I have not yet conceived. Another doc I consulted last Saturday says I must have them removed as they may cause complications during pregnancy, or if the fundal ones grows too large, my uterus may have to be removed! This doc specialises in laparoscopy and says 90 % it can be done, but reality check will happen once I’m under anesthesia and during endoscopy. My original gyane swears off laparoscopy especially as I had open surgery done before! I am confused! Can anyone help? I live in Chennai, India
October 9, 2006 at 6:41 am
Thank you to evertone who left me good luck messages for my surgery!! I am now on day 11 post-op and doing better everyday. I have a HUGE cut from my belly button down though so I am having some difficulty sitting up for extended periods. Also, really annoyingly I have been having coughing fits which are REALLY painful. I keep feeling like I am going to be pulled apart!! Does anyone have any suggestions of how to deal with this?
October 9, 2006 at 12:48 pm
Ann-Marie,
I am 4 days post-op and I am coughing allot too. I was also wondering what could be done as well, because I don’t want anything to come apart either, LOL.
October 9, 2006 at 5:33 pm
firanddesir,
I know that in the hospital they said to sit up as much as possible to get over the anaesthetic generated coughing and prevent infection but bugs run free at home with my two year old (and my husband for that matter!!)
On your other related posts, how did your weight go after the op?
October 9, 2006 at 6:11 pm
Ann-Marie and fireanddesir:
glad you ladies are over the “hurdle” and on the road to recover!!! YEAH!!!! remember to remind yourself you had major surgery – so dont over do it …..- I found that a towel rolled up tight to press against your belly when you cough helps… if you are coughing a lot…try a little cough supressant cold syrup to lessen the cough…. you wont split LOL but it sure does hurt liek hell…..I would “feel” that cough coming and drink some water..that helped too if you time it right..(and if not that rolle dup towel is useful to wipe up the water you cough out LOL). The cough/laugh pain thing lasted for a while but it does get better…..once your abdominal muscle start to knit back together.
sitting up??? oh that took a LOOOONGGG time for me…a LEAN position was my constant ….sitting up all the way did not work at all..felt like there was 1000 pounds pressing on my incision. I proped some pillow behind me on the sofa or bed and found it easier to get up for a LEAN position rather than laying down on all the way on my back….
good luckwith recovery ….post if you have any more questions
Leela
I had similar fibroids removed in similar area’s (especially the fundal one …LOL sitting pretty that was funny!! THAT one cuased the BIG BELLY look) I tired with no luck to get pregant also and my doctor told me it was due to the fibroids….its not just the position or the amount (I had 6) but that they can interfer with estrogen production that can stop ovulation as well and the fibroids can be pressing on the ovaries or the falliopian tubes….. If there are no eggs releasing ….well you do the math…..
My doctor (who is a fertiility specialist) told me that even IF I got pregnant (my uterus was already the size of 5 months epeically with he fundal fibroid which reach my belly button) there may be no room and could cause complications during pregnany…so I tend to agree with your second opinion.
IF you have the right SKILLED surgeon, it can be done laparoscopically…BUT….. My doc tried (and we agreed before hand) laparoscopic – but….once he got in …thought Abdominal was better …here is why….IF you are looking to conceive, often the abdominal myomectomy (although a longer recovery period) allows the doc to SEE the uterus better and get all the fibroids that may be causing infertility and SEE if there is any scar tissue or adhesins from the first surgery. Also they are able to remove the fibroids and stitch the uterus up better than laparoscopically…you get a better “seal” my doctor told me and the uterus may be stronger during pregnany….
My doc told me…have the surgery then get pregnant..
let us know if you have other questions…
October 9, 2006 at 8:29 pm
Anne-Marie,
I am very swollen right now, but I’m sure it’ll change because I am only 4 days post-op. My boobs are really full and my stomach still resembles that of a pregnant woman. My mother stated that my stomach looks smaller than before. I am getting my appetite back, but I want to be careful and not do any emotional eating.
I tied a scarf around my waist to help with the “heavy feeling”. I am going to invest in an abdominal wrap.
Leela,
I agree with the above comments from Fibroid Free. If I had not had an abdominal myomectomy, the doctors probably would not have found the 15 fibroids and cyst they removed from me and only would have went in looking for the 4 they located previously. I would choose the longer recovery over the risk of miscarriage. It could go either way, because I have two friends who had laparoscopies. One of which delivered her baby via C-section and the other who recently experienced a miscarriage.
October 10, 2006 at 12:56 am
Aah, I haven’t been back in a while…bad internet. I had to laugh when I saw my homecoming quote up top.
Well I’m on week 5 now or almost and most of what Fibroid Free posted as recovery is what I’ve went through. I must say though, I’ve been blaming the night sweats on the Lupron injections and I didn’t even think about the hormones adjusting. Really the night sweats were the worst thing for me post surgery. It’s just so disgusting.
At week 5 I’m just about physically back to normal. My belly is still swollen but it has gone down a bit thank goodness. The area right above the incision is numb. I walked about a mile with our dog today and except for me having to kind of remind him that I couldn’t run I had no complaints. My ab area is the most tender sometimes if I do too much it feels like my uterus is going to fall out – not really a pain or anything, just pressure.
I had a few days where I *forgot* I had surgery and did a few normal things like standing to wash dishes only to have to lie in bed with shooting pains in my uterus. Word of advice – standing in one place for over 10 minutes, not a good thing.
I have not had a period yet so I’m kind of anxious but enjoying the freedom. I did bleed after the surgery for about 3 weeks. Add that with the 3 weeks before the surgery (apparently the Lupron didn’t stop my period but extended it) and yes I’m glad for the reprieve.
Today I spent about 2 hours shopping, came home and rested. No pains. I’m doing better than I thought I would be at this point which is good and bad. Good because, yay, less pain. Bad because I’m fooled into thinking that I am 100% better.
October 10, 2006 at 10:11 am
Anne-Marie and fireanddesir – the abdominal wrap is a good thing. I borrowed one from my sister (who had a c -section) but i found it pressed too tight so I used an ace bandage instead…a wide one and I could adjust the pressure.. Made a world of difference in support…also supported my back (that ached a little from compensating for having no abdominal muscles)
Remember your body will be adjusting hormone levels (all that estrogen pumping material is gone now) so boobs will feel funny, may get night sweats, PMS, feel sad…all hormones adjusting back to normal…
One day to go – no more
Glad your recovery is gogin well and you are getting back to “normal” . 100% is coming…..My husband asked me week 4 what % better I felt I said 60% from surgery….3 weeks later I was STILL 60%….I am at week 9 and I can say the % scale is finally rising….I am at 80% now (still feel achy inside some days, still “feel” it when I bend or lift a lot and STILL tire easy) that and the 10 day period this time…. I swear if I never see another period again I will be gald…LOL ….BUT I am getting abdominal muscles back….!!!now I can work on actually seeing them!!! HA HA AHAH
yeah waking up in a wet pillow…hair sticking to the back of your head (was a long time before I could sleep on my side)….YUCK!! I agree.. disgusting. I used to wake up and take my temperature thinking ahh man infection???? nope…hormones….that has gone away now….dry pillow…YEAH!!!
go for my hysterosalpingogram (HSG) test today to check the interior of the uterus and check to make sure no scarring or adhesions formed on the ovaries and fallipaion tubes from surgery (otherwise know as a fertility check – my sister and I call it “easy bake oven” check).
Gonna see if I can get those fibroid weights this time….
October 10, 2006 at 6:19 pm
Hi everyone !
Fibroid Free, Glad for your that finally got to your HSG date, I can’t wait just to make sure it all went fine, mine is not to Nov, how did it go, was it painfullt? do they give you results right there ? I remember the one I had preop was a bit painfull even though I had taken tylenol extrastreng 1 hour before I’m glad to hear you are feeling a lot better and tks again for all the advise you have given us.
One day to go, I’m in my week # 5 and also feeling a lot better for me week 5 has been a big diff from #4 I feel I can walk more now and the pain seems to be gone, just feel a bit of pressure if I do much, specially long drives, but following Fribroid Free advice I’ve rested a lot, I also had a problem in my week 2 or 3 because I was doing much and pain came back, now I beleive is gone for good, I’ve been able to do short walks and shopping. I’m still have kind of a “belly” or a “bump” above the incision, and flat under the incision, it looks kind of weird, is like if all the fat was left on top and non under, any one? but other than that my incision does not look that bad, I also have to remind myself not to run or jump as I tend to forget to the minut I try!
Ann Marie and Fireanddesir, Glad you are recovering well, just remember to take it easy, and that every day is going to feel better never worse, all you have to do to achieve this is “do nothing”. When I had cough I tried to relax by breathing strong and deep for a while and it helped me, a lot of time coughing is agravated by being nervous and knowing you can’t cough makes it worse. As of standing I also did as Fibroid free, always a couple of pillows (I used the firm ones ) behind my back to make it easy to stand up when I needed to and my aunt gave me this advise, to roll to one side and stand up from the side, the first week I could not since it was kind of hard to roll to one side but by 2nd week that help me anytime I did not have someone next to me to help me to get up, remember to avoid using your abs muscles, use your arms and help from other people. Wish you a prompt recovery !
October 11, 2006 at 12:00 pm
I am having a hard time finding a comfortable way to sleep. I got up last night and slept in a chair, because my back was aching. Any suggestions?
October 11, 2006 at 5:04 pm
Hi Ele – ok so I thought it was jsut me…..(or maybe its just my fat) but it does look like all the fat was left on top and “hangs” over the incision….LOL I think a lot has to do with the “cutting”. Remember the abdominal muscles, nerves and in my case layers of fat were cut … and moved around…guess it takes a while to spread back out or tighten back up??? But good news..week 9 -I can now “suck in” my tummy !! great celebration for small efforts LOL
The HSG test was totally uneventful. I was all prepared (and drugged just in case LOL) becuase my sister said if a tube is blocked it can be painful..very…she knew one of hers was OUCH!!!. I rolled into the x-ray room and they lay you falt on the x-ray table; insert the usual “gator clamp” like in a GYN exam, clean the cervix then doc said to cough and I felt pressure (ulta thin tube being inserted) on the cervix and could feel the dye but it was just pressure…didnt hurt at all…uncomfortable…but ok. It was cool (the geek in me) They had the monitor up so you could see the dye going into the uterus and tubes..cool (geek-dom is alive!!)then they take the x-rays VOILA!! that was it…wow a relief…I sat up and Doc right there (I could already see the screen) explained that everythign looked good and clear – no blockage no scarring or adhesions.
Prior to the test, Doc talked to me about my periods…and well…you have seen my rants about my periods post op….sigh now I know why… I teased Doc and said did you really remove the fibroids? cause the periods are horrific…. Here is why…
In the x-ray, the injected dye shows up as white where ithere are open spaces. I could see the “v” shaped inside if my uterus (for lack of better discription) AND then this big “space” on top of the uterus. THAT was where the buddy belly fibroid was…the uterus is still healing that area (will take another month or so he said to completely heal) and that is what is causing the heavy long periods still. Uterus cant contract properly….that will end once its healed.
Just a testiment that we may be all healed up on the outside and back to work and running crazy but I still saw a big ole hole in my uterus that is healing…no wonder I am still tired and achy so days….nice to get visual confirmation the healing process is on going….
fireanddesir – yeah that was the hard part. I usually sleep on my tummy and well couldnt do that for weeks …laying flat on my back was like a death sentence trying to get up…so I either sat up in bed at a slight inclined position in the bed with pillows behind me OR layed flat on my back (in bed with my legs -from knee down -not just your feet) supported by like 3 pillows underneath or layed on the sofa and put my legs up on the arm rest part. That seemed to relieve the pressure on my back…. sometimes a pillow under your belly helps if you can sleep on your side
as you can see I tried all kinds of ways to get comforatble…its hard at first but it gets better…
[Edited by EclecticGeek to add link. Sorry, I couldn't resist.]
October 11, 2006 at 9:04 pm
Fibroid Free, I’m hapy to hear it all went well with the HSG, what a releive for you, oven, as you call it, is healing well. It makes a lot of sense what your doctor explained about the uterus not being able to contract well, I hope when I go back to my periods there’ll be no pain !
Fireanddesir, I also had a lot of trouble sleeping at the beginning, even though I”m a back sleeper, but I had a lot of back pain due to the fact I could not move much, what helped me was putting 3 pillows behind my back that way instead of laying flat I was laying the same as in the hospital bed that I had 1/2 way up, it was a lot of help for my back and as fibroid free said a lot easy to stand up. Hope this help!
October 11, 2006 at 10:06 pm
I took the large pillows off my sofa and I am going to try them tonight. Thanks to everyone for the advice.
October 13, 2006 at 4:38 pm
An update on how I’m doing – I’m in week#6 , feel better, still get tired if I do too much, and I get feeling of heaviness in the ab area if I stand for too long, I was able to go shopping today for 3 hours, fine, my belly now feels kind of sore but other than that I’m feeling much better. Still have kind of bump on top of the incision and flat under the incision ??? I can walk now at a better pace, though I’m trying to walk slower than usual. I can sleep on my side for upto a couple of hours. If any one has any questions that I can help out of my experience please let me know.
October 13, 2006 at 7:34 pm
Wow! I appreciate the comments. This is a great thread. Not much I can add. You all are the experts.
El:
Thanks for being the robot “disco queen”. That’s exciting!
Ele:
Glad you are feeling better. Thanks for keeping us updated.
fibroid free:
Seems like we should call you Scout. You’ve “been there, done that” with all the AM issues. Which T-shirt are you wearing?
Vicky:
Sorry your period was so painful. I’m glad you spoke with your doctor and sound more upbeat.
fireanddesir:
Good to hear that you made it through your AM okay. Hope you are sleeping better.
Leela:
You’ve received good advice here. I have a post up about needing a second fibroid surgery. Feel free to leave comments there as well.
Has anyone needed a second uterine fibroid surgery or procedure?
Ann-Marie:
Happy to hear you made it through your surgery okay, too. I hope the coughing is improving.
One more day to go – no more:
My bleeding also didn’t stop with Lupron. It is good to get a break from that. You sound like you’re doing well. Yay!
——————–
Just a note. I’ve created a Fibroid Forum at Oprah.com. I’m getting so many comments on this site that I thought it would be helpful to have a more “traditional” forum as an option. That way, you can start your own threads and reply directly to posts. It’s just an option. Please feel free to continue to comment here. For more information, see this post that lists the benefits:
I started a Fibroid Discussion Forum at Oprah.com!
October 14, 2006 at 5:29 pm
Hi,
I really want to say a big thank you to all of you on this site. I just found out that I have 2 very large fibroids and I have to have surgery. Just like some of you, I have never had to stay the night in the hospital…very scary thinking about what could go wrong. It’s nice to see all of your recoveries. I do have one problem, my doctor has zero compassion. She said this is what you have and this is what we need to do. I asked questions but her answers were very short and matter of fact…explained nothing to me. So, I’m glad to have a list of things to ask the “New” doctor. Thank you!
October 15, 2006 at 10:10 am
Hi Kimberkey,
Welcome to the website and to the AM forum. Please if you have any quesiotns, ask and you will get an anser on this site…..even the little things….
I also think its very importatn to have a doc that you are comfortable with. My doc was a bit “analytical” at first…no nonsense but SKILLED very SKILLED (I found that out after asking all the question). he woudl listen and explain and detail all the options (even those I didnt want to hear) but in the end it was is compassion that you need to make you feel better….I got pissed at him a couple of times in the office visit and let him know….then I told him he needed to improve his bed side mannor (yes ….as they were rolling me to the OR room). He laughs about that now (even the nurses in the hospital were “shocked” that my doc was laughign/smiling with me)….I think people are not comforatble with telling a doctor …are you not getting it? why are you so cold and uncaring? and more on….I believe in moving on form a stupid cold doctor – BELIEVE YOU ME!! but I will also tell that doc what they need to improve on before I roll out of their office…..it aint your job…but boy so many doc’s need classes on compassion!!
October 15, 2006 at 10:43 am
Val – I hop you are checking this out…I touched on the topic of pre-OR in post #1 but I can provide my own periosnal experince in more detail. Yours may be different..here we go…
arrived at the hospital in the monring aroud 10:30 (you can bring someone with you) went to the short procedure floor (ok surgery was 5 hours….that is short??) anyway….
checked in with the nurse
had to pee for the 1000th time that morning
they had me change into the wonder gown and sit in the bed…la de
nurse came aroudn and asked a few questions (consent stuff)
nurse came around and check my pressure (high or couse…I was a bit nervous)
turn on the little tv and talked with Hubby(who was trying to be cool…I coudl see how nervous he was) until about 12-ish
I know in some surgeries they offer you something to “calm” you beforehand while you wait….or you can ask for it…I was ok…it you are not ask for somethign….!!!!
FINALLY doc came in at 12;30 ( late looking for consent forms LOL)
Nurse gave me the “blue hat and boodies” to match my gown so chique. Doc told hubby surgery should be about 5 hours and that would come out and let him know everythign was ok..will you be here?? Yes… waved goodbye/kiss to hubby and they rolled me to surgery
They rolled me to the hallway right outside the OR room…(geek that I am – I am looking all aroudn – humm yup says my name on the OR door guess I am going there…time….yup that is me…late but not my fault…..been here since 10:30 LOL )
A lot of noise and busy busy busy back there….
I saw the OR nurses going in and out getting thigns ready….doc was talking with them (he was besides my bed – I teased him that he must have ben on vacation or the surgery woudl have been earlier…yeah he had been- we chatted LOL)
There I met the smily face of the Anesteologist who numbed my hand and put the IV port into the back of my hand for OR IV’s(didnt hurt, it stung a little). She also put a port into my forearm (for the IV’s post surgery) – HOw do I know what those were for? I asked…LOL
They rolled me into the OR room (kinda cold of course)….and I skooted off the rolling bed onto the OR table
They asked me to slide down a bit and put my arms out to the sides (ok after they had to find the arm things to attach to the table)
OR nurve put a blanket over me and my doc said are we ready yet??
Anesteologist said when I put her to sleep we will be ready…I laughed.
They put the plastic cup breath thing over my mouth said a prayer and woke up in recovery room 6 hours later
the surgery was 5 hours recovery was almost 2 hours.
All I remember in recovery (no one allowed back) was waking up and the nurse was fiddling with the morphine pump and explaining how I coudl push the button and get more drugs…was I cold…yes and another blanket appeared on him….warm was waht I remember…no pain …..then I woke up again and wondered what time is it..and luckly there was a clock in view..7:30 pm…WOW I thought… that was long…….I rememebr trying to ask where hubby was but nothing woudl come out my mouth….he ’s here I know…
then te nurse woke me and keep talking and asking questions – that brought me out of the foggy zone….
it was not a bad experince going into OR at all for me….
October 15, 2006 at 3:13 pm
Mucho thanks for the details! I know everyone will experience something different, however, no one knows better what to expect than those who have lived through it. I am taking notes and putting together a “to do” list before surgery and a list of things to take to the hospital, all based on this site. Trust me, to all those considering surgery, the little brochure you’ll received on “How To Prepare For Surgery” with tips on recovery, is sorely lacking. I’m finding out more on this site than any other I have googled. Again, thank you so much. I will post my own surgery story and hope that it helps others. Six weeks and counting. I’ve only told a few close friends and family. I joke that I my fibroid is like an unwanted cousin who came for Christmas, but never quite made it to the bus station to go home. Basically, the little “F” has taken up residence in my innards, pays no taxes or the mortgage, eats my food, refuses to excercise, and frankly, if it isn’t going to grow up and take care of me in my old age, it has got to go. Wish me luck!
Ciao for now.
October 16, 2006 at 7:45 am
Val,
Just wanted to add my thoughts about surgery from what I have experienced. I had a “tumour” removed via a vertical laporotomy (which they then redefined as an abdominal myomectomy when they found it was probably a fibroid) 3 weeks ago on Thursday and all the tests they did beforehand (ultrasound,MRI, xrays you name it!!) were all inconclusive as to what it was so although I knew I was going to have surgery I didn’t know what exactly for other than it was huge! The weeks before surgery were pretty nerve wracking and I ate everything in sight! However, I found this site to be one of the most calming places. I am a firm believer that knowledge is power and I think there are enough people on this site with as much information as you could ever need (and I think its fair to say that everyone will go into every gory detail if it makes you feel any better!).
), I tidied, organised….the works!!
I tried to think of everything I needed to do (even down to writing a will and “sorting out” my finances which sounds a bit morbid but made me feel better!). I cleaned as much as I could (with the help from my mum
One of the things I did find useful was to keep a journal. I bought a nice note book and wrote down all my worse fears, hopes, expectations…stuff I couldn’t (wouldn’t?) tell anyone else and it REALLY helped. It helped me to stop bottling things up and stopped me taking everything out on my husband (I’m still blaming my hormones on that one!!)
Take care of yourself
Ann-Marie xx
October 16, 2006 at 12:10 pm
How long does it take the swelling to go down? It’ll be 2 weeks post-op for me this coming Thursday and I still look swollen. I also have the bump above the incision and I can’t wait until I am able to go to the gym again. I am wondering if the bump is more swelling or fat.
October 16, 2006 at 10:10 pm
fireanddesir- I’m in my week #6 and still look swollen on top (same, don’t know if swollen and fat ??? ).About exercising :IThe way I fee now, I could start doing some light weights and walking( I was a regular gym goer), still don’t feel like doing aerobics or jogging, but reallity is I’m just walking around my neighbourhood since I decided to take it easy, want to make sure every thing heals fine inside, like fibroid free said to take care of the “oven” since I will start trying to get pregnant next year. Take good care of yourself, remember it is important to rest and go easy!!!!!
October 16, 2006 at 10:50 pm
Ann-Marie,
Thank you. A journal is a great idea. I never have to time to write in one, so ironically, this surgery and recovery will give me time to do so. I like the idea about organization, so it will be on my “to do” list to get every chore done that I would normally do on my own, but won’t be able to after the surgery. The Will part doesn’t sound so morbid. Last year I had a friend pester me about a Living Trust and I finally did it. It took months of soul searching (and searching for documents) but it was well worth it.
Today, like clockwork, my period made a visit, exactly 14 days after the last one ended. I should just buy stock in Playtex or its parent company.
Ciao!
October 17, 2006 at 2:23 pm
Got my AM on 6th December – seeing the nurse for pre op appt this Thursday. This sites been my piece of sanity for the last 2 months since I’ve found out about my Fibroid (10cm). Also good for keeping my Boyfriend informed about what’s gonna happen. Thanks.
October 17, 2006 at 8:34 pm
Fribroid Free – thank you soooo much for all the helpful advice. I just had my abdominal myomectomy on Friday, Oct. 13th…I know…yikes…lol I had two fibroids and some endo removed. I am only on week 1 and can relate to alot of what you have shared. PAIN, night sweats, backache is the worse, sleeping on back only….UGH!!! I too started my period 2 days after and I have just been miserable…..I also have a swollen hand b/c the med from the IV formed a “knot” in my hand. So now it looks like a blown up balloon and hurts when I put pressure. I am home now, but the hospital stay was right on like you described it. It makes me feel good knowing that I am not alone in this. Thanks again!
October 18, 2006 at 12:03 pm
I’m having my AM on Oct. 30th…nervous, I’m 38, will be 39 in Dec. and would love to have a baby, but I guess we’ll see after this.
October 18, 2006 at 1:53 pm
It’s me again, I guess I’m more nervous than I thought. Has anyone ever been able to get pregnant after having an AM? Also, having the first baby, I’m almost 39. My doctor says I should start trying no earlier than 6 weeks. Anyone….thanks.
Nervously waiting…..
October 18, 2006 at 4:30 pm
Val – glad the info is helpful. I just try to put all I have experieced out there so others can use the info…I can be longwinded sometimes……..LOL
Ann-Marie – oh i like the journal idea….wish I had thought of doign that…well this site became my journal….thank GOD!!
fireanddesir -it took me a while for the swelling to go down. Now the belly reduced LOL but remember you have internal incisions that need to heal and muscles an nerves growingback and that will take time and you will be swollen due to inflamation process (the good imflamation) during the healing process…that will go away also.. took me about 8 weeks and I am still a little tender and “puffy” at week 10
Pixiebell – gald you are getting that peice of mind here- sanity/insanity dont they blend sometimes?? I was so glad also I coudl come here and vent or ask or just read stuff and be silly and laugh about a not funny subject …. stopped me from goign crazy and gave me a whoel different kind of support…from people IN MY SHOES…. LOL
Claudia – Hope you are doing well in the recovery phase…if you have any questions please post them …there is always something new or old to ask again or somethign we havent discussed yet…..welcome to the fibroid free club….need to get you sized for a t-shit…..LOL
Dee – well you have come to the right place. Nervous is OKEY DOKEY here LOL. The reason why the AM is typically performed is to preserve fertility. That is why I had one done. I will be 40 (yikes – breath breath life begin at 40 LOL) in a few months and had tried to get preggers (trying for first also) but it was obviously the fibroids and the fibroid drama stopping that process not infertltiy. My RE (reproductive endocrinologist – hop) said AM was the way to go and the sucess rates for children post AM are “realtivly high considering maternal age”. That is a quote from my doc…LOL- you know how they give you the 2-4% for getting preganat rate after 35 years old …yadd yadd yadd blah blah blah….but he is very confident (and every womens situation may be different) that I wont have trouble getting pregant now since I had the surgery. BUT I know lots of women in their late 30’s and early 40’s getting pregant….the worst thing to do is stress on that….
Prepare for the surgery, recover, heal, rest, rest and rejuivate and THEN move to the next phase..it will come…
If your doc is not – you may want to find a RE in case there are any issues with getting pregnant. My doc is and I picked him becuase he is in the business of “making babies” LOL well helping women and men to do it….
My best friend got pregnant after having an AM so yes you can. Removing the fibroids does a lot of things: regulates the hormone system back to Normal, fibroids can often interfer with ovulation. – keep those “suckers” and you may be bleeding but no ovulation and if you ovulate from only ovary a month (not both) and one is blocked then the chances are reduce…. things to ask the doc about…fertility check – blood work. .get all these things done upfront and out the way…so when surgery is over..VOILA you are ready to go!!
I am week 10 post AM and my doc recommended to wait at least 3 months before even trying for me- and I agree -I still aches some days (it will depend on how big, where located and the amount of fiborids removed). The waiting is to assure you are healed INSIDE…AND you want to make sure you get your energy level back up…..if you look at some of the post….my recommendation is to allow yourself the time to heal properly from major surgery…before you embark on another journey….
the other “Fear” instilled is hurry up and get pregannt or the fibroids wil grow back…now one good thing about the AM is that the doc can SEE all the fiboirds (even the smaller ones) and get those small one too so that will reduce the chance of NEW smaller fibroids growing.
Also….ask you doctor about getting a HSG test post surgery. I posted somewhere about this….but it assures the uterus and fallipiona tubes and ovaires are ok and not blocked or scarred (from surgery) – in an x-ray dye procedure. Doc told me evrythign was fine BUT to wait at least another month before trying as you coulds see I am not completly healed inside yet (now do I try with mother nature assisted with a fertility monitor of course LOL) or go to IVF….still deciding that one…..
yes you can get pregnant. Ele I know is trying also….
so maybe by the time you have surgery and recover we may be living proof!!
Hey keep posting any and all your quesiton or just come and “talk” about beign nervous ….. we are here for you.
October 18, 2006 at 6:19 pm
Dee,
My friend had a myometomy last year and had a baby this year in July. The only thing she mentioned was that she had to have a C-section…that’s about it. You’ll be fine.
October 18, 2006 at 6:26 pm
How long will it be before I am able to drive, after the AM?
October 18, 2006 at 7:20 pm
I have the same concerns as Dee….I am 28 and have no children. I just got married in May and started having all my “problems” in June. I had a lap done on 9/13/06 and then exactly one month later my AM. When in the hospital, the doctor came by to see me and said I was a “mess”. (I also had some endo). He said “If I was 38 with kids, he would have done a hysterectomy”. He said that my husband and I should try as soon as it is safe to get pregnant. He feels that ultimately, I will have to have a hysterectomy sooner than I would like. I am scared…we want children, but everything is happening so fast…
October 18, 2006 at 7:49 pm
Dee, I had my ab myomectomy sept 6 and the main reason : “to get pregnant” I had 3 fiibroids medium size and a few more small, in my first visit to the Fertility Doctor, doctor said your fibroids are the principal cause you are not getting pregnant, so yes, there is a good chance of getting pregnant after having your myomectomy! My doctor also recommended after surgery to wait for 3 months to allow every thing to heal inside. I’m 37 and hoping to get pregnant next year !! It’s great your found this site prior to having your surgery so you can prepare yourself, If you have more questions please ask. Wish you every thing goes well!
October 18, 2006 at 10:38 pm
fireanddesir – doc recommended not driving for 2 weeks. I didnt drive for 3-ish weeks becuase the bumping of the car ride coupled with sitting “straight” in the drivers or passengers seat for an extended time was uncomfortable.
Claudia – Hummmm is your GYN Endocrinologist?? THe reason I ask is they seem to have a bit more compassion with the idea of tryign to have kids. You have to be the ultimate judge of what you want when YOU want it.. I think sometimes doctors “forget” that emotional side….you are dealing with life changes (marriage) and now recovering from major major surgery and …I suppose the “hurry up and have kids now” sets off the panic button … I dont suggest you not head the doctors advice but did your doctor expalin WHY there is the urgent need to start trying to have kids right away and/or why you will have to have a hysterectomy sooner than later?? does the doctor anticiapte scarring or is it fertility? I am not asking you to answer me on these questions, but you may want to ask those of your doctor to understand the “rush”.
