This question comes up frequently. From a recent comment:
Charlotte: Has anybody but ANYBODY managed to heal themselves of fibroids naturally?
Let me first leave some general information to assist you in evaluating products. The National Institutes of Health has a center that deals with alternative medicine:
National Center for Complementary and Alternative Medicine (NCCAM)
Here are two pages I find particularly helpful:
- Are You Considering Using Complementary and Alternative Medicine (CAM)?
- 10 Things To Know About Evaluating Medical Resources on the Web
How do I evaluate alternative treatments?
If I see this (or anything similar) associated with the product:
These statements have not been evaluated by the Food and Drug Administration. This product is not intended to diagnose, treat, cure, or prevent any disease.
and a search on Google Scholar or PubMed produces NO studies conducted using the product, I cross it off my list.
So, you haven’t found any information on natural therapies?
I did find something on WebMD while looking for general fibroid stuff. There’s an article that discusses vitamins, herbs, stress reduction and the role of your liver in conjunction with fibroids. If you scroll to the bottom of page 3, you’ll see a section called “What to Eat” with the vitamin information. Herbs are on page 4. Cannot recommend the supplements per se but I will pass along the information.
My advice:
Read through the WebMD info. Check out the supplements using sites like Medline Plus or NCCAM. Search on PubMed, PubMed Central, or Google Scholar if you want to find research papers on these supplements and their effects on fibroid growth. (Finding papers in this area would be exciting indeed.)
Diet and Fibroids (WebMD)
Herbs and Fibroids (WebMD)
Drugs, Supplements, and Herbal Information (Medline Plus)
Dietary and Herbal Supplements (NCCAM)
PubMed
PubMed Central
Google Scholar
For those interested in herbal supplements, remember to do your research and talk to a health care professional before making any changes. I also suggest finding licensed practitioners of alternative medicine.
Here is a link to search for certified practitioners as well as the mission of NCCAOM:
National Certification Commission for Acupuncture and Oriental Medicine (NCCAOM)
The mission of the National Certification Commission for Acupuncture and Oriental Medicine (NCCAOM) is to establish, assess, and promote recognized standards of competence and safety in acupuncture and Oriental medicine for the protection and benefit of the public.
Let me also mention that alternative treatments are treatments. Be careful of herb/drug interactions:
The Interactions of Herbs and Drugs
Interesting because there’s also a little history in this article.
Checking for Possible Herb-Drug Interactions
Use of Complementary/Integrative Nutritional Therapies During Cancer Treatment: Implications in Clinical Practice
Don’t be alarmed by me sticking in this reference to cancer treatment. It has good tables that group supplements according to their various properties (coagulants, anticoagulants, laxatives, etc.) so I wanted to include it. Scroll down about halfway.
In general, I do believe in alternative medicine but I hold it up to the same standard as traditional medicine. Prove that it works (safely and effectively) and I’ll use it.
Now, let’s hear about your experiences with alternative therapies. I welcome all comments.
——————–
Related Posts:
Can I change my diet to help with fibroids?
If soy contributes to fibroid growth, I’m in trouble…
September 12, 2006 at 11:14 pm
Charlotte also left a link and a question about blackstrap molasses in a recent comment.
Link: Molasses Remedy (EarthClinic.com)
Question: I wonder if anyone else has tried blackstrap molasses as a cure?
I hadn’t heard of using this as a treatment but found these links with more general info:
Health Benefits of Blackstrap Molasses
Nutritional Facts and Analysis for Blackstrap Molasses
If you have an experience, please post.
September 14, 2006 at 12:14 am
Thanks for your hard work; you’re a mighty inquisitive geek and it’s great!
I am hard-out researching natural treatments as I have 6 months before my date with the scalpel (I’m on the urgent list, but it’s a long one here in New Zealand!) so I will keep you posted with my findings.
Meanwhile, if anyone’s searching desperately, praps they’d like to do their own sniffing around the web on the following leads I’ve found:
- water fasting
- iodide
- high doses of Vitamin C
- blackstrap molasses
- beetroot juice (used by Dominican healers along with molasses)
- parasite cleanses
- castor oil packs.
It’s all a bit of a puzzle at the moment, but I’m going to keep researching then formulate a bit of a plan, Stan, to have a good crack at natural healing over the next 6 months.
If anyone has direct experience with any of these, PRETTY PLEASE SHARE!
Thanks x
PS One can’t help gently wondering the amount of money that might be put the way of fibroid research if this was a male condition, too!
September 14, 2006 at 12:14 pm
You touched on two issues that are on my “to do” list. It bothers me that not all options are available everywhere and that some women must wait MONTHS when they do make a choice. You mentioned money. Considering that this fibroid problem is common and that the symptoms can be severe, you would think funding would come easily. This is not the case. (The Geek is unclenching her teeth now.)
Good luck to you with your quest. Thanks for sharing what you have uncovered so far. Please keep us updated!
September 17, 2006 at 2:12 am
After my doctor recommended removal of my uterus, before suggested embolization I decided to see what I could do using alternative medicine, researching not only about fibroids but what causes them, being premeno hormonal imbalance I feel was the reason, I would experience pain followed by heavy bleeding, what help was to use napkins instead of tampons, my body had too much estrogen, had to stop it from both ends, ingesting it, using it and removing the excess, the liver that helps get rid of the toxins I decided to detox usng psyllum, then using herbs like dandelion, milk thistle and burdock, I changed my diet to hormone free meats and dairy pretty much organic foods, I go to a acupuncturist originally going every wk now once a month, but I practice it on myself (no I’m not a Dr) I found out that there are herbs that have an estrogenic activity or high levels of estrogen like, Don Quei, Licorice, Genseng so I avoid them, in short I take, wild yam, red raspberry to strength the uterus, after acupuncture use castor oil packs, as I’m using myself as a guinea pig, I fnd that so far the results have been good, I don’t fell the tumors as I use to, I have a pelvis ultrasound this week that will confirm if I’mon the right path or not
September 17, 2006 at 3:35 pm
I will have a post up soon about fibroids and diet and your thoughts on hormone free/organic foods would be a great addition. I think the hormones added to foods are causing a lot of problems for a lot of different people.
Thanks for the information and letting us grab a peek at your “experiment” (it was the guinea pig reference). I appreciate you sharing what you are doing. Keep us updated with your progress!
September 25, 2006 at 4:32 pm
Had a couple of visitors to leave comments asking about a specific alternative treatment: (Click the link the view the whole comment.)
October 8, 2006 at 8:54 pm
Just thought I’d check in – let’s keep this thread alive! I think it’s an important one.
After lots and lots of internet research into natural healing methods for fibroids, I’m about to embark on a ten day water fast. I’ve found a couple of references to women who have cured themselves this way (including of a grapefruit-sized fibroid like mine) so I’m full of hope it will cure me, too.
The theory is that deprived of sustenance the body begins to ‘eat itself’, going for non-essential tissue like tumours first.
I’ll let you know how I go…and if this solution resonates with anyone get going on your own research about water fasting. Here’s one link to check out:
http://drbenkim.com/articles-uterine-fibroids.html
I’ve had my ‘last supper’ before days of beautiful water so HERE WE GO!!!
October 12, 2006 at 10:26 am
Charlotte,
This water fast sounds pretty interesting. How’s it going for you? I have a couple of grapefruit fibroids and I’m planning on scheduling for a robotic myomectomy, it would be nice if i can naturally shrink my fibroids before surgery.
I happen to have giant bottle of blackstrap molasses laying around, so i’ll give that a try first. I’ll need it for the iron anyways.
October 12, 2006 at 11:36 am
Charlotte
WOW I knew about the estrogen factors and estrogen and fat connection (personally all to well LOL – even my RE suggested nicely that I needed to lose weight….I am working on that now…anyway….) and estrogen dominance but I never thought of the stress factor = cortisol = depleates progesterone = more estogen…WOW
hummm food for thought
October 15, 2006 at 7:51 pm
Charlotte:
Please check in and let us know how you’re doing. You are missed here.
El:
Disco queen. I didn’t even know blackstrap molasses was a terrific source of iron until I looked through the info Charlotte left.
fibroid free:
I actually think stress is what kicked my fibroids up a few notches. Another thing for the long list. Must look to see if any researchers are studying the impact of stress on fibroids.
——————–
Just a note I’m adding to some of the threads. I’ve created a Fibroid Forum at Oprah.com. I’m getting so many comments on this site that I thought it would be helpful to have a more “traditional” forum as an option. That way, you can start your own threads and reply directly to posts. It’s just an option. Please feel free to continue to comment here. For more information, see this post that lists the benefits:
I started a Fibroid Discussion Forum at Oprah.com!
October 21, 2006 at 6:36 pm
I am also looking for alternative to my fibroids. I gave birth last December after being told my daughter that my fibroids would probably prevent me for going full term with my pregnancy. Nontheless, the baby and I were fine after having a C-section. Now I am still dealing with these huge fibroids. I am looking at all of the options I heard here. I wanted to know how did the water fast work.
October 22, 2006 at 4:00 pm
Here’s a comment from the Forum page with a question about enzyme treatments. (Click the link to view the whole comment.)
If you have an experience or any information, please post.
annette:
Good news that you and your baby are fine. Looking at various options is a good stategy. I really want everyone to be able to make informed decisions. I hope all is well with Charlotte (and the water fast) and we will hear something soon.
Congratulations.
October 25, 2006 at 10:53 am
I tried the Neprinol/Brevail combo from the arthurandrew site. It did not work, if anything I felt worse.
October 29, 2006 at 3:57 pm
Mimi,
Thanks for sharing your experience. Lots of people are looking for information on these enzymes.
November 2, 2006 at 10:27 am
Mimi,
How long did you try Neprinol? Their site refers to something they call
“Enzymatic Detoxification”.
The site has this statement:
Enzymatic Detoxification which can sometimes be uncomfortable. Symptoms such as headache, fatigue, upset stomach and diarrhea may occur. If at any point you may start to feel ill you may be detoxifying too quickly. Decreasing your usage for a more gradual and comfortable detoxification period is therefore recommended. It may take several days to completely cleanse the body of unwanted debris. We recommend drinking plenty of water during detoxification to allow the body to dilute the toxins that are being expelled. Please call us anytime if you begin to feel ill.
What are your thoughts?
November 9, 2006 at 4:06 pm
Thom,
Many people are interested in these enzymes. I was really hoping there would be more comments.
November 24, 2006 at 9:09 pm
Re: Neprinol – I tried it for almost 4 months and carefully followed the directions and ramped up the dosage to the maximum. I did not experience any of the symptoms Thom Schmidt cites above. It just didn’t do anything at all for me except that I was horribly disappointed becaause the testimonials on their web site were so encouraging and exciting. Too good to be true! My opinion is don’t waste your money and time.
November 24, 2006 at 9:14 pm
I am curious if there are others out there who have tried using natural progesterone cream to shrink or stop fibroid growth. Before I tried the Neprinol, I was using it for several months and had an ultrasound that showed a very small shrinkage – about 1 cm of a fibroid with circomfrence of 9 cm. I am back to using it now and hope that I can get some results again. I also have been exercising and have lost 15 pounds in hopes that the fibroids would shrink with the rest of me. Wondered if anyone out there has found that exercise or weight reduction has helped…
November 25, 2006 at 10:15 am
Has anyone read Allan Warshowsky’s book (”Healing Fibroids: A Doctor’s Guide to a Natural Cure”) or gone to see him?
I found out about four years ago that I had fibroids but was told they were small so we’d just watch and wait. They kept growing but I didn’t worry about them until this summer, when I started feeling a hard, round mass poking up through my abdomen every morning. That got me freaked out; I’ve since had an ultrasound and confirmed that I do have one large one that is both intramural and submucosal (jutting into my uterus).
Sigh… I’m 35 and single and don’t want to foreclose the option of kids. So I went on the offensive and bought a bunch of books, including Warshowsky’s. I changed my diet around immediately. I always ate pretty healthy and have been relatively slim but I gave up all meat, dairy and poultry (unless free-range or organically-raised, and even that hardly ever), as well as alcohol, caffeine and most sugar. Lots of fruit, veggies and whole grains, fish and organic eggs. I’ve lost a few pounds but haven’t felt any change in the fibroid (it’s only been about 3 or 4 weeks, though). Unfortunately, if anything, it feels larger, but that may just be my anxiety and paranoia.
I also started acupuncture with a woman who used to work with Dr. Warshowsky… I really like her and she calms me down with her gentle manner, but the more I read, the more it seems my type of fibroid — large (at latest sono it was 9.8 x 7.3 x 7.7) and submucosal — is generally unresponsive to natural cures. Sigh….
So I am trying to find a fibroid doctor to discuss myomectomy options, and probably will give the diet/acupuncture 6 months or so to see if there’s any change. That also works with my schedule since I’m a grad student til end of next year; if I have surgery, I’d do it after the spring semester ends.
To anyone recently diagnosed out there, keep in mind what I’ve heard from a few sources: natural cures seem to work best when fibroids are small. So don’t ignore them… try to get started early and maybe you can avoid surgery. And if nothing else, the lifestyle and diet changes are good for general good health.
One last thing– my acupuncturist has me burning moxa sticks near a pressure point on the inside of my knee that’s said to affect fibroids. Anyone else trying this?
Thanks and stay healthy! This forum is great for dealing with the sadness and isolation of this strange (and yet strangely common) problem.
November 25, 2006 at 1:53 pm
RE: Neprinol
I have used Neprinol with some different results. I started out by using Milk Thistle for two weeks while sporadically drinking dandelion tea, to cleanse and strengthen my liver. I used Neprinol, Myomin and Dimpro to assist in shrinkage and estrogen balance. The two latter herbs are found on a site for Vitalzym, which was the predessor to Neprinol. For the first two weeks I did feel sluggish and headachey, but the precleanse of the liver I believe prepared me for this feeling. Lots of water is a must After about a month and a half I felt lighter, stronger(with energy) and my pants were getting looser. By month three my stomach significantly flatter. From there you can keep up a maintenance dosage with Neprinol or Vitalzym which is less expensive. I must say though, using organic foods if possible,and staying away from non-organic hormone, and antibiotic ridden dairy and meat products will help also.
November 25, 2006 at 7:19 pm
Thanks for the responses!
I did have a naturopathic doctor to comment on another page. You can read the full comment here but I’ll add a quote:
I’m encouraged by the positive results with naturopathic treatments. I’m hoping to see more medical research in this area and more published papers.
Since dietary changes were mentioned, I’ll leave another link to that thread. Feel free to leave comments there as well.
Can I change my diet to help with fibroids?
November 28, 2006 at 10:37 am
I am really looking forward to hearing from Charlotte and the results of her water fast. I’m going to try red raspberry and the molasses and see if it makes any difference. Please let’s keep this one going—I really do think it is important! Thanks everybody…by the way, I finally stopped bleeding (for now) after 8 days of intense gushing. I’m waiting for my doctor to get me an appointment with a young female gyno who is apparently really good.
November 29, 2006 at 1:09 pm
I just came across this as an herbal treatment for fibroids:
“Kuei-chih-fu-ling-wan (Keishi-bukuryo-gan; KBG) is a traditional Chinese herbal preparation that can effectively shrink fibroid tumors in 60% of patients, according to one study conducted by Japanese scientists. KBG is a mixture of the following herbs: cassia bark (Keihi), herbaceous peony roots (Shakuyaku), peach kernels (Tounin), herbaceous fungus (Bukuryo), and root bark of peony (Botanpi). In addition to reducing fibroid size, KBG also successfully alleviated fibroid symptoms such as severe menstrual bleedings or menstrual pain in 90% of the women in the study. These researchers suggest that KBG may work by inhibiting the production of sex hormones including estrogen. Unlike many other presently available herbal preparations that may be effective but lack scientific evidence to support their uses, KBG is proven safe as well as having few side effects”
Anyone heard of this or tried it?
Thanks, Pam
November 29, 2006 at 3:37 pm
Hm, sounds intriguing, though I’m inclined to be skeptical of anything that sounds that good. Please share anything else you hear. Thanks!
November 29, 2006 at 3:50 pm
Hey L-Dub,
I’m skeptical too, but I’ve been researching this and there might be something to it! I have a Chinese health food store near my house – I’m going to see if they sell this. I’m willing to try anything (especially natural treatments) to manage my heavy bleeding and horrible cramps until I hit menopause! I’m 48 years old now, so it can’t be too far away! I’ll keep you all posted!
Pam
November 29, 2006 at 4:54 pm
Hi Ladies-
I don’t want to be negative or anything, but I’ve tried changing my diet, taking natural herbal supplements, using oil packs, using progesterone cream. But the tumors still got bigger. I tried to keep the hope alive but I am now having surgery after 3 years of watching these awful things grow bigger. The natural remedies in my case helped with the symptoms but no shrinkage occured.
November 29, 2006 at 5:27 pm
Hi Sina,
I’m so sorry! That’s exactly what I’m afraid of. One of my fibroids is already the size of a grapefruit – yikes! I was just diagnosed a few weeks ago, so I’m fairly new on this journey. I’m waiting for an appointment with another gyno. The first one was an elderly man and he told me I needed a hysterectomy and didn’t offer me any other options. So I asked to be sent to a young female doctor. I have some questions for you: what kind of surgery do you have to have? Did you try the chinese remedy? What natural remedies seemed to help with your symptoms? Again, sorry you have to go through surgery. That stinks.
Pam
November 29, 2006 at 11:15 pm
Don’t let them give you a hysterectomy! There are other options for sure…how old are you? I’m 34 and want to have a child one day so I’m having an AM in december.
I was on Vitalzym for 8 months and it gave me more energy overall and helped with the swelling. Vitalzym is all natural and an antiflamitory. In fact, I’ll go on it after surgery to help with the healing if my doctor says it’s ok.
Changing my diet helped with my bowel movements too. Since my tumors are pushing the intestines alot I need to eat high fiber foods. Staying away from red meat and pork helps with the bowel problem. Also, caffeine makes symptoms worse too so I stay away from that.
Excercise is another way to help with the symptoms. For me, it gave me more energy too.
I haven’t tried chinese herbs but I’ve tried various teas for women’s health though.
Overall, keeping healthy is important and quite honestly it helped me get through the last 3 years with these. But now as I see my belly grow (I’m the size of a 6 month pregnant woman) I need these out. I wear maternity clothing and that’s not normal. Besides, my doctor says I can’t carry a child with all these tumors. Imagine what would happen if I start out 6 months along and then add a growing baby to that! YIKES!
November 30, 2006 at 10:30 am
Hi Sina,
Thanks for your really helpful information. There is no way I’m going to have a hysterectomy – I’m 48, but still, it is major surgery with a lot of complications attached.
My worst symptom right now is the incredibly heavy bleeding every couple of months with HUGE clots. My blood is okay right now though, so that’s good. My clothes are getting tighter, but I don’t have to wear maternity clothes (yet!). Poor you, that’s awful. You’re way too young to have to dress like that.
I’m a researcher by trade, so I’m determined to explore every possibility for improvement out there. As I learn, I’ll share.
Sina, keep us posted as to your surgery and recovery. When exactly is your surgery booked for?
November 30, 2006 at 5:47 pm
Yeah, it doesn’t matter how young or old we women need our uterus! My aunt had Fibroids too and they took everything out at age 30!!!! My Mom says that she’s the only woman her age that she knows that still has her uterus! That’s a crime to me. If there was cancer as a risk I could see getting everything out, but not for fibroids!
I’m booked for Dec. 19 and I’m glad I found this site cause it helps to talk to others who understand : )
November 30, 2006 at 6:35 pm
Pam:
When someone posts something here, I automatically plug it into Google Scholar and PubMed to see if I get hits. I don’t seriously consider anything unless there’s some type of clinical research behind it. I found the abstract to a paper on KBG on PubMed:
Pharmacotherapeutic effects of kuei-chih-fu-ling-wan (keishi-bukuryo-gan) on human uterine myomas
I’m not familiar with this journal. I tried to get the full paper online but it’s not free. If you have access to a library with medical journals, you could always get the paper there.
sina:
Thanks for sharing your experience. I also think staying healthy is important. I’m sure that eating healthier, exercising, and losing weight helped me recover from my procedures quicker. Although I do feel hysterectomies are performed far too often for fibroids, I still think that for some women it is their best option. It’s best to gather as much information as you can about any treatment and make an informed decision.
I’m glad you found us, too! You’ve been helpful both on this site and on the O Group. I really appreciate it.
December 1, 2006 at 10:36 am
Hi EclecticGeek,
Thanks so much for this. I do have access to medical journals so will get the paper. I am planning to see a very good Chinese female M.D. who is also an herbalist. I’ll keep everyone posted.
Hey Sina,
I’m like you – so glad I found this site. Let’s keep sharing our experiences. I find it really comforting and helpful. I don’t need major surgery yet, thank goodness, because my bleeding seems to come every 6-8 weeks. I’m not anemic, so other than the periodic hemorrhages, I’m okay for now. That’s why I’m determined to explore every avenue I can.
Take good care,
Pam
December 1, 2006 at 9:59 pm
Hi,
I found out that a lot of universities are conducting studies on KBG — the University of Minnesota for one. I will research further, but it is heartening to see that North American scientists are taking a closer look at it…
Cheers,
Pam
December 2, 2006 at 8:29 am
Hi,
I had an abdominal myomectomy 4 weeks ago. I had 2 big fibroids – one grapefruit in front – pushing my bladder and other organs and my stomach outward. . .one behind pushing into the joint that connects hip (felt like I had arthritis in my hip). Surgeon also found a third smaller fibroid intramural and got that in surgery.
