Natural progression after viewing fibroid pictures. With all the shapes and sizes, you can see why getting an answer to the fibroid weight question can prove difficult.
Lots of thoughts about this in another post. The original fibroid weight question:
momma’s_girl: wondering how much a softball sized tumor would weigh… any ideas?
So, I set out to search for an answer. From a couple of my responses:
EclecticGeek: Heard fibroids can weigh several pounds but couldn’t find anything that related fibroid weight to approximate size. Started camping out at Google Scholar and PubMed typing in keywords to search (fibroid weight, weight of fibroids, fibroid weight calculation, etc.). I think part of the problem is the shape. Fibroids aren’t perfect spheres so you can’t use some standard formula. Also, I can’t find a consensus on the composition. I’m sure the percentage of whatever is in there varies also compounding the problem.
I was running out of ideas at this point. Fortunately, a contributor provided a spark to jump start my thought processes again. Yay! From the geeky fibroid weight comment:
fibroid free: Volume (V) = LxWxH ok then Mass=Vp (vol x density) ok but how do I get the density?? Then I searched some clinical abstracts and I did find a couple of abstracts listing average weight in surgery comparisons….this is fuzzy science from a Microbiologist/Biochemist so dont kill the messger… it was noted that an 9 cmx 3 cm ‘broid was listed on average as 350-400 grams. Ok so 1000grams = 2.205 lbs or 1 g = 0.002205 pounds (lbs) sooo….. 500g = 1.1 ilb; 350 g= 0.77 lbs and 400 g = 0.88 lbs
Ahhh. Yes, it’s becoming clearer. Hang with me for the last little bit. My “geek-like” response:
EclecticGeek: When I started reading what you said about volume, it clicked. Density is a problem but also shape. Women are getting different dimensions for the fibroids. Some get three (i.e. 7cm x 8cm x 9cm) and can use the formula you provided. More rectangular I guess(?). Some get only one (i.e 6cm) and would need the formula for a sphere (hence pi). For two dimensions (i.e. 9cm x 3cm), maybe use a cylinder calculation(?) that also requires pi.
Now, here is some review material, a few volume equations, and an online calculator. (Did I just sound like a teacher?)
Rectangular Prism
Rectangular Prism: V = l x w x h [i.e. 7cm x 5cm x 2cm = 70cm³]
Cylinder: V = ∏r²h [i.e. dimensions 9, 3: (3.14)(1.5cm)²(9cm) = 63.6cm³]
Sphere: V = 4(∏r³)/3 [i.e. dimension 9: 4(3.14)(4.5)³/3 = 381.5cm³]
Density: ρ = m/V (We will worry about density later after we get volumes and can find more mass info.)
Okay. Let’s get this “fibroid weight” party started. Post your thoughts, calculations, corrections, or other info. 
——————–
Related Posts:
What are uterine fibroid tumors?
Psst… Where can I find pictures of fibroid tumors?
Can I pass a uterine fibroid?
September 8, 2006 at 6:01 am
I was talking about this to a colleague at work the other day (what an exciting day at work that was!!) and a slightly older lady (being polite) remembered from her school days that a cubic centimetre weighs a gram.
I got excited at this point and using your volume formula (lxwlh) I worked out the whopping weight of my “thing” assuming the “thing I have is approx the same density as water.
My dimensions are 17×15x10 cm = 2550 cubic cm which is the equivalent of 2550g. Divided by 1000 (to get kg), so 2.55kg which to an English person like me is 5.61 pounds (multiply up by 2.2).
Wow…thats quite a lot! Don’t know how it works out in reality. I am going for my pre-op next week so I am going to ask if I can get a photo and get it weighed when it comes out!!
September 8, 2006 at 2:46 pm
How great (and slightly humorous) that you had this conversation with a colleague. I hope others out there are having similar talks. Hmm. Perhaps I’ll create a post about interesting fibroid conversations.
Yes, a cubic centimeter weighs a gram! Didn’t tie it all together until last night as I was reading through the review material I posted.
You hit the nail on the head of what I want to see. I want women to take their fibroid dimensions, pick the appropriate formula, and make the calculation. If they like, post their results right here. Once the fibroid is removed, I’m hoping women will be able to get a weight.
It would be interesting if you can get that info about your fibroid. We would learn something about density after calculating it from mass (weight) and volume. After more women post and/or if I can find some research papers about this, we would know if density is something that varies or is pretty stable. At least, there is a way to get a rough estimate of fibroid weight. We’ll just put density on the back burner for now.
Thanks for contributing to the “project”. I’m all excited over this.
September 12, 2006 at 7:41 am
OH this is great….ok had to pull out the oringial MRI results to see what the dimensions of the Fab-6 were (although Doc said some where much bigger (Aug) then what the MRI showed (from March). Let see now…
Budda belly/reason pants didnt close: 8cmX10cmx10cm =1.8 lbs
Bladder/back pressers:5×5x7 + 6×7x8 + 2×3x4 + 2×2x5 =1.2 lbs
2 week period maker -He’s was a mean one…. Mr Sub …oh sorry had that whole Grinch thing in my mind…3×3x3 =0.6 lb
Total approx =3.5 lbs using fuzzy math sure felt like 800 lbs
Have doc appointment this morning (Hum.. still having a burning pain on my left abdominal side and weird pressure feeling – going to have it checked better safe than sorry)…I’ll will see if doc has the gorey weights and measurments available…..
ok here are some trivia facts – ” I will take uterine fibroids for 200 Alex”
average uterus size (described as a pear) – 8 cm long x 5cm wide X 2.5 cm thick; In a woman who has had a child, about 9 x6 x4 cm.
Since 1 inch equals 2.5 cm, in a woman who hasn’t had children, the uterus is about 3 x 2 x 1 inch.
A fibroid that is 4 cm in diameter, therefore, is about half as big as the average uterus, so it increases the size of the uterus by 50 percent.
September 12, 2006 at 12:55 pm
Wow. No wonder my waist is 42 inches! I’m so very impressed with your calculations. I can’t wait until my first post-UFE appointment on September 20 to get my pre-UFE measurements. (For some reason I blanked out and had an out of the body experience when he showed me the MRI of my uterus and fibroids, and that they were pressed up against each hip socket, my spine, etc.) Can I impose on your calculation abilities when I finally actually listen to the measurements they’re throwing at me?
September 12, 2006 at 2:45 pm
its so funny and true abou the MRI’s…I got a CD of my MRI prior to bringing it to the doc so I got home from the imaging center…. poped in the CD ….la de da……adjusted focus (like I knew what I was doing but it was only common sense) AHHAHHHH!!!!! ….I scared my damn self…..ewwww the blobs….
I will calculate away……..yeah we can have a contest – like one of those shower games “who’s pocketbook weighs the most??” …Who’s fibroids weigh the most….ahh there goes my sick humor again…..
September 12, 2006 at 4:00 pm
Yippee — thanks Fibroid Free! I’ll be posting the results first thing on September 21st! P.S. I’m not too sure I want to be the winner of this contest, though. I’m already kicking myself in the butt for allowing these things to triple in size before I did something. I was diagnosed last October and thought, hey, how fast can these things grow? Yowza. The only thing I did was successfully limit my options to the UFE or a full hysterectomy.
September 12, 2006 at 4:42 pm
fibroid free:
Another “project” contributor. Yay! Hope all went well with your appointment. Let us know if you get actual weights. I would love to know if calculated is close to actual. Thanks for posting your results and being so helpful!
Aly Fibroids:
I know about the “butt kicking” because I also waited. The important thing is that you have done something to correct it and you are willing to share your experience. Can’t wait until you get your results.
September 12, 2006 at 7:31 pm
I have been diagnosed with fibroids just this last month. My doctor told me my uterus is 11 cm and I also have a 9 cm fibroid on top of it. Is there anyone out there who is treating theirs with herbs? I am taking some that my herbalist recommended and I was wondering if anyone else has had success with herbs.
I was talking to a friend of mine and what she was saying kind of scared me. I shouldn’t take her experience to heart because everyone is different and she is more the type to have surgery and I’m more of the natural cure type person. Basically she said, but I already knew that the uterus feeds the fibroids. She made me feel that the fibroids were being fed quicker than the herb would probably work.
My doctor told me about a procedure that radiologists do, but how it is described to me makes me leery.She told me that they inject something that will cut off either some or ?? the blood supply to the uterus. Therefore the fibroid would shrink because it isn’t getting fed. But what happens to the uterus?
September 12, 2006 at 11:46 pm
Just made a post about alternative therapies. All who have experiences are encouraged to post there.
Yes, every woman is different but try not to limit your options. Find out information on everything that is available to you.
I had embolization (UFE) as well as others who have posted on this site. The procedure is designed to block the small vessels that supply blood to the fibroids. Other vessels to your uterus remain clear. To see my posts on UFE, either type ufe or embolization in the search box near the top of the page or click the Uterine Fibroid Embolization category from the Index page. Here are two links that I hope will help:
Uterine Fibroid Embolization (MayoClinic.com)
Uterine Fibroid Embolization (RadiologyInfo.org)
Also, please see the post-Uterine Fibroid Embolization thread to read real-life experiences.
September 27, 2006 at 10:31 am
I also have a fibroid on the outside of my uterus and my uterus is very enlarge. I a having a hysterrectomy next Tuesday, my question is has anyone had one done and noticed a change in your stomach going down in size. Right now all of my clothes fit tighter in the waist area and feel very bloated.
September 27, 2006 at 2:34 pm
ABSOUTLY…I belly was so big (where I could not even zip or fasten my pants). Elastic came back in fashio for me…..LOL the belly went down right after surgery (my sister even said it to me in the hospital – I was so glad cuase I thought it was jsut me tryign to belive LOL) . My uterus was enlarged also and reach (including one of the broids) my bellybutton. So yes you will probably experice Pants-closing_again. But remember there may be swelling after such a major surgery and stiches so you may be swollen for a while. I still am (week 7 post AM) swollen some. So sorting out the “fat pants” now
October 6, 2006 at 6:29 pm
Hi there,
I am now officially allowed to use this site again as my laporotomy to remove the “ovarian cyst” turned into an abdominal myomectomy for a twisted mother of a fibroid (belly button ALL the way down…28 staples!)!! My 17×15x12 lump had grown since scan but one of the first things my consultant told me after the op (apart from what a complex thing it was – apparently wrapped all around ligaments and enveloping my ovary!) was the long awaited weight!!! Cue drum roll………893g! Gutted! I was expecting a massive 10 pound monster but no!! However, I came out of hospital yesterday 7 days after my op and whilst I was in hospital I got weighed and had lost a whopping 12 pounds! Now some people may put that down to the day and a half nil by mouth but I more than compensated for that with my mum’s care packages she brought in each day (chocolate buttons, biscuits, Pringles..all the good stuff). I think the weight he gave me was excluding fluids but who knows. At the end of the day I am nearly a stone lighter even if I am swollen to beach ball status!
I will be visiting some more over my next 6 weeks off work for more advice and experiences! Thank you again for providing this forum. Couldn’t have coped without it!!!
October 6, 2006 at 10:29 pm
BOOBOO and fibroid free:
I eventually want to start posting about weight gain/weight loss. I gained a tremendous amount of weight everywhere so not all was fibroid-related. Alas, fibroids did not explain why my behind was so big. Stomach is getting flatter but I still have a bit to go.
Ann-Marie:
Sounds like the surgery went well. Yay! We were off with the calculation. I also thought it would have been heavier than that. That’s OK. You’ve provided some valuable information. Fibroids aren’t exactly rectangular so there’s error there but I think we have to take another look at the density. We can roughly calculate that now.
density = mass/volume
= 893g/(17cm x 15cm x 12cm)
= 893g/3060 cubic cm
= 0.292g/cubic cm
Now, if we can just get a few more women to post weights we can see if density is stable or not. Our project is still a work in progress.
Glad the site helped! You know about the Abdominal Myomectomy discussion thread. Feel free to hang out there. Welcome back.
October 10, 2006 at 1:39 pm
I had my hysterectomy last Tuesday, it was able to be one laporscopically. I am feeling good, no more fibroids… My stomach has gotten flatter and no more feeling bloated all the time.
October 11, 2006 at 4:30 pm
BooBoo – great that you are fibroid free and on the road to recovery!!!
EclecticGeek – bring on the weight thread….hee hee of course when you get the time….
October 11, 2006 at 5:08 pm
Dang!!! asked the doc/nurse did they have the actual weight of the fibroids…weight looks, weigh looks…..”Yes I know its a strange question, but I just gotta know.”…they didnt have it in my chart…just the number – 6 big ass fibroids..sike it didnt say that…..the nurse said…pathology may have it……oh well…..guess I will never know the truth…..I will go with the calculations I initally did…DANG
October 12, 2006 at 11:19 am
I meant wierd looks…not weight LOL
October 20, 2006 at 11:46 am
Hey Fibroid Free: I finally remembered to bring in my pre-UFE uterine/fibroid measurements to work (I have to confess that I don’t have a computer at home, or a cell phone, or even a microwave oven. I do have electricity and plumbing, though.) Here goes:
Uterus: 12.7 x 8 x 11.4 cm
Uterine Volume: 625 cc
Fibroid #1: 8.6 x 8.6 x 8 cm
Fibroid #2: 7.1 x 8.2 x 8 cm
Fibroid #3: 5.4 x 4.1 x 5.4 cm
(They only bothered with the three largest fibroids. I have too many all over the place for them to bother with measurements on those; hence my only options being full ab hysterectomy or UFE. Oh, hey, I just noticed that these measurements seem to be sort of round, don’t they?). Hmm, maybe this explains my FREAKISHLY LARGE UTERUS. I kept asking them to put these measurements in to something I could understand, like knitting, i.e., a skein of yarn, a sheep…
October 20, 2006 at 12:39 pm
Does anyone have experience with Neprinol, Fibrovan, Brevail or Protease? Understand that these are homeopathic and not approved by the FDA. They proclaim to shrink the fibroid through enzymes that “eat” tumorous protein. Sites to visit are: http://www.arthurandrew.com; http://www.fibrovan.com. Nonetheless any annecdotal information? My wife has one large fibroid and we’re considering all options. Thanks for your site and input.
October 22, 2006 at 5:09 pm
BOOBOO:
Best wishes to you.
Sounds like you are doing great. Yay! No more fibroids. If you wish to talk about your experience, let me know and I’ll set up a “How are you feeling after your Laparoscopic Hysterectomy?” thread.
fibroid free:
Official medical terminology.
I thought they would have the fibroid weights in your chart. That’s OK. The fibroids are out and that’s the important thing.
Aly Fibroids:
Jumping in with calculations. I’ll get fibroid free to check them.
Fibroid #1: 8.6 x 8.6 x 8 cm
volume = 8.6 x 8.6 x 8 = 592 cubic cm
If we assume 1 cubic cm = 1g then,
592 cubic cm = 592g = .592kg = 1.30lb*
Fibroid #2: 7.1 x 8.2 x 8 cm
volume = 7.1 x 8.2 x 8 = 466 cubic cm
466 cubic cm = 466g = .466kg = 1.03lb*
Fibroid #3: 5.4 x 4.1 x 5.4 cm
volume = 5.4 x 4.1 x 5.4 = 120 cubic cm
120 cubic cm = 120g = .120kg = .264lb*
*Not sure about the accuracy. We are assuming a density of 1 but a few comments up, I calculated a possible density of .292g/cubic cm. Since our sample size is still pretty small, we can use these calculations until we get some more actual weights.
Thanks for adding data to the “project” and being UFE Supergirl!
Thom Schmidt:
I’ve posted your question in the alternative treatment thread. A couple of other visitors have asked about these enzymes. Hopefully, someone who has tried them will post. I don’t have a personal experience but you will find some infomation there on evaluating alternative therapies. Thank you for visiting and taking the time to look for answers for your wife. If you have additional questions or thoughts, please post.
October 22, 2006 at 8:02 pm
The 29 August 2006 I found that I have a 9 cm fibroid in my 11 cm uterus. I don’t want surgery so I am on Fibrovan right now. I start the 20 September. For the moment everything Is OK. At the end of January I will go for a ultrasound to see if it is strink. I really pray that it will be little. I am in God hands.
October 24, 2006 at 1:11 pm
Yup calculations checked – MORE big ass fibroids removed from happy women LOL
October 24, 2006 at 7:53 pm
I had what the surgeon called a ‘beast’ of a fibroid removed by laparotomy 8 weeks ago. It was 20cm and weighed 1.5kg. Apparently, the anaesthetist almost fainted when they saw it. But I still didn’t make the surgeon’s top three! Feel fantastic now and have enjoyed the whole recovery process as its given me some ‘me time’. The only thing is that the operation freed up a LOT of space so I’ve been feeling like my tummy is hanging around my knees- mostly just for the first few weeks though. Its tightening up a bit now and I’m noticeably slimmer- easy pilates exercises recommended by my physiotherapist seem to be helping get back the core strength- but the abdominal muscles are still not ready for a yoga class (I can’t do a sit up let alone keep up with a sun salute). Overall, surgery was way less painful and scary than i expected, and even with a fibroid of that size, I healed faster than expected- the experience was more of an aching discomfort and inconvenience than excruciating pain- the human body is amazing!