I had 6 hugh fibroids removed (2 were grapfuit size the the other three were of various fruit sizes, orange, apple, LOL) – 5 subserosal and 1 submuccosal – a LOT of holes in my uterus LOL and I came out juust fine…mine was a “mess” too my doctor called it a “major case” -5 hours of surgery….but I am ok, uterus is ok and cleared for baby making…. Doc did tell me up front I will have to have a C-section
October 19, 2006 at 7:32 am
I have been told at least 6 weeks for driving because I had an incision from my belly button down (I am assuming the “standard” AM is across at the bikini line) and 3 weeks in I wouldn’t dream of driving…I can just about do short walks!!
. Roll on 4-6 weeks!!!
As for the swelling..it’s weird I have lost big inches but I still feel really swollen so can’t wait until it goes down. Because I have swelling above and at either side of my incision I look like a dressed piece of meat! Don’t think I will ever show my belly off again..but I have invested in some new sexy underwear that covers it up
October 19, 2006 at 9:36 am
First, I just want to thank you guys for responding and calming some of my worries. I just want this done and over with. I’m a very active person so it will be hard to not do anything crazy, but I will, just to take special care of the “oven”. I would so love to have a baby. Never wanted one before, wasn’t with the right person, now I am and this is what I want more than anything. I just hope everything works out for me as I do for you girls that are having the same problem. I think if I already had a child, maybe I wouldn’t mind so much, but I don’t and feel I am more ready than ever…..My doctor told me to start trying after 6 weeks…no earlier…has anyone gotten pregnant right away after having the AM?
October 19, 2006 at 2:56 pm
Sorry, had to share: Went for my pre-op appointment at the hospital today and got asked what I consider the most stupid question of the year…. Are you suffering with Anxiety or anxious about your operation????? mmmmm let me think!!!!! Have also come away with a bruise on the back of my hand the size of a 10p – took 15 minutes to fill 2 phials of blood!!!! Don’t think I’ll be donating blood in a hurry!
October 19, 2006 at 6:20 pm
I’m currently recouperating at home from my AM, which was last Friday. Aside from fatigue and soreness on the sides of my incision, I’m feeling OK – taking short walks around my neighborhood, watching alot of daytime TV, and surfing the net. I’ve been on solid foods since Monday, but I still have not been able to “evacuate” my bowels (as my Doctor puts it so elegently), so I’m feeling really bloated and puffy. My doctor says that right now I’m most susceptible to developing hernias (I thought only men had that problem), so I’m wondering if that’s what the soreness on the sides of my incision is coming from. I have not done any lifting or straining over the past week, but the area is slightly puffy and sore. Have you experience this problem and if yes, did it go away after a few wks of recovery?
October 20, 2006 at 9:33 am
Just venting – One more work week left..yikes….and then home for 6 weeks…I’m nervous….my doctor told me, if she can’t stop the bleeding, she’d have to give me a histerectomy…GOD I hope not….
October 20, 2006 at 7:37 pm
Dee,
Hang in there. Sometimes the doctor simply wants to be up front with all possibilites, i.e. the hysterectomy. It is a scary prospect ESPECIALLY if that is not what you want. My doctor told me the same thing. I’m scheduled for my ab myo. Dec. 8th. He knows that I don’t want a hysterectomy, however, even though I am 47 years and I don’t plan on any children, I told him that if medically there is NO other option, he is not to remove my orvaries or cervix. I don’t anticipate anything bad (like you, GOD I hope not), but I don’t want to be thrown into premature menopause with the loss of my ovaries. Talk to your doc again and find out if she thinks your fibroids will even lead to that kind of bleeding. Have you donated some of your own blood just in case? I am sure others who have gone through this can give better advice than I. I just want you to know I’m pulling for you to get through your surgery safe, but no doubt sore
…and ready to make babies!
October 21, 2006 at 6:25 am
In my experience, my doctor was really up front with the options for my surgery and we talked about all the worst case scenarios. As I am 31 with one child I wanted to rule out a hysterectomy but I let him keep it as an option as I didn’t want to wake up and have to go through it all again if that was what was needed. I had the added problem too that because the fibroid had caused deep vein thrombosis in my legs I was on Warfarin (the blood thinner) so I was an even riskier case for surgery…more chance of not stopping the bleeding or another clot or the same clot travelling to my lungs…etc etc. Luckily for me my surgeon worked hard to save my fertility (although he did have to disconnect one of my fallopian tubes so I will only be at half power should I decide to try for another baby!!) and although whipping the whole lot out would have been his easier option he worked his magic! I am of the firm belief that if you find the right surgeon you should trust them to do what they do best (not that I had a choice of who did it…I’m in the UK!!).
Good luck to every one!!
Ann-Marie x
October 21, 2006 at 1:12 pm
Sammy, I felt the same way in my first week, also had the feeling of having like an hernia or scar tissue on one side, the pain went away around week #5 and I have a little feel, I can’t call pain if I do to much, I would say not to worry if you have not done any lifting you should be fine, also remember no stairs !!! that is important as well. Keep enjoying tv and the net, I’m back to work now and I’m missing those day when resting was my priority. Hope you feel well soon.
October 21, 2006 at 6:22 pm
Firoid free, thank you so much for your advice and “novel” on your myomectomy surgery. I just got home yesterday from an emergency myomectomy. I was schedualed to have one on the 31st, but I had such severe bleeding I went to the ER and they had to perform the surgery that night. Scary, but relieved it’s over!!! I went through much of the same experiences as you.
Anyhow, I had some bleeding and clotting this afternoon and it really started to scare me because of my past bleeding experiences. But, your blog has brought me some comfort in knowing that it’s a normal part of recovery. So, thank you again for sharing!
October 22, 2006 at 5:58 pm
It is such a relief after reading this. I had a AM 2 weeks back and I am also experiencing the swelling above my incision.. Can someone tell me how much time it will take to reduce?
October 23, 2006 at 3:18 pm
Ele and Moonbeam, Thanks for your responses. I have a post-op appointment later this week and will check with my Dr on how long it will take for the swelling to reduce. The pain seems to be subsiding a little and my incision is starting to itch, so those are good signs that healing is taking place. I can’t wait to feel normal again!!!
October 23, 2006 at 4:50 pm
Update of ny recovery : Week # 7 : I’m doing better every day, still have some rare feeling in my ab area if I’m too active, the top of my incision is still swollen, a tiny little bit less than last week, but sill looks like a bump on top and the flat under the incision. As of excersise I can walk, I have more energy, I would say as of energy I’m almost back to normal, but I have not had the courage of taking the risk of doing any weights or stair machine, I feel I’m going to wait more. My incision never itched, that worries me a little, unless the reason is that it was closed as I mentioned before with “some kind of glue”. I’m on the pill, so I do not get my period but I have had some minor cramps, in the days I was supossed to get my period.
I wish all of you that recently had their surgery a prompt recovery and a lot of patience, it is worth to rest and take care of yourself.
October 24, 2006 at 4:33 am
A quick question, I had a few days bleed after my operation but still no real period. I’m sure my body is just in shock but still concerned (nearly 4 weeks post op). I did have one of my fallopian tubes disconnected could this be the cause? Has anyone else had this experience?
October 24, 2006 at 1:06 pm
Gald to hear that eveyone is doing ok…recovering or preparing for surgery….Blessings to all!!
week 11 post op – Well life is mostly back to normal…energy level still low. Still nervous about working out at the gym. I am just doing walking. After about 45 minutes I feel a bit achy inside…so no need to push myself….I am not a member of the no pain no gain club anyway…..a few more weeks is fine by me. Still get weird feeling or aches sometimes (not pain) and if I sit or stand for a very long time…sore…
Dee – my doc told me all the possibles too – and its good they tell you the risk…5% chance it would turn into a hysto; or may have to stop if the bleeding was bad – the only time I cried in the doctors office….
BUT the changes were slim and he agreed. We were both there to preseve fertility …I knew it he knew it….it was just the docs job…..and it went “perfect – better than expected” to quote my doc. So the only power I coudl get (it did make me fell better) was to write on the consent forms (in his office and in the hospital) I AM HAVING THIS SURGERY TO PRESEVE MY FERTILITY> Ask you doctor how many AM he/she has done that have turned in Hysto’s. I asked and my doc said after 20 years…NONE…. so ask….
Sammy – First (I am not doctor) BU I doubt you have a hernia….and yes women do get them…that is why they tell you and really mean it NOT TO LIFT MORE THAN 5-10 POUNDS!!! AND NO UP AND DOWN THE STAIRS TO MUCH. you dont want to pull and form scar tissue. its just the normal pain you will feel through recovery.
I recommend a abdominal wrap or just a big ace bandage around your abdomen to “hold” everything tight. It made me feel better and also supported by back cause so days it felt like that whole area was just hanging out there…..
I had some pain (not a lot) around the incision (turend out to be an infection but that was a whole nother rant) BUT when I went to the doc he told me to press on the side of the incision. I did and ewwwww felt this lump. It was sore…Doc said he ties off all his stiches on the left and it oftern takes longer to hear right there. It may be that or its just a lot goign on in there healing…muslce, nerves, tissue, blood vessels had to regrow in there…there are a lot of stiches remember to hold everything back together so yeah its gonna ache, hurt for a while.
The achy sore puffy incision, the puffy abdomen….all normal and part of recovery….it took me what is today?? oh 11 WEEKS …yes 11 WEEKS and the swelling FINALLY went down in my abdomen….THE OVERHANG (right above the incision) IS FINALLY GONE!!!! I got my Flat stomach back (now if only my tighs would reduce as well LOL). I can lift heavier things now but it still bothers me a little to bend a lot (wont be taking the window air conditions out or raking any leaves this fall for sure). Parts of my abdomen are still numb ….that feeling will come back as well in time doc said. Nerves take long to regenerate…
my Incision didnt itch either but its healing and beginning to fade some….
So be patient…I couldnt wear all my “regular” zip pants of jeans for that matter for a while…stomach went down considerably right after surgery (but then I looked like I was 5 months pregant anyway) with out the broids puffing it out…BUT the swelling and inflammation from the healing process tok a LOT longer
Just poke that belly out there…prop a pillow underneath it, put on some sweat pants and relax…you body will be back to normal soon…just remind yourself YOU HAD MAJOR SURGERY.
Ann- Marie – I goy my period about 3 weeks after so it may be coming soon. I am sure it has more to do with BODY SHOCK….. nurse said it take a few cycles to get back to “normal”
If you are still having problems “evacuating” the system LOL drink lots of a water. rememebr the pain medicine will consitpate you. If you are taking iron, it can consitpate you. Try magnesium citrate….its a natual laxative and also helps to regenerate the mylan sheath of the nerves they cut in there or try a stool softner
October 24, 2006 at 8:09 pm
Fibroid-free, thx much for your sage advice. My “evacuating” problem is now gone as I am back on my normal diet of mostly veges and lean protein. I’m glad to hear that the “overhang” above the incision will go away in due time. My Dr didn’t mention the overhang prior to surgery so I wasn’t prepared for it, and got nervous when I noticed it last week.
I had just purchased a pair of those new skinny jeans right before surgery, so now it looks like they will sit in the closet for awhile. Sweats are wonderful inventions!
October 24, 2006 at 10:11 pm
Fibroid Free -What great news to read your swollen on top of the incision finally went down, that means there is hope, I’m on week 7 so hopefully 4 more weeks! I thought for a while iI wouold stay like this forever. Good to hear you are almost back to normal.
October 25, 2006 at 12:04 pm
Yeah my doc didnt mention the “overhang” either- It was actually my sister who just had a baby (via C-section) that told me it takes a while for it to go away
Yeah getting to normal…if only the 15-20 day periods would give me a break. 2 periods a month???? Help …strike that…KILL me!!!!
Oct 1-9th was my last period……now I am at day 16 and feeling that “crampy-ness” uggggg… sigh what happened to the old days of 28 day tell time by periods…no broids, no drama…. oh well…going through the process…..THIS TO SHALL END!!! LOL
October 25, 2006 at 7:05 pm
Hi All,
I had NO IDEA a website like this existed!! Imagine my surprise to see women going through similar issues as myself.
I had an abdominal myomectomy this past July; my surgeon removed 20 (that’s correct two-zero) fibroids from around my uterus, the largest of which was well…freakin’ huge. My recovery lasted roughly 5 weeks & I returned to work with no problem.
After weeks of trying to get over this blasted surgically induced “overhang” & the numbness around my incision, I’m having a pain that I see a few ladies have discussed experiencing. At the right corner of my incision, I’m having a sharp, burning pain which just started yesterday…some 90 days after my surgery.
Am I still healing? I’m frustrated and in pain. Going to doctor tomorrow, so I’m hoping he doesn’t find anything too horribly wrong, though I’ll admit, I’m freaked out by the sharp pains.
Again, I’m pleased to see that many women who’ve posted here are doing well. Those of you who will be having surgery soon, I wish you well and hope you have the speediest of recoveries.
October 25, 2006 at 7:35 pm
Hi, its me again….I am in week 2 and am having a what feels like really slow recovery. I feel better, but I have somewhat of a lost appetite. Today I was outside talking to my neighbor and fainted. I have never fainted before in my life and was so scared. I called my doc immediately, and they think overall it’s diet. My pain pills made me a little constipated, so my doctor had me take something for that. Theeeeennnn, I had diahrrea…I may have just been dehydrated. I just find myself feeling like this on a daily basis. I get winded just showering sometimes. I have my first post op visit tomorrow. We’ll see…..anyone else experience upset stomach??
October 25, 2006 at 10:03 pm
I went for my first post op doctor’s visit today. She explained that the sharp pains on the sides of the incision are due to the internal incisions. The internal incision can stretch, therefore causing pain. She said that this is normal and I have nothing to worry about. I was also concerned about the overhang and I am glad to hear that it goes away. I am almost 3 weeks post op and I can barely wear any of my pants. I can’t wait for the swelling to go down, because I am getting stretch marks on my stomach……nnnooooooooooooooooooooooooo!
Claudia,
I have also had those no appetite spells, but I eat something small anyway just to keep my blood sugar from dropping too low.
October 26, 2006 at 4:03 am
After my surgery I was told that it takes a good 12 weeks for the inside and outside to recover so even when the outside looks ok and you feel better the rest is still healing. I am not planning to do anything major until after Christmas (I am nearly 4 weeks post-op but I did have the laporotomy as opposed to the standard abdominal myomectomy). My work have kindly given me the option of going back part time when I am well enough so good news there!
As for stretch marks, vitamin E cream was recommended to me. It doesn’t have to be the expensive kind but apparently it works well to reduce scarring and prevents (additional) stretchmarks!
On another note, don’t rush too quickly into getting back into your “normal” clothes. Stupid me wore my jeans the other day and ended up opening my incision up slightly….back to the jogging pants then!!
Ann-Marie x
October 26, 2006 at 2:13 pm
I have one more day left of work, my AM is on Monday (the 30th) at 1:30….I am nervous as hell. I just want this to be over. For it to heal and then to try for a baby. This is my plan…I’ve been reading all your posts and, of course, makes me feel better to know that so many of you feel what I’m feeling. I’m really scared. Can anyone tell me how they felt when they came home from the hospital and what they could do and not do? Thanks a bunch…
October 26, 2006 at 4:34 pm
yo adriene – Yeah isnt this site great!! I love that there is a place to come a post about whatever …. wish you continue FULL recovery…yeah you are still healing….if your doc cant find a cuase for the pain ask to do a urine test( just to check for infection) I am not saying that is the issue but I had sharp pains like 3 weeks post op and it was an infection….just somethign to think about . Come and post any time…the more information we all can provide the better off women with (and without YEHA!!!) fibroids will be
Claudia – your recovery is not slow…its just normal… and our body will STOP us when we dont stop outselves….rememebr to rest rest rest ….week 11 and still my energy level is VERY low…that will take time to restore……remember to eat and drink a lot of fluids (Ice Tea for me was better than trying to drink just a lot of water – Electic Geek and I said Ice Tea/Green Tea/Tea in general hot or cold shoudl be the Fibroid drink LOL) because you need strength and energy from food to build muscle, tissue, nerves, skin…. sleep because your body repairs itself during sleep!!!! I resorted to Oddles of Noodles during appetite loss time – easy to make, easy to eat and digest and carbs for energy. Hope your appointment went well
Fireanddesire – also try coco butter (the hard kind not lotions with coco butter in it) for stretch marks
Anne-Marie – you are like me…I am not rushing it… Sweat pant are still my friend!!LOL
Dee – hey dont stress to much over the weekend….No need to be scared…jsut think of all of us here posting about how we are getting better…that will be you too VERY soon!!! Just think about how you will be done and over with this whole thign soon!!! able to heal and move on to baby making LOL One thing at a time…lets get you FIBROID FREE like so many of us luckily now…..check out the very first post in this forum (my first novelette) thats details what to expect but a few quick tips. God Bless!!
Do sleep and rest a lot
Do not go up and down the stairs a lot
DO NOT PICK UP ANYTHING OVER 5-10 POUNDS
DO NOT PICK UP ANYTHIG OVER 5-10 POUNDS (yes I repeated that)
Do eat
Do drink a lot of fluids (cranberry juice helps with a possible yeast infection if you are sent home with antibiotics . hot tea warms the belly)
Do pamper yourself
Do keep your incision dry
Do be careful leaning back to rinse your hair in the shower
Do wear sweat pants
Do use Gas X pills…..the gas will bloat ya!!
Do use a pillow to hold your stomach to laugh and cough – use those same pillow to prop yourself up at night
Do have some help over the first couple of days
Do expect to possibly be moody (remember your hormone system will be tyring to get back to “normal” including sweating at night YUCK!
Do not try to be a marter – if you hurt take the pain pills
Do not bend a lot
Do not try to put on those tight jeans LOL
Do Not drive
Do Not stand for long periods of time
Do Not act like you didnt have major surgery
Do not apologize ofr hurting, being tired or achy
October 27, 2006 at 8:19 am
Hi there everyone. FibroidFree, I “spoke” to you on the obgyn forum and you gave me your “low down” on what to expect for the AM. Thank you again. it has really been a big help. I didn’t know this website existed. I go in for my AM next Thursday, November 2nd. I am more nervous about the recovery than the actual surgery. I guess nothing will compare to the past 2 1/2 years of dealing with this, though. I am very happy to get this all over and done with and get ready to make some babies.
My question is: what do I need to do to prepare for the surgery? I know my nurses should be telling me this but everyone keeps making me call someone else and you know how that goes. I can’t ever seem to get the right person on the phone. Do I need to do the clear liquids for 48 hours, clean out the bowels, etc? Thanks for everyone’s help. You all are in my thoughts
October 27, 2006 at 9:41 am
Hi everyone – I have just found this website and feel a whole lot better after reading some of the comments that have been posted. I thought I was alone out here with these darn fibroids but that does not seem to be the case!
I am going in for a AM on Tuesday (31st Oct) and i am absolutely TERRIFIED! I am hoping that everything will run smoothly and I have nothing to worry about. I have 2 great doctors doing the surgery, one that was highly recommended by friends/collegues so I hope I am in good hands.
I guess I am also scared of the recovery, how I am going to feel, when I can go back to work etc. Any positive feedback would be much appreciated!
Good luck to all those that have surgeries this next week also…………I don’t know how I am going to do an all liquid diet for a full 24 hrs + prior……think that is going to be really tough!
October 27, 2006 at 10:38 pm
does anyone know of a good doc in the new york area? is it ok to mention a dr name on this site? i have heard that myomectomy is a very specialized surgery and an experienced surgeon is a must. I know this can be a very bloody surgery and can end in a hysteretomy in the wrong hands.
October 28, 2006 at 8:52 am
To Preparing for surgery – I suggest checking with your doctor or nurse again. If they havent given you any specific instructions you should be fine … but then I think they typically suggest not eating after midnight the night beofre surgery due to the anethestia (which is the general advice for any surgery)
FOr recvoery – although it is a process you need to have patience with and allow yourself to heal properly. Honestly – you WILL feel a WHOLE LOT better that second 2 weeks after surgery. My first week home was uneventful becuase I DID NOTHING…LITERLY…and I suggest that to anyone if you can…DO NOTHING….move form the bed to the sofa/chair…with your pillow and sweat pants…eat to keep your strength up (Claudia – HOw are ou feeling??) and drink plenty of fluids, take your vitamins….then let mother nature do the rest of the healing.
I will tell you I am approaching the 3 month mark post surgery and I feel pretty good..belly is down LOL energy level is rising (althoug I still tire easy) and I still have some aches in there. So..I take it easy
Ladies – the surgeries will go fine (look at all the proof of surgery’s gone good on this site). GOod luck to all!
October 28, 2006 at 11:54 am
hey malia
I went to see Dr Ascher-walsh at Mount Sinai who specailizes in- among some other things- fibroids and he appeared to be very knowledgeble and he doesn’t pressure you into any particular type of surgery. http://www.drascher-walsh.com/
I believe Columbia presb also has a good fibroid center, but the docs i wanted to see don’t take my insurance.
http://www.cumc.columbia.edu/dept/obgyn/services/fibroid/index.html
And a plug for Master Geek’s good work, she has a section on how to find a local doc, under the forum section errr [How to find a good local doc]
Good luck.
[Edited by EclecticGeek to shorten link. Thanks for the plug!]
October 28, 2006 at 11:33 pm
Hello! Just wanted to report that I am feeling much better. I saw my doctor on Thurs and he explained his findings. He said that I had two very large tumors (which we already knew) and that I also had endometriosis (which we didn’t know I had). He said that my ovaries were stuck together which probably caused alot of my pain also. As far as my “fainting” episode, it was just that I am still weak. I was also a little dehydrated. I did lose 8 lbs which is not good….I am only 5′ tall and weighed 110 before surgery….which was only 2 weeks ago. I just need to really take it easy. He did an exam on me, and said I was perfect. He said in about 6 months, I should be ok to try to start having children. That thought is still a little overwhelming to me. My husband and I have only been married for 5 months. We do want children, but as I said before everything happened so fast.
Vicky – Good Luck on Tuesday….everything will be fine. The post from Sept. 23rd by Fibroid Free hits the hospital stay and recovery on the head. God Bless. I will be thinking about you.
[Edited by EclecticGeek to add link to Sept. 23rd post by Fibroid Free.]
October 29, 2006 at 4:59 pm
Hi everyone, Its been 2 weeks since my AM and I went to my post-op appointment 2 days ago. I asked my dr about the “overhang” and she said the area surrounding the incision is still healing, thus inflammed. It’ll take a few more weeks for the swelling to go down. Otherwise, she is pleased with my progress, but advised me to take it easy and ease back to my routine slowly. I still get fatigued easily, but with each day I’m feeling stronger.
Vicky, best of luck on Tuesday. I was also very nervous before my surgery (it was Friday Oct 13th!) but 2 weeks has passed and I’m feeling much better than I expected to feel, and ready to move on. It’ll be a great relief to get it past you!
Thanks everyone for your support and your advice!
October 29, 2006 at 7:03 pm
Hi everyone – This is a great site and I wish I’d known about it before I had my AM! (on Oct. 18).
Malia – I wanted first to pass on a quick recommendation about my NYC surgeon, Dr Copperman at Mt Sinai. He is also a reproductive endocrinologist (I had seen him for IVF first – more on that later) and so he’s very motivated and knowledgeable about preserving fertility if you want to try for children later.
I’m 40, married 2 yrs and have known I had fibroids for about 6-7 yrs. Wasn’t worrying about them because my mom had them, including one “grapefruit,” and argued her doctor out of a hysterectomy and hung on, without some bleeding but not much pain till menopause, when they quit bugging her at all. I gradually developed some pain before my period, and fairly heavy bleeding the first day, but I still wasn’t too concerned. Then I saw my RE/surgeon for the first time in March (for fertility: we have some sperm count issues plus my age) and started to worry a little when he said, “My, you really DO have fibroids!” I had 6 or so – I have not gotten the full count yet – one about 6 cm, one about 4.5, and some “grapes.” But, he thought it was worth going ahead and so I went through an IVF cycle, ending in a negative PG test 6 wks ago (we also have 4 leftover embryos frozen). He had warned me that the IVF hormones might make them grow. Turned out, they DID, big time (the biggest one got to be nearly 8 cm), so we scheduled the AM (laparascopy was not as good an option because of their location – subserosal and intramural – as well as number and sizes). Then I’ll try to get preggers with our frozen embryos in February after starting some hormones in January. My doc recommended 3-4 months in between, though I think that depends a partly on how many, what type, and where your fibroids are. He also said he would very likely recommend a C-section for me but wouldn’t be able to tell till he saw exactly what was there and how I healed.
I had a ton of trouble finding out what to expect after the surgery, especially how long I should plan to be off work. The doc said 2 wks and his secretary said 4-6! So I planned for 2+ and told my office I would let them know based on how I felt. But, I think I’m doing better than the average of what people have posted here, probably due to having smaller fibroids than a lot of people. On Wednesday, which was 7 days after surgery and 5 days after coming home, I suddently started hurting a LOT less than I had been – like, I can roll over in bed or on the sofa and I only feel soreness, not real tearing pains like before. I felt even better the next day and stopped taking Percoset, except for one that night and Friday.
Right now I am somewhat sore generally, with a couple of bad spots (I assume these are where the two biggest fibroids came out, but who knows), plus I feel a lot of pulling internally (muscles? thos dissolving stitches that haven’t dissolved yet – does anyone know?) and the scar itself feels very sensitive. The thing I had not REALLY understood in my gut (despite being told) was how much my energy level would be affected. Even now I feel like I’m at about 70-80% of normal at best. I took a half-mile walk with my hubby in our neighborhood and felt moderately tired. (My hubby also had hernia surgery 4 weeks ago, which is another long story – in some ways he is in worse shape than I am because he feels it every time he moves his legs.) I used to walk 2 1/4 miles to work almost every day and think nothing of it. I’ve been lucky enough that I’m actually very comfortable sitting on the sofa, but the thought of sitting at a desk for 8 hours without being able to lie down for a break, plus commuting before and after (by bus, because that would be easier than using the stairs to the subway), seems like too much. The 2 weeks I planned for would have me going back on Wednesday, and I have major doubts about that. I see the doc on Thursday, so I will probably wait till after that and then try going back Monday (wearing pull-on pants or dresses, you bet!). I still have some sick days and lots of vacation for the year – since we cancelled a vacation because of our two surgeries – so if I need to take some days off later to rest, I still can.
Has anyone who had AM for fibroids that were not that big found themselves going back to work after more lik 2-3 weeks, and if so, how did it go?
Becky
October 30, 2006 at 9:50 am
Hi Everyone – thank you so much for all your good wishes. Coming to this site has certainly make me feel more positive about things. I just want this all to be over with.I will post my recovery after I come out of surgery and am well enough. I hope to have the same positive feelings as a lot of you have had.
Malia – it is very important to get a surgeon that you feel comfortable with. I wasn’t satisfied with one so I have asked both my gyneocologist and my fertilty doc to be present. Both have experience in this surgery and have done it many times before.
Best of luck to all that are recovering/have surgeries this week. I will be thinking about us all!
Vicky.
October 30, 2006 at 5:45 pm
Wow. This thread is really growing. I’ve been busy recently but I do read every single comment on this site. To those preparing for surgery and those recovering, I send best wishes and positive vibes. You are all in my thoughts.
I added a related post to the Forum. You’ll find a couple of comments there already (Thanks fibroid free and Becky!) but we can always use others. Stop by when you get a chance.
Is anyone having fertility issues because of uterine fibroid tumors?
Take care.
October 31, 2006 at 12:29 am
Hi everyone! This is going to be real quick, because I should be studying, but I’ve been reading over the thread (a lot at the beginning, but kind of skimming near the end). It almost brought tears to my eyes…it feels so good to know that the things I’m going through…I’m not alone on!
I had my AM on 23 Oct (one week “anniversary” today, yeah!) and some of the things I’ve been feeling and was worried about were answered here (mainly, the night sweats – I thought it was just because I lay in one spot, on my back, all night! – and the numbness over the incision site, which is annoying. my doctor said it was normal, though, so… also, I have the “overhang” that someone else mentioned, but I didn’t get a chance to read her original post; when I have time, I’ll skim for it).
Anyway, a quick word of advice – walk when you can. It’s helped me tremendously! I don’t do much, which for me is very hard, since I’m in the Army and I’m used to moving around – a lot. I can’t wait to get back to exercising (which surprises me to say!)
And YEAH! I’ve dropped a few pounds since the surgery, which I’m so glad about.
The most amazing part was how quickly I’ve felt much better. The first day after coming home (I only stayed one night – probably should have stayed 2 like they originally said I would, but I really wanted to go home!) was absolutely awful…I thought I was going to die, I was in so much pain. I honestly don’t remember if it was the first night or the second night, but I woke up to go to the bathroom, and I could actually walk without holding on to the walls (so it was probably the 2nd night)! I’ve been improving steadily, but like many have mentioned, I need to remember to take it easy. I don’t do anything stressful, but I have a feeling that because I’m doing increasingly better, I might jump the gun and “think” I’m healed when I’m not. I love the analogy that someone….(just looked but couldn’t find it)…made about keeping the oven clean and not worrying about the kitchen.