I found I first had these about 5 years ago – when I lost a lot of weight and was working out at the gym regularly. They really hurt. They were same size (big) back then.The doc said watch and wait. I was single and late 30’s. Being thinner seemed to make no difference other than they were more apparent.
Now I am 42, met love of my life, married, wanting a kid. I live in Ireland. RE did the surgery. I am doing acupuncture, too. Acupuncturist helped me figure out (6 months ago) that I am allergic to dairy! He told me to cut it out of diet as I had “dampness” in belly (besides fibroids) and filmy tongue. It was amazing. I had excema before and it has almost disappeared! I feel so much better. I really think the dairy and dairy/allergy had a lot to do with my fibroids.
I have never eaten much meat, but ate a lot of dairy (mostly organic) cheese, yogurt and such. I am totally off dairy now, but it is very hard as it is everywhere.
My acupuncturist told me that acupuncture/chinese herbs can get rid of fibroids, but when he found out the size of mine, he said, “no go.” He wouldn’t try it. Too big. You really don’t want large fibroids degenerating in your system (you can read about the pain and difficulty of many women pg with fibroids around Week 15. . .He thought it dangerous.
My take on all of this is that diet/natural methods might help in stopping reccurance, but Western Medicine is really good for getting these things out. And you have to be somewhat careful with the “natural methods” as they could be too much estrogen (helping fibroids. . .e.g. Evening Primrose Oil) or you might be allergic/ your body rejects this method. It is not a case of just because something is “natural” it can’t hurt.
I am healing now and very hopeful about conceiving and hopeful about fibroids not growing back too fast. I am still very curious about what causes these things and alternative ways of dealing with them.
Maureen
December 2, 2006 at 10:47 pm
Hi Maureen,
Your thoughts are so helpful. I’ve been reading today that the Chinese herbs don’t work if your fibroid is big—-which means I’m probably out of luck! (One of mine’s the size of a grapefruit)
These herbs, however, are great, apparently if the fibroids are fairly small and early detected. That’s good news for a lot of women, if only they knew about it!
But I do agree with you; just because something is “natural”, doesn’t mean it can’t do harm. Arsenic is natural, after all, isn’t it?
How are you feeling? I know you say you are healing now, but tell us about your experience with the surgery, if you feel like it. I have no idea what is waiting for me down the road! It’s scary, isn’t it?
Keep in touch and keep well. Hope you’re healing quickly!
Pam
December 2, 2006 at 10:47 pm
Hi everyone! Reading this site has been great.
I recently found out that i have about a 4cm fibroid in my uterus. I’m only 17 years old and the doctors are completely baffled. I had a lot of tests right away because they were worried it might be a sarcoma. Thankfully, they believe it not to be cancer, although they are still not 100% sure. This whole mess started in august, when i started a period and then didn’t end it for FOUR weeks! i had a break of about 2 weeks and then had another period for THREE weeks. bleeding has been completely irregular since then but the last three weeks have been relatively light.
so yea, it feels like i’ve had a million things done medically since this started but reading all your posts make me know theres lots to come. I’ve had ultrasounds, numerous blood tests, internal exam, MRI, and consulted with gynecologist and oncologists in different states.
anyhoo…about the whole surgery thing. three doctors i have spoken to think i should have some kind of surgery. Obviously, we’re concerned about keeping my fertility. But also, I’m very concerned about taking that much time out of my life! I’m an incredibly busy senior who has plans for the next three months packed tight. I understand my health comes first…but sometimes its so hard. I’m still waiting on some results from the oncologist in MA who sent My MRI scans to a special radiologist. however, my parents, (mostly my dad) is very against surgery. they’re all for any natural solution that will work. right now i’m currently anemic (taking iron meds) and have severely off the chart hormone levels.
after a lot of research my dad finally bought Neprinol a week ago. After reading your posts I’m a little disappointed. Thank you though! I had my doubts reading those testimonials about Neprinol…ah well…$150 down the tubes.
My biggest thing was finding others like me! Being 17 and surrounded by people who really can’t empathize has been kinda hard. While being very supportive, sometimes they just don’t understand.
Thanks again!
December 3, 2006 at 3:51 pm
Hi everyone,
Great posts up here in the last few days (I disappeared to write term papers… ugh I’m too old for this (35)!). Kristen, yes, I’ve heard that’s unusual to have fibroids in your teens. But on the positive side, yours sounds relatively small (my largest is about 10cm). From everything I’ve read and heard, natural methods are most effective when fibroids are small, as Pam and Maureen also say. My acupuncturist says at my size, you’re mostly hoping to stop the growth, but at smaller sizes you really can shrink them. The medical professionals who believe the tumors can shrink are in the minority, but it’s unclear if that’s because it really is rare, or because Western medicine has not explored those methods enough. I’d recommend seeing an acupuncturist who has experience with fibroids and women’s health issues. And check out the book “Healing Fibroids” by Alan Warshowsky, a holistic-oriented MD. I wouldn’t follow some of the advice (especially re: herbs and supplements) without getting the advice of someone who’s seen you and checked you out. But at least it’ll give you a starting point.
Good luck!
December 4, 2006 at 11:06 am
Hi Everyone,
As L-Dub says, great posts. I find it so comforting to have other women to talk to about this. Oh Kristen, my heart goes out to you. You are so young to be going through this yucky stuff. Please keep us posted as to your condition.
I agree with you L-Dub about being careful about herbs and supplements. Before trying anything, you should seek an expert opinion.
Out of curiousity, has anyone tried Red Raspberry Leaf tea to help control bleeding? It is suppose to be a proven uterine tonic.
Thanks everybody!
Pam
December 4, 2006 at 2:31 pm
Hi Pam,
I’ve been drinking red raspberry leaf tea on and off for the last month or so. Not sure if this had anything to do with it, but my last period really was lighter. (In general, though, my periods are pretty light, I haven’t had problems with excessive bleeding. Still, this one did seem lighter than usual.)
December 4, 2006 at 5:16 pm
Hi L-Dub,
Thanks, I bought some the other day but haven’t tried it yet. I’ll give it a go. Also, thanks for the advice on the book “Healing Fibroids”. I’m going to order it. I’m in the same boat you are in. Just trying to stop these fibroids from growing any bigger!
December 5, 2006 at 10:18 am
Hi Pam!
Thanks for asking about me. I am doing a lot better. Tomorrow is 5 weeks since the abdominal myomectomy. I still feel twinges of pain and my energy is about 70%. . .I’m getting there, though.
I resisted the surgery so long, but am so glad (already) that I did it. I felt better in many ways immediately – so less full, crowded inside. No pressure on my bladder (I’m sleeping through 8 hours) – something I had just sort of grown used to over 5 years of them growing. Less pressure on my back and hip. I am a new person.
I went back to the acupuncturist last week. I love seeing him as he wants to hear everything an is so wholistic in his approach. I’m also avoiding all dairy and taking vitamins.
I’ll have to look into the red berry tea!
Maureen
December 5, 2006 at 2:04 pm
Hi Maureen,
Glad you’re almost fully recovered. Wow, that’s a long recovery time though isn’t it? But obviously it’s worth it if you are feeling so much better! I would like to try an acupuncturist. I’ve never had it, but so many people believe in it, I’ll give it a go. Yeah, the Red Raspberry Leaf organic tea is supposed to be a natural uterine tonic. Have a look on the Internet. Everything I read sounds pretty good. Midwives really believe in it.
Keep in touch and let us know how you’re progressing. Are you going to try and have a baby soon?
Pam
December 5, 2006 at 7:10 pm
Pam:
So, of course I had to run right over to the University of Minnesota’s site. I’ll include a link in case someone reading this is interested. UM has a Center for Spirituality and Healing. From the site:
They are conducting a trial focusing on KBG and hot flash management. Hopefully, this will open the door for more studies. The only way we will get definitive answers is if more researchers conduct credible trials and publish the work.
Maureen:
I totally agree about being cautious when it comes to consuming “natural” things. Here in the US, supplements aren’t even regulated by the government (Food and Drug Administration). That’s why on the websites of those products, you see this:
I’m totally for alternative treatments but things must be evaluated. Also curious about what causes fibroids. I have a post that dissects a paper about possible causes or risk factors. Take a look and leave a comment if you like.
What are the risk factors or causes of uterine fibroid tumors?
kristen:
Glad you found the site. I’m sorry you have to deal with this at this point in your life. Please know you are not alone. I don’t know if you have wandered into the Forum yet. I have posts there where women have commented about various procedures (including recovery).
If you have concerns or thoughts about anything, don’t hesitate to post them.
L-Dub:
Term papers? You are making me so jealous! Sigh.
December 6, 2006 at 11:47 am
Hi Eclectic Geek,
Thanks for the link to the UM site. It is heartening to see established medical profession seriously studying natural remedies!
December 9, 2006 at 12:43 am
Just to let you know everyone:
I have been a vegetarian for 20 years. Eat lots of fiber, vegetables, etc.
I have never been overweight.
I exercise.
I have been smoking for 20 years. (at least — that is supposed to suppress fibroids)
So, sounds like I shouldn’t have these monsters, yet I still have huge, ugly white lumps in me. I truly don’t think anyone knows much about these growths.
December 9, 2006 at 3:58 pm
Hey Pam,
No problem. I’m all for anyone who is trying to look at alternative treatments in a scientific way. What bothers me are people who put out products that haven’t been clinically tested or studied.
There is some promising research that looks at gene expression patterns. Researchers are studying normal uterine tissue vs. fibroid tissue and then determining which genes are upregulated (turned on more) or downregulated (turned off more). From that, they can figure out possible altered biochemical pathways and blah, blah, blah. I tend to think there is a genetic component because fibroids “run” in my family.
Anyway, there are people out there searching for science-based answers. I’m hoping eventually to start discussing research papers (kind of like a journal club) but I have to catch up with responding to comments here and post about weight issues (’cuz I had them). Maybe I can get the Journal Club going after the first of the year.
December 9, 2006 at 10:43 pm
Hey Eclectic Geek,
That sounds great. I am so grateful for your research. I am reading as much as I can,but I am in the middle of a show, so it’s hard for me. I think you should write a book about this…you are accumulating so much knowledge. I also think you should be on Oprah—hey, she has the power to get the research going and to get the awareness up. Think of how many of her viewers have fibroids! If you don’t mind, I would like to speak with you. I have great connections in TV, including Dateline NBC–I know a Producer there—anyway, a thought. You have my email address. I really admire what you are doing to help women.
Cheers,
Pam
December 9, 2006 at 10:57 pm
Hi Eclectic Geek,
I forgot to mention something else. Obviously, I am just really angry right now. Trying to deal with that – sorry if I take it out on this blog!!! Like everybody, I hate being sick in any way. I’m doing my best trying to get to my Zen mode!
Sorry again —- have to vent. So glad I have this venue.
Pam
December 11, 2006 at 4:01 pm
Hey Pam,
No problem. I’m glad you are finding the information helpful. A book? Hmmm. Perhaps, one day down the road. I would really like to get at least a couple of papers published first. (Have two things on my Christmas list so far: getting into school and producing publishable research.)
Oprah does have the power to bring attention to this issue. It would be great if she did a show featuring the latest treatments and research. Yeah, the geeky stuff that I love.
Thanks for your kind words and the support. I’ll drop you a line in the next day or two. I’m STILL trying to catch up with comments here. I just love the fact that this site stays so active. I’m busy but it’s a great kind of busy.
No need to apologize about venting. Everyone needs to blow off a little steam now and again. This fibroid problem can be so frustrating. We’ll get some answers. Maybe not today or tomorrow but one day soon.
December 13, 2006 at 6:41 pm
One visitor left a link with a little more KBG information. Here’s the comment:
Thanks Wendy.
An abstract to the paper listed in Dr. Parker’s Reference List can be found here (it’s the same as the one listed above with the same title):
Pharmacotherapeutic effects of kuei-chih-fu-ling-wan (keishi-bukuryo-gan) on human uterine myomas.
December 14, 2006 at 10:57 am
Hi EclecticGeek,
Firstly, thanks for your kind words of encouragement. And thank you for the links to the KBG info. I am fascinated by it—don’t have much time to delve into it at this busy time of year, but once things settle down I am going to try and find out as much as I can. I am a TV Producer and am seriously thinking of pitching a documentary about fibroids! I think a lot of women would be interested….my fantasy project for 2007!
I haven’t bled for a month now and am just hoping it holds off until after the holidays at least!
Wishing everyone a very Merry Christmas and much happiness and HEALTH in 2007!
Cheers,
Pam
December 17, 2006 at 7:07 pm
This visitor had questions about alternative therapy so I’m adding the comment here:
Sorry to hear of your losses. I have found very few clinical studies on the use of herbs to decrease the size of fibroids (especially larger ones). Remember to talk to your doctor before starting any type of therapy.
If anyone has information, please share.
Pam:
I haven’t forgotten about you. A documentary about fibroids is a terrific idea! Let me know if you need an “inquisitive” (cough, cough – nosy) Internet researcher to help gather information.
A very Merry Christmas and a happy, healthy 2007 to you as well!
December 17, 2006 at 9:00 pm
Hey there all, this thread is fascinating. Being a former post-grad researcher myself, who also lost my great job due to bloody fibroids/pain/ bleeding like a stuck pig/surgery/recuperation time…(!) I think some sor t of documentary would be INVALUABLE to women ACROSS THE WORLD. I am an Aussie…
I too tried the alternative route. Acupunture, herbs, elimination diet, exercise…you name it. All initiated through internet research. No shrinkage, but I did feel better-still couldn’t zip up my trousers though! Eleven months later, I am five weeks post surgery, and wish I had done it earlier, not dragged it out for so long. I think if I was honest with myself, my fibroids had a lot to do with my emotional state of mind. After a stressful year previously, I had a disappointing rejection this year for a posting in Scotland and I took it very badly, as you do! Coincidentally, my fibroids, already large, ‘took off’ on their own growth spurt at that time. HMMMM ‘They’ do say that it is all related to blockages in creativity and the subsequent resentment and frustration, which rings true to me. Does anyone else feel that way?
Pam:
Good luck with the battle. Go for it in 2007. Matbe Oprah could be the executive producer? I did read that she was venturing into ‘reality television’! What’s more real than millions of women around the world dealing with this on a daily basis? And why does it seem to be a ’shameful secret’? The indigenous women of Australia have a term , “Secret Women’s Business”…
EclecticGeek:
Thank you, thank you, thank you… What can I say? This blog contains all the information that you don’t get from the GP, Specialists, Surgeons, and Nurses, and from all the other medical jargon on the net. I now feel that I am ‘normal’, not some lonely freak formerly inhabited by large and unwelcome ‘aliens’. Perhaps the more enterprising amongst us could bring out “Fibroid Fashions” for the “Girl with More”..elasticized waist bands, flowing tops etc etc…I must say, I was disappointed that ‘the ‘broids’ were whisked away post-surgery, and I didn’t get to see them/weigh them!!! Just curious I suppose. Still, finding a 15cm jar to carry one home in is difficult! Zip lock bag?
I also feel that pesticides have an answering role to play amongst all this. Makes sense for the statistical increases. Just a thought…We shall see…I am now researching methods of avoiding having the buggers grow back, and avoiding adhesions-another thread/chapter for your book/chapter of the documentary?
December 18, 2006 at 11:18 am
Hi Getjules,
Greetings to you in Australia, from me here in Canada. Glad that you’re feeling better now, but so sorry you lost your job! Society doesn’t seem to care for it’s own any more, does it? I’m afraid of the same thing—being a contract worker with no benefits or sick leave—ah well, I won’t think about it right now, it’s Christmas!
I was wondering what kind of surgery you had to remove the fibroids? If you care to share your story, I’m all ears. I’m wondering what I might be facing. I’m going to a second opinion gyno January 11th.
Take care,
Pam
December 19, 2006 at 6:47 pm
Hi Ladies -
Here’s my 2 cents. I have a couple large fibroids & my doctor wants to do a hysterectomy immediately. My menstrual flow recently became excessively heavy & irregular about 2 months ago – I went into a flow cycle only 2 weeks apart, and became anemic to the blood count of 4 (14 is normal). Ended up having 3 pints of blood transfusion & 2 days in the hospital. This kinda came out of nowhere, though I was aware I had fibroids (diagnosed 1 year ago). I started with Vitalzyme, & that seemed to hold me stable for awhile, but then life things happened & I stopped taking them. I went through a crazy-stressful summer, and I’ll agree with a previous point that there is a connection between stress & fibroid growth. I’ve read & studied most of the dietary findings, chakra meditations & Journey (meditation technique). All are helpful & beneficial, but I’m afraid that given my current advanced stage, that I’m needing something more aggressive for treatment.
Here’s some new information I’ve found that might be an answer for some of you. It’s a technique using MR guided focused ultrasound to destroy the tumor. It’s an non-invasive technique that essentially uses ultrasound waves to destroy the fibroid without destroying any surrounding tissue. Here are a couple of web addresses I’ve found helpful: http://www.uterine-fibroids.org & http://www.insightec.com. The technique is also referred to as ExAblate & MRgFUS. The first website I mentioned is very thorough, informative & educational. It also gives locations where this treatment is offered.
Now for the bad news. The complete treatment is currently not covered by insurance (though the technique has been FDA approved for 2 years now!). Insurance will help cover the first day of MRI & diagnostic screening. The second day is treatment day, and that is gonna cost $5-10k. You need to be approved to be a candidate, so they’ll need your medical records. There are some forms of fibroids that are not treatable. I’ve been approved for treatment, but I’m having great difficulty coming up with the $6,000 I got quoted for treatment. There is CareCredit – a credit company that will give you credit (unless your credit is toast, like mine – then you’re screwed!). I did say I’ve had a stressful time… did I not?
Anyway, I’m not sure how this is gonna play out or how I’m gonna hold out. Right now my doc who want to do the hysterectomy has me on birth control pills continually without a menstrual cycle. Yes, I know… estrogen. I’m kinda out of choices.
Hopefully there is information here you can use to heal yourselves – hopefully I can figure out a way to gain access to it myself. Please look into it ladies, despite the insurance company’s negligence in supporting a more humane alternative to hysterectomy, I do believe this is really something. After treatment, the ‘dead’ fibroid shrinks over time & disappears. There have been 14 document healthy childbirths of women across the US following their treatment… FYI.
I’ll keep you posted on my progress & if I find anything else.
Good luck & Good Health,
-Deb
December 20, 2006 at 2:34 pm
getjules:
Glad you found us and that my blog is helpful!
This is definitely global. I’m still surprised by the visits here from women all over the world! It’s wonderful when you find out you aren’t alone. A little sad that it’s because of these dang fibroids but comforting just the same.
I have a couple of posts that you might find interesting:
Would somebody tell me how much these dang fibroid tumors weigh?
A bunch of geeks trying to calculate and answer this age-old question. Perhaps it will come down to women bringing them home in huge Zip lock bags for examination. Okay, weird thought but you started it.
What are the risk factors or causes of uterine fibroid tumors?
Pesticides fall under the xenoestrogen category.
Fibroid fashions? A few women here (especially Fibroid Free) have come up with funny T-shirt ideas. Perhaps we should extend (Yes, pun intended!) this into a whole line of specialty clothing.
Pam:
The fibroids have such an impact. It’s incredible what women are enduring. We do so much in a regular day (so many different roles), the idea of having a chronic condition on top of that is mind-blowing.
Deb:
I can relate. My anemia is what caused me to finally get help. Sorry you had to be hospitalized for it but glad it was corrected. I have two posts here that talk about ExAblate including information about a patient advocate who helps with insurance appeals. Feel free to stop by and share what you know.
New treatment uses sound waves to shrink uterine fibroid tumors
Does anyone have an experience with ExAblate (MRgFUS)?
Keep us updated!
December 20, 2006 at 5:49 pm
Eclectic Geek:
Thanks for the ExAblate post links… I found some info there that renewed my desire to fight for insurance coverage. I originally talked myself out of the battle because I didn’t think I had the time, but with few options & growing frustration, I think I just might take this to the next level. So glad I found this site!
I’ll keep postin’…
-Deb
December 20, 2006 at 7:45 pm
Hey Deb,
Happy those ExAblate post links helped. It’s good when you have a chance to get a treatment option back on the table. Yay! I’m glad you found us, too!
December 21, 2006 at 1:26 am
All of theses responses have helped me a lot (they kept my mind off the three fibroids that I was diagnosed with four years ago and the one new one that I was just diagnosed with Oct ‘06). Because they were so small 1cm or less at the time of diagnose and were not causing any symptoms we (Doctor and I) opt not to do anything. We played the wait and see game.
However, each year they grew, and now they are up to 7.0 x 5.3 x 6.4. Still not causing me any problems. May ‘06 I had a Full Tummy Reconstruction; it wasn’t until October during my routine well woman check up my OB/GYN reminded me of them. And the first thing came out of her mouth was HESTORETOMY. No other choices. I talked it over with my plastic surgery and he explained the process of Uterine Fibroid Embolization (UFE) to me (better choice to take).
Later, I researched and researched and researched UFE. October ‘06 I had Upper and Lower Abdomen Liposuction which resulted into a flatter stomach.
The only time I get a small bulge is during the first three to four days of my period; and that’s when I can really see and feel all of the fibroids symptoms (before I could not).