October 26, 2006 at 12:54 pm
BOOBOO, I am having a total laproscopic hysterectomy on Monday (October 30th) — please start your thread, I can’t find much information about the surgery online, mostly abdominal or vaginal assisted ones. How do you feel now? Did you stay overnight?
Thank you!
Seeking Solice
October 28, 2006 at 12:48 pm
francesca:
If you wish to talk about your experience with Fibrovan, please visit the alternative therapy thread. Since things seem okay now, take a moment to look at all of your options. Please keep us updated. I wish you the best.
fibroid free:
LOL
NC:
Dang. That’s over 3 lbs. I hope you have a sense of humor because when I saw your description, I thought of some kind of 1950s horror movie – “The Beast from Within” (insert dramatic organ music here). Pretty scary that you still weren’t in the top three.
I had to do this calculation:
volume = 4(3.14)(10)(10)(10)/3 = 4187 cubic cm
Since you were given a weight, we can find density:
density = mass/volume
= 1500g/4187 cubic cm
= 0.358g/cubic cm
Okay. Even with our sample size of two, I think we can safely assume that fibroids probably do not have a density of 1. Thanks for adding to the project.
Happy to hear you’ve bounced back so well! Yay! You are right. The human body is amazing.
Bonnie:
I posted the thread about laparoscopic hysterectomy. Don’t know how long it will take to get responses but you are always welcome to leave comments if something is on your mind. If you see this before Monday, I’m sending positive thoughts and well wishes your way.
November 2, 2006 at 5:44 pm
I am 24 years old and just diagnosed with fibriod tumor. It is my understanding that fribriods in women under 30 is pretty rare. I cannot find any info on women my age with fibriods – can anyone help?
November 2, 2006 at 7:17 pm
Hi lolo,
I’ll also move your other comment here:
Fibroids grow over time. I would think that large, symptomatic fibroids would not be common in women in their early 20s but there are so many different risk factors these days including environmental things that I’m no longer surprised by early onset. I’ve found a paper that talks about risk factors including start of menstruation, # of children, diet, environmental factors:
Etiology and Pathogenesis of Uterine Leiomyomas: A Review
(fancy way of saying fibroid risk factors)
Fibroid tumors are benign (not cancerous) so don’t assume early onset means otherwise. Here are some posts with general information:
What are uterine fibroid tumors?
Are uterine fibroid tumors a sign of cancer?
Also, you mentioned surgery. There are several “threads” in the Forum that talk about different procedures. What surgery are you considering?
If you have any additional questions or concerns, keep posting them.
November 2, 2006 at 8:03 pm
I just had one the size of a basketball removed (Monday) It weighed over four pounds. I weighed my son’s basketball. It came in at 1.5 punds.
JC
November 2, 2006 at 11:16 pm
I’ve been contemplating surgery since Oct. 2006. Didn’t wnat to lost my uterus. I too waited too long and only limited my options to partial hysterectomy. I was told I had 8 golf ball size fibroids…18 weeks is the size of my uterus. I was searching for the size and weight of the average fibroid. This site has been helpful. I just have one question..did anyones fibroids kick like a growing fetus? That is driving me insane. I’m a mother of two and have been pregnant before not problems. But it is so frustrating to have a fibroid kick…it’s really like an invasion of my body,…an unwanted mass…irritating me…now I have to wait until 2007 to have surgery…seems this is peak season for operations……
November 3, 2006 at 1:59 pm
Hi Lolo
Further to eclectics geek comments. Its not that fibroids are rare in women in their 20’s – Fibroids can start to grow soon after puberty, although usually they are DETECTED when a woman reaches adulthood. Fibroids can occur in a large percentage (all kinds of ranges are given) of woman of “child bearing” age but they are MORE common in women over 30. Women in their 20’s have them – they just are not as large and therefore not sympotmatic so most women dont even know they have them.
I personally foudn out I had a small submocossal fibroid in my twenty’s (didnt know until my doc told me he saw it in an ultra sound before I had surgery to remove endometriosis) but it did not bother me at all and nothign was done and it didnt bother me until ohhhh 12 years later ….then it reached havic on me with its other fibriod friends-Whew I am 3 month Post Abdominal Myomectomy and the fibroids are gone
. Glad you have identified this early!!
Here are a couple of links to articles that talk a little about Risk factors and age. There isnt a lot out there specific to younger women with fibroids…we are all lumped together LOL
http://www.reutershealth.com/wellconnected/doc73.html
http://www.umm.edu/patiented/articles/who_gets_fibroids_000073_4.htm
Additional Risk Factors :
Some of the risk factors include ethnic background (African American women are more proned to getting fibroids early and more symptomatic) Uterine fibroids are particularly common in African American women, with an estimated prevalence of 50% to 75%. They are more likely to have severe pain, anemia, and larger and more numerous fibroids than women in other population groups.
obestiy -Women are at risk for accelerated fibroid growth when estrogen levels are high or when lifestyle behaviors keep estrogen levels high. Fat produces more estogen
(My doctor told ME point blank – lose some weight and I am not obese! ) The estogren produced from the fat will continue to fuel fibroids. Nothing like surgery to scare my butt thin LOL
Some examples of risk factors for fibroids that are also associated with high estrogen exposure include the following:
Early onset of menstrual period (before age 12).
Being overweight and sedentary.
Never being pregnant. The risk for fibroids decreases with more children. (This risk factor, however, may be due to a greater risk for infertility caused by fibroids in the first place.)
One thing my doc noted (I asked because I was worried the fibroids would grow back) He told me its not that they grow back, you can grow new ones, but at my age (soon to be 40 and fabulous) they growth rate slows….. whew. He did say younger women and women with many fibroids have a greater risk of recurrence than older women
oral contraceptives – the estorgen again
Hope that sheds a little more light…
If you are looking to have children in the future please come join us on the [Abdominal myomectomy (surgery to removed fibroids and perserve fertiltiy) thread]
There are a lot of other choices out there if that is not your choice (and covered on this fabulous website) so please ask if you have questions
[Edited by EclecticGeek to add AM thread link.]
November 3, 2006 at 11:24 pm
correction: I’ve been putting it off since October 2005.
November 4, 2006 at 12:38 am
My ob/gyn refered me for an ultrasound last month as part of my yearly exam. She said my uterus felt “big”. Met with the doc 3 days before my 43rd birthday to discuss the US and found out that I’m “loaded” with ‘broids. My uterus is 21cm and estimated 22 wk size, in other words a “big honkin’ uterus.”
The funny thing is, I didn’t think I had any out of the ordinary symptoms. No period issues, it comes on time, does’t last for more than 5 or 6 days and the flow is actually pretty light. I’ve always carried all my extra weight through my middle so my big belly didn’t really cause any concerns although looking 5 months preg it probably should have!!! I pee quite a bit more than I used to and I’m always tired but just chalked it up to being over 40.
Of course, since I’m carrying around this BHU, the recommendation is a hysterectomy, but since I don’t have any significant symptoms, I’m not ready to accept that as the only answer. I have a CT scan scheduled for Nov 7. I’m a military dependent so I go to military docs (don’t get me started on that issue!)
So glad I found this site. I’ll be coming back as I learn more to share my experience and gain some insight from everyone here.
November 4, 2006 at 7:22 am
BHU,
I was completely symptomless with fibroids too, apart from looking a bit fat around my stomach. I was lucky in the fact that if I hadn’t been on a diet and lost 5 stone I probably never would have noticed and my problems would have been a lot worse! I had an abdominal myomectomy via laporotomy (up and down cut) five weeks ago and I cannot believe how much better I feel now…no getting up in the middle of the night for the loo and there is actually spare material in my jeans where my fat stomach used to go (still some swelling to reduce though). I only had one fibroid (a beast though it was 17×15x12cm) and my surgeon found it quite complicated as it pressed against my bowel and bladder as well as wrapping itself around my stomach ligaments. He managed to remove it but had to disconnect one of the fallopian tubes. I gave him the option to do whatever he felt best at the time he was in there doing the surgery and so maybe that is an option you could take. If he can try his best and remove them whilst keeping the rest intact then great but there is always the chance that they will grow back (only menapause or a hysterectomy stops that!).
If you need some more info on the CT scan have a look at the [MRI thread] as it might help (I had both before my surgery….CT was much easier!)
Good luck!
[Edited by EclecticGeek to add link.]
November 4, 2006 at 7:08 pm
JC:
Wow! There are post-op threads in the Forum. Feel free to comment on your recovery if you feel up to it. I’m happy you are finally rid of that huge fibroid. Best wishes with your recovery.
MEE2006:
Glad the site helps. The only “sensations” I would get were severe cramps and contractions as my uterus attempted to expel huge clots. There are a couple of posts in the Forum about hysterectomy:
Does anyone have a hysterectomy experience to share?
How are you feeling after your Laparoscopic Hysterectomy?
Keep posting if you have more thoughts or questions.
fibroid free:
Thanks for the links! I put one in a post about fibroid causes/risk factors. Finally decided to do a little mini-review of the article I keep sticking in my responses. I put the other in one of the hysterectomy threads.
Great to know (since I am 40 and fabulous
) that I probably will NOT have to EVER deal with this fibroid “thang” again. Yay!
BHU:
Thanks for your visit! We now have two names for a huge “U”. Aly Fibroids brought us FREAKISHLY LARGE UTERUS and now we have BIG HONKIN’ UTERUS.
Feel free to share as much as you like. I look forward to your contributions.
Ann-Marie:
Had to laugh when you said spare material in your jeans. Cool! Glad you are feeling better.
November 12, 2006 at 3:32 am
to MEE2006:
I have never been pregnant but my fibroids would “leap” when I saw babies and “kick” and press on my kidneys. I had a abdominal myomectomy in 2003 and over 2 pounds of fibroids were removed. Unfortunately, more have grown back, so I plan to do uterine artey embolization in a few weeks. Wish me luck because I still want to have kids.
November 13, 2006 at 12:56 pm
to blessed:
Thanks so much for responding…I feel normal now! I sincerely wish you well with the uterine artery embolization. I’m done having babies but really upset about the idea of having a hysterectomy because I don’t feel like I’m done with wanting to be woman. Sorry I just associate having my uterus with being a women. I was thinking of going with the myomectomy prior to…but I was fearful they would grow back. I’ve had two C-sections and this will be the 3rd time I’ve been “cut”. I didn’t want to take the changes of having another surgery.
I just left the doctors office and they don’t think my fibroids weigh that much…I’m like WHY CAN I FEEL something moving and kicking just like a growing fetus? Today, I told them I felt like I was having contractions in my lower back. They act as if I’m crazy….or it’s unheard of….and give me the lose weight look. I’ve tried numberous times to lose weight. I’ve hired a personal trainer, I’ve been a vegetarian for 16 months, I’ve walked 5 miles everyday, I did Billy Blanks daily, been on an internal cleasning program and everytime I gained weight. All the people assisting me with my weight loss adventures have had differing of opinions. One said I didn’t eat enough (personal trainer) and the others said I eat too much. Then they said I eat too much of the wrong things….it has been an emotional roll coaster…on all the programs and countless amounts of money…the most I’ve lost and kept off is 10lbs. I can gain 10 lbs over night. I gained 20 lbs in 45 day period. I had my tonsils removed (trying to lose weight along with a medical issue…of course losing weight was the only reason), I lost 17 lbs in two weeks…45 days later I had gained 20 lbs…during, might I add, the time I was going to the personal trainer. I’m really hoping these fibroids have been holding some lbs. so I can stop feeling like a loser…and once they are removed I start to drop sizes. My surgery is scheduled for December 26, 2006…I’m going to try to lose weight before then…to give myself a running start. I will have to report the size of the fibroids removed.
Enough about me…I really hope your procedure is a success and you have all the kids you want. Wishing you the best.
November 13, 2006 at 2:02 pm
I had some weight gain issues before my AM and my personal opinion is that the hormones mess with your metabolism so no matter how much you eat (a little or a lot) you still put on weight.
I lost 13 pounds in the week following my surgery (even though it only weighed 875g!) and now I am back in the situation where my weight is stable and I only gain/lose dependant on what I eat!
It was weird as when I had my period before surgery I actually lost weight…it was like there was less blood supply dedicated to the fibroid…and then it went straight back on after.
I wonder if there has been any research on this?
November 13, 2006 at 6:32 pm
blessed:
Best wishes with your upcoming UAE. If you have any questions or concerns about the procedure, you can leave a comment here:
How are you feeling after your Uterine Fibroid Embolization?
MEE2006:
I also have been dealing with weight issues. I plan on adding at least a couple of posts to talk about it. I gained over 50 lbs. Since my fibroids weren’t nearly as large as some of the ones listed here, I know my weight gain was through overeating. I am an emotional eater. So once my fibroid symptoms were horrible, I ate to cheer myself up. I’ve lost 35 lbs since March. I’m working on converting fat to muscle so I would love to lose another 20 but I won’t get stuck on the number. I started eating better, exercising, and losing weight before my procedures. I think this helped with my recoveries. It’s a good idea to try and do that but don’t kill yourself in the process. Everything in moderation. For me, making small dietary changes and moderately working out has made all the difference. Keep us updated.
Ann-Marie:
I think you are right about hormones affecting metabolism. Been hanging out at Google Scholar looking for papers. I found some experiments using rats. I’ll keep searching for human studies. There must be something out there somewhere.
November 13, 2006 at 9:25 pm
Ann-Marie:
I’m in the same boat with you before your AM. My weight is less when my cycle was on. I just noticed that this last time….I was 5 lbs lighter when my cycle was on…since then I’m right back up and feeling incredibly FULL. I’m glad you mentioned that.
EclecticGeek:
My confessional….I’m an emotional eater too (just noticed by keeping a food diary for about 2 months. My food diary was so depressing…I stopped keeping track. When I feel bad I eat…when I’m stressed I eat. I don’t eat until I get full though…I just eat (what I call) small portions. Although I asked my husband if he thought I ate alot and he didn’t comment. So I may have some issues with what’s “a little bit” of food. I’ve never been one to eat an apple a day only or a peanut a day as a meal….NOT ME….but I got away with two normal meals a day. Not anymore it seems.
November 13, 2006 at 9:47 pm
EclecticGeek:
And a big CONGRATULATIONS on your weight loss…That is Excellent! It’s encouraging to me as I gear up for life after fibroids!
November 14, 2006 at 7:33 pm
MEE2006:
THANKS for that!
In additional to being an emotional eater, I LOVE food. Smell, taste, texture, EVERYTHING. I come from a loooong line of eaters so I could never buy into the “food as fuel” mentality. Food is a blessing and meant to be enjoyed. I am thankful for it all – from the tofu to the french fries and everything in between. I promise to write more and give details but my top 5 tips:
1. Eat breakfast.
2. Drink plenty of fluids.
3. Get plenty of rest.
4. Take at least 20 minutes to eat a meal.
5. Enjoy your food.
Portion control is important. I take care of that with my Japanese soup bowl. It looks a little strange when my husband eats off a plate and I pull out the bowl but results are results. This also falls under the “enjoy your food” category because I really look forward to eating out of that bowl.
Don’t obsess over calories. I monitor but I don’t count. Think about boosting your metabolism and suppressing your appetite. Getting enough sleep, eating breakfast, and staying hydrated are ways that help with this.
Ann-Marie:
Figured out what you were really saying from MEE2006’s response. Sorry for the “Doh” moment. I found a paper:
Correlations between mood, weight, and electrolytes during the menstrual cycle: a renin-angiotensin-aldosterone hypothesis of premenstrual tension
From the paper:
This talks about the menstrual cycle and weight gain in general. Not sure if anyone has tied this to fibroids or not.
November 15, 2006 at 4:01 am
Psychosymatic medicine!!! What a weird topic for a website…you find all the best ones!! I am going to try and avoid reading it too much though as my husband thinks that when I read about an illness I usually get the symptoms!!! Guess I have just been unlucky the past few (well 10) years. Here’s to a healthy next 10!!!
November 15, 2006 at 5:08 pm
How ’bout I didn’t even notice the name of the site! I did notice the year it was published but not the name. That’s pretty funny.