What ALL this was meant to say was, “thanks.” Post after post, I found myself nodding in agreement because I could relate. So thank you all, and I’ll be posting again soon!
October 31, 2006 at 11:20 am
Its not so much the size of the fibroids its the type of surgery that really dictates your return to work time (which IS VERY different than recovery time) Here is what I mean….. If you had a laproscopic myomectomy I believe the recovery CAN be quicker (3 weeks) than if you had Abdominal Myo – its really regardless of the size of the broids -recovery is also from an abdominal incision and cutting through the uterus, skin, muscle, fat and nerves as well.
Typcally docs recommend 4-6 weeks for AM (mine recommeded four and there was NO WAY I could have gone back -it still hurt to drive for long periods). My short term disablity Insurance recommended 5 weeks so he went with 5. I’ll tell ya- I went back after 5 weeks only to feel like crap everyday at work.
Remember -Back to work time (in my opinoin is the insurance companies) Recovery is for internal healing and it can take up to 3 months or longer to FULLY heal. Now we all cant take THAT kind of time off….but… I suggest if you have time -take it to heal properly (BEcky- also so you CAN do IVF in Jan/Feb. without any issues. My RE told me without a doubt that I woudl require a C-section delivery after this surgery (no big deal for me) and to WAIT 3 months absolutly before tryign to get pregannat or trying IVF. ) You want your uterus to be strong and healed. My HSG had showed after 2 months I was still not completly healed in there.
THe pulling you feel is probably your abdominal muslces and fat ..stiched together which is why they recommned taking it easy, no lifting etc. Remember some of the abdominal muscles were cut so they are healing and the more you move the more scar tissue you can form..plus all the inflammation in there. I still get a little “pull” sometimes if I overdo it after 3 months.
Your enegy level will increase…took me a while…pretty much back to normal now…some days still wear me out if I am runnign aroudn at lot in and out of the car and standing for a long long long time..
Kim – glad recvoery is going well for ya! keep resting
October 31, 2006 at 6:26 pm
Hi ladies!
It has been great for me to read about your experiences. I’ve lived with fibroids for the last 3 years during that time they have grown 3x their size. Currently I am six months gestation and one of the larger ‘buggers’ has started to degenerate (not enough blood for the sucker!). Anyhoo, I’m scheduled for surgery Dec. 19th and I’m really scared…but I will be glad to have these out of me.
I was wondering if any of you are singers? I am a singer with a semi-promising future as a singer. I wish to audition for a graduate school program in March and wondered if I would be up and running by then. I was on a singers forum where one of the singers said she was able to start singing at week 4. Anyway, if anyone has any info on singing post AM surgery please let me know!
thanks!
October 31, 2006 at 6:46 pm
just want to share a highly skilled fibroid surgeon …
james grifo, nyu medical center
November 1, 2006 at 5:00 pm
Hi,
I just started week #4 today – Just seem to feel a little more sore left of my insertion vs the right…I have been pretty careful but not too sure if I could have pulled something in my sleep.. Anyone else with this?
November 2, 2006 at 3:38 am
Hi ladies, I am a 33 year old woman. and had fibroids. I lost my first pregnacy with twins at 20 weeks in 2005. doctors told me I fibroids but never said not to try again. so we did, Lost my 2nd pregnancy at 23 weeks with a single birth. Went to another doctor after that and they said they had to be removed. I had 3. one was small 2 cm but I had 2 at 7 cm. I had my surgery in July of this year and we are trying again. so far no luck. I had no problems getting pregnant before, Has anyone had a hard time getting pregant after the surgery?
November 2, 2006 at 3:07 pm
As always – I have food for thought……….
Sina -Glad the experiences are helpful…no need to be scared….it will turn out fine and you will be up and singing in no time…Maybe we can get you to sing an official fibroid anthem?? LOL (sorry there goes my wierd humor again – thought about the offical Fibroid T-shirt and beveage as well from another post) March – that will be 3 months to heal so you should be ok healing wise (not sure about the singing- guess it depends on the whole abdominal wind breathing thing (that is geek talk to describe the beauty of how singers sing from their “abdomen”) Will be intersting to see if anyone shares that experience…..
moonbeam – not sure if this is it – that LEFTY pain may be something like:
you are getting more nerves back (nerves are regenerating) so you feel more now??
my doc told me he “knotts” all his incisoins on the left and it takes longer to heal there
which side of the bed do you get out of? left or right?? you may be ‘workin’ the left side more????
Hi Andrea – Just to let ya know there is a post thread ["Is anyone havign fertility problems becuase of uterine fibroids"] – post there to..you may get comments/answers there also?? I am just starting to try to conceive post surgery (aug 06) so will see (I am 40 so I invested in a fertiltiy monitor LOL ). I do know that my doc (fertiltiy doc) told me that I should wait at least 3 months (right at the mark this week) to begin to try. That time will allow the uterus to COMPLETELY heal. Not sure where your fibriods were removed from but I had (6 total ) one submucosaal (into the uterine cavity) and that area is STILL healing. My Doc said prior to 3 months surgery post dont bother to try – my chances (and everyone is different) wont be good because of the healing process and hormones readjustment and your uterus bening “receptive” and it may take a while to ovulate again after the surgery (try a ovulation kit to see if you are ovulating). So I waited….. Location of the fibroids and where you are healing my be a reason. Stress may be a BIG factor….the whole fibroid surgery /healing process is stressful.
I also posted some information about preganany rates post AM….the rate look good!!Its probably just that your body is still healing from surgery………….
Hope that give soem food for thought
[Edited by EclecticGeek to add link.]
November 2, 2006 at 3:20 pm
WOW!!!! Hey look! – the 100th Post – who would of thought there would be so many post in the AM forum??
THANKS ECLECTIC GEEK
!!!!!!!
Glad the information continues to flow and we see new posters, new questions, new experiences and new answers all the time!!
November 2, 2006 at 6:25 pm
malia:
Thanks. You can also add your doctor here:
How do I find a good local fibroid doctor?
fibroid free:
You’re welcome. Now that I’ve posted this, it’s 101 – tied with the uterine fibroid symptom post. To put this in perspective, the symptom post has been up since June. Thanks for your help and thanks everyone for your comments!
November 4, 2006 at 12:53 pm
Hi everyone – I have just gone online for the first time since my surgery this past Tuesday. I had an AM and it turned out that I only had one fibroid that was attached to the outside of my uterus. It was large……….20cm in diameter and it had distorted my uterus and tubes to the lower left of my abdomin, pushing on my bladder,kidneys and other organs. Although I am still feeling sore and a little drousy, I feel a WHOLE lot better. Less pressure in my abdomin, not peeing all the time (especially in the middle of the night) and no pain in my lower back (apart from the obvious bruising that the surgery caused). It certainly is a releif and now we will start for children. I am only 32 so my doctor is hopeful that we should be able to get pregannt in 3-6 months. Everything just seemed to “pop” back into it’s place (uterus etc) when they took that beast of a fibroid out. Darn things…………..I am happy to say, like many of you…..I am fibroid free and loving every minute of it!! Thank you for all the support. This certainly was a scary time for me and my family. This site helped me get through the past couple of weeks.
November 4, 2006 at 9:36 pm
Well ladies, here I am at what should be one week post surgery. Instead, the night before my surgery my doctor had the flu. While I am very grateful she knew better than to attempt surgery, I would have felt much better had someone thought to call me before I left for the hospital. As many of you know, there are just a few emotions rampaging on the day of surgery (not to mention the days before). Last Thursday was not easy. It took about 2 days to come down off the rollercoaster and get back into pre-op mode. Everything was followed by the thought of “I shouldn’t even be here right now. I’m supposed to be in the hospital.” So now we’re set for next Thursday as my big day. Lesson learned: I will call the hospital before leaving home to make sure I’m supposed to be there. I felt awful for the admitting ladies who looked terrified to see me walk in.
I continue to draw encouragement from your posts. I praise God that I now have internet at home so I can check in on everyone while I’m recouping. Here’s to my next post coming post-op! God bless and keep and keep you all.
November 5, 2006 at 9:17 pm
Hey Vicky – gald everythign went well !!! WOW that was a woper of a broid! gald the BREAST is gone LOL Wish you the best with your recovery. Remember to take it easy so you can heal for the next phase – Babies
Sejay45ca – i would have just died!! geeze how terrible ….I know – you get that “game face” on ready to go , arrive at the hospital brave…then POOF sorry ..what no one called you???? Well they (who ever THEY is) say everythign happens for a reason…so there must have been a reason that it was not your time for surgery….Look forward to hearing from you on the “Other side – the fibroid free side”
November 6, 2006 at 10:12 pm
Sejay:
I, too, keep thinking I’ll be set for surgery, only to have my doctor call the night before and cancel. I am sure that once you got your head wrapped around the idea of the actual cutting (yuck) and the recovery, it was like being hit in the face with a wet towel when “THE” date was changed. Well, I am just 5 weeks from surgery – December 8th. I never thought November would get here so soon. When I made thecdecision to have surgery it was back in August and I felt like I had all the time in the world to prepare. Oh, was I wrong. I teach school so it has been months of preparing my students for an early final without letting on why. I have so much left to get done.
I was scheduled to donate the first of two units of blood this Wednesday, but the hospital called and asked that I reschedule. They are having…a blood drive. So, I will use my one day off – Veteran’s Day – to get the first unit out of the way. I’m pooped, but I haven’t take a single day off yet.
I have had some bright moments. Weird, but I bought one of those TV trays advertised on informercials; the type that slides right up to you as sit on the couch or in a chair. Groovy. I love this thing:)
I hope it really helps during recovery.
Not so bright moment: I keep forgetting to call a few recommended substitutes for the 13 days I’ll be out. Tomorrow. Always, tomorrow.
Ciao!
November 7, 2006 at 12:23 am
Hi. I’ve been checking out this website for a couple of weeks now and am really grateful to have found it. It’s great to read everyone’s posts. I feel less alone with my annoying symptoms that are taking over my life. Thanks to everyone!
I have my AM scheduled for Nov 14th and I am very nervous about it. Among my fears are that I’m scared I didn’t pick the right doctor (my choices were limited because my insurance only covers one particular hospital.) I initially went to another hospital that has a fibroid center and the MD wanted me to have an MRI. My current doctor didn’t think I needed one so I just had a sonogram. When I met with her today and asked about the fibroids she said it was hard to tell exactly how many there were and their sizes. Now I find myself worrying that the fact that she didn’t want an MRI means she’s not as good. Also, she only does surgery once a month and I worry that she doesn’t do surgeries enough. On the other hand I liked her personality, she seemed understanding. I didn’t ask her how many AMs she has done, but I asked something lame, something like “So have you done a lot of these?” (To which she said yes.) I also don’t have the energy or patience to begin looking for another doctor. The whole process has been very drawn out – it took me 5 weeks to get the first appointment at the other hospital and 4 weeks to see her.
These are only one sampling of my worries!
November 7, 2006 at 12:25 am
OOps I meant Dec 14!
November 9, 2006 at 7:13 am
I too should have been home and recovering by now!!!! Originally was given the week commencing 23rd October as my date, which then moved to 6th December (surgeon decided to take November off!!!) now I’m looking at 13th December and my second week of recovery over Xmas
Looking forward to a new fibroid free start to 2007 though!!!
November 9, 2006 at 8:41 am
It is well worth the wait..after all wouldn’t you prefer a rested surgeon rather than one too busy thinking of his holiday?!!!
I am in week 6 post surgery now and the difference in my life is phenominal. I am not quite back up to 100% (about 80 and rising!!) but I feel better every day.
I’m hoping 2007 will be a better year than this one too!!!
November 9, 2006 at 3:32 pm
Thanks all for all your experiences. I am going to get a 7cm fibroid (and any hiding under it) out on Nov 15. I did have an embolization in 2001 which shrunk it a little. Have had the broid since 1995 (or earlier) but in 1999 with my son’s pregnancy it grew to 11cm and shrunk a bit post partum. Of course had to have a c-section because ds could not move in there because of the broid. will be back to the board when I get back from the hospital.
I am in Canada.
November 9, 2006 at 3:37 pm
We have been trying to get pregnant for the last 6 years (second) only to find out by a hysterosonogram earlier this year that the broid is totally blocking the sperm reaching the tubes.
How long is it necessary to wait to try and conceive after the AB?
At one point I was told a year but now I am hearing 4 months.
However have been told that any future pregnancies will have to be C-sections.
November 9, 2006 at 3:46 pm
Also I spoke to my family doctor (not surgeon) and he said I should be able to do my dance workout routine and abs after 6 weeks ………just saw that fibroidfree said after 11 weeks she still has not gone to the gym onlywalking YIKES!
November 10, 2006 at 5:44 am
This is the best site ever!! I am 29 years old and I am scheduled to have a AM on Nov 30. I am engaged, no kids, and scared to pieces in regards to what is going to happen. This site has been informative, and a friend for me when my mind starts playing those little tricks on me. I def want kids and do intend on having them. My post op is on the 22nd of Nov and I feel, lets just say, educated in regards to what questions I should ask and how I am going to be feeling. I couldn’t have found this site at a better time. I did my vaginal ultrasound, a couple of weeks ago and had the worst experience. The person doing the ultrasound (and I know she didn’t mean anything by it) said that she had never seen anything like what she saw on the monitor. I am thinking to myself what?!?! She said, and I quote “There are just too many..there are fibroids on top of fibroids in there. I can’t even measure them all. ” I didn’t even make it to the door before I was in tears. I should mention however, before I left I asked her how everything else looked because she was looking for my ovaries and she said, “You can look at them righ here. The look very happy to me.” So I looked at the screen and they were right there and I then thought to myself ok there is still some hope. To all the ladies on this site, you have helped me through some serious anxiety in regards to this surgery. I have never really been sick a day in my life until about two years ago when I started having problems with these fibroids. I have having my surgery at the Women’s Hospital of Texas. I sure hope I don’t sound like I am rambling..its just feels really good to finally get all of this out. I am from New Orleans and relocated to Houston due to Katrina and it is just my fiancee and I out here. I have a few friends that I have made at work, and my aunt and grandmother live about an hour away. We have stairs in our house and my fiancee works long hours. My question is, will I be ok by myelf at home for the first couple of weeks or should I go and live with my grandma for a couple of weeks. My parents are back in New Orleans and they will be here for the day of the surgery through the weekend. But based on some of the post that I have read, it looks as though I may be in the hospital for about 3-4 days before I can even go home.
I have also gained a lot of weight. How much weight have you guys lost since the surgery. I know the swelling from the surgery is there, but was there any weight period?
November 10, 2006 at 7:31 am
Kiki,
From my experience of AM it was great to have someone around in the initial parts of my recovery. I am from the UK and spent 7 days in hospital so by the time I left I could shower on my own and walk around relatively freely. I did, however, have a laporotomy cut (which is from the belly button down) as opposed to the bikini line cut that most people tend to have so this may have made my recovery slightly longer.
My husband used to lift my breakfast out for me and pour me out cups of milk (I couldn’t lift the whole carton initially without having some discomfort) and made my lunch for me and then he was home to do my dinner. Bless him! He is still doing the majority of the cooking now so it’s great! This was ideal for me as I just spent most of my day on the sofa sleeping! I too had stairs and if you just take it easy and take your time then they don’t pose too much of a problem. Just ensure that you have everything you need for the day downstairs and then only venture up when nature calls (unless you have a downstairs bathroom which would be ideal!)!! Don’t be tempted to do anything else (like the dishes/cleaning) as this would be a BAD move in the early stages.
Don’t get me wrong, the company can be great in the day sometimes but good time alone healing is great. Would your fiance be at the end of the phone ready to come home just in case anything happened? That might be an important fact to consider.
Then again, on the other hand, TLC is fantastic and if you can get it from your grandmother then great!! You just have to weigh up the pros and cons.
With regards to the weight issue my fibroid only weighed less thean 1kg but I had balloonned weight wise before hand. When I was in hospital I lost 13 pounds and now I am round about the same weight I was before this all started (and with a much flatter stomach too!!) If you eat sensibly when you come out of hospital I imagine the weight loss would be much more….I have been eating loads but have rejoined my slimming club and in the 4 months I had been away I had only gained a pound!! Yay!!
Good luck!
November 10, 2006 at 8:46 am
Hi ladies. I am 8 days post op Abdominal Myomectomy and thought I would check in with everyone. Fibroid Free- thanks for all of your suggestions. They were really helpful. Especially buying larger underwear. That was a lifesaver!!!!
Everyday I am feeling better and better. I am getting my strength back every minute and everyday am able to move a bit more and more. By the end of the day, I really can’t move much b/c I am probably doing more walking around than I should during the day, but that’s my personality. i can not sit still.
I am only taking 1 pain pill now usually around 6PM. I was able to come home Saturday from the hospital and my surgery was Thursday. The first time getting out of bed was pure hell. Sorry, I can’t sugar coat it, but everytime there after got a bit better. Be sure to get up as much as you can to prevent blood clots and to strengthen yourself. I tried walking the hospital halls every few hours once they took the catheder out.
I will keep you all posted. Feel free to ask any questions about the surgery or recovery time thus far and I will help in any way I can. : )
November 10, 2006 at 10:18 am
Ann- Marie,
Thank you so much. for replying I have been worried about being at home by myself . My fiancee can def come home if I call him, I just wanted to make sure that it was the smart thing to do. I am def concerned about my weight. (I hope that doesn’t sound too vain). The closer it is to the surgery to more I am nervous I am beginning to get. I talked with my grandma about it and she told me that if I wanted to stay with her for about the first week or so and then go home that she would feel more comfortable with that. Do you think that I would be up for being driving around a week after I came home? Hmmm I don’t know….So many decisions..
Fribroids R A Pain
Congratulations with the completion of your surgery. I hope you recovery time goes well. Larger underwear..Who would thunk? LOL OMG the catheder..I am really getting nervous..How does that feel? Do you have the pain pump? How long was your surgery? Did you doc give you any pics? Sorry for so many questions…Just getting a little anxious.
November 10, 2006 at 2:37 pm
Kiki ~
Yes, the larger underwear really help b/c of the incision. It’s those little things that you don’t think about. Also, if you wear pajama bottoms, make sure you get larger ones and that they have a drawstring. No, the catheder in my bladder and the one in the uterus didn’t hurt at all since they gave them to me when I was under and they don’t hurt coming out either. I had the pain pump and they kept yelling at me to use it. I hate morphine and to be honest, I don’t think it does much but give you a headache. I felt soooo much better once they took it out and I could take the pain meds orally. My surgery lasted about 2 hours and I was in recovery for 1 hour. I didn’t see any pics from the surgery. Ask all the questions you want. That’s why we are all here- to help each other out.
November 10, 2006 at 3:26 pm
For the past months. I paced and I googled obsessiely, had debates with myself on the pros and cons of Lap and AM(one one each shoulder- going pick me, no pick me), read everything on this geek site, made many web friends with ‘broids and then I finally did it. I scheduled my robotics surgery for January (something i wanted to avoid because of winter weather…but can’t stand these two invaders anymore- major ab discomfort this whole week!) Amazing, I feel so much better just taking this one step! I can’t wait till I join y’all fibroidfree-ist on the other side.
So anyways, I am super nervous about complications (good lord- Hydrothorax, the doctor sneezing, adhesions, the robot saying ‘hi dave’ to me and me going ‘i still don’t get the movie!!’, etc) and so I’m trying to think of all the little things to take my mind of it. So…Beside larger undies would y’all recommend me buy a pair of maternity pants (since it is stretchy on top) or regular sweatpants? can’t do skirt…too cold. and someone mention no shoes with laces.
Got to say, for y’all who had your surgery date changed last minute…I feel for you, it must suck!
For y’all waiting and feeling nervous about your upcoming surgery, I am glad we are here for each other. CYBER GROUP HUG!!!
Please forgive me I am giddy with finally making the decision…
November 10, 2006 at 4:19 pm
Hello. Thanks to everyone for their feedback and comments. I am a 26 year old that is having an ab myo for a 7 x 7 x 6 fibroid. I’m scared to death! I want to have children someday (not within the next year, but at some point!) Does anyone have any realistic numbers in terms of how many women can get pregnant after this procedure? I want to keep the “oven” healthy, how else do I do that? How quickly will I be able to go back to the gym – is walking on the treadmill good or bad? How can I help reduce swelling – ice? Thank you in advance for your advice.
November 10, 2006 at 6:10 pm
Gwyn – my doctor recommened waiting 3 months until I started working on getting pregnant and most doctors will recommend (mine said no other choice really) a C-section as the stress” of labor can cause complicatons after having an AM – again that also depend on the location of the fibroids removed. Three months time will allow your uterus and all the interal stiches, abdominal muscles and what not to fully heal. Being Up and about and exercise depends on each person and I am sure the number and size and location of where the fibroids are removed also. I had 6 really large ones in varying locations so it took me a while to really heal.
Kiki – I was in the hospital 3 days. My sister came over the second night and stayed (hubby was a little nervous) but after that well hubby had to work AND I really didnt want company to be honest. I was tied and achy and just sleep or watched tv anyway… BUT if you can set yourself up with not having to go up and down stairs a lot or having the bathroom close or staying downstairs or upstaris you will be fine. As long as you are not moving aroudn a lot and pick ing thigns up. Set up a little frig upstairs maybe?? or a cooler and a hot pot with instant stuff to eat (oatmeal, instant grits, cereal, milk, juice oddles of noodels LOL ya know stuff that does not require cooking. Then make soup or sandwiches for dinner.) Or better make some meals before hand and just heat them up. I did do the steps once/twie at most a day and I was fine. AFter about 2 week you wil feel a WHOLE lot better. BUT if grandmom can give the TLC go for it LOL. You may feel a bit achy driving for an hour though…..
The cathiter is put in while you are surgery and it does not hurt comign out….they just pull it out. AHHHH releif. My surgery was 5 horus and 2 hours in recovery and that first night I didnt even realzie the tube was there…I knew but the Pain pump was working so didnt really feel it. Now the next day when I got up….it was just anoying…and I asked them to remove it that morning. As long as you can go to the bathroom on your own they will remove it. I had to be able to get up and walk/stand for 40 minutes out of bed for them to remove it. OK I was up!!!! ….
weight gain…owwwh join the crowd….I gained weight during the fibroid era…partly due to tired ness, not wokrng out or not havign the energy to or not having a bleed free /pain free day TO work out LOL but I have lost about 10 pounds post surgery (and really just got on a program in mid -oct) . I gained no weight post surgery . First week I didnt have muchof an appetite but I sicne I woudl be sitting around doing nothign for WEEKS I tried to watch what I ate too. Healthy food to help me heal .Once those hormoes get back to normal post surgery it will be easier to lose the weight, you will get your strength back and be fine
Fibroid R a Pain – YEAh!!! for you and congrat on the surgery!! Remember to take it easy…dotn do to much but I know if feels good to be fibroid free!!! about day 14 you will really feel a difference but you will still be healing inside….gald everythign worked our for you!!!!
El – Good for you!! giddie is VERY GOOD!! now you can kick those “fools” out of each ear….dont be nervous it will all go well and you will on the “other side” in more time (even IF the doctor sneezes LOL) I wouldnt recommend the maturity pants BECUASE of the elastic…see you wont want ANYTHING to touch that area…..even underwear was uncomfortable to me…I say plain ole sweat pants or pajama bottoms that you can pul up over your abdomin
daisyduke – no need to be scared….everythign will go just fine…..check of the forum/thread [IS ANYONE HAVING FERTILTIY ISSUES BECAUSE OF UTERINE FIBROIDS]. I posted some good links and information about pregnany rates after AM. The rates are GOOD!!! YEAH!!! My doctor recommended waitin 6 weeks until the gym and 8 weeks until abdominal exerices. OK it has taken me a LOT longer and that…a few months BUT again I had a 5 hour surgery and 2 hours of recovery to remove 6 large fibroids at critical areas all over my uterus so the healing process was a lot longer. BUT I am 3 months plus and back at the gym. I found the treadmill to be the best thing to use (I tired so easily though) To reduce swelling I found ice took the “heat out” and used that more than heat. You WILL be swollen for a while not much you can do…over the counter anti infamitories may be helpful. Took me 3 months for ALL the swelling to go away and the “overhang” to go away
[Edited by EclecticGeek to add link.]
November 10, 2006 at 6:16 pm
Oh to keep that “oven” healthy – first DONT pcik up anythign over 5-10 pounds for WEEKS at least 6. Hey I still milking that one LOL. You dont want to pull things AND you dont want to creat any scar tissue…. I personally took extra vitamin C, Vit E and magnisum (helps promote nerve health) as you will need to grow tissue, fat, mucles and nerves back post surgery in addition to my regular B complex vitamins. Other than that…I guess just eating healthy and resting and healing properly!!!
November 10, 2006 at 11:33 pm
Hi Everyone,
Now that I read every post I feel I know some of you:-) Here is my story.
I had a first miscarriage at 14 weeks months ago due to a few
fibroids(we think?).The mis atarted with a subchorionioc hemmorhage
and a ruptured membrane.I had 2 large subserosal fibroids and one of
them was on a stalk. There were also a few intramural ones. After
the first mis in March, I was hospitalized b/c the fibroid on the
stalk twisted and got infected. I was in a lot of pain. At this
point my gyno did an emergency ab myo & took out these two large
problematic fibroids. He left about 4-6 smaller intramural ones b/c
I was losing blood and he knew how I felt about a blood
transfusion.He didn’t think the intramural ones would cause me a
problem during future preg.I then went to a reproductive
endocrinologist who took a look and advised that I do a laparoscopy
to take out the scarr tissue. He said all looked great except those
intramural fibroids. He strongly advised me to take them out before
ttc. I said no and went ahead to become pregnant that month in July
06. At 11 weeks I hadanother rupture of the membrane and
subchorionic bleed/blood clot. My regular gyno put me on bed rest
with progesterone injections. It didn’t work b/c I missed for the
second time. They tested the fetus and it turned out to be a
genetically healthy female. I went back to my specialist who ran
every blood test under the sun. All came back great.By now I had had
it with these fibroids and I wanted them out!! I just had my second
ab myo on Nov 1st where they took out all remaining visual fibroids
(5 intramural). I am recovering. I worry about scarr tissue. Ican
feel a thick band across my incision area. I don’t know what will be
but I do know that I was absolutely not ttc again until they were
out! My docs all recommended only having an ab myo to preserve
future fertility-
longer recovery but they seem to think better end results and they
can clearly see everything that is going on in there. I guess
we will have to see? My doc says I can start ttc after a month of healing b/c even if you conceive you will ramain healing for a few more months and the uterus doesn’t really expand much in the beginning? I don’t know what to think about that?Anyone have any experiences or thoughts on
scarr tissue? Does anyone have a hard band under the skin along the incision line?How about subchorionic hemmorhages or ruptured
membranes? This is a great site-Glad I found you guys:-)
Looking forward to hearing some info.
November 11, 2006 at 11:08 am
I finally got my period 6 weeks post-op. Yay I’m still working!!!!!!!(Not that I was getting paranoid or anything….never thought I would be this happy to get it!!)
November 11, 2006 at 12:17 pm
Katie,
Glad you joined us on the AM thread. There is also a thread started about fibroids and fertility/conception since a bunch of us are trying to conceive (ttc) as well post AM and all the issues that go with that so you may get responses reagarding the hemmorhages and ruptured membranes there…try posting there as well
anyway…here are my thoughts on your other questions- First I want to say sorry for your losses. I know its got to be hard emotionally (My best friend had a miscarraige recently post AM and well its taken a tole on her especially being 40 and all….so my prayer go out to you).
Glad you went to the RE for another opinion /view but you can SEE the difference in a regular GYN (especially if not an OB/GYN) and a RE. All RE’s are not just doc’s who assist with pregnancy (shoot I thought RE were just fertiltiy doctors ..period didtn even realize fibroids DO effect fertlity ) they also have seen a WHOLE lot more than GYN’s (my belief and what my RE said) regarding women and reproduction….so I would take an RE’s advice over GYN anyday……
So with that said, my RE told me point blank to wait 3 months before ttc. Reason why.???..sure you can get preganant and yeah your uterus doesnt ‘grow” in that 3 months and you MAY (see there is the what if) be ok but why chance it? You have been through this before why NOT wait 2 extra months. You just had major surgery..give your body a change to heal. THe reason to wait is to assure you are healed PROPERLY. So if you are worrying about scar tissue and complications, I suggest waiting 3 months (but I am no doctor just passing along my RE’s advie)…its more than the uteus healing, its also muscle and nerves and emotional …all that healing too adn hormone adjustments that occur after surgery. Get your strength back and be ready and strong internanlly to conceive. Yeah you may be able to get preggers but going to term is the real goal here….right??? what is 2 months in the sceme of things…you want to make sure the uterus is strong….I’ll tell ya its been 3 months + and I am still having issues with the funky periods…sigh(due to the one ugly submoccosal “Mr Grinch fibroid “- he is gone from whoville but the drama remains). I am SO ready to ttc also so I feel ya wanted to get back on (is it on or off oh I dont know) the wagon and start ASAP. I belive patience will prevail in the end….
Scarring and the “band” under the incision –
Just some geek info for those who may not know (I try to not just rant /story tell but to inform as well
….