Also, I’ve dropped from a size 10 -12-and some 14 to a two – four. I am schedule for a UFE December 28, 2006 and confused because I’ve found this new herbs called “FIBROVAN” that I just started taking today (12-20-06) and feeling great. Have anyone ever tried Fibrovan or has anyone had a UFE of a myometomy done and taking Fibrovan as a preventive treatment for new fibroid growth? Last which is a better treatment UFE, Myometomy, or Fibrovan?
Myra
December 22, 2006 at 5:31 pm
Hi Myra,
I have several posts in the Forum that you might find helpful including these:
Just what are your uterine fibroid tumor treatment options?
There is no “better treatment” when you do a quick comparison. The best treatment for you will depend on the particulars of your case (size, location, and number of fibroids and other issues like if fertility is important to you or not). What is better (or best) for you will not be for someone else.
Since you asked about UFE and myomectomy in particular, here are those posts:
How are you feeling after your Uterine Fibroid Embolization?
How are you feeling after your Abdominal Myomectomy?
How are you feeling after your Laparoscopic Myomectomy?
How are you feeling after your Hysteroscopic Myomectomy?
I had 3 months of Lupron injections, a Hysteroscopic Myomectomy, and a UFE. Now, my life is so much better. It’s completely different and I am truly happy. I cannot personally comment on Fibrovan because I don’t use treatments for medical conditions that haven’t been approved by the FDA or at least backed up by published clinical studies or journal articles. I guess that’s just the geek in me.
Best wishes with your upcoming UFE! Let us know if you have other questions or concerns.
December 24, 2006 at 4:59 am
Pam
Sorry it has taken a while to get back to you…It’s Christmas…and all that it entails!
I know what you mean about contract working…it is the bane of our/my global economy existence.
I had an abdominal myomectomy. I live in the hope of a pregnancy one day, but even if I dont, I still want to retain all my ‘girlie bits’- i’m 39. I found the whole process to be better than I expected…Sure there is some pain post surgery, but it is all ‘manageable’. The benefits, at this stage far outweigh the discomforts, in my book.
Initially, back in Feb, I had a consultation with a ‘gung ho’ surgeon who couldn’t wait to rip me open and get stuck into it. He lost me when he said he would have me ‘back in a bikini in no time!’. He also told me I would have to have a mid-line cut up past my navel for the surgery. That is when I attacked alternative therapies, and deferred surgery. The acupunture was fantastic. I would recommend it to anyone, but as ‘they’ say, when the fibroids are large, the shrinkage benefits are minimal. I was also taking ‘Chaste Tree’ and other herbal stuff, which also seemed to regulate my body and minimise pain and excessive bleeding. Changes to my diet…ie. organic, no dairy, no wheat etc etc made me the healthiest I’ve been for a while. However, my stomach still grew, much to my disgust.
I got a second opinion in June, was scheduled for surgery in three months time (which ended up being November-our wonderful free/overcrowded public health system saw it delayed three times. Meanwhile, I tried the ‘western’ method of treatment also- ie SYNERAL, which had a negligable effect, other than decreasing my bone density during the six months I was taking it, and causing weird hormonal stuff when I stopped. It is my personal opinion that I was better off without it. Stick to the natural methods if it works for you, ie. it improves your quality of life…spiritually, physically and emotionally.
Anyway, my second surgeon ended up being caring and understanding, assured me he would preserve whatever he could, and I ended up with a caesarian cut (don’t know the technical term), four whopping great fibroids removed, an ovarian cyst removed and a uterus that must look like an old stitched up football. Six weeks on from surgery and I am ready to see an acupunturist again. I’ve had some chiropractic treatment, as my neck and back suffered during my stay in hospital and resting at home. It has helped enormously. I did not need antibiotics at any stage. Wound healing has been great. I used Vitamin E oil (be careful, it’s hard to get out of your clothes) and Manuka honey from New Zealand directly on my scar when the dressing was removed. My tummy is still a bit puffy, but is slowly getting flatter-and the numbness is decreasing as the nerve endings grow back.
From reading previous posts, you are between a rock and a hard place…Wait or not? It’s a tough choice. As you can tell, I am non-interventionist. I’m not fond of Western medicine, BUT…All things aside, I am glad I have had the surgery. I have a chance to ‘move on’ and am hoping they wont grow back. And there is the added chance of a pregnancy… hopefully-I am an optimist! I’m not sure if I have helped you or not, but good luck with your consult in January. And ask lots of questions!
Cheers
December 27, 2006 at 5:57 pm
getjules,
You raised some good points about risk vs. benefit and balance. Thanks for sharing your alternative therapy experience and your thought process that led you to seek “Western” treatment. I appreciate the fact that you were able to use a combination of things to improve your health. It’s all about weighing options and doing what’s best for you.
Best wishes with your recovery!
December 28, 2006 at 4:05 pm
Has anyone tried the KBG yet? Maybe I’ll give it a whirl and let you all know what happens. I am 46yrs and was diagnosed about 7 years ago with a wait & see prognosis. My bleeding and cramping decreased greatly after I divorced my mean husband 6 years ago, but now I am starting to feel constant pressure in my abdomen and my constipation and hemmoroids are getting bad. I am also experiencing discomfort during sex now, which I never had before. I have what my doctor described as “many, many fibroids” with a uterus the size of a 3 month pregnancy. My doctor offered hysterectomy as an option, but if I can find relief until menopause, I will choose that route.
December 30, 2006 at 5:41 pm
Hi Dia,
Glad you removed that major stress years ago.
With KBG, I’m under the impression that it’s still in the “experimental” stage. The study I found was conducted at a medical institution in Japan. Results were quite promising but I can’t seem to find any more studies using KBG to treat fibroids. I will try to get things more organized here next month (which actually starts in a couple of days) so I can take a better look at fibroid research and get the information posted.
I don’t know if you’ve seen the treatment post in the Forum but I’ll leave the link:
Just what are your uterine fibroid tumor treatment options?
This post includes links to all the other posts here where women are discussing their recoveries from various procedures.
You have choices. Doctors recommend hysterectomy because it is the only permanent solution. There are several women scattered on this site who had two or three procedures because other fibroids grew later. Not trying to scare you. This mostly occurs with younger women. Just pointing out that ALL fibroid treatments have risks and benefits. You have to weigh those and determine which choice is best for you and your case. As far as alternative therapy, if you are really interested, I suggest talking to a reputable practitioner.
If you have additional concerns, keep posting!
December 31, 2006 at 1:39 am
Hi Getjules and EG,
So glad to hear from you. Thanks so much. Hope you had a great Christmas, and a very Happy New Year to you.
I haven’t had a period since November 19. I bled like I was dying, huge clots and all. Then I stopped after two days. Weird! But I”m so afraid of my next one—-I had to take a pain killer today because my back is killing me—I know it’s a side effect of this grapefruit friggin’ fibroid!
I have an appointment Jan 11 with a young woman gyno. I have hope in her. Hope I’m not disappointed. I would love to wait this out—I’m 48 years old—-shouldn’t menopause be right around the corner? Oh please….. Really don’t want to get cut open if I can help it! Funny, never expected to be wishing for menopause, but bring it on baby!
Getjules, I am so glad you are feeling better, and it gives me strength, like all of the brave women who post here. I agree with EG, you are SO NOT a fool, you were, and are so brave! If only men knew what we had to deal with, on top of our day-to-day lives!
I will keep you posted and let you know what the new doctor says. I wish you all a very HEALTHY New Year!!!! God bless us everyone.
Pam
January 1, 2007 at 1:49 pm
Greetings.
I spent the past year debating about whether or not to have an abdominal myomectomy, or stick with alternative therapies. I believe that the utility of the treatments depends on a number of factors, including size and type of fibroids, symptoms, and whether or not fertility is a concern (those were the primary things for me anyway).
I am a beleiver in complementary and alternative therapies. I agree with what some others have posted here that these methods seem to work best when fibroids are smaller. I’m not convinced that they will not work on larger fibroids, but will definitely take longer if they will work. How long one can wait for fibroids & related issues to resolve also depends on a number of things. For me, fertility was a concern.
In terms of my adventure with fibroids and alternative methods, the primary things I tried were acupuncture and herbs. I got Dr. Warshowsky’s book, then met with him & started on his protocol. Before starting to work with Dr. Warshowsky, I tried Neprinol.
I decided to allow myself on a trial of alternative methods before deciding to do an abdominal myomectomy. I wasn’t convinced I had serious symptoms (although now I realize I had some significant symptoms), so I didn’t want to have surgery unless it was really necessary. The doctor who was pushing for me to have the surgery (after many years of “let’s wait and see”) wanted to do the surgery so she could take a look at my fallopian tubes and see if fibroids were obstructing them & interfering with fertility. I couldn’t agree to surgery just so she could look around, especially when it seemed that we were skipping other less invasive options that should happen before having major surgery. Needless to say, I found another doctor. I didn’t like the pressure I was getting from her . . .
Anyway, the hard thing for me during my trial of alternative interventions is that most others who knew about my fibroids did not understand/believe in/etc alternative methods. So, I did not feel supported from them. My husband was with me on it, but others not so much.
I am an assistant professor at a university. I identify as a researcher and educator. I believe in evidence-based treatments. I also value complementary and alternative medicine. I have had good experiences with acupuncture for health issues. I am a yoga practitioner and recently completed training to be registered with Yoga Alliance as a yoga instrucor. I believe that traditional western medicine and alternative therapies do not need to be mutually exlusive. I am excited that there now exists at the National Institutes of Health a center for complementary and alternative medicine so that there will be support for investigations to test the efficacy of a range of treatments for health problems, including fibroids.
Anyway, after I left the doctor who was pressuring me to have surgery, I started working with a reproductive endocrinologist b/c the main thing for me was fertility. I learned that my tubes were damaged and IVF was likely the only way for me to get pregnant. The doctor was concerned that the position of fibroids would interfere with egg retrieval. That’s pretty much all I needed to hear to decide on the surgery. Because my uterus was “clean”, just knowing that I had fibroids wasn’t enough to convince me. I know many women have had sucessful pregnancies with fibroids. I also had to weigh complications from surgery that could interfere with fertility and pregnancy.
The decision to have surgery versus stay the course with alternative methods was hard for me because I felt like I was taking the easy way out (havivng done it, it does not feel easy…). I knew that there are lots of facors involved with the growth of fibroids. I knew that with a family history of fibroids plus the increased rate in African American women, I definitely had some things beyond my control. At the same time, I kept telling myself that if I truly embraced the alternative methods or worked harder at them, I could fix this. From that perspective, deciding to have surgery was like an admission of failure. I’m pretty much over that negative thinking, but still amazed at how easy it is to fall into that way of thinking. And some of that was going through my head as I waited for the anesthesiologist to come the morning of my surgery.
I am writing this 6 days after an abdominal myomectomy. I’m not yet able to evaluate how things have changed. Right now, I’m taking Percoset & Motrin for pain. Also taking iron supplements & colace. To my delight, the Lupron I was taking before the surgery still is in my system . . I definitely would have preferred to skip the hot flashes and headaches (and other lovely symptoms) while recovering from surgery. According to my doctor, the Lupron will be out of my system in a couple of weeks. I am definitely looking forward to that.
Meanwhile, very tired. I wish those iron supplements were an instant energy boost . . .
I meant to just write a short comment about alternative therapy, but I guess I was just excited to be able to tell some of my adventure with others who have had similar experiences.
As far as alternative therapy after my myomectomy, I plan to use those methods to help with my healing and to try to keep fibroids from coming back too quickly.
Sharon
January 1, 2007 at 3:15 pm
Pam:
Hang in there. Your appointment is right around the corner. I’m happy for you because you’re going in ahead of the game. You already know about your fibroid and its approximate size. You also know about the various treatment options and that they all have risks and benefits. Go in with general knowledge so you spend the “face-time” with the doctor talking about your specific case.
Thanks for keeping us updated. Hope your New Year is a happy one!
Sharon:
I always enjoy reading decision-making processes. Thanks for sharing your experience.
Yes, that NIH Center is exciting! I remain hopeful that we will begin to see more studies and published papers in the future.
If you stop by again and still feel like talking about your adventure, feel free to visit these threads from the Forum:
How are you feeling after your Abdominal Myomectomy?
How are you feeling after your Lupron injections? Any side effects?
I’m glad you are dismissing those negative feelings about choosing surgery. You did what you thought was best for you and your health. You can’t be faulted for that.
Best wishes with your recovery.
January 1, 2007 at 10:19 pm
hey everyone:)
sorry its been forever. i have read several forums and i find them all very helpful and encouraging. right now i’ve been on Neprinol for about a month. i have an ultrasound on the 8th. my doctor was a bit upset when she realized we hadn’t scheduled surgery yet. ah well. my gyno had also mentioned the MRI procedure but she didn’t know if i was qualified for it. so, everything pretty much depends on the ultrasound next week.
my period has calmed down quite a bit and the pain that i experienced randomly has subsided. either it really is decreasing in size, or my body is just in denial. i can tell you my head sure is. i’m so busy with school, work, adn extra curriculars that i am not really taking this as seriously as i probably should be.
by the way, i have a question. i know my doc will have an answer for me but i just wanted to ask you guys if you had an opinion on how long recovery from surgery would be. i have read a lot of testimonials and i guess its all situational. but would you think that being younger i would have a faster recovery rate?? just wondering.
hope all is well with everyone…
Happy New Year to you all…
January 2, 2007 at 2:16 am
Kristen,
I guess at the time, all I was worried about was the PAIN, and not the recovery period. I suppose a philosophical attitude would be useful ie. how long is a piece of string? Your body tells you, via pain, when it is not ready to do certain things. You may take a short time, or the exact opposite. Look on it as an opportunity to reasses your life and direction. Get things done…I read a lot of books I had been meaning to catch up on, and alot of DVD’s, spent time with my nieces and extended family. I somtimes think that Fate stepped in and slapped me about, slowed me down and turned me around, by putting this experience in front of me. And I am considering a complete change in career…I am working now, seven weeks on from my surgery, and I am exhausted after two days! I guess what I am saying is, dont rush it!
Cheers!
PAM-good luck girlfriend…but dont put your life on hold if fear is holding you back. It’s just a bump in your life’s plan-it’s not so bad. I can say that now as I’m on the ‘other side’. Let’s all have a Happy 2007…and healthy!
January 3, 2007 at 4:52 pm
Kristen:
I’ll use my treatment as an example:
My Master Plan stretched over several months so I used the time to get stronger (physically, mentally, spiritually) all along the way. The severe anemia caused me to latch onto my couch + eat so much junk to cheer myself up that I gained a huge amount of weight. When my doctor put me on Lupron and iron pills for 3 months, I decided to do my part and started eating healthier. When the anemia began to reverse and I no longer felt faint (about a month into the treatment), I started exercising. Also, made sure to get plenty of rest and reduce stress. My focus during Phase 1 was to get my blood level up and prepare for my myomectomy.
Phase 2 was my Hysteroscopic Myomectomy. I focused on the two submucosal fibroids that my doctor had to shave down. Made it a point to continue to eat healthier, exercise, get rest, and reduce stress. Wanted to recover from Phase 2 as efficiently as possible so I could get to Phase 3. Notice I’m saying efficiently and not quickly. Julie is right. Listen to your body.
Last phase for me was my Uterine Fibroid Embolization. This procedure shrinks/kills fibroids without removing them. I wanted my body to be in a healthier state to handle this. I also had to have my mind right. I hated that my fibroids made me so sick but tried my best not to hate them. They were a part of me and I love me. I told my fibroids that they had to die (take one for the team) and I would really appreciate them doing so quietly. I am now several months post-procedure and know the fibroids are still shrinking/dying. I continue to do what I can to lessen this impact on my body.
With recovery, focus on things you can do to improve your health. Eat better, reduce stress, get plenty of rest, move when you are able, and make sure to follow your doctor’s instructions.
Best wishes!
Julie:
Thanks for the great response. I was definitely on that treadmill of life running full blast. I ended up putting my health just about at the bottom of my list of priorities and ended up flat on my face because of it. I also seized the opportunity and learned from it. I know that I am maturing into a more balanced person because of my fibroid journey and for that, I am thankful.
Glad you are on the “other side”. I wish you well with your recovery and with your future endeavors!
January 3, 2007 at 11:51 pm
I just listened to a voicemail from my doctor’s office. My fibroid went away! It was only 3 cm, but I had been through surgery 4 years ago for 3 fibroids (1 softball and 2 golfballs). This time I took Fibrovan since these chat rooms talked about it. No one had anything bad to say, but no one said it worked either, so I promised myself I’d post if it worked.
Well it did! And in only about 3 weeks. My back pain went away the first couple of days. But it started coming back after a week. I read more on the Net and found out that enzymes need Coenzyme Q-10 to work, and that I may have depleted my Co Q-10, which is what all my enzymes need so this is not good. I started taking Co Q-10 (100 mg every other day) and Magnesium (250mg every other day) because the write-up said so. I never checked why because I was too busy. But it worked.
The nurse doing my ultrasounds told me nothing would work and the fibroid could only go away with surgery or once I went through menopause and my organs shrank up. I’m going to call her to tell her to spread the word.
I just read today on one of these sites that enzymes like Fibrovan work best on small fibroids, which mine was, but I’m going to use these again if I get a big one. I took 2 Fibrovans twice a day, and the instructions said I could take 2 three times a day, so I’ve got room to increase dosage to take on bigger fibroids.
Good luck to you all! God bless.
OH -almost forgot. I had been taking 400 IU of Vitamin E for hot flashes daily, along with Potassium (99mg) and B-complex with C. So I don’t know if that helped the magnesium, since I think potassium and magnesium work together, but maybe it didn’t make a difference. But I wanted to give full disclosure. I take no other meds.
Linda
January 4, 2007 at 5:02 pm
Hey Linda!
How was this verified? MRI? Ultrasound? Manual exam by your GYN?
Forgive me for being my inquisitive self but I can’t find any clinical studies or research papers about Fibrovan and it is not approved by the FDA so I tend to ask a ton of questions. I really wish these companies would work harder to publish their findings in peer-reviewed journals. Perhaps, you could contact them and suggest conducting studies and publishing results as a way for them to get the word out.
Thanks for sharing your positive experience. Best wishes to you!
January 5, 2007 at 3:51 pm
Hi EG,
If I thought a pill would shrink my fibroids, I’d be all over it! Have you had many posts about this Fibrovan stuff? Where do you buy it? I’m in Canada, so not sure if it’s even available here?
Just curious, and thanks!
Pam
January 6, 2007 at 5:41 pm
Hey Pam!
Unfortunately, there is no miracle fibroid pill. If it did exist, this geek would report it.
I’ll talk about it briefly only because people are googling it and ending up here. There are NO clinical studies demonstrating safety or effectiveness and it isn’t approved by the FDA for anything.
From their site:
For those reading along, if you don’t believe there are no journal articles or research papers, please go to Google Scholar and/or PubMed. You won’t find anything. I am allowing discussion here to prove my point. So, I invite anyone and everyone to come here and debate the SCIENCE of these products. Please tell me how it can selectively “dissolve” a fibroid composed of uterine tissue and NOT dissolve your uterus in the process. This is a SCIENCE-based site and I am a geek. I need SCIENCE-based responses. Write more than “it worked for me and only took three weeks but I never bothered to find out why”. This blog is for information and not a “chat room” as someone mentioned in a comment above.
I get excited over things like KBG because of the promising research. Can’t say the same about some of these other products. For those truly interested in alternative therapies, please see reputable people who have the education and experience to advise you on treatment options.
Not sure if any of this answered your question but you aren’t missing out on any “magical treatment” by living in Canada.
Curiosity is an admirable quality. That’s why I call myself inquisitive. If you have other questions, keep ‘em coming.
Best wishes!
January 8, 2007 at 10:39 am
Hi EG,
Thanks for the response. I have my second opinion gyno appt. on Thursday. She happens to be of Chinese descent, so I plan to ask her if she knows anything about KBG. Might be interesting. Like you, I am fascinated with learning more about KBG. I’ll keep you posted.
Take good care,
Pam
January 9, 2007 at 5:29 pm
Hi Pam,
I’m adding a link to the post that lists questions to ask a fibroid doctor. I think I mentioned it to you before (at least I hope) but I’ll stick it here for posterity:
What questions should I ask my fibroid doctor?
I’m really excited for you. Best wishes with everything!
January 10, 2007 at 2:15 pm
Hi EG,
You are the best—thanks so much for that link. I will surely use it.
I have to share this with you. I haven’t bled since Nov. 19, but it was really, really horrible. “Niagara Falls” of blood with HUGE clots. Yesterday at work I started cramping a little and I was immediately TERRIFIED. I was so scared I would start bleeding at work (the “big” bleed, I mean) You know? Then I thought, I can’t live this way any more. I have to take control of this.
The big day is tomorrow. I’ll let you know how it goes.
Thanks so much for your support.
Pam
January 11, 2007 at 4:03 pm
Hurray!! I finally found a great gyno. Young woman, very casual and kind. Put me at ease right away. She told me that my fibroid is huge, but if we can control the bleeding there is no reason why I can’t live with it until menopause. She mentioned UFE and also hysterectomy. She is going to refer me for a UFE consult.
She gave me a uterine biopsy just in case the bleeding is caused by pre-cancerous condition. (The old man gyno I went to wanted to do a biopsy, but in a really invasive way. We did it in her office in under a minute!)
But her gut feeling is that my bleeding is hormonal. Our next step is to test my hormone levels and adjust accordingly. She gave me a prescription for Cyklokapron to take only when my bleeding is severe.
