Comments on: Has anyone had problems with deep vein thrombosis?

By: Amy

Amy — Mon, 21 Sep 2009 02:19:02 +0000

Dawn, you’re welcome – I just hated to see this end! And I just keep wondering what in the world happened to EG… I emailed her personally, searched for her on the net, she even had another blog – it too ended… if you look at her most recent entries in the beginning of ‘07, you’ll see she had a lot more plans for improving this site…. I guess it will remain a mystery. But I can’t help but think she would have wanted this blog to continue….

By: Dawn

Dawn — Sun, 20 Sep 2009 20:49:27 +0000

Amy thank you for putting in the hours it must have taken to get the blog fixed. It is quite odd that the Eclectic Geek herself seems to evaporated. I hope all is well with you.

By: Amy

Amy — Sun, 20 Sep 2009 01:47:29 +0000

Hi Everybody! YAY!!!

FYI — I contacted WordPress and they were able to fix the blog!!! Still no sign of Eclectic Geek herself, but at least most things seem to work.

I’ve asked if it was an actual malfunction or the domain mapping wasn’t paid up or whatever…. and will continue to follow through on this is just in case.

I really hope the whole thing is working again and all the regulars come back!

(for those who get ALL the comments emailed to them, sorry for all the repeat posts, but I want the message to get through to everyone!)

By: Nancy

Nancy — Thu, 06 Aug 2009 20:43:24 +0000

Yes, She does see a cardiologist. Hopefully the blood clotting issue is under control with the coumadin she is on. The fibroid is gone and so is her uterus and chances for children but I’m just thanking God that she is alive through after at least 2 episodes of DVT and PE. Thanks for the comments and concerns.

By: Andrea

Andrea — Tue, 04 Aug 2009 20:13:00 +0000

I previously wrote in regarding my fibroids and subsequent DVT. My Gynae Dr said he didn’t think the fibroids had been caused by the fibroids, which goes against what the haematologist said. He said the DVT would’ve been up in the thigh area had it been the case and not in my calf. However, a week ago I spoke to someone in work who had had a DVT in her arm when she was 14 and they put the cause down to air bubbles in an injection she had in her arm a few days before the DVT. I then remembered that while I was having a blood transfusion 5 days before the DVT, a nurse was flushing the line out with saline. I commented to her about the air bubbles in the syringe and she said as they were only small bubbles it wouldn’t matter. Now I’m beginning to wonder. I will be asking my haematologist if this could be the cause of my DVT. Seems a bit of a coincidence. Will let you’s know

By: Dawn

Dawn — Tue, 04 Aug 2009 17:49:28 +0000

Nancy, I am sorry I have to be brief, but here is my two cents worth. Look at a diagram of the venus system and you will see the veins and arteries placed in an upside down y just above the belly button. It would take a huge boulder sized fibroid to pinch them enough to clot. I don’t think the fibroids can cause a clot. The fibroids and the coumadin will definitely cause heavy bleeding. Does she also see a cardiologist?

By: Nancy

Nancy — Tue, 04 Aug 2009 16:44:41 +0000

Hi, My daughter who’s 34 with no children just had a hysterectomy (both ovaries remain). She had a fibroid the size of a 7 month baby and also had a PE and DVT 3months ago. After another DVT with very swollen leg occured several weeks ago the gynecologist/oncologist was called in and concerned the fibroid was actually a cancerous tumor and wanted to do the hysterectomy immediately. She was already on coumadin at the time so was bridged off and put on shots and a filter was inserted to prevent clots from moving. Surgery went well. No cancer. Uterus and large fibroid removed. She is doing well but has been advised to stay on lifetime coumadin even though testing after 1st clotting episode in early May showed no abnormalites that would cause clotting issues were present. Some of her doctors seemed to be willing to say the fibroids could cause the clotting and some seemed unwilling to consider it. I’m not sure if we’ll ever know if the clotting issues are resolved unless she takes herself off the coumadin. She also had no known risk factors for clots although she did have a sudden heart attack from a spontaneous dissection in an artery about a year ago. I’m wondering if the heart attack may also have been caused by a clot caused by the large fibroid. So many questions….

By: Andrea

Andrea — Fri, 03 Jul 2009 14:25:25 +0000

I have had trouble with heavy periods since Feb09 when a gynae Dr confirmed I had 3 small fibroids. I had an ultrasound in Apr09 when the sonographer said they were bigger than had been previously mentioned, approx 9cm x 8cm. Within the space of 3 weeks, I could cup my hand over an area of my stomach where the fibroids were and after eating a meal, I would have to go to bed because the pain was so bad. One night in work, I passed a clot as big as my hand and went to the hospital, where a blood test showed my iron levels had dropped to 6.8. I received a blood transfusion and was let out of hospital the next day. 4 days later I had a bad pain in my leg which my GP told me was my muscles cramping from the anaemia. 3 days later when the pain had not subsided, I went to A&E where a D-Dimer test and scan revealed I had a DVT. I received Heparin injections for nearly 2 weeks and was given Warfarin. I did not fit the ideal for someone to get a DVT. Non smoker/drinker, fit and active, slim and under 40 yrs. Finally a Haematologist advised me that the DVT had been caused by the fibroids and accumulating uterine clot pressing against arteries after I had eaten. Hopefully I will have a hysterectomy within the next few weeks and on the Warfarin for another 3 months at the most. Hope other people suffering find this useful