‘Scarring is the result of the body’s attempt to heal the site of a cut, burn, or other wound. When the body heals from injury it produces an overabundance of collagen, which forms a scar. This production of collagen is kept in check by an enzyme aptly named collagenase that melts collagen away. During the initial healing process the interaction of these substances determine the nature and extent of scarring. ‘
I too had concerns about scarring and adhesions because I read so many horror stories about scarring on other websites – RE told me everyone will had scar tissue cant avoid that BUT its the amoung that is an issue and to prevent unwanted EXESS scarring/adhesions (that ofen cause issues) , it is crucial to follow all postsurgical care instructions (mainly ….not lifting anythign over 5-10 pounds, keep actility to a minimum – by doign nothing bascially you will reduces tension around the incision and internal sutures that otherwise might cause them to reopen (inside) If you pull and tear those inside sutures they oftern cause more scarring…..word to the wise……you may be feeling great and up to activity and the incision is closed and Yeah but what about inside….ok?????
That band?? just collagen rollin’ in to heal the body….I had a nurse a long time ago (after surgery to remove endo in my twenties) tell me to gently, VERY gently massage the area around the incision (the Band – hey we got the BAND and the OVERHANG) to help break up the collagen…my AM incision was hard for a little while…I gently messaged it and voila….no more hardness.. and no scarring
Just another tip…..
Hope that helps
November 11, 2006 at 12:21 pm
Ann-Marie
YEAH for you…I know you were worried…just takes the body a while to heal and all the “connections” to reconnet LOL !! Doing the happy dance for ya!!!!
November 11, 2006 at 12:33 pm
Hi Fibroid Free & all,
Thank you so much for all the tips. I am going to wait the 3 months. You sound just like my grandmother. She gave me the same advice.Whats 3 months anyway after all we have been through? About the band again-I am going to start massaging today:-) Did you use any cream or anything else to help. How often did you massage and do you think the band is dangerous for when we do get preg? I’m afraid that when we get larger something might happen or snap? Am I being silly? Anyway, Do you think there are diff kinds of scarr tissue? Like the kind that forms inside around uterus etc? Is that diff from the kind under the incision/band? More about you. How are you doing? You always seem to be supporting others. Thats wonderful. Have you been ttc long?
Katie
November 11, 2006 at 4:09 pm
Hi Katie – didnt want to seem like I was preaching to ya LOL – It just seemed like you have been through a lot physically and emotionally. Sometimes in our effort to make things work (I am guilty of this too) we forget to see the big picture…
the BAND – I used a little bit of vaseline (petrolum jelly) didnt want to have to much stuff around the incision…but you dont even need that really. I just used the tip of my finger in a circular motion messaging VERY gently like once a day. If it hurts to do it then I would stop…
snapping band…ok had to chuckle ….not at you… at the thought as I had a thought of a giant ruber band……think about it…how many women out there have had C-sections numerous times (AM incision – same thing) and no issues during prgnancy. THe body is am amazing thing and flexible…you will be jsut fine down the road…everything WILL stretch including any scar tissue – like a rubber band. .. scar tissue does not stretch as much as regular tissue but it stretches …. scar tissue is the same anywhere really…at the incision or possibly on the uterus.
ME???…thank for asking…….yeah I was going to post about my issue but …well ok….ttc – …got off the pill back in March 05 with no luck and then the fibroids symptoms began to rear their ugly head and blah blah blah yadda yadda I had to have a AM in Aug 06 to removed the Fab 6. Still some small intramural ones doc didnt get cause there was no need….well at my last RE visit in OCt 05 to get a HSE to see if everythign was ok…it showed I was still healing (epecially the submuccoal one -the reason for the continued period drama- I coudl see the “hole” in my uterus on the x-ray). My periods have been well …dramatic for the last 3 months ….last month my periods (yes you see the “s ” there) were like 15-20 days apart. The severity was getting better though….but then 2 weeks ago the first day of my period was horrific I mean like nothign I have every felt before pain wise…I was off 2 days from work (and had to take the dang percocet I had from the hospital sigh)…I laughed (Yes I still try to keep a since of humor, twisted or not LOL about all this) and said I was in labor for 30 hours….Hubby just got the “blank look “(I guess he thought uterine drama was over -yeah so did I and ooohh I hate to see that blank look on his face again (that can I fix it look??) ….then after that day or so I was ok – I was even able to use a tampon here and there (of course with a back up pad old habits die hard LOL) ohh ahhh havent used one of those in about a year since the fibroid drama…period was heavy but tolearable .. my period ended on time at least. Yeah for little things!!!
So hubby and I had that discussion about what to do next TTC vs IVF -need to give RE an answer so Doc can “Plan” (IVF is the only option for me at my age and insurance will not cover it). TTC first for 3 months was recommended by doc if not p-reggers then IVF……So I am all excited now…ok RE said it woudl take a few cycles for my period to get back to normal (check) and its been 3 months (Check)…I should be good to go…..well begin to get on the “baby boat” …bought a fertilty monitor -its on the way (dont have time to guess at 39.8 LOL) I want to ttc but since my periods (or something ) started again TODAY just 1 week after the last one ended..I dont know if I will ever ovulate again (BASED on the dang calendar I should be in the middle of ovulation – At fist on thursday/Friday I thought maybe that is what the “discomfort was” ovulation …I can usually tell when I am ovulating……Hubby asked last night (I must have had that look) you ok ??did your period start?? Nahh….well this mornign YEAHHHH dang dang dang… Will it even be possible?? I hate to go right to IVF but that may be the only choice if I cant get these periods together…..sign
In the mean time I guess (calling the nurse at the office on Monday) that the uterine healing from the removal of Mr Grinch the submucossal broid is the issue. When you have uterine muscle healing and then mother nature says ‘oh look tiime to shed and pull and contract the muscle” how do you heal? Maybe some one has some timing on how long it took to heal from submuccossal broids??
well at least after 3 months, my belly is flat , I lost 10 pounds, my shoes fit again and my big belly pants were donated to a worthy cause….if only I could stop having period drama and a few weeks without a pad …Life woudl be really good..But life is better without the fibroids….Just need to get through this phase….
November 12, 2006 at 12:13 pm
Further to Katie’s post – Has anyone had any issues with scar tissue and/or adhesions post AM? I thought this may be a good question to ask so we can get some information out there incase anyone is having an issue.
PLease share if you have any thoughts or experiences
November 12, 2006 at 4:08 pm
So sorry Fibroid Free about all the problems you are having with your period. That is my biggest fear in this whole thing. That when my cycle starts up again, it is going to go back to heavy bleeding and severe pain. I will send thoughts of well being your way. And, hang in there!!!!!
November 13, 2006 at 9:28 am
This website is really great and it has brought me great comfort during this recovery phase. I am 33 and I’ve just had an AM last Wednesday. The recovery process is annoying because I’m so sore and I want to move around. I get so bored laying in the bed all day. I’ve also have that annoying extra pain on the right hand side of my incision. Hopefully, in two weeks when I go for my post op the doctor will give me the “all clear”. Not only did I have to have an AM, I had to have an hysteroscopy as well because my body expelled a fibroid and that sucker moved 1/2 way down my vagina with the blood vessel still attached in my uterus. Scary business! I’m just glad it is all over and that my husband and I can start trying for kids in 4 months or so. My doctor want’s me to be pregnant or ready to give birth by this time next year. Does anyone have any advice for the healing process, such as herbs, tea(s), position in which to sit or lay in the bed… I’m going nuts and my back is killing me.
November 13, 2006 at 1:11 pm
Hi Fibroid free & all,
Did the doc say why the periods are so irregular? Do u have endometriosis-prob spelled it wrong but anyway, my friend who doesn’t even have fibroids had an irregular and heavy period forever now & she is now 9 weeks preg. Her 1st preg resulted in a blighted ovum. After about 8 more months of ttc she is doing great now-God Bless her.
I am talking on so many different sites now so if you guys don’t mind I am going to focus on the fertility post.
Here’s a group that some might want to join-I joined a few days ago & its great. You can even get e-mails each time someone posts!
http://www.egroups.com/group/ttcmyomectomy
E! I had my surgery last Wednesday also:-) How many fibroids did you have? What kind? I need details:-) Also, my advice is to get up and easily walk around now if you can. The more I move around I seem to feel allitle better. Do not strain yourself!I have been reading alot of books about pregnancy etc. For me it is exciting to read & think ahead about hopefully easy times preg. Stay positive b/c it really helps.
Katie
November 13, 2006 at 1:41 pm
Hi everyone!
E & Katie ~
I had my AM last Thursday so we are all recovering together! : )
My back is hurting too, E! Actually it’s killing me. That was one of the other pointers that I wanted to bring up to the other girls is to strenthen your back before surgery!!!!!!!!!!!!! You don’t realize how much of your back takes over when your stomach muscles aren’t working.
Some other tips I wanted to stop by with for everyone:
~ After your surgery, laughing, coughing, and sneezing hurt very badly. Hold something over your belly. My husband is a real clown and always wants to see me smiling and laughing so it took a while for me to get the hang of trying not to laugh.
~ You will use alot of back muscles after your surgery to help you get up and moving. Strengthen that back as much as possible before surgery.
~ Use ice on your stomach even after you come home from the hospital. It will keep the swelling down.
~ Take stool softeners- even at the hospital. Constipation is another pain that you don’t need to be dealing with after you’ve just been operated on. Between the anasthesia and pain meds, you will be constipated.
Another side note“““
I was told that I will have to have c-sections from now on. I was wondering if many of you were told the same thing and how do you feel about it? Are you going to try and get pregnant as soon as you can? I know I want to. I want to be sure everything is working properly and if these ‘broids come back I want to have had a child or two or three first.
November 13, 2006 at 1:46 pm
I came across this website on Nov 5th and went into hospital for my AM on Monday. I had been undiagnosed for a long time whilst having only the sympton of heavy, clotted periods. During this time I was made to feel as though I was wasting the doctors time with my frequent visits saying that I shouldn’t have to cope with this. Eventually I thought, thanks to the doctors attitudes, that I was making a fuss of nothing.
The worse thing is that I work in the medical industry and if I am made to feel that way about medical symptoms then those who have less medical savvy must be made to feel terrible by doctors with the same sort of attitude.
I moved from the UK to Belgium in Feb 2005 and was travelling all over the world with my new work, concentrating on making a new life in Brussels with my husband and so on and just got on with life. A few months ago I was in the US at the time of my period and noticed a lump on the right side of my abdomen which felt hard and not palpable. I saw a gynacologist, explained my symptoms and straight away after a mere touch of my abdomen diagnosed fibroids. Then an echo confirmed that this was the case and the fibroid measured around 7.5×7x7.3cm. This doctor said that he could not believe that I had so much of a fibroid and not be having many medical symptons such as difficulties emptying my bladder, anaemia etc. So as I do not have any children at this time (my husband and I were in the planning stages seeing as he now works part-time from home) he recommended AM. My doctor was very experienced with myomectomy and does arounf 4 AMs per week. The only other surgery I had was a tonsillectomy in 1988. So I went away for a couple of weeks, more travel to US and throughout Europe, and came back convinced that I had to have the AM. I also began to get all those symptoms that the doctor described and was very uncomfortable.
So surgery was booked for Nov 7th and the couple of weeks before I partied hard, saw lots of friends for dinner and had fun.
Had the surgery. Remember a lot about the recovery room and the injections they gave me post procedure. I was in a lot of pain. When I saw my doctor the following day (I think that he did come to see me post procedure but I dozed/slept the anaesthetic off most of the time!) he told me that it was the biggest myoma that he had ever come across and it weighed over 1kg and he would go through the details with me next week so I could take in the information.
I left hospital on Friday and then felt terrible on Saturday and Sunday. The term ‘over-tired’ sums it up completely. Once I had rested well I was feeling much better Sunday evening and I could feel the tingling in the wound sites.
This morning I went to have my staples removed by my doctor and a check up on the internal healing. My doctor told me that such was the size of my fibroid that all the surgeons in the hospital came to watch the procedure (I’ll be starring as the centrefold pinup for Gynacological Weekly….’Oooh! Look at the fibroids on that!’) The final size was that of a large aubergine (eggplant) and was very irregularly shaped and was growing all through the uterine tissue. The doctor said to my husband ‘Your wife is an amazing woman to have managed with this fibroid in her’ The weight was 3 pounds. Due to the irregularity of the shape the dimensions were difficult to provide but I will get these when I see a copy of the surgical report. Basically my uterus was peeled away from the fibroid like apple peel and my doctor managed to put back together the tissue to make a uterine cavity. Pretty fabulous handiwork. My doctor was also amazed at the significant amount of healing that has happened already within my uterus and was shocked at how little blood there is left within the tissue layers. Hurrah! I can do fibroids well but I can do healing better.
So, the prognosis…I have to wait a couple more days to find out wiith 100% certainty that the fibroid was non-cancerous. They are 95% certain but due to the peculiar shape of the fibroid they want to be absolutely certain. To enable the completely shattered uterus to recover I have to take the Pill for 2 months and then the doctor said try to get pregnant as quickly as possible if you want children.
Currently I feel a little sore but it’s different to the post operative pain and I have done more walking today but my range of movement significantly increased in the past 24 hours. Having a great time reading books, watching DVDs and seeing This Morning and wonderfully trashy UK magazine program. My only problem is that I laugh a lot generally….ooooouch!
Am feeling mentally stronger than ever (which will be a fearsome thought for my friends and family!) and my doctor has reinstated my self confidence in knowing my body. Am disappointed that I went undiagnosed for so long in the UK system but as long as I continue on this particular recovery path I think I lucked out with my surgeon in the end…plus my personal nurse is wonderful and had we still been in the UK my husband would have been out at work and commuting up to 4 hours a day. I really wouldn’t have had such excellent care. I like the fact that my husband was keen to see my wound even with all the staples in place. Makes me feel better about my swollen tummy already!
Good luck to those who have yet to have their surgery and happy recuperation to those who have already had their surgery.
November 13, 2006 at 7:56 pm
Hi AM Ladies!
Have a favor to ask. There is a woman on my Oprah.com Fibroid Discussion Forum with concerns about her upcoming AM.
Here is the post with a quote: Looking at surgery for 8cm fibroid
I know everyone is busy with recovery and LIFE but I would appreciate any input. Feel free to leave your suggestions here.
Katie:
I’m glad you’ve found another helpful resource! Best wishes.
——————–
In case anyone has missed this, I’ve had email updates here for about a month:
Get email updates by clicking this link!
Get email updates of the comments by clicking this link!
See this post for more details:
Sign up and receive “inquisitive geek with fibroid tumors” updates!
These updates are for the whole site but I can also set up email updates for ANY individual post on this site. Let me know if you are interested in me setting up one for this AM thread. Thanks for your continued support. Take good care.
November 13, 2006 at 9:31 pm
Katie;
What did the early symptoms of the fibroids twisting feel like? I have two of them on a stalk and have been having pain and really weird sensations around the fibroid area thispast week, am a bit paranoid that it may be twisting.
November 14, 2006 at 9:38 am
EG – I will post a response (I will try to contain myself with novelettes LOL) to the Oprah.com site. I actaully did sign up on the site but geeze I got like 6 emails a day from the Oprah site and I had to stop my membership but for you (LOL)
and to able to help another women in her fibroid AM issue…I will gladly log back on …..
Katie – thanks for the links. I will be checking them out and I’ll join you on the post AM fertility forum here as well as the ttMyo link. I wanted to start “research” on the next step (ttc) but got deflated recently with my weird period drama. Talked with my sister (who had IVF and my beautiful niece) and my doc and got my spirit back. YEAH!!
THe irregular periods come from the healing process. Called my doc yesterday to ask what this 4 day “period thing ” was and we chatted for a while about this….He mentioned that is just takes TIME as the uterus and your body readjusts (sigh). He reminded me that he made MANY cuts (ie trama) to remove 6 fibroids and this muscle (uterus) is still healing. It can take up to 6 months to heal sometimes. ohhhkkkkayyy…..He remineded me You were a MAJOR case (oh would that be worst case senario – I told him I guess I am on the other side of the bell curve (he laughed at that one and I had extra smiles as I thought of this wonderful site) . NO after reading Becs post…..oh she won the T-shirt!!! LOL Glad all is better for you!!! eggplant not that is a new one in the fibroids description category. Amazing what doctors can do – the beautiy of a skilled surgeon!
Endo- I dont have that (did years ago) but I do have a few tiny “spots” of adenomyosis (lining grows into the uterus and often cause enlarged uterus and/or heavy bleeding) there is no way to “cure that” but he noted that could be the cause of some of my still heavy periods and being on the pill was probably keeping heavy periods in check….ohhhh…(Lightbulb moment)
Fibroids R A Pain: yes my doc told me I definitly needed a C-section. For me that is ok…as long as I can get kids here…dont matter…heck I can plan !! LOL At least I will know what to expect in recovery… But my best friend had AM surgery and due to the size and location she will not require a C-section so it depends again on size and location. C-section is to limit the ‘damage’ that can occur to the uteus during delivery (ie the contractions of the uterus and uterine stregnth). Will I miss the vaginal birth, the labor the contractions, the epidoral, the “experience” ?? For me I look at it like Cant miss somethign you wont go through I guess….but at my age..nahhhh just having a baby will be mircale enough for me and if I can squeeze in 2 kids…double miracle…
feeling better, wierd period thing gone now…spirts back up….umm let me log on to Orpah…..
November 14, 2006 at 1:47 pm
GEezeee…I need to learn to control myself………..posted info on Oprah….ok a FEW
posts to get it all the info in. Self control in novelette writing 101 class now open LOL
November 14, 2006 at 2:48 pm
today i feel particularly bad…
when I opened my eyes, it was like my back had been put into a 16th century torture machine. I was whining like a scalded cat. Ironically enough it was time for me to take my pain meds. All day today, my incision has been in pain. The only relief that I received was when I was in the warm shower and having a very hot cup of tea. The tea is fantastic because it is so soothing.
I called my doctor to ask if I could alternate my pain meds and ibuprofen (sp?)… I feel like a wooden nickel. the healing process is emotionally taxing too. i cannot play with dog, i am starting to bleed a bit (which I’m so tired of doing because I bled non-stop when my fibroids were here) and most of all this incision is hurting like hell.
I keep fantasizing about our future children to keep my spirits up. Guess you have to keep your “eye on the prize”.
I had three fibroids on the ultrasound scan… a biggum 5.2cm x 5.5 at the top of my uterus, a 2.2 x 2.1 on a stalk and the bastard expelled fibroids that was trying to make its way out of my body completely but still attached to a long blood vessel / stalk in my uterus (thus why I had to have an AM and hysteroscopy -same day). When they opened me up they found another smaller fibroids hiding towards the bottom behind my uterus, they found one near my damn tubes…lucky it wasn’t on my tubes and then they found a very small fibroids – the one they left in – that was very close to my bladder. My doctor said she didn’t want to take the chance and damage my bladder, so that is the only fibroid left. i’m sure my body is suffering a great internal trauma…. but i feel so helpless. The last 3 years of my life have been dominated by bleeding, pain, cramps, upset at not being able to procreate, self examination…. all of this because of the fibroids. i can only hope that this last hurdle of pain is the final chapter for now. I want my life back, I want my kids that I’ve been daydreaming about … and moreso I want to feel womanly again.
- E!
PS
My doctor was straight forward with me prior to surgery… she said that I will only be able to give birth via C-section. I think this is something they tell all women now who opt for the AM. I just hope my future C-section is not as painful as this crap. I’m starting to get frown lines. Grrrr!
November 14, 2006 at 5:37 pm
E!
All you can do is take one day at a time…some days of recovery will be good and some…not so good…Those not so good cry-ie emotional days….let yourself have then…give the dog some extra treats!! just because……glad you could share…I found it helped (helps) to talk/rant/boo about it all….We are all hear to listen and comfort . You will get through this process and look back and think….and then wont remember all the not so good…
Yeah I think now….surgery was easy compared to recovery. You will feel better….LIFE will be better without the fibroids. The pain will subside, you will be up and about soon (wearing out the dog LOL) a few more weeks or so ………compared to the last 3 years…you can do this!!! and hey try an ice pack or cold washcloth on the incision if it hurts. I found that helped to “take the heat out”
focus on healing …and all the rest will come…kids, victoria secrets catelogues …maybe the order is wrong there LOL …either way…focus on YOU right now… TRUST you will be better and feel better….
November 14, 2006 at 6:57 pm
Fibroid free… thanks so much for the advice. I am having one of those emotional days and I decided to not only rant about it but to talk to my hubby and share my feelings. I’m a very lucky girl because he has been a star through all of this. He came in and had tea with me. Then we had a chat about how I felt. I know I must focus on healing and be happy. I’m going to keep daydreaming about those lovely kids and hopefully in 3 months time I can order something absolutely “naughty” from the Victoria Secrets and Fredericks of Hollywood catalogue. LOL!
PS
I found that sitting on the floor with my back against something flat like the bed or a wall has been a great help. I think my back has been over compensating. It feels so great to sit up straight with no pressure on my abdomen with some cushy cushions on my back. I was taking the nurses’ advice and sitting on the edge of the bed, dangling my legs for exercise… but that would leave me in pain after 3 minutes.
November 15, 2006 at 9:48 am
Day 7 of post AM…
Last night I had a setback. I was feeling good. My hubby had cooked me some fish stew upon my request. He bought me oatmeal raisin cookies – my favorites. Then we watched some Nova programs through Google player about robots – okay call me a geek.
Then, like a lightening bolt everything that went downhill.
As my hubby fell asleep for a nap, I didn’t have the heart to wake him to get my ibuprofen. So, I was going to do what I have been doing for the last 6 days… put my legs over the edge and gently lift my torso up so I could gently get off the bed and get my meds.
Well, it turned out to be a sour trip. I put my right leg out and I could feel the floor, I was trying to bolster my torso up and then I (for some idiot reason) moved my left leg to the edge, then over the edge and with the searing pain of a chainsaw and a hack knife something seem to have “snapped” on my left leg side. It was instant… I screamed so loud that my husband woke up and I was shaking from the jolt. I was crying and crying and crying. Suddenly, the spirial began… what if I’ve torn my uterus, maybe we are just not meant to have kids, I’ve popped a stitch, I’ve popped and internal stitch.
In the course of 3 minutes the pain was gone, but the emotional state I was in caused me an somber if not scary night of sleep. Before I went to sleep, my husband examined my strips and incision there was nothing torn, nothing out of the ordinary, nothing bleeding, nothing oozing, I had no fever and I didn’t have a large amount of heat over my incision. He reckons that I strained myself and that I should fess up to the doctor during my post op appointment on Tuesday. I am totally going to snitch on myself to the doctor, but I just hope my over zealousness to move about hasn’t set me back too far or cause permanent damage.
I felt so good yesterday and now today, I feel very timid and scared. I’m banishing myself to the bed, only to move around when I have to go to the “loo” or get some water.
I wanted to scold myself, but I’m so hard headed I probably wouldn’t listen.
- The wounded one. E!
November 15, 2006 at 10:07 am
Hey E! I PROMISE you that it will get better. I am on day 13 of post AM and am doing fantastic. Last week was really rough for me, too and I am a very impatient person so put that on top of it. Every day you will grow a bit stronger. Don’t worry. I am sending you and the rest of us recooperating the most positive energy available. Hope you all feel it. : )
November 15, 2006 at 2:00 pm
E!,
I found it better getting up when I had a pillow or cushion pressed against my stomach. It felt less like everything was going to fall out!! Be reassured it does get better but you should really take it easy and try and keep as much as you can to hand so you can get up at your own pace. Also, I was told that getting your body up first before swinging your legs was better. From lying on your side, push your body up with your arms and then gently swing both legs together if poss and when you sit up don’t look at the floor, look straight ahead and use your arms to push yourself up to standing.
I hope it gets better…by week 3/4 you will hardly remember what you have gone through and it really is worth the wait!
I am 7 weeks post op now and it is like getting a new lease of life! I saw my consultant today and got the all clear from my monster (17×15x10) and it was benign so yay!!! Plus I should still be able to have a normal labour should we have any more kids and (even better) even though they disconnected one of my fallopian tubes I have just as much chance as anyone for getting pregnant. Must stop getting broody though hubby is getting scared!!!
Ann-Marie
November 15, 2006 at 2:20 pm
Hello
I had my op on August the 10th, my belly was huge!!!. I looked like i was eight months pregnant , since then my belly has gone down but seems to be stuck at 42inches, which is incredible as i was 30 inches before the op. My weight has also rocketed, i was eating normally and I weighed 10 and half stone, before op.
i am now 11 and a half, can anybody tell me how long it took before thier belly went down. my belly is not flabby, it is firm and feels hard. I am still getting pains in my left side. My doctor thinks i am being a hypercondriac and is not taking me seriuously. i have cut my calories intake from 1400 to 1000 calories, but i am not losing weight and belly would not budge and i know that i am not pregnant. Any tips, advice…
Thanks
November 15, 2006 at 4:09 pm
EL- See (picture that mom or grandmom face saying this) I told you to stay in that bed…stop moving around so much, girl wake that boy up and tell him to get your drugs for you. You up again?? why you up…get back in bed…I’ll get that..just ring the bell I gave you (DO YOU HAVE A BELL EL???)
Seriously…yeah a few of those SNEAK pains will get ya…makes the tears come….just take it easy ..your are FRESH into recovery…I am sure you didnt put, rip, teat anything at all…
Pain – mother natures way of telling you something is wrong OR THAT YOU ARE DOING TO MUCH!!! now since that is a multiple choice question, which one applys LOL…..
Ann-Marie – YEAH!!! HAPPY DANCE for the monster results
November 15, 2006 at 4:21 pm
Hi Ny,
Well – my belly was about 5 months preggers in look and its been a little over 3 month since surgery and it TOOK 3MONTHS for my belly to get back to normal (flat ok flat-ish). It was hard during recovery with weight…so I was VERY aware of what I ate AFTER surgery (post op was harder since so much STREE EATING was going on with me) since I wasnt doing anything (sitting around) no exercise all that…. so if you are decreasing from 8 month lookbelly it may still take a while for your body to re-adjust. Remember the inflamation that is still there because of the healing process. Oh I still get pain sometimes too 3 motnhs later…4-6 weeks is the time you get to “recover” for insurance purposes…hecks it been 3 months and I am still not totally healed. It can take up to 6 months and my sister who had a c-section 8 months ago STILL feels a little “tweek” here and there….so it takes a while…
Weight….sometimes your hormones (I belive I am not a doctor) influence your weight. I think that the estroen imbalance that come with fibroids plays a GIANT role in weight. Once your hormones get re-adjusted losign weight may be easier. Also cutting to many callories is the perfect way for you body to go into STARVATION mode. …………..What no food? where is the 400 calories…humm BODY WE NEED TO SHUT DOWN!!! First the FIBROIDS GONE, THEN THE ESTROGEN GONE…..NOW THE CALORIES what is she doing…. So a sensible diet (probably like 1200 calories) and exercise will help with the process of weight loss.
Let us know if you have other questions and how are YOU feeling phycially post op 3months??
November 15, 2006 at 6:03 pm
Hello
Fibriod free,
Thanks for getting back to me, what you said makes a lot of sense, i am usually quite active , but during recovery, i was eating normally but my weight seems to have shot up, probably because i was sitting around doing nothing. I have tried to exercise but it was too painful, so i have started walking around trying achieve a minimun of 5,000 steps a day, but is hard as it is freezing in London
it feels like i have spent a lot years getting to know my body and now after the op, it refuses to listen to me., it does what it wants, i will try and increase my calories intake as i am not losing any weight, anyway.
When i first left hospital, i kinda understood the evolution of man, as every day i learnt how to walk straight up, then i spent two months sleeping on the couch as i could not sleep on my bed and i still sleep with a pillow on my left side as it still hurts, though not as much as before. I have weened my self off the pain killers.
Psychically, i am ok, i still get pains in my left side. i still have not gone back to work full time, i have started working 2 hours a week to build up my strength and i have been referred back to hospital for a scan in december, so the doctors can determine what is causing my pain. My doctor probably thinks i am nuts and he is doing it to shut me up, but there isn’t any information or support post op, so it is good to talk to other people who have been through it,
How is your recovery, what was the size of your fibriod?, mine was 10cm and the little bastard was on a stalk as well.
Once again, thanks and take care
November 15, 2006 at 7:07 pm
Best wishes to all preparing for and recovering from surgery.
El:
I had one on the outside attached by a stalk. The pain from it was different then the clot-expelling contractions of the others. There was always a low-level dull ache throughout the month. During my period, it turned into sharp pains that felt like someone wringing a damp cloth. I would deal with that for 2 or 3 days and then it would go back to the dull ache. After that, I only had to deal with the cramps from the others. Don’t know how helpful this was but I thought I would throw it out there.
On a lighter note:
Congratulations on scheduling the robotic surgery. You are the disco queen! Should I start singing something from ABBA (sorry, I can’t do the backwards “B”)?
fibroid free:
Thanks much for stepping up so quickly and posting over at the Oprah site. I meant to say something about the 2500 word per post maximum but you managed to work around that limitation. (LOL) Don’t you dare control yourself!
Ny:
Glad you found this thread. I have to agree with fibroid free. Drastically cutting calories will slow your metabolism. To lose weight, you have to do things to increase your metabolism. If you have any additional AM thoughts or concerns, this is the place. As far as being thought of as nuts, this whole site is also the place.
——————–
I KNOW I keep saying this but weight posts are coming. Trying to add them just before Thanksgiving rolls around.