So I guess for me right now is the “watching and waiting” treatment. I am so relieved to have found a doctor I really like and trust. I can’t stress enough to all out there to get a second or third or fourth opinion. The first guy I went to ONLY gave me hysterectomy as an option, and wanted to do a really invasive biopsy procedure. Look at the difference between the two doctors!
Good health to all,
Pam
January 11, 2007 at 6:06 pm
wonderful to find you all. amazing experiences, sharing and being so clear about things is precious. this can be a lonely road:-))
and in amongst the procedures and processes people are choosing – for now i am going with acupuncture, herbs etc, though recent 20% growth got me thinking about other things i wondered if folks have any ‘tricks of the trade’ around managing the bleeding and heavy days. i feel shy to ask about this part of it all, but wonder if folks have ideas i might not have thought about – beyond towel rags, pads etc… anyway, if folks have inventions or ideas….
I am 41, 4 fibroids, from 5cm – 8.8cm…, had them diagnosed 5+years ago.
[Edited by EclecticGeek to add: I created a new post that talks about managing heavy bleeding.]
January 11, 2007 at 6:34 pm
Hi everyone, I’m happy to find a page like this where I can see I’m not the only one with fibroids. I’m 27 years old and found out I have one fibroid (5cm) after a miscarriage last november.
I was devastated from the miscarriage so I was not able to think through the fibroid issue, until now. I don’t have any of the symptoms, not heavy bleeding or cramping or anything like that, buy apparently the fibroid was the cause for my miscarriage so my doc recommended a myomectomy.
But I’m really scared that my uterus will be affected, so I want to try natural alternatives. Any advice will be really appreciated!!!
Thank you EG for this webpage and good luck to all!!
January 12, 2007 at 12:13 am
WOW
This has been very informative, I am stoll confused as what to do, I consulted with a radiologist and I am reading cleaning books. I will ponder some mpre and make my decision sometime this month.
I will share once I decide
January 16, 2007 at 8:58 pm
Pam,
Sorry I have taken so long but I have been thinking of you! So glad to hear your specialist is on ‘your team’! It is a massive relief to have someone caring for your health as opposed to being just another fibroid uterus.
I have been ok. Got my second period after surgery-thank god it wasnt like the first one! Only ‘regular’ sized tampons-nothing else! I AM a new woman! And I only spent half a day in bed…My excitement is sad really, isn’t it…
Susie Q
It took me several months of accupuncture every two weeks before my myomectomy to reduce the cramping and bleeding-or was it the herbs that did it? I will never know…It was a relief in a way to take Synarel for six months(I think in the US you all seem to take Neprinol) and have no periods-which I did six months before surgery after finding out my fibroids were still growing like pumpkins, but I just cant help but feel that I was better off without the drug and with the bleeding. That’s just my opinion. However, I’ll argue with myself and say that I also became quite anaemic during the whole process, and still am a little (but on the improve) and that has it’s own set of consequences. I’ve had heart palpitations, exhaustion, hair loss, blurred vision, migraine and tinnitus… I dont have any answers! If nothing improves, get the buggers removed! I certainly feel better now than I did several months ago. And my pants zip up!
January 17, 2007 at 11:58 am
Thank you for the very informative web site. I wonder if you have received a follow-up report from the woman who posted two or three months ago that she was going to try a water fast.
January 17, 2007 at 1:57 pm
Hi, I am 35 yrs.old and had a miscarriage last Thursday. The Dr. said it had nothing to do with the fibroids I have. The hormone count for the baby was really low. Just had an ultrasound today and was told I have a “nice size” fibroid on the left and right side of my uterus. The one on the right is 4cm. I did not ask about the one on the left. The one on the right is what gives me problems. However, I haven’t had excessive bleeding or cramping, just an uncomfortable ache that I normally feel in the morning. Anyway, I was writing to ask the following question:
1. How many myomectomies can one have? I had one about 7 years ago.
January 17, 2007 at 9:42 pm
Pam:
Hey! Happy to hear you found a good doctor. It really does make a difference. I love my fibroid doctors (Mighty Mouse and Batman). Sounds like you have your Fibroid Master Plan. Best, best wishes and don’t be a stranger!
susieQ:
Glad you found us! Since you mentioned thinking about other options, I’ll include a link to the post on treatments:
Just what are your uterine fibroid tumor treatment options?
Bleeding? Before my periods got really bad and I was still able to leave my house, I would pack plenty of supplies (big, super thick, “this thing would suck an ocean dry” tampons + maxi, extra long, “it has so many wings/fins/flaps, it would probably fly” pads) to survive in the world. Always scouted for bathrooms and changed (tampon + pad combo) frequently. I would also limit my pain medication so I could feel the uterine contraction that signified that a clot was coming. That was my cue to go to the bathroom as quickly as possible. I also put down bath towels at home so I wouldn’t bleed all over my furniture.
Not sure how much advice you got out of that so hopefully others will chime in with suggestions. Sorry you have to deal with the heavy bleeding. I know how that feels. I always mention anemia when I talk about heavy bleeding so I’m including my post on that:
Uterine fibroid tumors and anemia?
Take care and if you have other questions or comments, please post.
Kelly:
I’m sorry about your loss. The advice I give to those interested in alternative therapies is to find practitioners trained and educated in the field. I say this because alternative therapies that truly work are truly therapies. They will cause changes in your body. You really should be under a practitioner’s care. They are best able to monitor these changes.
Since your doctor recommended myomectomy, here’s a link to the post on Abdominal Myomectomy. A lot of women there are having/have had the surgery for fertility reasons.
How are you feeling after your Abdominal Myomectomy?
I’ll also include the link to the post on fibroids and fertility.
Is anyone having fertility issues because of uterine fibroid tumors?
I know the decisions can be tough. Post if you have additional concerns.
karindes:
Glad you found this helpful. I’ll stick that post on treatments here, too:
Just what are your uterine fibroid tumor treatment options?
Keep us updated!
getjules:
It’s Lupron in the US and I was on it for 3 months. That in combination with industrial-strength iron pills really helped with my anemia. It’s an interesting drug with a number of possible side effects so I can see where the verdict would still be out for some weighing risk vs. benefit. I have a number of posts on the site about it including this one:
How are you feeling after your Lupron injections? Any side effects?
Let’s hear it for the zipping of pants…Hooray!
Lori:
Thanks for the compliment and for asking about Charlotte. I haven’t heard anything back. She lives in New Zealand and is on a waiting list for surgery. I’m hoping that as her day approaches, she’ll come back and update us. Charlotte, we miss you.
Lori, let us know if you have other questions.
Thamani:
I’m so sorry to hear of your recent loss. There are women on the site who’ve had more than one myomectomy. Here are a couple of places on the site to check:
How are you feeling after your Abdominal Myomectomy?
Has anyone needed a second uterine fibroid surgery or procedure?
I’m assuming you had an Abdominal Myomectomy and thinking of another. Let me know if this isn’t the case and I’ll direct you to the right post from the Forum.
January 18, 2007 at 11:06 am
Hi Getjules,
So nice to hear from you! Happy New Year, and it certainly sounds like it will be a better year for you. So glad that you are feeling better. One regular-sized tampon? WOW! And you can zip your pants. I’m impressed! Isn’t it funny how relative everything is, once you go through our fibroid-hell! All the best to you and keep in touch!
Susie Q,
My new gyno has prescribed a pill to help control the heavy bleeding during my periods. It is called Cyklokapron, and you only take it on heavy bleeding days. I haven’t bled since November 19 (am so happy about that!), so haven’t tried it. I hope it works! If I can control my bleeding somewhat, I can definitely live with my huge fibroid — I have no other symptoms.
Be aware and careful though. My gyno told me that excessive bleeding can lead to a heart attack or stroke. So just monitor it closely.
Hi EG:
Thanks for your kind words of support. I’m praying that the Cyklokapron will control my heavy bleeding when I need it. If not, I will have to think about a procedure. I’ll keep you all posted. Has anyone else tried Cyklokapron?
Take care all,
Pam
January 21, 2007 at 5:47 pm
I just had a premature birth with my daughter at 16 weeks due to fibroids that i was unaware of. Apparently i have three that my doctor could see, one the size of a lemon. I am very sad and depressed about this especially reading about other mothers that had fine healthy babies while suffering from fibroids. Anyways, I am worried that this will happen again and i will not be able to have children. i want to start trying to conceive again but like i said i’m worried and afraid. Is there any natural way to keep these fibroids at bay so i can have a successful pregnancy also? Something i can take while pregnant? I know that the fibroids got bigger due to the hormones and blood supply during pregnancy. If there is something out there natural i can take to level those hormones so the fibroids wont grow bigger with out hurting my unborn child. thank you
January 21, 2007 at 8:40 pm
Hello everyone!!
EG:
Thank you for all these great websites!!!
I think I’ll try for 6 months more with alternative medicine and if I don’t see any progress, then I will opt for myomectomy. Because as I said, I don’t have any problems with the heavy bleeding or cramps. My dad is a pediatrician and he is telling me that nothing natural will make the fibroid shrink and that I should have it removed, but I still have faith. Hopefully it will go away!!!
Christina:
I’m sorry to hear that!! I had a miscarriage apparently because of a fibroid I have. The only thing I can recommend is buying the book “Healing Fibroids: A Doctor’s Guide to a Natural Cure” by Allan Warshowsky, it can help you understand better fibroids.
Anyone using or anyone used castor oil packs for fibroids?? Thanks!
January 27, 2007 at 4:09 pm
Must stick an apology in with all my comments. I’m sorry for taking so long to respond to everyone. The site keeps me busy but it continues to be a pleasure to keep it up and running!
Pam:
Of course, I had to find some info on Cyklokapron:
Wikipedia entry for Cyklokapron (Tranexamic Acid)
General information about the drug’s antifibrinolytic properties. It works by inhibiting the degradation of fibrin (protein involved in forming blood clots). I guess you could call it the opposite of a blood thinner.
Tranexamic Acid Drug Information
More specific info about using the drug (dosage, possible side effects, etc.).
Tranexamic Acid: A Review of its Use in the Management of Menorrhagia.
Abstract (you knew this was coming) of a paper on Cyklokapron. This is a review article so it looked at a number of studies. From the abstract:
It’s great that Cyklokapron is non-hormonal and works in a way that gives you the flexibility to take it as needed. Best wishes and keep us updated!
Christina:
I’m sorry your fibroids have caused you so much sadness. I have a post that talks about fibroids and fertility:
Is anyone having fertility issues because of uterine fibroid tumors?
You’ll find information and a discussion going on there. Post any questions or concerns you have. You aren’t alone.
Kelly:
I’m so sorry for your loss. Fibroids really do have an impact on our lives. I’m glad you aren’t dealing with the heavy bleeding and cramping. I’ll include a few posts in case you haven’t wandered around the Forum yet:
Just what are your uterine fibroid tumor treatment options?
Since you’re giving yourself several months, this will keep you busy.
The post isn’t really that long. Just a short section on each option and links to other posts where women are discussing their post-treatment experiences.
Uterine fibroid symptoms (not my idea of fun)
Things to watch. I was surprised by the number of symptoms I suffered from but didn’t relate to the fibroids.
Uterine fibroid tumors and anemia?
I know you don’t have heavy bleeding but since so many women suffer from anemia and don’t know it, I’ve started linking this post quite a bit. Plus, there’s an interesting discussion on incorporating molasses (great source of iron) into your diet.
Take care and continue to post if something else is on your mind. Glad you found us!
January 27, 2007 at 6:53 pm
Hi everyone,
I’m wondering if there are others here taking a holistic approach so as not to have fibroids return. I had an AM just a few days ago. All is going great. Now I want to take every step possible to ensure I remain fibroid free. I’ll take some time to read over your posts. In the meantime, any advice would be appreciated.
Thanks!
January 28, 2007 at 10:08 pm
Hey….again its been a while,
because of scheduling nightmares, i have yet to have a recent appt with my gyno, but thankfully will have one tomorrow. in the meanwhile, i think i just found my dream college, and senior year is quickly getting busier by the minute:)
however, i know its going to have to slow down…or more like come to a screeching halt once i have surgery. while there is no date set yet, i know that my gyno wants me to have it really bad. we’ve tried the alternatives and if anything my symptons, especially the period…are only getting worse. so i presume the surgery is inevitable, but am cheered by the fact that i know i will get better following it:-D
my heart goes out to those who were talking about miscarriages…ithats definitely one of my motivations for me for getting this done now. i hope everyone is doing well….thank you all for the support…:)
i’ll update you when i know more…
January 29, 2007 at 5:11 pm
Hi EG,
Thanks for the info on Cyklopropan. I don’t see any red flags about it. I haven’t had a period since Nov. 19—am so excited. Hey, if I only get one a few times a year and the prescription works, I’ll be very happy to continue my watchful waiting!
I’ll let you know how things are. Maybe this medication can help others who visit this website. Also, maybe there should be a “bleeding” category?
Take care,
Pam
January 30, 2007 at 8:26 pm
Well, i had my ultrasound today and talk with my gyno, and i can tell you the neprinol did a big fat NOTHING to my fibroid. it remains the same size. i’m tentatively scheduled for a laproscopic myoectomy on the 22 of feb.
looks like this time, the alternate treatments didn’t pan out for me….ah well. i still always prefer to search them out first.
February 1, 2007 at 11:11 am
Hi Kristen,
Sorry that the neprinol didn’t help you. At least you tried alternatives before going further. Please let us know how you’re doing after your procedure.
Cheers,
Pam
February 5, 2007 at 12:25 am
Hello ladies, just checking in to read how you are all going. On EG’s thread regarding neprinol I’ve found someone who has had the same problems ‘coming off’ Synarel, an alternative drug to Neprinol. I knew it wasn’t my imagination!
Anyway, getting healthier and happier, and hoping the ugly buggers aren’t growing back. It’s 3 months since my AM surgery, and I am getting back to ‘normal’ slowly. Going to take Black strap molasses to help with the iron intake, and I’m still staying off dairy and wheat. Cant’ give up chocolate!
Good luck Kristen, the alternative methods, in my opinion, are far less harmful than the drugs to your body!
February 6, 2007 at 4:58 pm
Hi,
I’ve always been healthy and never had anything major go wrong B”H til now. I’ve always had heavy periods but you get used to them and deal. They started to get lighter about 5 years ago and I feard I was starting to go into menopause (I’m currently 40 and have never been married though am looking – HARD- and desperately want a family so this was scary). I’m not sure when the bleeding started to get heavier – I was so used to having heavy periods all my life it didn’t catch my attention – but probably over the last year at least. To be honest, when I realized I was thrilled! I thought the menopause scare was just that and I was back to normal. It’s possible as the decrease coincided with an increase in chronic, constant, monumental stress while the increase coincided with the relief – at least somewhat – of that stress. Anyway, about 3 1/2 months ago I had a period that was really heavy. Also there was no buildup just starting immediately with heavy bleeding and lasting 9 days or so. Didn’t think too much of it other than maybe a rough month. The one after I feared I was hemroghing, wearing two extra super tampons and those huge pads meant for after you have a baby and still changing every 30 minutes which wasn’t even enough. I had just changed everything and sat down to a meeting and not five minutes later new I was in trouble. I whispered something to my supervisor (the only woman around the table) and got up to go to the bathroom, noticing a splotch of blood on the chair upholstery (light grey as luck would have it). I just pushed it in so it was under the table and took off. I had bled through two tampons, the superduper pad, thick tummy tucking underwear, a pair of heavy tights, a slip and a heavy tweed skirt! Same heavy start, lasting 10days, with heavy duty cramping the entire time which I don’t normally get. Talk about denial – I still wasn’t ready to admit it was anything more than a rough month! Then came last month. Multiply the bleeding just mentioned by 10 and add clots the size of your fist which I was passing every 15 minutes or so over 5 days to the picture, with slightly less freqent clots but still the same heavy bleeding for another 5 days, then slowly lessening of the bleeding over another 5 days. Same heavy start and cramps not to be believed for 10 days! O.k. I knew something was wrong. I was going home to visit my family in Atlanta and called a cousin to get the name of her obgyn. He fit me in, and when he found out I was from out of town, gave his next patient to his partner (a routine checkup) to fit in an unsceduled ultrasound series. As he was doing it and describing what he found then measuring and repeating it for the nurse to note, clueless me was thinking it was kind of cool the way the ultrasound could really show everything. Problem was the “everything” turned out to be 2 fibroids, one subserousal and one submucousal. He was stating measurements in centemeters, one in the 3×3 range and one in the 4×4 range and thinking it was only centemeters I stupidly remarked “Well thank goodness at least their tiny!” I’ve since learned better. My biggest fear when he left for me to get dressed and meet him in his office was he’d tell me I’d have to get a D & D -You have to understand, if someone even mentions “needle” in my presence I faint. A blood draw is the biggest nightmare I can submit to so a D& C terrified me. It wouldn’t be long before that option (not a possibility) would look pretty good. He described what he found, said that surgery was the only way to take care of it and necessary and the best thing was to take out the whole “organ”. I asked in shock if he meant my uterus? In order to retain fertility he said the only possibilty was an abdominal myomectomy and from the size and where they were positioned he said it would be a 7-9 hour surgery, a week in the hospital and 8-12 weeks recovery. I won’t go into the work/benefits issues now but needless to say I left in shock. He put me on the new BCP’s that you take for 3 months to limit your periods to 4 x’s a year. He thought I’d start bleeding again by last Friday from the looks of my uterine lining. Since then I’ve been researching and talking to Dr.s and others who have had the surgery. All the people I know were post menopausal so it wasn’t the same circumstances. The more I learned the more I found out about all the problems and risks associated with the surgery and started searchin for natural alternatives to at least try first. I’ve been taking the black strap molasses for over a week now and started on the KBG (ordered from the Happy Herbalist in California – he has his own website for those who are interested) along with echinacea, iron, and a multivitamine. Everyone’s saying I’m looking for a magic cure but as long as I’m not taking it lightly and watching for worsening of sxs why not try something natural before letting them cut me open from hip to hip? I’m going to try to find some Chaste tree since that seems to be another herb with support for shrinking fibroids as well as “Shepard’s Pie” which is an antihemorrhagic. I don’t want to suddenly start taking too many things at once and so am going to add each after I see how I do on the previous ones. So far, it’s too early to tell anything but it’s tuesday and I haven’t started bleeding again yet. I count each day as one more I’ll be on the BCP’s and herbs so hopefully when I do start I will see a bit of a difference. O.k. that’s it for me right now. I realize this is terribly long, but once I started I just couldn’t stop. I’ll check in as things progress and let you know what’s happening and if anything seems to be helping. This is a great blog by the way and I’m glad I found it.
Best to all out there,
Nechama
February 8, 2007 at 5:28 am
Nechama, Good luck with it all. I’m all for the power of positive thinking, it makes a hell of alot of difference to your health overall. Watch the anaemia…it led to the need for my eventual surgery-though the drug therapy should help. And the fact that my fibroids didn’t stop growing, despite Chaste Tree and other herbs. Watch also for contraindications with the herbs and drugs. I would consult someone about this. My fibroids grew fast. despite the herbal therapy, to one at 15×15. four at 10×10 and one at 7cm. Obviously, I was in denial and an AM was the only option in the end to preserve my fertility, but there are no guarantees with any treatment, they didn’t shrink with six months on Synarel either. Keep researching and monitoring your symptoms closely, and dont dismiss any changes as inconsequential. Read all the posts on this blog and you’ll see what I mean.
February 8, 2007 at 6:47 pm
Thank you, EclecticGeek, for creating this forum. I’ve done a lot of research over the past week (having just been diagnosed with fibroids last week), and just ran into this today. A brief synopsis of my path (wow, that I can write this and know that people will understand is amazing): I had my first overly short period in late Nov/early Dec. Bled for 2 days when it’s always been about a week. Thought nothing of it, figured it was a stress thing. Then another short period 2 weeks later. Then, end of December, a seemingly normal period. Except it kept going… and then after a week there were the clots. I have to say, I love the post where you say they could have starred in their own horror movie – there was no way for me to explain that to anyone. The way they felt exiting my body!! And the constant wearing of black to minimize the clothing damage. Finally the fatigue became overwhelming, and logic decreed that after weeks of bleeding, I was no doubt anemic. I finally went to a doc (no insurance), was sent for an ultrasound, etc. Also called a homeopathic doctor I had met for some recommedations – and what I want to share is the effectiveness of Shepherd’s Purse (bursa pastoris). I told someone yesterday (I’ve been taking it about 2 weeks now, 1-2 droppers-full every couple of hours in a little water) that it’s my one link to sanity these days. It SERIOUSLY has slowed down the bleeding. I’m still deciding what to do as a solution; the gyno suggested Lupron as a temporary solution since I can’t afford surgery. I want to do more investigation of alternative therapies, and the iron and herbs I’ve been taking are keeping me from losing it/wasting away while I investigate. I also cut out caffeine and am minimizing red meat and chicken; most of the sites posted about dietary changes I ran into during my research. I’d like to think it is all helping – I feel a lot more human now than I did 2 weeks ago, although the anemia seems very difficult to overcome. It might be time to go hunt down some blackstrap molasses!