I went to Google Scholar to do a search and that paper came up. It was published in 1973 and verified that PMS was a real condition. It’s in the journal Psychosomatic Medicine put out by the American Psychosomatic Society because in the 70s (as you probably know) any problems a women experienced were “all in her head”.
Okay. Let’s compromise. Just read the abstract. I won’t tell.
Thanks Ann-Marie. I’m still laughing over this one. To a healthy next 10!
November 21, 2006 at 9:21 pm
Last week I had one of my fibroids to degenerate. It was extremely painful. I’ve waited too long to have my surgery…and it was dangerous. How did it feel…just like back labor. I told the doc that I was giving birth to something. I feel better though….I don’t have the kicking sensations any longer, the muscule tremors or the headaches as I had before. I have more room in my pelvic area. You know the old saying, “you don’t know how much pain you were in until you feel better.” I feel great…compared too prior to the degeneration.
What I believe happened was I was taking too much pain killer, advil etc. When I take advil my blood flow slows down or stop. It seemed for the last two months my stomach was getting bigger and bigger from the blood not flowing out. I was taking like 1600mg of ibuprofen a day. That caused my fibroid to grow so big the body couldn’t sustain it with enough blood and it popped or degenerated. I never want to be in that much pain ever again. I popped two hemorriods and a gush out of my vagina just like my water broke was the beginning then contractions in my back every 3 minutes…REALLY. I didn’t think to go to the emergency room…I wish I had of because then they would have done an emergency hysterectomy. But we live in learn. I’m just glad it wasn’t as worse as it could have been. When I did go to the doctor my blood pressure was 90/60…and I had a slight temperature….but I had been in pain for a week so the worst was over. I truly feel blessed. Now that I feel better….I never want to feel like that again.
I have learned don’t play with my health.
November 22, 2006 at 1:59 pm
MEE2006,
I’ve heard a degenerating fibroid can be incredibly painful. I’m so sorry you had to experience that firsthand. I’ll include a link for those reading. It talks a little about the pain and fever caused by a degenerating fibroid and shows a picture of one.
We do live and learn. That’s all any of us can do. Continue to live and continue to learn. I’m really happy that you are feeling much better now. I wish you more continued health!
December 1, 2006 at 12:26 am
I am told I have a small fibroid but I feel so bloated and heavy and just keep on gaining weight. Nurse says it is what and how I am eating. I say no. I am skinny everywhere but belly. It (bloated belly ) came on when huge clots and heavy periods came. My periods are so heavy last one just was so embarassing. I was at work and when I stood up it ran down my legs all over the floor. I had tampon and heavy pad on!
They want to do an ablation? Spelling not sure. Any one had one?
December 1, 2006 at 2:08 pm
I am at week 5 of my recovery period for a myomectomy. Yipeee!!!!!!!!!! As I read some of the women’s comments and responses about their fibroids I am feeling more like a freak! Not really but…my doctor removed a more than 7lb. fibroid from my abdomen through a normal c-section incision. My doctor is the BEST!!! I had 6 total. Two of them were the size of large peas. The largest one (the 7+ pounder) had sprouted off of my uterus on a stalk and grew above my belly button. Prior to surgery I heard horror stories of the pain…not true. Don’t get me wrong it was painful but bearable. Still swollen but I can see my feet again and I am the happiest woman alive!
December 1, 2006 at 4:34 pm
MEE2006 ~ I think I have waited too long for surgery too. The Dr. told me that my biggest tumor is starting to degenerate. I have pain in my side like sharp piercing pain. I’m not sure if it’s the pain from the degeneration or my poor ovaries being crushed by the tumors. Do you remember how the degeneration felt before the pain got bad? I have surgery in 18 days but I don’t want to end up giving birth before then :0
December 2, 2006 at 2:21 pm
Sina-sorry to hear you are going through that. It is painful. Prior to my degeneration my fibroids were extremely activity. I had several nerve tremors in my legs, side and back which hind sight is telling me it was growing. All of sudden, I had this pain in my back that stopped me in my tracks and I lied the top part of my body across the bed while still standing to take the pressure off. I told my husband it was like a really hard hug. It was squeezing me so hard I couldn’t breathe. The pain only got worse until the fibroid degenerated. I had a really bad headache at the one set and from there it was like labor.
The count down is on. I have surgery in 24 days. I’ll check you periodlcally.
EclecticGeek-I’m still trying to determine how much my remaining 7 fibroids could weigh. Here’s a thought I came up with…tell me what you think. The doctor said I had 8 fibriods (7 now with the degenration of one)…so 7 fibroids and my uterus is the size of an 18 weeks fetus. I can feel my fibroids move. So I checked the pregnancy chart and it said that when a mother can feel a fetus/baby move at 18 weeks or sooner the fetus is about 7 ounces in weight. So I took the # of fibroids (7) multilpy by 7 ounces (size of a fetus when you can feel it move) and divided the answer (49 ounces) by 16 ounces (which equals a pound) and I estimate I have about 3 lbs. of fibriods. Of course the ounces will vary per person based on weight. The heavier you are the more the fibroids would have to weigh before you can feel them but this will give an estimate. I can say that after the denegeration the scale didn’t change for me. But my stomach appears and feels to have more room not as bloated. I think my frame looks better in clothes not as bulky. I will be able to tell a big difference when the remaining 7 are removed.
December 6, 2006 at 5:45 pm
jenna:
I can relate to the huge clots and heavy periods. I’m sorry to hear you are dealing with that. I have a post here that talks about ablation:
How are you feeling after your Endometrial Ablation?
You can post your questions or thoughts there. I’ve noticed on this site that once one person starts to talk about a topic, others chime in.
Quick question: Since your periods are heavy, have you been checked for anemia? I ask because I suffered from this and didn’t know. For some reason, I didn’t associate my severe blood loss with feeling faint and weak. (I think it was the lack of blood to the brain.
)
Shawna:
Yay! Glad that your recovery is going so well. 7+ pounder? (insert whistle)
sina:
I’m also sorry to hear about your pain. Glad your surgery is this month so you’ll be rid of your fibroids soon.
MEE2006:
I like your hypothesis! Estimated weight of 7 fibroids = 3lbs
Now, all we need are the results after your surgery and then we can write the conclusion.
December 8, 2006 at 5:44 pm
Reasearch R&D Engineeer deleoping a treatment system for fibroids. Only the posting by Fibroid Free makes sense. If the weight is 350 grams, the density is 5.5 gms/cu. cm. If the weight is 400grams, the density is 6.29 gms/cu. cm. Calculating the density of those noted by Ann Marie and NC make no sense as they are less than 1.0 gm/cu. cm. which is the density of water.
Practically speaking, I have seen morcellatated fibroid tissue in a saline canister and the pieces settle to the bottom ofthe canister – ie, density > water.
December 8, 2006 at 8:26 pm
Ron Adams, I live in Atlanta georgia. My fibroid weighed 20lbs. When the surgeon removed it. It looked like a big Ham so smooth looking. My gyn took pictures of the fibroid. I am not sure what it was in cu. cm. Thanks
December 9, 2006 at 7:49 am
Ron – thanks for shedding some light on the density issue….looks like we need to recalculate…oh and my math teachers would be so proud to hear you say that LOL thanks!
Interesting – can you share your treatment system ? or at least a hint…always curoius to see what is out there NEW or even “redone” tratments
December 12, 2006 at 9:22 am
See “http://www.endo.smith-nephew.com/US/node.asp?NodeId=3736” for system we developed.
December 18, 2006 at 5:20 pm
Sina-response to your Dec. 1, 2006 posting..I was checking in on you..your surgery is anyday now…like tomorrow? I wish you the best and please let me know how you are feeling.
December 19, 2006 at 8:03 pm
Ron:
I finally got a chance to go through all the comments here. Although all of the calculations are correct, I clearly see your point. The density would have to be greater than one or the fibroids would float like Ivory soap. Thanks for your visit and pointing that out.
The fibroid weights that everyone is receiving after the surgery are much lighter than they should be. Not quite sure what to make of that. Hopefully, we’ll get more numbers to crunch that result in larger densities.
Dianna:
All this talk of ham around the holidays!
fibroid free:
It took me a few minutes to figure out what Ron meant by this:
I finally looked back up in the original post and found where I quoted you:
Do you remember where you found that info? Maybe your source will have more numbers we can crunch (insert mad scientist laugh here). LOL
MEE2006:
Thanks for your support. You can check this thread. Sina posts there regularly. Here’s a link to her last comment:
How are you feeling after your Abdominal Myomectomy?
December 20, 2006 at 1:24 pm
LOL!!!! all the records have been distroyed (mad scientist cackel..thunder in the background pan to beaker filled with brightly colored liquid over bunsen burner bubbling over ) LOL ..yeah dont they always show bright color “liquids” in the lab?? LOL
I dont remember which abstract it was. I was searching on the net and came across that- will try to find it again..
I added [asking your doctor in your post op check up] “how much did the fibroid(s) weight” LOL …Maybe we will get some more statistics (mad scientist laugh)
[Edited by EclecticGeek to add link.]
December 20, 2006 at 7:06 pm
Oh, now that’s funny! I actually used to enjoy calibrating the pH meter because it gave me the chance to “play” with pretty solutions. Just about everything else I worked with was colorless. LOL
Don’t stress over the abstract. We have time. I’ll dig around after the first of the year and see if I can find something. Yes, it’s on my infamous “things I need to do” list.
Thanks for contributing to the “post-op question” thread. To reward you, here’s the link to my first post on weight gain:
This scale can’t possibly be correct
Perhaps I should have entitled it – The actual weight of my dang fibroids (+ the rest of my body). I think I’m going to edit the post and add that. LOL
December 30, 2006 at 2:16 am
WEIGHT INFO
OK i got my pathology report back. I think that the fibriod must weigh more in you with fluids than out of you – that is my story and I am stcking to it!! In me, it was 9.5 x nearly 8. Out of me and in little pieces, the pile was 18 x 16 x cm weighing 243 grams which is only half a pound!!!
Whatta letdown! I hope more of this weight comes off through my “recovery diet” of motrin, thai soup and oatmeal!!
happy new year!
-dg
December 30, 2006 at 2:53 pm
I JUST FOUND OUT I HAVE A 11CM FIBROID. THE GYNO CANNOT DO A VAGINAL HYSTERECTOMY BECAUSE OF THE SIZE. WOULD A MYOMECTOMY WORK FOR SUCH A SIZE TUMOR? WOULD ANYONE KNOW IF THIS WOULD BE EASIER ON MY SYSTEM. I AM 51 AND AM HAVING NO SYMPTOMS EXCEPT PRESSURE AND FULLNESS.
I AM REALLY SCARED OF A HYSTORECTOMY BUT IF I NEED IT I OF COURSE WILL GO THAT ROUTE.
ANY HELP SORRY ABOUT MY SPELLING.
REBA
December 31, 2006 at 3:31 pm
Best wishes and Happy New Year to all!
divageek:
Hmmm.Your fibroid appears to be somewhere between a cylinder and a sphere but I’ll use the cylinder calculation:
dimensions = 9.5 x 8
V = (3.14)(4cm)(4cm)(9.5cm) = 477.3 cubic cm
density = mass/volume
= 243g/477.3 cubic cm
= 0.509g/cubic cm
I don’t know why these fibroids are turning out to be so light. They should be more dense for their size and heavier. I’m really getting curious about this. Will have to investigate further.
Well, at least your fibroid is out. Yay! The weight will come off. Give it time. Oatmeal does help. It’s one of my weight loss secrets.
Reba:
There are a number of posts in the Forum about the different procedures. The easiest way to find them is to go here:
Just what are your uterine fibroid tumor treatment options?
The post above gives general information about the different treatments. There are hysterectomy and myomectomy sections (as well as others) in that post. You will also find links in that post (for example: How are you feeling after your Abdominal Myomectomy?) where women are discussing their recovery experiences. I have separate ones for the other procedures.
I know the thought of major surgery can be scary. Please visit the treatment post and then any of the individual recovery posts that interest you. You can ask women who had their procedures (Abdominal or Laparoscopic, Myomectomy or Hysterectomy) about the size of the fibroid(s) removed.
If you have any other questions or need help getting around on the site, let us know.
January 1, 2007 at 7:33 pm
Bad news ladies…just because you have a uterus removed does NOT mean no fibroids (apparently!).
16x 13cm mass found on CT scan, said to be uterine fibroid and referred to an OB-Gyn. Here’s the catch: uterus prolapsed and was removed 36 years ago…went through menopause 11 years ago. Just turned 60.
Anyone have any ideas how THIS happened? (Not the 60, I EARNED that!)
Mon
January 2, 2007 at 5:05 pm
Hi Mon,
Uterine fibroids are composed of uterine muscle tissue so I’m scratching my head over this one. Ideas plucked fresh from my mind (Remember, I’m not a doctor)…
- mass detected now is not composed of uterine tissue or
- uterine tissue remained after your surgery 36 years ago
Have you been on any Hormone Replacement Therapy by chance? There is evidence of an increased risk of fibroids with HRT use so if tissue did remain, this is a possibility. You can see this post for other possible fibroid risk factors:
What are the risk factors or causes of uterine fibroid tumors?
I am most interested in your outcome. Please keep us updated. Best wishes.
January 2, 2007 at 6:22 pm
Thought I’d put my fibroid weight here, though I find it unbelievable. Path reports said it was 6cm (it was 6cm diameter, but longer and oval shaped. Doc said it was the size of his fist). They said it weighed 71 grams.
That’s it!? 71 grams? As I recall, a gram is the weight of one paperclip! That big evil giant weighed less than a box of paperclips?
For the amount of trouble it caused me, I wanted it to weigh at least 12 pounds.
January 4, 2007 at 1:31 pm
EclecticGeek,
Nope, never had HRT! Had cancer several years ago, so HRT has not been an option. I think leftover uterine tissue may be the best bet…I’ll know for sure eventually and will let you know!
Mon
January 4, 2007 at 1:34 pm
Wow! I don’t feel bad now about reporting the size of my uterus. It was removed on 12/26. It weighed 330cc’s or close to 1/2 a pound. I too thought mine would weigh more due to all the pain and disomfort it caused me. No pounds lost as of yet and I’m eager for the weight to start coming off. I too felt like it was such a let down but as of now I’m feeling much better.
January 5, 2007 at 3:49 pm
Katy:
Okay. More calculations. Let’s try sphere:
dimension = 6cm
V = 4(3.14)(3cm)(3cm)(3cm)/3 = 113 cubic cm
density = mass/volume
= 71g/113 cubic cm
= 0.628g/cubic cm
Once again, I do not understand why these things are so light. It would make sense for them to be much heavier. No matter what its weight, I’m glad it’s out of you!
Mon:
The “leftover uterine tissue” hypothesis still would make sense even without HRT since it had plenty of time to grow. So, I agree. Let’s call it our best bet.
Sorry you’re going through so much. Good luck with everything. Yes, please let me know what happens.
Oh and by the way, you’re still a spring chicken.
MEE2006:
Cool, another calculation:
density = mass/volume
= 227.3g/330 cubic cm
= 0.689g/cubic cm
…and another opportunity for me to wonder why things don’t weigh more.
Your weight will come off. I finally posted my first entry that talks about the weight I gained during my fibroid journey. I’ll post more and talk about losing weight but feel free to visit here for a laugh:
This scale can’t possibly be correct…
January 10, 2007 at 10:16 pm
You may already know about this since your original blog. You can post your fibroid photos at Photobucket and provide links, or you can use PictureTrail. Any remote image hosting site would work.
January 11, 2007 at 1:08 pm
Mon – A common prodcedure is a supracervical hysterectomy where the cervix is left behind. Although rare, it is possible to have fibroids in the cervix. A second possibility is the presence of an ovarian cyst but I assume the doctor would have made that clear. I will ask one of the surgeons I work with if he has a better explanaton as I am curious about this.
I would bet that the reason that the fibroid densities are off is that the size is being estimated based on an ultrasound image of the fibroid and uterus. The estimates from an ultrasound can be quite inaccurate based on my limited experience observing procdeures.
January 17, 2007 at 10:46 pm
Jen:
I purchased hosting (as well as a domain name) some time ago and have all the images on this site stored through the paid hosting. I made a decision not to post graphic images on my blog because there are many sites out there with graphic images. Perhaps at a later date, I’ll have an area where woman can add their personal fibroid pictures. I do have a picture from my Hysteroscopic Myomectomy that’s just fascinating.
Here’s a post with links for anyone interested in finding fibroid images on the Internet:
Psst… Where can I find pictures of fibroid tumors?
Thanks for your suggestion!
Ron:
Thanks again for your insight. Let us know if you find out anything on Mon’s question.