November 16, 2006 at 10:28 am
Hi all – I had my AM on Monday, Oct. 30th and left the hospital on Wed. night, they had to keep me a little longer due to a fever and low blood pressure, but on Wed. everything looked ok so I went home. God, the first week was just awful, had to be lying down all the time, couldn’t be up for more than 10 minutes, thank God for my boyfriend and my wonderful family. During the first week, I think it was on Friday, I was in bed (at this time no one was there yet with me, I was alone), I had a bottle of water with me, so I was relaxing, watching TV and drinking water, well I took a sip and it went down the wrong way…let me tell you I would have preferred to have choked…I couldn’t get up fast enough, I had to cough…the BURNING and the PAIN…I almost died…so you have to be very careful if you’re lying down and eating or drinking something. It will be 3 weeks for me on Monday, it still hurts, but I’m pretty mobile now, even started working yesterday for 4 hours a day and then lay down for 4 hours in the afternoon. I’ll do this until Dec. 8 which will be 6 weeks. Anyone of you going into your 3 week post op….how are you feeling? and what do you feel? Thanks guys, I love reading your posts, it’s like a little family..
November 16, 2006 at 3:01 pm
Dee
ok I was laughing so hard the tears rolled down my face…All I could see was you TRYING to sit up, while coughing and grabbing for a pillow to press……
week 3- I found that once I was up and down more more week 3…my back hurt more so I used a panty girdle and or ache bandage to wrap my middle so everythign didnt feel like it was “loose in there”. ALso I felt “sad” about week 3 – no reason…then the sadness went away (hormores?). Tired all the time and wore out easily…..achy more than pain but had some night sweats (yuck) and was still “stuck on my back”
Ny
oh my ‘broids (the Fab 6) I am such a geek I had to name them….This is what the MRI measured 5 months prior to surgery
Big Belly- (subserosal at the top of my uterus) 8×10x10
The Gang -subserosal and predunculated – individually refered to as:
Bladder Presser/Pee Maker -5×5x7
Pain the Ass (literally)- 6×7x8
Back killer- 2×3x4
No problem -2×2x5
Mr Grinch [submucosal son of a ^%##^*] – 3×3x3
and a few small intramurals Doc didnt bother to measure.
you arent nuts..!!! If it hurts and you are in pain -keep asking until you find an answer. Lord KNOWs I had a rant about my fire pain 3-4 weeks post-op and the doc told me (honestly) he didnt now what is was after testing and checks..I peed in the cup and nurse called me the nex day…it turned out to be a BLADDER INFECTION. so…If it dont fell right it probably isnt is my saying ! Ask about infection, scar tissue, adhesions, healing process ….ask until you find the answer and dont let a doctor Poo Poo you its all in your head crap!! sorry climbing off my soap box now…..
November 17, 2006 at 7:15 am
10 days post-op and I can’t get over how well I feel. In the past 24 hours the level of pain has fallen off hugely and I even slept a whole 6.5 hours. The longest previously was 3 hours. Feel quite fabulous today and the swelling in my tummy has also really reduced in the past 24 hours. Wearing non-elasticated waisted trousers today. I also look much better. My skin has lost that invalid pallor and my eyes have regained their sparkle.
My dad keeps saying that it’s having good genes for healing that has helped my recovery and also being very fit. It’s funny that parents are proud of recovery from an operation..bless them!
Haven’t had any of the hormonal issues but I put that down to the Pill which I have been taking since Monday. My doctor said that for the uterus to heal well it needs estrogen.
Also, the sun is shining so I am going to walk to the Grand Sablon(normally a 10 minute walk but will probably be more like 20 minutes at current speed) and sit at a pavement cafe, read my book, drink tea and bathe in the sunshine.
Hope you all continue well with your recoveries.
Ny, fibroid free is correct – if you have pain and are unhappy with how you are feeling then you must keep strong and keep the doctors focussed on the fact that you are in pain. My fibroid was not diagnosed for 2 years within the UK system and I was made to feel as though I was wasting the doctors’ time. You have had surgery, great! But you need to recover well from the surgery and the doctors are there to help with this. Good Luck!
November 17, 2006 at 8:37 am
Hi Becs
You’ve made me realise how lucky I’ve been with my GP (I’m also in UK)!!
I Went for a routine Blood pressure check in June where doctor persuaded me to have a long overdue smear test (I know, been told off by many friends since!!) where she discovered a mass in my belly.
The ultrasound a fortnight later appeared inconclusive, so I was booked in for an MRI scan in August which showed a 10cm Pendunculated Subserol Fibroid (” My Little Alien” – my boyfriend cannot watch Alien the Movie anymore!).
Think the works time for all this was waiting for the C125 blood tests to come back!!!
My symptoms have only really started in the last month (nurofen and parecetemol have been my best friends lately!), and i’ve gone from the equivalent of a 4 month pregnant uterus in June to 5 months in the last week,
I’m booked in (after many date changes) for surgery on 13th December. I do wonder how events would have differed if I’d have gone to the GP with concerns about the lump myself!!!
November 17, 2006 at 10:40 am
Ok, 15 days post op and was wondering when can I take a bath? I’ve been taking showers but my belly is sore today and would love to just soak in a tubbie.
November 17, 2006 at 11:07 am
Pixiebell,
I was in a very similar situation and you are right, the waiting for the blood test results was the worst (and then again with the biopsy results after the op). Being symptomless and then discovering you have an alien within is kind of scary – just be glad that you went before it got any worse. I plucked up courage to go to my doctor at the beginning of August and had an ultrasound the week later that showed the mass. At the end of that week I got DVT in both of my legs and landed up in hospital and I am now on Warfarin. My thought is if I hadn’t plucked up courage and persisted hassling my doctor then I may have discounted the pain in my legs as something else and ended up a lot worse. I had my surgery 7 weeks ago now and it is honestly the best thing I ever did. My have lost about 6 inches from my stomach (although I am still swollen) and I can sleep on my stomach again at night!! It does make me think about the variation in waiting times in the UK. I am in the NW and from first seeing my doc to the op that was 9 weeks (and the surgeon apologised for my long wait!!).
I hope the surgery goes well!
Ann-Mariex
November 17, 2006 at 2:24 pm
Bath….looked at the hospital discharge and it said 2 weeks?? After my one week check up – doc told me to just “keep the incision dry” I didnt take a bath for weeks (I did take showers …I heard the EWWWWWW’s LOL) Our tub is REALLY deep and I was too scared I wouldnt be able to “catch” myself gettin in if I fell (getting that leg up over the tub) , pull something and then couldnt get out …I knew i didnt have the “strength” to pull myself up from a sitting position in the tub, slippin and slidding…… so I stuck with showers….
Ann-Marie !! YEAH!!! stomach sleep…ahhhh.
November 17, 2006 at 2:44 pm
Well, this is good timing–just found this discussion, and my surgery is scheduled for Tuesday. Must say, this does not have me looking forward to it any more
. I don’t actually have any symptoms from the fibroid, as far as I can tell (I’ve had bad cramps for thirty years now, and my periods are reasonably regular and pretty light), so the cure is going to be worse than the disease. Did get a second opinion and everything–seems to be the size and speed of growth that worry them, although I suspect a bit of a$$-covering and profit motive (I’m in the US).
Thanks for all the info–I’m generally happy with my doctor but he really hasn’t gone into much detail about what to expect after his part in this is over.
November 17, 2006 at 3:36 pm
Question to all:
After reading a few post here on the AM forum and re-reading one of my earlier rants [My rant was about my doctor (who I GUARENTEE will think reeeeaaaalllll hard before he makes THAT statment again to a women when I was done with him- stating that "I waited so long to take care of the fibroids"] on what makes you sad, mad and gald about your fibroids thread made me wonder about a few things..hummmm…
Join me in a poll:
Answers can be as long or short as you like – because some of us (me included) can look back now and say Dang I didnt realize THAT was caused by fibroids so a start date may change…So here I go… promised I’ll keep it short-ish LOL
++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++
HOW LONG FROM THE TIME YOU HAD FIBROID SYMPTOMS UNTIL YOU HAD SURGERY?
++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++
First fibroid symptom May 05 (back pain – didnt realize)
Summer 05 – Big belly (again didnt realize or couldnt tell with all the other fat LOL)
Oct/Nov 05 – Heavy but manageable longer more painful periods started – fibroids I thought (didnt realize they were impacting fertility)
Dec/Jan – no period…something is real wrong (wasnt prengant) thought it was stress or maybe perimenapause ;(
Feb 06 – ALL HELL broke lose -I called to make a Doc appointment (but ya know to get a GYN appointment with my previou doc was like 8 weeks so I looked for a new doc anyone that could take me ASAP-ok 2 weeks)
+++++++++++++++++++++++++++++++++++++++++++++++++++++++++++
WHAT WAS THE LENGTH OF TIME FROM THE DATE THAT YOU SAW YOUR DOCTOR OR SURGEON UNTIL YOU HAD SURGERY ?
+++++++++++++++++++++++++++++++++++++++++++++++++++++++++++
5 months-
Family Doc/GYN – March 06
GYN/Endocrinologist specialist -April 06
RE surgeon – June 2, 06 (spent 2 months testing, planning and going to doctors appointments, then Doc’s Cancun vacation and scheduling with other surgeons who would assist during surgery)
Surgery – Aug 14th 06
How about you? what was you, your doctor or your healthcare systems timing?
November 17, 2006 at 10:28 pm
Hello Everyone,
To top it off, I managed to pump out a pint in 15 minutes. Last week, it took 25 minutes.
Well, I am just three weeks from my surgery and I am SO looking forward to getting it over and done with. Last Friday, I gave my first autologous blood donation. My left arm is still bruised, so when I went into day for the second (and last) unit, I said go for the right arm. Last week, my iron was extremely low, so low, that if I had been just a walk in donor, I would have been rejected. I had no idea. Since my decision to have the surgery back in August, I had been faithfully drinking a liquid iron supplement I purchased at a health food store. They all swore it was better than pills. Well, three bottles later, my iron was 34% and I had to be at 38%. I have no idea what that meant, but… it sounded bad.
The woman who prepped me for the donation, told me flat out to start taking “real” iron supplements. I did. That Friday I bought a bottle of 25 mg tablets. Today, I was at 37%. Yippee!!
So, like I have two sore arms, and I decided to have someone help me paint my master bedroom this weekend. Oh joy.
I’m still stressing about getting ready to take 13 days off work. I teach school, so I timed this surgery for two weeks before the end of the semester giving me 3 weeks of Winter break to recoup. One perk: as department chair I gave myself a teaching schedule that would, hopefully, get me through the afternoon fatigue. The Assistant Principal in charge of scheduling was very supportive. I put it this way: Better a teacher from 6:30 am to 12:30 pm for a semester, than a substitute for the first 2-3 weeks of a new semester! Despite that, I still feel I am making a big, whopper of a mistake going back after 4 weeks, and I will probably be dead tired no matter what I do to my routine. But if I can just stop the:
bleeding from all-too-frequent periods
the fatigue
the distended belly
the 1,000 trips to the toilet
and the unexplained (but not really) little pains that hit the just before my period…
It’ll all be worth it.
I am taking the advice posted and upping my excercise routine for the next three weeks, concentrating on my back muscles. I just hope the needle for the IV is less annoying than the one used for donating blood. It was fine going in, but after 10 minutes I wanted to rip it out. I am sure the blood pressure cuff was the culprit. So, if anyone else is needle squeamish, tell me: what is the IV like? Is it something that gets jabbed into the back of the hand, or into the arm?
Well, I am off to veg on the couch for the evening. Painting contines early AM tomorrow. I know, I know. I should not have taken on a project before surgery. But, I’m thinking, nice fresh paint will make recovery better.
Ciao
November 18, 2006 at 3:44 am
lol Had to laugh when I read Val’s post (sorry Val!!) It took 15 minutes for the nurses to take 2 phials of blood from me!!! Dread to think how long a pint would take!!!
November 18, 2006 at 8:26 am
LOL – one of the keys to donating blood is hydration (and your iron level). Pixibell I laughed too cause I am on the other side of blood giving. I remember when I had to get a full blood (hubby too) workup and hubby was complaining about 3 vials….I looked at him and said wanna trade ….I had to give 12 vials but was up before him…LOL. LOL The red Cross LOVES me….
the IV – well the anestheologist put an IV in my hand (hand was numbed so it felt like a prick and a sting) just prior to surgery. When I woke up that was gone and there was an IV port in my arm (actually on the “inside forearm about 6-7 inches up from my wrist). It was taped down so I really did not feel it until towards the end of my hospital stay…it looked ugly …brusing and the nurse offered to change it…ahhh…noooo that is OK!!) Had the IV for like 2 days but once the IV solutions stopped…they left in the IV port to give m me Antibiotics every 4-8 hours during my stay….my arm was bruised for about a week after wards
November 18, 2006 at 11:52 pm
This is truly a great site. I have read every post and thank you all so much for sharing your tips and experiences. My AM is scheduled for Dec. 5 in NYC. I have an pre-op and pretesting appt on Nov. 29 with my Dr. (OB/GYN) who is performing the surgery. I am 43 yrs. old with one child and wish to preserve my uterus and not rule out having another child. Nearly every Dr has pushed for hysterectomy. I surely pray that what I am about to endure is truly worth it. One consolation is that the Dr. told me that at my age, there is virtually no chance of new fribroids growing. I would appreciate any comments, words of encouragement, etc.
All the best in your recoveries and much success with your fertility and pregnances.
November 19, 2006 at 7:12 am
Thanks Fibroidfree
This site is great…….had me prepared and ready for surgery.
Well I had my AM 4 days ago on Nov 15 and all went well. My surgeon was very happy with everything and I even got sent home a day earlier than planned .
I had the one fibroid aroudn 7cm that i have had for 11 years and there was a tiny one under the huge one 4mm. She used the same c-section incision (bikini) so no new marks. Of course future will all be c-sections…….
I did not need blood since my blood count was up …..thanks to working out and taking iron pills presurgery. Surgery took ~2 hours was in recovery about 1.5 hr and then to my room. I walked 7 hours after the surgery. The catheter was removed the next morning since I was mobile and the IV came out after lunch since my blood work was great and I was eating everything. Also they cancelled the heparin (prevent blood clothes needle) the next day since I was walking he entire hospital. Also my blood levels were picking well and everything lookde good(I was bored in the hospital) so on day 2 Postsurgery they took oout 18 staples and sent me home (YIPPEE)
I have been home 2 nights and sleep on tonnes of pillows so I am not flat on the bed.(remembered after my c-section Icould not get off the bed at home) easier to get off without help with being propped on pillows. Also i was worried about doing stairs at home but all is fine. I plan on going this morning to church for mass. So …….
November 19, 2006 at 7:18 am
Robbi
Our cases seem similar …..one child and hoping for more.
You have made the best decision.
Also with tips from this site, you are on the way to recovery.
Remember your recovery is in your hands ….doctors and nurses are ther to help
We have tried for 6 years to conceive and our only option was removing the broid which was blocking sperm getting to the tubes…….so hopefully all works well now that the broid is out.
November 19, 2006 at 7:25 am
My instructions on leaving hospital Friday night (2nd say after surgery)were
No driving for 1 week.
No sex for 6 weeks
No lifting
Post surgery checkup in 6 weeks
Eat lots of fibre and fruit
Walk a lot
Drink lots of water
November 19, 2006 at 7:33 am
Also My Surgery was on day 3 of my period so on day 4 I still had clots as normal but the nurses were worried and called the doc who assured them as I had that it was OK.
Though this period seems to be a bit lighter. Though for the last 2 cycles I was using progesterone so it could be that.
Though the dr warned me that the next period will be my worst ever and tehn after I will see results from the AM and lighter periods.
November 20, 2006 at 11:12 am
Hope everyone is feeling better and recovery is going well.
E! let us know your post Op appointment goes this week…
Robbi- a few words of encourgement. You ARE doing the right thing because its your choice. Yup a lot of doctors think hysto….and that is a choice for some…but why MUST you….its your body and choice and it you want to keep your uterus for whatever reason that is your choice not the docs…. that is the beauty of an AM. So good for you!!!
About the returning fibroids…I asked my doc about that too (I am almost 40) he said like you stated – fibroids dont return or regrow – new ones grow and your chances of them growing become significally less (not impossible and it still depends on things like estrogen dominance or hormone replacement therapy and all the other factor) as you get older. I posted somewhere on the site an article with some info about this….that you are more likely to see new fibroid grows when an AM is done younger (ie 30’s) than if its done later (late 30-40’s)
Good luck with your surgery !!
November 20, 2006 at 1:49 pm
Well ladies, I had my surgery Nov 9 and was sent home Nov 11. Felt great for 2 -3 days, before developing a very high fever (103.3) and severe vomitting. Rushed back to the hospital where I have just spent another 4 days, fighting off a kidney infection (ecoli bacteria was in the kidney & my blood stream). My first night there I spiked a fever of 105.6, which everyone informed me was very bad. As they were packing me with ice at the time, I pretty much figured out for myself that it wasn’t a good thing. I just thank God that my mom was here taking care of me and got me to the hospital in time. My doctor did not prescribe any post-surgery antibiotics, which everyone has now told me was quite odd, and probably why I got an infection. At any rate, be warned and be aware.
November 20, 2006 at 6:00 pm
I got home yesterday after having an AM last Thursday – my doctor removed six fibroids (three more than we thought I had). I was having terrible bulk symtoms, and my doc says I’ll be much more comfortable now. I’m tired and have some pain, but otherwise feel surprisingly well, considering what my body’s just been through.
I want to thank everyone here for sharing your experiences. I spent a lot of time here before my surgery, and I felt really well prepared for my surgery. I knew what to expect, which did A LOT to lower my stress level. Now I’m back and learning that my post-surgery symptoms are normal – so I don’t have to worry.
One symptom I didn’t see – I’m peeing constantly. I don’t have any pain, and I don’t think I have a bladder infection (they checked for that before I left the hospital). I suspect it’s a combination of water retention (my ankles seem swollen) and the fact that I wasn’t peeing very successfully while in the hospital. Has anyone else experienced this?
November 21, 2006 at 9:12 am
sejay45ca – so sorry to hear about your infection but glad you are ok now…. Luckily you keep aware (well guess the vomitting and drenching was a sigh LOL) and got to the hospital in time. Yeah that IS odd – no post op Antiboitcs to go home with??:(. My doc sent me home with a weeks worth of Cipro and I STILL got a bladder infection after that …so you are right…be aware and if you are leaving the hospital without Antibiotics ask the doctor or nurse WHY??????
Kathryn – Gald surgery went well!! Welcome to the road to recovery.
November 22, 2006 at 10:43 am
Hello girls – 3 1/2 weeks post-op. Feel ok, but still very tender, and sometimes feel burning inside and a few sharp pains. Is this normal?
November 22, 2006 at 12:24 pm
Hi Dee – glad you are feeling pretty good. What you are feeling is normal -the few sharp pains and burning I had too….still feel a bit sore sometimes 3 months post op (a little in certain places)
…make sure you arent running a temp along with the “burning” sensation..keep an eye on that (sometimes it can be a sign on infection – not typical but i mention because I got a bladder infection burning pain about 3-4 weeks post op) If the burning gets worst or does not go away….check on it..
[Edited by EclecticGeek to add link to post-op infection thread from the Forum.]
November 22, 2006 at 6:30 pm
Thank you Gwyn and Fibroidfree for the inspiration. I admire your courage and wish this wasn’t such a struggle for me (smiles). Does anyone recommend regional anesthesia, such as spinal “TENS” over general anesthesia for the AM? I am wondering if the regional anesthesia would make recovery easier and quicker. I also heard of a procedure called FRS (female reconstructive surgery). Can anyone share knowledge on this procedure versus the AM? I am feeling terrified about general anesthesia and sleepless over the afteraffects of the AM (e.g. numbness, nerve damage, scarring, adhesions, etc.. Honestly, I’m nervously shaking in my boots (AM scheduled for 12/5/06) wondering whether my life will truly change for the better after an AM. I’m spooked that no one has commented on the tummy scar or whether sex was pain-free. Best of luck to everyone and speedy recovery.
November 22, 2006 at 9:15 pm
Well, now one day post-op…. Don’t hurt too much unless I move. Still mostly on liquids. It is a bit disconcerting to have so many people concerned with whether I am passing gas.
November 22, 2006 at 9:21 pm
Robbi,
We’re going in for surgery the same week. I am scheduled for December 8. I just spoke with my ob/gyn who will also be my surgeon. Amazing: I called to get information on my last pre-operative appointment and expected to get his office staff. Whoa! He answered. Staff was out and he was in his office the day before Thanksgiving…after 3pm.
So, he gave me the rundown, and I hope this information is useful for others who are scheduled for surgery very soon.
I will need a CXR and an EKG at least 10 days before surgery. My GP could do it, or his staff could. He recommended…no insisted…I get the EKG done asap. Reason: if you wait a day or two before surgery, and the cardiologist finds anything “abnormal”, there is a good chance they’ll just cancel surgery. A week in advance provides time for a re-check.
Blood work has to completed within 24 – 48 hours, no sooner. Fine with me. My left arm is still sore after that first unit of blood.)
Lastly, I confirmed what type of myomectomy: straight abdominal myomectomy. My fibroid is large and transmural. I wanted to make sure we were both on the same page with that one.
I did ask about…er…purging before the surgery. Okay, let’s talk. I asked if I needed to drink the gunk that would clean out my bowels. He said not really. But I’m thinking…should I? The very thought of worrying about any extra strain after surgery just doesn’t seem very pleasant. Did anyone else do any cleansing, other than just a low residue diet or the required 12 hour fast?
Tomorrow I am going to a restaurant with a friend for an early Thanksgiving dinner. Neither of us have family close by so I said, we can do a “poor us” dinner then go see Casino Royale and stare at Daniel Craig. I’ve never see a James Bond movie in my life, however, I will make an exception for this particular Bond.
May everyone have a restful, safe, and truly blessed Thanksgiving.
Ciao!
November 22, 2006 at 9:41 pm
To Robbi and everyone:
Hello. I just discovered this site today. I too was very nervous about having an AM even though my sister had one a few years ago and is doing fine. Although I had always had heavy bleeding and major, crippling cramps, my symptoms became worse in 8/03 after I went off birth control pills. It just got to a point where I was missing too much work and was just plain miserable. I finally had my AM on 2/7/06 so I am about 9 months post-op. Unfortunately, I was one of those “very rare” cases and developed a bowel obstruction after the surgery. I had the best surgeon in Arizona and he is still perplexed about what happened. I just keep telling him, I’m “rare.” Anyway, 9 months later, if I had to do it all over again, I still would, despite the complications. My symptoms from the 6 fibroids they removed are now gone and I am feeling better gynecologically. I don’t mind my bikini line scar a bit. It has softened up and lightened with time. As for sex, most of the time everything is fine but occasionally with deeper penetration, there is some pain involved. You just need to communicate with your partner and everything will be fine. My advice to all you post-op gals is don’t push yourself too soon. I know it gets boring and mentally you are ready to run a marathon, but the best thing you can do for yourself is allow your body to completely heal. Someone nailed it on the head earlier, if there is pain, your body is trying to tell you something. LISTEN TO YOUR BODY! Hope this helps and good luck everyone during your surgery and recovery.
November 23, 2006 at 7:16 am
Hey everyone..I just got caught up with the post and am very happy to see some new “friends to the site” Dee I am very happy to see you are doing ok. Your situation was very similar to mine so I was very happy to see that you were doing ok. To Fribroid free, thanks for your post. I had my pre-op today and was well prepared with the questions to ask my doctor and everything that needs to be done. My pre-op went fairly well. A good and understanding doctor is really very important when you are going through so many things. My fiancee went with me today and you could have sworn that he was having surgery. She answered every question for him to make him as comfortable as she could with the surgery. I really appreciated that. I do have a question though. Once I left the doctor’s office, I went to the hospital to pre-check in and do my blood work, insurance stuff, etc..while there I spoke with anesthesia and was given the option to try a new pain medication that they are studying instead of morphine and the regulars. Now for the life of me, I cannot remember the name of the medicine, but she stated that they have been using it for years in Europe and if I signed on to do it, we would be paid $400 and then be apart of the study. My fiancee was dead set against it. Didn’t sign up for it, but I was just curious if any of you had been offered this option. Otherwise I have 3 fibroids 5,6, and 7 cm respectively and a few small ones in the middle. Everything should be ok my doctors says. I have my AM on November 30th for 7:30…counting down the time..Good luck to everyone that is scheduled for surgery and Keep pushing to everyone that has just come out of surgery…I feel very prepared thanks to you..
November 24, 2006 at 10:22 am
Did any of you have an LMA for their anestesia instead of a tube all the way down the throat? I would like to ask for one but not sure they will allow it.
November 24, 2006 at 5:49 pm
Day 3 now. Biggest problem is still moving from one position to another. I am staying with my parents so they can help me, though I do feel a little guilty when my 85-year-old mother has to get down on the floor to put my shoes on or plug in the computer or whatever. I called my father on the cell phone at 3 this morning to come down and help me get out of bed so I could use the bathroom and take a pain pill. On the plus side, I don’t walk any faster than my mother does–we went around the block this afternoon very companionably. Bowel kicked back into action today, and the sore throat and chafed nose from the anesthesia (I assume from the anesthesia, not like I have any real idea what they did to me in there) are pretty much cleared up. Numb above the incision and a bit puffy, but it doesn’t look too alarming down there from what I can see. Still no appetite, but I think that’s probably a good thing. Moved up to a more difficult level of sudoku.
November 24, 2006 at 8:03 pm
Hi Ladies,
Everyone is always helpful here so I have a favor to ask. There’s someone on the Oprah Forum who wants an AM and is looking for a good doctor in NYC. I’ll quote the whole question because she’s looking for someone with a case similar to hers. Here’s sminch’s post:
If anyone knows of a good fibroid doctor in NYC who handles this type of case, please leave a comment. Thanks (as always) for your help.
November 25, 2006 at 1:58 pm
Robbi – Let me tell you for me…life is DEFINITLY better post AM. I would do it all over again. For anesthesia …I was not given any other choice (nor would I personally want) anything other than please knock me out totally and let me wake up later…LOL Seriously. I suppose it depends on how many fibroids they are removing. My surgery was 5 hours so to be awake for that long??? not happening. I suppose if you are schedued for a short (hour or so) surgery it could be done. But the doctor may want you out in case surgery goes longer than expected. Remember the experiences shared here may not happen to you in totality..meaning….you may or may not go though all or some things depending…I know I am probably an example of worst acase (due to the number, location and size of my broids)…so I may go through things you never will…..so take what you read with “a grain of salt” …dont let the experience scare you use it as a knowlege tool (the AM encylopedia LOL).
My incision….well was uneventful…it healed really well..a flat scar that is beginning to fade….didnt hurt or didnt itch a lot..
Sex is not painful…but like Carlie said…if it is you have to communicate. Sometimes for me the pressure of hubby’s weight on my abdomin is a little uncomfortable….but not painful
HI Jen – gald everythign went well…and yeah its funny to have people worried about if you are farting or not….Dont forget the Gas X pills if gas gets painful…they helped me a lot
HI Val -ahh yeah my doctor did order a “cleansing of the system” the day before surgery. It was a prescription of this giant jug with PEG (polyethaylne glycol and a selectionof fruit flavors) . It really wasnt bad at all to tell the truth. My doc ordered it becuase I had a fbiroid close to my bowels (and so he was not sure if the fibroids was attached to the bowels which it wastn) so that was for “just in case”. Plus it did make for a ’smoother” transistion post surgery…didnt have to worry about anyting moving through my bowels. He said he wanted it “quiet in ther post surgery” THat is why he had me on a liquid diet in the hospital also .grrrrrr…LOL
Glad everyone else is doing well and on the road to recovery
November 25, 2006 at 3:56 pm
Hi there — It’s great to read all your posts and get some tips on what to expect if I have an AM, which I probably will. In the meantime, can anyone give me advice on this question: do you recommend seeing a reproductive endocrinologist or a gynecologic surgeon?? There are a couple guys I’ve found here in NYC who seem to be fibroid specialists (they run two possibly competing centers, each called the Fibroid Center of New York… seems one left the first and “took” the center with him to a new hospital, but they both still use the name… there’s probably some heavy professional drama there or something). Anyway, they both are gynecologic surgeons, not REs. While it seems from the posts that an RE is best, these two appear to be specialists, so I’m tempted to go with one of them (whoever can fit me in first, basically); I figure they’ll refer me to an RE if that’s really what I need. Any thoughts?
Thanks so much.
November 25, 2006 at 8:37 pm
Post Op Appointment was fabulous! The doctor said that I was healing up quite nicely and she didnt’ see any internal scarring. Also, I was paranoid about developing a yeast infection from the antibiotics .. but I didn’t. My cramming of cranberry juice and water helped save the day. I’m still on restrictive duty until the 6 week mark. No lifting, no driving long distances, no “nookie”, no over exerting myself … for 4 more weeks.
I am feeling much better and after my last mishap, I banished myself to bed rest until my post op appointment. I am still clinging to the bed as I type. I try to relax when I can. I do feel a lot better. Also, my appetite has strangely gone back to what it was when I was 27 / 28 years old. I never craved for dairy, meats until my fibroids started to get out of hand. I’ve been eating considerably less. I think it is a combination due to the pain of getting out of bed to eat, without the fibroids craving estrogen filled goodies I no longer have an insaitable appetite and maybe Im mentally cognitive that I’m not doing a lot, so I should cut back.