February 9, 2007 at 7:37 pm
Getjules,
Thanks for the response. I think due to the incredible panic and fear of surgery I’m searching for anything else that might help. You’re reading the words of someone who is so severly phobic she lied as a child about having received a tetnus shot at camp so as to avoid getting one (of course one call to the camp and I was on my way to the pediatricians!) I have read just today that there are certain adverse interactions between birth control pills and some herbs so I’ll have to watch that. I’m beginning to come out of the denial that I can fix it myself with a few drops here and a few pills there. I am going to try to locate a naturopath who specializes in oriental medicine to do it right. Only problem is my insurance covers just 20% of alternative medicine fees. With extremely little money, I need to see what I can do. But I know I at least need a consultation since just taking a bunch of herbal remedies you researched on line, no matter how many studies have been done, can be even more dangerous than doing nothing at all. More another time.
February 12, 2007 at 12:18 pm
Baby conception and fibroids
I had abdominal myomectomy 3 months ago to remove multiple fibroids – about 10 but the dr did not remove the 4cm one in the submucosa due to excessive blood loss during the surgery. Been trying to conceive for the last 4 years and have had 3 miscarriages hence the decision to have myomectomy.
Does anyone know anyone who has submucosal fibroid and have had a succesful pregnancy? Or is it better to go though another surgery – resectiion I’m told.
I’m also considering alternative treatment – Vitex (chate tree berry) – to shrink fibroid – any experience with this
February 13, 2007 at 3:43 am
Nechama, I think we were seperated at birth! I have enormous phobias regarding medical treatment. I also have a distinct lack of money for alternative treatments. You know, I’ve done all the research, and wondered about what caused these strange lumps to grow in my body. I’ve talked to GP’s, surgeons and OBGYN specialists about why they occured-with no answers. However, the most astute explanation, for me, was from my Acupuncturist. He simply said, ‘wish fulfillment’. He thought that perhaps my body was ‘filling’ my uterus for me…I know that sounds a little ‘airy-fairy’, but it rang true for me. I’ve noticed that alot of women on this blog are around my age group (39) and desperately want children…My housemate and her partner were also pregnant at the same time as the rapid growth of my fibroids, and I was extremely envious (They had a beautiful boy last April)…Go figure!!! Dont mean to offend anyone if this isn’t the case with your fibroids….
February 15, 2007 at 11:38 am
Wow! I think we were separated at birth! I truly believe these monstrosities began to grow when I started my new job last May. None of the promises made in negotiation were kept, there’s nothing I feel I’m working towards, no professional development, and I noticed pretty quickly I got a stomach ache as soon as I went in. In addition the program director, my supervisor, is 23 and, while I know she’s worked hard to get where she is, comes across as fairly young and naive about the way of companies sometimes. Then I find out she already has a beautiful little boy. Within the first few weeks of the job we became friends and she disclosed she was going to sign up for the long term disability since it covered her for an extended period if she became pregnant. And she intended to become pregnant that year. And then she did. No problem. I want another baby, so I’ll just get pregnant – what could be easier? I’ve watched her go through the pregnancy, be miserable admitting she hates being pregnant, hates when the baby moves around when I’d love to have that feeling. I’ve been knitting her baby blankets and hats for months and it’s almost D-day. She has a sceduled C-section on March 1 – and intends to work full time until the day before, despite potential problems with high blood pressure and doctor recommended bedrest. At the Christmas party I sat at a table with her and 3 other couples – All the women were pregnant and had a child already. All they talked about all night was conception, pregnancy, children, giving birth, c-sections, well you get the picture. So now where a little over a week away and I don’t even fantasize about children anymore. But every symptom she’s had I’ve also had, the pain, discomfort, distended uterus, etc but when she goes in for her surgery she’ll (God willin) come out with a bouncing baby girl and if and when I do, if it’s successful I’ll come out with adhesions, the promise of a high risk pregnancy if I ever do find someone to marry and get pregant, and the almost certain promise of the fibroids growing back and getting to go through the hell all over again which will likely mean from what I’ve gathered from Doctors, a required hysterectomy (no one I’ve talked to will risk taking them out twice while leaving the uterus since at that point there will be too much damage so pregnancy or carrying to term is no longer a realistic possibility). So I definitely don’t think you’re out there in la la land. I think I started the process with the stress and lack of satisfaction from my job and then they grew as I started mimicking the directors symptoms associated with her pregnancy. I also desperately need to find a different career path but cant chance losing my benefits now. Although I told the director about my condition (more as a friend) asking her to please not tell the upper management as if they think I may be out for an extended period I fear (and believe) they will fire me first so as not to have to pay disability or health. Yet another stressor as I expect someone to walk in and fire me every minute of every day.
Quick update. Still no bleeding at all though I should have started my period by last Friday by my count. Been on BC pills for almost 3 weeks. Using Molasses, the chinese herb specially mixed with a particular seaweed – a formula this particular naturopath in California has prescribed successfully for fibroids in the past (he’s great – you can call him or email him any time with questions at no charge and he ships your order immediately). I don’t know that it will help in my case since mine are larger than the ones he stated were shrunk while the women were on this formula, which he warned me about, but I just can’t face up to the surgery unless I’m at a life threatening stage, or have actually met someone and intend to marry and try for kids. I’m also doing echinacea, (vitex by the way does have a lot of support behind it regarding shrinking fibroids though again generally the small ones. I can’t take it because you can’t use it along with BC pills and while the naturopath says I should go off them and take the strictly natural route to rebalance my hormones, I’m just not ready to risk the return of the hemorraghing and clots), shephards purse and drinking tons of water. Don’t feel any worse though the pain is decreased somewhat but I never had a ton of pain outside the days of my period anyway. That’s where I’m at. Will keep you updated as things continue.
Best to everyone out there,
Nechama
February 15, 2007 at 11:54 am
Nechama, reading your post my heart goes out to you. I don’t know if you had a chance to watch Oprah about a week ago. She spoke about the laws of attraction. “That which you focus on becomes bigger”. I truly believe that by focussing on yourself and not on your colleague, you will be able to work through your challenges. I hope I do not sound like I am preaching… goodness knows I have a thing or two to learn myself… I just believe that the more you dwell on this young lady about to give birth, the more you will make yourself unhappy. You have to focus on yourself and what is possible for you. You are a strong woman to have gone through so much. And I wish you all the best.
February 16, 2007 at 5:25 pm
Thanks Tina. It’s incredible what what a long way a little support from a stranger can go! Hope you’re well and healthy.
Best,
Nechama
February 17, 2007 at 12:07 pm
Nechama, this website has made the world such a small place, especially after reading everyone’s story and identifying with so many different wormen. At the end our current situations are what has brought us together. We see ourselves in each others stories. Thank you for sharing yours. I too wish you well and much happiness.
Tina
February 17, 2007 at 8:01 pm
Hi Ladies,
I feel for you all, and am right there with you. Talk about heavy bleeding, not to disgust any of you but I am now changing my super tampon every 45 min. I have to wear a pad as well or I’ll just start bleeding through. I’m homebound for 3 days a month. I know stress is bad for you but this adds to mine.
I fortunately am seeing a board certified GYN who is also a naturopath. I’m on a diet…nothing that’s not organic, no refined sugars or flours, no alcohol.
I had surgery for this before several years ago and I am very fearful of having it again. I had to stay an extra day because I developed a mild pnemonia. The diet does not seem to be working. I’ve been it on it about 6 weeks.
I am interested in any successful non-surgical treatments. My husband and I would really like to have kids, but at 37, time is running short.
I want to thank you all for your posts. As I’m sure you’ve all experienced from time to time this “syndrome” for lack of a better word, is very frustrating, frightening and can be very disheartening. It is nice to know there are other women out there that have the same concerns I have. Makes me feel a bit more rational.
Thanks especially to EclecticGeek for starting this. If we all try various things, we can all share our experiences and hopefully help others along the way.
Let’s all keep in mind that what does or doesn’t work for one of us may or may not work for others of us.
Any information I find I will post. I am on a mission!
Sandi
February 18, 2007 at 9:55 am
Abbi – I had a submucoal fibroid removed (along with 5 others all kinds ) and that one gave me the MOST problems with bleeding and clotting and my doc told me (may not be the case for you) that my chances of getting pregnant with that fibroid were slim to none. He did just that during surgery resurectoin as not to breach the uterine cavity to much. It did leave a big ole whole that had to head but hey its healed now.. Even after it was removed,,,its taken a while to heal but I am healed now and trying to get preganat
I did post an portion form a journal article I found regading types or fibroids and fertility issues. I can get to it my looking on the [FORUM page Related Issues #2] (or a link my area in time LOL) It talks about how some fibroids distort the uteus for impeded implantation due to dimished blodd supply.. It just food for thought
My sister had a fibroid in the uterine cavity and got pregnant (via IVF ) and delivered fine …
check out the article..
I hope to be able to come back and
[Edited by EclecticGeek to add link.]
February 18, 2007 at 9:57 am
geeze my typing is bad…
You can get to the article by looking on the [Forum page REelated Issue #2 Fertility Issues and fibroids] (or a link may appear in time)
LOL
[Edited by EclecticGeek to add link.]
February 19, 2007 at 7:11 am
Thanks ladies for all your invaluable contributions and advice. I’m going to have trouble weaning myself from this blog EG! Good luck Nechama, I’m holding on to the dream of a pregnancy in the near future. Hope all goes well for you, whatever you choose. Wish me luck in filling my ‘darned sock’ of a uterus!
February 24, 2007 at 9:22 pm
this is a question for Willow who posted into the weight blog, even though I haven’t seen her here.
Willow, I would be very interested in knowing how long you have been doing acupuncture and herbs for your fibroids, and I would like to know how you get on, as when I spoke to my chinese doctor, he was unable to help even though he has helped me with many other problems western medicine hasn’t been able to fix.
February 28, 2007 at 12:21 am
Taking birth control during period might stop heavy bleeding. I have friend, who has fibroid, intakes brith control during her heavy bleeding. She has her normal bleeding last about a year. She only intake birth control while she has her heavy bleeding.
March 2, 2007 at 7:42 am
A question for all you knowledgeable ladies: SOY and fibroids. I’ve heard both arguments. Does anyone know if we should eat MORE soy or stay AWAY from soy?
Jess
March 2, 2007 at 10:05 am
Hi Jess,
I had the same concerns about soy. What I have read is that regular consumption of the phytoestrogens in soy and other beans may be beneficial. The naturopath I consulted with recommended one servicing of soy in the form of tofu, miso, or soy milk once a week. He did advise me not go beyond these guidelines. Thank goodness cause soy and me, we are not the best of friends!
March 2, 2007 at 6:40 pm
I have to say, I have found that soy makes my bleeding worse, and so I am going to have to eliminate serious sources of it (miso soup, soymilk). I actually really enjoy those forms of soy, since I am lactose intolerant and also in need of protein. Ah well – nothing is worth increasing the already-heavy periods! And again, I recommend Shepherd’s Purse to anyone who hasn’t tried it already. I cannot stress how much of a difference it made when I thought the bleeding (and the evil clots!!) would never end.
March 5, 2007 at 10:15 pm
CL, what is Shepard’s Purse and how is it taken (Tea? Pill form? Liquid?). As for being lactose intolerant, have you ever tried almond milk? It is quite tasty and can even be made at home.
March 6, 2007 at 11:27 am
Tina (1/24),
You beat me to it. I’ve been gathering up some information (yeah, geeky stuff) over the past few days on Chaste Tree, Shepherd’s Purse, and soy. I’ll start posting what I found and CL can add her knowledge.
March 6, 2007 at 1:09 pm
Thanks EG, look forward to that info as well.
March 6, 2007 at 1:31 pm
Time for me to be geeky…
First, other posts related to the various discussions here. You can visit and add your thoughts there as well:
Uterine fibroid tumors and anemia?
Can I change my diet to help with fibroids?
Did you see Oprah trying acupuncture?
Are you following the “Watchful Waiting” fibroid treatment option?
How are you managing your heavy menstrual bleeding?
Is anyone having fertility issues because of uterine fibroid tumors?
Are you healing your spirit and mind as well as your body after your fibroid procedure?
Found some info on herb/drug interactions that I added to my original post way back at the top. Nechama mentioned an interaction between Chaste Tree (Vitex agnus-castus) and birth control pills and I did read that at the end of the third reference I’ll list.
The Interactions of Herbs and Drugs
Interesting because there’s also a little history in this article.
Checking for Possible Herb-Drug Interactions
Use of Complementary/Integrative Nutritional Therapies During Cancer Treatment: Implications in Clinical Practice
Don’t be alarmed by me sticking in this reference to cancer treatment. It has good tables that group supplements according to their various properties (coagulants, anticoagulants, laxatives, etc.) so I wanted to include it. Scroll down about halfway.
I want to talk a little about Chaste Tree, Shepherd’s Purse, and soy but I’ll break my post into sections. That way, we won’t end up with information overload.
March 6, 2007 at 2:15 pm
Hi! Just spent a couple of hours reading all of the posts on this blog and have to say I feel so much better after this than anything else I have been reading. I actually feel luckier than most b/c thankfully I only have 1 fibroid and it’s about 6 cm. I have been going to acupuncture for about 6 mos and I was originally going for stress and anxiety and then realized maybe it could help with my heavy periods that I had been having for about the past year. I just found out I had a fibroid about 1 month ago. I am 36 yrs old and have never had children so I am interested in preserving my fertility. Of course I attributed my heavier periods to stress, b/c I broke off an engagement about 1 yr ago and had just purchased a new home with my ex and now had tons of new bills, along with a lot of lost money on a wedding that was supposed to happen in June of last year. All of that on top of the emotional stress that comes with something like that and the whole “I’m getting older, will I ever find the right guy and have kids” thing that I do to myself on a regular basis. Anyway I went from 2 to 3 day periods that had 1 moderately heavy day to 8 day periods that kept me in the house for 2 solid days wearing super plus maxis and still bleeding thru every hour. I bled all over a date’s car one night when I was taken by surprise. Imagine the embarrassment.
So now I’ve been biopsied and the dr is recommending AM to me, but not pushing it, thank God. He feels it is best to keep my options open for kids. My question is about the laparoscopic myomectomy as opposed to the abdominal. My dr doesn’t do the LM, but has anyone researched the 2 options?
March 6, 2007 at 3:07 pm
Hi emc,
Thanks for visiting. You’ve been through a lot but I’m glad you’ve made your way here. With your heavy bleeding, I’ll just add a link to this page that talks about anemia:
Uterine fibroid tumors and anemia?
The heavy bleeding (with huge clots) and severe anemia forced me back into my doctor’s office for help with my fibroids. Also, I have posts in the Forum that cover a wide range of topics. You can check there in case you have other questions.
With AM and LM, I’m not a doctor but the size and location of your fibroid will determine which procedure is better for your case. You can talk directly to women who have gone through the procedures by checking these pages:
How are you feeling after your Abdominal Myomectomy? (part 3)
How are you feeling after your Laparoscopic Myomectomy?
Wander around a bit and let us know if you have other questions. Tina had a great post a little earlier that talked about the laws of attraction. I know things seem so stressful now but focus on you and your health. That’s the most important thing. Once you get your health back on track, other things fall into place.
March 6, 2007 at 3:31 pm
Chaste Tree or Vitex agnus-castus
Used in the treatment of many female conditions, including menstrual disorders (amenorrhoea, dysmenorrhoea), premenstrual syndrome (PMS), corpus luteum insufficiency, hyperprolactinaemia, infertility, acne, menopause and disrupted lactation. Believed to be both dopaminergic (binds to dopamine receptors) and estrogenic (binds to estrogen receptors).
Please see these abstracts:
Chaste tree (Vitex agnus-castus) – Pharmacology and clinical indications
Isolation of linoleic acid as an estrogenic compound from the fruits of Vitex agnus-castus L. (chaste-berry)
Evaluation of Estrogenic Activity of Plant Extracts for the Potential Treatment of Menopausal Symptoms
Pharmacological activities of Vitex agnus-castus extracts in vitro.
or skip all of that and read this Wikipedia entry and the short interesting article that follows:
Vitex agnus-castus (Chaste Tree)
Estrogen’s a Natural in Herbal Remedies
March 6, 2007 at 5:54 pm
Shepherd’s purse or Capsella bursa-pastoris
Classified as an antihemorrhagic (a blood coagulant in this case) and urinary antiseptic. I couldn’t find many abstracts that talked about its pharmacological properties but I did find this article. It’s interesting because in addition to the discussion about herbs, the article goes into detail about menstrual cycle regulation.
A Healthy Menstrual Cycle
This is a PDF file so you need Adobe Reader (it’s free) to view it.
I’ll also include the Wikipedia entry:
Shepherd’s Purse (Capsella bursa-pastoris)
March 6, 2007 at 8:12 pm
Ahhh, the controversy of soy. As Jess stated, there is evidence to support both arguments. Some feel since it is estrogenic (binds to estrogen receptors), soy would contribute to the problem. Others feel it acts as a weak estrogen. Therefore, soy would bind to the receptors, block your estrogen from binding, and be beneficial.
I found a great paper a few days ago put out by the UK Food Standards Agency. It discusses everything you would ever want to know about soy and phytoestrogens.
UK Committee on Toxicity of Chemicals in Food, Consumer Products and the Environment (COT) Phytoestrogen Report
The paper is pretty long (a few hundred pages and no, I’m not kidding) but worth digging through if you’re interested in soy. It’s the most complete report I’ve found so far. Definitely, a geek’s dream!
After reviewing the published scientific data, the group concluded that more studies are needed. There is some evidence emerging in these areas but we need more:
1. Just how is soy digested? What is the role of the gut microflora in the metabolism and bioavailability of phytoestrogens?
2. How are phytoestrogens absorbed, distributed, metabolized, and excreted (pharmacokinetics)?
3. What is involved with the receptor interaction? Estrogen receptors are transcription factors so what’s happening when phytoestrogens bind? Which genes are turned on?
4. What else are phytoestrogens doing in the body besides binding to receptors?
Since there are so many questions, I eat soy. It has not caused me problems and I really like the taste. I’m limiting my meat these days so soy and beans are good substitutes for me. Having said this, because there are still so many questions, I understand being cautious. Tina, thanks for the recommendation. At least now I have a guideline for comparison. One of these days, I’m hoping to write a separate post about soy because it is a fascinating topic.
A couple of other links if you don’t have time for the long paper:
USDA-Iowa State University Database on the Isoflavone Content of Foods
Pretty neat because it allows you to compare the isoflavone (phytoestrogen) content in various foods.
If that link doesn’t work, you can grab the data table here:
USDA-Iowa State University Database on the Isoflavone Content of Foods, Release 1.3 – 2002
Medline Plus entry for Soy
(Remember you need Adobe Reader to view the PDF files. It’s a free download.)
Whew! I’m done… for now.
March 6, 2007 at 9:05 pm
Reading a comment by Maureen about her fibroid causing hip pain.
I’m experiencing the exact same thing. It has been going on for over a year and I had thought it was arthritis until I found out I had fibroids (3 weeks ago).
I’m 42 and do not want to have a hysterectomy.
My first plan is to get an MRI to see just how many and how large and go from there to
-watch and wait with changes in diet, herbs, and detox plan
-if that doesn’t work, I’m leaning toward embolization or myomectomy
March 6, 2007 at 10:02 pm
EC, thanks for taking my soy question so seriously! I will try to read what you suggested as soon as I can.
Jess
March 8, 2007 at 10:46 pm
Great links EG. Thanks for taking the time to post and inform!
March 11, 2007 at 12:22 am
Does anyone have any experience with Loestrin 24 to help regulate cycle and regulate horomones?
I’m on the fence as whether to start the pack or wait.
March 11, 2007 at 8:53 am
Hi Is, I orinignally went on the pill to regulate my periods. I was on the pill for 5 years when my dr found my (large) fibroid. He told me to stop taking the pill to see if it affected the growth…he said for some people the pill makes it grow slower, and for others it accelerates growth. I saw him again 6 weeks after stopping the pill and my fibroid had grown another 1 1/2 cm. Hard to know if that was acceleration or a slowdown in growth for me. I guess I should have asked you this first…do you have a fibroid or are you just asking about hormone/period regulation?
Jess
March 12, 2007 at 10:12 am
I am a licensed acupuncturist who also has fibroids. I have found that acupuncture with chinese herbs and a change in diet helps shrink them and ease the pain. In some cases I recommend it is best to have them removed and then begin an aggressive way to keep them from returning with acupuncture, herbs, diet and lifestyle changes. I also use magnets for pain.
I have been frustrated with western medicine and how MDs approach treating fibroids and most other GYN disorders. I have written a book called Screaming Uterus Syndrome on alternative ways to treat fibroids and endo. I would love to see western medicine and alternative medicine work hand in hand to help women with these issues.
March 12, 2007 at 10:13 am
http://www.screaminguterus.com is the website
March 13, 2007 at 12:48 am
Hello to all:
I am 29 and was diagnosed with a walnut sized fibroid in Dec. 05. So far I do not suffer from any symptoms other than slightly heavier periods than I used to have (they have always been heavy and lasted for 7 days). I am sorry for you ladies that have much worse symptoms. My question is this: Has anyone tried Homeopathy such as Nux Vomica or Silicea or Myrristica Sebifora to shrink or dissolve fibroids? I have used homeopathic remedies for other conditions (mainly Arnica for bruises, and calendula for stitches….worked wonders after the birth of my daughter) If anyone has tried any of these or other Homeopathic remedies please post it!
March 27, 2007 at 6:42 pm
Hallo to everybody,i’m writing to you from Greece.I took Neprinol Vitalzym and Dim ,simultaneously,for about 3 months to shrink my 8cm to 5 cm fibroids.I also had a strict diet.No result at all!
I ordered Maitake capsules now.I consider myself as an extemely surgery -phobic person so I try several supplements.