By: Dawn

Dawn — Sat, 21 Mar 2009 22:18:12 +0000

My latest MRI imaging shows my almost normal sized uterus neatly tucked into the pelvis and 9 months after the UAE the uterus is 40% smaller. All fibroids are dead except two rather small ones. I asked if those aliens are growing and the intervention radiologist explained that that it is like a teeter toter. as the others shrink, these two might grow, but the many shrinking fibroids ontinue to shrink faster than the live ones grow, so the whole system is shrinking. The pain is nearly gone. The periods are about 3-7 days. Yucky still, but not nearly as yucky.

By: Dawn

Dawn — Fri, 20 Feb 2009 00:23:26 +0000

Cassie, why not UAE? You’d be up and moving much sooner and you’d still be able to have children. Your DVT makes me think that laying in bed could be very dangerous to you. The myomectomy might scar the wall of the uterus which might make it difficult to stay pregnant. Have you talked to your doctors about this?

By: Cassie

Cassie — Mon, 16 Feb 2009 14:11:55 +0000

I was hospitalized for 3 wks with DVT. My fibroids are 7.9 and 5.4 cm. The doctors say I cant remove the fibroids right now because I am on Warfarin 10mg. I am afraid of doing the myomectomy because I am 30 yrs old and do not have any children as yet

By: Apple

Apple — Sun, 08 Feb 2009 21:45:58 +0000

I started this blog January 12, 2008 and hadn’t logged back in until now and was shocked to see all the conversations. When no one replied for a few months, I figured I must be alone. It’s been 13 months since my PE & DVT. I was on 10 mg coumadin daily until May 23, 2008 when I planned to have the fibroids sugically removed vaginally. About a week prior to my hysterectomy, my hematologist took me off the coumadin. The equipment started malfunctioning during surgery so I ended up with a vaginal hysterectomy. While in the hospital for the hysterectomy was injected with lovanox. Hematologist has me on one baby aspirin daily for rest of my life. Just wanted to let all of you know how things worked out for me. The hysterectomy was the best thing that could have happened. I feel healthy and look healthy. No more anemia, no more bleeding. I am hopeful for no more DVTs or PEs. I firmly believe that mine was caused by the fibroids or possibly the progestin I took one month before diagnosis of the DVT to postpone my period by one week due to my vacation. If I could have changed things, I would have stopped birth control pills a long time ago. My old obgyn said the fibroids were caused by the birth control pills. I was 40 when this all happened. I think God that he carried me through this and pray that all of you are also healed.

By: Brenda

Brenda — Mon, 01 Dec 2008 19:06:33 +0000

My appologies to all. Was reading google sites to become better informed about DVT’s. Typed in How do blood clots form There were several techinical ones along with the adverts. Go read. It is better to get it first hand.

By: Brenda

Brenda — Mon, 01 Dec 2008 18:40:43 +0000

Found Geek’s blog back in Aug/Sep 08. First commented in “How are you doing after your abdominal hystorectomy.” Surgery date is Dec 15, 08. Have decided to have overies out due to overian cyst. Information on DVT is good to know before the surgery.

TwoShoes Sept 16, 06 your comment on vitamin K helping to thin blood may be inaccurate. Vitamin K is used to help blood clot. This is one of those memories from childhood in school learning about the Russion royalty’s blood disease that prevented their blood from clotting. It was discovered that by giving those aflicted by the disease vitamin k their blood clotted.

All the dark green leafy vegetables are a good source of non-heme iron (vit c helps it be absorbed better) which will help build red blood cells and stop the anemia.

Reading the entries makes a connection between blood loss, anemia, and blood clots. The fibroids are increasing the body’s blood loss, anemia occures. To build up red blood cells we take iron. For me I was consuming lots of leafy green items and alfalfa tablets (high in iron and vit K). I noticed a significant increase in blood clots during my 4 week mensus. I stopped taking the alfalfa and many of the other leafy items (developed a hypothyroid problem during this time, another subjuct I would like to discuss and find out if other have had this occur) and found a iron gluconate tablet, Fergon, to help with blood building.

How is this related to the DVT? One cannot have real thin blood when going into surgery or there is the possibility of bleeding to death. To thick blood could possibly promote blood clots. Not enough red blood cells (anemia) and oxygen does not get to where it need to go. I do not know if thin blood is the same as anemia.

Besides having fibroids, I was informed that the prolonged mensus was due to the uterine muscle lining(?) acting as a sponge in absorbing blood flow and not properly constricting to expell the aborbed blood. This is my third cycle like this and seems to be going into a fifth week. During these last 4 weeks the blood clots have not been as several and I have not had the vitamin k.