Your hypothesis about fibroid density inaccuracy makes sense. I didn’t have my fibroids removed intact. I had a couple removed by resection and the others treated by UFE. I assumed when fibroids were removed intact, the dimensions were manually measured when they were weighed. I’ll bet in that abstract that fibroid free found, the fibroids were manually measured. This is interesting. Now, we’ll need to know how the dimensions are being measured. Good call. I’m really looking forward to gathering more data here.
January 26, 2007 at 8:59 am
Hi, I have a 16 cm fibroid. Smaller now. It is being shrunk by herbs and acupuncture. This method has years of proof in Chinese medicine. Hope you will find this helpful. Willow
February 5, 2007 at 9:31 pm
I put the size of my mum-in-laws in another part of the forum, but hey, should raise a few eyebrows here.
last estimated size 4 yrs ago in last scan..
doc approx weight guess:- 8-9 stones which = 112-126lbs or if you’re modern and use kg’s 51-57kgs
so i hand it over to you brain boxes to calculate the size, i see it every day.
February 18, 2007 at 4:24 pm
Willow:
I have a couple posts on alternative therapy. Feel free to add comments there as well:
Is there a natural alternative therapy or treatment for uterine fibroids?
Did you see Oprah trying acupuncture?
gobbymunchkin:
I think of you and your mum-in-law every day. Please keep in contact.
March 6, 2007 at 9:22 am
I just had an AM on 3/1 and my largest fibroid was 12cm. I think it was roughly a sphere. My surgeon told me it weighed 1/4 of a lb! So much for losing weight from the removal! I certainly will have more space inside of me though… Just thought I’d add my data to the list here.
March 6, 2007 at 1:23 pm
I also just received a copy of the surgical pathology report on the fibroid removed from me via AM back on 01/24. I quote:
“Received is a 421 gm firm mass 11.5 x 8.5 cm in greatest dimensions. ”
Aka an almost 1 pound mass 4.5 inches x 3.3 inches in dimension.
As a side note: I requested a copy of my medical file from my dr. It includes MRI results, visit reports, everything. It makes for FANTASTIC reading. Personally, reviewing these documents has made me more active in my recovery. I would encourage everyone to request such a copy.
March 13, 2007 at 12:18 am
I’m 44. I had a laproscopic hysterectomy 2 weeks ago. My fibroid was 21 cm. The surgeon would not do the laproscopic until after I did the Lupron shots. I was hesitant because of the side effects of the Lupron, but I did it for 6 mionths. I did get the hot flashes, but was okay. I already have insomnia, so don’t know if that really made a difference. The Lupron shrank the fibroid to 10.5 cm. The surgery went well, I’m still recovering, it was tough the first couple of days, but now I’m thinking to the future and wondering why I waiting so long.
March 19, 2007 at 6:12 pm
Hi Everyone,
I have learned so much by reading your stories. I am 40 years old, have two children and was put on a medical leave 1.5 years ago for extreme fatigue and dizziness. After being misdiagnosed many times it was found that I was/am anemic. I also didn’t make the connection between my symptoms and anemia. My symptoms included: fatigue, bumps under my finger and toe nails, restless leg syndrome, hair loss, weakness and most of all heavy periods (a large pad every 40-60 minutes with many large clots). The doctor would keep putting me on iron supplements, the anemia would get better, I would menstrate and of course the anemia would be back. Finally I was given a pelvic ultrasound and it has been determined I have 3 fibroids each approximately 3X3X3 cm.each. I recently saw a specialist re: embolization but have ruled it out as I have been told by 3 doctors that it is extremely painful and not always effective. I am now waiting to have a partial hysterectomy (uterus and fibroids removed). I have felt bloating and weight gain like some others have talked about here and I too was told by Dr.s and nurses it was either my age or my eating habits. Call me crazy but the weight around my middle and bloating seemed to have come around the same time the tumours started giving me problems. I thought I was going crazy until I read an informative article in a magazine called “More”….the article outlined a few women who had fibroids and also felt slimmer, better after their removal. I also am curious to know the weight of these terrible things (3X3X3 cm) and I have 3 of them and an enlarged uterus??? Any thoughts ???
March 19, 2007 at 6:19 pm
I forgot to mention 2 other “crazy making” symptoms caused by these fibroid tumours:
Horrible back pressure (just like back labour when I was pregnant) and an overactive bladder (up all night) /bladder incontinence. The worst part of this whole thing is probably the fatigue. I don’t know if the fatigue is totally caused by the anemia or if it is also caused by the fibroid tumours. Has anyone had alot of fatigue but no anemia? I never wanted to have any of my female parts removed but since I am done with having children I have gone from thinking it over (re: partial hyst) to counting the minutes!
March 21, 2007 at 1:49 pm
My biggest cantaloupe sized fibroid weighed about a pound/ approx. 500 grams. According to Dr. Ascher-Walsh, who removed my fibroids laparoscopically with the aid of a robot, the uterus only weighs about 60 grams. I will have to ask him whether fibroids differ in density or whether they are pretty much the same….he is the head of the Fibroid Center of New York at Mt. Sinai so he will probably have the answer.
[Edited by EclecticGeek.]
March 26, 2007 at 12:03 am
I just had a my uterus removed about 3 weeks and I’m already feeling better. I’m 37 years old and I had 10 lb fibroid about the size of a football.
April 6, 2007 at 9:12 pm
I had a fibroid removed in March that weighed a little over 10 pounds and was about 34 inches long. I don’t know the measurements in cm or the density or volume. The only ’symptom’ I had was a large belly. My periods were normal, no pain. My doctor is awesome and he removed it without removing my uterus! I had 37 staples to close my incision. My doctor gave me a picture of him holding it after he removed it. Its been 3 weeks and I feel great.
April 10, 2007 at 12:59 pm
Nice to find this site. I just found out yesterday that what I had presumed was a prolapsed uterus is, in fact, a prolapsed fibroid. I had been diagnosed with three “good sized” ones in 2002 but my doc opted to wait til I was through menopause, working on the assumption that they would shrink. Well. I guess they did, and this one in particular is trying to escape. Anyone else ever heard of this?
April 10, 2007 at 7:50 pm
Any advice on UFE I have one scheduled for thursday and just found this site and am learning so much
April 15, 2007 at 8:03 pm
i am so glad i found this website!! for the last 6 weeks i have been having a heavy perior, kicking like a baby inside and now some back pain, as well as a weight gain recently, i have had the pain in my side for a while but it just got worse during this last period(the period from hell) lots of heavy bleeding and it has never ever lasted over a week..i do have a doctor’s appointment, but they could not see me for 4 more weeks!!! and that was 2 weeks ago..i am going to call them tommarrow and see if i can get in sooner…wish me luck!!!
April 17, 2007 at 10:24 am
Hi Kathy,
Sorry to hear about how you are feeling but so glad you found this web site…I know reading others stories has made me feel alot better about my fibroids and upcoming surgery. I am curious whether or not you suffer from anemia caused perhaps by the heavy bleeding? I also highly recommend getting a pelvic ultrasound if thats where the pain is stemming from. I was misdiagnosed for just under 2 years with the same symptoms as you are desribing until my doctor decided to do the ultrasound and presto there was the tumours!
Please keep in touch as to the outcome of your doctors appointment.
I wish you well.
Ann
April 17, 2007 at 10:26 am
Dear Moe Moe Frost,
What is the UFE prodedure?
Can you share your experience with this procedure?
Keep well,
Ann
April 20, 2007 at 11:24 am
Hello,
I just found out that I had a fibroid (about 3 inches in diameter) and my ob/gyn said that i should just leave it there and monitor it. I then went to a reproductive endocrinologist just to get a 2nd opinion and he wants to operate and remove it in a few months. I’m so stressed and confused about what to do now. I’ve been searching sites like crazy the past few days and I just came across this one and everyone seems to be so helpful and nice.
I’m 31 and have yet to start having children, but I’m also not looking to have any just yet either. If I leave it alone will it just get worse? If I get it out will it just come back? All I know is that I’d like to have children eventually and also that I don’t want to have to keep repeating surgery. Do I go and get a 3rd opinion?
And yes, my belly is bulging too and I had to go up in clothing size too. I have a small frame so it’s very noticable. i feel like I’m a few months pregnant. Then the doc said my uterus was that of a 16 week pregnant person. I’m not happy about that, but I am so happy and relieved to know that it happens to other people too!
Any help and advice would be GREATLY appreciated!!
April 20, 2007 at 1:48 pm
Ali-
Get a third opinion from a doctor who specializes in fibroids if at all possible. If you are in NY , see Dr. Charles Ascher-Walsh at the Mt Sinai Center for Fibroids. I would give you the phone number, but the Geek edits it out. Google him.
You must educate yourself about all your options, particularly those that preserve fertility, including the robotic myomectomy. My fibroids were way bigger, and I had the robotic myomectomy in March. As you can see fibroids differ widely in size and density. Dr. A-W says the densities can vary significantly, hence the variations in the weight of the fibroids.
Good luck!
April 20, 2007 at 3:26 pm
I am sooooo happy to have found this site! I swear it’s almost as if some of you were reading my thoughts. It’s a relief to find that other people have had the same woes. Even today the doctor is still telling me my large stomach must because of my diet and body shape- slimmer arms and legs; big torso. I’m 28 and have been impatiently waiting til I can have a hysterectomy since I was 14 (my problems started when I was 12!- I have endometriosis).
Anyway, re this board, I had an abdominal myomectomy in 2004 and my fibroids were tiny compared to the ones described here- of the two largest, one was 3.5cmx2.5cm and the other 4×3.5cm but I was weighed just before and two days after the surgery and even though my stomach was even larger and bloated, I actually weighed 19lbs less! I was not told the weight of the actual fibroids.
Unfortunately for me, I just went for an ultrasound this morning and the fibroids are back with one 9×6cm- it probably weighs only a few ounces according to these calculations, so I wonder why I had lost 19 pounds in two days?
April 23, 2007 at 9:15 am
Thank you so much Janet! I will definitely look into finding him. I really do appreciate it.
This is a great site—very helpful to all those needing answers and reassurance that they’re not alone!
May 11, 2007 at 8:09 pm
Well, according to my calculations, my uterus weighs about 4 lbs right now, plus a fibroid weighing about .2 lbs growing out of the top of it. I got my ultrasound reports today (written–does anyone have their ultrasound pics?).
I feel HUGE. My belly is all bloated and distended. I can’t wait to have these things taken out one way or another! I’m active right now, going to the gym about 5 nights a week and running & biking, but my anemia and bloating are making it a little harder to exercise lately. My biggest fear is that once I lose the fibroids, there will be some wonky change to my metabolism and all the hard work I’ve done to lose weight and maintain it for the past 7 years will be undone! I don’t think I could handle that.
May 13, 2007 at 11:29 am
No to worry Galley West!
I had the bloated belly pre-surgery because of my fibroids. One was the sixe ofa canteloupe…but I am 2 mos post robotic myomectomy and I am back at the gym and feeling great! There have been no changes to my metabolism….
May 13, 2007 at 10:40 pm
valleywest—-I have 2-3 fibroids about 3-4cm, also multiple 1.5-2cm ones; an ovarian cyst and 11 wk uterus. I did recieve the written report of my CT scan, sonohysterogram and ultrasounds. I also have a neat CD with the visusal images. It was kind of depressing for me to watch the CD the first time, it look like my whole uterus was covered in fibroids. My doc made me feel good because he has seen worst.
May 18, 2007 at 11:21 pm
I was diagnosed with 3-4 fibroids 4 years ago. I had gained weight then–tried dieting and exercising–didn’t realize until NOW that fibroids were the cause. My husband couldn’t stand my weight gain…….we’ve been divorced almost 4 years….my stomach is 40″ now. I found a new doctor–he found the 3 fibroids and a polyp. I had a biopsy yesterday and in one week will know if I should have the laser (name?) surgery or a hysterectomy. I just checked a size chart. I could wear a 10-12 bust and hips and my waist size is a 20. What would you fibroid knowing women guess? Thanks.
May 18, 2007 at 11:23 pm
Sorry, my question at the end, I meant to ask you how many weeks/months pregnant do you guess I am considering I am a 10-12 and a size 20 waist?
May 18, 2007 at 11:28 pm
one last addition–I am also a geek–a Database Administrator for Victoria Secret Data Warehouse! yes, I get a 40% discount at Victoria Secret (like I could wear anything from there now–bras I guess–but I feel like a fat pig so I don’t go in there). 40% at Bath and Body works. pretty cool.
May 19, 2007 at 1:34 am
Do you mean size 20 in pants? I’m not sure what your question is. Do you want us to guess how many weeks of pregnancy you would have in terms of the fibroid size? I think your doc should be able to give you an estimate.
I wouldn’t know wha they weigh, but just know they are measured in centimeters. I have a 4 cm fibroid in my uterus, and although that may seem small, the uterus when it’s not pregnant is very small, only about 6-7 cm in width, or less some women. So my fibroid is considered large, for my uterus. I was told it has made my uterus grow the size of a 10 week pregnancy.
May 19, 2007 at 9:30 am
A size 20 (pants, dresses) according to a size chart. My doctor didn’t tell me size of the fibroids or how big my abdomen was because of. I will ask him when I go back next week. I just thought if I told you my sizes, based on someone else’s experience, they might be able to guess.
May 22, 2007 at 2:33 pm
ok so my stomach is sticking out a ridiculous amount now. (i feel like it always gets really worse the week before my dreaded period comes.) i didn’t mind so much with sweaters, fleeces, sweatshirts, etc during the winter months, but now as summer is quickly approaching and the clothing is getting less and less i’m starting to feel so self concsious. i don’t even want to think about bathing suits! i’m not a vain person and i thought i could handle it, but if i don’t “suck it in” i really feel like i look like a 5-6 month pregnant person. i’m in my late 20’s too so it doesn’t help that none of my friends fully understand what i’m going through. does anyone have any advice on how to handle this? any good cover up ideas? lol
p.s. i know this is kind of gross- but does anybody else have the blockage problem from their fibroid that makes them not be able to go? i feel like when i don’t for a few days that is when my stomach sticks out even worse!
June 3, 2007 at 11:36 pm
OK Girls…Really need your help. I have a fibroid 15cm X 12cm that apparently has grown very quickly from my last check up. My doctotr has me schedule for my surgery on June 30th for an abdominal myomectomy for a partial hysterectomy I went for a second opinion and this doctor said she would put me on Lupron for 3-6 months to shrink the fibroid for a safer surgery. I am currently experiencing some back pain and stinging pain on the fibroid side. My doctor says that my fibroid is growing so fast that Lupron wouldn’t shrink it that much and that it is a nasty drug that he hasn;t had much success with. i am bit confused as to which way to go and would love your thoughts. Thanks much!!
June 4, 2007 at 9:01 am
Hi Janis,
I am in the process of thinking of surgery too. I go back in 2 weeks to check on how mine is growing. I heard from one of my docs that since the surgery creates such blood loss that you may need a transfusion, that is mostly the reason for the lupron. I believe it makes your body think it’s going through menopause (which i hear is not fun) but that it basically reduces the blood flow to the fibroid and therefore will hopefully make for a better surgery without as much blood loss. It may shrink the fibroid a tad, but that is not the main reason for the meds as far as my understanding.
Good luck with the surgery and I hope this helps a bit! I wish all the docs would be on the same page about everything myself. One wants to cut you open, the next says it’s no big deal, one says to take meds, the next says not too. It’s so frustrating and hard to figure out who to believe since it’s your body you don’t want to mess it up. Keep us posted and good luck for a speedy recovery!!
June 8, 2007 at 10:47 pm
Sara /Janis- I will tell you what my doctor (reprodcutive endo) told me regarding Lupon and surgery and blood loss. Lupro is often given to reduce the size of a fibroid (with a semi menapausal state) to make it more managable to remove during surgery – typically a 30% reduction is what occurs over a course of 3 months.
Now if you fibroids are say 6 cm a 30% reduction can bring that puppy down to 4 cm and could potentially be the difference in surgery time and blood loss and/or having a lap vs AM. I am not a doctor – just my thoughts here….
For me with the grapfuit sized large ‘broids doc recommended Lupron – I was not comfortable with taking it and in the end he agreed that the size of my fibroids plus the 3 months it woudl take to potentially shrink them 30% would not be significant and all the symptoms?? I told him I cant go on like this for 3 more months – take them out NOW. During durgery doctors sometimes inject a drug into the fibriod itself to stop the blood flow while its removed from the uterus (I forget the name of the drug) so bleeding also gets stoped that way
Lupron gets a bad rap but it is useful and necesaary drug in many cases. Ask you doctor details about using it – read up on the drug -pros and cons. But…it is a peronal choice to use or not. I didnt use Lupron on the fibroids (I did not feel like I could go 3-6 months as those suckers grew so fast) but I will tell ya I will use it in a minute for IVF to have a baby…so you have to do what is best for your health and most comfortable so you
Bleeding during surgery – just make sure you find a skilled surgon and you will be fine. My doc suggested that I give blood for surgery (I did)- didnt even need any blood during my 4 1/2 hour fibroid surgery. Doctors often use cell savering in some cases to “recycle” your blood too. Skilled surgeon is the key
June 14, 2007 at 11:40 am
Hi fibroid free-
thanks for the GREAT input on the lupron!! gives me lots to think about…and more to research!
how did you find your surgeon and how did you know who to trust? that’s my biggest decision right now. my reg gyno says to leave it alone and my repro endo wants to remove it immediately. i don’t know who to believe and at what point it needs to be removed. it’s so frustrating!