The only think that worked for me to eliminate my excess menstrual bleeding was stinging nettle tincture.I also read today that it’s root extract has lignants good for shringing fibroids!It is also mentioned to help increase iron levels.
Even if I only keep what I can see, it helped me a lot with my period
I hope it helps you too.
March 30, 2007 at 2:25 am
Hi to all,
I was diagnosed with a 9 X 8 cm fibroid in Feb. My Primary care Dr. recommended a hysterectomy, as did my Gynocologist. The only symptom I had was very heavy bleeding during my periods, so I’d rather deal with that than have major surgery. As long as this fibroid doesn’t grow, I’ll try to postpone as long as I can.
I was also severly anemic due to the excess bleeding, which in turn made me bleed even more. Correcting the anemia has been my primary goal, and I think I’ve made progress by taking Floradix iron & herbs (a liquid supplement sold at health food stores) and Blackstrap, 3 tbs per day. After 2 months, my hemocrit is normal, and though my ferratin is still low, it is climbing. (it was a 2, now at 6) My hemoglobin is 10; was 7, so taking these two supplements & being more aware of diet is helping.
I’m on my second day right now and instead of gushing, there’s just an occasional outflow. Still heavy, but not like it has been, which was close to hemorraging. I’m also taking Shepherd’s Purse & Rasberry Leaf tinctures 3 or 4 times each day to control the bleeding, and it apprears to be working for me. I’ve also heard Lady’s Mantle is a good herb to control bleeding.
I am willing to try anything at this point. I’ve even switched to non-chlorine bleached tampons & washable hemp pads. They say the chemicals in the feminine products are estrogen mimics, and may make you bleed more. We are surrounded by chemicals, and I believe these are playing havoc with our health.
I am almost 50, but according to a blood test they just took, am nowhere near menopause. I am going to try accupuncture and a few other less invasive therapies first before going the lupron & surgery route.
Great website! It’s comforting to know there are many women in the same boat, and by talking about our own experiences, we may be able to help others.
Rose
March 30, 2007 at 4:14 pm
I just found this website yesterday and have read every post on this page and abdominal myomectomy. I’m have about 7 fibroids, the largest is 10×7 cm, and is what’s giving me the most problems. It’s actually the one who alerted me that I had a problem, since i didnt have any of the traditional symptoms like heavy bleeding. But I had been working out and lost alot of weight yet still had a hard pouch plus I was having pressure on bladder, constipated, and discomfort during sex. So went to the Dr and was told I had 7decent sized fibroids. As a matter of fact the ultrasound tech said “you have some serious fibroids dear”.
That was last June, I did some research and tried Vitex but they have not shrank, as a matter of fact I’m feeling more pressure on my abdomen and also slight pain in my bowels. Anyone w/larger fibroids ever have that? I’ve finally scheduled surgery for May 9th and decided to go w/a well known laparscopic surgeon here. After reading this post I’m happy to see others have had large fibroids removed laparscopically, my gyno actually recommended against it. But this surgeon has exp removing large ones. Anyone have any serious blood loss during laparcopic surgery? Because mine are so big I was thinking of donating my own blood and having it available just in case.
Any comments, suggestions, experiences you can give are greatly appreciated. I feel much better after reading your comments. Thx!
April 3, 2007 at 3:06 pm
Reading all the more recent posts, I’m sorry I haven’t been back in so long, but I have to say that my periods are more or less normal now. To answer the question about Shepherd’s Purse, it’s taken as a tincture – a dropper that you mix with water and drink. The more sophisticated health stores have it (it took several calls at first for me to find it, and I live in NYC). When I was in the midst of my 6-week bleeding fest, I started taking 2 dropper-fulls 3-4 times a day. It slowed the bleeding to a point where there was no more clotting. I eventually added Milk Thistle tincture to my regimen (used to help the liver, which processes excess estrogen), and the two together finally ended the bleeding.
Needless to say, I waited in fear for my next period. It arrived a week early, the day after I drank half a miso soup (unsure at that point whether soy was a good or bad thing). I also noted that right after the miso soup I felt lower abdominal pain. I had also tried some edamame (soybeans) in a quest to increase my iron while I was bleeding profusely, and thought I noticed worse clots afterwards. My conclusion about soy, considering what I read here and what I experienced, is that different people might react differently – for me it’s too estrogenic, and I’m eliminating it.
As for that period, at first it seemed normal; then the second day I noticed a bit of flooding. I immediately started with the Shepherd’s Purse again, and it ended after a week without any extra symptoms. I am now in the midst of my next period, but I took a few droppers of Shepherd’s Purse at the beginning and it seems to be going normally. Additionally, I try to take Milk Thistle regularly to help my liver function better; I also intend to check into the other herbs EG mentioned above.
Hope this helps someone – I’m happy to report some kind of symptom relief, and I wish the same for everyone else. One last note – the (western) doctor I saw wanted to give me Lupron injections – I am so relieved to have found another way!
April 4, 2007 at 10:26 am
Hello All,
I am so glad to have found this just today. I have had the large fibroids that made my uterous very large; had myomectomy with embolization and now trying ivf only to be told there are some little fibroids. Already 38 and trying for kids. Since there isn’t a known cure, women should be helped to try and have kids as quickly as possible. Was diagnosed in 2001 at 32, , did not have an operation until 2003 at 35 ( had to go private because the NHS would not even decide what to do after 2 years) and it was not until 2006 that I was referred for ivf. I was always told to go and try naturally and now I am getting very scared that time is running out and now at 38 still trying only to be told little fibroids are showing is very worrying. Taking some herb teas but for now, don’t have any idea what to do. These ‘monsters’ decide whether to grow or remain small. Women need help!
April 4, 2007 at 8:44 pm
I have found a great deal of info on alternative treatment of fibroids by using Google. Here is the latest URL – http://www.fibroid101.com. The articles are written by a female MD. Also research results from such august establishments as Johns Hopkins are also cited. When my doctor used the word hysterectomy last spring – I have 2 small and I large fibroid- I looked for alternative treatments. The Mayo Clinic site only depressed me. Fortunately I found a forum in which other women wrote that flaxseed oil helped them. For 9 months I was pain free thanks to this herb. I also occasionally had my period every two months or once a month instead of twice a month. But now that the pain has started to return and my periods are more frequent I am once again looking for herbal or natural treatments. For me any type of surgery will be the last resort and then only when I am in constant pain and severely anemic due to the heavy blood loss. With so many alternative remedies to try I may be able to manage my fibroid symptoms until menopause when hopefully they will shrink or even disappear.
April 10, 2007 at 12:25 pm
I’m 55 and still pre-menopausal. That is not a typo!
I have multiple fibroids, but because of age and the fact that I’m *supposed* to be in menopause, no doctor wants to touch it. Unfortunately, my fibroids are large – the largest about 13cm – and I am uncomfortable every month with the bloating. My stomach looks like I’m pregnant, but I don’t have pain or unusual bleeding. Just regular periods.
I haven’t had the opportunity to read every single one of the posts, but I’m really looking at something like Fibrovan. Any comments?
April 11, 2007 at 10:49 am
Jenny:
From talking to my Dr and women in my family that have had fibroids. Many women with small fibroids still give birth. I guess it depends on the location, if your’s are inside your uterine cavity, that can prevent it. Otherwise, I’m told you can still have birth w/small fibroids. As a matter of fact thats when many women find out they have them during an ultrasound. So maybe u want to discuss w/your dr if you should go ahead and get pregnant w/them. And then have them removed after. Because I’m also getting up there (36) I discussed this possibility w/my dr but mine are just too big.
Irene,
have you considered fibroid embolization, UFE? It’s less invasive than a myomectomy and alot of women who are no longer concerned w/having children go this route. Condolezza rice had UFE to remove/shrink her fibroids. I think its also referred to as UAE. You may want to look it up on the web.
April 12, 2007 at 5:05 am
Thanks a lot Tracey, I was told the fibroids are not in the cavity so I guess that is good news and indeed as you have mentioned, people have got pregnant with no trouble even though they have had little ones and may not even have known about it. In my case though, I guess I am worried mainly because of my experience of very large fibroids that were taken out by myomectomy. Just scared they may grow large again but they may not. In the mean time we are undergoing investigations as to why the 2 ivfs have failed and will hopefully have a third one once we are given the all clear. Thanks a lot Tracey, I really appreciate your response it makes one feel they are not alone.
April 16, 2007 at 11:35 pm
I’ve done the gamut of herbal remedies (I’m an adenomyosis patient, BTW, but the endocrinology for fibroids and adeno is considered similar–both are estrogen-dependent diseases). I tried keishi buryo-kan, which is the Japanese (Kampo) name; it has a different name in Traditional Chinese Medicine that I can’t recall right now, but the primary ingredients are cinnamon and poria (tree fungus). I couldn’t digest it, so I had to quit before I had any improvement.
I took two Chinese patent medicines during acupuncture treatment last summer: fu ke yang rong pian and gui pi pian. Both are heavy on the dong quai, which is supposed to be estrogenic, so it’s possible it might have made my adeno tumor grow while alleviating my symptoms. I still bled like crazy, but had almost zero cramps. My theory is that these meds (including KBG) have blood thinning properties (hence, the “correction of blood stasis” in the Chinese literature), so my blood flowed freely out of my uterine tissues, instead of becoming trapped in the walls and causing pain.
The woman at http://www.sensiblehealth.com/endo.html says that Chinese medicine doesn’t have a system that recognizes hormonal problems–in some ways they’re very advanced, but this ain’t one of them. She developed her own treatment, which I have not tried. My impression is that it takes a l-o-o-o-n-g time.
Chrysin, a flavinoid, is a potent aromatase inhibitor (stops estrogen from being synthesized in your body fat and feeding your fibroids). Only problem is, it has zero bioavailability when taken in a capsule (liver turns it into sugar). I was thinking of getting my gyno to write a scrip to have a compounding pharmacy make it into a topical cream, which is supposed to work well.
I’m gung-ho about herbal treatments, but I concur with others here that they’re more effective at controlling small problems than big ones. I have a big one (uterus 7×10x15cm) and have switched over to Western medicine, grudgingly. I’ve lost too much time to pain already. But I wish everyone well who wants to try natural remedies.
April 16, 2007 at 11:47 pm
Forgot to mention: chrysin might work if you break open the capsules and mix it in coconut milk to drink.
Also: CL, sherpherd’s purse didn’t slow my bleeding down in the slightest. Ran through a whole bottle of it in two days. Just goes to show that our bodies all do different things.
I also tried “Yunnan Paiyao,” a chinese patent medicine made mostly of Sanchi Ginseng. It didn’t slow down my bleeding either, despite the legend that the Viet Cong carried it in their kits during the war in case they were wounded. Told my acupuncturist and she chewed me out: “no ginseng when you’re bleeding,” she said. Ginseng is funny stuff–it’s supposed to promote bleeding but also stop it (that blood stasis thing again). I did read a peer reviewed paper that tested YP and concluded it didn’t work when taken orally but had a slight effect when the powder was dumped into an open wound. Unfortunately, that doesn’t help us.
April 27, 2007 at 10:34 am
This is my first visit here, and I have gotten some comfort just reading about other experiences and knowing mine is not unique. I had heavy perioids a few years ago, but I was in my late 40’s and assumed it was just the end of my periods. My doctor sent me for an ultrasound for pain, and in the middle of it the technician said “there’s your fibroids.” Fibroids? I didn’t even know I had any or what they were!
Mine were large, and I have seven, several types. I ignored it for a while, and finally, when the bleeding got too bad, I had a myomectomy. That helped, for about nine months, but then the bleeding and clotting started and things were worse than ever.
About four months ago I started having gushing bleeds, and I’ve essentially been bleeding every day (some days gushing, some, light) since then. I haven’t had a waistline for what seems like forever. I really do look about four months pregnant, which is frustrating, but I still don’t have any pain, so I have been avoiding a hysterectomy. I really do not want major surgery with all the risks and down-time associated with it. But yesterday, I began bleeding so heavily that I was soaking trhough an OB ULTRA every hour and it’s gone on around the clock. I am really worried. I have no idea how long you can bleed like this and not cause yourself serious harm. I’m taking over-the-counter iron pills, but will that be enough? I do not want emergency surgery!
Since I am over 50, absolutely no doctor I’ve seen can think of a single alternative to a hysterectomy. I doubt there is one, and while I’m waiting to at least find a surgeon of my choice and schedule this, I’m afraid I might bleed so much that I will become seriously ill. Any suggestions?
April 30, 2007 at 5:54 pm
Jessie,
I’m sorry to hear about your situation. I am curious what type of myomectomy (abdominal or laproscopic) did you have and were they able to reomove all 7 fibroids?
That is such a shame that the fibroids gew back so quickly.
I think you have the submucosal kind that are causing such heavy periods. I believe they can do laproscopic hysterectomies where you don’t need an abdominal incision (assuming you are a candidate for laproscopic, I don’t think everyone is due to the size and maybe location of some fibroids). Good luck.
May 10, 2007 at 8:48 pm
Hi,
here I am sitting up really late. I have read almost every entry. I have at least one fibroid-it is 14 x 11 cm and causes very heavy bleeding. I saw my gynaecologist for the first time yesterday but first had diagnosis five years ago. i tried to treat them with homeopathy. I do believe they have got worse from weight gain.
It seems from reading copious blogs today that natural methods for big fibroids just don’t work.
I am quite quite depressed about this. I have friends doing absent healing and a homeopath on the case plus I have stopped eating gluten but I feel I can hear the operating theatre beckoning. I am 42 and i am not utterly clear about not having a baby-in fact i would probably get very interested in making one if I felt i had a healthy uterus myself.
I have the info about EXablate-this really is a good treatment but it’s not yet available on the NHS and it will be 1 and a half years beofre NICE will take it forward. and I don’t think my fibroid will wait much longer.
I have written to my consultant today to appeal to her to refer me to the only hospital doing this procedure as I don’t have 4000 pounds to pay for it.
Wish me luck everyone. So far i am the person with the biggest fibroid mentioned on this site. if anyone has a bigger one please feel free to compete with me!
May 19, 2007 at 12:25 am
Does anyone know if liposuction would help reduce estrogen to eventually help shrink fibroids? I have a submucosal fibroid which I was told was too large right now to remove safely without risk of infertility. I have been told to go on Lupron temporarily to shrink it, which essentially stops your body from making estrogen. But this also has side effects which could be temp. menopause. Even if temp, I have read there could be long term effects such as possible bone demineralization which could lead to osteoporis. Also it’s not fully known if by ovaries will function completely normal after Lupron.
I have excess belly and thigh fat which I can’t get rid off, no matter how much I’ve tried. It doesn’t help that I am taking BC to control the bleeding and it seems impossible to lose weight. Also, I can’t diet or excercise too much or else it breaks down red blood cells which can make me more anemic than I am.
I was wondering if taking out fat cells, under the waist which I read are the most estrogen dependent, could cause the estrogen levels to fall, and thus help the fibroid shrink or at least stop it from growing so much. I am desperate at this point since I’m chronically anemic and cannot lose fat there, and want to get rid of this fibroid. But am afraid of Lupron.
Anyone know?
May 22, 2007 at 12:22 pm
Hi Katie,
I was once in the exact shoes you are wearing today. We are of the same age, have (had) a huge fibroid, suffer through heavy bleeding, follow natural and alternative healings and still nothing purges the fibroid. And so, I chose having an Ab. Myomectomy this past January. If that is the route you also chose, the one tidbit of advise I can give you is to prepare yourself. Get fit, get all your energies straight, build on and rely on a good strong network of friends and family, read all you can off this site, and then, once you make the decision, go with it. Life 4 months post-op is not bad at all
Good luck in all you do!
Tina
June 6, 2007 at 12:23 am
Greetings,
I can relate to what a lot of you are saying. And Katie, if you want competition, how about this: my ultrasound showed a mass 23 x 28 cm. I guess I have multiple fibroids that all grew into each other. I subsequently had a CAT scan that showed 23 x 20 cm. I have been taking Neprinol and Brevail, plus some suggestions from http://www.drmccarty.com/fibroids.htm , plus a lot of supplements, for about a year and a half. But so far my doctors don’t believe I’m getting shrinkage — they feel the difference in the numbers is due to the difference in the tests. So I am supposed to have another ultrasound sometime this month.
I don’t have a lot of symptoms that a lot of you have. I do have heavy bleeding, and have had for the last 5-10 years. For the first 24 hours of my period I usually go through an OB Ultra every hour on the hour, just like you mentioned, Jessie. However, I’ve kind of gotten used to that and know how to cope with it. I am not anemic, my blood work last year showed that I’m smack dab in the middle of the normal range.
My big problem is that I also have an umbilical hernia. I think it was caused by another, smaller fibroid that was not part of the big mass. That smaller lump disappeared (I think because of the Neprinol and Brevail) before I got myself to a doctor (I am also extremely doctor phobic and every time I have to consult another doctor it is a several month project for me to be able to call them.).
The only thing the doctors are saying is hysterectomy, hysterectomy, hysterectomy. I just don’t get it. I’m already 47, so menopause is not that far away, and at that point they either shrink or else at least stay the same size. All the reasons they try to tell me I need a hysterectomy don’t apply to me — I’m not anemic, I don’t have any other symptoms other than a big belly (and I’m a big girl anyway — 6′ and 290 lb), etc.
At this point I am really frustrated. I am trying to hold on long enough for the things I am taking to show some shrinkage or at least that it’s staying the same, so that I can convince someone to do the hernia repair. But if I didn’t have this hernia, there is no way I would have a hysterectomy.
Bleh, this got long, sorry.
June 21, 2007 at 4:07 pm
Like others before me, it was wonderful reading about all of you, and your experiences. (Too bad it has to be so.) But thank you.
I’m 41, never married, have no children, but still would like to, soon? (Of course, there’s the whole issue of meeting the “right guy”, and so many “toads” out there.) So, who knows if it will happen. But, I still want my options. At 38, I learned what a 7cm fibroid was, went to 3 doctors, and was told do nothing, but continue on the BC pill. (Have been on the pill since early 20s.) Wait until you want to get pregnant, and see what happens. With no pain or symptoms, and feeling perfectly healthy, I was glad to do nothing.
Now, 2 1/2 years later, I’ve grown, noticing the bulge in my tummy. And it’s hard (calcified?). Next week, I’ll have an MRI to determine more. The ultrasound last week showed one big uterine mass. (The thought of having a shot makes me nauseous and sweaty; imagine what the thought of any type of surgery is doing!) I still feel perfectly healthy, but know there is this big hard astroid planet that doesn’t belong in me. And, can one possibly get pregnant with the astroid filling my space?? Better to have surgery?? (Please say no.)
I don’t know how many options there will be for me, including these natural and alternative methods you have shared. I guess I’ll need to wait until after the MRI. Wow, I didn’t know this was so common. All females should know about this at least by their 20s. On the positive side, I am very thankful to not be in any pain, discomfort, and/or heavy bleeding.
Are you all still there? Thanks in advance for any suggestions.
July 6, 2007 at 1:28 am
First I would like to say that I really enjoy reading everyones experiences, I stumbled upon this site today. This post is regarding the fibrovan. Im no scientist geek but I wanted to give my thoughts regarding fibrovan. For the most part at the present I stay away from doctors. I was diagnosed with 4 small fibroids in my uterus and two medium sized ones (whatever the sizing means I will try to find the ultrasounds with the measurements) one that was sitting on my bladder and another that was protruding from the uterus near my bellybutton? I was told by my doctor that they were not large enough to be giving me such major complaints, I guess they were calling me a hypochondriac (sigh) however, I always had discomfort in my lower stomach and problems with urination. The last time I went to the doctor was 5 years ago, and they said the only thing they could do was explorative surgery and before I left they gave me a shot of depo provera. Bad idea, I dont know if anyone has any experience with this but it gave me problems. I started taking milk thistle and vitamins and anything I could and started to feel more like living but still in search of a better natural treatment that would do no harm. Theres the history now to fibrovan…..I searched the internet and came across the Fibrovan site, I ordered two bottles and took it as prescribed 2 pills twice a day, my stomach bloated like you wouldnt believe, I had to take out my clothes to fit my bloated tummy but the pain was diminished after a week, completely gone after two weeks, I slept better; not trying to find a comfy position to sleep due to the sharp pains and dull ache of my lower stomach. I noticed I could sleep on my back and had the most vivid dreams ever. However it is hard for me to take pills everyday and started to miss dosages, and vanity….well I didnt like that my stomach was looking like I was in my second trimester. I slowly stopped taking it, the pain was still absent for quite a while and I was able to pee freely ( I didnt have to squeeze so hard to get every drop out…sorry if tmi) Recently I have the symptoms worse than before so I ordered more fibrovan this time 4 bottles (its pretty expensive imo) and have started taking them again as of July 1, 2007, now I dont have stomach pain and slept on my back last night. Again I have the bloated belly but the information on the site has information regarding this saying that it is fluid surrounding the unnecessary tumor and will disappear withing a week, that has not happened but I am going to give it the 3 months (initial dissolving phase) this time and hopefully I wont be forever stuck with the pregnant belly syndrome. Sorry I cant do the math, but me minus pain is equal to a happier me.
July 8, 2007 at 11:32 am
Hallo from Greece,(sorry for my English).I stopped hearing rumors about fibroids and i’m feeling a little better.Feeling good is so important!
I am on KGB supplement and after 3 months of taking these pills in adittion with Floradix iron supplement,and stinging nettle tincture during periods,my 8 days of menstrual bleeding now became 5!