I have my preop Dec 3rd when I will ask about DVT possibilities to my gyn/surgen.

My sister had a total hystorectomy May 08 due to enterin-uterin cancer. She went to the hospital last week due to a blood clot in her leg and was put on a blood thinner. This is six months after her surgery.

By: Dawn

Dawn — Sat, 08 Nov 2008 16:43:56 +0000

Just an update: October’s period was 7 days and November’s I think occurred in the middle of the night, for just a few hours. Odd. I am on guard for a tsunami of coumadin rich flow of blood, but have none of the swelling or spotting that would foreshadow this.

October also brought an other DVT followed by all the tests in the book for cancer and two nights of hospitalization. (I am scared because I have started to know the nurses and tech’s at my preferred hospital. It’s so odd to catch up with the overnight staff.) I’ve asked so many health professionals about the connection of DVT and fibroid. My intervention radiologist asked if the clot in teh vein was all the way to the uterus, and it wasn’t. She explained that if the fibroids were causing the problem the clot would be all the way into my pelvis. That puts the cause and effect relationship to rest for me. I don’t think that the fibroid and the tendency to clot create the conditions that causes the DVT. I think that the tendency to clot operates alone.

Happily, the newest MRI tells us that the fibroids are DEAD and shrunk 20% in three months.

By: Angela R.

Angela R. — Wed, 01 Oct 2008 17:58:52 +0000

I’ve been on warfarin for almost two months now. I still worry about my health, although I feel better, I still am not my old self since the PE. I don’t know if I’m having side effects from the medicine or because a clot has traveled to my lung, I now have a dry cough and I feel twinges (if that’s an actual word) in my chest area and sometimes I feel as though I can’t catch my breath. I have a list of complaints I come to the doctor with now because I have become a complete worry wart when it comes to my health. I notice every ping and pain I have in my body now. My doctor thinks it could be from the medicine or my nerves. I’ve taken two EKG’s in the past month, which turned out to be normal, my blood pressure is fine and my doctor says that my lungs sound clear. My INR’s are unstable, though, so my medicine is being adjusted often. I will be glad when I can one day put all of this behind me.

By: Kristin

Kristin — Tue, 30 Sep 2008 22:27:52 +0000

Just wanted to share my update…I’ve been undergoing many tests for various forms of cancer to rule out that the PEs aren’t being caused by undetected cancer anywhere in my body (so far all have come back negative).

I went to a Gynecological oncology surgeon at the recommendation of my gynecologist. After discussing my situation, and my very strong intuition that the fibroid was causing my PEs, he shared his opinion that although my fibroid was a 20 week pregnancy equivalent, it was very ‘mobile’ and he doubted it was causing the PE.

He then recommended an MVT (Magnetic Resonance Venogram). He felt this would determine if the fibroid was putting pressure on any arteries and thus causing the PEs.

I got the call this morning with the results — The fibroids were applying pressure to my arteries and could definitely be causing the clotting – especially if I have a tendency to clot. In fact I now have to go in for a sonogram, since the blood flow in my femoral artery is extremely slow, and I may indeed have a clot in the artery now. Fortunately I am already on blood thinners due to the PE last month so there is no immediate danger.

I will now proceed with plans for a uterine fibroid embolization to shrink the fibroids and remove the pressure — hopefully minimizing any future risk of a PE.

Thanks to all – having a place to go to discuss these issues (and more importantly become educated) has helped! Good luck!

By: sankar

sankar — Tue, 30 Sep 2008 19:14:36 +0000

BTW my age is 32, episods of DVT etc happened while I was 31.

By: sankar

sankar — Tue, 30 Sep 2008 19:12:23 +0000

Hi, Glad to have found this site, lots of ppl with similar issues to share and guide eachother.

I had severe cramps with adenomyosis always and then developed superficial thrombosis. Doc assured that I would not get DVT.One fine day got PE and realised DVT. Was on clot busters and recovered. On blood thinners ever since. Struggled with bleeding and cramps issues after this since blood thinners agravated it all. Tried Merina loop. After few months it showed no effect. Then ended up being anemic due to blood loss and one fine day with in 6 months after 1st PE , i realised that I was having another milder PE attack and also got a Pulmonary Hypertension. Filter was inserted. Finally opted for Hysterectomy, ovary was saved. Thouhgt things are settled for good, but after another 6 mnths, cramps kept increasing and detected ovarian cyst, mass of 7 by 8 cm size. Currently struggling with monthly right abdomen and back cramps for 2weeks of the cycle.. hoping and praying that the cyst will subside, so that the surgery can be avoided.
I worry about – what next? will it resolve, will i have to go under the knife, what if ovaary is removed, wont that cause clotting issues?

By: Dawn

Dawn — Tue, 30 Sep 2008 04:48:05 +0000

Aja, thanks for the shot in the dark for what the “chicken guts” might be. Let’s hope you’re right.

All, Should I understand what John S. is talking about here?