July 13, 2007 at 1:21 am
Hi,
I had a total hysterectomy, in june 2007. i had an enlarged uterus, ( with 3 fibroids). The dr said it was the size of a 4 month pregnancy, thats how they describe it. But with that configuration, i lost about 7 lbs after my surgery, so i would assume it weighed about 5 lbs right? Well, I can say this….I feel much better since then, and people have noticed that i lost a little weight!! reckon it made a difference.
July 13, 2007 at 1:30 am
And by the way, to anyone going thru pain with their fibroids. I went to the Dr. he told me what needed to be done, with my fibroids causing so much pain and heavy menses….. Dont suffer. I went through my hysterectomy, keeping the ovaries, itll be 6 wks in a few days, and i have felt so wonderful, my recovery went well. Im 36 yrs old, and dont let all the horror stories get to you…..Sex is good. Better!!
but one persons opinion is different than the other. But if you need a hysterectomy… dont put it off to long. its not the end of the world as some may say. im living proof!!
July 16, 2007 at 7:14 pm
What a great site-just what I’ve needed. I have been chronically anemic from heavy periods for several years. When March’s period never stopped I found out in May this was due to a large fibroid. I got a 3 month Lupron shot the middle of May and the bleeding finally stopped 3 weeks later. My only symptom with Lupron is being very hot, this is hard when you live in Arizona in the summer and you’re hot anyway, but my cooling bill will be outrageous!!The doctor wants to do a total abdominal hyst due to my 3 previous c-sections and the size of the fibroid which from all my reading doesn’t really seem all that large now-9×8. I really want a lap hysterectomy because I want a shorter recovery period and smaller incision area. I feel pretty upset about the total abdominal surgery. The other couple things I should mention is that I am 45, I began bleeding again last night and the Lupron has not diminshed the fibroid at all according to the last scan. Thanks for any info
July 17, 2007 at 1:50 pm
I had an ab myo on June 5 and am 6 weeks post op today. My fibroid was very large – 644 grams (almost 2 lbs!). My uterus was the size of an 18-20 week pregnancy.
FYI – I also had a consultation with Dr Ascher Walsh in NY and really liked him. I ultimately went with a surgeon near where I live in NJ who I also really liked and was very happy with my decision to have the ab myo. The recovery was not bad at all! I had built it up in my mind and expected the worst. My incision is about 5 inches across. Good luck to all still deciding what to do.
July 24, 2007 at 10:28 pm
i believe that i have what you all are talking about. i have so many of the symptoms (except for bleeding in between periods) got an ultrasound done to check for cysts. vaginal ultrasound too, which revealed thickening endometrium. my belly is bigger than i was at 9 months with all three of my children. i can wear a size 12 pants, but need a 16 or maternity clothes (which help me feel slimmer) i have been congratulated for “Keeping busy” one of my friends also thought i was pregnant. i just say thanks to the strangers:) i am only 5 feet tall and weigh 175 pounds! i can accept 150 pounds, but i really believe 20 will go away if i can get the right diagnosis and not just be told to lose weight. up all night peeing, heavy, clotting periods, sometimes gushes of blood– back pain fullness, feels like i should wear a belly
supporter, “kicking” sensations! if they tell me i don’t have fibroids i will be pissed! lol
July 25, 2007 at 11:21 am
Deana,
I’m puzzled, your ultrasound should have revealed the fibroids too if they are there…. I also have a thick endometrium, and had both kinds of ultrasounds and both revealed the fibroids (though not all of them, the doc found a submucosal one in my endometrium when he did an endometrial ablation using a hysteroscope). The only thing I can think you might be saying is that the tech told you about your endometrium, but you haven’t met with your doctor yet…? Please explain.
July 27, 2007 at 1:42 pm
This site is so nice to find. It really helps with some of the questions I have not yet asked my dr. I have a fibroid in my uterus that, as my doctor said, is the size of being 3 months preg. I have not had an ultrasound he is just going on his physical exams. I kept wondering why my pants were getting tighter and tighter around my waist. I knew I wasn’t eating differently . And yes, like someone else mentioned the maternity pants help….even though you don’t like the thought of it. Otherwise they are just too big in the legs if you keep going up a size to fit your waist. My doctor said he wants to give it some time before he does anything. He says that with menopause these often begin to shrink by themselves. But I am 47 and that could be several years away. I was wondering if anyone knew the rate that these fibroids can grow. I know there must be different rates but in 4 months when my next appt. is can I expect to have my stomach grow larger in that amount of time. I have cut slits on the sides of the waist of my jeans which helps for sure. I have all the other symtoms…heavy nonstop periods, pain..pain shooting down my leg. I was on one site that said if you have sharp pain relating to fibroids you should go to the hospital. I just thought that you should wait it out…as many of you know the pain eventually goes away.
July 30, 2007 at 12:03 pm
I have measured 5 fibroids removed in conjunction with hysterectomies and the density is 1.07 grams/cc or about 7% more than water. To put this in perspective, one of the fibroids was approximately the size of a large Idaho baking potato and it weighed 385 grams (0.85 lbs.).
August 17, 2007 at 3:25 am
had my second transvaginal ultrasound today. waiting to hear what they say. all i heard was thickening of endometrium. will call doc if i don’t hear anything by monday. no news is good news, right? i still can’t see my feet though. lol
August 22, 2007 at 2:21 pm
Please help! I’m 32 years old (no kids yet) and my fibroid is a little over 3 inches in diameter. I know the gyno said that my uterus is about that of a 13 week pregnant person. My stomach is getting a lot larger lately especially in the lower part below my belly button. (I can’t even suck it in anymore!) I know I’ve been slightly depressed and haven’t been working out as much, but I haven’t been eating much extra and the rest of my body is still normal looking. I seriously feel like I’m pregnant and am starting to get concerned that people will begin to think that I am. Is this normal? Does everyone’s stomach get like this or should I be doing more crunches? Please help. This summer has been miserable and I feel like I can’t hide in my clothes anymore.
August 29, 2007 at 10:35 pm
I just found these posts today – wish I had seen them before I had my myo (2 weeks tomorrow) and in the interim while wondering whether things I was experiencing were normal.
BET: You asked about growth. I think everyone is different but mine were pretty much dormant for 2 years and then had a big growth spurt in a 2-month period. I was not willing to wait for menopause – I too am 47, but my mom and aunts did not go through menopause until mid to late 50’s. Anyway, from time of diagnosis in 2005 until March 2007 I did not observe anything significant in terms of pain or symptoms. By May, I could feel growths in my abdomen and stomach, my husband (of 1 month, no less!) could not put his arm around me and as far as intimacy, forget it! I had an ultrasound in early June, which showed my uterus at 16.9 x 8.1 x 13. Three fibroids (one which was not seen in the ultrasound in 2005): 8.8 x 7.5 x 8.9; 5.6 x 4.6 x 5; and 5.9 x 3.6 x 5.4. The last was the “new one” and appeared to be on a stalk – in fact, it was two entwined together. Anyway, the surgeon removed 7 fibroids (the 4 with dimensions listed above and 3 small ones) and left one where significant bleeding was a risk. Total weight: 2 lbs.
HOWEVER, I GAINED 9 lbs from Thursday – Saturday (when I was discharged) that took a week to drop off. I am still a bit bloated and swollen, but I can tell I’m smaller than pre-surgery because I can wear pants that were too tight a month ago.
I had my first post-op visit today and have been cleared to do treadmill, lifecycle or walking. I’m a golfer – is there anyone else who golfs and how long did you have to lay off? I also resumed work the Monday after the surgery, though I was and continue to be working only from home, which permits me to rest when I need to.
All of you take good care – and thanks to everyone for sharing!
September 5, 2007 at 9:22 am
Hello,
I have another question that I’m hoping some of you can help me with. It seems that the size of my fibroid is causing some blockage with my frequency of my bowel movements. I heard a while back, but I didn’t need it at the time, that there is some type of fiber-type additive I guess that you can put on your food or just add to your diet. It’s an oil or seed or something like that which I think you can just buy in either a grocery story or specialty store.
If anybody knows what this is it would be greatly appreciated.
Thank you!!
September 5, 2007 at 10:13 pm
Sara: You can try Metamucil once a day and see if that helps. I suffer from the same problem and I use Metamucil once a day. I also try to eat a diet rich in fruit and vegetables. I eat a banana every morning with four prunes and things have improved. This symptom is one of the main reasons that I am looking for a doctor to undergo the AM surgery.
Good luck and take good care.
September 7, 2007 at 8:46 pm
Hey Gals can you help me out with my weight on my little monster of a fibroid. Just got the radiology report today and my dimensions are 17.5cm X 13.5cm X 11cm how much weight are me talking. Trick is I’m a size 4 right now and 124 lbs. Can’t really afford to lose to much but maybe I’ll match my drivers license weight now of 120.
Thanks Bunches you gals are great!:)
September 12, 2007 at 1:52 pm
Hi Lori,
Is that the size of your uterus or the size of your fibriod? I’ve got the same small framed problem as you. I was a size 4 and now that I’ve got a case of the “fibroid belly bulge” I’m up to a size 6. My fibrois is about 8 cm x 7 cm in diameter and my uterus is that of a 15 week pregnant woman. It stinks because the rest of my body is still very small as I’m sure yours is so losing weight is a tricky consept. I’ve always worked out and still do, I just don’t think it helps with weight gained due to my fibriod size or my streched out uterus.
I hope this helps a bit for now until someone can help you with the weight of it. (I don’t know how to figure that out!)
September 12, 2007 at 6:48 pm
Lori-I had 2 fibroids and my uterus was the size of a 16-20 week pregnancy. Before I was diagnosed with fibroids, I was a size 0, weighing around 112 lbs. Then my belly got bigger and I went up to a size 2 (116 lbs). I was trying to get back into my pants by being careful about my eating habits and exercising more. That was not working….it was the fibroids. Since my surgery, I am down to 110 lbs…still a size 2 from the swelling from the surgery. I am guessing I loss about 2 lbs of muscle mass from doing nothing the past 7 weeks….and maybe the fibroids were 4 lbs.
September 13, 2007 at 5:39 pm
Thanks Michelle and Ali,
Michelle, my fibroid sounds like yours. They have told me I am comparible to a 20 week pregnancy or 5 months. Ali, that is the size of the fibroid I believe. However my entire uterus is filled with it I’m told. The dimensions of yours you should be able to get from you radiology report from ultrasounds. My dimensions of the actual fibroid were 17.5 X13.5 X 11. I don’t get all this completely. I have a 12 year old son and when I was 5 months pregnant I never looked physically like I do now. I just really thought my stomach muscles were really adapting well to Windsor Pilates. BOY WAS I WRONG!! I am scheduled for an hysterectomy Oct. 15 next month.
Take care ladies, and thank you again.
September 18, 2007 at 8:23 pm
Happy to meet you all. I have a major problem with fibriods. I have seven fibriods and look like full term pregant. I don’t have any child.
My heart goes out to all of us with extremely large fibriods and no child. I am only 28yrs old. I have seen several MD who selfish and greedily suggested hysterectomy and yet have children of their own.
It would be nice if Oprah or one of this talk show can address this major problem in the society young ladies are facing in silent and fear.
Well i have done alot of research concerning fibriods and it boils down to having surgery at the end of the day. Lupron is effective in shrinking the fibriod, yes it has adverse effect like severe hot flashes but my concern with Lupron, according to some MD is that it makes the fibriod tissue hard to operate, in otherwords it softens the fibriod tissue making it hard for the surgeon to differentiate btw uterus and fibriod tissue. And having children is my ultimate GOAL. Pls help if u have any input?
September 20, 2007 at 12:14 pm
Stacie- I feel your pain! I’m 31 with no children yet either. Although I definitely look like I’m carrying one also! It’s hard to be young and childless going through this. So many questions… Should I rush to get pregnant just because I might not be able to later, should I have surgery because I’m miserable every month with my period, will my fibroids keep growing, will I ever get my normal body back, what am I going to wear today so I can try to hide my bulging belly….and so many more! Even with my friends knowing it’s still extrememly embarrassing and also very depressing! I’ve always been an upbeat and happy person, but now when I look at my stomach in the mirror I want to cry! I know it’s the fibroid, but I can’t help to feel disqusted!
At least we have this site to help us through the day and feel like somebody understands us! Thank you!!!
September 22, 2007 at 2:56 am
Thanks for sharing Ali. I feel the same way everyday I wake up and every night I go to sleep. I just don’t understand why this problem have no answer with all the technology in this country.
Well, I have some interesting website that could be informative and helpful.
http://www.drhufnagel.com/fibriods1.htm
http://www.nih.gov/news/pr/jun2004/nichd-02.htm
Also, reading this book may be helpful
“No More Hysterectomies” by Vikki Hufnagel
Published by Penguin Books, C 1989,
ISBN 0-453-00603-5; ISBN 0-452-262550 paperback
I am not trying to promote anything, just for us to be well informed before making any life changing decisions.
God Help us all!!!
Any input would be greatly appreciated. Thanks.
September 22, 2007 at 3:09 am
Thanks for sharing Ali. I feel the same way every day I wake up in the morning and every night before I sleep. It is so sad that this problem still exist with all the technology we have in this country.
I have some website that could be informative and helpful
http://www.drhufnagel.com/fibriods1.htm
http://www.nih.gov/news/pr/jun2004/nichd-02.htm
Also Read the book “No More Hysterectomies”
by Vikki Hufnagel.
May God help us all.
Any Input would be greatly appreciated.
September 22, 2007 at 3:11 am
Thanks for sharing Ali. I feel the same way every day I wake up in the morning and every night before I sleep. It is so sad that this problem still exist with all the technology we have in this country.
I have some website that could be informative and helpful
http://www.drhufnagel.com/fibriods1.htm
http://www.nih.gov/news/pr/jun2004/nichd-02.htm
Also Read the book “No More Hysterectomies” by Vikki Hufnagel
Published by Penguin Books, C 1989,
ISBN 0-453-00603-5; ISBN 0-452-262550 paperback
May God help us all.
Any Input would be greatly appreciated
September 22, 2007 at 3:14 am
I don’t understand why this web site would not let me share valuable information!!!
September 22, 2007 at 3:15 am
I don’t understand why this web site would not let me share valuable information!!!
October 1, 2007 at 5:36 pm
Okay Gals, I’m the original person who entered this question and have gotten 127 hits back on my original question. Thank you for all your input. I’m in on the game. I am going in October 15th for an abdominal hysterectomy and I am asking the doctor to take a photo as well as weigh the fibroid. I will post the info so we can maybe find something as close to scientific as we may be able to get. Thus far I did the calculation and my fibroid will weight about 12.3 pounds! Cool! I’ll be back to the weight on my drivers license for real! Those dimensions were a month ago and my surgeon feels it has grown so we we see shortly and I’ll have plenty of time on my hands to send info as to maybe help someone else in this situation.
October 4, 2007 at 12:11 pm
Lori, amazing what you started! Keep us posted on your surgery and the darned thing’s weight (12.3 lbs! wow). Hope it goes smoothly!
October 9, 2007 at 10:55 am
Lori- I wish you lots of luck with your surgery and I hope that you have a safe, healthy, and speedy recovery!! We’ll all be thinking about you on the 15th! That will be wonderful if you could get pics and weigh too. I think the more we talk to each other and the more we find out the better it will be for all women with fibroids!
Stacy- Thank you for sharing your information too. It’s really helpful to know others feel like I do!
October 11, 2007 at 4:55 pm
Hi guys
Glad to find this site. Does anyone have constant pain with the existence of a fibroid?
October 12, 2007 at 2:19 am
My fibroid seems to be causing a lot of stomach distension, and a general feeling of “fullness” in the abdominal area–like someone stuffed a towel and three pairs of socks into my pants! The distension, bloating, and fullness seem way out of line with the fact that I only have one fibroid (tennis-ball sized) external to the uterus–which is not otherwise enlarged.