I think that the main reason of bleeding to me was not the fibroids but iron inadequacy.
I hope this helps
August 22, 2007 at 5:30 am
from maureen’s post
My take on all of this is that diet/natural methods might help in stopping reccurance, but Western Medicine is really good for getting these things out. And you have to be somewhat careful with the “natural methods” as they could be too much estrogen (helping fibroids. . .e.g. Evening Primrose Oil) or……
Dear maureen do you have any info that evening primrose oil is helping fibroids to grow?
August 22, 2007 at 9:53 am
I found some more information about KGB here
http://findarticles.com/p/articles/mi_m0ISW/is_280/ai_n16850476/pg_3
Please if anyone has access to that article and likes to help me learn more details about that study in relation to the size of the fibroids (which is the most important thing) please send me an e-mail :
mailmaria-gr at yahoo dot gr
keep on hoping
August 29, 2007 at 6:28 am
hi, everyone. i am here b/c i’ve been searching info. and am lost as to what to do. any sugg’s? i don’t know if i have anything, but my period has been for weeks now and the doc. says i’m just irregular. i’ve had blood clots that i literally feel drop out of me when i use the restroom and it scares me!
August 29, 2007 at 11:37 am
Kate–I suggest you find a doctor who will do an ultrasound…that’s the only way to find out if you have fibroids. I have a friend who has fibroids which causes her to have very heavy peroids. Her doctor is just keeping an eye on them seeing that’s her only symptom. I had to have an AM because mine had grown so much they were pushing on my bladder and my stomach was bulging. They were also located in spots where it would make it impossible for me to carry a baby to full-term. If I only had the issue of a heavy period, I wouldn’t have had the surgery.
August 29, 2007 at 6:14 pm
Hi, I noticed your blog page started with this question.
Has anybody but ANYBODY managed to heal themselves of fibroids naturally?
The simple answer to this is YES!. A friend of mine had a large fibroid during pregnancy. By her second pregnancy she had completely got rid of her fibroid. She outlines her personal fibroid healing story here http://www.fibroidsinfo.com if you’re interested.
No surgery, No drugs. And hers is not the only case.
Hope this helps somebody…
wishing you health and happiness…
September 4, 2007 at 4:16 am
thanks, mariapril! my next step is visiting the doc., but i am nervous b/c i have never had anyone/thing probing down there! i thought ultrasounds were just for pregnant women??? i was hoping to find natural remedies b/c i am so young and scared to deal w/ this at such an early stage, but i fear that i had been flooding and that’s not normal, is it?!
September 4, 2007 at 4:17 am
p.s.
what’s an AM?
September 4, 2007 at 10:42 am
Abdominal Myomectomy—surgery
September 11, 2007 at 8:57 am
Dear Indigo,I thing that this is not a place to make money out of desperate suffering women. I am tired of people trying to persuade me buy this and that.Enough is enough.
If this person is a real friend of yours and if she really loves people and likes to help -like anybody else here does-tell her to make a post here,and tell us exactly what she did,to get rid of fibroids.
I will be surprised to see that!!!
September 14, 2007 at 9:26 am
Fibroids and tobacco, alcohol (beer) and caffeine consumption in black women.Take a good look at the references.There many other papers about what affects fibroids in white women too.
http://www.pubmedcentral.nih.gov/articlerender.fcgi?artid=1876785#R14
September 15, 2007 at 4:33 pm
I just looked at that study, the bottom line, FYI:
CONCLUSIONS
In US black women, risk of uterine leiomyomata was positively associated with current consumption of alcohol, particularly beer. Cigarette smoking and caffeine consumption were unrelated to risk overall.
Heck, I’m not black, and hardly ever drink beer… but this might be enough for me to just lay off it altogether! I don’t want to feed those beasties anything!
I can’t but think that if men had fibroids they’d have figured this out a long time ago! It still amazes me how high the prevalence of fibroids is. Does anyone know if the incidence has gone up over the years? I think I did look into the incidence around the world and if I recall correctly, it was pretty even throughout… the world… although now that I say that, I don’t recall if it was higher in Africa — which would make sense, since it is particularly higher in black women…
Just wishing they’d figure out what causes these damn things.
September 30, 2007 at 11:29 pm
Hello All,
I was reading around some of the posts here and I found interesting things that you guys talk about, I just made a blog about quitting smoking resources and ideas that you might want to check out.
If someone is interested in this topic just go to; http://endthehabitnow.blogspot.com and let me know what you think. Your honest feedback would be greatly appreciated.
Thanks in advance.
October 17, 2007 at 2:29 pm
I’ve been reading many of the posts here… there is so much info, but I haven’t found anything that fits to me very well.
I am 39 years old, and 12 weeks pregnant. I went to a “specialist” (maternal fetal medicine) Monday for an ultrasound, and was really shocked to be informed I had two fibroids. The Dr. said that they were probably pea-sized to start with, but, 1) they would probably continue to grow during my pregnancy, 2) she wasn’t too concerned (easy for HER to say) because they were probably benigh, and 3) they probably wouldn’t cause any problems with my pregnancy.
I’ve been reading and researching the last 36 hours, trying to get some information to at least put my mind at ease, and it’s not helped much. I found a site that had information on pregnancy and fibroids, and while there are risks of complications, the site says that after pregnancy, when my hormone levels return to normal, the fibroids will probably begin shrinking, or disappear on their own.
Because I’m pregnant, the only viable option I can think of for dealing with this situation is dietary change, but I’ve found no real useful information on foods which could be helpful and ones that could be harmful.
I do go to see my regular OB next week, and I’m going to have a talk with him about the whole situation. I’m not even sure where the fibroids are located, as the other Dr. wasn’t very specific about location. I intend to have the growth and location of the fibroids monitored closely, as this will be my first child with my husband (I’ve had two pregnancies and live births in a previous marriage), and being that I’ll be 40 before my due date, I really want to make sure that we are doing all that we can to make this a safe and healthy pregnancy for the baby and myself.
If anyone can point me towards some good information on dietary considerations, I would greatly appreciate it.
Currently I take multi-mineral/vitamin/nutrient daily, which exceeds the nutrients in the pre-natal my Dr. was going to prescribe, in addition to Slow Release Iron, Folic Acid and an Omega 3 Fatty Acid Complex.
October 18, 2007 at 8:22 pm
Hi Cath, I can understand why you are seeking natural treatment for your fibroids but I have to say that I doubt whether any dietary changes could have a significant effect during pregnancy as the hormonal changes pregnancy will be causing will be absolutely massive. I think it is also very individual-dependent as to whether dietary changes can work at all as our individual hormonal profiles are so different – some people make massive dietary changes with no effect whereas some may have success with minor changes.
Some supplements that can be taken to help with fibroids are thought to have a hormonal influence (eg indole-3) or are thought to act on the bloodvessels (eg rutin), and I’m sure those would not be recommended during pregnancy as you may have found. Similarly for chinese herbal concoctions.
One thing which may help (whether mainly physically or psychologically) could be acupuncture if deemed safe for pregnancy.
I think the most likely case is that ultimately there is not much you can do under your own control that will definitely help other than following a good diet & healthy lifestyle which promotes successful pregnancy anyway. Seeing a nutritionist could be helpful. Good luck with the pregnancy & check the pregnancy section of this forum if you haven’t already for stories from others.
October 20, 2007 at 10:04 am
Hey Cath, there was some research that recently posted on the left hand side of this blog that indicated that tomato powder reduced the size of some tumors around quail oviducts (I think that was it)…. so you never know, it might just help to have a lot of tomatoes!
October 27, 2007 at 1:46 pm
After 15 months of daily searching the internet I found this amazing
information and I want to share it with you using my poor English.I
post it here as I consider it as a non invasive treatment of
fibroids.I am very angry because technology around us is astonishing,
they even created green monkeys they even went to March ,they invented
a transplant that makes people in wheeling chairs ,walk,but they can’t
burn veins that feed these masses! Where is that treatment performed today?I
I am extremelly interested to get it.Please ,I beg,if anyone knows where I can get
this ILP ,low power laser treatment to inform me at
mailmaria-gr (at) yahoo.gr.
Take a look!!!
http://www.climacterium.com/bama/files/03.pdf(page 27)
AND http://findarticles.com/p/articles/mi_m0CYD/is_24_35/ai_68740985
(SECOND STUDY )
here is the abstract from climacterium.com
SUCCESSFUL TREATMENT OF UTERINE FIBROIDS WITH
INTERSTITIAL LASER PHOTOCOAGULATION
Rowan J Connell, National Medical Laser Centre & ,
University College London
Obstetrics and Gynaecology, University College London, UK
…Results: We have MRI follow-up of 17 treated fibroids, with diameters
ranging from 4.5 cm to 11.5 cm (volumes 41 mls to 668 mls), in 12
women with a mean age of 41 years (range 33-48 years). There were no
complications and recovery was comparable to that after laparoscopy.
Fibroid volume as a percentage of the untreated volume was a mean of
175% (81-276%) 1 week after ILP; 93% (range 40-144%) at 4 weeks;
41% (range 15-58%) at 20 weeks; 23% (range 18-32%) at 32 weeks; and
28% (range 20-36%) at 52 weeks, and 18% at 80 months. ILP is safe, it
successfully shrinks fibroids and the shrinkage appears to be
sustained.
Conclusion: ILP is a successful minimal access technique, which can be
used to safely treat uterine fibroids.
IS THERE ANYONE WHO KNOWS WHO (AND WHERE )PERFORMS THAT TREATMENT?
December 9, 2007 at 10:29 pm
marapril
It was with some sadness that I read your rather cynical and unkind response to my previous entry which was intended to help others.
The question was asked “Has anyone ACTUALLY cured their fibroids using natural techniques” and I was able to provide a link to someone who HAS done it – a real person.
And let me tell you – it took a great deal of courage for her to re-visit the anxiety and fear she experienced to being people her story.
For those who are interested her technique tackles fibroids at the EMOTIONAL level , treating the underlying causes of fibroids. She has identified a number of uniquely female issues that seem to be linked to fibroids and provides techniques that worked for her. And as an internationally renowned Louise Hay teacher and someone who has cured her own fibroids and is the author of “Cure Your Fibroids Naturally”, she is well placed to provide that advice.
Various drugs, herbs, supplements may have some beneficial effects but they do not get to the underlying cause of why the body starts to produce fibroids. I have noted that a few people on this forum have identified that their emotions may have had some part to play in their fibroids. If your body creates a fibroid, it can heal it also.
The theory is that when you undermine the emotional reason the fibroid grew in the first place – it simply dissolves away.
She provides her story, some basic health strategies as well as ultra-sound before and after images at her site http://www.fibroidsinfo.com . IF you want to buy her book, you can get that also.
December 11, 2007 at 1:46 am
Dear Marapril, your comments caught my attention. I am kinda lucky, i have all the varities of fibroids growing inside me, I supposedly have a 6mth pregnancy worth in there. But no pain, no bleeding. My gyno recently told me about going in thru the belly button and being able to treat all sorts and sizes of fibroids with that laser photocoagulation. There is a doctor in California doing them now. It is still in the initial stages, but the results are so positive, my doctor in NY (At Albert Einstein) will be starting to do them early next year. I am going to see her in 6 months to see if I am a candidate for this. She says she needs to see more case study results. I will keep you posted.
December 13, 2007 at 8:09 pm
http://www.google.com
http://www.yahoo.com
http://www.msn.com
January 28, 2008 at 9:09 pm
I really want to have an AM, but I have yet to find a doctor that I am comfortable with. I have been told that I have at least one large fibroid. I recently went to see an acupuncturist who told me that she thinks that she can help shrink the fibroid, but only with traditional chinese medicine. I was given “Nei Xiao Lei Li Pian” and “Shao Fu Zhu Yu Pian” with the brand name of Guang Ci Tang.
I was wondering if anyone else has taken these herbs. Thank you.
February 13, 2008 at 4:34 pm
I hate that you all are going through this, but it’s good to find a site with others like me. I have suffered with endometriosis for many, many years. I cannot have children. Breaks my heart to accept that fact. I’ve hade the lupron treatments, and had 2 huge fibroids removed years ago. They came back bigger and stronger. Now I am told that I need a hysterectomy due to the fact that I have had 2 blood transfusions from the heavy blood flow. My blood count was so low for so long that I now suffer with congestive heart failure as well. I’m only 40 and have been through way too much from something that is supposed to be a natural part of life for women. It’s horrible, and getting worst. The constant pain is unbearable. I work every day, but my job does not offer health insurance so there will not be any hysterectomy for me any time soon. Well thanks for taking the time to read my long story, but it feels good to not be alone anymore.
February 13, 2008 at 9:08 pm
Hi Tiahane,
I am so sad to hear about what you have been going through! I have found that supplementing iron really helps with the cramping. If you are losing that much blood, you really need to be taking high doses of iron. I found chelated iron in 27 mg tablets and I have been taking three a day. The suggestions on the anemia discussion loop also recommend black strap molasses. I have become quite an iron hound. If it has a high iron content, I eat it (kale, oatmeal etc.).
The other thing you can do is make sure that you drink lots of water. Part of the problem with bleeding so heavily is that one becomes dehydrated. (You may notice that you become really thirsty.) Things like gatorade also help because they assist in maintaining the balance of salts that your body requires.
I have also tried tincture of shepherd’s purse (also known by its Latin name bursa pastoris). I felt like it helped ease both the cramps and reduced the bleeding a bit.
It is also good to take a multivitamin – although I avoid them when I am actually bleeding because some of the vitamins seem to make me bleed more heavily – but taking them between periods helps my body recover from the ordeal!
Again, I am so sorry that you are suffering and I hope some of this helps.
February 17, 2008 at 2:45 pm
Yvonne,your post is probably the best present I ever had in my life!I didn’t expect that there was any hope to hear something for that.I was completelly desperate.I returned in this site today hopeless till I accidently saw your post.I am so excited at this moment.Please inform me as soon as you can or e-mail me:
mailmaria-gr (at) yahoo.gr
Thank God that blog exists!
February 18, 2008 at 12:58 pm
Aja,
Thank you so much for the response. I will take your advise. Can’t hurt to try. I’ve just taken my first iron pill, and plan to have some oatmeal for breakfast tomorrow. I will have to look into the shepards purse. Never heard of it. Will get details. Again, thank you so much. I appreciate it.
Tiahane
February 21, 2008 at 7:23 pm
Hi all I am 32 yrs old and have been diagnosed with fibroids. I have visited 2 ob/gyns and they have both advised a wait and see approach ..and myomectomy if my symptoms worsen or fibroids grow. I have several small ones at 2cm and then one tennis ball sized fibroid.
I started black strap molasses last week, just to see if I can relieve some of the pain and possibly shrink these suckers and avoid a full blown surgery. I got my period this week, but I am not sure I have been on BSM long enough to see any effect yet.
I will come back in 2 weeks or so to offer some comments about my experience with BSM.
March 24, 2008 at 6:27 pm
Hi everyone,
I’ve just been reading about “The Master Cleanser” by Stanley Burroughs, a 10 day fasting diet which sounds amazing. It’s been around for over 50 years and seems very simple to use. I was diagnosed with fibroids and will NOT have surgery. I really of the believe that cleansing out my body of toxins and then re starting with organic foods and supplements will be more beneficial than just taking stuff for it with a clogged system. I will be starting it this week and will let you know how it goes. If anyone would like a free copy of the book, just let me know. You can find a lot of information about it online and also forums on people’s experience on the cleanse
I should warn you that it has a lot of reference to God, but it doesn’t detract from the fact of what the cleanser is all about. cheers for now
March 25, 2008 at 1:27 pm
I am trying the holistic route to shrink my fibriods to the point where I’ll be a good candidate for UFE. So far so good. I Best wishes to all. I blog about my progress at http://fightfibroids.blogspot.com/
April 1, 2008 at 11:21 pm
Hey candy – I’ve been planning on doing the Master Cleanser again to see if it will help with my fibroids. But my boyfriend keeps buying food and I feel terrible just letting it go to waste, so I haven’t started yet! Today though, my body just told me it didn’t want ANY food and I’ve had a hard time eating large portions of anything for the last couple of weeks, so perhaps it is now time.
You can find the basic recipe to the Master Cleanser in various places online, and yes, to other readers: ignore the overly religious tone if you read the original book. This cleansing diet was given to me by word of mouth over 10 years ago, so it’s definitely not a fad! Let us know how you go with it!
April 14, 2008 at 4:17 pm
Anyone find any correlation to eating beef with fibroid growth? I’m pregnant and I had this bizarre urge to eat hamburgers and chili cheese dogs during my first trimester when I didn’t eat any of that for at least four years. I’m wondering if that system shock combined with the hormones made them balloon up. I didn’t have any fibrioids in my first pregnancy.
April 14, 2008 at 9:52 pm
Kat,
Hi, I was living with fibroids, and without beef, for about 7 years, before I had my surgery. I actually became so anemic I started eating beef as part of my iron uptake therapy pre and post op, that and other iron rich foods, and supplements that is.
Fortunately I am no longer anemic and can live beef-less again, but I have fibroids again too. Fibroids will grow faster during pregnancy but I myself don’t believe in the fibroid/ beef connection. During my seven years with fibroids I cleaned my diet up nicely and the fibroids still grew. I am pregnant now too, hope it goes well for us all!
April 18, 2008 at 3:39 pm
Hi everyone! I was recently diagnosed with fibroids on my uterus, one 6cm, one 3 cm, and lots of small ones. I had an abdominal myomectomy in 2002 and my dr. wants to do another one now. He knows that I want children and I’m young (27) so my fertility needs to be preserved, I’m just so scared to have another myomectomy. I would love some sort of natural way to just shrink the fibroids to a more managable size. Anyone have any luck with anything? I have to go for another ultrasound in 4 months so if I could start some sort of routine now, the results would be able to be measured when I go for the US.
May 21, 2008 at 5:21 pm
Hi!
Marapril, what is your progress with Keishi-bukuryo-gun? I have bought it several weeks ago but I am not sure if it is worth to try it at all.
Thank you in advance.
May 22, 2008 at 7:11 pm
Nomeda: I have been seeing an acupuncturist since January of this year to help me manage the pain/discomfort. She gave me three different sets of herbs to take. One of them was KBG. For some reason I have had a hard time taking the KBG. Initially it gave me terrible headaches and made me want to throw up. I had to work my way up to the recommended dose. I seriously suggest that you try to work with an acupuncturist or someone who specializes in Chinese Medicine. Some people are more sensitive to herbs than others. I am a bit sensitive.
The acupuncture has worked well to reduce my pain and discomfort. I do not think that my largest tumor has shrunk, but it is possible that my small tumors have. I hope to get an MRI this summer. My periods have also become regular, shorter, and much less painful. Overall, I would recommend acupuncture for managing the symptoms of fibroids.
Good luck Nomeda.
May 24, 2008 at 7:49 pm
I am 52 years old and have large fibroid(s). My doctor said my uterous is the size of an 18 week pregnancy. I have gained 8 lbs in 7 months. I started working out at the gym 4 mths ago for 1 hr 5 days/wk. Couldn’t figure out why I was gaining weight and stomach was growing. Doctor suggested a hysterectomy, but I told him I’d rather watch and wait since (hopefully) menopause will come by soon. (I keep my fingers crossed). I just hope mine shrink during that time. Can’t do up any of my jeans so I have to wear elastic waist. Gross. I’ll be damned if I have to by maternity pants next. My periods are heavy off and on. Some months aren’t as flood-like as others, but they are getting longer. I’m on birth control pill (have been since I was 18) and doctor said I won’t know if I’m going thru menopause while I’m on the pill. Problem is, I don’t want to get off it because at least I know when my period is going to start and I’m sure it controls some of the bleeding. I have a feeling it I go off it (which he is taking me off it this coming October) heavy duty flooding will begin. I’d love to try the MRI ultrasound procedure, but I don’t think it’s available in Canada yet. Looking 4 mths pregnant at 52 is not attractive. I’m glad I stumbled upon this forum.
May 27, 2008 at 12:55 pm
Here are my comments and my research for a non invasive method
fibroidstreatment.blogspot.com adding in front
http://
July 12, 2008 at 9:09 am
Hi Beautiful Ladies,
Thank god for the internet, it does reduce my stress levels to find that there are others out there dealing with this too, I’m not alone. Has anyone heard of Shola Oslo? She has a book and various treatments. As I’m in Australia, it’s difficult for me to get access to treatments that might actually work. I am wary of using my credit card online.
If anyone can recommend treatments/ practitioners that actually work on large fibroids, please let me know. I would be immensely grateful. With no insurance, irregular income, having trouble getting full time work and most of all wanting to avoid any surgery let-alone the recommended hysterectomy. I’ve decided to change my diet and study nutrition in the hope that this will help.
Diagnosed 3 years ago, I’ve been through the emotions of hormone imbalances, questioning how this affects my non-existant relationship?/ fertility, various treatments that would have worked had my fibroids been small, staining chairs, people telling me fibroids are small and don’t cause any real problems, medical practitioners from various beliefs telling me that hysterectomy was my only option, the humbling experience of finally giving in and wearing incontinance pads, researching to the point that none of it makes sense any more, realising that the herbs that I was putting my last $ into could well be oestrogenic, which was when I stopped and decided to stop and focus on losing weight and managing my stress levels. Whether this will help to reduce the size of the fibroids or not who knows, I look 4 months pregnant. Research says that fibroids generally affect women between 40 and menopause. I was diagnosed at 31. Far as I can tell, these things take a while to get to the condition that we notice them, so the organs must not be functioning well for a long time. My symptoms were obvious when I was a teenager, if only I’d understood what they meant. So frustrated to think that education could save all these problems 15 years earlier, not to mention the possibility of having a family. Not willing to go down the surgery road yet, but have conceded that the possibility of natural healing takes many years of commitment, never been my strong point, I’ve come the sad realisation that being a mum is something I might have to watch other women do.