Week 3 after the AM will be on Wednesday for me, I’m also going back to work on Wednesday. I have a desk job, so I’m taking in my pillow, ibuprofen and a jug of cranberry juice. I have a high cubicle, so I shouldn’t be too much of a nuance. LOL!
I do feel better, I can bend a bit now to stroke the dog. I can putter around the kitchen and cook dinner for the hubby. I’ve reunited myself with my vacuum cleaner and most importantly, I can now go out to the mailbox to be nosy and see what’s going on with the neighbors.
The only pressing issue now is my body. Prior to the operation, I had an okay stomach. I’ve recently loss weight. I was slimming down back to a US size 6. Like an idiot, I went to Victoria Secrets the other day to get measured. I didn’t know it would be so damaging for my ego. 36-37-42. I looked at the young girl as though she just cuss and spat on my grave. I headed straight to Walmart after a glass of Pinot Noir and bought a measuring tape. It was more like 36-34-40… which isn’t much better. I was wondering why is my entire stomach inflated bigger than it was before? My stomach is so swollen, it’s hard and it hurts. I have even gone so far as to purchase an extra firm hold full girdle and two light control girdle briefs. If my husband gives me his card, I’m going to try and find a waist cincher engineered by the same blokes that built the Golden Gate bridge. LOL!
In the big scheme of things, I know it doesn’t matter because this time next year I hope that I’m fat, waddling around with a healthy baby in my belly.
But I’m glad I’m getting used to the girdle, because I heard after a C-section you will need it.
November 25, 2006 at 10:39 pm
I live in nyc and I am having this doctor perform the AM. He has been voted one of the best doctors in NYC. He performs surgery at New York Presbyterian Hospital one of the best hospitals in NYC as well. He says he gets referrals from other doctors who can’t perform the AM. Hope this helps, here’s his website.
http://www.fibroid-choice.com/index.html
November 26, 2006 at 2:14 am
Hi, all –
Happy Thanksgiving, and thanks to each of you for all of the valuable information. I found this site on a total fluke, and have been reading the entire thing non-stop for hours! it’s almost 2 a.m.! There is already so much information on this site that I wasn’t sure I could add anything, but maybe there is one thing: the need for a C-section after an abdominal myomectomy. I have seen a number of specialists in the NYC area for an intramural fibroid that is almost the same size as my entire uterus. I have a pedunculated one, too, but no one is particularly concerned about that one. (As an aside to our UK friends — let me assure you that there are bad aspects to the medical system everywhere, including here in NY, where my gyn of 8 years did not detect either of my fibroids, one of which has inflated my uterus to a 4+ month pregnancy. Needless to say, I don’t visit her anymore . . . ) Anyway, when I recently found out about the intramural fibroid and was exploring whether it would affect my ability to conceive with the newlywed hubby, the possibility of surgery came up. I asked lots of questions about the ability to have a vaginal birth because it was so important to me. I never thought it would be, but it really, really was/is (even though I, myself, was delivered by C-section). I saw one fabulous surgeon (who, unfortunately, doesn’t accept my insurance), who explained when and why a C-section may be necessary. What he said was that the size and location of the fibroid(s) affects the level of disturbance to the uterus. If you have a fibroid or fibroids whose removal basically requires the surgeon to re-construct your uterus, then it is absolutely necessary to have a C-section for any subsequent pregnancy. The reason is that if a lot of reconstructive work had to be done, then the uterus becomes substantially weaker than it otherwise would have been. The pressure from attempting to deliver vaginally, and I am quoting here because it burned into my mind, “can cause the uterus to rupture — it basically opens up like a zipper — and the loss of blood is so fast that you will die like THAT [insert crisp snap of the fingers]. And the baby usually doesn’t survive either”. Well, all-righty, then. Sign me up for a C-section.
My story is still unfolding — I should know in the next few weeks whether surgery will be necessary or even if it would help given how deep in the lining my intramural fibroid is buried. Hmmm. Can’t go there and trying not to think about the downsides of all that — makes me too sad. If I do have to have surgery, you can bet I will be following all of your excellent advice.
Warmest thanks and regards,
ake
November 26, 2006 at 10:23 am
ake,
I had an abdominal myomectomy 7/8 weeks ago now and I went t o see my surgeon a couple of weeks ago for my post – op check. I asked him about whether or not I would need a C-section if I got pregnant again and he said that I wouldn’t and he would be happy for me to labour on my own (noce of him!).
He said it all depends on what they have to open up during surgery but they hadn’t done that with me and so I was OK.
My fibroid was a monster at 17×15x12cm and was wrapped all round everything including my stomach ligaments so I had to have a laporotomy incision (belly button down) and I thought that would remove my chances of having a natural labour but apparently not. I think I may still opt for an elective cesearian because of the risks that you described but don’t let one person rule it out for you before you have even had surgery.
As I know scans can be wrong – my diagnosis went from fibroid to cyst to potential cancer to who knows back to fibroid in the space of a month so don’t give up hope.
x
November 26, 2006 at 10:27 am
E! glad the appointment went well and you are relaxing!! I know your doggie is gald to get some “pets” again LOL Take is easy back at work…cause you will propabaly get tired easily…. Your tummy is bigger ( and OH you are brave to go to V secrets and get measured LOL) because of all the inflammation still going on with the healing process. Remember they cut through skin and muscle and fat and all those stiches are imflamed as they heal. The tummy will go down….it took me close to 3 months to see total “flat (ish) tummy” but it happens..and I am right here with you with the big baby belly next year LOL
November 26, 2006 at 9:46 pm
ann-marie — thanks for the positive thinking — i will try to keep my chin up! ;o) I’m pretty much resigned to, and ok with, a c-section if the final word i get is that I need to have the surgery. every single person I have seen thus far has said that I would have to do the c-section (plus, I’m a lawyer, and a litigator at that, so i’m sure that’s having at least a subliminal impact on the advice I’m being given). At the end of the day, if we can have a healthy baby and get me out of it in more or less of one piece, i won’t quibble about how the baby gets here ;o)
i am so glad the surgery went well for you and that you’ve got the all-clear for another pregnancy. good luck with the rest of your recovery.
ake
November 27, 2006 at 8:34 am
Hi Sina,
Based on the website you included, looks like I have the same Dr. He will be performing my AB on Dec. 5 and go for pretesting on Nov. 29. All the very best to you.
Robbi
November 27, 2006 at 6:22 pm
Had a little oozing yesterday from the ends of the incision, and the doctor wanted to take a look at it, so I had my mom drive me in (moderately terrifying) since I’m not driving for another week. Turns out the tape had irritated the skin–I knew there were some red lumps at the end there but I just thought it was the glue or something. So he cut away the tape at the ends where the blisters were and told me to put antibiotic ointment on it, and stuck a maxi-pad on the inside of my underwear for something to keep my undies clean without sticking to the blisters. So now I have something else to heal–let’s see, the blister on my hand from raking leaves a week ago Saturday is almost healed. But the incision itself still looks good, and I go back in a week to get the rest of the tape off. Maybe then I’ll ask to see the photo, because I know there is one
.
November 27, 2006 at 6:46 pm
Hello all,
man am i glad to find this site. I’m having my AM on dec 6th and i’m scared big time. this site had been a huge blessing. thank you to all who took the time to post us your experiences. It was greatly appreciated. I have a few questions and concerns about the recovery process. They might sound a little off but i really need to know.
1) shower. i understand that baths are a big no-no for the first couple of weeks post-op. thankfully i have a stand up shower with panals all around to lean on. When is it safe to take a shower and also is there like a plastic band you wear around the gauze on your stomach to make sure your stitches don’t get wet when showering?
2) Using the bathroom. ok gross but i still need to know. someone somewhere mentioned peeing standing up…maybe another site not sure. Is that even possible? how do you sit on the toilet without injuring yourself or making yourself extrememly uncomfortable?
3)stairs. Ok i have quite a bit of information on this one. no stairs at all. the problem is i have 18 stairs to climb to get to my apartment right after the hospitable. how in blazes am i going to do that without rapturing something inside me big time?! my hubby and i are busy thinking of alternatives to help with the stairs situation. the good thing is once i’m home i don’t have to come down. i won’t be going anywhere for a long time. but getting up there right after surgery is the problem. any advice? i was thinking of asking my doctor to let me stay at the hospital a few days longer to allow myself some more healing time before i tackle those stairs. p.s i’m big and i outweigh my husband 2 to 1 so no he can’t carry me.lol. any advice?
thanks ladies.
November 27, 2006 at 6:57 pm
Hi, Mimi28!
Talk to your doctor. I asked mine about stairs (because you can’t get into any of my family’s houses without) and he said no problem. I need to take them pretty slow still (1 week tomorrow) but they’re not impossible. Probably depends on how much they’re slicing and dicing.
Right after the surgery they have you on a catheter for awhile so you don’t have to go to the bathroom, which is nice. Mine was in for about 24 hours after the surgery, and then I couldn’t pee at first so the nurse had to reinsert it, which was not so nice. Sitting on the toilet hurts some, like sitting anywhere else, but it’s not like you have to spend a lot of time there. It was three days before I had to do anything but pee. Wiping is actually the bigger challenge. The nurses in the hospital are a good source of advice on this stuff–they’re really used to discussing bodily functions.
November 28, 2006 at 5:00 am
Hi, had my 3 week post op check up yesterday and the ultrasound showed that the internal healing is going well. Most of the blood within the uterine wall has resorbed and the endothelial lining is developing well. Will have first menstruation next week which is the next important healing point for my doctor. The measurements for my fibroid (saw the pathologist’s report yesterday as well) were that it was removed in two pieces. One was 10×8x5cm and the other piece was 10×9x7.5cm. The doctor had described it as the shape of an aubergine (eggplant) and I can imagine sticking those two pieces together it would be exactly that shape. I am still really shocked that there wasn’t much evidence of such a monster to look at me. My doctor really couldn’t tell me enough yesterday that I had a large intervention and I mustn’t overdo anything. Prior to surgery he had said that I could be back at work in 2 weeks but the earliest he would let me go back to work is 5 weeks post op. So another two weeks to chill and relax. What a shame!
Concerning antibiotics post-operatively. I had them for two days only and was discharged with nothing more than paracetemol….3 tablets x 1gram. My husband had to get to a pharmacy to buy more. The doctor says that infection is a risk but the risks of using antibiotics prophylactically outweigh the benefits. So far am fine and there’s no sign of infection but will continue my efforts to keep my immune system strong.
Still patiently waiting for the swelling to go down. The top level swelling has gone down enough for me to be able to feel the big internal scar in the abdominal muscles. Can nearly walk at my normal ‘Beci Fast Legs’ pace again and stamina improving. Appetite isn’t what it was but I put that down to the fact I’m not being as active. No 5km runs 3-4 times a week and circuit classes 2 times a week.
I did meet two friends from work for lunch on Friday and had a peruse round Habitat (thank god that shop is here in Brussels!) and was exhausted the rest of the day.
To Mimi 28, I have about 6 stairs up to my apartment block which I was concerned about when returning home. I took them one at a time and slowly. No problem at all. I wondered why I had been so worried. The biggest issue is when you go downhill or downstairs as you stretch your stomach muscles. Going up doesn’t put that pressure on these muscles. Take the strain with your arms and leg muscles and take advice from the nurses and doctors. Good luck!
November 28, 2006 at 8:23 am
Mimi28~
1) Shower: they will most likely have you shower before you even leave the hospital. This is their way of having you move around a bit as well. And then, after that, once you get home it is fine to get your wound wet, just pat it dry. You’ll be able to tell how much or how little.
2) Bathroom: what I did was try to sit straight up – no slouching over and then when I was ready to stand up, I held onto the wall and sat straight up. Your ab muscles won’t be working, so use your upper arm and back strength.
3) Stairs- I live in Florida and there are no stairs here but from what I heard, you just take them really really slow and you will eventually make your way up there.
But, the best piece of advice for recovering is try and try and try to get up and walk around the house as much as your body can handle without overdoing it. This will help things get moving and it will make your healing time go by quicker. Best of luck to you! : )
November 28, 2006 at 10:53 am
thanks for all the great advice ladies. that was really helpful. i told my husband to have a pillow and blanket ready for me at the bottom of the stairs just in case i have to take a little break during the climbing process.
But i do feel a lot better and i’m starting my countdown with anticipation now. i just want to get rid of these unwelcome visitors and hopefully have a little bundle of joy. God bless you guys and Good luck to all of you.
November 28, 2006 at 12:39 pm
Hi Everyone,
Someone was looking for agood doc in the NYC area. I am very happy with my RE. He just did my ab myo about a month ago. He has been doing myo’s since the 70’s and has never given a hysterectomy during unless the patient opted for it. He was on the cover of Top Docs 2005 edition. He was voted 1 of the top 4 in the state of NJ.(He is about an hour out of Manhattan) I think he graduated from Harvard? (Not that that means anything) Anyway my husband & I like him. He has been good to us and his office staff is great. No issues with insurance so far either. He also helped many friends conceive. His name is Dr. Miguel Damian. Please feel free to e-mail me with any other questions.
[katiekarolis AT optonline DOT net]
Katie:-) Lots of Babydust to all!
[Edited by EclecticGeek to make a minor adjustment to the address. There are certain people out in cyberspace who troll web sites and automatically harvest email addresses to spam. Unfortunately, I know this from personal experience.
]
November 28, 2006 at 6:10 pm
Hi Robbi!
Glad to know we are both going to the same doctor. You’ll have to update me on your pre-surgery exam and surgery too. I go in Dec. 13th for my pre-surgery exam.
What’s your fibroid story? Or if you already told it, where can I find it here? I posted mine on the [O Groups site under rosabacio] (one of many aka’s of mine).
Oh and ladies, are there any of you others from NYC? I have stairs in my apt. (I live in a walk up) but they don’t compare to those subway stairs! YIKES! I take the train to work, since I don’t have a car. How is the NYC subway commute post-surgery?
[Edited by EclecticGeek to add link to sina's story. Thanks!]
November 28, 2006 at 7:04 pm
Hey All,
You are all real troopers and I honestly couldn’t have made it this far without you
Sina: You can see the Nov. 18 post for my story. You bet, I’ll be sure to post on my pretesting and surgery.
Val: How are you holding on?
Carlie: Advice taken. Thanks.
Fibroid Free: Much appreciated. I feel a bit calmer now (think I can skip the valium for my appt tomorrow–just kiddin)
Katie: Glad to hear your news. I was unsuccessful at finding a good Dr. in NJ. Didn’t seem to want my case unless I was trying to get pregnant. Guess just wanting to keep MY uterus wasn’t good enough a reason. I mean afterall, it does have its place (smiles).
Cheers,
November 28, 2006 at 10:46 pm
Another milestone today (1 week post-op): had the first friend ask whether I was back at work yet.
November 28, 2006 at 11:45 pm
Hello Everyone:
I’m just 10 days from surgery and the stress level is building. It’s the job. It’s more work to be ill as a teacher than to just show up and tough it out. I will have to put in a full day this weekend just to get all my lesson plans set for the substitute.
Also, I am now worried about the timing the pre-op tests. I have to go to my GP, for a pre-surgery clearance – the EKG, CXR, pregnancy test, CBC, etc. Not a problem. It’s the freakin staff IN the doctor’s office that I worry about. Just getting some ditz to call me back to make an appointment is worse than eating a slice of fruit cake. I love how I called right after I got home from work (3:00 pm), only to be told I couldn’t make an appointment until my surgeon’s office faxed over the request for the pre-surgery clearance. Oh, and once I got my surgeon’s staff to do so, Miss “I’ll Call You Right Back” at my GP’s – didn’t. And this was after she proclaimed she would contact me before the office closed at 4:30 pm. So now I am worried it will not be what’s in those tests that cancel my surgery, but just getting the tests done on time (and a signed pre-surgery release) that will be my undoing. They’ll lose everything. I know it. I feel it.
Okay. I am back. My brain was just sucked out of my ear from the “what ifs”.
I am going to bed. I’ll deal with little Miss “I’ll Call You Right Back” as soon as the office opens tomorrow.
Ciao
November 29, 2006 at 3:58 pm
Hey ladies,
I asked this question a little higher up but didn’t get any responses so I’ll try again. Does anyone have any thoughts on whether it’s best to see a gynecological surgeon or a reproductive endocrinologist? I wonder if an RE might have a more holistic approach, whereas a surgeon might just be interested in surgery…? Any benefits from going to one versus the other?
Also, how important is it to have an ob/gyn who’s involved in the process? I’ve seen four ob/gyns in four years (I’ve moved jobs a bunch and left one who I just didn’t like) and don’t have a regular one, so i feel kinda out there on my own in terms of not really having a doctor-partner to go through this all with.
Thanks for any feedback!
November 29, 2006 at 8:59 pm
L-Dub,
I went to two gynecologists and the second referred me to a reproductive specialist for a second opinion. Worth every penny that my insurance didn’t cover…which would be none since this doctor was not part of the my PPO’s network. Anyway, I had a long consultation and got great advice. He then wrote a report based on our conversation and the radiologist’s ultrasound. He sent it off to my gynecologist with his recommendation.
Getting that extra advice either confirms what you already know, or gives you more information you never knew about. Both were true in my case. The bottom line is just get that second, even third, opinion. I don’t plan to have any children, but I wanted the specialist’s viewpoint because I know that he, well, specializes in trying to preserve a woman’s childbearing ability. For me, that meant more options other than a hysterectomy, whether I wanted children or not.
Keep searching for that right connection with a doctor. It’s worth it.
Oh, and by the way, I got my pre-surgery clearance appointment. It’s this Friday. Wish me luck that everything checks out A-Okay!
Ciao!
November 30, 2006 at 2:09 pm
Hi Val,
Good luck with that appointment! Moving another step closer to surgery and fibroid freedom — yay!
Thanks for the info on doctors. I have an appointment with a gyn surgeon next week and even though I’m afraid he’ll be totally pro-surgery, maybe he’ll be more open-minded than that. And maybe he’ll refer me to a good ob/gyn or RE. Without a regular ob/gyn, I really do feel like I’m flying blind.
Take care and let us know how it goes tomorrow.
November 30, 2006 at 4:16 pm
Hi, I’ve been reading and this site really give me a lot of hope and peace of mind regarding the myomectory. I am in the process of selecting a RE to perform the surgery. I have a question regarding taking Lupron prior to the surgery.
The first RE seems to be quite good, and answered a lot of my questions. But he is 1 hour away. He said no need to take Lupron. (my own GYN said the same thing). I’m not anemic.
The second RE has good credentials, but didn’t go into as much details as I need. He said that he typically give patients Lupron prior to the surgery to prevent blood loss, shrink fibroid so that incision is smaller and recovery better. I’m a little confused by this. He didn’t ask about my blood count. What do you all think of this? He is 10 minutes away from my office, hence I’m attracted to the convenience.
Will see another RE locally just to make sure.
I’ve been avoiding the thought of surgery for a while (the classic depression, denial, acceptance cycle)…now that I’m close to a decision, I’m a lot more at peace — although now fibriod occupies my mind more than it should! This site has been a great help!!!
November 30, 2006 at 5:53 pm
I think they should check your blood cause anemia is very common with fibroid victims. Also, my doctor didn’t suggest lupron for me and my tumors are very large. I think it depends on their experience with taking them out…not sure, but for me, Lupron is not an option since I don’t know how it will effect my future pregnancies.
November 30, 2006 at 9:19 pm
Peace,
By the time I went in to donate my two units of blood for my surgery, I was anemic. Probably was all along, just didn’t equate that tired feeling to anemia or gazillion periods caused by the fibroids. Nonetheless, I said no thanks to Lupron. Why? The very thought of being thrown into “temporary” menopause sucked. Also, I figured, how much could the thing shrink with the Lupron? Not always a guarantee that it will. I agree with sina. If your surgeon is skilled, think about whether you want to deal with the side effects of the drug versus a little extra recovery time.
You’re on your way…you’re getting the second and third opinions and that’s imprortant. You’ll know when you’vre found the right person. After you’ve evaluated the credentials, consider which doctor you feel most comfortable with. There was one I consulted that was a little creepy. Good credentials, but…
By the way, my iron count shot up after just a few days of iron supplements. I’m still on them and will be, right up to surgery.
Getting past the pre-surgery clearance is my main goal now. With done, I’ll be home free…and soon fibroid-free.
Ciao,
December 1, 2006 at 12:00 am
Ladies, I am at 8 weeks post op and I go back to work tomorrow. My stomach has gone down alot and I have lost weight in the past couple of weeks…I am estimating about 10 pounds total. I am feeling pretty normal and my period was awesome. No more being scared to leave the house that time of the month…yeeaaahhh!
I had an ultrasound today just to check things out and I have to go back for a pap later…not excited about that at all. I am so glad that I had the surgery!
December 1, 2006 at 12:45 am
Sina and Val,
Thanks for your input regarding Lupron. That’s how I felt too. RE #1 asked about my blood count; while RE #2 said that he more or less gave Lupron to everyone prior to an AM. Since I am not anemic (blood count always normal, although towards the low end as my period is heavy, but luckily not terribly bad), I thought that his suggestion was without merit. That bothered me somewhat.
Good recovery to all of you who’re post surgery.
December 1, 2006 at 7:36 am
Sina,
Went for pretesting on Wed and it was a breeze. Met with Dr. for about 30+ minutes. He covered all of my and husbands questions with great ease, detail and confidence. (Husband requested photos of fibroids and uterus.) Dr. made no mention of Lupron. I felt so relaxed and hopeful about my future. (I too put surgery off until completing grad school in May 2006). Then walked down street to hospital for pretesting. Staff was absolutely wonderful and made me feel like a princess. Took blood, urinalysis, pregnancy test, EKG, vital signs and medical history. One nurse could not stop raving about Dr.’s accomplishments and assured me that I was in the finest hands. (This felt so good!) She has a daugher in CA with fibroid probs and said she would have given her last penny to get same Dr. However, there’s the insurance issue.
I’ll have general anesthesia, bikini incision, self directed morphine if needed, intraveneous antibiotic, 2 day hospital stay. Dr. said nurses will have me using a breather apparatus to clear lungs after surgery and will have me walking day after. If all goes as expected, I’ll be able to have have sex in two weeks (no deep penetration), resume pregnancy attempts within 4 weeks. C-section is recommended due to scar. I’m just waiting on the Dr’s call on Monday, Dec. 4 with instructions on bowel cleansing (must drink some Fleet stuff around 5 p.m. and stop eating solids) and other prep info for surgery on Tuesday, Dec. 5.
Took four trains to get to Dr. office and he was worth every bit of it
December 1, 2006 at 11:05 am
Robbi – glad it all went well. Soon you can join the Recovery Team. They gave me the breather thign to in the hospital too. It looked simple but it was hard at first becuase it make you use your abdominal muslces (which you don have )
Val – gald you got a date..How did the pre appointmetn go?
Peace – My doctor initally recommended Lupron (not becuase of anemia) due to the size of the broids. I refused to take it (based on the side effects) and in the end he didnt use it because for me to wait 3 months to shrink the fibroids say…30% was not a signfiicant amount in my mind (10 cm vs 7 cm what was the difference..none to me). Doc agreed but was skilled in dealing with large fibroids.. Also the Red Cross recommended (after I gave blood for surgery) to take Iron supplements upto and after surgery (I got Slow release 320 mg a day 160 mg x 2)
Fireanddesire – YEAH!!! So good to hear another sucess story!!
L-Dub – I didnt have a regular GNY when I started out on the fibroid journey (my doctor moved to another state due to high mal practce insurance anyway months before) I found a new doc (first time to her) and she was the one who sent me for a MRI immediatly then recommended me to a GYN surgon who recommended me to a RE. So….my GYN was not invovled in the process at all. You have to find the doctor that you are comforathle with but I am gald a RE was recommended cause in my mind He is in the business of “making babies” and at my age (39.99999) I figured I may need him afterwards. BUT if I can get preggers on my own (or with IVF) I go back to my OB/GYN surgeon. Just make sure your GYN has ALL your records from your surgery.
mimi28 – slow and easy is the name of the game with stairs…I wont be as bad as you think..just do the little kid two feet at a time…no need to rush you will be only rushing to relax LOL. Also as long as you dry off when you are done showering you will be fine…the stiches will be fine. It was hard for the first few days sitting on the toilet (I mentioned hovering to pee as I found it a little more comfortable than goign all the way down to the toilet.) But sometimes I got down and it took a whiel to get back up LOL it is funny looking back though. Yeah wipping was the hard part…I moved the toilet paper roll RIGHT at arms reach in front of me
Jen- Welcome to the road to recovery. week 2 – you will feel a TON better
Becs – glad the post op went well…Shopping NICE!! it is good to get out if you have the energy but dont over do it!!! Healing is still on going
for me..Feeling good…energy is back, loss weight (close to 15 pounds since the surgery – pretty good for a lazy ass who havent been to the gym LOL) and my period is finally “regulatiing” its now evey 21 days like clockwork (which makes for 2 period a month …sigh) Very heavy the first 1-2 day BUT gets lighter but my concern is that some times its still clings on for upto 7 days (very light but annoying). but I think that is still the submucosal fiborid “whole” healing. Well at least the old days of a 3 days window of ttt has opened up to 2 weeks LOL. Now armed with my expensive ass fertility monitor and ready to go!
December 1, 2006 at 12:45 pm
Peace~ a surprising fact that I learned is that even though you might not bleed alot during your period, the tumors actually suck up blood everyday! I just became anemic in the last 6 months.
Robbi ~ I’m so glad the pre-op test was a breeze! This is good news cause I was freaking out about it. When I got my ultrasound they told me I was in good hands with Dr. B too! This really makes me feel more at ease : ) Just think, next week you will be free of those awful fibroids!
December 1, 2006 at 7:39 pm
Hello Everyone.
I feel great! My pre-op tests went well. My EKG and chest xray – fine. The only thing the doctor noticed, which I already knew about, was a slight irregular heart beat, like a murmur. But since I had an echo two years ago (all clear) and an EKG just five months ago for my physical, I was in the clear. Whew!
Then it was off to pre-admitting for more information. This part was painless. They are getting most of my paperwork out of the way before the “real” admittance next Friday. I was scooted off to a nurse who asked more questions and set me up with a urine test and blood tests. I still have to go back next Wednesday for the last round of blood tests (must be within 24 -48 hours of surgery) and a pregnancy test. Then I’ll have one more consult with my doctor before surgery.
My doctor didn’t say I have to drink the Fleet stuff, but I bought it anyway and thought I’d do this weekend. I can eat a light diet next week and hopefully have an easier time of things. What do you guys think???
Here’s another plus (or maybe minus): I started my period today. At least I won’t have to worry about that popping up in the middle of surgery. After I left the lab today, however, I stopped by the store to buy a lot of stuff for my friend who will also be my house/petsitter while I am in the hospital. Anyway, I do my shopping – four big bags – get into my car, and notice something sticky on my arm. Well, I guess I lifted heavy things too soon after the blood tests. The little gauze pad that was taped on the inside of the arm, and part of my sleeve that I had rolled up, was soaked with blood. Warning: even a little needle prick can bleed a lot. This will definitely keep me from overdoing it after surgery.
Ciao!
December 2, 2006 at 11:16 am
Day 12–got my period this morning right on schedule, and switched from the hydrocodone to ibuprofen, which is what I usually take for that. Took a pretty long walk yesterday with no obvious ill effects. I do notice that standing is difficult, but sitting has gotten a lot better.
December 5, 2006 at 4:58 pm
Hi AM Ladies,
Just sticking my head in to thank everyone for continuing to leave such honest, encouraging, funny comments. I get email notification of comments on this site and that has given me extra incentive to boot my computer in the morning to check my inbox.
I know some of you are preparing for surgery, some are recently post-op, and some are well down the recovery road. I extend my best wishes to all and thanks again for sharing your experiences!
December 5, 2006 at 6:29 pm
Robbi, hope your surgery went well, and mimi28, hope yours goes well tomorrow.
I can drive! I can bathe, too. I am very happy. I drove out to the lake and checked on my boat.
December 5, 2006 at 8:53 pm
To Mimi28 and Robbi,
before “THE day”.
I remembered your surgeries are set for December 5th and 6th. Good luck to you both! Let us know how it goes. I’m on schedule for Friday, December 8th. My last set of pre-op tests and consultation are December 6th. Today was my last day at work. By the start of my last class, I was nervous. I had lesson plans ready for the substitute, but lists of things to do at home kept going through my head.
Starting with baking a Guiness Stout Chocolate cake for my hairdresser who will squeeze me in Thursday for one last wash, condition…and massage
Ciao
December 6, 2006 at 7:52 am
Hi all
Good luck to all those going through ops/recovery at the moment. Am on my last week count down now – surgery on 13th!!! Busy handing over jobs at work, teaching extra Access and Excel skills to colleagues so hopefully all my reports will still be running effectively next year!!! Like Val I’ve managed to squeeze and appointment with my hairdresser on Monday – a girl needs her pampering
Thanks for all the helpful advise from everyone – will keep you up-to-date with my recovery as I know how helpful I’ve found everyone elses comments.
December 6, 2006 at 5:37 pm
I’m so glad I found this site (I know I keep saying that)!!! Dr. office called me today and confirmed my insurance company has approved my surgery for Dec 19! I go for pre-op testing on Dec 13 and then the countdown begins. My lower back is killing me from all the pressure (a new symptom oddly enough) so I’ll be glad when these ‘buggers’ are gone!!! Goodbye!