So I’m wondering if beyond the mass of the fibroid itself, does it indirectly cause bloating/distension of the abdomen in general? What exactly IS “bloating”, tissue inflammation? Retained fluids? Does inflammed tissue weigh more than normal? Can a fibroid cause extra weight indirectly through bloating?
Wow, these are geeky questions! But I’m glad this site is here to help me think them through.
October 12, 2007 at 4:16 pm
Hello all, I am so happy to find this site. I have had fibroids since I was at least 20! In the last few years they have grown ginourmously and I am miserable! I am now 40, and getting ready to go in for a abdominal myomectomy. I may be interested in having another child and was wondering what you all’s experience has been. I am quite nervous and just really want to feel better. I have gained just about 10 lbs in the last 6 months, and very depressed, bloated, constipated, oh.. I forgot 12-15 day periods. blah blah blay yada yada yada. You all know th story! Just interested in some insight!
Thanks in advance, Teresa
October 13, 2007 at 6:17 pm
Melba, just a guess here… cause I don’t have all the symptoms… it could be that your fibroid is pushing on your stomach, intestines, veins, areas of your lymph system,etc …(?) that allow other areas to drain or move fluids (food, blood, lymph, ??) properly… so it sort of gets backed up…
Teresa: you might try some of the other threads more specific to your question… the ttc one or the ab myo one…
October 19, 2007 at 2:19 am
Hi Melba and everyone else… I just had a hysterectomy 5 days ago as I had 3 fibroids removed (size of large oranges), several smallers ones , and in addition to the fibroids I had”Ademetrios” (spelling?) ,”Endometriosis and an “enlarged”, “deformed”uterus caused by the fibroids. It has only been 5 days and I feel 100% better because of the weight that has been lifted off of my bowels, bladder etc… Prior to the surgery I had bladder incontinence and severe Irritable Bowel Syndrome as there was so much weight pressing on my organs from the fibroids. The constipation was unbearable as was the pressure, bloating and pain. The last few weeks before my surgery I looked exactly as I did when I was 6 months pregnant with my son. For anyone going through this agony I promise you that you will feel like a new person once the fibroids are removed…I go for a 2nd surgery in 3 months to remove all of the painful vericose veins caused by the weight of the fibroids. Melba I truly believe that what you are feeling can be caused by your “Tennis ball sized fibroid” because back when mine were smaller I had all of those symptoms. I know how disheartening it is to feel bloated and like you have gained weight when you really cannot help it. I had to have the hysterectomy in order to remove my fibroids as I was not a candidate for the less invasive methods that you mentioned because of where mine were situated. Another causal factor in the bloated feeling is that it is possible that your fibroid could be stretching your uterus (as they commonly do) which probably also contributes to the bloated feeling. I wish you all the best as I know that there is relief!
October 19, 2007 at 2:19 am
Hi Melba and everyone else… I just had a hysterectomy 5 days ago as I had 3 fibroids removed (size of large oranges), several smallers ones , and in addition to the fibroids I had”Ademetrios” (spelling?) ,”Endometriosis and an “enlarged”, “deformed”uterus caused by the fibroids. It has only been 5 days and I feel 100% better because of the weight that has been lifted off of my bowels, bladder etc… Prior to the surgery I had bladder incontinence and severe Irritable Bowel Syndrome as there was so much weight pressing on my organs from the fibroids. The constipation was unbearable as was the pressure, bloating and pain. The last few weeks before my surgery I looked exactly as I did when I was 6 months pregnant with my son. For anyone going through this agony I promise you that you will feel like a new person once the fibroids are removed…I go for a 2nd surgery in 3 months to remove all of the painful vericose veins caused by the weight of the fibroids. Melba I truly believe that what you are feeling can be caused by your “Tennis ball sized fibroid” because back when mine were smaller I had all of those symptoms. I know how disheartening it is to feel bloated and like you have gained weight when you really cannot help it. I had to have the hysterectomy in order to remove my fibroids as I was not a candidate for the less invasive methods that you mentioned because of where mine were situated. Another causal factor in the bloated feeling is that it is possible that your fibroid could be stretching your uterus (as they commonly do) which probably also contributes to the bloated feeling. I wish you all the best as I know that there is relief!
October 19, 2007 at 4:43 am
Hi everyone
I had an abdominal myomectomy 3 weeks ago and my fibroid, which was attached to the outside of my uterus, was 9cm long – and only weighed 300 grams!!!! I gained about 6 kilos (14 pounds) in the past year despite being fit and running etc etc which apparently was due to my fibroid. Since my AM I’ve lost about 2 kilos. According to my surgeon and my own research, bloating and weight gain are symptoms of fibroids. My stomach is still bloated and I can’t fit into my ‘real’ clothes but my surgeon assures me that this will pass. I hope so!!!!!
October 25, 2007 at 9:05 pm
I’m on day 8 after my myomectomy. I can’t get a weight answer out of my doc because the ‘broids were removed in “pieces” (yuk), she says. I had one massive ‘broid – over 20 cm! And then lots of little ones… Anywho, I stepped on the scale the day before surgery and weighed 154 lbs. and a week after surgery I weighed 145 lbs. I’m sure I lost some weight from that terrible hospital food (and complete lack of appetite) – but my completely uneducated guess is about 5 or 6 lbs. of monster removed from my uterus. Gross. Ok, I don’t want to think about this anymore…
November 1, 2007 at 9:57 am
Ugh! I feel horrible right now. My shirts are all so tight along my waist were my belly sticks out and I can’t stand it anymore. If I buy them a size bigger my top is swimming in them and if I get the right size for my top they are skin tight around my waist. Does anybody else have this problem? Better yet…does anybody have a solution to this problem? I ended up going to work today in a big fleece to try and cover up my pregnant looking belly. This is so embarrassing and I am getting so frustrated!
Ok, I just needed to vent. It doesn’t make me feel too much better, but having this site and knowing I’m not alone does a little bit. Thank you!
November 4, 2007 at 2:27 am
My fibroid is the 20cm ( I dont know the other dimensions) The Dr.’s could not determine where it starts, except not in my uterus and not attached to vital organs. I have had the exteneded abdomen for years, I started getting irregular periods in the last 2 yrs. My PCP ignored my symptoms (a woman) “saying maybe that is what your body does” I am a little freaked because surgery was the only option given to me based on the size. Although it would be nice for people to stop asking me when I am due. The surgeon did say he would try not to make me infertile but as he put it “May have to be a complete clean out” So im freaking out a little. Has anyone heard of any option besides surgery for something this large? Let me know please…Thank You
November 4, 2007 at 2:28 am
I forgot to mention im only 33yrs old
November 8, 2007 at 4:40 pm
I have nothing to offer you knowledge wise unfortunatly. This is all very new to me as well. I can offer you my sympathy though as I’m 32 and going through the same confusion! Hopefully someone else will be able to answer that for you. One day maybe we’ll all be rid of this confusion if we’re lucky!!
November 30, 2007 at 4:28 pm
I have posted in the past, last year, when I first learned I had a fibroid. It measured around 7cm last year. This year it is up to 8cm. I’m wondering if I should wory about that 1cm growth rate. I also wonder if being near my period affects the size. I was told the fibroid can fluctuate in growth, and go up and down in size. I just wonder if my period makes it fuller. Anyone experience this with their fibroid?
I’m 32 as of Oct. I haven’t had kids yet, but would like to be able to within a few years.
I’M MISERABLE with the fibroid because it affects my urination. When I have to go bad, it’s hard to squeeze it out. It doesn’t flow naturally. I feel like I have to go every few minutes. Near my period is worse. But in general, it’s very bothersome. I suffer with an 8cm fibroid. I can’t imagine one double that size.
Has anyone had a fibroid stay the same size for a long time, several years without too much growth? I hate the idea of surgery because of its uncertainties.
November 30, 2007 at 4:30 pm
And I’ve come to hate doctors in general. They don’t seem to care. The medical system in the U.S. is horrid.
December 3, 2007 at 9:22 am
Hi Nicole,
Yes the size does change throughout the month since it “feeds off” of hormones. I feel that mine is always larger the week before my period. (My pants don’t fit as well and my stomach feels really bloated and if I lay on my back I can feel the hardness of my fibroid more.) I know your frustration with the urination. I can barely drink anything after dinner time other wise I’ll be up all night going! I feel like an 80 year old! I have recently found that by increasing my fiber intake it seems to help everything come out more easily without the fibroid blocking me. It also helps me not to feel like I have “fibroid gut” as I call it. hehee
Oh, and I’m 31 and have a 9cm fibriod and no kids yet either. I feel the same way about surgery. My doc says its not a good idea to have unless it becomes completely unmanageable. My period is very bad (hemmoriges) but I have gone back on the pill and it helps it remain normal. I dread getting off it when I do decide to have kids…but that will not be for years so no use worrying about it.
About the growth rate, my doc says that it can stay stable for a long time and then grow rapidly and vice versa. You’ll just need to get the sono’s periodically to monitor it.
December 17, 2007 at 1:52 am
Hi everyone,
I have three 10cm fibriods and five smaller ones. I think the greatest mistake we are all making is keeping silence when these fibriods continually feeds on our blood and grow bigger w time. I can completely relate w all the compliant made about fib –abdominal distension, urine retention, constipation, excess bleeding, back pain, varicose vein related to the fibriods pressing on the vein, etc. Well, I have decided to break the silence, having consulted several MD at least 15 doctocrs. Surgery is the only way for ladies who intend to have children like myself. Get a MD that is optimistic and encouraging. It would only be wise to shink these suckers (fibriods) b4 going for an abdominal myomectomy otherwise the incision would be too large and may lead to excessive blood loss and other complications. Lupron is the way to go for 3-4 months. Taking Lupron more than 4 months might not give an effective result rather it may lead to osteoporosis. Please take Calcium and vit D while on Lupron. Be prepared for side effects like depression, weight gain and hot flashes which is normal. Weight gain can be controlled if u eat in small quantities and detoxify ur liver with milk of thistles. I just had my first shot and i’m glad it’s winter. Good Luck. Thanks for sharing.
December 18, 2007 at 5:36 pm
I had a abdominal hysterectomy.
Here are the measurements I could figure out.
2330 grams (the largest fibroid) aprox. 5.2 lbs
24×18x13cm
each ovary had multiple cyst measuring from .07 to 1.5 cm
Fallopian tubes fibroids 9 cm in length with .07 in diameter and 3.5 cm in lenght and .07 in diameter.
I hope it helps with measurements
December 19, 2007 at 11:57 pm
I am 22 years old and had a myomectomy april ‘06 and had over 20 fibroids removed (one the size of a “football” and the others varying in size) I was experiencing SEVERE abdominal pain, urinary frequency, and problems with my bowels. I have recently found out that I still have several fibroids, as I figured b/c I am once again in SO much pain(as you all understand) I went to get a 2nd opinion today and the GYN suggested Lupron. I am so hesitant though. I am a nursing student and I really dont know if I can handle the side effects while in school. But I dont know whats worse, the pain from the fibroids or the side effects of the med. I guess thats the decision I have to make. I have been doing alot of thinking lately and I just want to get back to a normal life. I am in pain at least 3 weeks of the month and all I do is think about whether or not I’ll ever be able to have children. It’s so frustrating. I have a sister who is 26 and is on baby #2 and I guess I just wish I could steal her uterus (as silly as that sounds). I keep telling myself that there are people out there that have problems much worse than mine, but these fibroids are running myself and I want to get a full night sleep again. I want to be able to sleep w/o a heating pad on my belly. I just want to get rid of this pain. I know you all understand me and that’s what so nice. I feel like my friends and family dont understand and I just dont know whether I should just throw in the towel now and have the hysterectomy or not. I mean there’s always adoption and having someone else carry for me. Any ideas or comments would be greatly appreciated, especially about Lupron.
December 20, 2007 at 11:18 am
Hi Laura. I’m sorry to hear that you’re in such pain and at such a young age. I thought I was young and dealing with this and I’m 31. It’s a hard decision to decide to go for the hysterectomy. I still can’t decide. I’ve been with my b/f for 2 and a half years and we live together, but I’m still not ready to have children. I think about it all the time, but only because I have the fibroids and I think that I need to have kids before it’s too late if I really do want them. The whole situation is so frustrating! My sis is having her 3rd kid soon so I’m thrilled to at least be an aunt.
As for the Lupron, I haven’t been on it yet myself, but know some people that have been. It’s just like putting your body through menopause so I guess it’s do-able, just sucky! Good Luck with whatever you decide.
p.s. Yes I love this site too for some compassion and understanding. Regular friends just don’t understand what we are going through. My protruding belly makes me sick to my stomach every time I look at it, but my friends just don’t get it. (I’m smaller framed then a lot of them)
December 28, 2007 at 5:36 am
I have six fibroids one of them is the size of a four and a half month fetus. I’m begining to have terrible lower back pains , I have no other symtoms. Also my belly is huge and funny shaped. Do you think surgery will correct this?
January 7, 2008 at 9:25 am
Does anybody else have the intramural (in the muscle bed of the uterus) fibroid? I hear that those are harder to remove because it causes a lot more blood loss and is just a more difficult surgery overall. I’m deciding what to do about mine and just wanted to hear some feedback either way regarding them. Mine has been growing rapidly over the past year and I’m just curious at what point they officially should be removed at.
February 8, 2008 at 9:11 pm
Hi Sara,
My biggest fibroid (almost 6cm) was intramural. I believe what the doctors do is slow down the blood flow in your uterus during the surgery so there is less bleeding. All in all, I had 8 taken out (and 1 polyp), and had no bleeding issues (i.e. didn’t need any extra blood given to me).
Now that I’ve had the surgery (2 weeks ago), I’m glad I did it. It’s scary leading up to it, but now, I’m remembering what my body was like before them. I’m not sure if there’s any official point that fibroids should be removed. Each case seems to depend on how much they’re bothering you, how close you are to menopause (when many will shrink on their own), whether you want to have kids, and so on. Probably the smaller they are when they’re taken out, the easier the surgery is and easier on your body to recover, but talk to your doctor about it.
February 11, 2008 at 3:02 pm
Thank you so much InShape! I’m glad to hear that your surgery went well and your recovery is going just as well. Mine is about 10cm right now and I’m only 31 and have not had any kids yet. All I know is that I want this thing out of me because I can’t live like this any longer. I’m not planning on having kids for at least another 4-5 years so I don’t want to be miserable up until then. I’m so glad to hear how well the surgery went for you. It takes a huge weight of stress off my shoulders. I’ve been scared to death about it since I have never had any surgery yet. Thank you so much. Keep healing and having a good recovery!!
February 15, 2008 at 9:29 pm
I underwent a laproscopic historectomy removing everything but one overy 3 months ago. This was the best decision I could have made. I was on so many pain pills and the pain was still overwhelming. My quality of life had gone way downhill and going around the block for a walk with my child was painful. I didn’t realize how much pain I had been in until after the surgery. When all the drugs wore off I waited for the sharp knife thrusting pain I always had from endometriosis and cysts to return and it hasn’t. I began exercising and there is color in my face not stress and pain. The texture of my coarse frizzy hair has changed dramatically and my face has cleared up for the first time ever. Now at 34 I feel I have been given a new life. I used to grit my teeth to go over speed bumps and when I was asked to go play soccer with my 6 year old. I now glow and realize what an opportunity it is to be able to run and jump and play. I wish that in my gazillion visits to gastrointestinologists, gynechologists, neuromuscular specialists and family doctors as I received shots in my stomach for myofacial muscular syndrome and pills for spastic colon someone could have taken the time to let me know that the only way endometriosis can be detected is laproscopic research not your annual visit. You also are never checked for ovarian cancer. If you have unexplained intense cramps and sharp pains in specific areas of your stomach, don’t go through 16 years of misery like me. Ruling out the obvious and then guessing is not good enough. For the last eight months I would not take no for an answer. I sometimes saw a doctor twice a week with pain in my stomach. When I didn’t feel like they were taking me seriously I found another doctor and brought all my records until somebody listened. I was back at work comfortable in 2 and a half weeks and I suggest it to anyone that wants to rekindle their mirrage and life. If you almost always feel like you have morning sickness and an intimate moment involves weighing the pain/pleasure ratio….. This is a symptom that is not published in many medical journals like extreme hair texture changes. Other signs that it may be endometriosis are out there you just have to dig deeper, You’ll find yourself. Go Make Hysterectomy History!
February 18, 2008 at 5:23 pm
That’s great that you feel so much better! This will be excellent for your son….and your busband. Most of all you though! Congrats, I’m very happy for you!!!
March 5, 2008 at 10:58 am
Oh…did your doc make you go on the lupron before hand? If so how was it? I keep getting mixed answers regarding it. Thanks!
March 18, 2008 at 9:11 am
After all this time (almost 2 years) I’m finally going to set the date and get this darn thing out of me! I’m so excited, but also so nervous! How painful is it really after the surgery? I’ll be having the full on C-section slice across! Any advice of what to expect would be WONDERFUL!!