However, this whole experience really has made me look at my lifestyle. Before I was diagnosed, if one was to rate lifestyles with 10 being healthy, I thought I would have been around 8 because I don’t drink, smoke or take drugs. It was only when I started to research natural therapies for fibroids that I started to deal with the concept that putting aside what I do right, what I do wrong still has a severe effect on my body. Back to lifestyle.
I eat far too much sugar, I have been having therapy for depression since I was a child (good but not enough), I have irregular sleeping patterns because I stay up all night (part of depression) and although I haven’t found anyone particularly attractive (I guess also due to depression) I occasionally put myself in stupid situations with sex and strangers. I guess it’s out of desperation to feel something that I think others feel. Thankfully, I’m working on my self esteem so I don’t do that anymore.
In my research I understood that excessive sugar isn’t good for fibroids but when I lose it, that’s what I turn to. I have just now learnt of the direct link between excessive sugar and agression levels. I thought that my anger management issues came from my childhood, but maybe I could handle it better if I didn’t have all of this sugar rushing around in my body. Isn’t the body amazing?
All my life, people have told me that I’d be a great mum. I resisted because I didn’t want to repeat my mum’s mistakes. Just when I decide that I’m conscious enough of those issues to be able to deal with them, I feel like the rug’s been pulled out from underneath me.
I’m raving here, sorry. I don’t have anyone who truly understands, it’s such a relief to find people who know where I’m coming from. When I stained the chair I was at a friends party. I nearly died, can’t imagine what they thought. Explanations just sound like excuses so I didn’t bother. I did tell my friend but she knew about the fibroids and was ok with it. Says she bough a stain remover and got it out. Haven’t see the chair, don’t know if I believe her but am grateful she was understanding. Hard to change incontinance pads at work. It takes time and I’m conscious of making sounds when I take my pants all the way off and back on. Anyone found solutions on this problem? I’m in a temp job, don’t want anyone to think that poor health could affect my ability to do my job, so haven’t told anyone at work. They just think I’m super health conscious. Would give anything for a full time job but can’t seem to get one. Really teaching me the lesson in managing my stress levels.
Anyway, to anyone who actually read this far, thank you. I haven’t found this site before, I guess I just needed an outlet that wouldn’t come back with suggestions from people who have no idea where I’m coming from, I know people try to be nice, but sometimes it just doesn’t help, you know? Thanks again, sorry I took so long. For anyone who forgot, my original question was – Has anyone heard of Shola Oslo? Juana
July 13, 2008 at 9:04 am
Hi everyone, thanx for all the infomation about fibroids. I am turning 35 in september and my hope for a child is slowly disappearing. I was dx about four years ago and was told I needed surgery. My fibroids has not bothered me until now. My period is becoming heavier every month. My gyno suggested I shrink the fibroids by taking lupron hormone. It comes as a one time shot that last three months but the side effect is monopause like symstoms. She wants me to take it to shrink the fibroids small enough so I will be able to have more room to carry a pregnancy full term. My fibroids size to date is at 3-4 months size. The medication is $1600.00 if not covered by insurance and $100.00 if covered. Fortunately I am covered and I received the medication in March but I have two minds about taking it. The side effect about bone lost is a concern to me. I am a nurse and I have found that foods high in fiber, lots of water and regular exercise helps me with my bowel movement and my weight. Last year I found a lump in my left breast but it turned out to be of a fibroid nature which disappeared after I got pregnant and had a miscarriage.
When I was younger I remembered my mother having heavy periods that would leave her weak and unable to work. About ten years ago she had a total hysterectomy. She had multiple fibroids that rendered her constipated for weeks with prolonged bleeding. Did anyone ever had the shot lupron and what was the effect.
Thanx for allowing me to vent. I feel alone with situation although my finance is helpful and hopeful that we would have a child together. I don’t really have anyone to discuss this with.
July 13, 2008 at 3:27 pm
Hello everyone — I too, just found this site today. I had a breakthrough last night, but I don’t know yet if it’s good or bad. This morning I started off looking up “fibroid pain.” My fibroids didn’t bother me painwise until last night. Except for a lower right abdominal thing that I think I need a velcro strap for support on when I’m walking, and this is where the pain was last night — excruciating pain that would not end, as if someone had JUST punched me in the gut.
I think I know the cause of the pain, though. My fribroids stick out like a 9-month pregnancy b/c I didn’t want to have a hysterectomy but then the rapid growth began six years after I was diagnosed. It has been six more years and I realize now that a hysterctomy MIGHT have been a good idea, but I think it’s too risky now. I don’t want to risk my life over it but it is interesting having everybody think I’m pregnant and how people treat a pregnant woman, and, those “knowing looks” I get passing people on the street.
But back to my story. I finally snapped out of my depression just enough to start trying to do something about this myself. My other health problem was keeping me stuck (mold exposure health issues) and I thought, I can try to work on both of these at the same time. Since I am doing it alone it is only with the cursed-blessing of a credit card that I am on my way.
For the fibroids I take nattokinase, serraptase, turmeric, and lastly, got some liquid reserveratrol. I went gung-ho on the reserveratol, taking about four shotglasses full the first day, then taking a break for 3 days ‘cuz I got sick due to other reasons, then going down to just one shotglass a day the last few days although I wanted to up that to two.
I believe that triggered the horrible pain I felt last night, and think I need to back off, a bit, but I do believe when the action is starting it is SUPPOSED to hurt.
I, too had the sugar addiction problem, and was so mad at myself that I was sabatoging my own progress by not addressing it. But when I came out of it on the being bedridden sick more than two days last week, my sugar cravings were gone; the thought of eating sugar repulses me and I am going to hang on to that as I try to perfect my diet to help my body do its work.
I am taking a few other things that are for mold and/or beneficial for both conditions, and started trying magnesium as that is supposed to help de-calcify fibroids. Yes, mine are hard as a rock, ‘calcification.’
I am glad to find this place. All hours of searching out fibroid information, I believe this is the first time I have seen this site. Thanks for being there. I am hopefully going to post more here as I learn how I’m doing. I hope I am on the road to recovery.
July 15, 2008 at 12:42 am
Hi,
I read your blog with interest. Please search for a surgeon willing to help you and work with you to avoid a hysterectomy. I had fibroids that made my utureus stretch t about a 7 or 8 month preganacy. I thank God for a surgeon (seek and you shall find) willing to do myomectomy, just getting rid of the 17 tumors and a massive polyp. I am praying that you get delivered from this. The stabbing pain may be a hernia, get this looked into. Its going to be ok, God has already made a way!
July 22, 2008 at 12:44 am
I truly appreciate all of the stories and efforts shared here. It has helped me to hear others describe the same crazy symptoms I have been experiencing. These things feel like they are getting quite huge. Sometimes I feel like I cannot breathe because they are taking up too much space in my abdominal area. Sometimes bending over is difficult because of the pressure caused by scrunching my belly. Unfortunately, I do not have medical coverage for treatment of my fibroids. I have not had adequate health covereage for gynecological issues since my divorce. I am certain any surgical procedures will be quite costly. Does anyone know of treatment options for people with no insurance?
July 22, 2008 at 7:37 pm
Hi Jade,
Deepest sympathies. I had focussed ultrasound and the cost was 11,500 which I charged. It wasn’t cheap, but it was cheaper than even one night in the hospital without insurance. The smaller they are, the more options you have in terms of treatment.
My own feeling is that it is hard to get them to shrink. You might be able to get them to stop growing, but to get them to shrink treatment is really necessary IMO.
To get them to stop growing: healthy lifestyle: banish stress, junk food, estrogens (which are everywhere and in everything), meat, and empty carbohydrates, while loading up on exercise, greens, berries, whole grains, and multi-vitamins.
You might also look into lupron shots. I’ve not had them, but there is a thread on this blog about lupron. I think they said that they ran about five hundred dollars a shot but they shut down your estrogen processing for a number of months and might give you some relief (and shrinkage) — albeit with some possibly annoying side effects.
Whatever you end up doing, please let us know how you’re doing!
July 23, 2008 at 3:16 am
Jade, you don’t mention where you area, but maybe you can look into some clinical trials… you can also try your local county hospital as they sometimes offer discounts. Also, if you do seek treatment, make sure you tell them you don’t have insurance because there seems to be a different fee schedule for those without. Best.
July 23, 2008 at 1:10 pm
Thank you for the insight and kindness. Sometimes I feel very alone in this. It generates stress, which I read we should minimize. I am in Arizona. I have a naturopath that is able to provide me with great resources for self pay services. He found me a pelvic ultrasound for about $225. But surgery is costly no matter what. I am currently exploring the clinical trials angle. Has anyone participated in those studies? This is a horrible feeling. Not only are they causing great discomfort, but it’s as if alien pods have taken over and I can’t get rid of them.
July 24, 2008 at 11:31 am
Jade: Try a large non-profit research/university hospital. Many of these institutions have programs for qualified people in desperate need of care. If you have the resources, make an appointment with a top doctor there and explain your situation. I think that you can find a sympathetic doctor. You can start the conversation by inquiring about payment plans (many hospitals offer this for larger bills). I do not know anything about clinical trials. I would try speaking with a doctor or a hospital first. Good luck and best wishes.
July 28, 2008 at 5:00 pm
Thank you again for the suggestion. The clinical research teams have not been good about responding to inquiries. So, at this point I am exploring other options. I will look at research/university hospitals. Otherwise, I may just wait for my insurance benefits to kick in. That could be a while and I will just need to figure out how to stay comfortable while waiting. Has anyone experienced success with any of the non-surgical treatments, like the Chinese medicine or Enzymatic supplements?
July 30, 2008 at 9:31 am
I am Mariapril and I am Searching for Yvonne…..(if the administrator could help I would be greteful
Old Yvonne’s post
“yvonne Says:
December 11, 2007 at 1:46 am
Dear Marapril, your comments caught my attention. I am kinda lucky, i have all the varities of fibroids growing inside me, I supposedly have a 6mth pregnancy worth in there. But no pain, no bleeding. My gyno recently told me about going in thru the belly button and being able to treat all sorts and sizes of fibroids with that laser photocoagulation. There is a doctor in California doing them now. It is still in the initial stages, but the results are so positive, my doctor in NY (At Albert Einstein) will be starting to do them early next year. I am going to see her in 6 months to see if I am a candidate for this. She says she needs to see more case study results. I will keep you posted.”
Yvonne please contact me ,[ mailmaria-gr (at) yahoo (dot) gr] or if there is any news ,post the informations here.
Regards
August 2, 2008 at 4:13 pm
Has anyone tried the uterine artery occlusion procedure?
August 19, 2008 at 4:22 am
Hello all
My wife is very anemic. She is now taking iron pills 3 times per day, caltrade, Vitamin C and more. She is also taking KBG( for 3 weeks) & drinking special chinese herbal medicine to gain her strenght from her anemia(We live in Shanghai). She have a fibrom which is about 10×8CM in her uterus. We are hoping to get pregnant and not go thru an operation. Doctors have told us its impossible to operate now due to her anemia. They pretty much told us that she would die if they operate on her now. Also the chance for getting pregnant will be very small due to the location of her fibrom both now with the fibrom and if she gets operated.
Now we have been in contact with a Chinese Hospital that has suggested that we should use cryo freezing of her fibrom. Has anyone ever heard about cryo freezing success rates for removing fibroms?
In 2 weeks its time for her period again and she is honestly scared to death of how heavy it will be. Last time it was so strong that she cramped up and passed out.. Bleeding extremly for 2 days and then little for the following 5 days.
The past 2 days she has had smaller blood cloths. We have had sex and we think that might be the reason why.
Anyways hope someone can comment on the cryo treament
Thanks from a concerned husband
August 19, 2008 at 2:11 pm
Januza,
I have not heard of the cryo treatment for fibroids. You might want to try posting the question on the other blog ‘fibroid pain during preganancy’ as I have noticed several bloggers indentified themselves as doctors. Good luck and take good care of your wife.
August 25, 2008 at 2:32 am
We went to see the doctor Friday and they have put her on MIFEPRISTONE to stop her from bleeding on her next period on Sept 2nd and then they will give her Lupron shot for 3 months to try and shrink the fibroid. After that they need to evaluate if she needs surgery.
August 25, 2008 at 9:41 am
Januzza, I hope the treatments help!
August 25, 2008 at 11:25 am
Januzza, same here, I hope she gets through her period without too much bleeding! Also, if you haven’t seen it yet, there is a whole other discussion on this website about Lupron, you may want to read what is said there.
September 5, 2008 at 7:23 pm
I have been deaing with fibroids for about 5 years. Ihave had several myomectomies my largest fibroids was 6cm which can’t be operated on as it is in the lining. Two years back I exchanged coffee for green tea, decreased sugar(which I love),exercised and ate plenty of veges,I was able to shrink the fibroid in half confirmed by ultrasound. Within the past 8 months I am back to my old ways just had an ultrasound and fibroids are back to 6cm. I do believe you can shrink them with lifestyle changes ,it worked for me. I also have a problem with very low hemoglobin ,I take iron 3 times daily. I have noticed tranexamic acid has cut my bleeding in half!!Highly recommend.
I am hopeful that lifestyle changes will work it’s magic again.I don’t have children and my boyfriend are trying for a wee one. I just hope it’s possible……..
September 21, 2008 at 11:10 am
Dear Luise
your post is extremely interesting.You’re the first true person that informs us (and is not selling anything) ,that shrinkage is possible .Please can you help me posting a daily example of the diet that helped you that much?What kind of veges did you eat?How many times during the day?Did you take any supplement at the time or had you previously Lupron or related shots?Thank you Luise .
September 25, 2008 at 11:06 am
I’ve dealt with numerous and some large fibroids for over 7 years now. I believe that birth control pills caused or increased them to point of being symptomatic. I had never taken birth control pills before but after divorce about 8 yrs ago I started taking them. several months later I felt a large lump in my abdomen. I freaked out and went immediately to gyn and thus began my journey in the land of fibroids… heavy bleeding, large clots passed, blood transfusion. … During this time my GP – in to natural methods recommended I read “What my Dr. may not tell my about xxx” books. And I read Dr. West’s book. I then began to research ways to avoid hysterectomy. I finally elected to have a myomectomy as other means were not shrinking them. Dr. removed many many fibroids. Within 2 months they were back – even a couple of large ones. Bleeding was just as if not more intense and now timing was unpredictable. That was over 5 or 6 years ago and still I suffer. After that surgery I have had to use all sick time and some vacation time and have never had time to use for hysterectomy. I still hate the idea of a hysterectomy and have periodic hopes of them shrinking now – am 50 years old. … but so far it’s hell on earth. I hate to admit it but if I had known… I would have had the big H. I recently looked into the ultrasound treatment but alas…. insurance doesn’t cover and I cannot afford $10-15 K. What a crying shame some of us have to suffer so much with this. More research, and insurance help is sooooooooo needed.
November 28, 2008 at 10:15 pm
She could teen ethnic cum feel herstomach fluttering nervously. Mistress scully spoke, slash patted my cute.
December 8, 2008 at 4:49 pm
I have had great success with acupuncture. I had no experience with alternative medicine, but it was suggested by both my general doctor and my gynecologist (Dr. Ascher-Walsh) when I voiced that I preferred a non-surgical option. After three months of treatment including weekly acupuncture and daily chinese herbs, my fibroids had shrunk significantly. My larger fibroid went from 8.25 cm to 5.7 cm in diameter. The smaller fibroid went from 4 cm to 3.1 cm in diameter. By volume, the decrease was close to 50% in three months! I addition to clearing up my fibroids, the acupuncture also helped my acne roscea and my digestive problems. Within a week, I didn’t feel the abdominal bloating that had been with me for years. This option is expensive. It cost about $2700 for three months, but I believe there is an underlying problem that causes the fibroids. In may cases surgery ends up being just a temporary solution. I’m continuing with another three months of acupuncture and chinese herbs to hopefully shrink them even more before my husband and I get pregnant. I highly recommend the book Healing Fibroids: A Doctor’s Guide to a Natural Cure by Allan Warshowsky and Elena Oumano as it has a lot of super advice. Good luck to everyone in finding a cure for their fibroids!
December 10, 2008 at 2:03 pm
That was funny – the part where someone wrote “Shepard’s Pie” instead of “Shepherd’s Purse”! Maybe she was hungry!
I’ve gotten a lot of great ideas from this site. I do NOT want hospital surgery of any kind. I think I’ll try to totally revamp my diet and lifestyle to be more healthy, instead of just taking one or two herbs. I’ll take the herbs, too, but as part of a whole package deal, with changes in my eating habits, drinking more water, fasting, exercise, etc.
No doctor told me I had tumors; I’m just assuming I do, due to the heavy bleeding and anemia. I crave ice, so I diagnosed myself with anemia; no doctor told me I had anemia either.
December 14, 2008 at 4:53 pm
Hi everyone,
Does anyone know about the effectiveness of natural treatment on different types of fibroids? Dr. Warshowsky states in his book that submucosal fibroids (of which I have one that is 2cm) are the most difficult to treat with natural methods. Has anyone successfully treated this type of fibroid with natural medicine?
Thanks,
Suzi
December 15, 2008 at 2:02 am
Hi Suzi,
Mine was submucosal and five cm. I was able to arrest its growth, but I was not able to keep from having disruptive symptoms and so I got focussed ultrasound for it. I agree with Dr. Warshowsky that it is extremely difficult to treat them with natural methods. I’m of two minds for you. One: get treated quickly before it gets larger and it is more symptomatic. And two: it is so much smaller than mine, maybe you have a fighting chance with natural treatments. Whatever you decide to do, keep us informed of how it all turns out. We are, essentially, eachother’s guinea pigs since this is all relatively new territory despite how common fibroids are.
Best of luck!!!!
December 17, 2008 at 3:23 pm
Hi Aja,
Thank you for the feedback. Given that I already follow an organic diet, I’m not sure adding herbs and reduction in stress would make a huge difference. I’m leaning toward having the procedure (although I am very scared), then using Dr. Warshowsky and others’ recommendations in order to prevent fibroids from reoccurring. Of course, give me an hour; I’ll probably change my mind again! =D
Thank you, again!
December 18, 2008 at 11:40 am
Hi Suzi,
If it’s any comfort, I was really scared too. I was scared of getting blood drawn, I was scared of general anesthesia, I was scared of all of the treatment options, and then, once I figured out that my uterine bleeding was actually tapping into my circulatory system, I was afraid of bleeding to death. Really, the whole experience of getting sick is just one scary loathsome option after another — so what’s a girl to do? : )
That said, the treatment has made such an improvement in my life, my health, and my overall outlook. I remain grateful — knock on wood, sign against the evil eye – that at present I do not have a more serious health issue than fibroids. And for all that I was frightened, nothing that I went through with treatment was even comparably unpleasant to what I was going through every single month.
Best of luck on making your decisions! And I hope you feel better soon!
December 26, 2008 at 12:55 pm
Thank you, Aja. You have been a great help! I think I have decided to have the procedure even though I am still scared. Hopefully, everything will go smoothly.
December 27, 2008 at 9:06 pm
Best of luck with your treatment and check back in with us all to let us know how it went. Our thoughts will be with you.
Here’s to a better, healthier new year for everyone on the site!
December 31, 2008 at 3:50 am
Later, and i chuckled, her slave. Stupid. I cant gay double anal penetration go down on.
January 17, 2009 at 1:55 am
Nice going to rouseclive and naked college coeds innocent, i knew it. I.
June 4, 2009 at 10:39 pm
I have recently started only eating organic fruits and vegetables and cut dairy out of my diet. I don’t have any symptom except that my belly is getting larger and larger. Has anyone tried the following 2 products to remove fibroids?
One is the Fibroid Clear http://www.fibroidclear.com/
The second is Fibroid Buster http://www.dherbs.com/store/fibroid-buster-cleanse-and-regimen-p-318.html
Has anyone used these? What were your results? Each one would you recommend?
July 2, 2009 at 4:44 am
im martha for short,27 years old.had been diagnosed
July 2, 2009 at 5:10 am
im Martha for short,27 years old.had been diagnosed uterine myoma and ovarian cyst last April 2009, its a small in size.but i am too much worried if my experienced that was an abdominal pain during my first day of menstration will come back,my doctor prescribed me vit e with selenium,folart and vit c. she advised me too that i will be injecting GnRh for three shots this will be done every i have menstratrion.what preventive measures of abdominal pain because i cant tolerate the pain i suffer before.i really scared if my uterine myoma and ovarian cyst will grow fast?can you give me the diet that need to follow (you may include the herbal )and what food should i avoid?i kept on searching the diet for my condition,good i found this website,i knew it really help me. i really appreciate your advised.thank you so much!more power
July 4, 2009 at 1:08 pm
Best licensed naturopathic doctors in San Diego?
Can anyone please recommend a naturopathic doctor in San Diego who is very knowledgeable about fibroids? My wife and I are seeking advice about her fibroid and possible alternative treatments.
By the way, does anyone know if Vitex can be taken with RM-10? Also, does anyone have any success with Estrosense?
Thank you!