Keep up with the updates! I want to know how all of you are doing!
December 6, 2006 at 6:31 pm
Hey ladies. I haven’t been on the site for a while and am working my way through your posts. I saw there was a mention of doctors and bad comments. I was diagnosed in June 2005 at what I jokingly call my “tri-annual” check up (don’t worry – I learned my lesson and will be going annually now!!). My doctor was in a big group, and they did their own ultrasounds on site. I managed to get in right away, and after he reviewed the film he came in and said: “You have a fibroid that is 10cm x 7cm; you’ll have to have a hysterectomy by the time you are 40-45 (I was 31). Any questions?” Um – can I go home?? – was the only thing that came to mind. He then told me if I wanted more information, look online. I am sure you all know the horror stories you can find online. The doctor I ended up going to had not only a lot of experience – but also a lot better bedside manner. I cannot stress the importance of finding the right doctor – no matter how long you have been going to a doctor.
Also – a funny update. I recovered from kidney infection and a week later (3 weeks postop) I was on a plane for Kansas to visit my sister and her family. I manage to find a direct flight and my wonderful mother (who has been my caregiver since surgery) flew with me, to make this visit possible. I’m here for 2 weeks. It took about 2 days of exhaustion to recover from the flight, but it is well worth it everytime I hug my sister and nieces.
My prayers and thoughts are with all of you during your road to recovery.
December 7, 2006 at 2:32 pm
Hi All~
Great site! I am new here….scheduled for an AM on December 26th, but also looking into uterine embolization. I know they (the docs) aren’t supposed to promise that it won’t affect fertility, but all the reading I have done says that pregnancy is possible and often successful after embolization. It is much less invasive….I just am so confused and don’t want to make the wrong decision!! Any thoughts??
December 7, 2006 at 2:54 pm
I’ve heard the opposite about the embolization. It can effect fertility from what I have read. But, I’m not a doctor…although my Dr. said that recent research is finding it’s not good too.
December 7, 2006 at 3:03 pm
I have seen some cases of ovarian failure- but usually only in patients over 45. I am healthy and only 31. I don’t want to take short cuts with treating this thing, but I don’t want to go through a longer recovery than needed either…..I only appear to have one large fibroid, and my main (only?) symptom is TONS of bleeding- non stop. I am very anemic and have had to be transfused on 2 occasions. I am getting married in March and we think we want kids…..
December 7, 2006 at 5:15 pm
Dang Fibroid – I am not a doctor but my fertility doctor told me and I will share his thoughts (Now my doctor has a TON/ YEARS over 20 years of fibroids and fertilty experiece…he is a leader in the field and also does research….so he is aware) and I quote
” the only procedure that will preserve your fertility is a myomectomy” let me repeat what he told me ” the only procedure that will preserve your fertility is a myomectomy”
…ok we had the discussion prior to surgery (the only time I cried in his office) that if he got “in there” and for some reason had to close me up and couldnt do the surgery to remove them- he may have to go to UFE/embolization as an alteranteive (very small change 2-3% but still a chance so he had to inform me. I quote again becuase it was burned into my memory …doc said and I quote again
” With that procedure UFE/emblolzation…I can NOT preserve your fertility”
(pan to doctor handing me a box of tissues…..and the tears rolling down my 39 year old face).
so if you THINK you want kids and you dont want to take short cuts…then (please dont take this the wrong way ) why would you consider somethign that MAY/Most likly can take your fertility away ….. becuase of a few weeks of recovery time?? Not sure if you have read some of the post on the site about recovery time for UFE and other procedures from some unlucky ladies on the site…supposed days ofercovery turned into weeks! so dont base the decision on that …. you have a data scheduled for the AM….go for it!!! I would get it over with, get healed and by end of Jan you will be good to go and by WEDDING BELLS TIME (congrats Bride to be) you will be roaring to go and stop that non stop beeling!!!
Recovery vs anemia , non stop bleeding and transfusions??? hummm
recovery is the EASY part of fibroids….trust me
December 7, 2006 at 7:10 pm
Hi,
I’ve been going through and responding to comments. Found this one on the fertility thread:
You can read the whole comment by clicking the link. If you have ANY information, please visit the thread and share. Thanks.
December 7, 2006 at 8:39 pm
Thank you, fibroid free….I guess with a lot of the reading I have done- there are successful pregnancies after UFE and I thought maybe the doctors are hesitant to “guarantee” preservation of fertility because it isa relatively new procedure. You are right though- part of it is that I am scared of my first hospitalization. I have had 2 D&Cs w/ hysteroscopy in the last year and still the bleeding and huge clots. I do like the idea of the fibroid being completely out of me, but the time off work and exercise- especially when I am trying to get in shape for my wedding (totally self-absorbed, I know!!)…..I talked with my fiance tonight and he said almost what you did- “so your choice is between kids or a shorter recovery time??” That hit home….I guess I am the type that has to research everything and feel informed and somehow in control- even though this is one thing that I am so NOT in control over….. and it seemed like maybe UFE was really good, but just too new to guarantee….but, I just don’t think I could live with myself if we aren’t able to have kids and I didn’t do everything I could to be able to one day see a child with his beautiful brown eyes…..Now I am not even sure that doing the MRI is worth the money. I don’t think my doc needs it for the Ab Myo…..
December 7, 2006 at 9:54 pm
My impression is that UFE is more for smaller fibroids anyway. None of the doctors I talked to recommended it in my case (one large, rapidly growing fibroid, basically asymptomatic), although fertility was not really an issue (I’m 44 and not even dating). Worth getting a second opinion, though, if you have questions about what your doctor is telling you.
December 8, 2006 at 6:48 am
Dang Fibroids!! I know what you mean my wanting to be informed and in control.. I did my best to learn every eenby beeny thing about fibroids and the surgery -had to get some power back – some control.. . LOL that is why I posted the “EMPOWERMENT LIST” on the site – things to ask your doctor…
My docotr even checkled when we asked me thd day of surgery…How are you feeling? Nervous, alittle scared and not in control I said..YOU nervous?? cant be …NEVER seen you nervous he laughed…HE assured me HE was in control and would make things better…and he did…That next day after a 5 hour surgery and 2 horus of recovery (rememebr mine was extreme..oh yeah “severe case”) I was out of the bed, catheter gone and my doctor was amazed to see me standing looking out the window when he came into the room the next day…
Its ok to be nervous or scared or even terrified about doing somthign new (especially inthe hospital) but think about the D&C’s and tranfusions…THAT has got to be worst than a few days of roudn the clock care and instant ‘can you get me this’ at the touch of a call button LOL…The hostipal stay and recovery …easy compared to what you are goign through now…
Yeah the MRI is worth it…it allows the doctor to “See what is there are where to go so there is less “Trama” seraching fo the broid.
YOu will have plenty of time to look great for that big day but now your health will be great too…so that is even better and I know your fiance wants you to get better….trust me..my hubby was so”lost” he didnt know how to comfort me sometimes and you know they get the Blank look when you say my pe..r..i..od…blank blank blank!!! Better for both of you all around… good luck
seajy45ks..nothing like family to make things feel better…glad you are the traveling gal!!! at least you didnt lug any fibroid luggage wiht you LOL
Val pixibell – good luck with everythign…can wait to se you on the REcovery side!!
December 8, 2006 at 12:17 pm
If you recall I had posted my problem with fibriods sometime early October. Well, yes! I eventually did go in for an abdominal myomectomy on November 11th (my second one, after the first in 1999) and the output was three fibriods of sizes between 3 – 10 cm! I’m now at the fag end of my recuperation period – will be seeing my gynae tomorrow and joining work on 11th Dec. I feel allright, except for little niggles – had an urinary infection after being discharged, which was awful not so much from discomfort as from the antibiotics
, and now having some acidity. One thing which is pretty significant is my diminished appetite. I’ve lost more weight sitting at home and sleeping than I have in my aerobic workouts! Now I hope to be on my feet asap, and work on getting my baby as soon as I’m allowed to! I’m 38 after all! What you do all wonderful women think??
I will keep referring to this fabulous website and all you fabulous and generous ladies who are sharing such illuminating info so warmly and honestly! Thanks again!
December 8, 2006 at 12:47 pm
Hey ladies,
I’m back! I had my AB myo on Tues., Dec. 5. Surgery was expected to be one hour; however, took 5 hours. Dr. removed 9 fibroids–biggest one was size of softball. Dr. said my uterus was buried by fibroids so it took a while to find it. No blood loss. Dr. had cell saver on reserve but didn’t have to use it. Dr. explained that 8 out of 10 institutions would have easily justified a hysterectomy in my case. I am so thankful that HE kept his promise that no matter what, I was coming out with a myomectomy.
Immediately after surgery:
Some vaginal bleeding (actually my period was due day of surgery). I suggest that anyone with a myo scheduled bring Poise disposable padded panties or another brand. These work much better than the pads they place on the hospital bed for you. Perhaps buy a one size larger than your normal.
Morphine PCA – really not what it’s chalked up to be. I felt drugged and the abdominal pain was still there. I requested Percoset and it was much better. Also had mefoxin (antibiotic) and another pain killer (Toradol 30 mg) both intraveneously. Catheter in place and Venaflow for calves. The Veneflow machine compresses the lower legs while you are bedridden the first day to prevent DVT (deep vein clots). Fed only ice chips the rest of day.
Day 1 post ab myo:
Catheter removed at 7 a.m. Yay! Sore and swollen as expected but feeling good. Pain killers are effective. Started clear liquid diet–no solids until able to pass gas. Walked the entire floor a few times, admiring the babies in nursery. Get tired easily. Urinating was painful but got better as time went on. Coughing hurts. Stomach was feeling bubbly and gasey. This is good sign.
Day 2 post ab myo:
Dr. removed bandages. Inverted stitches. Surgical tape outside belly. I like it–looks small, clean and very neat. Belched and passed gas a few times. So, I got a regular hospital diet for dinner. Packed and went home around 10 p.m. Hospital bed started hurting lower back so I did not stay to pay for another day. Ride home was really tough. Seemed like husband hit every pothole. We stopped to fill prescriptions (Percoset and Cipro) in order to make it thru the night.
Day 3 post ab myo:
Ate very lightly (fruit and tea) and bloated. Relieved to be home and able to join the Recovery Team with you. Feeling very pleased about AB myo decision and progress thus far. Deeply grateful to all of you for your support and helpful advice. Dr said since every case is so individualized, he will not schedule my next appt. just yet. He prefers calling me today and checking in routinely to see how I am doing, answer my questions and monitor changes. It is likely I will have a follow-up appt later next week or so. I’ll keep you posted.
Mimi & Val – How are you? How did surgery go?
Sina & Pixiebell – Congrats. You are on your way!
Jen – Thanks for the updates. You go girl! Sounds like you are doing terrific.
I wish everyone all the best with your research, surgeries and recoveries. Looking forward to reading your reports of progress and victory (smiles).
December 8, 2006 at 1:59 pm
Robbi!
Glad to hear from you…you were in my thoughts and prayers on Tuesday. Thanks for the advice. I’m going to add the Poise underpants to my list cause I was wondering if I would need something like that.
I can’t wait to get these out finally!
December 10, 2006 at 12:41 pm
Leela – glad things went well for you and the road of recovery was good (yeah those darn urinary track infection – had one too with the big stomach aching antiboitics LOL) Well my doctor suggested waiting 3 months post op to ttc (I am almost 40) and been workng on that as well. Make sure you are healed and yoru energy is up..I have to temper myself as I know I am still healing (been having a few “complications” lately) but pushing on …. Yeah for YOu!
Robbi – welcome to recovery. Yeah I had a 5 hour surgery too but doc wanted to be carfeul and percise. The beauty of a skilled surgeon!! I had to laugh when I read your “husband hit evry pothole on the way home…I know just how that feels…LOL
You will be feeling a TON better in 2 weeks but keep us posted on your recovery!
December 10, 2006 at 5:20 pm
Best wishes to all!
Thanks everyone for stepping in with fertility vs. embolization answers. I’ll just add my two cents to drive it home. Fertility was not an issue for me. That’s why I picked UFE. Before the procedure, I was given a nice little brochure from BioSphere Medical (company that makes the blocking agent). I will quote from it directly:
The company also has a chart that compares various treatments based on fibroid size and other clinical considerations (one being fertility). They need to add ExAblate but it’s still pretty informative. You can view it here.
Take care.
December 11, 2006 at 1:39 am
Hey Ladies,
Well, it’s day 5 post-AB myo for me. Things are going real good and it’s a beautiful day. Energy level back to normal. Can’t even see the scar. I had my first two BM’s and forgot about the Percoset today. Belly still feels tight and swollen. Guess this is just a reminder that I had surgery, but nothing unbearable. No fever, (taking antibiotic). Bleeding has dwindled to a smidgen. I found that I can stand upright when I exhale into the stretch and repeat a couple times. Got the stairs down pat now. The pain when urinating is slightly improving and Dr. says it’s normal.
I walked around my yards, decorated the tree, strung lights and ornaments outside. I already feel a big, positive difference in my lifestyle–feeling almost devilish again
. Any regrets? Only that I kept my condition hidden, did not do the surgery sooner and allowed those broids to rule my life for sooo long.
Fibroid Free – Thanks a bunch. Your earlier tip about applying an ice pack to belly worked wonders! I’m looking forward to that 2-week mark too and forgetting the preliminary discomfort. We’ll see if I am able to resume my belly dancing classes?
Best of healing to all of you!
December 11, 2006 at 3:14 pm
Hello to all……I can not tell you how wonderful it has been to have found this board. I am facing surgery on January 10th and am absolutely petrified. I have never had surgery where you go under general anesthetic and I am a bit of a control freak so this is just the hardest things for me.
I have a uterus the size of a 5 month pregnancy as well. I also have ovarian cysts on each ovary of which the Dr. is most concerned. I have to very large fibroids (grapefruit size) and many other golfballs. He will be doing all he can to remove the fibroids and retain my fertility but the ovaries will be the deciding factor. I have been on birth control for years and apparently ovarian cysts are not common in those on bc but very common in women who are not on bc. Anyways….the myomectomy scares me. I feel like I need to at least try to save my fertility as I am single, 26 and have no children. I have left it in God’s hands but am dreading this day from a fear perspective like you would not believe. It’s funny though because at the same time I can not wait to get rid of this ugly honking belly of mine. It is simply gross and i feel fat and ugly.
It’s so weird because I have been dieting for three years and have lost 60 pounds but my belly just never went down. Over the past year it seemed to be growing but I did not have any symptoms until the Dr. was alarmed by the size of my belly in a recent annual exam. I have had several ultrasounds and they are still growing so they have to come out. My uterus now extends over my belly button so I am definitely in dire need of this surgery….just petrified is all. I am afraid the anesthetics won’t work, afraid I will feel pain and know what’s going on and not be able to say anything (i wished they wouldn’t even publish those horror stories
). Anyway……just fear in general I guess.
I have been working out for two years and am physically in pretty good shape, and am fairly strong. I have stepped up my workouts significantly in an attempt to make the recovery easier but I am still a big huge baby about this whole thing. I should also note that even though I am a big huge baby emotionally I am determined to push the envelope on my recovery. I just guess I will have to listen to my limits that my body provides me.
My Dr. does not have much of a bedside manner but I have been with him for 8 years so I am going forward with him. I sought a second and third opinion and both surgeons knew my Dr. and felt he was very capable but agreed his style was different. The one other opinion I received told me he would be comfortable with his wife in my Dr.s hands so that made me feel better. He did mention to me that my Dr. just has a European style of doctoring (whatever that means). This second opinion also had no idea how my Dr. was planning to do a bikini cut given my belly size….he found it amusing which was discouraging to me but my Dr. assures me he can do the bikini incision…..we shall see…..it would be nice
.
I am donating my first unit of blood today and one on Thursday and am on iron pills to compensate. My Dr. felt a cell saver was not necessary and I was uncomfortable with that so I asked if I could jut donate to be safe.
Anyway….I just wanted to share my story a bit and thank you all for your suggestions, recommendations and everything else you have provided here. I am keeping a running list of all of your tips.
Robbi, I am so glad to hear you are doing well. I found this site just before you went in and have been thinking about how you might be doing.
You are all such an inspiration.
Thank you.
Judie
December 11, 2006 at 3:15 pm
just a correction….although I liked my first number…I am 36, not 26
.
December 12, 2006 at 12:51 pm
Hi, Judie!
. I really meant to get all my holiday shopping done–hah.
It was my first time to have general anesthesia, too, and I was a bit worried (did not actually write a will, but updated several pages of just-in-case information and told my brother where to find it). I don’t even remember arriving at the operating room, and the only problem I had afterwards was a sore throat.
Obviously, there are a lot of things you can’t do for awhile after surgery–my doctor says no lifting anything over five pounds for six weeks, which is three weeks now, and I still feel some discomfort if I sit for very long–so getting that stuff under control should occupy you enough to keep the worrying down to manageable levels
–Jenny
December 12, 2006 at 9:58 pm
I’m home! I had my surgery December 8th, 7:20 am on the nose and when I looked at the clock in recovery it was 9:00 am. The doctor showed me a polaroid. One reallllly large fibroid that looked like an alien head (or maybe a grapefruit) and about five baby ones lined up neatly behind it.
I have plenty share but first, thank you to everyone who contributed tips and advice. All of it was dead on correct. So for those of you who are scheduled for surgery or thinking about it, read every post, take notes, and be prepared for a very enlightening journey…and recovery.
I will share my whole adventure tomorrow. Peace and love (and fibroid free-me!)
Oh, I have to say right now…the first 48 hours were absolute hell. But last night, sleeping in my own bed, I realized I didn’t have to get up and go the bathroom. I got through the whole day (okay 4 hours) out and about with my sister-in-law driving without a singel trip to the toilet. That alone is worth the surgery. I don’t regret it one iota. I only wish I’d done it sooner.
Ciao!
December 13, 2006 at 3:37 am
Now 5 weeks post op and went back to work on Monday. Unfortunately for me it was an offsite meeting with the whole European management but fortunately only an hour and a half drive from Brussels. Monday was a long day and the dinner didn’t finish until 11pm. I noticed that being sat down all day with little chance of walking around caused my ankles to swell and then yesterday being sat down not moving caused my tummy to swell and to get some tenderness. I got home in the evening and after some dinner slept for 11 hours. What was interesting was that the men were falling over themselves to make sure I didn’t lift anything whilst the other two women in the team were somewhat less sympathetic with one saying that she was really surprised that I took so long (5 weeks) to come back to work.
Having seen my surgeon on Sunday (he was going for lunch at the same restaurant as my friends and I) and without being prompted he said that he would sign me off another week no problem if I wanted, this comment from a colleague didn’t cause too much grief. My friends who were over from the UK were all delighted to have seen the man who tamed the beast of my fibroid.
Had my first period last week and the first couple of days were uncomfortable but then it settled down. Overall it was a pale shadow of what I was suffering with 8 weeks ago. I was delighted that there were no chunks of liver making an appearance.
The one thing which is really noticeable is the weight loss. Nearly back to the weight I was 2 years ago which was my fighting weight. Now I’m back to a UK size 8-10 (US 4-6) rather than being a large size 10. Everyone has commented and also how much better I look even compared to a few months ago. Looking forward to getting the all clear next week to begin exercising again….as a beginner of course.
For those in recovery I hope that you continue to go from strength to strength. For those with upcoming surgery, I wish you success in your procedure and recovery.
December 13, 2006 at 11:32 am
Kiki – I just read your note, how are you doing? I just came back to work after 6 weeks, I had my AM on Oct. 30. I feel ok, but I’m still swollen around the incision, especially above it. Maybe it’s just FAT I don’t know. I had my post-op apt. yesterday, she poked around and said everything looked ok, I’m supposed to be having my period anytime now, she said after this period I could try for a baby. next week I’ll be 39 so we’ll see if anything works. I just feel like I’m all messed up inside or could be my head. Anyway I hope you’re feeling better. You had yours on Nov. 30th, so it’s a couple of weeks. Still very fresh. Let me know how you are doing.
Dee
December 13, 2006 at 12:10 pm
Welcome home Val and glad to see you onto recovery. All the best of healing.
December 13, 2006 at 3:09 pm
Hello Everyone:
Thanks Robbi for welcome back note! It’s day five of recovery. What an interesting journey this has been. I am going to get in all down in one attempt then say hello to another suppository…more on that later.
Tips on pre-op prep: If you have several weeks before surgery: excercise. Make it your number one priority. As much heart and lung strengthening… and back and leg strengthening as you can. I started back in July on a serious running regime after my physical showed I was at 143 or 144. I am 5′7″ and never weighed more than 128-130. Even that was odd for me since when I danced a lot, I kept my weight at three numbers: 123. So I got my weight down to about 132 before surgery and could have gone lower, but a few weeks before my scheduled date, I had so much “work” to do after work to get ready for surgery, I missed some workouts days. I didn’t spend time on my abs, which I regret. If you can, get in the ab work.
Another tip: keep the good bacteria flowing: drink kefir or yogurt everyday. I made it regimen for several months. Despite the IV hook up of antibiotics for two days: no yeast infection, no bladder infection. Tip three: get all the shopping, bills paid, any other little household chores done before surgery so that you can come home to peace and order. No running out for necessities. Have someone stay with you the first two days, minimum. My sister-in-law was great and was with me when I was released on Sunday, until just an hour ago. She was big help. Tip three: even though my doctor said it wasn’t necessary, I did use the bowel cleasening gunk two days before surgery. I didn’t do it the day before. I wanted to make sure I could replace all of the water and flush out any residual. I think it helped. You won’t want to think about a bloated, full stomach or a bowel movement the first 24 hours. Tip four: buy some of those extra long, extra thick menstrual pads – no wings. Take a couple with you and have a supply at home. They serve two great purposes: one, I did have a flow in recovery. Blood everywhere. Mind you, my period ended just the day before surgery, but my doctor said I probably would have had some bleeding anyway. I soaked through the recovery table, and the pad on the bed, before I remembered I had some pads in my overnight. I was allowed to wear them with underwear and the nurse, brought me a supply of extra thick ones. Which brings me to their second purpose. After the nurse removed the dressing from my incision, rather than gauze and tape, she simply placed one of the pads (not the adhesive side) on the incision. It was snug, comfy, and held in place by my underwear waistband. Didn’t stick to the wound, and I still wear one with undies so that the staples don’t snag on anything. Last tips: drink water during recovery. You’ll have an IV and a catheter (which wasn’t uncomfortable at all). But if you want that catheter out soon, you have be able to urinate on your own. The water helps. In some respects, the catheter was nice. It just…worked. You don’t really have to do anything.
Get out of bed as soon as you are allowed, even if it is just to stand…and it will be difficult at first. Once up, you may feel the pressure on the incision then a slight relief. You can drag your IV and catheter around for a walk down a hall. If so, do it. Go slowly. I made it around the floor on the first day, but also felt a wave of nausea. I didn’t throw up, but once back in bed (ugh! it hurts to stand and sit, stand and sit), I was given something for the nausea, and never felt it again.
Here’s the lowdown on the surgery:
I had to be at the hospital Friday, December 8, at 6:00 am. My friend got me there with plenty of time to spare. I got checked in, no problem. It was dark, and quiet. Here’s the hilarious part. We got lost getting to the right part of the hospital for surgery. We must have walked every wing for about 30 minutes until a nurse took us back to our starting point…and showed us the right way. They were actually going to start looking for me because the computer showed I had checked in…but was nowhere to be found in surgery.
We get to surgery at 7:00 am – plenty of time though. They prep you: Strip to nothing and put on the gown and some awful socks. Your belongings are all tagged with your information so that it can follow you to recovery and your room, so don’t worry. Leave any valuables at home. Just take a credit card and i.d., and few bucks. The nurse was great!!! She asked where I’d like the needle for my IV. I said, “what hurts the least?” The arm, but she said take it in the back of the hand…it will be easier to get around. I said go for it. I hate needles, but she numbed the area first with a little shot. Barely a sting. I honestly, honestly, didn’t even feel the needle go in! She taped me up, took some vitals, then let my friend come in and sit with me. My anesthesiologist came to my gurney to explain what she would do, then my doctor came in for one last check. Everyone double checked that I was who I was, and verified my procedure. I was wheeled off to surgery at 7:20ish am.
Down a hall, to a room that didn’t look anything like the surgery rooms on TV…until I saw all of those instruments. They scooted me onto the operating table, put some warming blankets on me, then straddled both my arms out, and strapped them down. They also strapped my legs down. That was creepy, but everyone was so sweet and calm, I soon didn’t think anything of it. The anesthesiologist said, “I’m going to send you off to sleep now.” I felt something sort of wave over me, someone put an oxygen mask on my face and said “breath”, only I remember thinking, I can’t breathe…where’s the oxygen? I thought, I’m not sleepy. That was my last thought…I was out. Probably a grand total of 45 seconds.
Recovery Room: When I awoke in recovery, my friend was next to me and I was facing a huge clock. I made a mental note of the time: 9:00am. I was lucid, in no pain, but oh, oh, the chills. I wasn’t cold, but I couldn’t, stop shivering. My throat and left arm hurt as well. My doctor came in and showed me “the” picture I had been waiting for: One huge fibroid – size of a grapefruit or a little bald baby’s head, and about 5 little ones he lined up next to the big. So, there were more than one, which is why the AM is sometimes better than other procedures because once in, the doctor can find any others that didn’t show up on the MRI or ultrasound. I was wheeled off to my room.
The actual stay: Once in my room, the chills continued. I was transferred from the gurney to the bed and that’s when they noticed all of the blood. I had felt something moist, and sticky underneath me, but assumed it was just nerves and sweat. Nope, a whole lot of blood. They placed a pad on the bed and in I went. They hooked my legs up to this device that massages them for the first 12 to whatever hours. That felt good. The pain began almost as soon as the massage started, so the nurse gave me a shot of demerol in my leg. Within a few minutes, I felt myself drifting and told my friend, this is a good time to leave…I know I’m going to sleep.
Friday afternoon I did get up once. AGONY! Okay, now I KNOW I had an incision and surgery. It really did hurt. But I stood so that could get some underwear and a pad on and the nurse could change the sheets. Back in bed, it was just…well me and my IV, antibiotics, bad TV, a liquid diet that afternoon and night of broth (yuck) and jello, cranberry juice, water and coffee. A wonderful combination that led to the nausea.
My doctor came by, checked the dressing and ordered it removed. I asked about the catheter. He said, maybe tomorrow. The rest of the night was uneventful, but only painful when I attempted to get up. That took work. When the pain did become unbearable even while just lying still, the nurse would give me a shot of demerol, which she said I could have every 4 hours. I opted for just one that night. I also remember asking for two more over the course of my stay.
Saturday: my catheter came out (yippeeeee). I was allowed to sponge off the dried blood and get a fresh gown. Downside: with no catheter, I MUST get out of bed more often. To make sure I’m getting enough fluids and am eliminating, the nurse put a measuring “cup” in the toilet. She would check it every few hours to see how much I was urinating. If it wasn’t enough, back would go the catheter. I made sure to drink water and cranberry juice, and though it hurt to get up and pee, it was worth it to never have the catheter again. By Saturday night, I was actually ready to go home. I figured I could be in pain at home, but be more comfortable there than in a hospital.
My doctor came in Sunday morning, only to find me up, unhooked from the IV (I was now on solids) clean (I took a slightly better “shower”) and dressed in my t-shirt and pajamas. I wanted to prove to him that I could go home. I begged….he wanted to keep me until Tuesday. He asked for a compromise: Monday morning. I begged some more, today. Pleeeasse. He said yes, but only if I had a bowel movement. That stopped me in my tracks. I had some gas…by the way which is good…but not bowel movement. I had been taking the stool softeners the nurses gave me but no luck. One thing did it: a suppository. My doctor had the nurse give me one. I put in it, and within 20 minutes, relief!!! Actually, it really, really made me even more comfortable. I was released at 12:30 in the afternoon on Sunday.
Coughing sucks too. I have strangled myself trying to avoid it. Keep water handy at all times. Coughing really, really hurts.
So, it’s been just one day at a time. Over the next few days, I was feeling like a million bucks because I finally took the percoset. So I walked my dog, then my sister-in-law and I went to the mall where I walked, I kept active. When the pain would hit, I’d sit. However, yesterday, I over did it. I woke up at midnight with a sore back and stomach. All of which reminded me: it’s only been 4 days.
I have to use the suppositories and softeners for a while. No problem. There is numbness above the incision and sometimes a burning sensation at the incision. It is sore and the pain is still there and I still need the ibuprofen during the day and the precoset at night. The staples come out on Friday. My belly feels tight and swollen. But, there is a bonus: the pressure on the bladder – almost 90% gone. I don’t dread going to sleep only to wake up thinking about the toilet. The bleeding still goes on, but it is as clear as a bell (no little livery-like gunk) and tapering off to the point where I can get by with smaller panty liners during the day.
Was it worth it? Once you get past the first 48 to 72 hours, which I will not lie, were, for me, awful: yes the surgery is worth it. Everyday you feel better. Soon you’ll walk completely upright again.
Advice: Under no circumstances should anyone go back to work for at least 4 weeks, evern longer. Trust me, in a week you’ll feel better, but the insides are NOT healed. It’s not worth a relapse. Rest. Relax. Walk…as much as you can…eat lightly….and hopefully, we’ll all get to that point in this journey where we will have come full circle and are ourselves again.