April 14, 2008 at 11:27 am
Hi. I am 44 and have a 12 cm fibroid. I have the painful periods, huge clots that make you feel like you are in labour, back pain, increased need for urination, distended stomach and palpable mass that I can feel all the time and sometimes “pulses” or moves a bit… is that weird?
It freaks me out that I have this tumour. I loved being pregnant and feel badly for all the young ladies going through this, however I just want the damn thing cut out of me. I am not using the uterus any more and was talking to my Dr about hysterectomy even before knowing I had a fibroid because of other issues (which may actually be caused by my fibroids). He sent me to an OBGYN with a good reputation.
The upshot is that no one will do ANYTHING!. I am told it may shrink with menopause…eight years from now…so I get to be five months pregnant with crap that has no business being there since it is not a baby… for EIGHT YEARS and it will continue to grow during that time.
To top it off, the suggestion for a hysterectomy was dismissed and when asked if I wanted to control the pain more or the bleeding and I said pain management, that was dismissed as well when the OBGYN told me he would put me on an IUD to control the bleeding…an IUD with a 12 cm fibroid? I called the manufacturer of the device and was told in no uncertain terms that they would advise against it.
So I go again this month for the results of my biopsies and to discuss “next steps” which I can assure you will not include an IUD!
Sorry about this… I guess I just needed to rant since no one else cares or understands why I an upset…I get comments like “oh well, it’s not like it’s filled with pus or anything”…
April 14, 2008 at 12:31 pm
What is it with doctors? My doctors wanted to do a hysterectomy when I absolutely did NOT want one for a relatively small fibroid (5 cm tops). Keep seeing different doctors until you find one who will really talk to you about the available treatments. If they don’t want to perform a hysterectomy, they should at least explain their reasoning to you.
And no, it is not weird. My tumor used to buck around, especially during my periods – until I got it zapped with ultrasound.
Good luck!
April 16, 2008 at 3:08 am
I also keep hearing “wait until menopause” but I’ve also heard that not all of them shrink…. and how much do they shrink if they even fo? And then of course, I happen to like being on hormones because my hot flashes, hair loss, chest pain, forgetfulness, dryness, saggy breasts, etc. was caused when I went into menopause…and I felt so much better with extra estrogen… so then what? I think you should ask them about the other options: embolization, myomectomy, endometrial ablation, exablate, etc… best…
April 26, 2008 at 2:34 am
THIS IS FANTASTIC!! well done, i have loads of fibroids, the largest being the size of a melon……and ive serched high and low to find out roughly what they weigh, im glad im not the only one NEEDING to know this. i have to have a hysterectomy , so now im on a mission to find out how much my uterus and cervix weigh, hopefully ill drop a dress size after all this!!!!
thanks, this info is fab!!
regards
sal
x
April 26, 2008 at 2:39 am
jesse, you and me both, im nervous, but have read a zillion comments from women who ve had hysterectomy and ALL have said its the best thing they ve ever done and the pain is no worse than that damn awful cramping, bleeding, clotting, backache etc we get with our fibroids, but of course once its over and healed we are NEVER gonna have that again
good luck
sal
April 26, 2008 at 4:16 pm
I am so excitted to find this site, after 3 months and 4 different dr.s I am having an abd. hyst next month, was wondering over the past year why my 65 lbs weight loss was changing and all the gushing during periods and my stomach growing as well as something that felt like contractions and kicking!~ Dr says It is bigger then a canalope like I am in m 2nd trimester of pregnancy,up past my belly button,
May 20, 2008 at 7:24 am
Well I finally convinced them that “watchful waiting” wouldn’t cut it for me. Stupid thing i now past my belly button as well. I have another ultra sound in July to see how fast it is growing. I am scheduled to start Lupron treatments in Sept with a total abdominal hysterectomy scheduled for Dec 8.
May 28, 2008 at 5:54 am
OK… odd question. Has anyone experienced morning sickness like symptoms with their fibroids? Interesting morning so far… and I am not “sick”… I do have my period though and feel like curling up into a little ball of misery. But life goes on. I would just like to know if this might be an ongoing thing. Perhaps it is related to the additional pressure of my uterus pressing up my stomach???
June 4, 2008 at 12:14 am
I’m so glad I came across this site. The past few days have been absolute hell for me. This site has made me laugh and provided some (much needed) comic relief.
I found out a few months ago I had a huge fibroid (10.5cm) and when I went to the gyno the other day, it grew to 12cm, and my uterus is now 15cm (and growing.) He strongly suggested that I do a UFE, but I really don’t think it’s conducive for my lifestyle. I’m a 21 year old female, no children, and besides this fibroid and ridiculously high anxiety, relatively healthy. The problem is I’m a nude model and work in the adult industry, so my job doesn’t exactly allow me to “Go back to work in 2 weeks wearing pads” or anything, obviously. I’m planning on calling the doctor’s office tomorrow and scheduling a myomectomy just so I can rest my mind that it will be out of me and won’t bother me (unless it grows back, of course.) I have been talking with my mom and dad about my situation, and they fully support and agree with the myomectomy. I guess I’m just writing this to vent. I don’t have too many people who understand what I’m going through or who can give decent advice when it comes to how it will affect my job, etc. I’m just so frustrated and sick of being in pain and feeling so terrible all the time. I’m so glad I found this site and I’m about to get lost in the forums.
June 20, 2008 at 2:45 am
I am also so grateful to find this site.
I have very large fibroids…had an 8 pound one removed 9 years ago and they are back and just as bad…I have tried to wait it out and go through menopause, but I don’t think I can do it. I have worried about hormonal depression as I am very sensitive to that and had it before and it was so horrible to go through.
I am so embarrassed at the size of my tummy (my waist always use to be the smaller part of me prefibroids)…and I have never had a baby (one in heaven lost when I was 20 weeks along) so that just makes it more painful.
Its been reassuring to know others battle things…
July 1, 2008 at 12:20 am
Hi to all. This forum is so helpful. I was diagnosed with fibroids in 2002 which the Dr. said were very tiny and not to worry about. In 2006-2007, I went back and this time the dr. I saw suggested surgery and said my uterus was at 18 weeks–thinking she was just too quick to grab the knives, I sought the opinion of another Dr. who confirmed the same size but surprisingly said not to worry unless I was in real pain. My symptoms include all what most of you have posted here; always fatigued, I am seriously anaemic, bladder issues…i had complete bladder incontinence last summer and had to wear adult depends plus excruciating pain and away from work for a week. I now have a 20-22 week uterus and my doctor has suggested hesterectomy–i am 41 yrs old by the way, altough I wanted another child–but it is clear that the fibroids ave caused me secondary infertility–years and years of trying for a 2nd child–no birth control but not happening– i also did not understand why it has been clear that the only weight i need to lose is around my belly–I have been asked the annoying questions as to when the baby is coming and of course shoping for clothes is a a constant distress. So i have made up my mind to go ahead and have them removed but still reading on side effects such as sexual health etc–best i do jazzercise but have to always eat before i go because i get tired very quickly in the middle of the workout.
July 2, 2008 at 3:04 am
Hi Kate, I’m glad you’re getting the out! Knowing what I know now, it disturbs me some when I hear that some women are told to not worry, when in fact like you, they are in fact having other serious, horrible symptoms! And, that during that time, you seriously grew. I also hate to hear doctors tell women that their fibroid will shrink at menopause, but they don’t point out that that of course means no hormone replacement therapy, which I personally would have had a hard time without. I think they are playing it safe… and maybe some women want to hear that… But really, in my case, I wish I’d had a myomectomy years ago… when it actually would have been more do-able, and I would also have been younger (& quick healing) Sorry to gripe so much, but I guess I hope someone who sees this may decide to go for it!
July 3, 2008 at 2:27 pm
I just had an abdominal hysterectomy for a 13 by 18 centimeter fibroid which weighed about 2.5 pounds. My doctor said the average fibroid weighs 100 grams and that mine was about 1100 grams. I hope that math adds up! I should add that I’m 47 years old. The problems the fibroid gave me was bladder pressure (frequet urination) prolonged periods (but not necessarily heavier bleeding), lower back pain and bloating/pressure. I had the tumor for at least five years. Some days I was more bloated than others. A month or two before surgery I started to feel depressed. I take depression medication. So I don’t know if the pills weren’t working if the tumor was just tiring me out. I’m looking forward to my second chance at life and, I hope, a smaller pants size!
August 4, 2008 at 8:58 pm
Hi EclecticGeek, another data point for your project: My pathology report said my fibroid was 14 x 12 x 10 cm and weighed 892 grams, which is just under 2 pounds. Hope that helps, Swing Dancer
August 7, 2008 at 4:10 pm
Hello, I am suffering with every symptom pointing to fibroid tumors. I have a dr. appt. this monday. Reading this site has been so helpful. I found it looking for how much the fibroids can weight becuase of my fat belly i grew. I often say i look pregnet. I’m almost hoping this dr. tells me it’s something i can fix because i’m starting to fell like i’m crazy. I have went up several sizes that alone is enough to make you feel like s**t. The one sympton I have that I don’t ever hear about is a headache. Mine is all of the time from one degree to another, anyone else having head pain? I would like that to also go away. thanks
August 7, 2008 at 6:04 pm
Hi Lori,
I did have headaches all the time. The first time that they went away was when I got an IV of saline solution prior to surgery. In my case I think it was dehydration. Good luck!
August 7, 2008 at 7:55 pm
Thanks Aja,
I have been searching this site and reading so many blogs and I’m pretty sure I am also anemic which from what I’m gathering can also bring on the headaches. Like everyone I can’t wait to feel better. Thanks
August 8, 2008 at 1:10 pm
Hi Lori,
If you have been bleeding out regularly, you may very well be anemic. I cannot tell you what a difference it makes in terms of one’s overall feeling of well-being to get one’s iron levels in order and actually get some oxygen into one’s body. I feel soooooo much better now and I have nothing but heartfelt sympathy for everyone who is still in the process of diagnosis. I felt so overwhelmed and so stressed about making decisions – and a great deal of that was due to the fact that my blood was pink – literally pink – by the time I sought treatment.
Best wishes for a speedy improvement!
August 31, 2008 at 2:46 am
Hi,
I had a large fibroid removed about 6 or 7 years ago via a myomectomy. It was attached to my uterus( Predunculated). Since then( about 3 weeks ago my DR. found another during a pelvic exam) my doctor states I have two that have grown back( but she stated they are in a position that is not harmful, I had a ultrasound done and she wants me to follow-up with a MRI just to make sure what you suspects is true, what I have come to realize is a MRI is the best way to find where and how big the fibroids are). I want to have kids. I have not had any pain from this one or the previous one that was removed ( did I mention weigh 10 pounds, look like a football). I am trying to get pregnant and my doctor is giving me 6 months. But I am in to Natural Remedies and what I have found is a herb called Vitex it works wonders in some cases it has help shrink fibroids and uterine cysts. It also is use to assist in getting pregnant. What it does is balance your hormones so that you are not over producing Estrogen which causes fibroids to grow. I have done tons of research on fibroids. Fill free to ask me any questions. I am a nursing student I graduate in Jan.09 plus I have a lot of resources because I have been in the medical field for many years. But I do have one question has anyone ever had more than one myomectomy?
Also researchs shows that most fibroids grow back in 5 o 7 years. Usually, not in the same place; unless the doctor does not remove the root(base). So keep that in mind if you decide to have one or more remove and you have not had children the bes thing to do is get pregnant as soon as the Doctor releases you.
I will keep everyone in my prays.
God Bless…
Kim
September 2, 2008 at 10:24 pm
Hi my name is LOrie,
This is my first time on this site and I have totally been floored by each of you women and what you have been going thru… Im trying to determine now if Im going thru the same thing… I was diagnosed w/uterine fibroid 2 yrs ago dont know where in uterus or how big.. but my crazy Dr decided to put me on the Mirena IUD to stop my periods til I go thry menopause, bad choice, the hormone in this IUD she didnt bother to tell me makes fibroids grow rapidly… well its been a yr feb since I had IUD put in and I was having so many problems that I had it removed in April… I was so disgusted because I had just lost down to a comfortable size after many many yrs of being large and now in one yr I have gained 43 pounds, that doesnt bother me as bad as the bloating, swelling in hands andfeet constantly and my huge belly at the top…. I have always been big belly but not at the top, it bulges out like im 7 months pregnant and I have constant pain in my left upper abdomen and my belly is really hard… bad thing is my husband recently divorced me and I have no insurance and cant go to dr so I dont know if I can go to ER in pain and they can check my abdomen for me.. do any of you have any picts of your belly during the fibroid or enlarged uterus… I would greatly appreciate any info on all this I can get… thank you and GOD BLESS Lorie
September 3, 2008 at 1:48 am
Hi,
Lorie
It is a shame that Dr’s put women on birth control pills other synthetic estrogen hormones that is what makes the fibroid grow. I have been bless that the fibroids that I have had (have) don’t cause any weight gain( just a little bloating in the lower abs but it tends to go away after my cycle ends) that depends on where they are located. If you are having bloating in the upper abs then you fibroid may be Predunculated, those fibroids are know to grow big. I saw pictures of a lady that has one weigh 40 pounds. I am sorry to hear you don’t have insurance because a MRI is the best way to tell where yours is located, why you are gaining weight , and how big. But as I stated in my previous posting you should try the herb Vitex. Google it and you will find that is has help many women with fibroids (at shrink them).
I will pray for you
God Bless
Kim
September 3, 2008 at 10:34 am
Hi Kim:
Thanks for the post…
yeah I ask my Dr wouldnt the hormone make the fibroid grow and she said its not enough to worry about…
I will give the vitex a try… I just recently read on a post about the herb MACA and it also balances out the reproductive system and hormones… was feeling much better hormonal wise… but if I could just do something for this dang bloating and swelling… any suggestions? do you think the vitex will help with that too… I saw an ad on vitex and it said it takes months to get into your system is that true…
THANKS GOD BLESS AND HAVE A GREAT DAY!
September 4, 2008 at 7:07 pm
Hi,
Lorie
What I found helps me is increasing fiber in your diet, because large fibroids can cause constipation and bloating. As for the Vitex taking months, I read that too but what I did is find the herb all by itself because I found other products that have vitex add in.The vitex also comes in liquid form 400mg. But you can get the pill with 800mg or 450mg. I wil look into the MACA as well.
God Luck and God Bless
KIM
September 5, 2008 at 8:11 pm
H
September 9, 2008 at 5:06 pm
hi all, just to give you an update, had hysterectomy 8 weeks ago, largest fibroid measured 7″ in diametre approx. and weighrd FOUR AND A HALF POUND!!!on its own………couldnt beilieve it, but now im healing great and just starting to get back to normal, its the best thin g ever, good luck to everyone, and dont worry if having a hysterectomy, im saving a fortune on tampax! and iv e got no pain anymore at all, no bleeding an all the usual crap that goes with fibroids.if you want to ask anything , just post me!!
xxx
September 25, 2008 at 10:50 pm
Thank goodness I found a sight like this so I don’t feel so crazy. I was diagnosed 2 months ago with 3 fibroides 8-5-and 2″. My hysterectomy is scheduled for Nov 13. The last year I have gained weight around my middle. I have been to the specialist and been diagnosed with restless leg syndrome (someone else in the earlier comments also had been diagnosed with this any others?) I have been so fatigued due to being anemic. On the iron suppliments now can’t really tell you that I feel better because I feel so overwhelmed by my constant growing belly and everything else that comes with having fibroids. I am so cranky. I’m so glad some of you have also mentioned the feeling of movement as if being pregnant. I came on this site to find out how much these things might weigh when I loose them. I guess by everything that I have read that I should expect including my uterus I will loose between 5-12lbs of weight. It feels like I am carrying the same amount of weight as I did when I was pregnant. My doctor says that I am at about 18 weeks. Just lately I feel that things are changing. It feels like all of the sudden I can feel the symptoms so many of you are talking about. I feel a pain in my side. Pressure all the time pushing down on my bladder. I can drink a glass of water and my belly will distend and then of course I wish I could just a normal pee.
Just wanted to share and I can’t wait to feel better.
Take care to all of you
October 18, 2008 at 3:39 pm
I have two fibroids and am going for my 2nd ultrasound in one week. They are big and measure 11.7 cm and 12.4 cm. Any idea how much these weigh. They are inside my uterus. I’m friggin scared.
November 13, 2008 at 5:34 pm
I had 20 fibroids removed (some of which were quite large) and did not lose any weight afterwards. My doctor explained that the fibroids in fact do not weigh anything relative to our overall weight. I thought that my stomach would have decreased post operatively but it did not.
November 13, 2008 at 5:37 pm
To further clarify, my uterus was the size of a five month pregnancy, but I still did not lose any weight after the surgery (maybe 3 pounds lost but I think this was due to less eating not the surgery). And by the way, Dr. Charles Ascher -Walsh at Mount Sinai is the absolute best for fibroid issues!
November 18, 2008 at 9:43 pm
I am having a total abdominal hysterectomy 11/24/08…I will be 60 on Dec 4th and have never had children…This is my first surgery and im scared but have no choice…I brought this on myself by waiting for so many years to take care of this problem…I have extreme back pain, bloating and stay tired…The thing measured 21cm about the size and shape of a football…Doc said he would have to do a vertical cut to remove the monster….Im ready to have this done and over with….You guys say a prayer for me and I will let you know the outcome when I can….This site is wonderful and I couldnt have made it this far without it…It has helped me face what is coming up on Monday…I feel I am not alone and have people to talk to that have been and are going through the same thing…I am so glad I found this….You guys take care….Vikki
November 19, 2008 at 11:25 am
Wow Vikki! Best to you on Monday. I’m 53 and I’ve been “waiting” too… after getting an endometrial ablation for the bleeding (that worked great!) However, I’m starting to get back pain and I’m just ready to get these darned things out! But I’m still hoping I’ll get a lap myomectomy… The more I read about these darned things, the more I’m convinced that waiting is often a really bad decision… they just get bigger and they become harder to remove and we get older and it’s harder for us to go through too!! I’ll send good thoughts your way on Monday! Keep us posted, I’ll look for you on the hysterectomy thread.
November 19, 2008 at 2:11 pm
Thanks Amy….every heartfelt thought and prayer is very much appreciated….Im going to pre-op in about 30 minutes to see exactly what im facing….I think I have everything in order…gave 2 units of my own bood and have my health care directive under my arm…just in case….I dont have much family left but my best friend has offered to be there with me through the entire time in the hospital…will be there 2 days if all goes well…must run for now…thanks again for the reply..vikki
November 19, 2008 at 2:18 pm
Amy….My best advise to you is to go ahead and have it done….my quality of life has been so bad for so many years because of waiting….from everything I have read you will feel like a different person….so dont wait too long….wish I had done this when I was 53…but as they say…hind sight is 20/20….so…think about it…vikki
November 23, 2008 at 9:14 pm
Hey Vikki,
Good luck tomorrow! Will send thoughts and prayers you way tomorrow! You’re almost there!
December 1, 2008 at 6:12 pm
Hi Amy….Well…Here I am….made it through just fine…was nothing like I had expected….wonderful hospital…wonderful nurses….I had pre-registered so that was a breeze…they hooked me up to an iv at 7 am took me into a room and gave me a spinal which was no big deal and that is the last thing I remember until 2 and a half hours later when I woke up in my room…still had the cath in…no pain whatsoever….the doctor recommended the spinal so I wouldnt wake up with so much pain…kept the cath in till the next day then it was taken out….so was the iv and i was put on tablets…never really had any bad pain until i tried to pee and that pain was because i was so full….couldnt do it to save my life….so they had to cath me again which scared me to death but it was nothing to it….I had a drain tube in my lower stomach which was taken out wed morn….they started me on solid foods tues morn….had me up walking by tues morn after cath taken out…Pain not bad at all….He had to call his wife(she is an obgyn) in to help with the surgery because I had so many adhesions (spelling) and my abdomen was so distorted and of course the 3 1/2 lb tumor didnt help much….no cancer to report….said I was in the top 5 percent of people he had operated on with large tumors..I feel so much better even though it has only been a week…he cut me from my pubic area too above my naval…but I still feel so good…no shortness of breath anymore…no huge belly….and I have lost 11 pounds since last monday….that includes the tumor….so my advise….have it done….Im gonna be a new person after this…can walk the mall….go to the mountains….go to bellengraph (spelling) gardens in alabama and so much more…I am so happy…..thanks for keeping in touch….and thanks again for the prayers….I know there was a friend standing at the right hand of my doctor along with my mom who I lost 6 yrs ago…..talk to you later….vikki
December 3, 2008 at 3:56 am
Hi Vikki! what great news! I’m glad it went so well especially given everything you had going on! What a kick, calling in his wife to help
and I can’t even imagine a 3.5lb tumor! Was it a fibroid too?
And how wonderful to once again look forward to enjoying activities you used to enjoy?!
I finally made the call to the surgeon last week, but still no call back
Funny how just because I finally make the decision I expect them to hop to it! Oh well, one can wish. Take care.
December 5, 2008 at 4:39 pm
I am 2 wks – hysterectomy post-op.
I went in for a lap. myomectomy, but when the Dr. looked inside she realized that the Ultrasound results were either completely wrong, or had been mixed-up with another patient, and a traditional “Open” hysterectomy was the only option.
I woke-up without a Uterous – a real bummer, since I have NO children.
I had 8 fibroids. (3 large & 5 small) The largest was ~15 cm.
Total weight ~ 3+ lbs.
I had a tell-tale “fibroid belly bump”, and heavy (but manageable) periods. I also had fatigue, nausea, and that feeling of “something moving around inside”.
But the reason I had them removes was due to the ab and back pain they caused, and the presure & stress they were putting on my bowel & other organs.
I’m still sore, but feel better already.
It was an extremely difficult decision (surgery or not). Although the loss of my uterous was a surprise, my Dr said with 3+ lbs of fibroids, I would never have had children anyway, and I have no regrets.
For those of living with fibroids, or facing the same difficult decision (and those who are now fibroid free!)
Good Luck To You, and I wish you all the best!
Our hearts are with You.
December 6, 2008 at 3:29 pm
Hey Amy….I found out at my post-op on wed the 3rd that my tummy was full of fibroid tumors….I think the total of all was 3 1/2 lbs….he didnt make that really clear….but doesnt matter now cuz all of em are history…I hope you follow up with your doctor…im like you….want everything right now..ha…but keep after him….it will be the best decision you have ever made and I promise after you start to recover you will feel so much better….please keep me posted on your progress..vikki
January 12, 2009 at 12:07 pm
Hi,
I had a 2.5lb fibroid removed and it was 6″X6″x5″. Kind of egg shaped. Hope this helps.
February 3, 2009 at 2:59 am
Thank goodness for this site and board! I am feeling better about my decision to go ahead and schedule a hysterectomy for March. I am 51 but still having regular periods, no symptoms of menopause yet and my mom had her menopause in her late ’50s, so I could have had these big fibroids filling my uterus and wearing me out for 10 more years before menopause “shrinks” them naturally.
I went through ultrasound (vaginal) and an endometrial biopsy this summer and have several fibroids, including one large one which they say is filling the uterus and making it like a 2nd trimester pregnancy. I have had both a vaginal birth and a C-section birth so I am well acquainted with pregnancy and surgery.
My surgeon says she will do a vaginal hysterectomy. I am so looking forwar d to it. My quality of life has been sorely affected. My periods are dreadfully heavy, painful, tons of clots coming out, horrid pain, headaches, dizziness, fatigue, and on and on. Lately I have felt the fibroid/uterus “move” and I was relieved to read here that I am not the only one who’s felt that. I am having back pain now and also weird pains in what I think are my ovaries, not to mention fullness, bladder pressure, and looking like I’m pregnant.
My boyfriend, who is otherwise a wonderful guy, has used the “fat” word in discussions with me! I keep telling him that I am not fat, just fibroid-full. It will be fun to show him my figure once I’ve got this removed and got some exercise and weight loss. My goal is a bikini when I’m 52. HA!
Thanks, everyone.
April 6, 2009 at 9:45 pm
I had a Abdominal Myomectomy on 3-27 and lost nearly 30lbs ! One of my fibroids alone was like 15-20 lbs
May 18, 2009 at 1:11 pm
I am so happy I found this site! I almost cried (joy tears). I am 29 and am extremely active. I am a LMT, Personal Trainer, and a soccer coach. I eat around 1000-1300 cal/day (except for when I indulge a little on the weekend) and do at least 30min of weight lifting (3-4 times a week) and 1hour of cardio per day. Weight gain, or not being able to lose weight, has to be related to fibroids…it just has to!
I weigh 135-145lbs and am 5′6”(I fluctuate a LOT). I cannot seem to get under 135. I bloat in my lower abs and in my buns and thighs. So strange! Is anyone else very active and eats well but cannot seem to lose weight!?
Oh i forgot to mention that my uterus is riddled with fiboids! Before Lupron treatment, my uterus was the size of a 14week pregnancy.
May 31, 2009 at 1:43 pm
Update-
I had A Football sized fibroid removerd via hysterectomy- It was like being 9 months pregnant for over 10 years !!
I feel so much better.
The strain that this large mass put on my body was far greater than I had realized.
I now have far less fatigue, my bladder & bowel work better, less back pain…..
An unexpected benefit, my migrain headaches have all but stopped.
I hope all my Fibroid-Sisters will find as good , or even better outcomes, than I have had!
God Bless.
June 8, 2009 at 3:33 pm
Just wanted to thank you for this site. I thought that most of my symptoms were in my head. I guess we do know our bodies better than we think. Surgery is July 2nd and for once I feel at easy and ready. Thanks for the great info..
June 8, 2009 at 3:46 pm
Update:
Well, I am now 2.5 weeks post-AM and have lost 6 lbs. I went into surgery at 137 and I am now 131! I haven’t weighed 131 since I was 25 (im 29 now). I have more energy during my recovery than I did prior to surgery! I also have less back pain and urinate less frequently.
Jass-
Good luck with your surgery! I bet you cannot wait to be rid of the life force suckers!
July 9, 2009 at 1:57 am
How exciting to hear from so many women who now no longer have headaches! I am two weeks post op (TAH 16 wk pregancy fibroid removed – dont know how much it weighed) and I havent had a headache since. I was thinking it was only because I have been on pain meds/anti inflammatory meds since then. Hopefully I have seen the last of headaches.
Re weight loss, I had put on about 4kg (62kg/136lb) in the 2 months leading up to my operation (due to not being able to run and due to fibroid growing) and lost 2kg (4.4lb) immediately as a result of the operation. I have 2kg to lose still.
Re size loss. My waist is not as small as it was before the fibroid did its fast growing phase (in the 2 months prior to op), but its not far off. I fitted into some work pants in the morning yesterday for a job interview. By the afternoon, my waist measured almost 2 inches more. The muffin top is the main problem post op for me. Its very tender and I cant stand wearing tight clothes. My waist and the muffin top gets bigger over the day.
Good news – I feel great now. Much better than pre-op. It makes me realise how much pain and discomfort I was in before the op. I dont regret it a minute. Good luck everyone!
July 15, 2009 at 8:55 am
Kim – Good to hear that your surgery went well and that you are feeling so much better now.
I had my AM on 29 May and like you, lost about 2kg on the table. Your muffin top will disappear soon. I was comfortably wearing jeans and pantyhose (not together!) by the end of week 5 and whilst everyone heals at different speed, hopefully you will be back to old size really soon (if not already).
I hope the rest of your recovery goes well.
Cheers.
July 16, 2009 at 1:05 am
Sorry, make that an AH (hysterectomy rather than a myomectomy).
July 17, 2009 at 1:12 pm
So glad to find this site! I have been struggling with fibroids for about 10 years but luckily have had relatively little pain and normal periods until recently. My doctor and I had planned on “sitting it out” until menapause or possibly doing UEF in necessary. Unfortunately, in the meantime my uterus and cervix have “dropped” and a hysterectomy is necessary now. My dilema is whether to try Lupron for 3 months to see if it will shrink my fibroids enough to do a vaginal hysterectory or go ahead with an adominal hys. I’ve heard horror stories regarding Lupron and I have a very high level job, I don’t know if I can risk turning into a pschopath for three months for the possibility of an easier recovery. Any lupron experience is appreciated. I also am struggling with the weight and its bugging me. I’m probably up about 15 lb and my stomach is so bloated — I used to have such a flat stomach and I excersize ALOT — but minimal changes I think, due to fibroids and pontentially birth control pills. I have to say, I am almost looking forward to having it all ripped out and being normal again, I’m just scared about the Lupron!
July 28, 2009 at 2:14 pm
Like all of you, I have fibroids and my mid section is growing! I do not have any other symptoms! I was told that my uterus is about a 5 months’ pregnancy. I thought that I was gaining weight. Anyway, I want to have an operation and my Ob-gyn suggested hysterectomy since my husband and I have never want to have kids. On the other hand, I am afraid of the cutting me open…I realize that there is ultra sound operations which I am not sure if I am the right candidate! I am just confused and a bit scared…I wonder if I will lose some weight post operations…I am going to meet with my doctor in early Aug and I hope that I can decide what to do! So many of you seem to feel better and have more energy….I seemed to be lacking interest in things after knowing about the fibroid issue in middle Jun! I want to have my old self by but at the same time, I am afraid of the possible consequences of the operations!
July 29, 2009 at 8:51 am
HB – Its normal to feel scared. But you need to be absolutely sure that the hysterectomy is how you want to proceed. Its a very serious operation. The last thing you need when you are recovering is doubt about whether you did the right thing or not. Your doctor should be able to talk to you about all of the options available to you and their pros and cons (and refer you to someone else if he/she doesn’t do them). You should also ask your doctor lots of questions about the AH you are considering having, how he is going to do it, what the risks are, whether he seen those risks etc. Question everything they say. For me the AH was the way to go and the outcome has been fantastic. I’m nearly at the 9 weeks mark now, and feel wonderfully healthy and normal. I haven’t felt this good in years. And . . . I’m losing weight without even trying – probably because its so easy be active when you feel so damn good!
July 29, 2009 at 11:05 am
Carolyn,
Thanks for your comment! I am very happy for you that you are feeling good after your operation!
I understand that hysterectomy is a very serious operations and my doctor told me that he could consider just removing the fiborids but there is a big chance that they will grow again. My thinking is that if the procedures for hysterectomy and myomectomy require opening my abs, it may be better to have the experience once and not to have to repeat it! Besides, it seems to be easier to take out the whole uterus than to operate on each an every fibroid, I was told that I have many. Thanks for reminding me to enquire about all the questions I have. It is amazing how much information I could get from the internet and all the potential risk that one may encounter, but I will surely bring all my concerns and queries to my doctor. Somehow, I really would like to move on and not to worry about fiborids or whatever they are going to affect my body! It is encouraging to know that you have good results and I will let you know the action I am going to take. Meeting with my doctor next week!!!!
July 29, 2009 at 11:14 am
Kimberly,
I do not know much about Lupron but I surely want to provide some support here for you! I understand how frustrating it is to be working out, eating healthy and yet gaining weight. I share the same feelings and I know exactly what you meant when you want to feel normal again! So, talk to your doctor and make a decision.
August 3, 2009 at 10:01 pm
I just had an embolized, calcified one removed (even dead, it was misbehaving), and it weighed 1,100g.
August 4, 2009 at 2:45 am
Thanks Carolyn, its almost 6 weeks post TAH now. My muffin top is less prominent now and I think I can be OK with it as it is. My waist is back to what it was pre fibroid fast growth phase. I think the main reason I am still not comfy in my jeans is that I am still a little tender and I need to lose 2kg (all this sitting around getting better). Once I get back to decent exercising (am cycling to work tomorrow) I will lose it. I saw my surgeon at week 4 – she said the fibroid weighed 900g which is about 2 lb.
August 4, 2009 at 3:29 am
I just saw all the posts about density – being an engineer this is great to see! My fibroid was about 8cm x 4 x 4 and weighed 900g. Look in your fridge to see something about that weight – perhaps a carton of milk? The milk is heaps bigger in volume than my fibroid. So I think of it as kind of like a stone! Perhaps the density of fibroids varies quite a lot?
August 4, 2009 at 6:53 am
Kim – I am so glad to hear that you are almost back to normal. If your recovery is similar to mine (and I’m only a few weeks ahead of you), even though you’ll be sore for a while you probably won’t notice it very often. I was so happy when I could finally sleep on my stomach and that only happened recently, at about the 8 week mark.
August 5, 2009 at 2:38 am
Kim, that’s really interesting and very strange, I had no idea! Thanks!
August 5, 2009 at 2:42 am
Diane, can you tell us how much it shrank (size, not volume) and in what way it was misbehaving? i.e. were there different symptoms after it was embolized or the same ones never went away? Thanks!
August 11, 2009 at 11:49 pm
HI, I have 6 measureable fibroids & need to have an abdominal hysterectomy due to the size of my uterus. My biggest worry is having to put my life in the hands of a surgeon whom I have no stastistics on ,skill, complication rates,infection etc. Does anyone know of a site or anywhere i can check on the doctors sucess rates etc.