One note about eating lightly…I mean it. Eat too much, and boy, the extra food, just sits there pushing on your belly.
I’m off to do the suppository thing, which I forgot to do yesterday. Thanks so much to everyone. It’s good to be on the Recovery Team.
Ciao!
December 13, 2006 at 6:38 pm
Hello ladies. Just wanted to pop in and give you all an update. I am 6 weeks post op tomorrow and feel better than I have in years. Already am back to work with the little ones ( I am a Nanny for 8 different children ). Nothing hurts, I feel wonderful, people tell me I look great. My energy isn’t where it needs to be quite yet for my demanding job but I know that will get there. I have started excercising again and am so glad to be feeling this well. I haven’t felt this great in years- since those darn fibroids.
I am looking forward to going back to the Dr.’s after 2 menstrual cycles and he will ultrasound my uterus and hopefully give us the thumbs up to start trying for a little miracle.
Best of luck to all of you that will be going in for surgery and those that are recovering. We are women- hear us roar!!!!!!!!!!
December 13, 2006 at 9:14 pm
More than likely I will be having abdominal hysterectomy. Anyone has had this procedure?. I would like to hear your experience with the surgery & if it has changed your life for the better or worst. I am not looking forward to having this done and would appreicate your feedback.
Thanks,
Sanfly
December 14, 2006 at 2:28 am
Hi ladies,
AND having a big family is not helping either…I’ve had so much guest over my house that I can’t take it anymore the explanations, the worried eyes (oh my God she’s so young adn might not have kids) are you in pain??? what a question???!!! ahhh… I’ve come up with one answer “I had a c-section just no baby afterwards…that seems to shut them up. THere goes the mood swings you might think I have no feelings I love my family to death but sometimes I need some quiet time. Although this has been one of the most anxious and stressful times of my life I do not regret having AM…its taken a load off! I have no ab pressure, not peeing like a maniac, and don’t have to feel the tumor everyday…I have my body back. NO invadors! Yeah for that. NOW I have to deal with the recovery period OMG I have so much to do and now I have to rest… I’ve put all of my wedding plans on hold even the dress…I don’t want to buy a dress with my stomach looking weird and bloated…I wnat to lose some weight. I gained so much weight w/the fibroid. Emotional eating and fibroids are NOT a good mix…now waiting for the DR. clearance to join a gym and have a personal trainer put my body back to shape (cross my fingers before the wedding). Post surgery I’ve been feeling bloated, constipated, and get fatigued easily. I thought I was going to be back to normal in 2 weeks but reading all of your experiences. and noticing how my body feels… I’m going to take so more time off from work. I just hope that my hormones get back to normal if there is such a thing…but atleast a medium…I cant deal with staying home and becoming a house potato…the relaxing part of recovery is driving me to insanity…you are wise women do you have any ideas as per what I can do to keep hormone levels in good shape? Excercise ? Is it too soon to endure personal training? Any advice will be greatly appreciated 
Praise the the LORD I”ve finally found a website that speaks about my reality! I had my AM 10 days ago only if I found this website earlier! But it’s better late than never! I can’t get over it….fInally a group of ladies who understand my pain (literally) Having a AM at 25yrs old and preparing for my wedding 7/07 has been tough and has left me drained and depressed. MY hormones are playing tricks on me I feel like I ride a rollercoaster everyday. I feel sorry for those who surround me, b/c I’m moody (I’m not used to getting pampered so much)
To those that are going in for surgery the best of luck and a speedy recovery. ITs not as bad as you imagine…prepare to relax at home and watch lots of movies…
For those recovering hope you get well soon and back to your normal life
Thanks a million for all of your thoughts they are right on point!
December 14, 2006 at 12:01 pm
Just reading what Val wrote about coughing really hurting….absolutely! The first few days are just not good and water helps keep the tickles away. The other thing that is no fun is having a big full belly laugh. My advice would be not to play charades with your husband/partner/friend whilst still in a hospital bed. Whilst I was delighted that my sense of humour was still with me it was really painful to laugh.
One of the guys at work (a former nurse) told me that it’s really noticeable that I’ve had a general anaesthetic because my concentration isn’t what it was…..he wouldn’t accept that it’s because I’m tired.
Had I had this week over I would not have returned to work. I have been asleep by 7pm each night and have been getting a lot of pushing from my colleagues to do more. My boss says no!
Have fun!
December 14, 2006 at 12:38 pm
Fanny~ I hear you on the stress of having to have the surgery, the long time off- and a wedding coming up! I am getting married on 3/21/07- and in the Grand Cayman while on a cruise…so needless to say, I am feeling stressed about how long I will have to get in shape and look good on that day. My surgery in now set for 1/4/07. I switched dates (was originally 12/26) because I actually switched surgeons- to a specialist. I am driving across the state to have him do it, but because of the placement of my big one- I just feel better with someone that has a ton of experience! I’m nervous, but I guess also excited- to just have it out!! I am still bleeding badly and am worried that I may still need another transfusion before the surgery even! I also can understand the “you’re so young” looks- and the “poor you and your fiancee- about to get married and maybe no kids” and the fear that it somehow changes what he wants. I have a fantastic man though and first and foremost- he wants me– I am sure your man is the same with you!! So we are going to get me better, get married and then see what the future holds. I strongly have faith that if we are meant to have a little one- it will happen!!
Thank you sooooo much to all you ladies for giving your play-by-play of the surgery and what to expect and little tips. I am making notes!! It makes me feel like I will be better prepared and somehow more in control. I read Fanny’s post and realized that I really should try to do some gym time!! I used to go every morning but with the anemia- I haven’t for about 3 weeks. I am stressed about that, but still feeling kind of run down and afraid to push myself too much….trying to conserve blood, I guess!! And sadly, part of me also thinks “what’s the point? I am going to be unable to do the gym for 4-6 weeks afterwards!” I have been trying to do some core (stomach and back) exercises at home though…..For now though- I am just trying to get everything in order. I have gotten access to my work stuff from home and notified work of the leave of absense. I too, am hoping for shorter than the norm- but am starting to realize I may not be that lucky! I have a great boss though and I know she will work with me on what I feel up to…..
Happy Recovering to all of you and keep the updates and tips coming. You are all an inspiration to me!!
December 14, 2006 at 1:12 pm
Hi Everyone,
It’s Day 9 post AB myo and I am really battling boredom blues at home. Laughing, coughing or blowing nose is excruiatingly painful. Somehow, my intuition tells me that this will take much longer to go away. Otherwise, my pain is generally controlled (Percoset has been history for the past few days) and feeling pretty good
. Seeing my belly swollen and looking pregnant can be upsetting. I hope it goes down real soon or I’ll need therapy 
. Not much of an appetite so I am sticking with liquids, yogurt, fruits and veggies and sprinkling fiber crystals on everything. I can’t stomach the thought of eating anything heavier and having it just piling up in my tank. For the past few days, as needed, I have been taking Fleet suppositories to push the BMs.
Now, I have this nagging desire to get under the wheel and go for a drive. Figured that I have a 90-minute window when there is no one home to stop me
. Ah, it’s so tempting. What’s a good gauge to determine whether I am ready? Anyone else dealing with cabin fever?
Sina – How did your pre-op testing go?
Pixiebell – Hope you are doing OK after surgery. I’m sending some sunshine your way.
Jen – When did you feel comfortable with driving again?
All the best in your decisions, recoveries and moving forward with fibroid-free living.
December 14, 2006 at 2:55 pm
Robbi–My doctor wouldn’t let me drive for two weeks. Basically said I needed not to be afraid to hit the brakes
. It’s been fine, although I really hate speed bumps. Getting into and out of the car is still a bit of a trial, too. Way better driving myself than riding with my 85-year-old mother 
.
Kind of ironic, really–the hemorrhoid surgery I had in October was minor surgery and this was major, but the recovery has been *so* much smoother. I really feel pretty much normal except for the immediate sliced & diced area.
December 14, 2006 at 3:16 pm
Dang Fibroids- Thanks for your response. As you can see I’m at home and reading these inspiring updates…as I recover I’m experiencing almost all of the symptoms of post op. pain on the left side of the incision, lower back issues, and I can’t walk for long periods of time (since I feel all of the pressure in my ab/incision), I have a lot of gas too I’m drinking lots of gingerale to see if I get better…Holidays are coming soon, I will be doing ALL of my shopping thru the internet. Fun times I guess no long lines
Congrats on your wedding you will be fine and look great. Last night was a sad one for me but today I’m in a better spirit…we need to take it one day at a time. My fiance has been a great support system. its not easy for him nor me since we have never had children or married for that matter. So sitting down to talk about the risk of the surgery was not easy for me since my dream is to have children and thinking that my uterus might be affected made my heart shrink (but thats the surgeon’s responsibility to give you the full picture no sugar coating there). But it only made our relationship stronger love is a beautiful thing…and hope is what keeps me going. We will have our babies when the time comes, I’m not going to rush things. I need my health back and my emotions on track. ABout work yes please speak to your boss you will need lots of rest prior to going back to work. I have a great communication with my boss as well. I can actually work from home so I’m grateful for that since the short term disability checks are not in sight (not that their net pay is enough to survive at NYC). I need money for the wedding stuff you know they are kind of expensive. Word of advice pack light you will not be in the mood to switch into cute pajamas, the docs will be checking up on you every 2-4hrs to take your blood pressure and check incision, and even here for any weird noises in the ab area. Tell the nurses to be nice when checking it since it will be very sore and every movement will affect you. (tooth brush, comb, lip balm, wipes etc.) I spent 2 days at the hospital I just washed in the important areas and the wipes helped a lot. I took my first bath at home BEST decision of my life…it was a struggle since your legs will be shaking and standing up straight will be tough I suggest to wash slowly and bring a chair in the tub, and rinse your body with a large cup/bucket. And make sure to drink your meds before showering so you dont go thru lots of pain. I forgot to drink mine so I had lots of pain and felt like I ran a marathon after that you will want to sleep and laydown (remember the pillows). Regarding the excercise 3months for hard core training for now I will be walking as much as possible. I’m going to see my doc on Tues lets see what she suggest for me.
THanks to all again~
Fanny
December 14, 2006 at 4:12 pm
Hi Ladies,
Quick note to Sanfly –
I started another thread in the Forum. You can post your questions and concerns in this post until we hear from women with personal experiences:
How are you feeling after your Abdominal Hysterectomy?
Take good care everyone!
December 14, 2006 at 10:19 pm
Hi ladies!
Robbi: The pre-op testing wasnt as pleasant as I expected. The nurses seemed grouchy. But Dr. B was great! I met another lady at the hospital who is having surgery the same day! I told her we have to look for each other when we walk the halls : )
I bought some post surgery items today (lots of pillows!).
I can’t believe that I can get more swollen than I am now…that will be depressing : (
Right now, I’m not looking forward to the pain : ( I’m reading all your post op updates and the pain really, really scares me! But, I need to do this so it will have to be ok.
Oh, and I almost forgot to mention…there’s a natural supplement called Vitalzym that I took for 8 months to shrink my tumors. They didn’t shrink but my fibromyalsia symtoms completely went away and I was less bloated., plus I had much more energy too. I’m going to take them as I recover since they worked so well with my pain. Maybe some of you can try it too.
December 15, 2006 at 1:19 pm
Sina: Chin up. Be encouraged. You are in good hands–the best there is! If I had to, I would do this all over again with Dr. B at my side. For me, the first 48 hours post op were the toughest. Looking back, I’m glad I was in the hospital for it and had people at my beckon call. Just felt heavily drugged and not good with the morphine. Once I requested it be replaced with Percoset and got out of bed, it was all uphill. I take absolutely nothing (not even an OTC) for pain now–that’s history period! All done with antibiotic (Cipro) too. It’s day 10 post op and a motivating Dr. B called today (like every other day since surgery), all tissue samples came back normal and he cleared me to resume normal living, including driving. He only requested that I hold off exercising until my post-op exam next week. So, my few moments worrying about the belly swelling will just have to take the backseat. The reality is that I’m back in business!
Right now, I’m looking for a sweatsuit to wear and a small pillow to brace my belly from laughs and periodic coughs. My biggest concern is watching out for those road bumps while I drive myself to the mall for some light Christmas shopping. I’ll take it easy. By far, the AB myo was one of the best decisions that I ever made in my life. So thankful that I’m Free at last!
P.S. I was in room 7-216B in the bed by the window a view of the East River. At night, I found watching the boats passing by and the lighted views of the 59th St. bridge and Roosevelt Island so comforting. Perhaps you will too.
December 15, 2006 at 6:36 pm
Hello everyone,
thanks to all who have been asking about me. my surgery went well. no complications, glad to be on the other side. Like everyone i have my own story to tell about recovery and the hospital stay but i won’t bore you guys, its pretty similar to everyone’s. Its getting a little easier to sit up for longer periods thats why i’m on the computer. I had my staples taken out on wed and next week i’ll have my post-op visit with my doctor to see how everything goes. next step healing then baby making time.! can’t wait.! when i feel up to it i’l post some more for someone else getting ready for this, might find some useful information. although there’s plenty already here.:)
the stairs were not as bad as i thought. all in all, recovery going very well. Good luck to everyone.
December 16, 2006 at 1:51 pm
Hi everyone,
The recovery continues. Yesterday, December 15th, made one week since the surgery! I went in to have my staples removed. Now for some reason, that had me worried. After being cut open and surviving those first two-three hellish days, I was worried about the pain. For all those who may face this…don’t give it a thought. You feel nothing. They are tiny little things. What did hurt was having tape place on the incision. Yeow! Each little touch by the doctor was a weird mix of pain and nerves that had been intensified. It’s hard to describe. But, the freedom from the staples have been nice. No more fear of one popping (or being pulled out by undies) accidentally.
For those worried about weight gain and bloating: I had a big belly after surgery, like it was inflated with air and water. It was hard. After a few bowel movements over the course of two or three days, it subsided. My belly is almost flat. As for weight, I got on the scale when I returned home and found one extra pound. I thought: fluids. It’s now one week later, and I now weigh three pounds less than when I went in for surgery. I walk my dog…slowly three times a day, but this is not the excercise I am used to and the dog knows it as we hobble along with a five iron for a crutch. Nonetheless, the weight is coming off, so those that are worried, don’t be. You will be pleasantly surprised.
I eat three times a day, but stop myself when I feel even a little full. Even if I don’t feel full, I stop. The pressure on the incision and that full feeling is my indicator. Avoid heavy foods like gravies or too much cheese or bread. I have been getting my with shredded wheat for breakfast, a sandwich or small salad for lunch (get some protein in in it) and an apple, walnuts, cranberries and kefir for dinner. It’s filling without being too much. Plus, the fiber works wonders. By the next morning, a regular bm. I still take the suppository late afternoon, just to clear anything else out.
As for pain, it is always there. What masks it is the ibuprofen. This is good and bad. The good: you feel better and comfortable. The bad: you feel better and comfortable and then try to do too much. Reminder: The outside may heal, but the inside needs time. Take it. I purposely go several hours without pain medication just so I “feel” it. It quickly reminds me I am just sewn up, not healed…then I quickly take medication again.
Tonight, my friends want to go to a pre-Christmas dinner at this swanky restaurant. They asked if I was up to it. I said yes, but most likely won’t make it. Sitting in a chair, completely upright, takes it toll. If I do go, what do I wear? I think my Lands End comfy elastic, warm, fuzzy pants with warm fuzzy slippers won’t cut it.
Ciao
December 17, 2006 at 4:42 am
Hi Everyone,
Finally had my AM on Wednesday 13th, Went to surgery at 3pm and was back on the ward at 5pm.
Had a 8cm x 10cm fibroid removed and a venrosuspension of my uterus.
Was given a morphine pump after the operation but thanks to the spinal which left me numb from the waist down didn’t end up needing it. Like Val I also had quite bad shivers when came out of surgery though.
Was up out of my bed Thursday morning and had IV and Catheter removed Thursday lunchtime.
Was allowed home Friday afternoon, and this morning is the first morning I’ve felt brave enough to venture downstairs and sit in the computer chair.
Thanks everyone for their advice it’s really helpful – lot more helpful than the hospital!!!
Glad to hear your doing well too Val. About time I vacated this chair now back to the bedroom!
December 17, 2006 at 5:07 am
It is week 5 post AM for me…wish I had found the site much earlier! I have laughed and giggled at the posts, and commiserated with those who have gone through/will go through surgery similar to mine. You do think that you are the ONLY one to feel that way ie. big weird belly, giant mutant fibroids, pants with undone zippers under baggy tops etc. etc. I am a 39 yr old Aussie sheila and feel like I have joined the ‘broid sisterhood. My ’stats’ are: 4 large ‘broids-15 cm, 10 cm, 10cm, and 7cm. Sorry, we have metric here…Definitely grapefruits though!!!
I am glad to be no longer walking like a question mark, to be able to fart and cough with confidence and to not fear that my insides will ’spill out’ at the drop of a hat! I can sleep on my side, drive, walk and even body surf (albeit gently-I wasn’t hurling myself into big waves-just kind of floating/swimming!)
I am into Day 2 of my first period after surgery, and although it is hellishly painful and heavy, it is kind of reassuring that everything is working! I was scared that this was going to be the ‘norm’ forever-why did I go through the surgery???But reading the posts alleviated my fears. Of course! My grossly distended uterus (20 weeks) has to gradually ease back into shape…am hopeful of a pregancy soon-my surgeon told me to be ‘philospohical’ about it. Yeah, one problem…I don’t have a partner at the moment! But as soon as this belly goes, I’m working on it!
I did want to ask however, if anyone had problems with tinnitus post surgery? Apparently it can be caused by anaemia, but my GP is dismissive of it. It is driving me nuts! I did have a lot of sucess with acupunture relieving pressure/pain symptoms before surgery, so maybe I will try that . I have had chiropractic treatment since surgery which has also helped a little. Am also taking slow release iron and a mulit-vitamin-I was borderline for a transfusion…probably should have had one.
Good luck everyone with your surgery/recuperation
December 18, 2006 at 12:46 pm
Hello everyone,
Recovery is getting much, much better! I am off the Percoset and just take Ibuprofen at night as needed. I can finally walk upright. Everything is still tender (and in some areas numb) to the touch, and every once in a while, usually at night when I get into a weird body position, I feel a sudden twinge of pain. Other than that, I think I am progressing well.
I still don’t eat much. I’m not excercising as vigorously as I was before surgery and don’t want to pack on the pounds. Also, I have noticed that less food is actually better. The added pressure in the stomach and on the incision isn’t something I really need. The soreness above the incision is gone but I know things are still healing inside. I can just “feel” it.
Months ago, I came across the only site I could find that shows an actual myomectomy surgery from start to finish. Some of you may have viewed it. I found it again and watched because after going through it, I wanted to “see” exactly what my body went through. It’s very sobering and is a goo reminder: no matter how fantastic you feel, give the insides time to heal properly.
Here is the site: http://www.or-live.com/lich/1190/
It’s a live feed (okay, live from March, 2004) of a surgery on a woman who probaby had every type of fibroid known to mankind. The surgeon articulately describes everything you see. It is so easy to follow and VERY enlightening. Warning: it’s the real deal, so if you are squeamish, don’t watch. I didn’t find it bloody or gory. It is an absolutely a must see for anyone truly interested in what went on while you were out for the 2 – 5 hours of surgery, or interested in seeing how a myomectomy is performed. There is another doctor who takes questions from viewers, many of which pertain to all of the questions we’ve had. You’ll first meet two women who wanted an alternative to a hysterectomy then you’ll be taken to the operating room…to watch the procedure.
If the link doesn’t work, let me know. I just copied the site address when I got there. I have it bookmarked so I can easily find it again if anyone is interested.
Ciao!
December 18, 2006 at 4:17 pm
I am curious as to whether I can bring my vitamins to the hospital and keep taking them? I am also curious….I think I will be absolutely devistated if I don’t lose at least 5 pounds from this mamouth belly……..do most of you lose 5-10 in the first three months? I know water retention takes it’s toll for a while but my belly is just gross…..huge…..soooo dissproporionate to the rest of my body it is crazy……I swear I look like I am at 6-7n months now. I would love to hear some encouraging stories of how the belly looks after this.
My surgery is coming soon and I am so devistated that the blood I gave last Monday will have to be thrown out. I got sick on Tuesday (they think it was a result of my immune system going down from giving blood….great
))…but I am still sick and can not give again today. I am scared that I am getting so close to my surgery but they rescheduled me for this Thursday and the 28th. I hope it all works out and that I am better in time.
I have had the strangest opposite syptoms than many of you….I have not had a period in a while. My hair is also falling out in clumps (curious if it’s the unbalanced hormones). Due the hormoal changes I am also curious if their are string emotional ups and downs after this surgery. It’s possible some of my symptoms are also due to the ovarian cysts.
Anyway – was hoping for some insight.
Judie
December 18, 2006 at 5:05 pm
My doctor told me I could take my Vitalzym to the hospital with me so if you ask it might be ok.
Also, I have a friend who lost some of her hair after she had her baby. The doctors think it was the hormones.
My belly is pretty crazy looking too. On a good day I look about 6 months prego. But 2 weeks ago I stayed home all day because I looked more like 8 months (I tend to get bloated alot). I hope that the belly goes down after surgery for sure!
I go in for surgery tomorrow so I’ll let everyone know after what is going on.
December 18, 2006 at 6:09 pm
Judie,
My belly looked worse after surgery, like it had beach ball in it. I weighed myself when I got home and found an extra pound. But, over the course of a week, it flattened dramatically. The bowel movements helped. You will also pee out a lot of fluids. Last check on the scale, I weigh three pounds less than the day before surgery. There is a little “overhang” from the incision that hasn’t gone away and probably won’t until I am completely healed. But the size of your belly will respond to surgery. Give it time. View the surgery on the site I put up. You will see just how distorted your uterus might be from all of the fibroids. Just having those gone will make a big difference.
As for the hair problems, I had thinning hair earlier this year and thought it was just my poor diet. I suspect hormones may have played a part so with the fibroids out, things will stabilize
Eat lightly when you get out for a couple of weeks and let nature do the rest. Encourage those regular BMs…it really makes you feel much, much better.
If your vitamins don’t contribute to any nausea (you’ll be on liquids the first day) and if your doc approves, take them. I was given iron supplement with just about every meal (along with a stool softener) by the nurses so I can’t see how vitamins would hurt. They had a list of things posted on the wall in my room that were an absolute no-no…certain herbs. Can’t remember them all. Check with your doctor to make sure what’s in your vitamins are okay. Kava kava and garlic are out.
Good luck!
December 18, 2006 at 7:20 pm
I created a post to gather suggestions on questions to ask your doctor AFTER a procedure. Stop by and contribute when you get a chance:
What questions should I ask my fibroid doctor during follow-up visits after my procedure?
OR-Live must be THE place for Fibroid Geekettes! (LOL) I used it to decide on getting my Uterine Fibroid Embolization. Loved the site so much, I wrote a post about it back in August and included a link on my References page.
OR-Live brings fibroid surgery video to your computer via medical webcasts
I apologize. Thought I had included the AM video link in my “For more information” section in the original post here and in the OR-Live post. I’ve added them now. Thanks Val!
That’s a great idea to view the video again post-op. I think I’ll do that with the UFE video since I remember nothing from my procedure. My conscious sedation turned out to be “unconscious” sedation.
Best wishes to all!
December 18, 2006 at 9:32 pm
I had my myomectomy 4 days ago – I am at home now. I have a couple of questions. My doctor said she’d like to see me in two weeks. To me, it seems like a long time before I see her again. (The stables were removed in the hospital, so she doesn’t have to remove them.) What do others think? I didn’t leave with any antibiotics. Now that I think about it, it seems wrong. Don’t most people get antibiotics after major surgery? Also, she prescribed estrogen (I forget the brand name.) She said it’s because some of the fibroids were submuscol and the estogen is needed to rebuild the uterine wall. Now I am worried about breast cancer risks. Have other people been given estrogen? Thanks for your feedback. It is much appreciated.
December 19, 2006 at 7:26 am
Hi Karen,
I can’t comment on the Estrogen, but my follow up appointment for the surgeon isn’t till march now!! (had the op on 13th). I’m having my staples removed on Thursday (7 days) and I was given 3 courses of IV antibiotics in the hospital and 5 days worth to take home with me.
December 19, 2006 at 12:23 pm
Sina:
Good luck to you tomorrow as you go in for surgery. I am glad to know I am not the only one so horrified by the appearance of these beasts.
Val – thanks so much for the heads up. I am looking forward to some relief. I am also glad to hear that others have thought of the link of these crazy hormones and hairloss. I hope it balances out soon or I will be bald
.
I also have seen the online surgery. I watched it twice before my Q& A session with my Dr. about a month ago. I had so many questions and it was frustrating because he became agitated when I asked for a cell saver and what type of stitch he would use. The Dr. online seemed adminant that these were must haves for this surgery and My Dr. explained that every myomectomy is different and that he may not do everything just as I saw it….I guess that concernes me more than anything. The surgeon online seemed so knowledgeable and skilled.
I am curious……..I am alergic to any metal that is not gold …I break out in an extreme rash. Should I say something about the staples in case he goes that route?
Does anyone have any memories from their surgery under anesthesia? I wished I wasn’t so scared.
Thx,
J
December 19, 2006 at 1:44 pm
Karen:
I didn’t get my staples out until a week later in my doctor’s office. We made the appointment during my pre-op consulation. I didn’t get any antibiotics to take home. I had it all via IV in the hospital for two days. I didn’t think it unusual since I had SO much in hospital. I think could smell it my urine for another two days!
I was not sent home with any estrogen… that seems odd that your doctor prescribed it. I was told my period would be a little erratic. My period started exactly one week before surgery and ended the day before. But during surgery, I was bleeding and continued to do so for another five days after. It was all very, very clear – no clots – and no pain. I am sure the surgery was the cause. Other than that episode, no problems. I thought fibroids loved estrogen. Weird. Ask your doctor if it really necessary. I think most of us are healing without it.
Judie: You won’t remember one, single thing about surgery. Nothing. You’ll remember things just before going under and you’ll remember waking up. That’s it, so don’t be afraid. Trust me, it’s the recovery part you’ll NEVER forget.
I was very much awake after anesthesia…just the damn chills, sore throat were a pain. Once in my room, I did just want to rest, and did, after a shot of pain killer.
The staples are very, very tiny – made of the same material, no doubt, as the surgical instruments. I counted nine on me. I don’t think they would use any metal in a hospital that could cause an allergic reaction. It didn’t hurt at all having them removed, but then that was a week after surgery and things had a chance to heal a little. I don’t know how it would feel to have them taken out right after surgery.
My next follow up appointment is Friday, December 29th to remove the surgical tape (little butterfly strips) on the incision, clean off any residue, and check for healing. Then I will have to go back again three weeks after that.
Sina: Best of luck to you on surgery day. Can’t wait to hear about your experience.
Ciao!
December 19, 2006 at 2:43 pm
Thanks for your replys, Pixiebell and Val. I did think estrogen seemed odd, given that fibroids are fueled by it. I just tried to call my doctor and she’s out and the soonest appointment I can get is next Thursday. I want to ask her about the estrogen, but it’s really hard to get through to her.
Judie, I also was very nervous about surgery, but what Val says is true. I remember the moment I laid down in the operating room and the next thing I knew, it was over. It seemed like one second had passed. And when I awoke, I felt such relief. Even though I felt some pain, the knowledge that it was over and that 18 fibroids were taken out was a wonderful feeling. Before my surgery I found a book and cd which was very helpful – it’s called “Prepare for surgery, heal faster” and you get it with a cd. The cd has relaxation tapes on it. The author is Peggy Huddleston [(www.healfaster.com)] I copied the tape onto my ipod and listened to it minutes before the operation. I can’t recommend it enough. Instead of buying the book I found a free workshop (in New York City) at NYU Medical Center where they provided the CD and book for free. I didn’t even have my surgery at NYU but it didn’t matter. Apparently the class and free book/CD is held in different hospitals all over the country. Or you can just buy it. Again, it was very helpful and helped lessen my anxiety and fears.
[Edited by EclecticGeek to add link.]
December 20, 2006 at 12:16 pm
I didn’t get antibiotics–I guess doctors’ opinions differ about whether they’re necessary. They did check my temperature in the hospital a lot, so they presumably would have figured out if I got an infection. I was glad not to have them since they tend to give me the runs and I didn’t need that right then.
They asked about allergies at my pre-op visit, and also about whether I had any metal in my body. They also asked about medications, and then brought me some of the pills I was on with their little scanner thingie to keep track of what I was getting. They did not bring vitamins. I think they like having everything that’s going into you on their little computer (and presumably billing your insurance company some large amount for it).
My first scheduled appointment after surgery was two weeks after, but when I had some oozing I called the doctor’s office and they worked me in that day. Of course, I had to get someone to drive me.
December 20, 2006 at 2:38 pm
Gald to hear everyone is recovering – welcome to recovery world and ‘go get em’ (removed) to those with upcoming surgery’s
Well I am a little over 4 months post AM and I tell ya it did take awhile for the belly to completly go down and the “ovehang” to disapper. All I have now is a fading scar. ..For me it was about 3 months. Now ..I did see a dramatic belly difference in the hosiptal but for all the tenderness, puffyness, hard at times inflammation and stiches healing and consipation it takes a bit. Be patient you will get your “flat tummies back”. Took a minute to lose some weight…th